China's Influence (Living with Wolf-Hirschhorn Syndrome)

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Special Books by Special Kids

Special Books by Special Kids

Күн бұрын

Пікірлер: 309
@caleigh2114
@caleigh2114 2 жыл бұрын
I appreciate her dad’s honesty about their struggle to cope with their original expectations not being met. And it was also nice to hear about China proving then wrong and succeeding in her own way.
@tantrika.exotica
@tantrika.exotica 2 жыл бұрын
Me too! It's a challenge for everyone, for sure... being blessed with special babies brings up all kinds of emotions throughout the family unit. I'm so grateful to everyone for sharing and being so candid so as to teach the world how to cope💜
@alicejohnson4363
@alicejohnson4363 2 жыл бұрын
That's not her dad. That's her brother.
@marydunigan1721
@marydunigan1721 2 жыл бұрын
YES!!!!
@daisyfire6049
@daisyfire6049 2 жыл бұрын
@@alicejohnson4363 it's her dad
@daisyfire6049
@daisyfire6049 2 жыл бұрын
@@alicejohnson4363 Her brother was the first guy with her if you watched the whole video you will see her dad.
@theodoreld1909
@theodoreld1909 2 жыл бұрын
I'm surprised that no one has pointed this out yet but if you pay attention to her eyes at 9:39 you can see that she's actually blinking along to the music. You can tell that she really feels and anticipates the cadence. It's so fascinating.
@nancyJ976
@nancyJ976 2 жыл бұрын
Yes, absolutely! I thought the same when I saw her.
@sharonstoned645
@sharonstoned645 2 жыл бұрын
Up
@sharonstoned645
@sharonstoned645 2 жыл бұрын
I noticed reading your comment, amazing!
@SaugE_
@SaugE_ 2 жыл бұрын
Maybe it’s her way of expressing her enjoyment of the music, just like someone would dance or bob their head. She blinks instead.
@jly4169
@jly4169 2 жыл бұрын
Yes! I noticed that too. I came to the comments to see if anyone else noticed ☺️
@leannbriody5830
@leannbriody5830 2 жыл бұрын
They way she looked at Chris while he was playing guitar, got tears in my eyes. God bless you sweet girl.
@trevorjameson3213
@trevorjameson3213 2 жыл бұрын
I noticed that right away too. Wow, how sweet was that. So many people think a child with severe disabilities are a burden, or abnormal or whatever. But I tell them, no, they are not. They are a blessing in this world, and to be cherished!
@seanvigil7845
@seanvigil7845 Жыл бұрын
Same
@arleneportsmouth1263
@arleneportsmouth1263 2 жыл бұрын
Everytime I see Chris's interactions with these children I just get the feeling that he is an angel of love as he shows immense love and compassion for them. I just felt like this young girl was absolutely Smitten by Chris. This husband-and-wife did an awesome job raising their son as evidenced by the love and care he has for his sister.
@brinkybrinkz
@brinkybrinkz 2 жыл бұрын
That is so nice! I think he has an amazing personality and a genuine kind soul. 💖
@trevorjameson3213
@trevorjameson3213 2 жыл бұрын
Did you notice how China was staring at Chris while he was playing the guitar? Yes, clearly she was smitten by him.
@jamesian-allen8725
@jamesian-allen8725 Жыл бұрын
He is a very good soul...just like everyone he meets and interviews...pure love and kindness radiate from him. It would be a true pleasure to meet him.
@stephanieann622
@stephanieann622 Жыл бұрын
It is adorable how China adores Chris. My favorite part though is her with her brother. It’s really neat to see the love between them ❤
@tadpole53
@tadpole53 3 жыл бұрын
China looks SO much like her dad! I love their hair, it's gorgeous 💖 I hope China and her family are doing well!
@andreleverettejr3747
@andreleverettejr3747 Жыл бұрын
I said the same thing the resemblance is astonishing
@kellysmith1014
@kellysmith1014 Жыл бұрын
She also looks like her Mom, pretty
@aileenjackson1706
@aileenjackson1706 2 жыл бұрын
My sister has this syndrome and is 61. She is always happy and is doing well.
