The Girl Whose Bones Dislocate Every 10 Minutes

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A woman wakes up in the middle of the night in severe pain-her ribs have fallen out of place, again. Exhausted, she relocates them and tries to sleep, hoping her ribs would stay put for longer than 10 minutes this time.
For 7 years, this young woman had been suffering from painful, unexplained issues. It started with her shoulder popping out, but now it’s also her jaw, hips, and ribs. Any body part can dislocate without warning. Mystified doctors didn’t have any solutions for her, and she had given up hope on ever getting better-until one night, while watching Grey's Anatomy, she saw her life playing out on the screen. Let’s get into it!
Sources:
[Emilie Levy | Found Her Rare Illness After Symptoms Appeared on Grey’s Anatomy] nypost.com/2022/06/30/i-found...
[Ehlers-Danlos Syndrome]
www.ehlers-danlos.org/what-is...
www.nhs.uk/conditions/ehlers-...
www.ehlers-danlos.org/what-is...
universityhealthnews.com/dail...
[Gabriella’s Story]
www.ehlers-danlos.com/gabriel...
[Diagnosis and Misdiagnosis]
www.ehlers-danlos.org/informa...
my.clevelandclinic.org/health...
www.ehlers-danlos.com/kaity-d/
[Celebrities with EDS]
www.guinnessworldrecords.com/...
www.chronicpainpartners.com/c...
www.abookof.us/nextchapters/d...
www.today.com/health/what-ehl...
www.healthing.ca/wellness/wha...
Other Sources:
abc.com/shows/greys-anatomy
• EDS and POTs storyline...
www.videvo.net/video/tracking...
www.videvo.net/video/mid-shot...
www.videezy.com/clouds/40880-...
www.videezy.com/people/13105-...
/ chshejqrjdo
• EDS UK Interview with ...
/ cdn1-yvtens
/ b-xv_vpb63u
[Brew’s intro song]
Manhattan Twist by Avocado Junkie
[Music Licenses]
Code: SMHIXZJQBOJGUOCC, GJ18NAHRRRGKJQ2X, IQRRUILYHBZVYO8D, IUVZ7JPLVCWQXT9C, QVIPNS3JU5BSTOSU, PJKYONOR2UPY3RDK, 6TLOMGJ245BZXLRZ, MN1T2SHDQLMBHHNL, OODGLDYVU47EVO6H

[@Brew]

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[@reptile6102]

yes

[@jaydenzstuff]

Hii

[@AssistantCoreAQI]

War Thunder Dislocated My Ribs.

[@genghisdong3392]

YOU GOT A HOLE IN YOUR LEFT WING

[@ValorusTheTophat]

y e s .

[@Prod.jaymelodies]

When Doctors can’t diagnose you but Greys Anatomy can

[@_Protato]

That's low-key serious 💀

[@fox_light3142]

Yea 💀

[@KinshasaMakambo203]

No.

[@mbismbismb]

Doctors just want to make money by asking u to come back to them again and again

[@KinshasaMakambo203]

@@mbismbismb oo

[@migitri]

As somebody who has hypermobile EDS and POTS, I instantly guessed that they were the conditions in the video. It's so hard to get people to take you seriously, and it's so painful and disabling. Thankfully I finally found some doctors who take me seriously. Thank you for bringing attention to these conditions, and thank you for being so empathetic. ❤️

[@tayloranderson7547]

Found some doctors who took me seriously emphatic

[@Chirkrasia]

I clocked it after about 20 seconds! Glad you found some doctors

[@milly7843]

I've got EDS, too! I was diagnosed with it at 15 while seeing a neurologist. I had been dealing with what we thought was chronic migranes (it was cancer - surprise!) and he also performed a few tests to confirm. I am very flexible, my skin is stretchy-ish, and my shoulders/fingers/and discs slip out often. I am also really fair skinned, so my body looks like a watercolor painting, I've even been asked by doctors in private if I was being abu sed because of the amount of bruising I had. The cold is brutal... Everything hurts all the time, I feel like I should be an 80 year old, but I'm only 23. I had something called Hyperbaric Treatments (I had over 180 "dives") and it is where they slowly increase the pressure in a chamber so that we feel the pressure of being roughly 90ft underwater, and we sit there for 2 hours. We wear hoods that blast pure oxygen in for us to breathe as the platelets in your blood can hold an infinite amount of O2, thus helping you heal faster. Because of the significant pressure change, I had to have numerous pillows supporting my arms below my elbows because both of my shoulders just... dropped. They both dislocated and had to be reset by the nurse. After all of my surgeries that I've had to have, none of them have healed well. They are wide with very thin skin and they don't ever fade. Two years ago I had a very complex surgery done that left me with a 14 inch scar on the top of my left thigh and the scarring is honestly about 1/2 an inch wide, same goes for when I had my port-cath removed; a very thick scar with even more fragile skin. Not many people know about EDS and that is something that needs to change. The number of people who might be suffering from this condition and have no clue what is wrong, is genuinely heartbreaking, *especially* since there are even more severe cases.

