Temporal Lobe Epilepsy: Diagnosis and Treatment

[@DrOmarDanoun]

If you would like to make a consult with Dr Omar Danoun, age 16 years and older, please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays Phone: [phone] Email: [e-mail] In USA call the clinic www.henryford.com/physician-directory/d/danoun-omar

[@stevicatripkovic5393]

Dear Doctor, My son suffers from strug weber syndrome and takes three drugs carmizepam, that acid based drug and Cepru. It seems to me that it has reduced the generalized seizures and these minor seizures that you mentioned in terms of staring, mouth movements and so on. However, he has nodding. head forward 6-10 times a day. My question is whether this drug carmizepam can cause these bad nodding phenomena, since the neurologist explained to us that this drug is not compatible with the other two, so we started to throw it out. His EEG shows discharges during his sleep. Have you encountered such a case in your career? His EEG records two focal foci in the back part of the temporal lobe on the right and to a lesser extent on the left. Greetings from Serbia.

[@earlkeith4135]

How many Spike waves on a 72 EEG is Considered Abnormal???

[@TammyLP]

WOW. You described me to a t. I had temporal lobe strokes in 2010-2011 and never had Migraines or seizures before them. I always stare into oblivion and my right hand constantly taps and sometimes my husbands says I sing jibberish then I have no memory of what happens after that. I blackout. I have awoken plenty of times to my house being in shambles, my shoulder dislocated and sometimes find myself in in my closet, even found myself outside not knowing how I got there or how long I was there. It is scary for sure. Nothing has helped my Migraines. I started this journey in 2010 the day after Mothers Day at the age of 34 and I am now 47 still trying to put my life back together.. I had been diagnosed with having Bipolar Depression after TBI and of course PTSD bc everytime I feel off my anxiety goes into a tailspin. I still have some memory issues and aphasia at times. Anxiety, panic attacks, and depression, seizures and debilitating migraines that cannot be controlled no matter what we have tried. My longest stay in the hospital with a Migraine has been over a week just for the pain control. After my strokes I had to learn how to rewrite, walk and talk. I’m so fortunate to have been able to get to a hospital quickly. I stayed in the hospital for almost a month and then another 3 weeks for rehabilitation then outpatient therapy

[@militantpacifist4087]

I was born with epilepsy and the type of seizures I get are complex partial seizures. Whenever I feel an aura coming I feel like really scared and feel like someone or someone is looking at me in a menacing way; like they’re going to kill me or do harm to me. I also feel like I’m in another dimension during the aura. I’m also scared of open spaces (agoraphobia) and try to be in a closed space and feel like I’m going to get an anxiety/panic attack. During a seizure I see everyone as if it were blurry, like in a dream, and sometimes I can clearly hear and see ghosts or even people that are not even there when I’m alone. After a seizure I either get really hungry or really sleepy; and sometimes I start rushing back to whatever I was doing prior to getting a seizure. The irony of this is that while I’m not having auras I’m not scared of doing dangerous things like crossing the streets while there are a lot of cars passing by at high speeds or climbing ladders. At this point I’m more scared of being alive than dying to be honest. It’s like I don’t care what happens to me anymore. I’ve already had the VNS surgery done but I still get seizures and I even tried three different medications (Depakote, Keppra, and Onfi) and still don’t work. I’m going to have one more surgery (right temporal lobectomy) where a neurosurgeon will open up my cranium and cut out my right hippocampus. It’s going to be done January 25th.

[@DrOmarDanoun]

I hope you feel better soon and things work out well at the surgery

[@nube110]

Hola doctor,me van implantar dispositivo RNS epilepsia lobulo temporal derecho, quisiera saber su opinión del dispositivo, saludos, bendiciones.

[@brittanythaw9292]

I'm having the same issues! No doctor wants to deal with my case or even try to help me anymore. I'm on 2 epilepsy meds. Keppra and dilantin. It's been 15years of this. I'm done. I wish a doctor could fix me. I live in Ontario

[@nube110]

Brittany thaw, ami me implantaron electrodos profundos SEEG, vieron donde se originaban mis convulsiones y no pudieron hacerme una recesión, pero me implantaron el RNS system ,habla con tu doctor de los electrodos profundos, espero todo corazón que estés bien,y puedan ayudarte porque también se lo difícil que es esto.❤️

[@pyrotek40]

I hope everything worked out for you, I'm going down that same path, VNS multiple different drugs, so now my Frontal lobectomy May 1st 2024.... funny you mentioned the feeling of people looking at you during your seizures, when I have seizures I feel someone is standing over my left shoulder.... anyhow I truly hope all has worked out for you 🙏

[@zacharysherry2910]

I have seizures rarely but I even had one while I was inside of an mri machine one time. No one can tell me anything at all. I've basically diagnosed at myself over over the years to be temporal lobe seizures (grand mal) and that's why I'm here. I was born this way. I think I had a stroke recently because I can't get my eyes to focus and I have a esotropia.