@IkesPimpHand
@IkesPimpHand 3 жыл бұрын
The brother and sister love brings tears to my eyes. Mum too. What a beautiful family!
@tantrika.exotica
@tantrika.exotica 2 жыл бұрын
Brother is soo cute too🥰
@heatherkastenmeier7530
@heatherkastenmeier7530 Жыл бұрын
I volunteer at a group home and one of my favorite residents is a 43 year old woman with Wolf-Hirschhorn. As I watched this video, it was like watching her. She's absolutely the sweetest girl, and loves her music too. I have made a playlist of her favorites, and we "rock out" to them together. China is simply beautiful and lovely.
@chinchillamdgamer
@chinchillamdgamer 2 жыл бұрын
My third cousin has this syndrome too!! I've never seen someone else with her condition and they actually look alike a bit but they have different personalities. Maggie loves to talk !!
@tantrika.exotica
@tantrika.exotica 2 жыл бұрын
My niece, too.💜
@PineyRider
@PineyRider 2 жыл бұрын
You can tell in China's eyes, she's in there looking out and liking what she hears and sees. I'm sure that in the inside she is reacting but it just doesn't make it to her facial muscles all the time or her vocal chords. She's beautiful. Lovely family.
@Rhiannon.Moonchild
@Rhiannon.Moonchild 3 жыл бұрын
What a wonderful advocate her father is. Beautiful family.
@kristinalee5796
@kristinalee5796 2 жыл бұрын
Her eyes when u play the music..she blinks with the beat!! Seems like music is a way for her to communicate and bond with you ..just beautiful
@twistedcryptid
@twistedcryptid Жыл бұрын
I adore dad’s truthfulness of the situation, but that he is happy she can come kayak and do water slides with the family. And as Chris reads her a book, she has her elbow on him, and gives him a high five. Subtle as she is on things, means the world to her family, since it’s her way of communicating
@charlottegoodwin4970
@charlottegoodwin4970 2 жыл бұрын
I can't stress enough how important your work is. My sister has mild cerebral palsy, and although she has pursued higher education in multiple fields, she often expresses frustration at her limitations, e.g., fine motor skills. She always studies so hard and has no problem passing classes, but when she enters into practical experience situations, she becomes very anxious and loses control when she needs to be calm and cool. She always excuses herself by saying that she is ill, but in reality she is just dealing with that incredible anxiety and helplessness that goes along with disability. How can I help my sister without making her feel helpless?
@sophielok4854
@sophielok4854 2 жыл бұрын
I think you may help her understand that everybody has strengths and weaknesses, and the fact that she's anxious about practical sessions means that she cares and it shows good effort and a drive to succeed
@ri-cs2kz
@ri-cs2kz 2 жыл бұрын
I think you should help her focus on things that she can do independently by herself and maybe find more ways that she can be independent. If her issue is not being able to have control over what she can't do, then we just need to help her be creative. Writing about whenever she is anxious and when she is anxious may also help. It helped me to really figure out what's going on and fix whatever I need to do. She is smart, I'm confident she can find a way.
@1324TN
@1324TN 15 күн бұрын
Hi I have CP 53 years old use a powerchair and I help teach elementary school children. It is a challenge day by day but I take it a day at a time. When I get overwhelm I stop take a deep breath and say don't give up I got this and keep going. I also pray that I have help somewhere along the way and it does help. You just be there for and have her talk about it and just listen, I talk to the lord about my mistakes or frustrations .
@annerood2703
@annerood2703 3 жыл бұрын
"Leaning on the everlasting arms'. One of my favorites too. China is beautiful, thank you
@angrypanda1984
@angrypanda1984 2 жыл бұрын
Her Brother is a special guy: so sweet and beautiful.
@paintingwithcammiebourke3984
@paintingwithcammiebourke3984 2 жыл бұрын
I love China's parents especially her dad she's such a sweet man and her mom is so wonderful
@lisa-annen.7867
@lisa-annen.7867 2 жыл бұрын
The way Chris interacts with the children makes me cry. Not in a sad way. He’s just such a wonderful soul. 😁💜
@blugrip4537
@blugrip4537 2 жыл бұрын
Bless her little woven heart. This whole family is brilliant in the approaches they use to improve things in the life they live together
@AnnaV0707
@AnnaV0707 2 жыл бұрын
What a family! Amazing! Her mother is soo beautiful! Dad is kind and positive! And her brother is an each little girl dream brother)) guys, u r something truly special!
