👉 ✅ Come join me in my new course! 🧠 Brain Retraining 101: For ME/CFS and Long Covid Recovery. Enroll now: raelan-agle-s-school1.teachable.com/p/brain_retraining_101
@zeusthegreek46647 ай бұрын
It is expensive. Can you cut the price by 50%? Then I can afford it. Please let me know.
@brandigayle87756 ай бұрын
What’s the cost
@annaray673310 ай бұрын
Yes! Fantastic video! Understanding polyvagal theory and how it applies to this illness has been a key puzzle piece for me. Deb Dana has great books/resources on this topic. Some things to add that have been really helpful to me in putting this theory into practice: 1. ‘Mapping’ my own nervous system - getting to know how the different states feel in my own body 2. The polyvagal system can be seen as a ladder. Dorsal vagal at bottom, sympathetic next, ventral vagal at ‘top’. By default, to move out of dorsal vagal into ventral vagal you must go through a sympathetic state. You have to ride the sympathetic train to get out the other side, and trust that you will get there 3. Learning which tools to use and when depending on which state I’m in. When in sympathetic (hyPERaroused) i might want to do calming practices, but also move the energy through with somatic practices or more vigorous movement. When in dorsal vagal (hyPOaroused) i might need some gentle stimulation and small gentle movements to encourage myself up the ladder rather than more calming practices 4. Some suggest that freeze and shutdown are different states. This is my experience. Freeze as a blend of sympathetic and dorsal vagal - ‘I can’t but I must’. Shutdown as dorsal vagal dominant - total collapse. Thank you for all that you do Raelan!
@RaelanAgle10 ай бұрын
Wow, Anna, thank you so much for sharing such valuable information! ❤️ Super grateful for your support! 🙏
@maryfarrell943910 ай бұрын
I agrée. Feeewze and shit down are different. Freeze is a response state. Shit down is what your body does to protect itself. It doesn’t need uniment threat or freeze response to trigger it. When we’re at our worst, standing up can be enough to trigger it, and there’s nothing « freeze » about deciding to stand up and go to the bathroom or have a shower.
@nataliecarew561810 ай бұрын
Totally agree freeze and shut down are different
@pradyumnnahata96656 ай бұрын
Thanks for this comment. Adds value to an already great video.
@anthonyw648810 ай бұрын
Great video. I have found with my dysautonomia and PEM/CFS is no matter how many supplements, acupuncture etc that I take if I stress out excessively I fall back into the strong long covid symptoms. MY problem, and I suspect with many folks is our inability to "let go" of what is happening around us. I have this inherent need to fight which manifests as a desire to "stick it out" "push thru" a challenge, prove I'm strong or a good boy. I have no doubt that this response drove covid deep into my system as i went back to work (at home) while I still had covid, rather than resting. :)
@RaelanAgle10 ай бұрын
Oh, it's such an easy trap to fall into, isn't it? Please keep focusing on self-care, and remember, you're doing your best. 😊
@katesun295710 ай бұрын
Funny that people like us....the fighters....are hit the strongest?
@jeansmyth747410 ай бұрын
I sat down and worked out how long I could go without experiencing symptoms. With me it was half hour. I stayed mildly active for half hour and then rested for hour and did this throughout the day. At first I had to adjust this to ten minutes in evening and rest totally in evening from 5. After 7 years of severe illness by making baby steps in increasing my activity by 5 mns every fortnight after two years I am back working and leading normal life. Needed lot of discipline and family support. My illness was due to an old virus that kept reactivating itself and by slowly regaining my strength while still holding virus back I was able to defeat it. When I was able after about 6 months I started gentle yoga with iPad sessions. Mostly relaxation at first.
@jeansmyth747410 ай бұрын
@Truerealism7479 ай бұрын
@@jeansmyth7474brilliant what virus did you have did you have fybromyalgia
@philweaver45710 ай бұрын
The breathing exercise that I have found to be the most effective for me has been to breathe in deeply and then hum out. Maybe a slight hold on the out if I feel like it. I do this for 9 minutes. Why 9? Idk but 9 worked the first time so never tried any other amount. The humming extends the outbreath and some theorize that it stimulates the vagus nerve. Maybe this is a 2 for 1 exercise. Breathing plus vocalization. I find that at about 20 minutes after the exercise my symptoms are gone or diminished
@philweaver45710 ай бұрын
I also do this just before going to sleep and I think it improves sleep
@RaelanAgle10 ай бұрын
So good to hear about your experience, Phil. Thanks for sharing! ❤️ It's so helpful!
