I suffered from tetrology of Fallot and went through surgery in 1971 at the age of 7!!! Today I am 56 years old and I am still so thankful for Sick Children's Hospital in Toronto! I got cured!!!
@vaishnavigunjal64903 жыл бұрын
hello there sir! would you pls let me know if you have gone through pulmonary valve replacement in your later yrs?
@SumitPatilharshu3 жыл бұрын
Yes please let us know if you have gone through the pulmonary valve replacement surgery
@sonialilly56883 жыл бұрын
@@vaishnavigunjal6490 I was born with the exact same & yes I am waiting now on a valve replacement due to moderate pulmonary valve regurgitation!!
@vaishnavigunjal22763 жыл бұрын
@@sonialilly5688 may i pls know your age
@nandanibharti-sw1cb Жыл бұрын
@@vaishnavigunjal2276 are u a tof patient and u also have pvr ...my brother is a tof patient
@jesusolivo33935 жыл бұрын
I have this. I've had many surgeries. Wasn't supposed to make it past 5. I turn 20 in May!
@movingforward58285 жыл бұрын
How many surgery have you had?? Starting at what age?? Please give me details,,as I am worried sick about my unborn baby girl who has it.
@ruthie15624 жыл бұрын
I have had 3!!!
@IAMCHIDERA4 жыл бұрын
Jesus Olivo that’s amazing! So happy for you. Wish you the best☺️
@jesusolivo33934 жыл бұрын
@@movingforward5828 I just saw this. I'm so sorry. I've had about 3. First one was at 2 months and another at 1 year. How did it go? Is your baby okay?
@oliviabunbury70254 жыл бұрын
Yessss!!!! That is amazingg
@josephokello83045 жыл бұрын
Had no idea what was happening during the lecture. This just saved me a lot of stress , thanks.
@NationwideChildrens5 жыл бұрын
Glad to help!
@Mueledzi_Felicity5 жыл бұрын
Joseph Okello TUKS gang😅
@ShehlaSheryar6 ай бұрын
Same too you 😢
@mitchkim67632 жыл бұрын
This is the greatest explanation of Tetralogy of Fallot that I've ever had. Excellent video.
@harukosaver8099 ай бұрын
I totally agree, very clear explanation and animation.
@ellepanda65515 жыл бұрын
I have this. When I was 18 months they gave me a stent. Then at 7 years old they gave me an artificial/Pig skin lined Conduit. Like the patch but it helps the pulmonary valve open correctly. I'm 21 and still going strong. 😊
@aifoSFilms5 жыл бұрын
Elle Panda wish you a healthy life! My daughter it done at 11 months old. She’s now 8 years old.
@TetrologyGamingBattlefield5 жыл бұрын
Basically the same as you, just i think ive had 4 surgeries.
@nikhiltandale20795 жыл бұрын
@@TetrologyGamingBattlefield hi my son also has TOF and absent pulmonary vavle he's 6 years old no but still we have not done surgery because he's playing well he's going to school but only is the thing that he is not gaining weight he's 6 year and half years old now what's your age
@TetrologyGamingBattlefield5 жыл бұрын
@@nikhiltandale2079 I am 20.
@nikhiltandale20795 жыл бұрын
@@TetrologyGamingBattlefield bro what I must do now. to do surgery or wait for some years.
@kennethgrutter94064 жыл бұрын
I had this. The dr's waited until I was 10 to do it in 1970. I just turned 60 this May. Worked a very strenuous job for 40 years. I have been healthy. Had it done at Johns Hopkins, by Dr. Haller. So grateful to everyone involved.
@gaga37403 жыл бұрын
I’m so happy I found this video, saved me a lot of stress. I keep thinking I have it just because I have shortness of breathe and sometimes weird heartbeats. I have anxiety, so that’s why. I have to hear that people have survived from this for me to not stres lol thanks
@druidactual3 жыл бұрын
Hey Kenneth that was great to read! I'm 25 & had my only surgery at 2 months old. I've lived a normal, unrestricted life :) many more healthy years to you!
