Fighting Glioblastoma | Dr. Christopher Duma, M.D. | TEDxCollegeoftheCanyons

Neurosurgeon specialist - “Leading-Edge Pinpoint Radiation Technique on Glioblastoma”
Dr. Christopher Duma is a board certified neurosurgeon specialist in surgical brain tumor management. He serves as medical director of the brain tumor program at Hoag Hospital in Newport Beach, California and has been in practice for 23 years. His specialties include 3-dimensional computer-assisted operative brain surgery, Gamma Knife and CyberKnife radiosurgery, and deep brain stimulation for Parkinson’s disease and movement disorders.
This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at ted.com/tedx

[@mace8321]

My mother was diagnosed with GBM on Oct. 12, 2012. She was given 12-18 months if she received treatment. She went through surgery and about 3 years of chemo/radiation/and experimental drugs. Today I can happily say she is alive and well at 5.5 years. I know she is a rare case and I do not want to get someones hopes up, but just know that miracles do happen and God's plan will come to pass.

[@nclullaby1]

Inferno_2SS it's good to hear your mom is doing fine. My dad starts chemo and radiation in a week we are praying for God's miracle. It's good to hear someone finally had success

[@schawnettarobinson8584]

Miracle

[@GQ-yj5oy]

That's fab news about your mum. You will probably find her tumour has been mostly a grade 3 astrocytoma with a % being GBM, therefore needed to be graded as stage 4 GBM but with a better outcome. My partner died a few years ago with GBM five months after diagnosis. I still check on here regularly hoping that a new treatment will have been found I hope your mum continues to do well 🤞❤️

[@balonglong100]

Good thing for surgeons and human curiosity.

[@rsar61]

Inferno_2SS thank you my king Jesus thank You for your grace my lord GOD

[@jenniferneal9729]

My husbands glioblastoma presented as a head cold. I noticed slight confusion, but no one else noticed it. I told the doc about my concern he may have had a stroke and thank God she ordered a ct. Found a tumor larger then the size of a golf ball ( right frontal lobe ) with mid line shift. he had surgery, then chemo and radiation. It has been 2 years and 3 months and he is doing great...no sign of regrowth! Staying positive, I think has made a difference!

[@swastikakarki1825]

God bless u

[@ryanm5941]

Hope all is well

[@nylebell9222]

would you know if you had a tumor?

[@ajhannadamiano1023]

God is amazing. I hope all is still well🙏🏼

[@Nawaf95]

Stay strong jenifer hope all is well 🙏

[@FareahAfzal]

My man was just 24 years old when we got married... Right after 1 year of marriage..he was diagnosed with brain tumour.. Our son was just born... I was totally broken... He got surgery on 4th of august 2020... After 6 month...it regrew. This time...he had sever headache... Again he gone through surgery on 12th January 2022... Now he is preparing for radio and chemo... He is just 26. Our son is 2 years old. I don't know how am I alive even... How am I watching him in pain. He is my reason to breathe. Very much scared about future... But Still have faith in ALLAH... Hoping good from HIM... pray for my son's father.

[@AshwiniAsari]

My uncle was diagnosed with this deadly cancer a year ago. The worst thing is seeing the man dying in front of you day by day, the one who used to be full of life running, laughing and energetic. Loss of Money. Family suffering. Always in pain. Unable to talk, express or even smile. Let this happen to no one. Its worst than someone torturing you with worst kind of way. If you are alive now. This moment. Be thankful. The best thing that could happen to you is that you are alive qnd healthy. God i am crying as i am typing this. May who all are reading this may be blessed with good health. ❤️❤️

[@fabulosity7732]

Have you read about Joe Tippens ?

[@mercedesspear6068]

My 35 year old son died on May 29, 2020. He fought for 11 months. All the steroids blew his weight up to 285 and he was misrable. He also lost the use of his left side after surgery. I pray for all the families fighting this beast. It's the worst cancer ever. May God bless all of you with the strengnth to go on.

[@ennieli3058]

Rip

[@sarsvati1]

Lost my dad... I can feel ... In fact I hate this word GBM

[@boquag4281]

hope and prayers my surgery was 6/24/22 radiation chemo (now) my daughter 23 i’m a single mom is so depressed i have to have hope!!! and a miracle god is in control but i’m scared want to get to the point where my mri s are stable for years amen

[@juleshickman9169]

My dad was one of dr dumas patients. First brain tumor he operated on was in 2008/9 - my dad is still alive today after multiple brain tumors, gamma knife and chemo rounds. It did come back and is untreatable at this point. But he’s made it 15 years since the first diagnosis. He is so grateful for dr dumas gamma knife it gave him many more years

[@WordUnheard]

It's now 2020, and I found out I have a glioma in January. I had to have two back to back brain surgeries two days after finding out that I had a tumor in the first place. In February, I found out it is a Grade IV glioblastoma, and have been given a year to live...THIS year, of all years. I really hope to fall into that small percentage, that lives for three years or more. If not for myself, for my five year old daughter. She's my world. Stay safe out there, everyone. This may be a terrible year, but it's OUR terrible year. We're all in this together, and most of us will get through this together.

[@GQ-yj5oy]

Good luck, I will keep my fingers crossed you are one of the lucky ones. The fact you have had surgery is great it can buy a lot of time especially if you respond well to chemo/radiation. I'm not very religious but will say a prayer for you and your family at this difficult time. Please do an update post to let us know how you are getting on, it's good to see positive posts from those that are doing great 🤞🙏 (my partner was one of the unlucky ones, his GBM was inoperable, he was 42)

[@djshifter9989]

Good luck, my fathers was recently discovered his gbm 4 grade, i dont know where u live but search for optune and houston methodist gene therapy for GBM , this gave me hope

[@daihongbograce]

It broke my heart when I read what you wrote five months ago. Hope you are doing well now. Fingers crossed.

[@user-xc5tv5ew3e]

Are you alive?