[@UpToDateReals]

EXACT SAME with me, they put me in a mri machine to figure out where my seizures were coming from and I had a grand mal, parents always thought they intentionally caused it, seizures only got worse after that

[@gregorycarlson6632]

I have had TLE for two and a half years due to a serious infection that left an infarction and much scar tissue. It was inoperable, but I was sent to a Neurologist who’s entire practice is Epilepsy and other seizure disorders. He is very aggressive and determined, and we have it well under control. Friends, find a good Neurologist who knows what he/she is doing! There is hope for getting this disease under control. Great vid! I’m anew subscriber!

[@DrOmarDanoun]

Welcome! Yes an Epileptologist is the best one to manage difficult to control seizures

[@katebruno9255]

I’d love to know who you see. We are searching for an exceptional neurologist for my daughter.

[@hotmessmomvlogs]

I suffered a temporal lobe stroke at age 39. The seizures started soon after and I was having as many as 40 simple partial seizures per day. I was finally diagnosed and Keppra stopped them for me, thankfully, but it did have terrible side effects. I also had pure alexia where I couldn't read, but could still write pretty fluently. I also had difficulty differentiating colors, lost the upper right quadrant of vision in my right eye, couldn't recognize/name common things like animals, memory loss especially short term and had pretty severe cognitive deficits in general. Turned out I had a PFO and Factor V that likely caused the stroke. I was and still am a nurse who was very stressed working midnight when it happened and personally feel that was also a factor.

[@DrOmarDanoun]

Thank you so much for your story. Glad to hear you are doing well

[@stevicatripkovic5393]

​​@@DrOmarDanounDear Doctor, My son suffers from strug weber syndrome and takes three drugs carmizepam, that acid based drug and Cepru. It seems to me that it has reduced the generalized seizures and these minor seizures that you mentioned in terms of staring, mouth movements and so on. However, he has nodding. head forward 6-10 times a day. My question is whether this drug carmizepam can cause these bad nodding phenomena, since the neurologist explained to us that this drug is not compatible with the other two, so we started to throw it out. His EEG shows discharges during his sleep. Have you encountered such a case in your career? His EEG records two focal foci in the back part of the temporal lobe on the right and to a lesser extent on the left. In addition, he developed epilepsy at the age of 2.5 due to a high temperature, he had one attack and was hospitalized for 10 days. After that, 4-5 months passed and I noticed in him these starings, mouth movements and the appearance of nausea after waking up to at the age of 3.5 he had a stronger generalized attack again. Now we are in the phase of treatment and struggle and we are praying to God that his attacks will stop and we are in the phase that therapy will help him. Greetings from Serbia.

[@millier.206]

My twin sister and I both believe we have this. Classic symptoms. I , however, have had a lot of memory issues and I was just reading that this condition can also be related to memory loss. It’s all making more sense.

[@robinackermann7711]

Omg, me and my twin sister are in the same exact situation, we are wondering and suspect whether we might have epilepsy or not. Some of the symptoms are similar to what we experience, and it could explain many things. I hope you and your twin are doing better now:)

[@AmberLuna-eo2it]

The aura is like a warning ⚠️

[@lotuspocus76312]

Imagine living with someone for 10 years who's epilepsy started with the frontal lobe one but then it concludes all the others too. The most interesting fase in my life back then as in "alot to watch and study".

[@DrOmarDanoun]

Ask me any questions you may have about epilepsy and seizures... And thank you for watching

[@alearriaga5808]

I was wondering if you could talk to us about the relationship between epilepsy and fatigue/tiredness. I mean, how seizures affect with sleep and energy loss. Thank you Dr.

[@aqa1454]

I realy need your advice . Best regards

[@sugarcoma7662]

You are an awesome physician!

[@DariusStone69]

All the way from here to Dogsonia

[@pielayno2440]

How about doc mild atrophy temporal lobe is it a refractory epilepsy o drug resistant my son 4yrs old had a mild atrophy at a right temporal lobe according to the results of his MRI.

[@JoeTerpend]

Mate you are a genius, I was diagnosed with this about 2 years ago and I thought the doctors were just giving my condition some random name but so much of what you are describing is what I experience. I am on Epilim and my doctor increased the dosage a few weeks ago because I was experiencing these weird feelings during the day but now I am having very vivid dreams. I will finish listening to this video and comment again. Thank you.

[@Muuip]

Phenytoin controls my seizures perfectly, thanks to all researchers. 👍 I read it works on the sodium channels, but how exactly?

