Self-Advocacy and Improving Your Parkinson's Care

[@Michael-he7xn]

Outstanding episode guys and gals! Towards the end it was mentioned about getting to the point of acceptance of the diagnosis and then learning to live your best life. Something I need to work on. Denial, wishing it away and withdrawal isn’t very helpful.

[@splashesin8]

Excellent! Lot of things in this to remember and take some notes on. Glad it is recorded, and here to come back to. I am in a place where there's a bit of a drought on Parkinson's Neurologists. We have other neurologists focusing in different areas and surgical situations just not a person really on Parkinson's though I remember Lorraine I think mentioned they were trying to get with other's of us to find a way, to get a specialist.

[@belindawallace5203]

I’m so glad I found this channel. I live in the UK and while my GP suspects I have Parkinson’s, I don’t have a diagnosis yet, I have an appointment with a neurologist next week. I stayed away from information for most of the time I’ve been waiting for the appointment as I didn’t want to get too stressed during the six month wait but I feel that now is the time to find out more so I go into the appointment a little more prepared. Also wishing Larry a very happy birthday!

[@davisphinneyfdn]

We're glad you found us, too! It seems like you took a reasonable approach: diagnosing Parkinson's can be difficult even for very experienced physicians, and there are so many aspects of Parkinson's. Had you dove head right in, it might have been an unnecessary stress for six months. As you approach your appointment, you might find our worksheets helpful. One of them is about preparing for appointments and is intended to help you bring up your most important questions during your visit: davisphinneyfoundation.org/every-victory-counts-manual/online-content/worksheets/