[@kpeezyforsheezy]

Please let us know how you’re doing

[@mr.canada]

Probability of getting this at 3 in 100,000 sounds very low, but when you read the comments below, the pain and loss is so significant for so many...

[@sselemaNrM]

1 in 33,000 is scary. Not to mention other types of cancer you can get and their odds as well

[@spacecardinal]

My son was recently diagnosed. When we talked recently, he said with the huge odds against GBM, he would have preferred to have beat those odds by winning the lottery. Really, what are the odds?

[@clarahays7101]

My mom was diagnosed 2 days ago with glioblastoma and is getting surgery in 4 days. This is so unexpected and so devastating and I don’t know how much time we have left with her. My heart goes out to everyone in these comments who have gone through all of this pain and know how am feeling right now.

[@Manifesting_Secret_Sketchbook]

Sorry for everything you and your family went through. How is she now? What do u think is the cause of this? Was she under allot of stress? Did she fall over

[@birukbelayneh5759]

My mom died from it. I feel ur pain😥😥😥

[@gazpike1178]

My mum just got diagnosed yesterday 😞

[@birukbelayneh5759]

@@gazpike1178 im sorry what stage is it? Let u all get strength while going through this

[@gazpike1178]

@@birukbelayneh5759 I don’t know they just said it’s a very aggressive tumour, they said she needs surgery and chemo but she has around 2 years they said 😔

[@randydowell7646]

My wife was diagnosed a week and a half ago. It started bleeding and she had a really bad stroke. 8 days later I’m back at home grasping for any chance we can beat this. This is the only thing that I’ve run across that sheds even an ounce of hope. I’m going to try and get in touch with this surgeon. Please pray for her!!

[@gaceminabila3931]

take a try with a curcumin extact pills (about 5 grams per day), and a Berberine pills too (3 X 500 mg per day, even during the radiotherapy and specially during the chemio). I've read and watched a whole host of written and video testimonials by leading cancer surgeons and researchers, who insist on the effectiveness of these two natural herbs against virtually all types of cancer.

[@milrock88]

Ours is a very rare case, my 10 yo daughter has a glioblastoma on the brain stem, we are starting radiotherapy and chemo tomorrow, we hope for the best.

[@i.ehrenfest349]

"The ketogenic diet may be a helpful adjuvant initial treatment of patients with glioblastoma, especially in younger patients. A larger study will be required to test this hypothesis." Please read about the ketogenic diet, estrella. It is fairly new, and it will probably take many years before it's mainstream, but a lot of cancer researchers say doctors should advise cancer patients to do the KD along with treatment. They don't; if I were you I wouldn't wait until doctors start doing so. Don't be discouraged when your oncologist says he is against it. Just do your own research, because your doctor almost certainly doesn't really know all the latest research. KD isn't very difficult to do at all, btw. I'm doing it right now. In the first days you might get something called "keto flu" where you don't feel so well for several days. But nothing compared to the side effects of chemo and radiation. It is easy to follow because you don't have to feel hungry for a moment, and doing without sugar (which is very dangerous for cancer patients) is also only difficult for a while. It is well worth it. And the whole family can do it, and you can all reap the rewards - it also helps against arthritis, diabetes, and a whole host of other health problems.

[@i.ehrenfest349]

@Quack Watch If the oncologist is up on the latest science, yes. Please read the many entries in pubmed about the ketogenic diet and cancer in general, and especially in the case of glioblastoma. I'm afraid you are the quack, and it makes me angry, because you are trying to keep people away from scientific advances, because you think you know something about this, and you clearly don't.

[@teficalledlittlebird]

estrelladobleh estrelladobleh May God bless her and may she be able to live a long and happy life. Amen

[@brauliobonilla249]

Prayers to your daughter and your family

[@Raider-pp4hl]

My brother Ricky was diagnosed with a GBM on his brain stem almost 11 months ago (he is 30 now). It’s been hard. I’m crying as I’m typing this. I really don’t know what to say but to keep her happy in this uncertainty. I’ve tried to do my best as his younger brother.

[@supercarlitos2006]

My beautiful mother was diagnosed with this terrible tumor (Gleoblastoma) this September 12, 2021. She had surgery two weeks ago and the doctor on this video was the one who performed the surgery, I love this man, he removed the tumor to my mom and right now we’re waiting on chemotherapy & radiation to start and to save my beautiful mother’s live. I have so much hope and faith on my God that he will let us enjoy our mom for many, many, MAMY MORE YEARS. God’s willing. 🥰🥰🥰

[@dailysov]

I agree. Dr duma is a life saver. The man is a legend

[@susanboggio9155]

Please update us on your mom!

[@promitsaha1715]

How is she doing now? My father was diagnosed with the same disease back in January. He is in a very poor condition now.

[@LewisMoulton88]

I’m so sorry to hear about your mum I hope she’s doing well. My dad has recently been diagnosed with GBM, after researching about treatment, Dr Durma seems an excellent option. How did you get in contact with him to receive his unique way of treatment? Thanks

[@julielobato9766]

Some say he is Arrogant, but I want a confident surgeon. He sounds frustrated that more isnt being done when he has been able to significantly improve the lifespan or those with GB.

[@Dubinski2382]

Julie Lobato I want a confident surgeon with lots of former patients who are alive and well who can serve as references. We need yelp for oncologists.

[@rachelkoch109]

My dad was diagnosed with butterfly GBM last July and he passed just 6 weeks later, shortly after his 72nd birthday. I still keep thinking that this wasn’t supposed to happen to him. He was really healthy and always took care of himself. He went to the gym every day until he got sick and, when his doctor told him that alcohol can cause flare-ups for his Crohn’s, he stopped drinking altogether. I guess I’m just angry that someone I love who could’ve lived much longer died so soon from this disease.