@santeenl10 ай бұрын
Voo breath :) vagal toning indeed
@kathy.747510 ай бұрын
Thanks for sharing. I did the breath/hum today. At first I felt worse but about half hour later my mood was noticeably lighter. Humming does indeed tone the vagal nerve.
@taragunn940010 ай бұрын
Love humming!
@alexandrecouture246210 ай бұрын
Wonderful video! I had a week of being fully recovered from LC one month ago and then I got covid again and it was difficult to be back to LC after that. It's heartbreaking, but I'll continue to work on my recovery as much as possible.
@RaelanAgle10 ай бұрын
So sorry to hear about the setback, Alexandre! You'll make progress again - stay strong! 💪🌟
@alexandrecouture246210 ай бұрын
@@RaelanAgle Thank you!
@tanyawieczorek66037 ай бұрын
@@alexandrecouture2462how are you doing now?
@louiscervantez163910 ай бұрын
Thank you! Two “takeaways” 1. I didn’t realize how necessary a “safe place” is to folks and 2. Self care like compassion & thanking self & inner dialogue (quieting chatter is especially critical 4 me) ) are important for caregivers!!! One gets tired with the constant inner chatter about getting a loved one ‘fixed’.I appreciate you Rae.
@jvvallie10 ай бұрын
I can't wait to be fully recovered and be on your channel.
@RaelanAgle10 ай бұрын
I'm looking forward to that, too!
@Domsterman8 ай бұрын
Another great video with wonderful ideas how to calm the nervous system which is absolutely key when retraining the brain and recovering from CFS. The biggest challenge I find is to stay calm and optimistic in the face of seemingly never ending symptoms. We basically have to fervently believe in recovery before seeing the first positive signs that it is actually possible. Raelan‘s videos, especially when watched daily, go a long way to keeping those spirits up. Thank you so much for your wonderful work, Raelan! We are all so thankful for it.
@RaelanAgle8 ай бұрын
Much appreciated, Dom!
@magdachrzastek23406 ай бұрын
Wonderful video as always....Great some bodywork therapies have been mentioned. I probably wouldn't be here now if not for craniosacral therapy. It helped enormously not only calm my ANS but also to help my tight membrane where cerebrospinal fluid flows. Covid has tendency to inflame the brain and interfere with healthy blood flow (some also going through the mambrane) and craniosacral therapy have been amazing in releasing some of the tensions in the membrane system, improving headaches and my vision. Personally, I don't know where would I be without craniosacral therapy. Sending lots of love to all. May we all find our way to full recovery.
@Roberto-Escobar10 ай бұрын
Amazing explanation of the polyvagal theory. its understanding this that helped me heal from long covid. Great job Raelan! Many that find this will be helped by this video
@RaelanAgle10 ай бұрын
So happy to hear that, Rob! ❤️
@AnrupB10 ай бұрын
Great job! I started healing so much as soon as I realized my pattern of traumas and old experiences I held onto were mostly based on being in freeze and not speaking up. A lot of therapy and meditations around this, nature walks, visualizing myself actually speaking up, crying to release (inner child and timeline therapy), etc. all so helpful. So happy to see you digging deeper! My trauma informed background high fives you with music therapy in the form of a loud boombox lol.
@RaelanAgle10 ай бұрын
Thanks for the high-five boombox, Anrup! 🎵 Keep rocking those positive changes! 🎸🌟
@tammygravis146210 ай бұрын
I wish you'd interview a vax injured but doubt many have recovered. I"m trying it's a battle.
@cespo776 ай бұрын
What have your symptoms been and how are you now?
@fatmittens10 ай бұрын
Thank you so much for this. It's such a tricky topic to try and explain to those who tell you to 'put your big girl pants on' and get on with it! I wish I could. I'm doing my best 🙂xx
@RaelanAgle10 ай бұрын
You're doing your best, and that's what matters most. Much love to you Samatha ❤️
@katesun295710 ай бұрын
Don't you just love to hear that, when you've overcome so much more then "normal".
@cookwithjazz330310 ай бұрын
Thank you for this episode and the article abstracts. I immediately saved them to PDF to share as needed with the skeptical medical community. I have had ME/CFS since 2019, then COVID in March 2020 and again just recently. I've been working with polyvagal theory in the context of complex PTSD, but this is the first time I've seen that someone has referred to it in the context of ME/CFS or long COVID.