@melissameehan7816
@melissameehan7816 2 жыл бұрын
Chris is such a kind-hearted person: we need more people like him, who make the effort: a lovely video, and a lovely family.
@stephenmcgraw8871
@stephenmcgraw8871 3 жыл бұрын
I have no idea why ANYONE would"thumbs down" any of these interviews!!
@tantrika.exotica
@tantrika.exotica 2 жыл бұрын
Thank goodness KZbin just did away with thumbs down altogether 🥳🥳🥳
@randomvideos1699
@randomvideos1699 2 жыл бұрын
@@tantrika.exotica yeah i’m so happy
@curlygirl56129
@curlygirl56129 3 жыл бұрын
I worked with someone who has this syndrome and it is so nice to see representation of it. The girl I worked with was verbal and also used AAC to talk as well.
@marydunigan1721
@marydunigan1721 2 жыл бұрын
Chris you play the guitar beautifully and I love so much how you incorporate music to connect with the very special people you are fortunate enough to meet and interview! So special to watch! Thanks ♥️
@LilGsInc
@LilGsInc 2 жыл бұрын
One of my favorite vids of all time always come back to it. The family is so sweet you can feel the love radiate thru the screen. All the health and happiness to them, love from the east coast!!
@sharonstoned645
@sharonstoned645 2 жыл бұрын
She was so amazed by Chris! How cute! Aren't we all? Beautiful family 💕
@helpslipfrank50
@helpslipfrank50 2 жыл бұрын
Dad's power mullet for the win!!
@onehothand68
@onehothand68 2 жыл бұрын
You’re a kind hearted man, I wish we had young men like you.
@kroakie4
@kroakie4 3 жыл бұрын
I agree with her mom. China knows what is going on and understands more than most people probably give her credit for. She makes eye contact, attempts to communicate, and even plays the game with her brother when she wants a drink. Lol
@abc_13579
@abc_13579 11 ай бұрын
Yes. And that's why I think some of what was said in front of her should not have been said, like when her dad quoted her mom as saying China will never have friends. I have a high opinion of China's father-he seems warm and loving; I just wish he'd be a bit more careful with his words around China.
@kroakie4
@kroakie4 11 ай бұрын
They really should be more careful, yes. She may not be able to talk but that doesn’t mean much.
@SOFKI90
@SOFKI90 2 жыл бұрын
I always find magical how music calms and interacts with so many kids and adults with disabilities
@bridget2197
@bridget2197 3 жыл бұрын
Such a sweet family. China really responded to the music she just lit up! Music heals it's a blessing 💗😊💗
@wisemenstillseekhim3114
@wisemenstillseekhim3114 2 жыл бұрын
Great video. You are so loving and respectful. As a grandma of a child with CP. Zak is 18 and has never walked, is verbal but hard to understand, only uses his left hand. He graduates in May. Thank you for all you do.
@mimis105dobbins3
@mimis105dobbins3 2 жыл бұрын
Chris is one of my favorite people,always kind and considerate and proving to the world we are all special in our own way.God bless
@JewelsNcrime
@JewelsNcrime 2 жыл бұрын
Your videos are extremely educational the world is not taught about all these disabilities and disorders. We only know the most commons ones. You are teaching the world about the differences among humans. This information is not taught to us as we grow into adults. Lack of understanding is one of the reasons why people stare at people whom are different but feel more ignorant to ask what is thier condition. This platform gives viewers a chance to expand their knowledge of all the medical and physiological differences that effect humans.