[@allanlane1]

My dad age 68 was diagnosed March 15th, 2017 with a glioblastoma he passed away 35 days later on April 18th, 2017. Glioblastoma is very aggressive and debilitating, he had a biopsy on March 22, 2017 and was told the tumor was inoperable, his only hope was radiation and chemo, which he elected not to have. Prayers go out to all who get this tumor.

[@helenrogers5569]

Allan Lane your story sounds like ours. Started with seizures in October 2014. Diagnosed March 2015. Not a delayed diagnosis, just did not show on any scans or MRI' s until days before the next seizures. My husband went through so much exhausting treatment and our family nearly destroyed from the stress. We stopped all aggressive treatment and he actually had a better quality of life up until the last month. He past away after 17 months, March 18, 2016. Looking back, I have to wonder why people are led to believe these treatments are beneficial. He died just before his 68th birthday. Don't get me wrong, I believe there may be some scenarios that people need to choose treatment. But just why??? Why put them through all of this?? Also, so sorry for the loss of your father.

[@duanewillis7058]

Msunbird02 Sure, treat cancer with cancer causing agents. That is why. Have you ever seen the packaging of chemo? It has a radiation warning on it. Radiation causes death. It might kill the cancer cells, but it also kills healthy cells. Healthy cells needed for healing. Doctors get a cut of profits for prescribing them. It's the only drug they profit specifically from. That doesn't throw up a red flag for you?

[@fatoumatadiarra8437]

Duane Willis for now I believe this is the only treatment they have, chemo and radiation. Some people get free cancer from chemo and radiation, you people get free cancer from other natural treatments . But you have to try something, it all depend what type of cancer you have and how your body respond to the treatment. Some cancers are very aggressive and some are not.

[@avijitsingh8159]

Allan Lane My uncle also passed away by glioblastoma multiforme Grade 4

[@julyals6427]

November 2020 my 66 old brother has g blastoma tumor the doctor say the tumor is inoperable I feel very sad .

[@michaelpatanella]

Have a loved one who was diagnosed in August 2019 after having a seizure. Size of walnut. Had immediate awake brain surgery to protect speech. Then chemo and radiation. Then had 4 months of good MRI's. Then started showing possible regrowth of tumor. Had a 2nd awake brain surgery. However the new pieces removed were just scar tissue. Had MRI 3 months later, and had to he brought immediately in to discuss new concerns on latest MRI. Chemo regimen resumed. 5 days per month indefinitely. Next MRI is next week. We're all anxious as usual with each MRI. Been rough 2 years, but he is still a survivor at 26 months. So he's made it to the rare percentage.

[@user-wl7ns2ij9q]

I just lost my beloved grandma from glioblastoma and i am devastated ...we did everything we could to save her but the tumor was inoperable right in the middle of the brain ...in two months she lost her ability to move ,to talk and even eat.the evolution of the tumor was very fast not letting us have the time to react .she received radiation but she gave in yesterday...my grief can not be described . whoever is fighting with this deadly disease i only advise them to give the patient the proper care and love they deserve..

[@amyb2646]

ΙΩΑΝΝΑ ΛΑΓΙΟΥ Prayers to you. I just lost my beloved dad a month ago to this. I’m broken-hearted and I feel the treatments killed him. God bless you, so sorry for your loss.

[@Phoenix_blue]

My sweetest friend was diagnosed this past October & the prognosis was worse than hopeless. She’s resigned to keep the days remaining filled with family & love, free of treatment-thinking quality over quantity- My heart is broken.

[@ibhomer1017]

My mom was diagnosed with GBM on October 15th 2004, She was buried on her birthday, 5 weeks later on Nov 22nd 2004. Prayers to anyone that has to deal with this.

[@NewShockerGuy]

My father just had a Glioblastoma taken out of his brain two days ago... They are telling him he has 6 months to live without treatment and 12-14 months to live with chemo/radiation. To say this hasn't ripped out my family's heart is an understatement. He is 66 years old with zero medical conditions past or present. This is nightmare that I am currently not waking up from.

[@bluntie52]

newshockerguy........I know how you feel. As I write this my sister lies in the cancer hospital unable to walk. We dont know why yet. She had 90% of her gliablastoma tumor removed Nov 30/17. She was diagnosed end of Sept/17. She has had no chemo or radiation as of today Dec 28/17. The medical system has dropped the ball on my sister. She waited for weeks for her first consult with the surgeon. After that waited more weeks where we were told they couldnt schedule surgeries due to software upgrades for their scheduling. After surgery and as she was going downhill becoming more and more immobile we called the cancer centre. They had no idea who she was and had no record of her. The surgical unit FORGOT to send her file to the cancer treatment place. This is not the United States........THIS IS CANADA. They have dropped the ball on my sister twice now. She is completely immobile and has to be lifted by a crane and harness (no she is not any more than 160 lbs) and is now wearing diapers. Only 61 years old. Someone is going to pay. My advice to you is to keep on the medical team.......never let your guard down. Im in so much anguish seeing this happen to my sister I dont even want to live myself without her in my life. Im broken........

[@AshleyThompson-ke6fj]

NewShockerGuy my 26 year old brother was diagnosed with glioblastoma September 8th 2017. He had surgery the next day, and they could only remove 70% of the tumor. His surgery left him blind and paralyzed on the left side. He had to learn how to do everything again. I understand how you feel. My brother and I are best friends, and to have a heartless doc tell you that he has less than 2 years to live... killed me inside. I wish I could say it gets better, but the nightmare never ends... neither does the pain.

[@UmarAli-zc8xs]

The doctor is not heartless, a heartless doctor is one who gives false promises to his patients, he is at least honest with you. You have two years, spend as much time as you can with him.

[@zoritsanepenthe638]

I can relate to this being a nightmare you can't wake up from. My 68 year old mom had surgery to remove her tumor. It has left her partially blind,weak (from the steroids) and her short term memory isn't the best. She is in rehab to help her get stronger and learn to navigate around with her whats left of her vision. She'll start chemo and radiation soon. I found a support group on Facebook (yes, fb can be good sometimes), and everyone there calls it "The beast", and I can see it. If I could go back and freeze time when they originally thought she had a stroke, I would.

