What Long COVID Taught Me About Life (and Data) | Giorgia Lupi | TED

[@mehvishkhan]

I got covid for the first time this year and am now dealing with long covid. It's so frustrating and so many people just don't understand or refuse to empathise when I ask for help for basic things. My breathing is not even back to normal yet, and that's the most frustrating thing. I'm so limited to what I'm able to do, but I'm grateful I'm not worse and that I have a job I can do remotely.

[@uIz-slc]

I know someone who walked alot everyday. After getting covid and suffering from long covid, walking became much more exhausting, but after doing it everyday again it became more and more like before, be it not totally restored. I suggest you try that out to reduce the limitation.

[@AntoanetaStancu]

​​@@uIz-slcvery good advice.. I also noticed that I was recovering more quickly or better and my lungs got a better capacity for breathing with walking

[@timbrouwers8154]

I’m in the same boat, got COVID in january and got really sick. I went from running half marathons, working on my study and business to not being able to even walk up stairs, sometimes I couldn’t even think. Everyone says it’s gonna be alright but they don’t feel what you feel. It might help you to talk to other people dealing with long COVID to see that they share your struggles

[@evad7933]

Getting COVID badly after vaccination? 🤔

[@alanredversangel]

@@evad7933 Now here's someone who doesn't understand data.

[@VioletLaLaMoon]

I was the only person in a car of 4 after a week of traveling together that got covid. It’s been almost 3 years since then. At the time I struggled with all of the symptoms she describes especially that first week. Afterwards I had fatigue for months, couldn’t taste or smell for over a year. I still have recurrences of those symptoms but they are not long lasting; all of a sudden I can’t taste a meal or think clearly…that was the hardest…get fatigue for no reason. Eventually, I had to shift my focus too.

[@vikramsinghdutt]

It taught me media controls human perception.

[@Lanideo]

Sad, left alone from health system, she only had the possibility to care for herself. I think this talk shall be optimistic, but it is just so sad

[@AntoanetaStancu]

True. I felt the same..no one wanted to see me.. I was.. just dying with a bit of luck :)) but with a bit or more help from God I wasn't.. my lungs were terribly inflamed but no one cared.. Only 2 people who were there for me and God kjows to send the right people because I was almost giving up on myself

[@DipenDebnath]

It proved that how one man’s imagination can change the world

[@AntoanetaStancu]

Yeah... sadly.. for worse not for the better

[@Ninja9JKD]

Since you like data so much, you might want to look up all the data on excess mortality and all cause deaths.

[@MichelleEvans_CatLady]

As a Data analyst that nearly died from bacterial pneumonia and then got COVID 6 weeks later, this excellent work. I don;t even have the energy to have put that together

[@AntoanetaStancu]

Yeah.. that's one factor..or symptom: you just run out of energy and it feels like it's not you... I was drained

[@AntoanetaStancu]

But I think that what was really damaged or very damaged în that time with long Covid was our psychological strength.. We were or at least I was really shaken by that illness

[@welcome.421]

فلنكن شاكرين للأشخاص الذين يجعلوننا سعداء، فهم البستانيون الساحرون الذين يجعلون أرواحنا تزدهر 🌸

[@leonardofabbri7930]

My dad has been diagnosed with Strumpell Lorrain syndrome for two decades, no one between Governments, science, influencers and influenced has ever given a damn

[@alanredversangel]

If i had to put a timeframe on it id say long covid affected me for a good 18 months, and ive haven't felt 100% since. I can't rememeber most of 2020 without looking at photos. Too much exercise would set me back a lot and at the time we werent allowed out for more than an hour or something. The only thing i think I would do differently is walk a lot more. Which is more than a lot of long covid sufferers can do.

[@Improve.knowledg7]

thank you

[@Midgeridoo]

Omg how is she not masking?! 😮

[@JK_JK_JK]

What is the Covid-related mortality for non-elderly persons with no comorbidities???

[@squarepeg4435]

Beautiful and moving. I saw this piece in The NY Times last December and wept. I’ve had Long Covid since 2020 and have been in and out of a wheelchair, lost my independence, cardiac issues and my immune system is now so weak I can’t be around others without a mask so I’m unable to be social. Those who haven’t lived this can’t comprehend how painful it is to have a debilitating illness that has been politicized and scoffed at as a “hoax”. It exponentially increases the difficulty. When you have MS or Lupus, no one tells you your illness is a hoax and part of the “deep state”. People don’t cough in their faces and hurl insults. It’s also made more difficult by the fact that billions of people have had Covid. Most don’t get Long Covid and lack the empathy to comprehend that everyone’s bodies and experiences are different. Love to all of the other members of this community.

