The Girl Who Needs Other People's Blood To Survive | Extraordinary Children

5 year old Heidi has Diamond Blackfan-Anemia a condition that affects her blood cells, so she needs blood transfusions every month to live.
--
Click here to subscribe to BBC Three: bit.ly/BBC-Three-Subscribe
Did you know that we’re up to other things in other places too?
Best of BBC Three: www.bbc.co.uk/bbcthree
iPlayer: www.bbc.co.uk/tv/bbcthree
Twitter: / bbcthree
Facebook: / bbcthree
Instagram: / bbcthree
Tumblr: / bbcthree
Oh, we’re on Snapchat too - just incase you were wondering… add us, bbcthree.

[@clairemaclean2838]

At least she can brag to kids at school about how she's the closest thing to a vampire. *But she'll always be the cutest little vampire I've ever seen, and the bravest little girl I've seen as well.*

[@annhughes1503]

Claire Maclean don’t call her a vampire. She is so cute

[@wolfiehyung6071]

@DIYA the light You can't even take a joke.

[@bexplays_royalehighroyaleh7435]

I first thought of that when I saw the video.

[@wolfiehyung6071]

@DIYA the light well. Read the whole comment, it said the cutest vampire.

[@emilytranter3824]

She is not a vampire and in all seriousness she will probably get bullied here whole life for here condition.

[@amosoneill7713]

Hey my name is Amos O’Neill & I’m 23 yrs old now. I was diagnosed with the same disorder and know exactly what that little girl is going through because that was me. The doctors said I wasn’t going to live past the age of 13 yrs old (obvs I’ve proven them wrong being 23 now). I stopped having blood transfusions around the age of 16/17 and I haven’t taken any steroid medication for at least 7/8 yrs. I am very fortunate and blessed to have overcome something that felt impossible. This girl is my hero!

[@laurenbromet6393]

Amos O'neill if you don’t mind me asking: Why did they say you would not live past 13? I also have this condition.

[@kittenmimi5326]

@@laurenbromet6393 well just some prediction on life expectancy and the likely outcome? That's not to say people can't beat the odds

[@carochan86]

Why did you stop having blood transfusion s?

[@myabrown2051]

Wow that's crazy. I was told i wouldnt live past 18 but here i am 22 now. We tried taking me off steriods twice but my hemoglobin would go down. So unfortunately I gotta stay and continue to live off of them.

[@ENHAxBTS]

I am similar I don’t produce enough red blood cells and also need a blood transfusion once a month but even if I have a bone marrow transplant it won’t help I hope I can overcome this and won’t have to have blood transfusions again ( I’m 15 now)

[@thatssotayler]

Omg, when she said "do you want me to dress up as a mouse" then plopped down in front of the camera .. My goodness. She's just the cutest thing

[@Adhira_1]

ikr

[@stitchesx-x-x]

When her Mom got off the phone and said the trials failed I felt my heart drop. I wish there was something that could be done for her. ❤️

[@laurenbromet6393]

StItChEs X-x-X I do not speak for all people that have DBA, but I do have it. I want to assure you that transfusion for me personally was better than steroids. I do not know if she feels this way but she is a strong girl who will get through it!

[@merle1728]

My heart broke when I saw how Meg (the sister) was reacting to all of this.

[@sugarqueen8332]

JohnRomeroHD, what the heck!?!?

[@user-df9ot5gr4k]

Wew

[@sasham6960]

JohnRomeroHD lmaoooo

[@Kris-wy1lc]

JohnRomeroHD LMAO hahaha

[@jowelmartin8639]

JohnRomeroHD LMAO

[@sirloinofbeef9683]

She cannot live with here supply of blood so she needs it from other people,but at least she can brag that she's a REAL Vampire.

[@whytho3774]

@Doofs you ever here of a joke and it's called, if you have to live with something troubling then you might as try to make the best of it.

[@laurenpinkiepie8663]

Pide Tods lol except she's not drinking it

[@katherinerichardson2273]

I'm sure shell have a vampire phase lol

[@xladyfayre]

@@whytho3774 Nothing wrong with joking about an illness when you have it. I do. I often say that I traded boobs for height because... well, I did. I took shots to grow and had to stop puberty via a monthly shot. It left me with smaller boobs than I'd otherwise have.

[@naynay2217]

Sir Loin Of Beef lol nice one. I’ve never taken offense to jokes. So let these people be salty. I have epilepsy and I make jokes about myself. It helps ease the mood.