[@trixieangle2915]

contact Greg Cantrel, "Gregs Mission". his number is on his site and he will call you back.

[@Musicmanbutte]

My mom was diagnosed with a glioblastoma in September of 2017, had the surgery, they did not get it all, had radiation and chemo and still passed away on December 19, 2017 her 76th birthday was on December 6, and passed away December 19th. It was so fast that there was nothing else that could be done. She was to old to have another surgery, and they told us that due to her age she probably would not have made it through a second surgery. Anyone that has to go through this as a patient, or a patients family, it is so sad and heart wrenching that the family does not even know what to think. I am still in shock that all this happened, and happened so fast that it kills me. I feel so sad for any family or family member that has to go through this. My prayers go out to you.

[@suepiefer7064]

I'm very sorry for your loss...with all my tesearch it says ahgressive or short life....its very sad

[@acidstorm001]

My brother was diagnosed with this, this year. He went into surgery, they removed what they could of it, and is going through radiation and chemo. It's been 4 months so far. And from what you described in this video, this 'tumor' sounds more like a parasite with it being able to adapt and move the way it does. I pray they find better treatments. I know people are now living a bit longer, but he has a 17 month old son, and he wants to be around to see his son get older and hopefully live long enough so his son will be able to remember him.

[@iffybakker7440]

Blessings

[@innispowell8193]

My mom was diagnosed in march of 2018. For the first year or so on chemo and radiation she was fine but now after nearly 2 years her health is rapidly declining. I pray there will one day be a cure for this terrible disease as it is very painful to have a loved one go through this, especially as a teenager.

[@sarsvati1]

My father passed away due to GBM..he was healthy and suddenly felt weakness with headache.after 5 months after diagnosed this deadly disease he left us...hate this disease..it took everything from me... My beloved father..

[@noelisenberg3440]

My mom in 92 was diagnosed with this awful cancer ... they gave her 6 months to live ... we moved back to Augusta and MCG let her live for 5 +years she died October of 97 .. she fought until she didn’t know where or who she was ... she fought so hard .. come to find out a few years later her doctor who treated her for all these years put a patient with this cancer in remission .. I was a year old when she was diagnosed

[@aneka2009]

What is MCG, is it a medical center?

[@Someinternetuser]

She lived a long life, I’m glad she got a chance to stay around longer. My condolences for you and your family

[@kevinmoore2501]

I was diagnosed with this kind of tumor in the form of an ependymoma back in high school, and had it successfully resected twice, had a recurrence irradiated, and, for another recurrence, I’ve been doing chemo with adjunct irradiation. I’m incredibly lucky to have defied the odds. Thank goodness for successful treatment. Neurosurgeons, chemotherapists, radio oncologists, and anyone else helping out people suffering from this are blessings to patients. Thank goodness for those people. Liked, and added to favorites.

[@kevinmoore2501]

I just want to correct myself, and say that ependymoma is a type of glioma, not a glioBLASToma. My mistake. Sorry.

[@kevinmoore2501]

Another update, I have yet another recurrence, however, I maxed out my radiation dose, so, more surgery, and adjunct chemotherapy are how I will proceed. Specifically chemotherapy in some form of brachytherapy, most likely gliadel wafers.

[@pelipequi1493]

@@kevinmoore2501 Check into immunotherapy, and clinical trials for recurrent gliomas available, don't slow down the fight. The wafers are targeted and have been successful with your type of tumor. I just had my cousin's husband diagnosed with GBM, her sister had an astrocitoma removed G1, her dad a cerebellum tumor. Don't give up!! Check MD Anderson, Duke, and Michigan's clinical trials.

[@latonyabrown9617]

Amen

[@theweirdo8891]

Rehana. Two years back, my husband was diagnosed with GBM in March 2020. His vision was actually affected by this disease in left eye. Then he had gone through Surgery and a long course of treatment of radio and chemotherapy that ended in April 2021. The tumor reoccurred in August and within 4 months has become progressive and penetrated in the brain. He has decided not to resect it again. Doctors say it is inoperable. His ability to move is restricted now and he has lost vision in both eyes. Memory is also affected. This is a terrible experience for the whole family seeing our loved one deteriorating in front of us but we can't do his help. We are still praying and waiting for some miracle to happen.

[@pwisc2115]

Who would it thought I will be learning about this type of cancer! Yesterday, I received the bad news about this cancer from a family member, and I still in shock about how my uncle got this deadly disease. It is extremely hard to understand the why part of the situation especially when you know that person loves life and had a healthy lifestyle. Now I am more than ever convinced that life is beautiful and something unique. Enjoy teach love and give your all to leave a legacy of your best of you. God bless you all!!

[@pam164]

2019 and still lots of people dying with brain tumours. My father died 40 years ago with one he was 52 when he died he lived 3 months after they found it! Never ailed anything in his life was so fit bang out blue brain tumour!! Was so hard watching him decline and he went very child like was horrible.They need to do more research.

[@sammyisherenow]

My mother is 56 and after feeling unwell for a few years and finally suffering terrible headaches she was diagnosed with a high grade glioma 6 days ago in the front left of her brain. It’s hit me so hard I feel like there is a hold in my chest. She is having surgery October 30th then will start later with probably radiation/chemo. I hope she surprises everyone and a miracle happens. I feel so hopeless but cannot accept that I could lose my mother... all I’ve done is cry and cannot enjoy life anymore. Please send all the positivity and prayers you have 😢

[@sukumarbalakrishnan4223]

I hope and wish she is well now.

[@ramanandsinge8840]

Same with me brother

[@fctryoffetsh39]

God bless you all

[@joeyg719]

My mom was diagnosed with a glioblastoma early this year. We drove 12+ hours to MD Anderson in Houston for surgery in may. The doctor said if she came in 12 days later, she would be dead. I just want to thank the doctors there for giving me that 8 months even though she had no function if her left side of her body, to let her die without suffering. She passed away on November 7th.