[@tornfeathers]

It took forever to get people to believe my kid was having chronic pain at the age of 12, they finally got an HEDS diagnosis at 17 and now at 19 we finally got their gastroparesis diagnosed and we're still trying to get a POTS diagnosis for them. It's ridiculous how doctors will be like "nah" even when it is OBVIOUS

[@tornfeathers]

We also got surprised with wolff parkinson white syndrome but the treatment looks like it cured it for now.

[@knolsey]

My wife has this. She suffered for YEARS while doctors simply didn't listen. Her father is a very high ranking navy officer, military nor civilian doctors would listen. She too saw the Grey's Anatomy episode and found answers. She had to fight for another two years but eventually it was solved. As a lifelong gymnast and through her teen years and early 20s she was also a contortionist. Thankfully hers is much less severe and primarily only her ribs will pop around and bruising is hyper easy, again she's super flexible. She did have to give up dance and contorting however.

[@nordicpink]

Interesting. It seems like our doctors need to become more educated about the subject.

[@knolsey]

@@nordicpink it's so rare it takes the right specialist. Isn't their fault; just one of those things. My best friend has spent 8 years undiagnosed having symptoms treated only. He's almost died numerous times from loss of motor function and even trouble breathing. The h7man body is crazy c9m0lex.

[@TheChosenPeace100]

anolsey is a good name i wish you can be a good you tuber good luck 🍀

[@ExodusAlpha3908]

Doctors never listen anymore because they think that because they Have a PH-D or a masters in a fraction of the medical field, they know more about you and your body than you do your own body and what’s going on with it.

[@simp-ie4jx]

Cap

[@AlexRising_]

Brew: don’t panic! But for people who are overly flexible experiencing symptoms like joint pain and injuries, dislocations, tiredness, dizziness and fainting, thin and stretchy skin, frequent bruising and bowl issues this could indicate a more serious issue. Me, a hypermobile permanently exhausted pigeon with IBS, a history of fainting, and who had to get a tendon surgically repaired due to repeated injury and continues to roll that same repaired ankle: Ah, beans.

[@erasier9189]

I feel you dude. I have hEDS & yeah... I experience all of what you've written. I'm definitely going to steal your permanently exhausted pigeon phrase though 😂👌🏻

[@AlexMint]

Haha same. hEDS is like the coolest but most frustrating social club ever.

[@gregdaweson4657]

Need to buy a peg leg.

[@kylehumbert5735]

​@@gregdaweson4657 State of the Art peg leg

[@antimatterg]

Oh god I'm very flexible and I also frequently bruise, and when I was 3 my knee stopped working for like half a week

[@infamoushacker4chan883]

This is one I've actually heard of. A friend of mine regularly dealt with regular shoulder dislocations. I even helped him pop it back into place, once.

[@Akorune]

Now do it again.

[@tayloranderson7547]

For real life

[@carlito9727]

I've dislocated mine 4 times since 2017, worst pain ever. The gas and air makes it somewhat worth it 😂

[@OmniSync]

i wonder how painful it is to dislocate

[@user-zt4zr7eg6z]

I had often dislocations in my youth.

[@Danganronpa_edits]

That must actually hurt a lot, I can't imagine what she has to go through everyday...

[@58-7q]

Right

[@daddypanda3134]

Well just imagine breaking up bones every few minutes:) I hoped that helped

[@CLOYO]

@@daddypanda3134 That by itself doesn't hurt though?

[@erasier9189]

I have Hypermobile Ehlers-Danlos Syndrome. It is extremely painful. Sure makes life interesting when you pick up your cup of tea aaaand you get a dislocation in your thumb, wrist, shoulder and fingers 🙃

[@daddypanda3134]

@@CLOYO dang well have you tried to do it harder?

