This surgeon saved my life in 2003, although not from hemophilia. He removed a stage 4 neuroblastoma tumor from me!
@seandoyle15889 жыл бұрын
I'm so happy we are getting close I can't wight to get rid of my hemophilia
@adamgarcia81596 жыл бұрын
Sean Doyle hemo b or a? i got hemo b severe
@averysalisbury43485 жыл бұрын
guys u dont need to wait for gene therapy i am also severe haemophilia A and i almost never bleed . only bleed if there is a severe joint injury that too very rarely . Mainly due to exercise and weight training. The more muscle you have the lesses bleeds you will face . Trust me.
@RahulKumar-wv4ti4 жыл бұрын
Yes brother you are absolutely right. I've very much reduced it with exercise and Gym.
@bjorn19048 жыл бұрын
thank you, i'm very glad to hear this news. Btw, me and my brother have haemophilliac B severe and we very tired of these disease meanwhile in Indonesia we still blood transfusion as a main therapy.
@contanielsmtih458910 жыл бұрын
All of you have done very good. Contaniel Smith
@HarishMeena_pc5 жыл бұрын
It's been six years since this video... How much more time will it take to become public??
@manmatha128 жыл бұрын
glad to see researches being done on haemophilia cure... hope we get this therapy would be made available to the patient's very soon..
@kr7_635 Жыл бұрын
Today's 2023 what about it 😞
@narendratamrakar99447 жыл бұрын
Add videos in for treatment of hemophilia and gene treatment.
@andrewrodriguez74933 жыл бұрын
Guys, I'm a 29 year old with hemophilia type B. They have been saying this to me since i was 13. "Oh we are 4 years out, 6 years, 5 years." I don't think I will see the cure in my lifetime.
@thejakefort3 жыл бұрын
Andrew I too have hemophilia and was told promising information years ago and now when I do my Yearly Htc appointments I’m having to fish for information on this..... sucks brutha
@mr.jazzbodkelsey5811 ай бұрын
I have hemophilia B, too. When I looked up the price tag for this gene therapy, it said $3.5M for one dose. So I don't know how anyone could afford it. Not exactly pocket change.
@alirezanouri63173 жыл бұрын
I know you guys are trying hard, but just come on, hurry up I just wanted to mention: 7 years have pasted.
@jean112610 жыл бұрын
Thank you for this promising information..please keep at it to find a cure!
@sakibforazi92345 жыл бұрын
IAM hemophilia and iam Bangladeshi I suffering hemophilia factor eight . Where are country give permanent treatment gene therapy full well hemophilia freedom please tell me about hemophilia factor eight treatment
@samikhansafi2124 жыл бұрын
I'm a patient of haemophilia b sir u talk about haemophilia b is suitable for gene therapy I want