[@amnch30]

I am preparing for an abstract re: GBM and it's burden to the Health Care for PhD program. This speech is powerful and vital. Thanks Dr. Dumon...😊

[@taylorsim5088]

as someone about to go through radiation therapy and chemo for this tomorrow morning, the comments and this video has given me hope. i';m only 24 years old and i couldnt be more scared.

[@Samuel-vb8ms]

All the best Taylor.

[@pam164]

Prayers for you

[@standup2982]

Thinking of you.

[@jocelynsalas5575]

Prayers for you. Stay strong

[@taylorsim5088]

Got through it. No complications & i’m fine. Updates can be found on my Twitter @simmerthreefive

[@malaicalipaygo56]

Dr. Christopher Duma is an amazing doctor.

[@emilycoles4066]

My mom died of GBM... she had no symptoms and one day she woke up unable to walk by herself. A week later she went to the hospital a few days later they found she had a brain tumour so she got a biopsy. They told us it was inoperable because it was very central to the brain and out of control. 3 days after the biopsy she died. She died March 1st 2019... I miss her every day.

[@rspro575]

I'm very sorry for your loss. I hope you can enjoy your life and not less the loss take it from you. She wants you happy.

[@GatoSanDad]

I'm sorry

[@melaniewalker5226]

It must've been a terrible shock to you, that it happened so fast you didn't have time to think. I'm so sorry for your loss, it's so horrible when we lose a parent. My father died 13 years ago I miss him every day. We always think they'll be around for ever and it's devastation when they pass away.

[@micheleperez2703]

It’s 2021 now, my nephew had this horrible tumor, doctor told him 6 to 8 months, he passed 3 months later…there is nothing the doctors can do about this tumor 😔

[@EmArilus]

I’m so thankful I only had a ganglioglioma! My condolences to everyone who had to deal with GB

[@sharonrose2233]

My Mom survived almost 4 years with inoperable glioblastoma the size of a golf ball in her left frontal lobe and speech area so I guess that puts her in the 2 percent. She was in a clinical trial though for a half dose if temozolamide for seniors which is not tolerated at full dose in the elderly. The trial was declared a failure because she was the only one to last a year on the treatment and go into remission. Unfortunately she then got colon cancer and died of that. Her brain cancer was still in remission though when she died. She could not speak very well since she was diagnosed but managed to communicate near the end that she wished she had never started treatment, that the whole 4 year ordeal just wasn't worth it.

[@tipoomaster]

Which trial was this?

[@1991ROLEX]

My first husband was only 30, died 12 weeks from diagnosis. in 1989. I am so glad that there is HOPE for many patients! A researcher at NIH, when my late husband was a study participant, said that it take so long to find it, too often it is too far gone before there are symptoms, that anyone pays attention to having. That was 1989. Still true today. Find it early, follow it and eliminate it.

[@stephanietipton6690]

My mom was diagnosed with glioblastoma and apparently had it for around a year. We only found about it after it started to bleed. She had the surgery to have it removed and it was too stressful on her heart and she died a few days later. Such a terrible disease. Hoping for a cure so other people don't have to go through it.

[@stepharoni8332]

I am so sorry

[@freespiritwithnature4384]

I’m so sorry honey.

[@Mus1c1luv]

Fascinating - and sensible.

[@paytonrobinson2468]

my mother died of glioblastoma stage 4 on November 2 2017. i came here to see what my mother had to fight through.

[@JET-BLACK72]

Someone i knew passed away from this horrendous disease. This tumor is extremely aggressive and it progresses very quickly. It was removed twice and each time it came back with vengeance. He died within 1 year from diagnosis.

[@debswel]

My dear husband sadly passed away June 23rd this year 2020 he was diagnosed March 9th. Had one session of chemotherapy tablet form but he was too weak to have anymore. He was diagnosed with grade IV Glioblastoma...we are all devastated 😪

[@dhavalskyhawk]

I am sorry for your loss. My younger brother was diagnosed on the same day, March 9th, 2023, with gbm grade 4, and had resection done following that radiotherapy and chemo and just got the news of reoccurrence. I am hoping to save my brother.

[@lonnieyanes4665]

Wow big hero, were was you 5 years ago this month when my Grandson passed away from gbm4? He was only 5 years old.I knew about the “Leading-Edge Pinpoint Radiation Technique on Glioblastoma” it existed back in 2011 and when we called who ever it was at the time, they told us that they wont do it on children. My Grandson only lived 4 months with this ugly evil disease.

[@Worldkeepers]

This appears like a very promising treatment. I hope the McCain's family is watching this and reaching out to Dr. Duma.

[@thuraya53]

Lost my dear aunt Dot(dorthy ) oct 15th 2022. . buried November 11th 2022. 38 years as a nurse. Retired to enjoy life then that. This is a hideous disease of the brain. God speed and blessing to all who have stories on here. 🙏🏾

[@robertdirocco1885]

My wife passed away from this in less than a year she was 47. Im soured by all the medical professionals, and insurance companies. The only saving grace was that I cared for her personally in her last months, and she was able to die at home with dignity, and with me holding her hand.

[@mzgri]

I'm so sorry. Thank you for being there with her caring, and loving her to the end.

[@jtlegionnaire6310]

I’m so sorry sir. This might be the worst cancer in my opinion. I lost my grandmother to it this year. I’m shocked this cancer is not treated more urgently.

[@tottart56]

THANK YOU, DR. DUMA !!!

[@fusegamer4960]

Mam can I get drs detail..contacts

[@midiaz1319]

Fast fwd to 2024. nothing has changed. My wife almost made it thru the 3 year mark. Horrible to lose a loved one to this cancer.

