Social Security Disability for your autistic child

Social Security Disability for your autistic child.
Welcome to Life On Spectrum Living With Autism. We are creating an online community to share stories and celebrate milestones. Story telling through videos and stories allows us all to learn and grow. Please share our community with others as we live our lives on spectrum.
Visit us at www.lifeonspect...

[@ygbodybuilder3023]

Well I don't think that's a big deal if they can't get back on once they have a full time job especially if they are really capable of working with no issues

[@305EQ]

The way things are going u can’t count on what programs are around 20 yrs from now

[@chadryan9077]

Glad someone said it

[@joshuachurch1923]

I'm an unemployed single father. I have lost numerous jobs because of having to leave or call in.. should I apply? My son is 8

[@joshuachurch1923]

@@taylord7261 I'm not disabled my son is!

[@bumblebee9335]

Yes, if it's affecting your job and show them that you need to be their for your child's disability. Is he diagnosed through a doctor??

[@joshuachurch1923]

@@bumblebee9335 yes he is.. And he's been denied twice

[@bumblebee9335]

@@joshuachurch1923 did they say why he was denied?? Is he high functioning?

[@joshuachurch1923]

@@bumblebee9335 he is non verbal, and his papers say he functions at a 2yr old level and he is 8.. they said he doesn't qualify

[@Roguesheepdog]

My daughter is Autistic, suffers from Epilepsy and ADHD. I waited until she is now 12. I have tried applying, and I still haven't heard anything back. I'm a single parent who works and goes to school full time. I need it it's very expensive to have a person who is medically trained and also skilled in homeschooling her as well as help socialize her in other programs, and then there are the medical bills. I had to quit my 15 year career in law enforcement after gaining full custody of her just so I can be here for her. I am now in medical school to learn more about how I can get her to her full potential as well as this will be my new career upon graduation. The system is too slow and sometimes offers help to the wrong people.

[@estherolawuyi4204]

You're doing such a wonderful job mama. I hope things turn out well for you

[@dadassery7777]

It took us almost 2 years, but finally, it did come through with backpay. The system is pretty broken, but hang in there.

[@daveforgot127]

The young adult can do volunteer work and see it they can handle it. No point in sacrificing almost 20 years of SS income. come on now.

[@bianca_isqueen]

This is the best comment I've seen.

[@shugubrown9567]

Thank you 🙏🏽 good thing I didn’t follow through when they offered it!!!! I wouldn’t want that for my child…. He have a lot of years to go to have a turn around!!!

[@dyllansullivan7283]

Will it effect food stamp benefits

[@decifal]

Does ours.. By a chunk

[@dadassery7777]

We just got approved for my sons disability. In the letter I received there was a long list of rules about what it can and can’t be used for. it seems I can’t use it to supplement the income. I’ve lost having to stay home with him. Is there any chance you can make a video to clear that up?

[@Barbiekiid24]

If you don’t mind me asking how Long did it take to get approved for ssi ?

[@darrinfry2251]

Is the parent Restricted from working because of the daughter on social security.

[@SA-xt1gd]

My son is slightly autistic he can improve over time. However I need to be a SAHM because my career would have a huge toll on my time that I wouldn’t spend time with my kids. I feel like I shouldn’t need SSI for that long. Only when my son gets into elementary school. Right now he’s barely getting any services because of insurance issues and not enough teachers. Idk what to start first

[@estherolawuyi4204]

I know it is hard to know where to start but if you're hoping to find fully remote work from home job then follow Thressa Sweat. She posts daily. I've decided NOT to apply for SSI for my son and get a fully remote job after watching this video and how it may affect him in the future. I also feel like I won't need SSI for long but I want to be proactice about how it may affect him in the future as an adult.

[@sclark223]

I had never considered that getting off, would make it harder to get back on. I have an adult family member who is autistic and has a seizure disorder. She does work part-time but has disability payments to cover necessary medication (the part-time job does not have such insurance, and switching to full-time, would still involve a probationary period without insurance unless it's out-of-pocket, which she cannot afford). The medicines are necessary for her to stay alive. She is in a trap. At age 40, she cannot afford to live on her own. She has managed to live with another family member and buy a used car, which is amazing, but it has been hard. She has to track work hours carefully, so she doesn't go over the limit and disqualify herself for benefits, risking her life. My wish is that businesses and insurance companies would support people with serious conditions, who really want to be productive in society, but still need support to live. I would like to see insurance plans offered more for part-time work, or other supports like that.

