Sharing the Pain

Struggling with a vestibular disorder is life altering. For Etta, when she was too sick to get out of bed it changed the life of both her and her husband Mike. The journey of adapting to life with a chronic condition was shared between Mike and Etta.
For more stories about vestibular patients on their journey to a life rebalance, you can watch the rest of the Life Rebalanced Chronicles:
vestibular.org...
This video was produced by Unfixed Media, a media production company that shares and elevates stories of humans living with chronic illness and disability. Explore more projects like these at unfixedmedia.com/
VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at vestibular.org...
If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit vestibular.org/
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#LifeRebalanced #MakeVestibularVisible #Vertigo #Vestibular #Tinnitus #Dizzy #Balance

[@KevinTspirit]

2 years now from the darkest period of my life. Definitely not as severe now as that time. Still episodic, but a med I take for my mental health has also helped with the vestibular health. Oddly, I'm now back in the city where it all began, a place I only 2 years ago I didn't believe would ever be possible. Thank you for sharing your most personal experience.

[@allytay208]

My story is similar. Hit me Dec 10, 2018. I started off with 3 days of bppv but knowing more was to come. Went on a vacation 2 weeks later and on the flight home got extreme vertigo. The spinning lasted for 4 days straight. And after was unbalanced and unable to walk straight for another almost 4 weeks. After 5 months I got diagnosed with Vestibular neuritis; bppv and vestibular migraine. After pt for bppv and 5 months of forcing myself to be active I started to heal. Took about a year and a half. Was pretty good other than mild dizziness until after a bout with Covid last October but am functioning well again now. I relate to not wanting to live. Especially with the intense vertigo. I wouldn’t be here if that hadn’t subsided. So many weird symptoms go along with this disease. Keep your head up and don’t give up hope. I was 53 when it started for me. I didn’t panic as much the 2nd round because I had some idea of what it was. There will be some good times. And some bad. Don’t give up hope.

[@danagadberry5129]

Still getting episodes, don’t know what it is! Not as severe as you! Stay with it 😊

[@danagadberry5129]

Yep I’m behind you on this pcp then ent good mri now waiting for neurology.

[@annwalder4741]

So proud you both 🩷💙✝️

[@ryanparkeratx]

This brought back many memories of the time period when I was originally diagnosed with Meniere's Disease about ten years ago. Kudos for staying strong, I know how hard it is in the worst moments when you are feeling this way.

[@vestibularjoy]

Thank you for sharing your experience.

[@krispination]

Bin there! Pure nightmare for me, too. I got back to 80% of my old self thanks to vestibular physiotherapy and reached a 95% thanks to physiotherapy sessions where I got neck massage.