[@andreaa.9709]

I hope she's on the list for bone marrow donors... Surely they didn't just stop at her sister?

[@Chanhee]

Either way, bone marrow recipients AND donors can either die or get seriously ill. Its not a saving grace but let's hope she gets lucky

[@MoonMoonTM]

I’m sure she’s on a list but it can take years to find a match

[@hannahbailey6424]

bone marrow donation can be very dangerous. if the bone marrow isn’t a 100% match with the donor and recipient, the donor has the chance of getting graft vs host disease, where the bone marrow is rejected and it’s very painful and it can be deadly.

[@briinahkriid]

@@hannahbailey6424 That's not true, the only risk of complications for the donors are related to the anesthesia or damage to nerves and bones, there is no risk of a donor getting graft vs host disease (because he's not the one on the receiving end). It is indeed a risk for the receiver of the marrow, though. (Source: bethematch.org/support-the-cause/donate-bone-marrow/donation-faqs/)

[@flyaround312]

​@@Chanhee Donors are carefully selected to make sure they're low risk. I wanted to add myself to the donor registry but I didn't qualify because of a medical condition I have. In addition, many bone marrow transplants only require the donation of blood. They're not dangerous at all for the donor. The type that require drilling into bone are only risky for people with certain medical conditions, who are excluded from donating, and people at high risk of anesthesia complications are also excluded. The recipient can get graft vs host disease, but careful testing is done to reduce the chance of that happening.

[@simplestimpy7185]

"When she gets a blood transfusion it's like a stranger comes to hold her hand for the next 4 weeks." wow

[@kjdnyhmghfvb]

Meg is so understanding and patient especially considering she is 8.

[@CafefantasmaMX]

kjdnyhmghfvb thats a kid who had to grew up fast for the sake of her family

[@20_rats_inatrenchcoat85]

Omg she is so cute bless her

[@quirkyd78]

Cecilia Hammer ikr :)

[@cloudy7067]

JohnRomeroHD what the heck id wrong with u

[@ilostyumi]

JohnRomeroHD What is wrong with you?!

[@sunnyiva]

JohnRomeroHD Screw you.

[@Your_LocalNugget]

Cecilia Hammer thats so nice of saying that😀

[@rozazb8138]

And that's how I decided that when I turn 18 I will become a blood donor, even if I'm a bit scared of transfusions and that kind of stuff. My fear is nothing, compared with the difficulties that so many people have to overcome in their lives.

[@jessmockett3215]

Exactly. I give blood whenever I can. Quite convieniatly the local blood donation service turns up at my university every couple of months or so so if I can I give blood then. And the trick with giving blood (or having a blood test too) is to make sure you have had plenty of fluids. This makes the blood vessels easier to find and get blood from.

[@putkrochy]

My hb always fluctuating becoz of i am a carrier for thalassemia. But i try to donate each time my HB reach the allowed level.

[@dungeonmama660]

I think you can do it at 16 with parent consent. That was the first time I donated.

[@miasasmrandsinging5426]

I 100% wish I was allowed to donate blood. Sadly I will never be allowed due to my own health conditions but I think it's a wonderful thing to do. Good luck for when you are able to give blood. X

[@valiantsfelinesmccarty6678]

Never regret donating blood, you never know who's life, you will save literally blood donation saves lives throughout the world. It can be packed & stored in many various ways and just overcoming your fear is something you will feel good about. I never thought donating blood was that important, I thought there were thousands of people until I donated once. You know, there are many different blood types and all of a sudden they kept calling me every week, and I would go every month when the blood mobile showed up. Finally, one day, I was exasperated, because they kept calling, and I didn't have a problem going, but why were they so worried, pressuring, hopeful I was donating? I had survived leukemia, I had it for 10 years, untreatable, incurable. I was lucky a geneticist saved my life, and I went into remission miraculously as a matter of fact, my oncologist thought I had gone to another country and got a cure. After that, I started donating. I asked them why they were asking me so often, and I found out that my blood is only 2% of the population! Think about that, I also found out that was why I couldn't have children by my husband, because he didn't have the same blood type as I did, because mine was so rare. I wish I had known that 30 years before, I would have tried to find somebody but war has shrank my blood type. So they were so excited to find someone else in the local area that had this blood type, which is very uncommon where I live in Southern California. Sadly, I'm not allowed to donate anymore, as the new director have them interview, as for any medical problems. And I said, well, I'm a leukemia survivor, and that's why I donate. The new director went ballistic, it's not that they thought I would give them leukemia in my blood, they were terrified, they would give me the key me by removing my blood. It breaks my heart that I can not donate to help others who have my rare blood type. The people I admire are the ones who have the universal blood, because they can give for everybody. Can you imagine that a person's blood can literally save someone else's life. What a wonderous design, the body is.

