TEDxLaJolla - Claire Wineland - It's Just a Disease

[@drop6597]

Claire is 19 now. She spoke to our company today and I was deeply touched by her message. Im so glad they are close to a cure.

[@themoody1337]

they are?! Seriously?!

[@gracegrooves1090]

steve hollingshead really!!!

[@wongenom4042]

steve hollingshead so now she's 20? How cruel time is :'(

[@merncat3384]

UNIQUE SEKAR KINANTHY yes, she is 20 and still making videos ♡ check out "tub talks" on KZbin

[@sierra8548]

She passed away two days ago after a stroke caused by a blood clot. She’d had a successful lung transplant just a week ago right before the stroke. It’s bittersweet. She’s in a better place now.

[@ceecee328]

I am absolutely floored at how mature, poised, and well spoken she was at only 14. I mean... articulate, comfortable, engaging, authentic, funny, the list goes on. God bless Claire!

[@suesheification]

she's a better speaker at 14 than I am at 36.

[@suesheification]

and smarter than me

[@degi3333]

+sue she dont do that do yourself man ! be proud of urself .

[@TheEmeliexx]

same same

[@gracegrooves1090]

sue she | C'mon man, believe in yourself!

[@iwuvwu123]

sue she punny name 🍣

[@myrtokallin.2332]

If there is a god up there,thank you so much for letting her live because she has been one of the biggest inspirations to me

[@Ozzyisunavailable]

i found out about her today, shes emotionally uplifting

[@ubayyd]

there is indeed

[@tjazzmcneil5514]

Medical science is why she is alive today.

[@myrtokallin.2332]

TJazz MCNeil That's for sure..thanks for correcting me

[@ghostie7790]

yes!

[@___KIT__]

Claire needs to be a comedian. She is literally one of my favorite people in the whole world!

[@erikrulez17]

That would have been neat, I haven't found it yet, but i've been searching seldomly for it.

[@yatesy117]

Man, I just want to hug her...life is so unfair. A beautiful human being.

[@s731s]

I feel the exact same way.

[@s731s]

I feel the exact same way.

[@s731s]

sky blue if that's how you view God, then it shows how much you really know him. The true example of being a Christian is a person who devotes their life to building a personal relationship with God, meaning it's suppose to grow, and strengthen as time passes, just like any other relationship in your life, it's a two way street... he can't speak to you if you don't want to be spoken to. You sound hurt and bitter towards Christians or God and I'm sorry for the bad experiences you had in the past, but you are right, it's not about religion. Religion is not personal or intimate... the closer you try and get to God the more you learn what his nature is really like and what he's REALLY all about. What I find interesting is when other people have so much hate towards religions, those are usually the same people who's religion is themselves, their jobs, their spouses,children... most of us have a modern day god, we just don't admit that we're religious after all 😉 take care ☺

[@AvrilFanCarson]

sky blue you sound just as crazy as any god-fearing nutjob out there...

[@AvrilFanCarson]

Pretty funny you don't see your own views as "religious"...

[@Neitha98]

"You will never truly get what you want , until you want what you have". That' how I discovered her. And I come back today she passed away and I am such in a froze state of mind. She was, is and will forever be such an influence on me for the rest of my life. How can we love someone that you've never met so much, I love her so much I am so thankful she help me so much I want the world to know that such an angel was there... I can't even put my words together She was everything she will NEVER be forgotten. Thank You for everything Claire 💜

[@AudreeAdam]

She had a powerful charisma, was such an authentic, intelligent and creative young woman. She touched a lot of lives by her message of positivity and acceptance. I'm glad we had the opportunity to impact hers and her family's with the fundraiser. She will be missed and we'll think about her forever. She was the representation of the best qualities, the best part of what being a human means in an area where people are so easily the worst version of the themselves. It won't necessarily make sense to anyone, but it does to me.

[@zZjak793Zz1]

Better speaker at 14 than most adults who do these talks.