[@babyscarr3]

I had a GBM tumor in the back of my head 🧠I had to get a brain surgery 😭 I died and came back 🙏 but now I have sezuire 😧 and dignose me with eplisey 😔 I hate I have this brain disease but I'm blessed to be here ‼️

[@zoemcfarlane8722]

Thanks for the brilliant video it showed me what I didn’t understand

[@V14111]

Best Brain Surgeon in OC!👏👏👏

[@ajwadhibraheem1194]

The man we want

[@salvadorhirth3007]

Aggressive infiltrating tumors ought to absorb nutrients faster than slow tumors; if an aggressive tumor grows surrounded by tissues that absorb nutrients much slower, that creates a big opportunity for a selective delivery of labelled nutrients that will concentrate in the tumor. Essential amino acids containing more atoms of carbon (for example lysine and arginine) could improve the probability of absorbing neutrons in the nuclei of C14. Then a flow of thermal neutrons could get some C14 carbon isotopes to absorb one neutron, producing carbon 15 that should transmute swiftly into nitrogen, disrupting proteins and enzymes inside and on the surface of target cells. I do not have the means to test my hypothesis but labelled amino acids are available for research.

[@ukgaragegold]

My dads who’s 59 years was diagnosed a month ago. There’s got to be a solution!!! We mustn’t give up. Even if I have to do some sort of ritual , we must not give up and keep going

[@GQ-yj5oy]

So sorry to hear that your dad has this. I lost my partner to GBM and your comment reminded me of myself when he was first diagnosed. I used to sit up all night trying to find something that would help. In hindsight, if I could give myself advice and anyone else in that position it would be to live for today. Don't waste your time and energy searching for something that doesn't exist and don't waste your time or energy thinking about what might happen tomorrow. Make the most of today with your dad, tell him everything you have ever wanted to say to him today, you might want to tell him again tmro but you can decide when tmro comes. I would have done anything to have had just five mins of normal conversation with my partner, I wasted so much time searching for hope and worrying about tmro when I should have been making the most of today.

[@rachelm.8324]

UK Garage Gold - Classic Vynl Collection I was wondering how your dad is doing?

[@muetefekkir]

How is your dad today?

[@ovimanisumon9619]

My 32 year old brother passed away last 4 months due to this life threatening High Great Glioblastma disease😭😭

[@megz_85]

wow you deserve the highest recognition for this. My poor brother at age 48 has just been Diagnosed with gbl and is undergoing chemo & radiation but still only given 9 to 14 months.

[@megz_85]

+Jonathan Sals I have his medical report it says Bifrontal unresectable glioblastoma. it's been over 2 weeks since he had the grapefruit size tumour partially removed but there are 2 more they cant touch but treatment has not started yet?

[@nataliabuck7130]

It's been a year, how is your brother..?

[@indysk8r32]

I know he used the term GBM and another term maybe alluding to it, but he never actually used the term “Multiforme”. Since this is considered a “rare” tumor, I’m surprised that I know of FIVE people that have passed away from this disease in the last 7 years. The first one was an uncle on my father’s side, passed away in five months after being initially diagnosed. He had surgery, then chemo, and radiation. A cousin of mine, also on my dad’s side, was just diagnosed with GBM last week. (Supposedly we have don’t have to worry about it being hereditary...yeah, sounds like a sure deal...) A friend whose sister was diagnosed, treated, and passed away last year, wore some sort of helmet that delivered a “gamma knife-like” treatment to the area they were wanting to cut the tumor off at. This gave her an extra two months of life... this infuriated me that this disease, Glioblastoma Multiforme, is always fatal. The strides taken in medicine are amazing and I’m grateful for them, but GBM is still killing people in mere months- with the latest technology being used. Wtf. Cancer is terrible.

[@andreabontempo643]

It's not so rare anymore. Cell phones are causing this! Don't put cell phone to your head

[@UmarAli-zc8xs]

Andrea, cancer has existed since ancient Greece, Hippocrates had described cancer in his medical journals so did the ancient Egyptians. Unfortunately even those wise people have said that cancer is incurable.

[@Cowcharge]

The 'helmet' sounds like Optune. I'm wearing one right now, but it's more 'electrodes under bandages' than ''helmet'.

[@jaynedoe80]

Thank you, but I will not put myself through unbelievable pain for research. I will go home and make the best of my life and make my will.

[@rajeevsinghshekhawat6660]

God bless you 🙏🏻

[@anniezion]

Great talk! Here we are, seven years later, and the treatment options haven't really changed, no break throughs, no new optimistic curing treatments.. And like he says, we have found cures or successful treatments for a range of diseases the last decades, yet nothing for this..

[@Carlos-nz3vi]

My mom is 55 and we just got the pathology report today. She has grade 4 GBM...

[@jcilliers4412]

My dear wife was diagnosed with GBM4 in Feb 2024. The neurosurgeon here in South Africa said the risk would be to big to operate - that is to cut it out. I don't know if this technique of Dr. Duma is available here in our country.

[@cahoong]

I would hope he has a new Ted talk to give us hope

[@palomaguzman4371]

my dad was diagnosed with GBM, he tell us to doesnt went surgery, this tumor its very agressive, my dad fight with that 6 months, now my dad passed away. It was very sad and hard to see day by day how my dad deteriorated more and more...

[@tattylashes5396]

I have beed NED for 4 and a half years

[@justarandomgurl9421]

I’m only 14 years old and my mom was diagnosed in December. I’m writing this as my family is being taught how to use the Optune device. My grandfather (mom’s dad) died from GBM. Reading all these replies makes me scared. They caught her tumor really quickly, she had surgery, radiation, and chemo. I’m scared and I don’t know what to do. I feel like I’m too young for this.

[@juliacarlucci1517]

I’m so sorry. You are very, very strong. I am praying for you and your mom. 🤍 hold on to hope!

