Spinal Cord Stimulators: A Saving Grace or Dangerous?

[@jenniferrhoades4877]

Its actually nice seeing a compassionate Dr. In the pain world, there needs to be more who actually care. My son has CRPS and i also suffer from a spinal cord injury 6 years now of chronic pain its truly exhausting.

[@Morr1264]

Boston Scientific spinal cord stimulator recipient here! One week out of surgery, NO PAIN!! April 2024. I had nerve pain going down my leg terribly! I can walk distances now, do household tasks! I feel like my old self, first time in over 5 years! So sorry that this has happened to you😢

[@eringantz4508]

I've had CRPS for over a year now. I tried the SCS trial, and it only made things worse for me. It not only flared up the original CRPS areas (my right hand, arm, and shoulder), but it also caused my CRPS to spread to my entire upper body. It has been MISERABLE. I've tried pain meds, pain patches, weed, nerve blocks, PT, OT, and others I can't remember at the time. Currently I'm using the permanent pain pump for the pain and it's the only thing that has actually helped

[@bigbadjohnpesek9894]

They are a saving grace for me. At least the temp was. I get the perm in a month. Ive had three failed back surgeries. I cant stand up straight. I cant sleep at night. Im in pain all the time. The temp took my pain down from a 10 to maybe a 2.

[@dfifaoui4191]

Thanks for your sharing your experience with it because I have an appointment and keeping moving it forward ..

[@tracielang9500]

My stim battery wasn't cleaned preop they said (then denied) as i went septic and nearly died with no legal recourse!! Life has never been the same

[@timschannel910]

Thank you. I was talking to a doctor in pain management on doing this to my back in a few months. Now I am not so sure I want to have this even done.

[@Aaaaaaaaaaaaaaaaaaaaada]

The trial made it so I could walk without my cane do the trial then you’ll know

[@oldgoat50]

​@@AaaaaaaaaaaaaaaaaaaaadaI go for my trial this Wednesday. I have peripheral neuropathy in both feet and legs. I use a cane to keep from falling. Wish me luck.😊

[@oldgoat50]

Got one in my left lower back as I type. Got it done on this past Wed.

[@Aaaaaaaaaaaaaaaaaaaaada]

@@oldgoat50 much love man I hope it gives you some life back like it did for me

[@oldgoat50]

​@@AaaaaaaaaaaaaaaaaaaaadaThanks. Had it for a week and it was pulled. Having the leads pulled was the most painful for 10 seconds. Waiting now for my insurance to give the go ahead for the permanent one. Will be 74 in May, ain't got forever.🫣

[@jilljohnson6982]

Had spinal cord stimulator surgery, Neurosurgeon paralyzed me during procedure.

[@deniseh715]

ME TOO ! I'VE BEEN BEDRIDDEN SINCE APRIL B/C OF IT ! CAN BARELY WALK, HAVE SEVERE TAILBONE, SPINAL, UPPER LEGS AND KNEES PAIN !!! 😭😭😭

[@1michaelgracia]

Hine sight is always 20/20 but for my wife it was the last resort. Tried everything for five years

[@jackattack9799]

Did it work for your wife ?

[@mindywood119]

I love mine

[@TheSampson0987]

Thw Dr. never actually states her therapy...never. How can she criticize intervention when she has not offered any alternate solution. Her fees are over $40K, her patients and family must sign NDA's...there is something extremely suspicious about this Dr.

[@eringantz4508]

Also, I developed CRPS from a frostbite injury to both hands (right worse than left) too

[@--.--.--]

Are the statistics still as bad now as it was when this video was done?

[@kimhickman9210]

Mine was years into my diagnosis before they offered it to me. I think around 5 or 6 years into it.

[@jackattack9799]

Dose it work for you ?

[@JTDesign1]

What would be nice is if ER doc's understood how to treat specific injuries like Frost Bite, the Bends, Strokes or TM. That the outcomes of these issues would be so much better if we got HBOT at the start.