[@kaitteaa]

I suffer from episodes of feeling like I’m in a dream state that can last for hours. Sometimes during these episodes a wave of dread hits me and my heart beats very fast for a short period of time, things will look smaller than they are too. It scares me and causes me to feel anxious, could this potentially be TLE? I understand you cannot diagnose based on a comment, I would like to talk to my PCP about it since I also have headaches and diplopia/polyopia but I am worried I will sound crazy lol. Thanks for the informative video!

[@adjam7782]

I’ve had TLE for 30 years, and as of yet no medication has helped in stopping my seizures. I’ve just had to carry on with my life as best as I can but it isn’t easy.

[@mfohawk6779]

As someone who went undiagnosed for 25 years with TLE....which I called "having a brain twitch" before a 3-day hospital monitoring (which i had 12-16 one day, and 20+ in my sleep). HOWEVER....what are you thoughts about the link/correlation between TLE and medically diagnosed Attention Deficit Disorder? Yet, another issue I was determined to have. I feel the juxtaposition of the two conditions come with a completely different set of symptoms and affects- given one causes memory loss, and the other impairing ones' focus. For me, it seems to cause a mental "feedback loop" that can severely interfere with communication- almost even looking like a simple-partial/focal aware seizure.....given that I'll simply stop talking mid-sentance while I focus on remembering a specific word I was about to use. Mentally, I can "see" the word, but it's almost like my brain won't give it to my mouth. Thoughts?

[@fuzedcoffi5455]

Thanks. My partner is in the EMU right now This was informative. Thank you

[@dilawaiz3779]

Very very helpfull vedio keep it up

[@DrOmarDanoun]

Thank you... Glad to hear that it was helpful

[@whitenoises5264]

Very nice short and informative

[@gagoinewebabuseng6394]

My son has just been diagnosed with MTS through MRI was complaining of forgetfulness /memory loss and placed on epilepsy treatment

[@lukescrimshaw7678]

How’s your son doing? I started having seizures last year which I found out I had an AVM

[@kuronaialtani]

For about as long as I can remember at this point I've had random instances of deja vu, moments where I swear I've seen or heard something in a dream. It can happen at any point, someone says something at the right time or how I look at something at the right time, the way the light changes, etc. I never put much stock into it, calling them "deja vu moments" and just ending it there. But then I was driving to work one day and felt like I'd suddenly cut forward in video footage, next thing I know I've crashed into the person in front of me and I'm mid-conversation with police officers telling me what happened. And then about two weeks after that I was at work, doing work, then split second later I'm lying in the back of an ambulance on the way to a hospital, having fallen face-first and started spasming, according to coworkers. I've been on keppra for a couple months now, we might be needing to up the dosage soon as I've started having split second "deja vu moments" again--auras, I now know they're called, and it's genuinely terrifying as we've got no family history of this, they've more or less confirmed it's temporal lobe epilepsy that I've got, so at the moment it's just a day to day fight of trying to feel normal, do normal, keep taking the pills to be "my" normal again

[@UpToDateReals]

Could relate with you on the feeling of cutting forward in video footage, thought I was just going crazy

[@andyloy7809]

Same, partial focal with impaired awareness, or autonomic.

[@austinturer7372]

I had almost the exact same thing happen to me! For years I was living with epilepsy and had no idea until I had the tonic clonic while driving. It’s incredible how weird your brain works. Even now on the meds I still get the Deja vu and jemu vu. The brain scares me yet excites me at the same time

[@UpToDateReals]

I had my first seizure at 3 years old, earlier that day I had gotten vaccinated, later that night I had a 105.5 degree fever and had my first seizure, "febrile seizure", since then I've had multiple seizures over the last 12 years, EVERY doctor I've went to had said "no, if it's just a febrile seizure that will not result in permanent epilepsy" so the past 2 weeks I've been doing research to find out it's proven people who have febrile seizures in their younger years can get epilepsy, it's just sad that the medical industry can't own up to their mistakes. I'm currently 15 and supposed to be getting my DL in less than a year but sure they'll turn me down with my epilepsy, medication failed me and I'm just stressed out of my mind, what steps should I take from here?

[@Muuip]

Thanks for your informative videos on epilepsy! Much appreciated!👍

[@sekeriyasharif6593]

I was having symptoms of temporal lobe epilepsy like extreme Deja vu and having strange smells that’s not around. Had both eeg and mri scans both came back normal. Now I’m not sure whether I have temporal lobe epilepsy or not

[@kellymillar28]

Did you have the sleep deprived EEG? I had the regular EEG and MRI but those were normal it was the Sleep Deprived that came up abnormal. Just a thought.