@em-agan
@em-agan 2 жыл бұрын
There is so much love for China that radiates out of this family, and so much joy! This is probably one of my favorite interviews… especially as a fellow book and music lover! Thank you for spending your time with us China! I would love love love to see another video with you and your family in the future :)
@Budrica
@Budrica 2 жыл бұрын
When the dad talks about how he and his wife used to be sad that China will "never have a best friend, never get married, never have a baby" etc. It made me think... You could say those things for a lot of "typical" people, too. You never know what a person will be or do or have in life. Nothing is guaranteed
@chloeshann8142
@chloeshann8142 Жыл бұрын
That does happen for some people without those struggles, but the possibilities are there in a way they aren't for some
@clareswinney1087
@clareswinney1087 3 жыл бұрын
Oh my goodness…and he plays the guitar! Could this guy be any more amazing! ❤️
@shannenszwec3457
@shannenszwec3457 2 жыл бұрын
Love how much she enjoyed listening to you play. It would of been like a one on one concert for her. Very special. Keep doing what your doing. Changing people's perspectives on people that are different/ unique.
@angelreilly8312
@angelreilly8312 3 жыл бұрын
I love this! Chris is such an amazing man. I wish I could meet him.
@user-jp3gl2ii7b
@user-jp3gl2ii7b 2 жыл бұрын
,
@user-jp3gl2ii7b
@user-jp3gl2ii7b 2 жыл бұрын
,/❤️❤️❤️
@Lilacleaf49065
@Lilacleaf49065 2 жыл бұрын
Yes, come play some tom petty on your guitar for us chris! Seriously though, this man has done some good in this world and I can't imagine all of the lives it has touched.
@alwaysme8353
@alwaysme8353 3 жыл бұрын
Beautiful China x shes stunning inside and out. Shes defo stolen my heart. Such a lovely family also, your al so blessed to have eachother. Thanks for sharing your story with us
@dodibenabba1378
@dodibenabba1378 2 жыл бұрын
She's beautiful, what lovely eyes. My favourite channel.
@NikoHL
@NikoHL 2 жыл бұрын
We have 2 boys. One affected by autism. He's high functioning but impacted.. We hope he achieves his dreams, and finds love, and all those things that make a fulfilling life. We help and support him as much as possible. I just worry about when me and his mom have passed..
@beyedoc
@beyedoc Жыл бұрын
If it makes you feel better, I have high functioning autism and have a doctorate degree, a hybrid job that allows me to work from home when needed, and I live independently. The academics came easy but I did have to work really hard at other things. Keep surrounding him with love and support. ❤
@Chibblechabble
@Chibblechabble 3 жыл бұрын
I’ve learned a lot from this and I wanna say thank you
@toddburgess5056
@toddburgess5056 2 жыл бұрын
I think China really enjoyed when the guitar was played for her. She probably has a lot of thoughts when shes hearing music like when her mother plays the piano.
@Imisset2
@Imisset2 2 жыл бұрын
This makes my heart smile 😊 she is wonderful and very special I have 3 teenage boys with special needs i used to feel down about them and wonder why but now I’m focusing on the positive things and advocating for them. It can be challenging but it’s worth it.
@joannaheart8167
@joannaheart8167 Жыл бұрын
China receives love and appreciation for who she is by many people and this is something that many people don't ever experience, being with disabilities or not. Her life has a purpose. She does not need to get married or have children. Many of us are single with not many friends around as most are married with kids. Watching SBSK's amazing kids gave me a purpose in life. These children are a marvel to me for what they can accomplish every single day. Nothing is for granted, we can be in this situation too one day as we will grow old. The parents are also an excellent source of strength. All kids are angels. May you all be blessed.
@tylerfrench7197
@tylerfrench7197 3 жыл бұрын
Such a beautiful soul. God loves you so much China.
@akeelaboomful
@akeelaboomful 2 жыл бұрын
She has a really beautiful smile and it makes me smile. Hope you're doing well China 🌺
@autumnpatton422
@autumnpatton422 2 жыл бұрын
This family makes my heart swell. There is an abundance of support and love and they seem to know how to fill their own cups while being a close family.
@ProveAllThings1Th-5-21
@ProveAllThings1Th-5-21 9 күн бұрын
I'm so blessed watching this beautiful family and the love they have for China. They are pure gems of care and compassion. ❤
@venicegee3675
@venicegee3675 3 жыл бұрын
Chinas brother really loves her and he wants her to be happy!!! You can tell that this family are really beautiful people😍😍😍I bet God is so proud of them❤
@abdullahak2204
@abdullahak2204 2 жыл бұрын
She has an amazing supportive family
@777Rowen
@777Rowen 2 жыл бұрын
Very wholesome stuff. Bless this family. 💜
@fflubadubb
@fflubadubb 2 жыл бұрын
Thank you Chris for letting us meet beautiful China. She's also lucky to have her very loving brother and of course her dedicated mom and dad. Chris is the best friend anyone can have. China is the sweetest girl .I love her !