[@laurenhennessey5626]

Jack Dempsey so true

[@juliaf946]

Jonathan Dempsey and she said in one of her youtube videos (years later) that she was super anxious the whole time she was up there

[@juliaf946]

Jonathan Dempsey but yet she carries herself so well

[@cedarpointfanboy7317]

Stolen comment

[@riyakaushal7915]

She was perfect just perfect. She has no idea what impact she left on lives of ton. She existed for a reason, for the well fare of others. And before gaining her wings she complained the aim of her existence. More power to her parents and family. Love, XoXo

[@gigiky]

Claire is one of the only youtubers who genuinely inspires me to be a better person.

[@EricPeelMusic]

14 going on 40. So much wisdom in this child’s mind, it’s incredible.

[@tiffanyleanne2658]

You were a gift to the world. Wise beyond your years.

[@akuperempuan9097]

A mature, wise, and smart lady inside her tiny body. Bless your soul Claire..

[@mar8014]

Thanks TED for letting her on stage! She's amazing.

[@michaelbutcher6432]

She's a beautiful young lady that is more knowledgeable than most 30 year olds. I was fortunate to be one of the many Respiratory Therapists to take care of her at Miller Children's Hospital in Long Beach, California. I totally understood the reasoning behind her refusing her treatments with her vest. I've seen her father several times. I would work night shift and always come see her around 9 pm. As a teen I respected her time and we would work out what time she would be "offline" with her friends and ready to do her treatments. These treatments are no jokes. Her last treatment lasted between 30 minutes to an hour depending on how she felt. I had many conversations with her during these treatments. She is an AMAZING young woman. Just a couple years later I would find out that 3 of my 4 children were diagnosed with CF. We were already overwhelmed with our youngest child being autistic. So now we have 3 with CF, and 1 with autism. She is an inspiration and I enjoyed every conversation we ever had.

[@erinjessicabennett465]

Claire Wineland is the ultimate reason I still keep fighting and living the life with Cystic Fibrosis that I'm proud of!

[@sagdiforman]

It is not about how long you live, it is about what you do while you are alive. She will always be alive with those who's lives she changed.

[@beautybae7156]

I watch this when I’m sad. Thank you for the beautiful impact you’ve had on my life. I remember in the last video you made you said you really wanted to live and experience more. So I vowed to not kill myself and to live for the people like Claire who didn’t get to live. I love you. Fly high. 💕

[@sarahjarrett8004]

everytime I hear her speak I can't help but cry. she's got such a beautiful inspiring soul and she's such a blessing to this earth honestly

[@blackwhite2887]

I have cystic fibrosis and I miss Claire so much she was such an inspiration in the CF community 💛 Rest In Peace Claire Wineland 💛

[@katefernoliver]

I just found her tonight and as someone living with a chronic illness she's so so incredible. She has the right mindset and she's completely right. I've got Ehlers Danlos Syndrome Hypermobility type. Eds isn't terminal like cf but it is scary and it is very real. Being sick all the time can be scary but we do live. We are people. And it's OK to ask us questions. I promise we aren't some magical creatures!

[@JudithSamp]

Hi! do you know Martina from the channel "Simon and martina"? they make funny Videos and martina also has EDS; maybe checking out her Videos could help you a little bit? i am so sorry for you ...

[@thaiseathaydesantos]

I've got ehlers-danlos too. I'm going through the hardest year of my life in terms of health and it made me realize that I will never live a normal life. I will feel more pain, I will have difficulties doing things like walk, and simply grabbing things, but that's the body that I have, and many people have it worse. This girl is amazing, she is still alive and happy, and I realised that I can be happy too.

[@thaiseathaydesantos]

I also have the hipermobility type.

[@megancorisa7087]

Kate Herreid I HAVE IT TOO

[@HaliRaap28]

I have EDS too, and it affects every part of my life day to day and has taken so much from me, the pain is unbearable a lot of the time, but finding other people faces adversities with their health too help me find the strength to keep going and know I’m not alone. This disease is rare so I feel alone in this struggle a lot so it’s nice to know that I am not alone in EDS. Although it’s something I wouldn’t wish on anyone. Hope you all are doing as well as you can be!

[@rfldj]

rest in peace, beautiful soul.