[@morganlance.knight]

Meg just wants to help Heidi so bad. That's a good big sister right there😊

[@bammy6112]

That’s so sweet! I’m a big sister myself, and I hope that If the time comes then my little brother will step up. I would give him lol my blood if necessary. Heidi and her sister are by definition brave.

[@paigemadison6888]

My partner was also born with dba, fortunately he responded to steroid treatment and hasn't had to think about his condition since, until recently we fell pregnant and have the risk of our child having dba. Hoping for the best x

[@jhanvihemlani8248]

I hope everything turned out well.

[@scarlettew-k1989]

Paige Madison update? X

[@reshmah606]

How is the baby?

[@soficurl624]

We hope everything is okay with the baby and ur future children

[@paigemadison6888]

Thank you all for the well wishes, my daughter is Nearly 2 now and she doesn’t have DBA, She is doing amazing, I am so so grateful ❤️❤️

[@0oOSTFUOo0]

When she's receiving transfusions "it's like a stranger holding her hand". Beautiful :)

[@cupidzb0w181]

I’m so thankful for being born healthy I feel so sorry for these kids I hope they make it through and enjoy a happy life :)

[@RosieG1986]

Aww bless her she's so cute. "Do you want me to get dressed up as a mouse?" That made me smile

[@scorpioqueen9633]

Her poor sister, her whole life will be about her sister and not her, hope she doesn´t grow up resenting her parents or sister.

[@Banoffeenyx]

Scorpio Queen reminds me of my sisters keeper by Jodi P

[@A1rPun]

What a disgusting assumption.

[@raajue3]

you have a better way, eh?

[@AM-tk4gu]

A1rPun It does happen very often in these situations though. Having a sibling with a severe condition tends to take away the older ones childhood. It’s not saying anything bad about the parents though. They’re doing an amazing job and I have no clue what happens in their personal life.

[@zakiazainab1170]

Wow,what a dillusional!!!! People like u think themselves to be the center of universe,and can't think out of it,can't think for others,may they be ur own blood or not!!! Have u ever heard of kindness/compassion????

[@plum_stone6617]

That poor family. I do feel so sorry for them 😞

[@chrisss838]

Plum_Stone me too it's it's it's just soo sad😖

[@Fizzle0801]

On Monday I’m going to make my first donation to my blood bank and I honestly feel overwhelmed knowing I could help save someone’s life is magic

[@flowergirl7844]

I get 1 liter of white bloodcells every month, im so thankfull for everyone who’s donating their blood

[@natasha5852]

But she needs red...

[@naniblinkyayayayay4999]

@@natasha5852 bruh...she is just saying that she is gratefull

[@clumxy5513]

Aditi Kaushik 'grate'ful? 6 -) 6

[@liapratts3971]

umm y do u care she’s talking about her own personal experience dimwit

[@reehkhanayo4137]

IDTS

[@icequeen917]

Poor girl! I've never heard of this condition before and I'm sorry to find out that it exists!

[@sanamadaan7206]

Ice Queen my sister has thalassemia.. it is really hard but we are always there for her. especially her mother (my aunt) she is an angel

[@samsam8117]

Ice Queen so do I😢

[@AP-hq6le]

I have condition very similar to DBA called Beta-Thalassemia Major. I use a central line (port-a-cath) for blood transfusions every 3 weeks. All my cells don't work properly because I have Mitochondrial Disease on top of the blood disorder and other conditions. Honestly the blood disorder sometimes is the easiest one to deal with because threes at least an actual treatment for it unlike my other diseases.

[@MegaSonglover99]

Sana Madaan wait. Your sister's mother is your aunt? Um what😂

[@IonIsFalling7217]

Did they give up on bone marrow because the sister doesn’t match? Plenty of people would help that child. I would.

[@cariad123]

IonIsFalling7217 are you already on the donor register?

[@kjdnyhmghfvb]

I was wondering that, and why not have a number to call at the end.

[@freyabigland4564]

I would do anything for that cutee

[@emilieloveskiwi]

I'm on the donor list! Been on it for at least 5 years, still waiting for the call to hopefully save a life.