@freddieds10 ай бұрын
Thanks for sharing Raelan! Just wanted to express my gratitude for all your videos. The education around cfs really has allowed me to shift my recovery journey with a better understanding of what's going on (comforting) and enabling me to practice new things to support my recovery (that I would have previously been closed minded about). Still early days and haven't seen the shift in symptoms yet, but am feeling more hopeful and confident in a recovery again which feels like the first important step :)
@RaelanAgle10 ай бұрын
Wow, that means so much to me, Freddy! ❤️ Keep at it - you've got this! 🌟
@MariaSotiropoulou8810 ай бұрын
This last part of the video can easily work as laughter yoga. I loved it! Thank you for spreading laughs as well 😂🥰
@RaelanAgle10 ай бұрын
@josephashwell865810 ай бұрын
Raelan , I have watched lots of your videos, so I figured it was time I subscribed. I am a recovering from long Covid, it’s a long and challenging road and I find your channel is a great source of information and inspiration- thanks x
@RaelanAgle10 ай бұрын
Thanks so much and welcome aboard, Joseph! ❤️ I'm so happy that my videos are helpful 😊
@imalive517610 ай бұрын
How did I recover? I'm almost 4 years old
@tanyawieczorek66037 ай бұрын
How are you doing now?
@josephashwell86587 ай бұрын
@@tanyawieczorek6603- well , partially recovered , I would say, but still working on getting back to full fitness…little by little 😊
@OnaWhim1510 ай бұрын
Stephen Porges developed the Safe and Sound sound therapy protocol. It’s passive rewiring of the autonomic nervous system. You can get access to the music through any certified Unyte Health Practitioner.
@Miss-Hellcat6668 ай бұрын
I looked this up and it seems really effective! I wish it was more readily available, it would change lives.
@skyzablue7918 күн бұрын
I really like how real Raelan is!
@yumzsid10 ай бұрын
This is fantastic. Polyvagal theory is one of the first things I learned when I started psychotherapy after my ME/CFS onset. That being said, it still took me some time to make the connection between my symptoms and this theory. You did a fantastic job explaining it!
@RaelanAgle10 ай бұрын
Thanks! So glad that you're making great progress on your recovery journey - keep it up! 🌟
@francinesanchez540210 ай бұрын
I appreciated your message of hope at the end! It’s a lot to try and a lot of info to take. But it’s worth it, if recovery is on the other side
@RaelanAgle10 ай бұрын
You're spot on, Francine. Stay tuned for an upcoming video on how to start without feeling overwhelmed. Keep going; you've got this! 🧡
@meredith227710 ай бұрын
Deb Dana's books and work have been great in my work as a therapist, and are worth checking out.
@RaelanAgle10 ай бұрын
Thanks so much for the recommendation, Meredith! 🌟
@zeusthegreek466410 ай бұрын
How do you stop or mitigate getting symptoms during a sleep cycle. I can feel my body warming up, and bam I wake up fatigued and with sore muscles. Do you know of a strategy to stop this or minimize it.
@danubefoundation29272 ай бұрын
3-4 weeks on H1 and H2 blockers as well as a combination of alpha keto glutarat and 5hmf, 20 mg (furfural) made a huge difference for me, i was barely able to push a shoping cart- to at least physical 90% recovery (depression still present, but workin on it) .. did lots of other stuff too, but the main shifts happened when i started doing those..
@blakeaaron569810 ай бұрын
Well done, these are imperative connections to understand on the healing journey.
@carolnascimento74944 ай бұрын
Thank you Raelan for your support!
@taragunn940010 ай бұрын
Really great to have scientific links to share with some other communities who are mostly waiting for the magic pill cure. (Of course if there is one as well that would be amazing- but I believe nervous system repair is key)
@willekesnijder463510 ай бұрын
Totally agree with this
@RaelanAgle10 ай бұрын
@sandyzup711310 ай бұрын
And ones again she made one of the best videos on a topic! Thank you! 🙏🏼🤭
@RaelanAgle10 ай бұрын
Thanks so much Sandy! ❤️
@chadclay0110 ай бұрын
You are awesome Raelan! Appreciate all you do.
@RaelanAgle10 ай бұрын
Thank you so much Chad! ❤️
@evelinel.982710 ай бұрын
Excellent video--so glad the word is getting out through you and others Raelan!