[@Tra_C]

We applied for our 5 year old autistic son a few years ago but was denied because we owned two cars. Old cars at that, one worth $8k and another worth $5k at the time🤷🏽‍♀️

[@gracepineda1743]

Can I ask what state? Wondering if it's the same here in California

[@lizardman1303]

Looking into this I was told that their is a separate one just for autism and that it’s not based on income

[@Tra_C]

@@gracepineda1743 TX

[@Tra_C]

@@lizardman1303 Thx! I'll look into that

[@z823]

You probably applied for ssi. Apply for ssdi. This program does not have income limit.

[@johndavis4347]

Now my son is 18 coverages have changed?

[@estherolawuyi4204]

I know this was 6 years ago so I don't know if you'll see this. I planned to get this and my son is 4 years but I didn't know it can have this effect as an adult. We are currently running from "dad" and living in a shelter and we do need it but I'll explore being his PCA and other things before doing this. Thank you for this video.

[@thaoneudesireforever]

I was denied for my income any suggestions?

[@sandycheeks1580]

My child got denied because I own a home I rent out. 😢

[@IAmJoeJericho]

What can parents (beneficiary) use their child's SSI for once they get it?

[@brianhoward7493]

I have a nonverbal, autistic 6 year old son. I attempted to get a disability benefit for him but was told that my income was too high. So, I went another route for his benefit later. I opened up a custodial brokerage account for him(3 years ago). I intended to deposit his full amount of disability benefits each month in to his brokerage account had he qualified. That way later in life he would not have to worry about income.

[@tomekaridley6371]

But you said you make too much money for your son to qualify for ssdi??? Your suggestion to open an custodian account is not helpful.

[@danicapapali7810]

For many of these children, the question has literally never been ‘should you get’ but ‘could you even get it?’

[@JC-ru3mo]

I got denied Social Security disability, after acquiring footdrop from spine trauma. They just told me to switch careers and go find something else to do. So I can only imagine how difficult it is to get assistance if you are slightly autistic. It’s gotta be rough.

[@lyneahanson1392]

Thanks for the information. My granddaughter has been diagnosed with non- verbal autism.

[@KMarie0819]

My 6 year old son was recently diagnosed with Autism through his school and currently has an IEP and was sent to a different school to better suit his needs. He knows lots of words but cannot communicate and doesnt understand social cues.Im wondering if i need a docotors opinion? I started the SSI application online and need to call for an appointment to complete the process. Thanks for your video.

[@salomekiiru1157]

How did this go?

[@jleezy612]

Take him to see a pediatric neurologist or psychologist to take the ADOS test to diagnose his autism. It will also help if you can get him into ABA therapy for additional documentation of his autism. You should also looking speech and occupational therapy. I have my son in all 3 therapies and he's made so much progress!

[@voxxy85]

Hello, I'm going through this exact situation with my 5 year old. Was the school's diagnosis enough, or did ssi still need a doctor's diagnosis? I want to start the application also.

[@KMarie0819]

@@voxxy85 I finally heard from the social security office a couple weeks ago. And was told that he was favorable for benefits and we had to send in paystubs. Wishing you luck

[@jleezy612]

@@voxxy85 There's a small chance that they would accept the school's diagnosis but you should definitely get a medical diagnosis from either a neurologist or psychologist. If he receives therapy you want to send them the evaluation from the therapist also.

[@dylanduarte5140]

My son was diagnosed with autism at two years old, and my youngest daughter was diagnosed with syngap 1. It has been over a year and a half since I applied for SSI for my son and we barely got approved last month and we are still waiting to receive the backpay and monthly benefits so in reality it takes anywhere from one to two years to receive the benefits.

[@bianca_isqueen]

Wow this is insane... where do you live?

[@ibelieveinjesuschrist8911]

later on get can get a federal job using schedule "A".

[@shirowapk]

very informative. thanks

[@dustinmichel7608]

I work with my son in his special needs class, unfortunately because recent changes at the school I worry I have to home school. This is my last option.

[@REDSTU1]

did you decide to home school? how is his schooling working out for you?

[@dustinmichel7608]

@Lori Stewart im no longer working at the school and with the current staff and philosophy we are waiting for the school year to end, then unenroll him from the school and prepare for a home school curriculum.