[@skybryden7736]

I had the same thing

[@spider83ful]

Thank you very much for your very well explained video with a lot of details, I will go watch your other videos. Thanks

[@mjsumocera1582]

I was 18 and first experience seizure when I was 16 my neurologist diagnosed me with right temporal lobe epilepsy and told me that my seizure is cause by the scar on my temporal lobe. I was having an aura such as difficulty in breathing,smelling and tasting stuff like blood and when having seizure I'm being disoriented of the things that I do and also felt the fast beating of my heart. After experiencing seizure I felt tired, most of the time fall asleep and wasn't able to remember the things that I do. My doctor first gave me keppra as my first medicine and change it to phenobarbital but sadly Im allergic to phenobarbital that's why she make me take levetiracetam and depakote. Im still experiencing seizure and noticed effects of my medication such as gaining weight, having mood problems and hormonal imbalance. My neurologist is planning to add lamotrigine on my medication list.I research things that help me control and cure my seizure and read about keto diet. Do you think taking keto diet together with my medication can help me cure and control my seizure?

[@DrOmarDanoun]

Please review the video on keto diet. Best diet for epilepsy titled.. There is no cure for epilepsy

[@vishnupriyabattini6479]

With Same issue I was suffered till 2013 ,Mine is drug resistant epilepsy ,finally my neurologist suggested for right temporal lobectomy, I had right hippocampal sceloris ,after that I m free of seizures..from past 10 years onwards I didn't face seizures..really my whole life is dedicated to my neurologist and neuro surgeon..they are the Gods in my life ,save my life by suggest best treatment 🎉🎉 by seeing Dr.Omar's dedication and service towards society I am recalling my past life

[@kellymillar28]

I woke up last night because I smelled something burning. I checked everywhere but no smell. Is that a seizure? I’m on Levetiracetam. My Neurologist won’t change my meds unless I have a tonic-clonic seizure which was the reason they put me on meds.

[@nadezdamiksto3909]

Hello Doctor, I am 42 y.o. And just learn that what I was having since 12 y o called focal seizures ( medial lobe epilepsy) according to what I read . I had seizures once a year, or may be once in 2-3 years. Not regularly. But always the same. Always the same aura. If it starts- I will have seizures all day( several times) but then next day nothing and not for a long time. I never knew what it was. Never spoke to a doctor as didn’t have explanation, but it was the strangest thing ever happened to me, very physical and emotional. I used to call it” very dark place” No that I know what it is - it’s all makes sense. I am noticing that my memory is very poor. Sometimes I feel that my head is completely empty. Nothing stays there. It is very embarrassing. Do you thing that what was happing to me all these years can affect my memory . Do I need to see a doctor ?

[@DrOmarDanoun]

Of course... You need to see the neurologist right away for evaluation and treatment

[@virgilpillay]

Your story is the same as mine, even the age. I haven't seen a doctor because I can't explain what is happening to me, and also I can't afford to see a doctor. Feels like I'm losing my mind

[@JacobG093]

The poor memory can (and likely is) because of the Epilepsy as the temporal lobe is responsible for short term memory.

[@76angelgabriel]

Or an AVM in your left temporal lobe, like me. Plus on in the brain stem.

[@griselda425]

I have left temporal epilepsy and medication has controlled my absence seizures. The one problem that I would like to fix is my memory loss. I have a really hard time remembering things that happened within months or a few years ago. Is there anything that anyone can suggest? My neurologist has ordered MRI and EEG but it doesn’t help anything.

[@SIckLilMONkeY1985]

I have the same. I've had TLE for 17 years before it was diagnosed. And I've had three major seizures which didn't improve my memory. My social worker and neurologist said that it's just part of the disease. It has to do with scarring of the brain and neural pathways having been destroyed. Or so they say. There are wonderful moments in my life that i've completely forgotten. And people often feel bad when I have to admit I have no recollection of a particular holiday, romantic moment or conversation. Sometimes it'll come back to me when people start talking about it but alot of it has just vanished. I write down alot and try to avoid doing too much at the same time. And explain it to people. But you just have to learn to live with it.

[@SoniaJbrt]

It seems that I definitely have temporal lobe epilepsy since early childhood or even born with it. But got my first grand mall seizure at age 15. I had all the other symptoms since I can remember, I just thought I was crazy and never told anyone about the crying, the auras, the racing heart and the panic attacks. I haven't had grand mall seizures since 2012, but smaller seizures have increased since 2021. There are no Neurologists close to where I live. And I'm very sceptic to just see any Neurologist. If I see one, I would love to have the lazer brain surgery and get off the medication. Tegretol has caused glaucoma in my eyes and I had absolutely more than perfect vision until 2019.

[@andrewnicon]

I've got this surgery and although I've got a lot of faith in the surgeons and doctors in Melbourne, I'm still pretty worried.