[@emilypoisson8724]

IonIsFalling7217 same I would help (if we matched )

[@xUrDreamOrNightmarex]

This just opened my eyes. When I always thought about blood transfusion I always thought "how odd to have a random persons blood. Who knows what kind of person this blood is" but now I like to see it how the mother sees it "holding hands for the next 4 months" that sounds more like a journey with someone's help and that's really what it is

[@sunsunmeey]

My friend is in the same condition as Heidi, now she's 24 years old and she's been relying on blood transfusions all her life. I've been seeing her struggle since we were in elementary school. I've got to learn many things from her, she is so inspiring. I wish all the best for her and Heidi ❤ they are brave and strong!

[@jelizaveta5459]

I dream to become a blood donor but I have iron deficiency anemia 😞 People if you are healthy, please share your blood with the ones who need it

[@cariad123]

Yelizaveta H. Have you changed your diet to increase your iron levels? I always do a week before donating just in case

[@TheOrigionalTurtle]

Al Funcoot Bit of a personal question don't you think?

[@jelizaveta5459]

Thanks, it is okey. I take supplements for 4 years. Caffeine free diet does not help a lot.

[@DarkSuperNinja]

I have A LOT of blood problems, including iron deficiency anaemia, so I ain't donating blood anytime soon; honestly I wish I could because people like her need it more than I do. :/

[@avrilcadeul3207]

Since u was young, I've always wanted to give my blood but I also can't because I have an iron deficiency 😭 I hope I will be able to give my organs

[@hannahtierney600]

My boyfriend who's 26 years old has DBA. Everyday is a struggle 😢 I love him so much though and admire his courage and strength ❤

[@reshmah606]

God bless him.

[@mimis.4093]

I work in a large Hospital lab. We need all types of blood! We can also used the liquid part of the blood - plasma, etc. Plasma, cryo, and platelets are the liquid part of the blood. The last 2 weekends I've worked, I've needed Blood, Plasma, cryo, and platelets - with all these components, the nurse and doctors were able to SAVE THE PATIENTS LIFE!! Thank You for Donating!! (I hate to tell the doctor that we don't have what they need for their patients. We do run short in my city sometimes. ) Please help if you can!

[@y0utuberculosis]

I'm anemic and recently received packed red blood cells but hoping to get back to donating plasma soon!

[@bammy6112]

I’ll donate when I turn eighteeen.

[@shannonsjourney8549]

It reminds me a little of my treatment, I had blood cancer and I only recently finished treatment, I had numerous of blood transfusions and bone marrow aspirations and I also have beads of courage I have over 1,000 beads on mine, I’m finally of treatment and had my port out about 2 weeks ago and I’m so happy it’s all over

[@Ali-zx8lz]

How are you doing now? =)

[@ecisk0562]

You go girl!

[@reggiepollock4669]

The cutest little vampire

[@bp8068]

I literally saw this and was like omg a real life vampire

[@onidaaitsubasa4177]

Actually there is a rare genetic condition where people need fresh hemoglobin which is the red protein inside of red blood cells and they are also allergic to sunlight and can only go out at night. There was a story I saw about some little girls with this condition. I think conditions like these are what started the Vampire stories. There might even have been a virus or bacteria at some point in history that could cause this kind of condition that could be spread among people also. Vampirism nowadays is better understood and medically treated just like any medical condition.

[@bjornnielsen7613]

@@onidaaitsubasa4177 yes actually Dracula was based off a man who had that he would blister and burn if he saw sunlight and he needed vitamin D from blood since the sun gives you that I believe

[@jessicabolling520]

*:or in weeb's term* *"the cutest little ghoul*

[@laurenbromet6393]

Baleigh Nielsen i am 100% a vampire. 1. I have DBA also. 2. I get hives if in the sun for to long(even with sunscreen). 3. I am pale as hell. 4. I am always vitamin d deficient.

[@s.l.chakmakjianphillips9296]

I wish I could give her mine. We all love you little one! Stay strong, we've all got your back!

[@joshkresnik6402]

My heart breaks for this sweet girl. I have DBA as well and the condition effects people differently and stories like her give me great hope and strength and encouragement. There’s people whose bodies reject blood, steroids and bone marrow. I’ve been fortunate to have been in remission for a few years now but I understand others stories aren’t as blessed as mine and I wanna raise awareness and help whenever I’m able to. People like this angel are heroes to me

[@myabrown2051]

I have DBA also. I feel bad for kids that live their life in the hospital and not able to do the little kid stuff, school, parks, etc I ben on steriods since 8 months old now 22 yrs old. I'm very fortunate to be able to graduate school and hang/ play with my neices and nephews. Im proud where I am. And I hope these kids get to enjoy alot ❤💎❤💎

[@milkyway1743]

She is a little girl with a beautiful and wise heart.. I cannot imagine how can 5y.o girl explain by herself what happened to her with her own word. And her sister is wise too, knowing the condition both of her sister and her mom that take care of her sister, rahter than being jealous, she giving comfort instead :) They're parents must be giving a good explanation about the condition...