[@MalloryHasCats]

My heart goes out to people who live with any of the various types of EDS. I don't think I could bear it. You're very strong.

[@GiRR007]

Actual torture Worse than any non physical pain

[@mama2pokemon]

Thank you. It is a disabling condition.

[@WilliamHollister]

I give thanks every day that my EDS 3 is mild. Y'all suffering sever cases are genuinely incredible and inspiring. 💕

[@tornfeathers]

Omg seriously. My little sister and my kid both have it and while I have my own health conditions I cannot imagine having that.

[@fitmotheyap]

@Kebujo why lol, daily constant pain that can not be stopped sounds like torture, oh and it prevents physical activities.. yikes

[@yopi_yopi]

The worst part of being chronically ill is the medical field. You're treated like your pain is secondary or not as bad as it sounds because you push through. I don't even consider doctors like my allies anymore. I get betrayed everytime when I start believing in one and they turn out to not even care about my own input on my own health. I was the one who managed to find solutions to improve my health and 1/10 of medical practitioners actually ended up treating me like a regular responsible adult and listened to what helped and what didn't. Even mostly good doctors tell me I'm not supposed to feel this or that 😐

[@no-thanks]

Yes.

[@nordicpink]

I think it’s because they don’t know what’s going on either. They make educated guesses. Trial and error. They’d put forth more effort on their patients if they’d just treat the patients the way they’d want to be treated. There are good doctors out there, but I guess their ratio to sick people is miniscule.

[@yopi_yopi]

@@nordicpink My generalist is pretty good tbh. He listens, he explains and he's patient and warm. He's even told me "you know your body best than anyone else" and I've never met any doctors like him. Sadly he's retiring very soon 😔

[@Enjyu_666]

They generally don't care, unless it's a life threatening emergency, and even then it's questionable... I've broken a knee, ankle and elbow (in 3 different countries) and non of those healed properly because of: bad surgery/bad after care/no care at all/being ignored... It's painful and uncomfortable living with few deformed bones, but being chronically ill and living in constant pain sounds atrocious! I hope more and more doctors listen to and take their patients seriously and try to help relieve them from this suffering

[@oldladytrexarms]

Having a doctor look at my history of seizures, mental illness, injuries, multiple disabilities, and 16 surgeries and then all my test results and then go "I've stubbed my toe before, too. How is that painful?" was the final nail in my coffin to stop trusting pain doctors. I have been going the nonconventional route since and gotten better and faster and actual results since. I mean, heck, I actually got my EDS diagnosis finally!

[@emka6475]

I'm a PT student. I've met a patient with EDS, and it's part of our curriculum (but haven't gotten into detail yet since that's later in the curriculum). Hopefully, more people learning about it will help more people get the help they need.

[@tayloranderson7547]

Found it helped more people get the help they need.

[@slcRN1971]

I’m a retired hospital RN and this is the first time that I’ve heard of this!! It sounds nightmarish for those affected!!

[@emka6475]

@@slcRN1971 If I understand correctly, some manifestations are better or worse than others

[@SerendipityArtandGaming]

For that patient, you have to treat them well ok? Make pt as fun as possible, give them the experience I will never have. Not just forcing a kid to excercise, but play and reward them and make is something to be excited for

[@emka6475]

@@SerendipityArtandGaming Thanks for the advise. I'll do my best

[@alastorowo8506]

As a kid I was constantly falling over and my joints were constantly in pain. Most doctors brushed it off or said it was a sprain. When i went to Nemours for a mystery breathing issue and they saw me with a cane they asked what happened and my mom explained what I've been dealing with. That same day they got me an EDS diagnosis and braces and PT to help. I'm forever grateful. Please seek second opinions for medical issues and stop brushing off joint pain.

[@lukesmith7005]

I'm sure

[@frankied.roosevelt6232]

Crazy that "nemours" is the reg name for Dupont children's now. My ortho there saved my childhood and was the first to suggest eds way before anyone else.

[@SewardWriter]

Aw, man, lucky! 💖

[@ImyaSmol]

A lot of people in my family have issues with EDS, thankfully my doctors see no reason to think I've got any issues, but it's definitely interesting to see it brought more into public light! :)

[@WetMeat.]

True eds suffers the same problem that a lot of genetic disorders do and that is the fact that they arent talked about enough

[@randomwoman7880]

I have eds and like it's so painful sometimes. 💀💀💀

[@thescholarsjourney661]

My friend actually has EDS, it's nice to see it getting more mainstream attention.