[@hanginwithnyxx7634]

Hello Doctor, So, I have a very complicated and strange case. I've had risk factors for Temporal Lobe Epilepsy and symptoms of partial seizures, but I don't know if I need to see a neurologist. First off, I survived serious carbon monoxide poisoning when my mom was between 10-12 weeks pregnant with me. Second, I stopped breathing for a long time right after I was born, so I might have developed hypoxia from both experiences. I was born with birth defects, and I was limp for about a year. Doctors didn't know if I would have neurological problems, but my I.Q. tested as "gifted", and I was never checked for seizures or given brain scans. I would "space out" a lot as a little kid, but other than that I was perfectly fine. Then when I was 10, somebody punched me in the head above my right ear. I suspect it triggered a concussion, because I started perceiving music abnormally. Every time I heard a Coldplay song, I'd feel intense euphoria and get a roller coaster sensation in my stomache. I felt like I was flying in a video game, and I would "see" music as colorful landscapes and tunnels. I would also get an extreme urge to write and draw every thought that came to mind. I was just a kid, so it didn't occur to me that my strange experiences might be harmful for my brain, so I would listen obsessively to songs that elicited those feelings. I managed to trigger those "highs" almost every day for three years straight--but then my brain and body crashed from extreme exhaustion. At age 14, the roller coaster feelings were replaced with intense memory struggles and cognitive difficulties--problems that I've never recovered from for 14 years. I'm almost 28, but I can't remember most of my twenties. Sometimes I don't understand English, even though it's my native language. I get lost in public very easily, and sometimes I can't understand calendars and clocks. My disability has gotten to the point I can't live on my own, but my family doctor just attributes it to anxiety, ADHD, and depression. I've had mental health treatment for a decade, but I've seen zero cognitive improvement. Do you think my case is worth seeing a neurologist? Thank you for your time and opinion.

[@DrOmarDanoun]

Yes see a neurologist for evaluation

[@lolololo2965]

I found out mine was temporal lobe epilepsy because of the mouth movement thing and also intense anxiety and memory loss after waking up from anxiety, currently taking oxcarbazepine but its not much useful and my doctor might change it or even advice for surgery

[@ramprasadpokhrel9895]

I feels so strange discomfort and difficulty for 1 minute but never be unconscious. In my MRI report Calciofied granuloma and Mesial tempral sclerosis on left temporal lobe , I have been on seizure medicine since 3 year but problem never cured. Just taking medicine even not working by medicine. Doctor always confuse because my seizure never detect on EEG only detect if attack happened during EEG report comes some sharp wave discharge. Daily feels 2/3 attack even on medicine regularly.

[@ravikiran-tj6rj]

Hello dr, i have been suffering from temporal lobe epilepsy it initializes with aura like hearing some strange words or voices of a group of people. I have done with all scans and protocol epilepsy mri but found nothing was abnormal.so what could be the reason for this.how can i get a permanent solution for this. I'm praying for God to make your laser research a permanent solution for this.

[@DrOmarDanoun]

Please review the video on drug resistant epilepsy. It has all the information you need and discuss with your neurologist

[@sametkaynak-db2eb]

Does temporal lobe epilepsy cause anxiety? 

[@Liddy47]

You are amazing 👏 ❤️

[@xDane3]

I have been diagnosed with TLE and one thing i experience is the temporary inability to read basic words, this can last 30 seconds to 5 mins. I cant find much on this, have you heard of this? One neurologist said she hadnt heard of such a thing and dismissed it, another said its possibly related.

[@DrOmarDanoun]

Yes can happen. This affects the are of the brain that understands the words.. This is called ictal aphasia.. Very well described before

[@xDane3]

@@DrOmarDanoun thank you doctor. When I look that up I only find issues with speech - I guess they are a similar thing.

[@torimichellelewis2275]

Hello, I have an Arachnoid Cyst in my brain which has caused me to start having seizures. I started off having partial onset and then GrandMal seizures. It has almost been a year that I have been seizure free. Recently, I started having this one specific memory pop up in my head every time and multiple times a day. When this happens I get very emotional my heart pounds and I start sweating, my hands start shaking, this lasts for about 10 to 20 minutes and I am exhausted after and numb . I started thinking maybe my seizures are coming back in a different way since I’ve went from having at least 2 to 3 seizures a month to not having any grand mal seizures. Does this sound like a seizure?

[@DrOmarDanoun]

I can't provide medical advice online.. The description might very well fit seizures. Please review the video on types of Seizures. Arachnoid cysts are congenital and do not cause epilepsy

[@accidental-life]

You should see my Eegs! They have wiggles in every sections at different times and some all together.

[@joleneengelbrecht284]

Hi I would love to know if anyone have ever experienced their back of their head area between the ears feeling stiff?… Also your one ear hearing differently? Like the bass of all sound cant be heard.

[@phil4818]

This is what I have been diagnosed with, I have some spots on the front my neurologist thinks may be the result of a motocross accident, I used to race a lot.. do you know if this will eventually heal?

[@DrOmarDanoun]

Yes epilepsy can be treated. Depending on how you respond the time can vary

[@austinturer7372]

I just got the RNS device put on my left temporal lobe, because I’m allergic to every medication. Have you heard good things about this device?