[@dancingcarapace]

As long as her type is negative I could donate. I'm O- it's a universal blood type that is compatible with all the other - types. So by default O+ types can donate to all + types. Which is why when I'm 18 I'll be donating blood

[@katikati4]

All blood types can receive O-, including positive blood types! So it would be very good of you to donate. :)

[@cariad123]

O- can actually go to absolutely everyone! I'm O+ and can only donate to other + people, but you can give to anyone

[@emilyjane7166]

Lexi Barrow O-blood is like having coffee without sugar, anyone can have it where O+ blood is like having coffee with sugar, people who have no sugar (- blood) can't have it

[@Verynicepet]

Lexi Barrow same here

[@felipedominguez4274]

I’m O+ :) my dad is O- and my mom is O+ soooo

[@c0balt-blu3]

I feel so sorry for her

[@thecraftycyborg9024]

dancer 4 life - the disabled and chronically ill don't want your pity. We want understanding, a fair chance at life, and people who love us. It's no more than anyone else asks for and it's what everyone should receive in life.

[@c0balt-blu3]

Cassie C I say that I feel sorry for her because I have a serious condition to, and I am not asking for empathy I just hope that as time goes on, in the future as medicine improves that condition like this can be managed.

[@Kenyetta613]

Me to

[@biscuits2572]

To be loved is what everyone wants - regardless of what kind of a body we are in.

[@laurenbromet6393]

Please don’t feel sorry. I also have DBA. People with medical conditions don’t want pity. I understand completely where you are coming from but she is a strong brave girl who can get through these tough treatments and medicines.

[@darknesseverdeen9007]

If I didn't already have my own illness to deal with I would most definitely donate to this sweet girl! She is amazing,adorable, and unique,hope she grows up to be a strong woman!

[@amywilson6608]

she's so precious, I hope the doctors find a way to treat her without all the blood transfusions. Hang in there sweetheart

[@thebananamonk]

2 types of people 1. OMG SHE CAN HAVE MY BLOOD! 2. Darwin says let her die

[@francas277]

Come on guys , blood transfusions once a month isn't such a big deal and the steroid treatment is temporary. She seems like a happy little girl who enjoys life despite her challenges. Saying her life is not worth living is simply disgusting. However I agree that from an evolutionary standpoint she's clearly got a massive disadvantage. But as humans we are past that point. Most of us would've actually died at birth or live an unhealthy lifestyle that would make us unfit for survival , so most people would've to be weeded out if you really think that way.

[@therezaloftus]

you disgusting excuse for a person maybe you should be put down for being so damn heartless

[@thebananamonk]

Thereza Loftus We are Dr House fans

[@jordanhatesyou1512]

3. People who doesnt care

[@IonIsFalling7217]

4. Mixed

[@belainverso7455]

My heart goes out to this lovely child. I am going to donate blood for my 16th birthday. In my state, parents can't sign a release form for someone to donate until 16 unfortunately (but you can become an organ donor at any age which I highly recommend!) it's really just 20 minutes to save someone's life

[@thecraftycyborg9024]

Bella 138 - Good for you!! Blood donation is so critical. My brother received blood more than once during his life. I wish I could donate and give back, but my own disability rules me out. So instead I convince healthy people to donate, lol.

[@belainverso7455]

Cassie C I'm so glad to hear that your brother has benefited from blood donation. I hope he and you are doing well. I'm sorry that you are unable to donate- I'm anemic so before I do donate I'll have to get my iron count up to a certain level. A lot of people I know aren't eligible to donate because they are gay men or they have a blood disorder; I feel very lucky to get the opportunity to donate. It's really great that you are encouraging healthy people to donate!

[@TheLovemee00]

Donating is great! Been doing since I turned 16.

[@stellaw3620]

In my country you can only donate blood from the age of 18, and you can't donate after getting a tattoo for I think a year (?) I don't know exactly.

[@MBear3]

Keep in mind that you can only donate whole blood once every 3 months but plasma can be donated more often and in between whole blood donations.