[@manuelapoissonnet8685]

thanks, dear doctor- keep educating and searching for treatment, pls - my father , same as my husband died of this and i try following new research- just there isnt much... thing is : my fathter was a east german soldier when diagnosed and was of course treated really like a trial rabbit : cobalt beams - he lived from 21 ( diagnosis ) up to 46 ( with countless brain surgeries to remove new tissiue tumors... i remember 8 - and what killed him at the end wasnt a tumor... it was a membrane covering his brain cus of the cobalts afterlife) ) my husband on the other side was diagnosed 2013 ( i thought he had a stroke first, but when the paramedics did the usual tests , i knew , what it is ) at age 48 and had radio and chemo with all the suppliment like theozolmide and haloperidol aso and passed 2013 ... i also hade a niece wich died of it aged 18 just 4 months before my husband did and her mother of course is still searching for the one thing she maybe missed out

[@kylieroberts1128]

My husband got diagnosed with 4 Glioblastoma lesions a few months ago. And is undergoing chemo/radiation at the moment. He’s so sick. I wish we had this as an option but don’t. Everyone tells me to have hope….but how…how can I have hope in the face of this?

[@zoemcfarlane8722]

My mother died from gbm last year it affected her frontal lobe area and by the time they tried to operate it was too late it has spread too far. Her chance was not much time tbh I had a couple of hours with her and she died in the evening.💙💔

[@julyals6427]

I don't know what can help my brother died in 3 months in Feb 2021 I still can't believe he was a strong man ..never before sick . His dokter always tell him that he has a good health. Always he helped poor people. I can't understand 😭

[@DanielSchaefer01]

What's the motivation behind using a gamma-ray source instead of protons/heavier ions besides the fact that gamma-rays are easier to produce/focus?

[@kristynaherman5737]

Maybe the gamma rays cause less damage to the healthy tissue as they are passing through it towards the point of focus

[@neenakapur1726]

Hi I am from India, my wife was diagnosed with GBM 4 in August 2020, underwent Surgery, 45 days Radiation, Oral Temazolomide but recurrence came after 6 months. We fought on IV Chemo with Biological Therapy for next 8 months helped then in Feb 2022 she was given cyberknife radiation and iv chemo again, started deteriorating and in August 2022 she developed a clot in her pulmonary system. Last resort we shifted to immunotherapy which did us in and we lost her in November 2022. Everything helped except immunotherapy which caused a lot of complications but a desperate family resorts to every means which can give life to your loved one.

[@jatinadlakha862]

Hi, I am from India too and my mother is suffering from GBM. She had a craniotomy to remove the tumor but she's in an indefinite coma state. This happened a week ago. It's a terrible feeling to lose someone so close to cancer. Did your wife undergo any surgeries and was she conscious during the treatment phase?

[@barefootposse]

January 4, 2023 I had my surgery to remove my Glioblastoma - so I just had my one year crani-versary. We caught it early because of a scorpion sting. I had a reoccurrance and Gamma knife radiosurgery on October 13, 2023. Lots of chemo and I try to be proactive with diet, cutting out ALL sugars.

[@winkieblink7625]

My husbands glio was very new….the main tumor had not even calcified or had the insidious butterflied cells yet….it went from a jelly belly size to the size of an egg…in two weeks. Sad thing was, the main tumor was bumping up against the rear left of corpus Colostrum and some if the tumor cells stuck to that brain part. That was my husbands death sentence for sure. McDermott and partner in SF did the removal…plus chemo and your type of Gama knife radiation machine. Glio Discovered in 2011, my husband died in 2012 at age 59. Still miss him.

[@arlinerobertson8867]

My husband had what he called sinus headaches. He also had a school injury from many years where he had grand mal seizures. His meds were good no problems. But every year he was to get an mri at his neurologist. He refused it and the doctor gave him his meds and never made him. In 2004 i noticed he was having little mini seizures around his mouth and when he got up from the comode he passed out. The next day i took him to the neurologist and he hospitalized him. Next day i found out it was glioblastoma multiform. He had one surgery and three months later another bigger almost died on the table. Insidious he was an engineer building aircraft and now a child. He passed in 2006. Im sure his neurologist bore some responsibility as it could have been found much sooner.

[@GQ-yj5oy]

The outcome for GBM is always the same. Median survival is 9-12 months with treatment, 3 months without. My partner survived 5 months after diagnosis. The survival rate hasn't changed in decades. Sometimes treatment can add a few months to life expectancy but these are really just an extra couple of months of suffering. As difficult as it is for us that are left behind, I think that passing away quickly with as little suffering and as much dignity as possible is a blessing in some situations.

[@nylebell9222]

what do you mean mini seizures round his mouth please? i get spazems in my tounge

[@Ahtesham8227]

older sister died at age 17 in 1995 younger sister died at age 31 in 2018 both with glioblastoma grade 4..

[@roseb3387]

My dad was diagnosed with what presented as a menigioma in December 2019. After surgery and the biopsy came back turns out it’s a glioblastoma, spread like wildfire well away from the resection area. He’s got weeks to live, maybe. 😥

[@maryam_lch856]

My mom is fighting with GBM 4 . she had the surgery and we're going to start chemo and radiation. She had gbm 3 and survived 10 years but it came back in grade 4. I dont know what will happen .pray for my mom

[@909tizer]

Fascinating video, makes perfect sense.

[@hollandhoney]

My mom started getting headaches, ended up with a glioblastoma, did one surgery, couldn’t get it all, and within basically a year to the day she was diagnosed, she passed away, that really sucked

[@cortezcortez5177]

My mother at 72 died from this and my sister at 58 died from this in Jan. of this year. I read that this is considered a coincident meaning that the tumor is not hereditary...a terrible thing indeed.

[@mirandascoool]

I'm so so sorry. Really. I'm praying for peace in your heart and health for you and your family.

[@pelipequi1493]

Get genetic testing!!!

[@sonyaskogstad3849]

Very interesting

[@laurafarrar4749]

i want tohavthisti have this surgery! hopefully. goingto th ge Markey cebter soon forcit. gettingvreferrals tgrough is tough.