[@Scratchfan321]

My sister has EDS 💀

[@limitbreak2966]

same I feel this

[@towongfoothanksforeverythi6538]

Both of my daughters have EDS

[@peterjf7723]

A friend with EDS died from a collapsed heart valve at 32. He was due to have valve replacement surgery the following week.

[@dustlicker3]

@@Scratchfan321 lol 💀💀💀

[@sophielouise7349]

This is awesome. I have hEDS and not a lot is known about it. I wasn't diagnosed until the age of 28 because doctors classed it as 'growing pains'. I had to bandage my wrists up just to do school work. When I finally got my diagnosis I've been scheduled for double shoulder and a stomach op, and procedures in both my knees, as well as having to wear metal leg braces every day. If they'd have known when I was younger I wouldn't need the things I do now. I'm glad people are talking about it more!

[@tayloranderson7547]

For real life

[@GJenaG]

I got the "growing pains" answer too. Or the "she's depressed"

[@TigTig-Kitty]

I had to self diagnose, I present a doctor with a full 25 page essay as to why I thought I had EDS with everything from pictures and mayo clinic papers ect. I was right but I also wasn't diagnosed until my late 20's. It was "growing pains' too a lot of medical gaslighting for 3 decades!

[@serenitymercer]

Ah yes. I, at 25, still have "growing pains"

[@mariawhite7337]

This is why I love shows like House, and Grey's because they showcase these rarer things and such. It allows patients to finally sit down and go THIS is my problem, THIS is what I am going through.

[@TheArtisticLizard]

Maybe I should watch greys anatomy, I have so many different things happening to me and no doctor can tell me what's going on :')

[@princeallart1302]

My main takeaway here is something my friend has often complained about. Doctors she has visited never take her seriously, even when it has been heart related or Covid. Doctors brush off women's pain and symptoms too fast and way too often. It's really terrible and annoying and she ends up spending tons of money on doctor visits that turn up nothing. Sadly, not much we can do about it besides try to find someone who will actually listen. Healthcare has enough issues in the USA without this added stress for women needing medical care and being ignored.

[@ryanclemons1]

got nothing to do with being a women doctors just don't care and will find the easy way out even if it does not fix anything i'm 90% sure i'm dieing from heart issues but no one hears me out and I keep asking for them to do a echo of my heart but they think it's all in my head.

[@jslade3772]

@@ryanclemons1 Yeah it's not exclusive to women. My father has had the same issues with doctors as have I.

[@sjwoo13]

Pretty sure alot of doctors are just incompetent.

[@tayloranderson7547]

For real life

[@MultiPokemoncrazy]

I feel that. I got into a car accident at 16 years old thanks to my dad break checking someone. Since then, my body has been slowly getting more weaker, more painful and aching. I get IBS, I get brain fog, dizzy spells. It took me 7 years, and going to university to get a diagnosis of fibromyalgia. The doctors I'd visit would send me off to blood tests which came back normal except my liver (which had issues of a drug abuser or alcoholic apparently). The doctors just said cause I'm 6'3 I'm gonna have back pain. They also blamed my weight, when I'm like, 2st off of average weight. Doctors tend to be real bad unless they are in a big town and are funded properly.

[@elizabethbatten8514]

Thank you for highlighting EDS! I was diagnosed a few years ago, fortunately my EDS is milder, but I'm still glad to know what's going on!

[@laurendorrill5025]

I personally do not have EDS, however I have a few really good friends with it. I personally have POTS and two other chronic illnesses. And it took me 5 years to get a diagnosis. The chronic illness community is packed full with stories like this! If you ever need a video topic idea I highly recommend either fibromyalgia or chronic fatigue syndrome. It is absolutely amazing that you are bringing light to an illness that often goes unnoticed by the non-disabled world!

[@Roawrgrrrrrrr]

Im going to be getting checked for EDS at my doctors appointment. I’m happy to see that you put a video out about it. I have issues with my shoulders, back, and hips. I can pull my hips out of socket using my muscles alone. It is starting to get to the point I can’t do my job reliably anymore

[@adamriale9065]

That’s not something your family doc will be able to diagnose. You will need to meet with a geneticist

[@tayloranderson7547]

You can't reliably any more

[@Dreamcorp.Inc.]

My wife has the same kind of issues with her joints in general but my understanding is it's near impossible to get a diagnosis unless you go to a specialist or geneticist but there is also a non genetic variant of eds. In that case, unless you can find a doctor that's interested in your case, you're pretty much out of luck.