[@MitchAcademy]

I am in control of my illness. My illness does not control me. Thanks for sharing your fight. 🥊

[@-AkhilTej-]

🎯💎🏆 Great insightful & fruitful video 🏆💎🎯 लोकः समस्ताः सुखिनो भवन्तु ( May all beings lead prosperous life across Globe 🌍 )

[@chrismacdonald8014]

Long covid sounds super 'safe and effective'. They totally know what they are talking about. 😆💯

[@eltoro4227]

Это история о том как страх побеждает организм. Я за 2 года(2020-2022) надевал маску только до марта-апреля 2020, потом я понял что это не опаснее обычного гриппа и что всё это умышленно раздувается властями с помощью СМИ. С тех пор я ни разу не надел нигде маску(ругался, скандалил призывая соблюдать законы в магазинах когда мне не продавали продукты, нашел автозаправки где мог заправляться без этой унизительной процедуры-надевания тряпки на лицо), и естественно не делал никаких вакцин. В итоге я болел простудой 2 или 3 каждый раз не больше 3-5 дней.

[@sooma-ai]

Giorgia Lupi, a data designer, shares her experience with long COVID and how tracking her symptoms led to a visual New York Times narrative. She discusses using data to tell stories, her journey with chronic illness, and shifting focus to progress and recovery.

[@hgrace0]

This was a beautiful message. Thank you for your insight

[@gwilkins4617]

Long covid is similar to CFS

[@themris]

From what I can tell, long covid is just an umbrella term for ME/CFS plus other long term damage that a bad viral infection can cause (like heart damage).

[@gwilkins4617]

@@themris agreed

[@byoutifulmusic]

Imagine those poor souls who aren't even aware of "long covid," .. or that they may have or may have had it.

[@hiepkhach789]

❤❤❤❤

[@Mkbshg8]

Sorry but why would you need to visit a Dr hundreds of times? I do empathise with her as I have had it and think I have long covid too but visiting a Dr so many times seems pointless.

[@marcvolpe8252]

She is dua lipi sister

[@vassiliosca5715]

"The real question and concern is: Without antivaxers who will bury all the vaxed?"😁

[@dinomiles7999]

Dr. Bruce Lipton, Dr Joe Despensa ❤. Don't die ❤ ! ❤❤❤❤Decentralization ❤.

[@SirSwaggyy]

Didn’t they try telling us that long covid didn’t exist?

[@SirSwaggyy]

@@Rabbitt-d6y funny how that happens eh?

[@squarepeg4435]

Look at these comments or anywhere else Long Covid is discussed. MANY still say the same. They mock us and claim it’s a “hoax”. The cruelty is pretty unbelievable. I’ve been dealing with this for 4 years. The treatment from others has only gotten worse as the world “moves on from Covid”.

[@keenarnia]

Take some more Vaccs and you’ll be fine!

[@mariaantoniettamontella9173]

brava

[@Benoit-Pierre]

Ask Diana and her husband ...

[@PavelSusin]

Narcissism level: Scientific.

[@squarepeg4435]

Trying to understand and visualize a debilitating illness which medicine doesn’t understand and can’t treat, is narcissism? I’ve been dealing with this illness for 4 years and have also had to take meticulous notes, measurements of patterns in food, sleep, pain, etc. American health care providers aren’t equipped or motivated to explore novel viruses for which there is no known treatment. All of the advances I’ve made in my recovery have been due to revelations discovered via my own data. We have to aggressively self-advocate and often still don’t get adequate care. Empathy goes a long way.

[@themris]

Pretty sure they were just making a joke.

[@carsonhunt4642]

@@squarepeg4435yea don’t bother arguing with the ignorant. I had a similar issue diagnosing my severe stomach complications, took 5 years of recording down everything I ate to figure out what triggered or made symptoms worse. Allergies, ibs. Crohn’s, etc doctors couldn’t ever figure out anything. In fact most all of them, even the “specialists” looked at me like a fool when I said I think the food I eat was behind many of my issues. Anyways point is, mainstream medicine exists to sell a solution (treat a symptom) , not to solve the problem or cause. You must do the 2nd part yourself

[@markyparky2980]

Probably that we're easily brainwashed

[@Pavlikivanov1]

U sure it’s not vaccine injury?

[@dinomiles7999]

Ai will soon take the guess work out of it and all gurus and snake oil salesmen will soon be gone ❤. Eyes mind heart and soul wide open. NO FEAR ❤!

[@rebeccafabian5980]

Yay I hope you had fun visiting your hometown

[@curtisbraun1885]

Best data = long COVID only exists for vaccinated. Or is it the wealth generation on pharma stocks investments by policy makers and those attached?

[@in-x-orable2769]

Long Covid or Lung Covid?

[@baylesnburg6413]

LONG

[@in-x-orable2769]

@@baylesnburg6413 Okay. I'd thought it was 'Lung' all this while.

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