SYNGAP Safety - Special Needs Safety Strategies - How We Keep Kyle Safe - SYNGAP1

Kyle is 15 years old but is dependent upon on us to keep him safe in certain situations. This video demonstrates the strategies we use to keep Kyle safe.
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Kyle was born in 2006 and has SYNGAP1, a rare genetic disorder that causes epilepsy, global developmental delays, intellectual disability, autism, etc. I share more about his diagnosis in this video: • What is SYNGAP1 | Rare...
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Order my COLORING BOOK for Special Needs Moms & Caregivers here: amzn.to/3hVa6kt
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Mentioned in this Video:
Shoe ID tags: amzn.to/3Ir5Ggc
Swim Belt: amzn.to/3KDAkof
Seatbelt Harness: www.especialneeds.com/e-z-on-...
Seatbelt Lock: amzn.to/3qPfNWf
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FTC Disclaimer: This description contains an affiliate link; as an Amazon Associate, I earn a small commission from qualifying purchases after clicking on the product links above. It doesn’t cost you any extra; thank you for your support!

[@KelliKyle]

Have questions? Comment below... I'll be doing a Q&A video soon!

[@barbaramclellan6621]

You are such a special mom. Kyle is a lucky young man to have you both as parents. I love watching your posts.

[@KelliKyle]

Aww, thank you so much! ❤️

[@nancymandle5215]

excellent video - while the info and strategies you share are specific to people with disabilities, these can also be relevant with dementia and alzheimer’s. I’ve had knowledge of families keeping their afflicted elderly at home, and some of the challenges are similar. Thank you for sharing your time-tested coping strategies.

[@KelliKyle]

You're welcome, and you're exactly right!!

[@gracelorenz633]

Thank you for sharing this! I’ve wondered what type of harness Kyle uses. I have a seatbelt block that has been a LIFESAVER!!! I love all of your tips. Childproofing for older kids is easier said than done ❤️

[@KelliKyle]

You're right!! Thank you for watching. The seatbelt lock IS very helpful.

[@Ann-xu3gn]

Great video. We can use these strategies for our Syngap angel! She’s ten years old now and also sees no danger whatsoever. We still use a babymonitor at night for the same reason. She loves to swim to by the way 😉

[@KelliKyle]

I love how our Syngapians love the water! We've talked about getting a camera installed in his room.

[@DaroTheDragon]

I have a few disabilities my self not bad though ADHD deslixa dispixa restless leg syndrome coordination disorder also I’m intolerant to dairy I’m 16 I also have a lot of friends with special needs and autism they nearly always seem nicer than other people Also Kyle seems like a really sweet kid hope he has luck on his side 💙

[@patriciamcfadden869]

Very informative. It gave me ideas for my special needs boy. I love the seat belt lock and the med alert on his shoes. Thanks for sharing!

[@KelliKyle]

You're welcome! I'm glad it gave you some ideas!

[@jamjames1971]

You all do an amazing job..

[@mariae9567]

Thanks for sharing about the ID tags for the shoes something I need for my 2 sons

[@KelliKyle]

You're welcome!

[@fatimamohammad6358]

Thanks mam for your detailed video

[@justinestubbs856]

Awesome video

[@fatimamohammad6358]

Came to check any new videos missing you mama n miss Kyle ❤ 😘 💕

[@KelliKyle]

❤️ we should have our first Q&A video out this weekend! Also, I received your question and will add it to my list for our next Q&A in March.

[@angelicareti5669]

Respect god bless you

[@KelliKyle]

Thank you!

[@socialmediagirlsmith4044]

I didn’t realize Kyle was only 15 what a special young man. How much time does he spend with his grandparents so you can get a break?

[@KelliKyle]

Thank you for the question! I'll include it in my Q&A Video coming at the end of February!

[@kristinecaco318]

Have you looked into a sleep safe bed? They are amazing for people who tend to not stay in bed at night.

[@KelliKyle]

Yes, I have, but they are expensive so the door lock has always worked for us. ☺️

[@fatimamohammad6358]

I wonder why the ID tags is on the shoes it seems so tiny and far from notice can we make similar one for the wrist? Or he will pull it out ?

[@KelliKyle]

I understand your concern, but if in an emergency, I'm sure it will be noticed. It needed to be on something that Kyle wouldn't remove and he would not tolerate something on his wrist.

[@poo66151]

Does Kyle have Pica? My sister has Pica and we have to be careful of what we give her to play with because it will go in her mouth.

[@KelliKyle]

I've heard of that, but it has never been mentioned by Kyle's doctors. We do have to be careful, although it has gotten better as he has gotten older.

[@sydkaykay]

“I found him one morning with the sock shoved in his mouth” made me go 🤢 😂

[@KelliKyle]

I know, right?!? 🤣🤣🤣

[@justintedford1803]

Hi Kelli, my name is Justin and I have cerebral palsy. I share some of the symptoms and interests that Kyle has. I would love to communicate with you somehow. Let me know what the best way is.

[@KelliKyle]

Thank you for sharing. We can communicate through here or you can direct message me on Instagram. The link is in the About Section of my KZbin channel. ☺️

[@sksksksksksk116]

I just wanna say hi to you and Kyle

[@KelliKyle]

Hi! Thanks for watching!

[@tessalee8890]

Some of this just not for people with special needs. Could be for anyone even flatmates

[@jeanniesherman3591]

Your so pretty , lie i said before , god has great plans for all of you. Your excellent at all you do , just dont forget. . . . . . . To treat yourself

[@tonysayger5926]

Hello my name is Justin I a all so have special needs I would love to meet Kyle sometime can you please tell me how I can get a hold of you and what is Kyles favorite ride to ride at kings island and does he like the peanuts characters at Kings Island

[@KelliKyle]

Kyle's favorite ride is The Viking Ship. He doesn't pay much attention to the Peanut Characters because he isn't familiar with them.