[@slvrbullet22]

OH I knew there had to be some reasons not to do this. I have an appt in a week for SSI on my daughter but the last thing i want is to ruin her future with this.

[@izabelacruz1157]

me too, i just had a feeling

[@slvrbullet22]

@@izabelacruz1157 i ended up cancelling the process. I felt a weight lifted upon doing so.

[@ygbodybuilder3023]

How is her future ruin especially if you use the money to build her future

[@slvrbullet22]

@@ygbodybuilder3023 all im going to advise is look up the stipulations of collecting SSI on a child with autism.

[@mrdadar2594]

​@@ygbodybuilder3023 Right, I am missing something as well. Because it seems work history would make it difficult, regardless of if the person was previously on ssi or not.

[@pgreenx]

Are you talking about SSDI or SSI?

[@CT-um7zq]

Does this applies to now 2021

[@ManicObsessiveMe]

Not helpful

[@urmommabear5monthsago]

If you have a child who qualifies for SSI when they turn 18 they must go through recertification process as an ADULT and most will NOT qualify then anyway. So just know parent what they don’t tell you and what she’s not saying is 8 times out of ten your child will lose SSI at 18. If they can be a greeter at Walmart then they don’t qualify

[@marykelley5182]

I am a 71 y o who adopted my grandchild who is on SS disability and will turn 16 soon. I would like for him to work part time in the summer for experience. I do need his SS income for our home budget. Will working part time affect his SS amount?

[@phsx2890]

My daughter with Down syndrome has zero benefits ..

[@Tricebbt632]

I live in Virginia and my son is autistic we get Medicaid but I am about to start working full time will he lose his benefits

[@SB-ls7qj]

Thank you so much for this video!

[@gracepineda1743]

I was told to apply now because it hard to apply when their older?

[@edwardcroce4193]

Until you tell them ur wife makes $5 more than limit.

[@joycebrett8364]

Since covid, took 2 years for them to deny me.

[@siblingworld3878]

Do you have to keep receipts? I feel stressed because if they put the check in my bank account and I have my child support in there too how am I supposed to know if I am spending from my child support or ssi for my son? I was waiting to get a check in the mail for ssi for my son. I think that it is going to my bank account instead. Waiting to get my s statement in my email. Its confusing and a little stressful

[@jaeeluv]

Is it Tefra or SSI that you receive for your child?

[@CT-um7zq]

Could you elaborate in how you managed. It would be very helpful for those of us starting with this process

[@lakevam1]

Thanks for this my son is 14 and just getting his diagnosis. I do work full time as well and get medical assistance for all 3 of us including my daughter. I didn’t think about how it may put us of the income scale for medical benefits

[@Thealguerasfamilyvlog]

The good thing is they can work full time and the federal government not need to know.

[@jessicabriley8905]

It does not work that way my friend. That is called Fraud.

[@raibhai5649]

Hi, how much me( single parent) and I have 3 children family maximum benefits will be? I got 1271 per month now. Thank you

[@soundwonder172]

what is the 1271? and what state are you in?

[@wprimecrime4688]

What state are you in?

[@aryanakurillo3536]

Thank you for that info!!!!!! Very helpful!!!!!!!

[@Greypoppyvintage]

So helpful

[@ineslukonga7338]

Thanks you for this information

[@patwilliams2563]

Great points!!!

[@THATS_CHARMING]

Thank you for the insight !

[@anthonyhines656]

What about adults

[@trenareynolds6146]

I have a very important about my son who has high functioning autism ADHD irritable bowel syndrome anxiety in a little depression he has been getting SSI every since he's been 9 years old taste medication it just started going to his base School two years ago I fought for that he's very very smart with computers and phones he has an IEP at school he just turned 18 June 11th I have a few questions I would like to ask you are you still available to answer questions I see that this is a old video

[@REDSTU1]

did she ever respond to you?

[@trendel13]

Good to know. Thank You

[@rosepetithomme2142]

THANK YOU

[@Exasia2010]

Thank uu

[@rickyjayster2586]

My daughter is non verbal and can't pay attention...would she qualify for ssi

[@karenseard5574]

@Ricky Jayster..Hello, Has your daughter been diagnosed with Autism or any other ailments by a physician? I know the process I am a breast Cancer Warrior. ☮️❤️

[@jleezy612]

Take her to a pediatric neurologist to see if they think she has autism.

[@edithwhitaker2204]

Thank you