@kennethgrutter94063 жыл бұрын
@@druidactual Thank you. I'm very happy for you! May God bless you, and keep you. I hope the same for you!
@nikhiltandale20792 жыл бұрын
Kenneth Grutter Great
@teamdivinepower Жыл бұрын
Kindly reply, which types of valve you replaced..please suggest
@Alessandro927725 жыл бұрын
I feel so happy when I see all this children enjoying of good health and living a normal life. It's a gift from God that there are doctors, nurses, technology and hospitals to perform this type of Heart surgery 🙏. My dear cousin passed away in the 80's in Havana, Cuba; she was 15 years old at that time, she died after her party of 15 years(quinceañera),she passed a couple of days after the catheterization, at that time TOF was tough to repair in an underdeveloped country as Cuba in the 80's despite having very good doctors but without technology it was impossible. RIP Sonia🙏 ❤
@alexglt20252 жыл бұрын
My son has a TOF , He underwent the first temporary surgery (Shunt) at the age of 1 month , and now we're waiting for the second one for a total recovery . You've made such a good work with this video clear and visual explanations .. Thank you !
@ariramkilowan80512 жыл бұрын
I had this procedure when I was two years old, it went undiagnosed for a while before someone actually figured it out. I'm 33 at the moment and have lead a pretty normal life. Still no issues. All the best to you and your son.
@alexglt20252 жыл бұрын
@@ariramkilowan8051 Thank you , My son underwent his second surgery and it was a real success .
@ryskulnurbolatkyzymurzakhm3148 Жыл бұрын
@@alexglt2025bless you! My son has TOF. He is 3 months old. We are waiting for a radical operation. I’m worry
@harukosaver8099 ай бұрын
How's the recovery?
@mortuza205golam62 ай бұрын
@@ryskulnurbolatkyzymurzakhm3148 Pls update
@iamfreefielover9743Ай бұрын
This video covered the whole topic very well .
@Jennanby4 жыл бұрын
I had complete repair surgery at just three months old in 2001 and it went so well I would probably never had noticed something was once wrong if not for the scar on my chest.
@chloerobinson95863 жыл бұрын
i have this condition. they said i wouldn't make it pass 5! my parents were sad! but now, i just turned 14. i came along way. i made it! sometimes, its hard for me. i have to keep stopping every 5 seconds of the day. but my dad tells me to take my time. and yes i got surgery at this hospital. they saved my life!!! thank you @NationwideChildrens
@teenaraju61604 жыл бұрын
Was quite doubtful about this. You helped me a ton with this video which is a perfect mix of detailed explanation and straightforward animation. Great work!
@kashifazizsiddiqui95434 жыл бұрын
after so many years now i understand the meaning of overriding of aorta
@sarahpurple65474 жыл бұрын
They told me to memorize without understanding, thanks a lot for giving clear concept ❤ through amazing animation
@BladeCrew5 жыл бұрын
I had Tetralogy of fallot since birth and got a mechanical stent for my heart. I had 2 bypasses and 3 heart operations. My heart is great but cant play any physical sport such as rugby,football,ect. The experiance was insanely good and bad. There was times i felt death but also life. It was something out of this world.
@nandanibharti-sw1cb Жыл бұрын
Your age
@BladeCrew Жыл бұрын
@@nandanibharti-sw1cb I am turning 24 this year.
@ario-59253 жыл бұрын
I had surgery at 6 months. 29 now no problems and going strong!
@yashashreesawant35903 жыл бұрын
Hey is your weight increase after surgery
@yashashreesawant35903 жыл бұрын
Bcoz my baby has stent total correction is remainung and not gain weight properly
@ario-59253 жыл бұрын
@@yashashreesawant3590 No im fine, i had a full repair when i was 6 months old, thankfully no problems since then. Might be a diff problem with your baby? Follow the doctors instructions they know best.