[@MoonWomanStudios]

How are you doing?

[@alinnecarolina4232]

I've been getting a lot of deja vus lately and I'm scared it might be epilepsy. Could epilepsy present with only deja vu as a symptom?

[@DrOmarDanoun]

Yes it can... See a neurologist for evaluation. Thank you

[@bd1zzle]

First 30s into the video. Yup. My neurologist was right since 2018. I have left temporal lobe and right temporal lobe misfires causing me to be diagnosed in November of 2018 with epilepsy and left side he wasn’t sure after awhile it’s where the hearing and vision part of the brain function is causing a chain link of misfires to cause seizures then my last eeg 2 week stay at the hospital first time ever, he saw a seizure start from the left and bounce to the right side of the brain and I have a RNS for the left side of the brain but nothing on the right side and he’s saying from the WADA test I did late last year, my memory and speech are completely gone and looks like in starting to have seizures on the right side of the brain and he’s told me about the neurosurgeon and looks like I’ll be having surgery again to get a vns put in to hopefully stop any seizures

[@danielenriquejaramillogome6790]

Doctor para la epilepsia del lobulo temporal tambien se puede medicar con carbamazepina gracias saludos desde peru

[@BbBb-oj7ul]

Hello, My 3 1/2 year old daughter has been diagnosed with right temporal lobe epilepsy. She had a convulsive seizure and has to take "depakine". There's no family history, and she's developed perfectly so far. Do you think she will ever be completely cured?

[@brycepalmer4942]

Hi Dr. Danoun, when an episode comes on a person, if you’re having symptoms of deja vu, and mental, dream like thoughts that you can’t remember after the episode ends, but no auditory or visual symptoms, however, when you talk during an episode, you’re able to describe a little of what you’re seeing in your mind, would that sound like someone with temporal lobe epilepsy?

[@DrOmarDanoun]

Possible but I can't make any judgment without evaluating the patient in details

[@glor432]

I was just diagnosed with temporal lobe (left specifically) seizure activity. (Did an EEG) When I get my auras, I get the strong deja vu, a lot of anxiety or fear. Sometimes I even get deja vu smell. I’ll smell things that are not there. I would go see a nuero and ask for an EEG if I were you. Good luck and best wishes

[@zsoltferencz5407]

Hello Doctor, my doctor just switched from lamotrigine to gabapentin? what is your opinion on the second medication? i never heard of it? did you prescribe it to any of your patients? thank you.

[@DrOmarDanoun]

Gabapentin is originally a seizure medicine but honestly we don't find it useful for seizures. I can't provide medical advice online.. Please discuss with your neurologist

[@carmelssss]

I have had TLE for 3 years but cannot tolerate meds so I just suffer. Really sucks

[@cet6978]

Yesterday doctor said me u have TLB but after MRI AND EEG comes normal both reports. He said u will be all right after this taking this medicince (britizilam). So what u think?

[@hitendrapatel4547]

I had grand mal epilepsy and at high school exam period I had temperol lobe epilepsy but now I have petit mal epilepsy and at old age it is very difficult

[@manzaralam5976]

Hello sir my spouse is sufferings from drug resistant Epilepsy in left Mts after several tests like Pet Mri, Meg, Mri doctor finally conclusion for surgery just want to know can i go ahead for this and what was the success ratio after surgery medicine will stop after 2 years or not till now 3- Drugs of Epilepsy was taking

[@zeestudyzone]

Aoa.I have a 8 yr old history of idiopathic secondary genralised epilepsy,and i was being treated with oxcarbamazepine and i was seizure free FOR 6 YRS ,tapering started and i had seizure and was started on keppr and clobozam,during my keppra treatment i had multiple auras[buzzing,cant remember,words on mouth tip cant speak which causes stress to me] almost every day,followed but 3 episodes of seizure in the same year, now i am started back on trioptal with keppra and benzo being taperedi was doing fine..since 4 days i have auras[piloeerection of scalp and buzzing sounds with headache.i am a medical student studying for my step 1.what to do....

[@accidental-life]

I take Vimpat and Briviact. My doc wants to put something in the brain but I'm not about it at all because I have seizures coming from everywhere.

[@JB-nr8fu]

I had a febrile sz when I was 6 months old. Dx w temporal lobe sz when I was in HS. My neurologist then sent me to be evaluated at Montreal Neurological Institute after trying multiple meds w no success, there, where after a month of testing, I had a right temporal lobectomy in 1979. The medicine I was placed on was zonegrine after my initial Dr retired. Oh, I had one generatized sz in 1998 before my neurologist retired. . Now I have kidney stones from the zonegrine I was prescribed so in April of 2022 I stopped it and am now on Vimpat 50mg BID, have a new, young neurologist who read the EEG I had a couple of months earlier. This is a lifelong issue that can be managed. I’ve never smoked, drank much alcohol & never had recreational drugs- just the resp infection and fever at 6 months old. I’m 63 and just retired last year from a hospital nursing career after 39.9 years. Thank you! This was very good!