@RaelanAgle10 ай бұрын
Thank you, Eveline ❤️🙏
@cabeysgeckos871010 ай бұрын
Thanks Raelan, love watching your videos, you have helped me more than anything else in my recovery of which I'm 90% there. I now refer your videos to anyone else on Facebook etc starting out on there cfs journey. I still can't run more than 5 minutes at a time without a flare of symptoms but with your running strategy I'm getting there. 😊❤
@RaelanAgle10 ай бұрын
So happy to hear that, Cabeys! Wishing you all the best and I hope you find what you need to work through this. ❤️
@myfamily700110 ай бұрын
Thank you raelan, you're amazing ❤ keep up your good work, we all appreciate it so much!
@stealthelf504810 ай бұрын
Hey I have a question? Did you have to deal with symptoms of POTs during your recovery/journey? Big thanks for make those videos❤
@gregschmelzle822710 ай бұрын
GreT job Raelan! So thankful for all of your videos, they help us all so much!
@RaelanAgle10 ай бұрын
Thanks so much, Greg! ❤️
@jilllamonterealestatespeci70007 ай бұрын
I love love love listening to your podcasts! I always walk away with learning something new towards recovery or reinforcement reinforcement that the path I’m on will indeed work ❤
@tuulavoutilainen53066 ай бұрын
Just listening to you Raelan is calming, grounding, and reassuring, almost irrespective of the topic❤
@PeaceIsYeshua6 ай бұрын
16:16 😂 So cute!! This would so be me! Thanks for being real with us! ❤
@user-vt4ey4hm9m9 ай бұрын
I just found your videos and I am really grateful to hear you talking specifics about long COVID. I am facing symptoms since my infection in 2021 and I usually look information about ME/CFS because is what more resonates with what I am going trough. I hope to also find my full recovery. Thank you for all the information, I really appreciate it ❤️
@martinamartina591910 ай бұрын
Thank you ☺️ i was doing Anj's program and she mentioned it, but i need more info about it and study it more.. Your video really helps ❤
@RaelanAgle10 ай бұрын
Wow, Martina, thank you! That makes my heart sing! 🌟
@mariegracebrabandt80289 ай бұрын
Hi Crista, great interview, ladies. Much needed information needs to get out, and you're doing it. I'm in the program with Crista, and it's been a game changer. Like you said, Raelan, this info wasn't out for us years ago. I've had it for 50 years. I'm so happy I found your channel as well. You all have something different to add to the table. ❤🎉🎉❤
@user-id2zg3uz1k10 ай бұрын
love this video. Poly vagal theory has been key in my long covid recovery
@RaelanAgle10 ай бұрын
Great to hear!
@oliviakahlo110 ай бұрын
Gaz Medinger (sp?) interviewed a microbiologist who has found cellular evidence of viral persistence even post mortem 😮. If she’s right, then our immune response, and SNS, virtually doesn’t get a break. 😢
@Jojorocks2310 ай бұрын
Viruses go dormant as to the Chicken pox virus later causing cold sores and Shingles. As well, on post mortem… some 70-90 year olds had large kidney and gall stones but never complained if pain. Hip and back fractures too but never complained of these issues. Something to think about as to how our sensitized brain/body connection works.
@omygod906210 ай бұрын
Michael Vanelzzaker is doing brilliant research….
@RaelanAgle10 ай бұрын
Yes, absolutely ❤️ It would be wonderful to have him as a guest!
@omygod906210 ай бұрын
@@RaelanAgle oh please get him….he’s so intelligent and he’s right on the money when it comes to what the hell is going on….xx
@tanyawieczorek66037 ай бұрын
@@omygod9062 what does he say?
@joanrankin282710 ай бұрын
You explained this so well!
@RaelanAgle10 ай бұрын
Thanks so much, Joan! 🙏
@katrinaannaplavniece78905 ай бұрын
Full spectrum daylight, sunlight on skin and in our eyes is very healing! Sunrises and sunsets ;)
@mirandaandrea821510 ай бұрын
You are a blessing Raelan!❤
@Risingtides5010 ай бұрын
Another amazing video! I need all the food for thought I can get thank you 🖤
@sarahdean644110 ай бұрын
Really great video, will be working on the suggestions .