[@allyt194]

I have gbm was misdiagnosed as a sinus infection for weeks it was only caught after a biopsy operation on my uterus anaesthetic open up the blood vessels in my brain making symptoms more noticeable and It was growing at the speed of leukemia im lucky to be alive abit longer at home I would have died

[@donnapoole7341]

I lost my mom to this cancer very sad.

[@daniellemorton3606]

my daughters dad was recently diagnosed with this they sent him to clevland clinic where they done surgery and removed what they could he went back 10 days later for them to tell him there is nothing they can do for him in those 10 day the tumor grew back 30 some percent they told him he would eventually go to sleep and not wake up he chose not to dod the chemo and radiation because he doesnt want to be sick he wants to be able to enjoy the last days he has today he seams to be doing fine he has alot of pain in his head and forgets some things but the doctors told him he had just a couple months we are all devastated i told him he has to think positive it s so sad idk i just wish this was a dream and i would awake the question i have is what are the stages of this does it start shutting down your bodily functions like using the restroom and what are other that we should look in these last months any info would be greatly apreciated

[@sandrastevenson6871]

My sister had glioblastoma and died within five months. Two years later my brother was diagnosed with glioblastoma and died six months later.

[@Ahtesham8227]

i am so sorry..my both sisters died of glioblastoma satge 4.. older sister died at age 17 1995 younger sister died at age 31 in 2018..now a nephew recently diagnosed with glioblastoma also. we are so much devastated why its happening in our family

[@TheLibbyLink]

What if it is not cancer and it is a type of cyst with the runners trying to find a way out to drain but can’t because of the skull? So what if you use the GK to block tracks growing inward and enhance a way out to possibly drain and heal? Like ports used to drain Hydrocephalus?

[@tipoomaster]

It continues to invade healthy brain tissue so long as you let it grow.

[@pelipequi1493]

It mixes with brain tissue, that's why is multiforme, it creates its own blood supply. .

[@rachaelduardo1923]

You are brilliant

[@stevenharrison2632]

Can this gamma Knife be used on Astrocytoma ?

[@weddingscripts]

My wife is two times Stage 4 GBM, it's 2022 now and still there is no cure. She has got two craniotomy surgeries, radiation and chemotherapy. Now for the past few weeks, she is getting seizures, both absense and focal. She keeps falling down and she doesn't feel her legs. As a husband and caregiver, I can't see her in pain. Doctors have all left the hopes down. Don't know why no one can cure this. Why are u doctors then

[@user-xy4wh6jt7n]

How is she now??

[@weddingscripts]

@@user-xy4wh6jt7n she passed away on Dec 30, 2022

[@SKMusic1985]

Why are we still no further on now almost 40 years on?

[@helenrogers5569]

I personally don't see how this is so great!! So this added another 10 months to a percentage of patients. Wow!! Another 10 months to go through the nasty symptoms, treatments and for the patient and loved ones to focus on the inevitable. Not much hope in my eyes. I watched my husband and our family deal with this for 17 months. Everyone would ha e been better off left alone with symptom management. Trust me, we still feel the effects. We still hurt from all the money making bs they put him through. You failed to say how the quality of life was for another 10 months. They still died from the glioblastoma right????

[@spookyoctober]

Helen Rogers While I understand and agree with you, I think any improvement with GBM is significant, as it continues to help find a cure and extend survival. If I were diagnosed with this horrific cancer, I probably wouldn't accept treatment and elect for palliative care. I agree that simply adding a few more months to a patient's life isn't ideal. The end result is still the same. But I also feel that ANY amount of research and improvements for this deadly disease is something we should try to acknowledge as going in the right direction. If nothing else, it will at least allow patients a little more time to get their affairs in order. Any and all time with loved ones is precious.

[@helenrogers5569]

Wednesday Camille. I appreciate your comment. Many patients, by the time of diagnosis, are suffering with memory issue and/or the ability to speak or write. They cannot make sound decisions. I guess you have to experience what the treatment caused physically vs the symptoms when the "treatment" was voluntarily stopped. In our case, stopping what was not going to help, have a better quality of life. Especially in regards to ADL' s. Even prior to the real noticeable symptoms, my husband wasn't able to make sound decisions or remember short term. Others did not notice as they were not around him enough to realize his deficits.

[@InfectedChris]

Do you think that there is a "one size fits all" approach here? Personalized treatment is the future, and any treatments that help can add up for many people.

[@anthonygjolaj3140]

Helen its great for him, he makes a lot of money off of the surgery using his patented techniques, he loves his big house and cars the patients are mere dollar signs

[@Bobo411]

I'm not sure what you want them to do...just focus on symptom management? How do we get to the point where brain cancer is a disease that can be "lived with" (like diabetes) if they don't do research like this doctor? Research on symptom management should be happening alongside curing the tumor. I am thankful for any R&D focused on GBM and brain tumors in general, as it is so sadly lacking.

[@d-owl7248]

can anyone help me, my uncle has this type of cancer, I am from India, AIIMS Bhopal doctor said it is inoperable and said with treatment he has 2 years left, he has two small kids and he takes care of 2 other families(relative's family) apart from his own family, please help us as there is no hope left from the doctor side.

[@rutykahana]

?It is simple and enlightening. Is there a text of this lecture

[@tipoomaster]

Does the technique patent mean others aren't allowed to use this without paying? Or is it open to all? My mom was just diagnosed with a GBM this year and the lack of progress and statistics are certainly disheartening, hoping it can be treated like a chronic disease in the near future with new immunotherapies.

[@dailysov]

U have to be trained on the patent procedure

[@2012evolution]

I have a pineal gland mass. This is probably not the same I'm assuming. But my doctor won't even do an MRI on me bc it's no big deal. Yet, I have headaches almost constantly, not migraines, just annoying. I can't sleep due to no melatonin being produced bc of my mass. But whatever no big deal, right!!?

[@tikigodsrule2317]

Is this treatment available anywhere beside Hoag Hospital in Newport Beach, California?. Washington state?