[@DrOmarDanoun]

My pleasure

[@chooseaname1423]

Can seizures come on after eating? If so, can you share what you know about that topic?

[@DrOmarDanoun]

Yes. This is called reflex epilepsy

[@chooseaname1423]

@@DrOmarDanoun thank you so much! Do you have a video on this type yet?

[@zacharysherry2910]

Typically mine come as a result of not eating. They can be a result of the brain's reaction to insulin as far as I'm aware.

[@ElaineDSmith]

My husband (73) had a forceps injury and has temporal lobe seizures because of it. He takes Vimpat 200 mg twice daily and Mysoline 250 x 6 daily. How much could he control his seizures since he has started on a strict ketovore diet? He averages a seizure 1 time a month.

[@DrOmarDanoun]

Depending on the epilepsy type and if drug resistant epilepsy then he needs evaluation as we discussed in the drug resistant epilepsy video

[@sametkaynak-db2eb]

temporal lob epilepsi psikayatrik sorunlar yapar mı

[@amandatristan232323]

Can a seizure make you do things you don’t mean to do? I’ve had a tonic clonic seizure and a lot of deja vu events, but once when I was a kid I felt like I was dreaming and thought there was treasure under my bed and I can remember that I couldn’t control myself. I don’t remember what happened after I think I went to sleep.

[@DrOmarDanoun]

Yes possible

[@anitajoshi2494]

My son have temporal lob epilepsy diagnosed in 2009 when he was making his engineering 2nd year " Now he is taking medicines and doing job as quality supervisor "he takes livecitram and encourage crono but he is absent mind in one month for 15 seconds what I can do for it

[@DrOmarDanoun]

I am sorry I cannot provide medical advice online. Please discuss with your neurologist

[@natalieJe10]

List the drugs i took em 😂 the only ones that semi work are currently Xcopri and lamictalXR. Had a left temporal labectomy and a vns implant, neither worked. Now im going to be getting a eeg soon for a possible rns Implant. The fun of it all! Love the info you share btw.

[@kellysprenger3818]

Hello 🌺, I really need some help with My Terrible 10 hours's Straight when an Ambulance or Hospital ... I am so surprised that I Survived! My Wonderful Son had to see this, Anyway. I or We really need Help... Thank's I am so surprised that You are so Smart,. Have a Safe Day, Kelly 🌺 🦄 🏞️ 😇

[@kellysprenger3818]

Sorry I left out Seizure's, I trouble typing ... Thank's, Kelly 🎉

[@heatherstratta3266]

I was told by my Dr that I have a scar on my temple lob. I had 1 seizure as a baby due to a ear infection and none until I was 19. Still until this day at least 1 a year. I tried the v.n.s but nope. I'm on 3 different medication depakote vimpat abivact

[@The_HitchHikerrr]

So TLE can present as intense Anxiety?

[@DrOmarDanoun]

Only at the beginning of the event then progress on to seizure activity and changes not just anxiety

[@The_HitchHikerrr]

@@DrOmarDanoun thank you for clarifying

[@bean0124]

I have undiagnosed temporal lobe epilepsy. It happens infrequently, maybe 6-10 times a year. It’s been more than 25 years. What happens if I never get treatment?

[@DrOmarDanoun]

If epilepsy is not treated it will get worse with time

[@angelinemaseko3514]

Um on phenobabiton pills

[@coffeecat086]

Oof, I hate nthe smell hallucinations! I always smell cat poop😂 I kept smelling bakrd apples yesterday and my sister was like “are you sure it’s not a seizure?l nope, I don’t get that lucky. 😂 my niece had made backed apples and granolas 😂 if something like that was what I smelled… I’d be like “sweet !” 😂 nope just got to smell cat poop😢

[@maximpawlowsky5297]

Can a seizure from temporal lobe (cavernoma) spread to parts of frontal lobe and motorcortex? Without loss of consciousness? Thx

[@DrOmarDanoun]

Yes it is possible.. Especially if was on the right side of the brain because speech is on the left side

[@maximpawlowsky5297]

@@DrOmarDanoun Thx a lot for your answer! I was diagnosed with cavernoma this week in right temporal lobe. It's near hippocampus/the limbic system. I had presented at the ER with frequent "jerks" of the left side, diplopia and headache. They diagnosed cavernoma via MRI, EEG was normal and told me I had psychogenic seizures. The more I read about TLE, the more I get upset..... It's just like OBVIOUS the cavernoma which has bled recently must have caused this! I feel like fooled by those doctors.