[@anamhusnain2759]

i genuinely want to donate my blood to that cute lil vamp

[@Screaminglemon631]

Heidi: "Do you want me to dress up like a mouse?" Me: YES!!!🥺🥺

[@themika2939]

She's so precious :( the world is so cruel to give her this kind of sickness

[@amw7007]

The Mika I am from saudi Arabia I am willing to treat this young girl on my expenses from hotels to hospitals in any country please if there a way to reach these people please enter my page and send me e-mail to there were place please I tried I couldn't reach them

[@maggiec1900]

The Mika it wasent the world Hun it was genes and stuff

[@alissarels.1809]

Maggie C it wants genes and stuff it's god that creates everybody differently some ppl are normal some have things that others don't have I grew up with allergies that 10 percent people have and it hurts but I am still thankful for god this is how I am created

[@maggiec1900]

Unicorn lover I'm going to assume you meant wasent by wants correct me if I'm wrong but it was genes and stuff because that's science

[@boiye7270]

The Mika ii

[@Luke-qr7pm]

She is the most adorable thing...

[@jazz3799]

This makes me so glad that I donate blood consistently. I hadn’t even thought of it being used to treat illnesses like this- more along the lines of helping people who had lost too much blood in an accident or surgery. The possibility of it being used for a child or adult like this makes me all the more determined to continue to donate as often as allowed

[@Hugo_the_Dogo]

She’s a real life vampire. She’s So freaking cute though

[@jintie]

She's so beautiful I hope things work out for her

[@cherrycola8476]

Kel 〈3 me too I am crying so much 😭😭😭😭😭😭

[@zoemarazzi1561]

Can we just take a minute to appreciate how cute and lovely she is ♥️♥️♥️🐰🐇

[@kpopfanandfansofotherpeopl7723]

So sweet awwwww❤️

[@sylvie_on]

“Do you want me to get to get dressed up as a mouse?” Me: *YES CHILD BE ADORABLE YOU ARE SO CUTE AND SWEET AHHHHH*

[@MsJerkinbabe]

This is why I donate blood. God bless this beautiful girl.

[@gangatalishis]

She can have some of mine 🙁

[@rayc2648]

gangstalishis I was just writing the same thing bless her

[@cariad123]

Do you donate blood already.

[@chibchan3765]

I'm blood type A. I'm ready to help if someone need my blood.

[@wahmanwahman386]

Donate your blood then...

[@chibchan3765]

I already part of red cross

[@maggiebenison986]

This little girl is so brave. Bless her heart

[@nathanbarraza2093]

True courage .

[@discobikerAndRosie]

These are the most precious children; Heidi & her sister. ❤️ "Can you play?"

[@Ajax-120]

This is one of the reasons why we need new blood donations everyday.

[@scratchedtrashcan1214]

Aww bless Heidi she is so positive and sounds like a sweetheart she appears to be a bundle of joy and her parents seem so lovely 😊

[@MaddieLiz]

aside from this poor sweet baby girl, this document was beautiful. the different scenes and the coloring of the film was lovely. it shows that even though this family is going through such a time consuming and saddening condition, they're still a happy family, human beings playing and loving each other. amazing job at capturing and editing this film, id love to watch more like these that feel more natural.

[@krashd]

Install a VPN (most are free and can even just be browser extensions rather than fully installed applications), set the VPN to United Kingdom, load up www.bbc.co.uk/iplayer and then have a ball... You can find the full episode and a million similar to it.

[@abbybeardsley7577]

I have a friend who has a child with DBA. It’s scary but he’s a fighter! He’s always so positive!

[@cgoiq19]

She and her sister seem like some of the sweetest kids in the world-sending well wishes this family’s way!

[@adriandeleon163]

0:44 a bit creepy but so cute!

[@racheltomlinson2257]

Thank you

[@StudyabroadWithAbhilasha]

Adrian De León I got creeped out at tht part too the way she talks is creepy damn

[@pulls2953]

Adrian De León

[@pulls2953]

ok

[@g3ck093]

Adrian De León a

[@Blue-yi6ij]

She’s such an adorable little girl,

[@stefepedia]

Both kids are doing so great and their so strong. Props to the family really to try to keep their spirits lifted. My prayers go out to them.

[@LeahDiederich]

My goal for next year is to donate blood. Thos has inspired me even more❤

[@PoisonTheOgres]

Oh she is so lovely! We need more videos showing the real people who benefit from blood donations. Maybe more people would want to be donors then, even though 'needles are scary' and all that.