@AngelinasSpinningHead-xc1vz9 ай бұрын
AMAZING video!!! Thank you so much Raelan ❤️❤️
@lianpeet350210 ай бұрын
I'd love to share my story on your channel, Raelan. I love your videos and appreciate all you do ❤
@RaelanAgle10 ай бұрын
Please do, Lian! There is a link in the description box under the video on how to do that. 🌟
@lianpeet350210 ай бұрын
I did it! Do you still have people on lists months long? It's so wonderful that you have SO many recovery stories to draw from!!😊
@alexholland202210 ай бұрын
Another great video. So many good tips
@cecilesurier297710 ай бұрын
Great video, thank you Raelan! Love the outtakes 😂
@RaelanAgle10 ай бұрын
Glad you like them! 🙈
@suzannax10 ай бұрын
Invaluable information
@gailalbers14306 ай бұрын
i would say ; drop the bloopers- not necessary - you come across as really compassionate and caring - that’s enough . ❤
@sherrimalone30235 күн бұрын
keep the bloopers. Any opportunity to add humor to my life is right up there with breath work, nature, etc.
@ProjetSoma10 ай бұрын
Please interview the people behind CFS School!
@RaelanAgle10 ай бұрын
That would be wonderful, Andréane! Thanks for the suggestion 🌟
@alexandermeyer664710 ай бұрын
Great video! Thanks!
@Scaramouche_Anonym10 ай бұрын
thank you from germany!
@dt41lt9 ай бұрын
Very helpful thank you!
@RaelanAgle9 ай бұрын
So glad!
@user-et4kf3nl2r10 ай бұрын
This is very informative and very clear to see . Thanks for your work . Do you edit your video by your self btw ?
@RaelanAgle10 ай бұрын
Thanks! And no, my amazing video editor Hanzla takes care of that :)
@angelina830310 ай бұрын
Thanks
@RaelanAgle10 ай бұрын
Much appreciated, Angelina! ❤️
@MrKelso8510 ай бұрын
Has anyone got over the POTs sleep tachycardia symptoms?
@tanyawieczorek66037 ай бұрын
Those are my exact issues too. Did you find something that helps?
@MrKelso857 ай бұрын
@@tanyawieczorek6603 yes. Anti histamines and no food within 8 hours of sleep if possible or light meal at 7 at the latest
@thedonofm-town18566 ай бұрын
covid messed up my sleeping patterns. .. i wake up 7+times a night and constantly dreaming.. it feels like i dont have any restorative sleep at all. This is started as soon as the covid illness was over. You mentioned putting a focus on sleep.. hence why I messaged. any thoughts on this please raelan?
@bernhardmarsden23129 ай бұрын
There is still one big thing which I dont get about it all: you described in your own journey how you had to bounce boundaries with graded exercise for 2 years to get really well. I experience something quite similar on my way back of having to bounce boundaries. I totally see the way my ans gets activated and i feel in a very calm, connected and social state and in good control of my ans. Why do i still have to bounce boundaries for so long and why is my body not getting back to its original strenght faster as was the case for you?
@RaelanAgle9 ай бұрын
Every recovery journey is a bit different. I hope you find your puzzle pieces, Bernhard! You've got this! ❤️
@tanyawieczorek66037 ай бұрын
Was there a dog or cat on the sofa at 11:21 😳 what was that shadow?
@maryfarrell943910 ай бұрын
Cos it’s not sll in our heads. It’s not a state of mind. Jeesh.
@gram34826 ай бұрын
Autonomic nervous system Disregulation, yes; but WHAT is causing disregulation of the vagal nerve? Stress does impact disregulation. That's a prime claim along with exercise intolerance of those with CFS. Much of this presentation tends toward the notion that " it's all in your head". Maybe there's a more physiological explanation. Maybe there's some agent/pathogen directly interfering with the physiology. May we infer the word 'poison'? It seems this is what we're talking about when we use the word 'covid'. Covid IS a poison. It's no good for you. Covid (vax) also IS a poison. It's been documented by French researchers years ago that interference/blocking of the a7 nicotinic cellular receptor by a toxin can cause disregulation in the autonomic nervous system, thereby negatively impacting brain stem function, explaining severe disability such as food aspiration; blurred vision; brain fog; weakness; dizziness; and many other 'physical' abnormalities. One of the main entrances of covid is accepted that it enters thru the respiratory system. It festers in the nasal cavity where it can spread to nearby sensitive receptors....
@333_Tarot10 ай бұрын
I have an information for you, will contact u later thru email ✌️