[@juliaskagfjord6207]

Her personality was so much larger than life itself. I feel touched by her higher power. Only discovered her here yesterday. I love what she is saying about illness, and it helps me want to think of my invisible illnesses in a new context. She sheds light where there is darkness that is for sure. RIP beauty

[@Dallasxy]

I'm currently in the hospital with my 11th lung collapse awaiting a surgery and somehow never knew Claire had a Ted talk, through her young age she managed to bring more awareness about Cystic Fibrosis than anyone ever has. She may have passed too soon but she helped drastically increase the life expectancy of everyone else with this illness. 13 months after she passed a breakthrough in cystic fibrosis medicine came out called Trikafta as a result of the awareness and funding the CF foundation was able to use for research. In my doctor visit before having Trikafta my lung functions were at 38% and the doctors started the conversation with me about a lung transplant. The next visit just weeks after I was on the medicine my lung functions increased to 58% and said I may never need a transplant and if I do it wouldn't be for decades. The medicine only works for about 90% of mutation types so I'm not sure if she would've been able to use it but it's heartbreaking that she didn't make it to at least see the medicine come out and see the true impact of her legacy. I'm so thankful for her as well as countless others are, Rest In Peace.

[@erikrulez17]

hope your well.

[@beckloveher8446]

May Claire Winland Rest In Peace

[@debbie7771]

Aaaahhhh. I know this is 4 years ago but she is soooo beautiful. I'm so glad I came across her channel.

[@brindamarie]

Whenever life gets tough I think if her now .. everything she says is so true and so wise. RIP claire.

[@ReneeKnightYogaRani]

What a lovely young woman she was! I understand fully what she means by a health problem enriching your life! Such a shame that this gem of a human being is no longer with us!

[@Jojo-oi5vi]

I can't believe she's actually gone, im glad she lived her life to the fullest she could even knowing her time was limited. R.i.p and hope you're at peace sweet angel. You're helping someone in need.

[@AlexInF1]

*And now she's in a better place R.I.P.*

[@garbageday587]

There is no better place she's a skeleton under dirt

[@erikrulez17]

indeed

[@JustJenniferAnn]

This is a wonderful speech from a wonderful person.

[@sohinidutta97]

She's noticeably intelligent. Love this human!

[@TheRisskee]

Rest in piece, sweet girl. You made it to 21 and lived a richer life than most of us because you made every day count. But now the struggle is over. You will definitely never be forgotten. ❤️

[@veganlifechange]

I came across her just a few weeks before she died and hearing of her passing was gutt wrenching. I feel so much for those who've been following her for so long. ❤

[@KickBackRecline]

RIP Claire, you are a real inspiration

[@amanduh4470]

You're a beautiful person and such an inspiration! Could listen to you speak all day, every day.

[@yovnaponisamy4563]

Going through all her old videos Rip😢❤

[@claudelombana3689]

What a sweet, perfumed and incredible girl this angel was. What a loss for all.

[@rea1555]

I've just been diagnosed this week with multiple sclerosis. I'm going to see it as a door opening instead of closing. I love her laugh. Very Beautiful, smart young lady. Has totally changed my outlook on my MS. Love what you CAN do!!!! An illness can make your life more rich and fulfilling x

[@eagleone5456]

She is absolutely brilliant. A beacon for many, her beauty is unmatched, her intellect untapped. I think every person with depression or illness should listen to this soul.

[@chuckespinoza]

Claire, I'm friends with your dad and although we've never met I wanted to let you know how inspiring your talk was. Chuck

[@craftycathy61]

I feel the same way about cancer as you feel about cystic fibrosis. It's brought so many good things into my life! I want to be you when I grow up (and I'm 56 - ha ha)! You're the most inspiring person I've ever come across. GOOOOOO Claire!!!

[@iidaaurora]

She said that she's probably not gonna live past 18 and she is 18 now 😔

[@jaedenrotondo3373]

😔

[@jaedenrotondo3373]

Maybe the circumstances change. I know it varies, but the average age is 35 years old...

[@iidaaurora]

Jaeden Rotondo good! :)

[@jaedenrotondo3373]

+iidass ya, it's being going up over the years.