@goshdarnit
@goshdarnit 2 жыл бұрын
What a beautiful young lady and loving family. ❤
@africarenee
@africarenee Жыл бұрын
I love China's smile when her mom plays her favorite song. 🥺☺️🥰🤗💝💐🦋
@taiweannoona1204
@taiweannoona1204 Жыл бұрын
Music is something that everyone understands and enjoys. It's something everyone needs. It helps us communicate with eachother
@Daisy165m
@Daisy165m Жыл бұрын
Sweet beautiful girl 🥰 and Chris has such a perfect way with children! Love learning about all these great people and children ❤️
@hixxyted1244
@hixxyted1244 2 жыл бұрын
Her dad is so lovely!!! Beautiful family
@willowgreinke7964
@willowgreinke7964 Жыл бұрын
Your Rendition of the Beatles “BlackBird” was BEAUTIFUL.
@peachycream
@peachycream 2 жыл бұрын
Looks like Chris' talents are endless. Lovely family. A lot of love there. Lucky China.
@preciousconnections9463
@preciousconnections9463 2 жыл бұрын
What a beautiful family, I hope she is doing well.
@stephenmcgraw8871
@stephenmcgraw8871 3 жыл бұрын
What a living doll...I feel like I want to protect her myself.....
@OriginalOWL
@OriginalOWL Жыл бұрын
I think about China often and love coming back to see her enjoying the guitar. Sweet girl 💚
@mandeerosen5594
@mandeerosen5594 Жыл бұрын
So greatful for this show I love all the kids and adults I am disabled and this inspired me
@aleonard5359
@aleonard5359 Жыл бұрын
Such a beautiful girl with an equally beautiful family. They seem to take such great care of her and you can see the love. So pure.
@kimberlysevastyanenko3798
@kimberlysevastyanenko3798 Жыл бұрын
I have certain songs that make me happy. Of course China would have particular songs she likes! I'm glad she's able to connect through music and I'm glad she has such a wonderful, loving family.
@arohalight3670
@arohalight3670 2 жыл бұрын
When you played blackbird her look was priceless 😍😍😍awe
@kristinialyons5230
@kristinialyons5230 2 жыл бұрын
That little smile!! What a gift that was!
@aileensmith6806
@aileensmith6806 Жыл бұрын
Chris: God bless you, your patience, your heart.
@cynthiadavid5282
@cynthiadavid5282 2 жыл бұрын
Ur videos are great thanku we all can learn from ur videos love acceptence is the key to people like this thanku for taking time to do these no matter how different they are they are human beings and deserve respect my heat belongs to the parents and prayes
@andreleverettejr3747
@andreleverettejr3747 Жыл бұрын
Looks JUST like her dad WOW that resemblance is incredible! She's a lovely young lady too I hope she's doing well.
@chloeshann8142
@chloeshann8142 Жыл бұрын
I love these videos. Their lives have value and hopefully some might learn that from these
@mandybear7063
@mandybear7063 2 жыл бұрын
I love her father's hair!
@mochithecalico
@mochithecalico Жыл бұрын
I'm 22 as well 😊🌱 I love these videos so much. I end up tearing up every time
@jamesian-allen8725
@jamesian-allen8725 Жыл бұрын
China and her family are so beautiful and such wonderful souls...truly earth angels. When she smiled while sitting at the piano with her mom, her smile lit the room up ! :)
@iamarchibald
@iamarchibald Жыл бұрын
Chris is the GOAT I swear this man is awesome!
@lillymurray8408
@lillymurray8408 2 жыл бұрын
China is her dads twin! So wholesome!
@girlee0303
@girlee0303 2 жыл бұрын
Just saw this. How wonderful for her to be so loved
@JamesSmith-jf1hz
@JamesSmith-jf1hz 2 жыл бұрын
All these videos are so good that I don't wait even a second to hit the like button.