@LuminosityLi2 жыл бұрын
I had surgery at 6 months too! Im 15 next month😁
@Felix-wp9fb Жыл бұрын
I had a surgery at 6. Now i'm 40 :-D I was a small kid, now i'm quite a big boy (90kg)...
@BlaackAnchor5 жыл бұрын
Great animation and explanation of the disease process. Good job!
@NationwideChildrens5 жыл бұрын
Thanks for your nice words! Glad we could help!
@patrickfromcanada79962 жыл бұрын
Had my first surgery when I was 2..I had a second surgery at sick children in Toronto. Finally had my pulmonary valve replaced about 6 years ago. Sick Childrens was fantastic and having no issue up to now at age 52.
@teamdivinepower Жыл бұрын
Please reply which types of valve you replaced.. Please suggest
@patrickfromcanada7996 Жыл бұрын
@@teamdivinepower I had my pulmonary valve replaced with a pig valve. Sure the metal valves last longer, but one has to then take blood thinners.
@bellas_adventure_s9 ай бұрын
I cannot believe little babies have to go through this so soon after birth.. little rockstars. I hope anyone going through this is doing okay
@kunlun76783 жыл бұрын
I’m a student in medical school, and going to operate on people. really scared but I enjoy knowing I can help people
@kaynaatfatima66704 жыл бұрын
I have this. Was repaired at 8 months old 22 and still healthy
@sarfrazakram48094 жыл бұрын
Are you from Pakistan?
@mottabbirhossainbappi29563 жыл бұрын
Can you explain how?
@ryhjwl5 жыл бұрын
thanks for telling how the disease work, because I was operated at the heart when I was about two.
@NationwideChildrens5 жыл бұрын
Hope you are well now! Thanks for watching!
@benjaminsladen95514 жыл бұрын
I also have ToF and I’m glad that this video gave me a good understanding of what it is.
@buttercup-hmo223 жыл бұрын
Omg we are the same age. I was also born with Tetralogy of Fallot. My doctor said I will only live until I am 2 but here I'm turning 14 this June. 😁
@ab_xcqi57083 жыл бұрын
@@buttercup-hmo22 ME TOO!!! I AM ALREADY 14 THOUGH :D
@buttercup-hmo223 жыл бұрын
@@ab_xcqi5708 Same, I just turned 14 last Tuesday. :3
@ab_xcqi57083 жыл бұрын
@@buttercup-hmo22 ohhh, happy late birthday!
@buttercup-hmo223 жыл бұрын
@@ab_xcqi5708 Thank you 😊
@krisstanden66495 жыл бұрын
I had mine done at sick kids in Toronto UHN hospital when I was a baby an then agina when I was 38 years out I'm now 42 years old an still living life to the fullest
@gurjotsingh46732 жыл бұрын
Awesome animation, so easy to understand !
@yankurijetheophile21012 жыл бұрын
the video was too helful, and understable. you did a good job, thank you
@KennaMontes Жыл бұрын
I had TOF at 6 months then again when I was a little bit older. I am 28 years old! I’ve had no issues with my heart since I was a young child.
@haninehassan94905 жыл бұрын
Super helpful! Thank you for the animation.
@NationwideChildrens4 жыл бұрын
Thanks for watching and commenting! Glad to help!
@rejanebelanger89533 жыл бұрын
Would have been nice to have vidéo like this when I was studying nursing!
@filmOne-73 жыл бұрын
We had this lecture yesterday at School of Nursing. Thanks Admin
@majidhameed3208 Жыл бұрын
Thank you so much.....very informative video and supporting comments
@dansoemmanuel7167Ай бұрын
Thanks to Dr. Alfred Blalock🫡 for inventing this type of surgery in 1944.
@sorinionescu46585 жыл бұрын
I have this. I get surgery when I was 3 in 1985. Now I’m 40 and everything is fine. I make the surgery in Romania. Dr Pop De Popa Ioan.
@NationwideChildrens5 жыл бұрын
A 40-year success story! Wow! We've come a long way treating TOF! Nice to hear from you, Sorin.