[@goofyboy2627]

She said when she was a baby it was 12, then it moved up

[@yanlin4738]

RIP Claire - I saw the news today and I knew I remembered you from somewhere.

[@CFfighter91]

This was a very inspiring video. Spoke incredibly well for a 14 year old. This is why people with CF continue to fight.

[@Inadace]

how come this doesn't have millions of views?

[@KindCountsDeb3773]

We have to SHARE SHARE

[@Sheila612Miller]

Rip Claire the world lost an angel last week.

[@garbageday587]

Angels are just imaginary friends just for you to know.

[@EHISH]

Shes truly amazing

[@LizTiddington]

I love her so much. And this is really food for thought, I think everyone has their crucible - we have to go through the flames so we can rise.

[@priyafalloon2098]

I could listen to her voice all day ! It’s so relaxing and beautiful ! RIP angel ❣️😢

[@elenav1287]

One of the most inspirational people in this world 💕❤️🙏🏼

[@museofficielle]

Bless you little angel

[@bekzchris]

RIP Claire! Your infectious bright light will continue to inspire forever more! Xxx

[@abbieprice3430]

I miss this girl so much! She was the kind of girl you’d want to be friends with, especially since she wasn’t afraid to be weird or share her experiences about Cystic Fibrosis! With videos like this though, they are reminder that a part of her will always be with us! RIP Claire Wineland!

[@shadyabrown-hall5955]

Aw... she was such an inspiration and she speaks well then most adults.

[@laurenhennessey5626]

you are an absolute blessing

[@alyssarose4337]

Whenever I'm sad I watch videos of her she's so positive and happy despite her situation it inspires me

[@Majaverymighty]

Rest in peace angel 🌹

[@spetersen2173]

This girl is so cool. I love watching her vids. So proud of her for doing a Ted talk!!

[@iamlight1]

She's amazing! I lover her to pieces just for this! ♥♥♥ "You will never get what you want until you want what you have". "Cherish every second and make the best out of what you have and, sometimes, the best of what you have is what you have. "

[@emmys720]

She was so smart and knew so much, also suuper well-spoken, Claire, thank you for being part of this world! ❤

[@ElizabethDohertyThomas]

Reason in peace, Dear Claire, and may your messages remain forever on the internet.

[@Chilupiano]

Clair you had a major role in my getting up and doing what I am supposed to do in life. Many thanks for all you do!

[@alara6500]

i can't even imagine thinking you're gonna die in 4 years when you're 14. It is amazing she could handle this situation when she was actually a teenager at the same time. I'm 15 now and I can't imagine living my life while knowing my life expectancy is just 3 more years. Now she is 20 and she has been a huge inspiration for me, I'd so like to know her in person. She is awesome.

[@xJacquelineBx]

Alara I think she's 18 actually 🤔 But I could be wrong

[@adelina7970]

I have binge watched her videos. So much wisdom. I love Claire! As a matter of fact I am gonna rewatch them now again.

[@stephk6083]

I live with a physical illness. It's not terminal, but yet it consumes my life. I'm too embarrassed to say what it is but it causes extremely painful stomach cramps about once a month. I tried taking medication to help, but it was a medication where I had to change according to what felt right for me. Thinking about my daily dosage was all I thought about. I couldn't go out with friends, I couldn't focus in school, and I could barely eat. It was hard and I'm trying to learn to stop letting it take over. I know you all don't care but it feels good putting it out there. To all of you there who have an illness, never ever let it consume your life like it did to mine.

[@joshuamichaelcook1987]

Awesome stuff! Great speach! Wonderful theories & amazing perspective!

[@mooshjones123]

Clara you are the change that we need in out world! Never change! God Bless you!

[@qtaylor2747]

Rest in Peace Claire.🙏 You were such an amazing speaker and life teacher and exemplar. I'm so happy that you lived as long as you did and educated so many people.💚

[@laurenhummel-lehfaculty1671]

You are a gifted public speaker. Your sincerity and vulnerability are inspiring.