@alisad.7343
@alisad.7343 Жыл бұрын
Ow, how sweet this family! True love in their eyes God bless you!
@marihutch7238
@marihutch7238 8 ай бұрын
So True! We are Christians and we honored that God gave us beautiful China!
@luisabotelho1078
@luisabotelho1078 2 жыл бұрын
When Chris was playing, she was blinking along the music!
@suewomack5960
@suewomack5960 Жыл бұрын
its like having a beautiful sweet child for your entire life! what a lovely family❤
@jaidebeck
@jaidebeck Жыл бұрын
you are such a beautiful person. *to the maker of this* and to all the ppl in the video. :)
@sew75962
@sew75962 Жыл бұрын
That moment when you’re playing guitar and Chine look’s you right in the eye was so special. You could see the connection being made.
@OriginalOWL
@OriginalOWL 3 күн бұрын
I would love to see an update on beautiful China and her family. Amazing vibes! 💚
@PrincessRomi1
@PrincessRomi1 Жыл бұрын
I'm so glad the father brough up their struggle. I know people say they are blessed to have a child whatever your child is going through and all is good and everyone is happy, but I actually can't even imagine how difficult it truly is to be in the family's shoes..
@misterscruffy1289
@misterscruffy1289 2 ай бұрын
You're the best Chris.
@rebeccasha1211
@rebeccasha1211 2 жыл бұрын
Beautiful!
@MarTocado
@MarTocado 2 жыл бұрын
China is really sweet and all her family is so caring ❤️ love them 🥰
@sengarmajeed3906
@sengarmajeed3906 2 жыл бұрын
You make me cry 😢 I have kids with lot of problems and I don't know what is it, God make you more strong to help her more,is very hard not easy these life .
@odar9729
@odar9729 2 жыл бұрын
Beautiful show
@patriciagruteke1517
@patriciagruteke1517 Жыл бұрын
Love that Chris played guitar for her😊
@aravindhanbalagan1288
@aravindhanbalagan1288 2 жыл бұрын
Thanks!
@NickOtis0707
@NickOtis0707 2 жыл бұрын
Thank you for all the good work that you're doing for your love for many disability kids and adults. I had a disability when I was younger I wasn't LD classes with people with down syndrome and other disabilities. The Lord is doing mighty works in your life and he has a purpose. Thank Nick
@ameliabraithwaite3403
@ameliabraithwaite3403 2 жыл бұрын
Chris reminds of Fred Rogers! So kind to everyone!
@emilyperkins9947
@emilyperkins9947 2 жыл бұрын
I have wanted to say this for 2 YEARS! This family, like all the families we're introduced to on here, are amazing. We should ALL strive to live our lives enjoying making memories and celebrating people for WHO they are not what they can't do!
@solideogloria5553
@solideogloria5553 Жыл бұрын
and your precious china is in my heart, i am a chinese, she is adorable, praying for your beautiful family. God bless.
@lovefam8
@lovefam8 2 жыл бұрын
That's the beauty in all of these.. That we meet them who will love us no matter what..who will like us, smile with us.. care.. laugh and hug us no matter what.💗 God bless them all.
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Layla's Rare Life (The Only Known Case Ever)
29:10
Special Books by Special Kids
Рет қаралды 658 М.
Liam's Story (A Rare Syndrome, Twin Sister, and Sign Language)
24:05
Special Books by Special Kids
Рет қаралды 379 М.
Raedyn's Unique and Fun Life (Pfeiffer Syndrome)
19:31
Special Books by Special Kids
Рет қаралды 155 М.
Four Brothers with Fetal Alcohol Syndrome (The Story of a Blended Family)
25:30
Special Books by Special Kids
Рет қаралды 2,7 МЛН
Living with a Smooth Brain (Lissencephaly)
18:39
Special Books by Special Kids
Рет қаралды 2,9 МЛН
Living with one of the World's Rarest Syndromes (The Story of Sweet P)
24:05
Special Books by Special Kids
Рет қаралды 1,5 МЛН
A Nonspeaking Adult and her Loving Family (A Rare Brain Malformation)
28:14
Special Books by Special Kids
Рет қаралды 511 М.