@mohsinalivayani73635 жыл бұрын
Hi I also this patient
@mohsinalivayani73635 жыл бұрын
I m 42 years and 4 mounth age
@mohsinalivayani73635 жыл бұрын
@@NationwideChildrens reply some
@mohsinalivayani73635 жыл бұрын
Polycythemia since 13 years I m very weak
@erikmartinez2201 Жыл бұрын
amazing video, very informative and thorough explanations!
@catchingfire489410 ай бұрын
I had TOF as a child and it was repaired when I was 4 in 1975/6. I was fine for many years, but have since been diagnosed with PR. I am now awaiting a PVR which should, hopefully, take place in January 2024.
@adss267810 ай бұрын
Hi how are you. Pls reply me.i'm from sri lanka.may daughter have tof.
@mitsukisasuke80785 жыл бұрын
Very nice explaination I have exam today and Ur video make me easier to understand ... thank you so much for this wonderful video. Hoping for the best.
@jennajohn97023 жыл бұрын
It's a helpful video. It help to understand the disease condition
@unknownorigin20004 жыл бұрын
Nice way of approach to fallots tetralogy.
@dr.ashishmeshram36536 жыл бұрын
Very nicely explained
@NationwideChildrens6 жыл бұрын
Thank you for watching!
@alisha1293 жыл бұрын
I also have had many surgeries on my heart and I turn 20 in January
@Sarah-fy2vf4 жыл бұрын
Thank you for this animation 💙
@Mns256 Жыл бұрын
Thank u so much💖💖💖💖. Great animation!!!
@reeninuratieqah59256 жыл бұрын
Very well explained!! Thank u
@NationwideChildrens6 жыл бұрын
Thanks, Reeni!
@HafizahHoshni5 жыл бұрын
Awesomely informative and perfectly explained! Thank you so much! 😊😊 30/4/2019
@mohsinalivayani73635 жыл бұрын
Hafiza Hoshni have u further knowledge about T O F I m patient this diesses I m 42 years old
@mohsinalivayani73635 жыл бұрын
Can u help me
@mohsinalivayani73635 жыл бұрын
In witch country do u live
@mohsinalivayani73635 жыл бұрын
Polycythemia since 13 years
@mohsinalivayani73635 жыл бұрын
OK thanx for reply
@Solangé-u9q Жыл бұрын
My son had it, total correction was done at 6 months, but he may need another surgery at age 12-18 to correct the pulmonary valve regurgitation. We did his at Manipal hospital, India. But overall, he is a great fighter.
@abrarawchale11634 ай бұрын
What do you mean fighter? And I am coming to Banglore, india for my 4 month baby! Wish I could get more info
@suhanapkrl74775 жыл бұрын
Thank you so much for the video with great explanation !
@binisport8234 жыл бұрын
EXPLAINED IT MORE THAN CLEAR, THANK YOU!
@ShehlaSheryar6 ай бұрын
Yes you are right
@TekiTeacher2103 жыл бұрын
had my repair at age 6 and am 50 now. Probably looking at valve replacement since I have a hard time getting deep breaths when laying in bed. Goes away after a minute or so.
@nikhiltandale20792 жыл бұрын
Hiii Mauro
@ShehlaSheryar6 ай бұрын
Amazing explanation wow ❤❤
@victorrosangzuala64995 жыл бұрын
very nice and easy to understand.. Thank you
@snehabangari12343 жыл бұрын
Upload more videos, it is very helpful and very clear explanation was done in your videos
@alicia-if9yn3 жыл бұрын
i have this, this is such a good explanation! thank you for this
@AsmaKhan-lf4me4 жыл бұрын
It is very helpful information
@etharmohamed68783 жыл бұрын
Thank you
@paviram10384 жыл бұрын
At last understood the conotrunkal septum and tof relation..thank yooou
@julianezhen44606 жыл бұрын
Thank you 🙏
@al-lb2kd4 жыл бұрын
This video makes me easier to understand. Thanks a lot! ♡♡♡♡
@orchardoforanges71217 күн бұрын
But the patch results to the right ventricle to be smaller and the aorta will be right above the patch
@nunchukgrl24 жыл бұрын
beautiful animation. Thank you!