[@1michaelgracia]

My wife has a nevro implant that only takes away maybe 30% relief . She has had CRPS FOR Like 10 years and the implant maybe 5 years

[@1michaelgracia]

In my wife's case if she walks 15 minutes pain could go up to 10 . So with the implant she uses two tramadol per day Not hydrocodone every 6 hours

[@1michaelgracia]

Also the pain medicine affects your short term memory.

[@TMc-vk5no]

I don’t know what I should do. I’m scheduled for a trial in August. I am scared. They did 3 blocks and only one worked for only 3 weeks. I was hurt on clock and comp is something else that’s bothering me. I have looked at ketamine infusions and marijuana treatment. I have seizures too that was prior and I’m scared to say no. It’s like they are pushing it and I’m just worried and scared to have it done. Even the trial. It is agonizing but it is like omg why don’t we go another path. What do you do?

[@wendymoore8759]

I am going thru the same situation now 😪

[@tinahale9252]

I'm right here with you. Today pain management offered this and I'll try this for the week and after years of medication, PT, just loads of things. I'm on the last leg of an 18 year journey

[@kimhickman9210]

Omg everything this young girl is saying, I was told they never ever leak, around my box in my hip it just burns and aches, mine is turned off the whole time because I can’t handle my pain.

[@tinahale9252]

I just got offered this and aphasia.. im researching now because the brain and even the heart has electrical impulses. It terrifying

[@sandienochs6132]

After six (yeh 6) cervical spine surgeries, I have been offered this. To me, this seems scarier than all the other surgery’s.

[@thegmanviews11]

Was recently offered this - I declined. Something told me it was the wrong thing to do.

[@heatherelizabeth27]

I wish I never got mine done either 😩

[@sheiladykes8851]

Me to. Did u have yours taken out? I think I'll have mine taken out. It didn't help me anyhow. It burns my feet up. So I have to keep it turned down

[@_blew_a_fuse_7372]

Did yours cause constant neuropatic pain in your spine right where the leads are placed ??

[@heatherelizabeth27]

@@sheiladykes8851 I’m going to get it taken out soon:)

[@heatherelizabeth27]

@@_blew_a_fuse_7372 Not constant, but sometimes.

[@_blew_a_fuse_7372]

@@heatherelizabeth27 yeah me too turned off it's there on it's there hard to tell what's what anymore

[@kimhickman9210]

I have one and it’s 11 years now, but haven’t been able to use it right now, it aches so badly. I’ve tried everything the pain clinic threw at me.

[@debragoins6104]

Getting mine next month. But my batteries will be outside my body

[@Lexilea68]

For that physician to offer a spinal cord stimulator so early without giving "time" a chance (progressing through the stages of CRPS) is a premature decision.

[@brandonr7126]

Sounds like medical malpractice.

[@Lexilea68]

@@brandonr7126 I do not find criteria for malpractice but do believe adequate time to assess improvement in pain should be allowed to happen. Not just bill for a medical procedure.

[@ambergrauso9505]

I totally agree

[@ambergrauso9505]

@@brandonr7126 it might be?

[@63frogsinahat84]

totally normal now

[@Lexilea68]

When any risk outweighs the pros, I forego that option.

[@deniseh715]

I WISH I NEVER HAD IT DONE IN APRIL, I'VE BEEN BEDRIDDEN SINCE !!! SEVERE TAILBONE AND WORSE SPINAL PAIN ! 😭😭😭

[@DrKatinkavanderMerwe]

I am so sorry to hear that! Our hearts are truly with all of the chronic pain suffers. If you are considering or want to talk to some more about your specific case please call us at 479-304-8202

[@Lexilea68]

Lumbar sympathetic blocks also make us CRPS sufferers "cash cows".

[@ambergrauso9505]

3 times a week

[@Lexilea68]

@@ambergrauso9505 I hope you are better now. My notifications were turned off. I noticed every few months they seem to just turn off on their own.