[@DrOmarDanoun]

Looks typical for seizures. The EEG needs a large brain area to be showing changes. If the seizure focus is small or deep then it will be normal and does not mean that it is psychogenic. Probably better to see an Epilepsy Neurologist Epileptologist and they understand this best..

[@lingamyadav8344]

My baby suffered temporal lobe atrophy at age 10 months

[@Arda-st3mh]

First of all, hello Mr. Ömer, My name is Arda, I am 17 years old, I have been experiencing depersonalization and derealization periodically for about 5-6 years. I suspected it might be something neurological, 1 month ago I went to the doctor with my mother and she took an EEG for 1 hour while I was awake. he said my result was normal, but i still don't feel comfortable i have almost all the symptoms sometimes i feel something rising up in my stomach a few times a day and then i have deja vu and jema vu any advice you can give me? My English is not very good, I apologize in advance if I made a mistake in my spelling (:

[@DrOmarDanoun]

Yes these videos are for information.. Please continue following with a neurologist and they will be helping you.. It can take time to reach the diagnosis but stick with the neurologist

[@anitajoshi2494]

I have survived your channel yesterdsy

[@franciskamau713]

Hey doc..am 30 years old....I had seizure for the first time in my life 2 months ago...started like a roller coaster then shaking of the whole body...I was given phenytoin which am currently taking...Will I take them forever??

[@DrOmarDanoun]

Depending on the cause and the response to treatment. Epilepsy needs long term treatment for years not months

[@DrOmarDanoun]

Review the video on new epilepsy diagnosis

[@aztekaztek8436]

Hello Dr.. İs B6 (pridoxine) help ?

[@DrOmarDanoun]

Explained in the video on supplements for epilepsy

[@hopehope8393]

Gray matter caused seizure at 40yrs,can it be cured by surgery? or have to take Asm life time?

[@DrOmarDanoun]

Some cases yes.. Please review the video on drug resistant epilepsy I explained all the surgery aspects

[@hopehope8393]

@@DrOmarDanounThank you for you reply,doctor.I had seizure maybe twice a year during sleeping or just wake up since 1 year ago. I did MRI and EEG. The doctor suggested me to take Asm life time. But I didn't take any pills so far. Sometimes I suddenly have that anxiety and fear feeling like I maybe have seizure,then I kept telling myself calm down and relax,then seizure didn't happen.I am not sure if it is my fear of seizure caused my imagination or it was real?

[@hopehope8393]

I have hyperthyroidism 1 year ago.Before I had thyroid problem,I never had any seizure in my life. I wonder if my thyroid problem is the trigger of my epilepsy?

[@ElegantNehaa]

​@@hopehope8393 send me your contact number or email id ..want to talk with you regarding your problems

[@krinadedhia5485]

Does temparlol lobe epilepsy leads to memory loss??

[@DrOmarDanoun]

Can be

[@vishnupriyabattini6479]

Yes ,it's happened ,for mine it's practical experience ,I loss so many incidents from my permanent memory, due to more fit episodes belongs ro right temporal lobe ,now I m free of seizures from past 10 years due to right temporal lobectomy,but still I have issue with photographic memory ,I m unable to remember routes ,ways with turnings though I visit so many times..😢 some times some people faces also 😮

[@15nehasingh]

Is occipital or temporal epilepsy same

[@DrOmarDanoun]

No different locations

[@drsaumyasingh4941]

Can schizophrenia disguise as temporal lobe epilepsy despite MRI suggesting TLE?

[@ThisIsForDrew]

Absolutely not

[@sugarcoma7662]

I smell things that aren't real. Always smell greasy food like McDonald's. I feel sick to my stomach and get tunnel vision. After that I don't remember. My family has made videos of my seizures. I do some strange things and it's very embarrassing. Sometimes I also lose bladder control.

[@dysknect4571]

I have what he's talking about when he says aura. He means acid trip....

[@dysknect4571]

That's the easiest way 2 explain what's happening on the inside, or at least what it feels like on the inside

[@zacharysherry2910]

For me it doesn't feel like LSD at all in any way shape or form. It does however feel like strong deja Vu usually

[@aqa1454]

Goodevening dr. Omar How can i contact you directly , my daughter is having symptoms that made me think of temporal lobe epilipsy . Dr. Alaa From iraq

[@DrOmarDanoun]

انا لا أستطيع إعطاء استشارات طبية فردية.. يمكنك متابعة القناة العربية وفيها نفس الفيديوهات باللغة العربية... إذا أحببت يمكنك إرسال رسالة على صفحة الفيسبوك ولكن صعب الحكم بدون معاينة المريض مباشرة وشكرا على تواصلك

[@Mahdi20832]

such people feel they gain prophecy....... what your patients says?

[@olafelsberry420]

Do you also speak Farsi?

[@juliemiller3545]

Rollercoaster deja Vu

[@troyism]

i developed keppra rage after 5 days and then had to switch right away