@tahninmashruba93003 жыл бұрын
I vouldnt understand the topic by reading book.. But i found this amazing video which explained beyond good
@alexisdoston83734 жыл бұрын
Love the video explained very well!
@traveller.ash15 жыл бұрын
thank you for perfect explations.. my nephew suffering from tof and his operation done by tommorow
@rushika19495 жыл бұрын
Operation done? My daughter also has tof
@kerreiseantoine97774 жыл бұрын
Where is he getting the operation done?
@areebamuzaffar65153 жыл бұрын
Brilliant 🙌 video thank you so much 🙂
@gurkamalbal41135 жыл бұрын
beautifully explained ❤️🙌🏼 thank u
@jigarsolanki24994 жыл бұрын
Thanks
@SwarnanjaliPradhan3 жыл бұрын
This was explained so well 😍 thank you 🙃🙂
@shahanaahmed17684 жыл бұрын
My Son Had Open Heart Surgery At 1 Week Old And He Had A Cather Done Last Year
@sarfrazakram48094 жыл бұрын
Shahana can you please contact me on gmc.sarfraz@gmail.com through emai or hang out. i have to ask some question about this, cause i have child and having this problem too, i hope u didn't mind it
@AmitKumar-lq7hp5 жыл бұрын
Nice video
@DavidHernandez-xk1cq4 жыл бұрын
the link of 3D heart animation, presents an error, does anyone know where I can get it? I would like to include it in a presentation🥺
@nooruzzama6283 жыл бұрын
Sir Treatment of right ventricular hypertrophy and Overriding aorta hasn't explained in this vedio
@monafaragmorgan74806 жыл бұрын
very useful and qualified video
@NationwideChildrens6 жыл бұрын
Thank you for watching and for your comment!
@gokhanbug4 жыл бұрын
Doctor said My unborn child may have this .Could Parenatology Doctor misinterpret what did they see on detail ultrasound .(25 week pregnanacy).
@mohanm85304 жыл бұрын
Tnq it's very clear
@sittantao67942 жыл бұрын
My child also has TOF with absent pulmonary valve but shes not a blue baby. What do you think is the reason shes isnt blue??
@hritvikjain__35945 жыл бұрын
One hell of a video. enjoyed it . perfect :)
@esther17652 жыл бұрын
Question: That first patch that creates an opening between the pulmonary artery and aorta --> is it just making an artificial PDA?
@dushimirimanajeandedieu37435 жыл бұрын
How can you do as a supportive treatment for baby with TOF
@nyng-6503 Жыл бұрын
Does TOF can develop pulmonary arterial hypertension?
@harukosaver8099 ай бұрын
My son has tof, and he is now turning 10 in jan. 17. Can he still have heart surgery?
@見習い桃太郎5 жыл бұрын
わかりやすい
@emcdvz56484 жыл бұрын
i have this and it's sad that i didn't grow up like a normal kid. i was 9 yrs old when i completely understand that there's something wrong in my body, so young and naive to take a pain and pressure. this is my life time struggle im 22yrs old now and still hoping that my family can afford it. wish i can leave a normal life for at least 1 day
@mishra.6473 жыл бұрын
Life is unfair sometimes ❤️
@TM-cm1bh3 жыл бұрын
Yes. Life is so unfair. I'm envy to those people who can do jog or run without problems. Because I can't do that. Even walk faster I turned to blueish and so hard to breathe. 😢
@amitbirkhaniya19232 жыл бұрын
Love you brother
@mommymachan Жыл бұрын
My 9 months old daughter was born with TOF and AVSD.. she cannot sit on her own.. hopefully her surgery will be success
@mamathac-rt5sx9 ай бұрын
@@mommymachanhow is baby
@fahadhussain30072 жыл бұрын
I wish to be a cardiac surgeon and invent a least invasive surgery for TOF...
