Researcher, Clinical Trial Participant, Ambassador, & Advocate: Meet Shandra

  Рет қаралды 4,331

Friedreich's Ataxia Research Alliance

Friedreich's Ataxia Research Alliance

Күн бұрын

FARA's Mission is to marshal and focus the resources and relationships needed to cure Friedreich's Ataxia (FA) by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases.
Friedreich’s Ataxia is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich's Ataxia.
Subscribe to FARA's KZbin channel / fara1998
Follow FARA on Facebook / curefa
Follow FARA on Instagram / curefa_org

Пікірлер: 2
@akshajdabral287
@akshajdabral287 8 ай бұрын
hi , Please make this (Omav) a available in India. Nobody is ready to take initiative...Please take a look at this matter in India....
@padraigcoyne783
@padraigcoyne783 Жыл бұрын
Inspirational!
"This is our FAmily": Meet the Juips
6:31
Friedreich's Ataxia Research Alliance
Рет қаралды 10 М.
Living with FA & Contributing to Research - The Impact of Two Sisters: Meet Scarlett & Lilah
7:57
Friedreich's Ataxia Research Alliance
Рет қаралды 1,5 М.
The Joker wanted to stand at the front, but unexpectedly was beaten up by Officer Rabbit
00:12
Brawl Stars Edit😈📕
00:15
Kan Andrey
Рет қаралды 53 МЛН
Running With Bigger And Bigger Lunchlys
00:18
MrBeast
Рет қаралды 84 МЛН
FA Community Conversations Genetic Therapies Webinar | Recorded August 29, 2024
1:05:02
Friedreich's Ataxia Research Alliance
Рет қаралды 454
Omaveloxolone Approved for Individuals With Friedreich Ataxia
12:45
Neurology Journal
Рет қаралды 2,3 М.
Astellas Pharma ASP2016 Cardiac Gene Therapy for Friedreich's Ataxia Informational Webinar
40:14
Friedreich's Ataxia Research Alliance
Рет қаралды 127
FA Community Conversations | May 2, 2024
1:01:35
Friedreich's Ataxia Research Alliance
Рет қаралды 281
JDRF: Life with T1D--Lili Roden
6:53
Lori Lee Roden
Рет қаралды 4
FARA Flash Talks 2023 Series - Session 4
53:22
Friedreich's Ataxia Research Alliance
Рет қаралды 438
FA Symposium 2023: Mental Wellness Workshop
41:55
Friedreich's Ataxia Research Alliance
Рет қаралды 128
FARA Pediatric Research Initiatives Webinar | January 25, 2024
1:00:47
Friedreich's Ataxia Research Alliance
Рет қаралды 397
FA Symposium 2023: Rare Disease Prescription Roadmap (Part 5 of 7)
38:30
Friedreich's Ataxia Research Alliance
Рет қаралды 167
About Human-Animal Bond Research
3:16
UAZ College of Veterinary Medicine
Рет қаралды 193
The Joker wanted to stand at the front, but unexpectedly was beaten up by Officer Rabbit
00:12