[@caradarling]

1% chance of surviving! WOW! What a true blessing she is still here today. :))

[@salma4193]

It’s so surreal to watch her now. It’s crazy to believe she’s so young here too

[@chrysoula5226]

I hope Claire's beautiful soul rests in piece

[@garbageday587]

Yes in pieces she is a skeleton now

[@adelineanderson397]

this girl just made me feel so much better about my severe displastic spondylolesthesis. I'm 15 now and I wish I had seen this four years ago when I had spinal surgery. She is a such a great speaker too

[@dummydootsie6186]

Adeline Anderson what’s that?

[@chickadee915]

She made it to on 21 , but this video made me cry I could see her light shine through. Im 14 aand shes more braver and amazing then I am.

[@sweetsuze116]

Rest in peace angle. You truely made a difference.

[@himansh1194]

Angel*

[@Nouranbha]

She was a gift.

[@ChristineJonah88]

Rest in peace beautiful girl

[@Merely]

this has given me a whole new outlook. i am thankful for these challenges now that are helping me be who i am! you're the best, claire. thank YOU.

[@102007mbarnes]

Amazing that she wasn't even a trained speaker till she was 18. Sad she passed at 21.

[@goodtoGoNow1956]

Rest in Peace - beautiful and missed Claire Winland

[@schumache101]

I love her, she's so inspiring! I found her channel about a month ago, she is amazing and should be a comedian.

[@stephmorin]

Miss this beautiful soul

[@sylviaspencer4987]

The most wonderful positive attitude ever and such a gorgeous girl

[@s731s]

this video almost makes me mad. because here I am, a healthy young woman, newly married, beautiful friends who are like family, amazing family who are my rock. I have every reason to be full of joy, and yet I continue to battle with depression and anxiety my whole life. her talk really hit me "if I go to college that'll be true joy. if I get married that's true joy, if I don't have a job or education that is true empty and loneliness." such a messed up mentality! so caught up in our own selfish ungrateful unappreciated selves instead of empowering ourselves to make the choice to change our perspective and be thankful for what we have. wow. so amazed. she brought me to tears. I'm so happy I found her KZbin channel by accident.

[@LarryPanozzo]

She's 20 now! Such an inspiration and a joy to the world.

[@darthmusturd9526]

Larry Panozzo she dead now?

[@sunsfan8535]

Darth Musturd Murderer

[@P-Bass_Pete]

R.I.P. Claire, you still inspire me to this day. I miss your words and wisdom, and although I never knew you in life, I still mourn your loss as if we were old friends.

[@MsLoriGold]

Awww, God Bless her...I pray she defies the odds and lives as long and happy a life as possible...I wish that for everyone! I’ve got a chronic autoimmune illness and she helps put things in perspective. What a wise young lady!

[@himansh1194]

She died last night

[@PCGNp]

I'm happy to see her smile. I'm sorry to know you this late

[@RaneMay]

Such an amazing soul 💕 RIP Claire.... 💕

[@datgirlmeredith5370]

Rip Claire. Omg I watch your videos and I just stare at you. You are so beautiful and an amazing a motivating person. We all miss you breathe east sweet heart 💝

[@bchungdmd]

what a beautiful person! Proud of you, may flights of angels sing thee to thy rest! I will do something about helping the CF cause,. rest in peace, you are well remembered.

[@blueskiesandsun]

Awesome attitude. You don't let it define the boundaries of your spirit, or think of yourself as a victim. Very inspiring!

[@Cherry.coke9]

She's an inspiration I hope she's at peace now

[@asadluqman8731]

Rest in peace Claire wineland! We love you. We need you! We miss you! She is now in better place. 😭😭😭😭

[@oxfordshirehammer7279]

What a fantastic young lady The world is just not fair

[@JamesPound]

She is right, what a difference having the right perspective is. And it can be so hard to think that way sometimes.

[@venuschou6214]

You’re never going to be happy with what you get unless you are happy with what you have!

[@Rajking01]

video brought tears to my eyes... Claire is really the coolest person ever ! plus she's very beautiful by looks as well as by her thoughts..I love her voice too

[@beemo5138]

Rest In Peace Claire.