@michellehernandez78865 жыл бұрын
My son have tetralogy of fallot also he undergo open heart surgery last 2016 in Korea via Korean foundation and now he is 4 yrs old now his ok but sometimes his lips became violet again especially when he gets tired. I hope he will pass again his another surgery soon. We are in the Philippine right now
@judeayuste35743 жыл бұрын
Hello my son also have this tof, how can I reach the korean foundation? Do they help child who is tof patient please response.
@TM-cm1bh3 жыл бұрын
Is this by the help of sir Hari Yang? Or Chul Soo Yang?
@Ozil09104 жыл бұрын
Excellent illustration. I was confused what an overridden aorta was. Hahaha
@mottabbirhossainbappi29563 жыл бұрын
I have this. but still not operation on my body 😔. I'm 24 now. But still not good operation in my country for this case. And I'm more sick day by day
@aycicektarlas74973 ай бұрын
How are you now? How's your heart doing? Is everything ok? 🙏🏻
@helen38415 жыл бұрын
Good one...
@khoansopheaktra55125 жыл бұрын
Gold content
@jazzlindanielle7238 Жыл бұрын
Great video! So clear and understandable. Thank you!
@daniprabhas5 жыл бұрын
Is this surgery a risky one for adult 30s age women...please suggest guys my aunt needs it but found it to be life risk.. and i am from India
@tocagalaxylivvy9802 Жыл бұрын
I have this I had a surgery at the age of 5 months and I’m 10 in may
@prashanth12954 жыл бұрын
My mother has VSD 10mm problem her age is 36, is this risky for surgery! Please reply
@younomehomie3 жыл бұрын
I had tof surgery when i was 8 months old im 25 yrs old and im having problem with pulmonary valve right now Hopefully i can get help soon
@nandanibharti-sw1cb Жыл бұрын
How are you doing
@younomehomie Жыл бұрын
@@nandanibharti-sw1cb i just had my 2nd ohs
@nandanibharti-sw1cb Жыл бұрын
Ohh ..is the valve replaced or repaired
@nandanibharti-sw1cb Жыл бұрын
Even my brother have tof and 2 year back his second operation he had ...now little bit arythmia he is having
@nandanibharti-sw1cb Жыл бұрын
R u also experiencing arythmia
@cheekydevil69ER4 жыл бұрын
my daughter just got heart defect at 4 years old. i am wondering what will happen next and how will they help her?
@باسلفقيها4 жыл бұрын
Epic
@ChadtuvaQueen2 жыл бұрын
I heart this!
@daisyroque8002 жыл бұрын
my son has vsd asd and need surgery but we cannot afford it. i just pray that God will heal him
@dr.muryem65216 жыл бұрын
good
@shauryasingh22283 жыл бұрын
Pray for my baby next month he has tetralogy surgery 🙏🙏🙏🙏
@ab_xcqi57083 жыл бұрын
I will send all prayers to you and your baby! 😊❤ I also have ToF and I am still here, I hope your baby will live a full, healthy life!❤😊
@shauryasingh22283 жыл бұрын
@@ab_xcqi5708 thanks 🙏🙏🙏❤️❤️❤️
@samuelguerrero81653 жыл бұрын
I will pray for you 🙏🙏 im currently 15 and still going strong thanks to these amazing doctors that saved me and I know they will do the same for your baby
@shauryasingh22283 жыл бұрын
@@samuelguerrero8165 Buddy special thanks to you?🙏🙏
@rowenahonorio-ml2ni11 ай бұрын
my baby have this kind of sick tof shes 2months old and im from philippine im still cry for my baby situation😭😭😭
@alqurandailyverse2 жыл бұрын
My nephew's first surgery done at 2 month and now he is 16 tof suggested he is in critical condition bleed isn't stopping from last 14 days kindly allow me some your contact details where I share recent stuff