[@_.simpshit._6784]

I Have DBA !! It is sooooo cool to see someone with what I have on a Channel that I'm subscribed to 😄😄

[@sierascorner27]

do people with dba have blood at birth?

[@spencrob]

Are you kidding me? Please tell me you're joking... Ofc they have blood at birth, however once they leave the placenta they are unable to make their own red blood cells, from what I remember red blood cells only live for 60 days.

[@arielross3929]

Did grace marry mamrie or hannah?! (Username)

[@thecraftycyborg9024]

It's neat to see your own rare disease represented in media. There are extremely few examples of my primary disability (full body CRPS type II) in the media. Actually, I don't know if I've ever seen a type II-er on tv before. I think everyone I've seen (all 2 or 3, lol) had type I. Which would make more sense- it's 10 times more common than type II (though it's still rare, happening to only 1 in 5,000 people- type II is 1 in 50,000).

[@elizabethandrews8607]

Completely unrelated but your profile picture is beautiful

[@zoeysno]

Aww she's such a little sweetheart, hope she lives a fulfilling life. ❤

[@zakiazainab1170]

Heidi is such a sweetheart!!! Breaks my heart as a mum having your little angels go through such hardships at such a young age,I pray for her well-being and healthy life!!!

[@libby888]

I would love to give blood but I cant because I have type 1 diabetes.

[@livingdead1024]

Libby having diabetes doesn’t effect you donating blood. I work for the American Red Cross and we have people with type 1 and 2 donate all the time.

[@reggiepollock4669]

I would too but I was born in england in 95 when there was weird stuff going on with blood transfusions

[@cariad123]

Lucy Snider That only matters of you've had a blood transfusion, dude. You're eligible

[@summerrussell8335]

No it doesn't. Even if you haven't had a blood transfusion you can't give blood if you were in the UK in the early 90's because of the risk of Mad Cow Disease

[@reggiepollock4669]

Summer Russell yup that's the one!

[@doreenmaclean4953]

What a beautiful family, you have Heidi🌹💕. Sending lots of love, light & positive vibes, that perhaps, one day real soon, a cure will be found. Heidi is such a strong young girl, and things can change💓. Wishing this whole family, the very best, of what life has to offer💓 Love from Canada💋..

[@blackwidow4376]

Be brave little girl... God bless you and your family.

[@rmz2232]

I donated blood on my 17th birthday... I received a text message saying it was received by Manchester royal infirnary. I was so happy. To think my blood is in someone else's body by that time. Sorry if that sounds weird but it is true lol... but it is like you have some sort of connection with that person. Im just glad I could help someone even though you never get to know who you help, but of course that is confidentiality. Any b positives here? God give this little girl strength. She is a little fighter and has a very loving family where she can thrive, bless her. All the best. And bless any of you blood donors or to any of you who have donated in the past. You really saved someone's life. ♥️

[@seunjey3183]

Absolutely adorable

[@leongsoonkong]

May she have a happy blessing life

[@sandralara919]

This made me cry, I hope the doctors find a cure. This little girl is so strong and an example to never give up, keep it up little one.

[@hafizaar2478]

I literally cried watching watching this, the motherly instinct kicked in, I was sobbing for ages, Heidi is such a sweet strong kid, I pray she gets better, and lives her life fully. ❤️😭

[@candraleann]

She is so precious. Sending love and positivity her way. Such a beautiful strong young woman ♡♡

[@elizabeth18541]

This is why I donate, freaking so cute and happy despite everything.

[@sufyaanshafeek3435]

She is indeed a brave lil girl.... May God bless her to keep the same spirited self as she grow up....

[@margaretcooper797]

It shows how important it is to donate blood through the Blood Donor Service,that little girl has her life saved.

[@Chococupcake1231]

Man, this makes me really want to donate my blood. But I have an illness already so I can't ugh ;-; for the people who can and are thinking to donate, please do it! You'd possibly save a life ❤️

[@Teekoness]

Not your fault. Depending how well you are, maybe you could volunteer the for your local blood bank?

[@YourMissingEyeBrow]

Thoughts and prayers for this amazingly strong willed girl.

[@gailrodgers3079]

I used to be a blood donor and was always so happy to give it and loved getting my gallon pin. Then I got sick and lots of meds and I no longer can donate any more. Seeing this it is so sad as there is always such a huge need for blood. What special sisters.

