Silence with a Touch: Living with Usher's Syndrome

[@vivianerochel3250]

I’m 42 years old and waiting for genetic testing results, we don’t know what type of mutation I have. Been night blind since seven years old , no peripheral vision since infancy , im terribly clumsy and a RP patient with no hearing impairment. The hardest part of living with these symptoms are in social environment , people don’t really understand and usually find me weird . I’m grateful I don’t have hearing problems yet and I’m really sorry teens are heavily affected by usher syndrome .