[@ravronz9677]

shes too cute and so pure of heart to have this kind of condition. Hope she gets better as she grows older

[@jennymerino570]

I will pray everyday for her

[@ekinmedihie2730]

I love you babygirl. Stay strong my love ♥️ Love from Malaysia 🇲🇾

[@KN.25]

Brave strong girl you are. Your a fighter. Don't worry about blood transfusions, I too have a child who is transfusion dependent. She has also blood transfusions. On top of this she has other conditions that she needs round the clock care. She is 5 too, full of life despite her condition. Your reward is your childs smile and happiness that helps you go through every day. Keep it up!

[@nadiawitton4371]

It makes every one of my blood donations worth it to know I could have helped someone just like brave Heidi. What a wonderful family ❤️

[@unnur-2469]

And this is why I give blood

[@imthinkingaboutagooduserna8531]

That's exactly what I was going to comment. If anything happens to me the doctors are free to take any organ that could potentially save another person. I signed up YEARS ago... I should check to see if I'm still on the organ donar register...

[@MANISHASINGH-sj2vz]

God bless the cute lil girl n may she get cured of this rare disease ...soon 😘😘

[@ajborys]

Brave and strong...... Ive have been a blood donor since I was 16. It has been awhile since I last donated blood. However, I am grateful to be in good health.

[@Angel_1394]

Such a brave little girl and strong family. I wish there was more they could do for her.

[@arianaw8436]

Bless her heart 💝💖

[@thesmolestcunj1058]

I want to donate everything I can. I’m going to ask my mom if I can donate blood and what ever I can cause people need it more than me. (I’m also terrified of needles but would still do it)

[@xXiloveminstrelXx]

Nadine Enblom good on you! Really selfless of you to want to give blood despite your own fear 💚

[@elizabethstein369]

Nadine Enblom if you donate blood you get free cookies too!

[@minahthechampionmusic8750]

lmao

[@lavendergilly5843]

Nadine Enblom beautiful.

[@DragAmiot]

Thank you :) I have DBA and fortunately the corticosteroids shock treatment worked for me when I was very small but people like you saved my life 27 years ago.

[@joshuarow779]

Soo cute . Hope you recover soon . God bless you

[@albie4403]

She's so precious

[@firefly245]

I wish her the best in life. Good luck girl, I hope life will give you amazing things❤⭐

[@msmeowmeow5107]

Damn. One person is cold hearted.

[@kathrynsue1986]

now there is 4 dislikes sadly

[@therezaloftus]

if you want a cold hearted person look at mr pepe's comment in reply to memes and hearthstone's comment that is truly cold hearted. Mr.Pepe19 hours ago 3. out of compassion she need to be put down painlessly so she doesnt have to suffer. she never asked for this life. that is the comment i mean

[@kathrynsue1986]

i use to be a member of a teen and college age support forum many of the members would tell me if they knew their kid was going to be born like i was hydrocephalus cleft palate possible spina issues ect they would abort or think it best that the child didnt live or at least wasnt theirs it really bothered me and hurt me so sadly many feel the way that person does but thats no excuse for that comment they made

[@skylar6731]

sadly, the number of monsters on this video don't even begin to match the number of those in real life.

[@RhonaMiller]

41 cold hearted people now

[@outrotearseven]

All the best to Heidi, what an adorable and brave little fighter.

[@becca8066]

I’m a blood donor and has been for 6 years now :) It feels awesome to help someone else who needs blood & plasma.

[@hannagotnerves]

Heidi is such a strong 💪 baby may god continue to bless her through her journey 🗣 I’ll continue to donate blood because you never no who life you can save

[@rabiabasra8981]

i have beta thalassemia, my body also doesnt make its own red blood cells and my body has too much iron ;) im with you heidi

[@aprillam2226]

Same, me too! It’s the first time I’ve seen someone with the same conditions as me!

[@wooltattoo]

the iron overload is calles hemochromatosis, right? can it damage your liver? anyway, good luck and good health to you

[@soren22112]

I found out I was a carrier for beta thalassemia a few years ago so I did some research on it. I wish you well!

[@sandraholloman6048]

They are adorable. This breaks my heart. 5hank you to all blood donors, you don't know how important your contributions are. I too would have died without transfusions. In 2007 I had a placenta abruption at 37 wks pregnant, I survived but my daughter didn't. I still need 9 pints of blood and 3 plasma. It also turns out I have one of the rarest blood types. So without the donors I wouldn't be here. So thank you and everyone should consider being a donor.

[@MeganAndPercysWorld]

What a strong and beautiful family!!! All 3 of you are gorgeous and amazing ❤❤❤