[@hannahherrmann4921]

i have similar problem areas! i hope your appointment goes well!

[@emeraldjaco7357]

@@Dreamcorp.Inc. yeah it's super fun I tried to get in touch with the specialist that diagnosed my sibling, but she isn't taking any new patients till next year so I'm just stuck.

[@sarahgreen2295]

I have EDS and it’s WONDERFUL to see more awareness being brought to this diagnosis!

[@michellejirak9945]

I didn't realize EDS was that rare. I know two people who have it. One of them used to entertain us in high school by popping his joints out and resetting them. My other friend doesn't have as bad a case, but he sure does bruise easily.

[@hollydolly1994]

I think that it’s well known in the EDS community that hypermobile eds is in fact not particularly rare, just under diagnosed

[@ohlaceyone]

We definitely think its less rare more underdiagnosed. And as someone who has done "party tricks" ans your friend has done.... don't if your friend is still doing that tell them to stop. Party tricks are haha fun wow things but you gotta see what they are. They are injuries, party tricks are purposely injuring yourself. With EDS if you are injured that joint is destabilized and always will be. It will get worse and as the video said domino effect. So it is best to avoid needlessly adding to this.

[@oldladytrexarms]

10% of the population are hypermobile. It's a rare percentage that have the other types of EDS and a rare percentage that become disabled from it.

[@SewardWriter]

​@@oldladytrexarmsYo. I'm type 1, and seriously disabled from it and satellite conditions.

[@akswordking]

Welp, Brew this was very helpful. I've had a lot of these symptoms and been given the diagnoses of Fibro, IBS, and chronic fatigue and my mother had an issue with constant dislocations. My appointment with my rheumetologist is set for next week. Thank you for making your videos, especially this one.

[@bishoukun]

Good luck to you, mate!

[@dr.altoclef9255]

Any news? Good luck to you.

[@diamia]

I hope you’re alright

[@aredriksnow2569]

Thank you so much for putting out a video on EDS! I have classic EDS, POTS, gastroparesis, epilepsy, and and am also on the Autism spectrum, it is often found as a comorbidity- but I wasn’t diagnosed with either until later in life. It took until I was 32 to be diagnosed with EDS, and 42 to be diagnosed with ASD. I’m 47 now, and much happier to have answers. My biggest challenges are navigating the medical system, especially when I was not insured, or under insured. Pain has always been a part of my life for as long as I can remember, but I do the best I can. Medications, surgeries, braces, KT Tape, splints, my cane, and occasionally my wheelchair get me through. I couldn’t possibly survive without my husband and now adult children. My husband does all the housework and shopping- everything. I couldn’t make it without someone like him. Being disabled is depressing and having someone who supports you is priceless. Thanks again for putting this out there!!!

[@coolgirlfrozenfeet]

My autism diagnosis was just before I turned 28. EDS was just before I turned 36 this year.

[@SerendipityArtandGaming]

My doctor suggested KT tape but I’ve been reacting to adhesive 😢

[@madamemysteries]

I have both POTS, EDS and subluxations happen to me all the time-I’m watching this while sitting down and trying to relocate my fingers, jaw, wrist, and shoulder. It’s so weird when people act like this is actually as devastating as it feels because I’m usually treated like I’m just lazy or needy. No doctors took me seriously and kept dismissing it as mental illness, which ironically led to depression and anxiety. A lot of this comes from the fact when this is what you have always experienced, you don’t know what isn’t normal- and doctors don’t ask the right questions. For me, everyday I’m in pain, so I don’t know what is painful enough to get medical help over. I didn’t realize when I was younger you shouldn’t have pain breathing when standing upright, I thought it was normal because of “gravity”, so I never mentioned it to doctors- delaying my diagnosis. My EDS is severe in it’s complications but less severe than others in the symptoms that are immediately recognizable, again prolonging diagnosis. And after you get a diagnosis, it’s very hard to find treatment because now you’re a liability and people don’t want to injure you more because they don’t know how to treat you- so treatment plans are limited even more. EDS is neglected a lot by the medical community and needs far more research. Also, thanks for mentioning how hypermobility is not EDS-I have seen people talk about it in the past and people immediately want to believe they have it (god knows why). Seriously, this is so exhausting- but thank you for talking about it. It’s easy to feel invisible when you have an invisible illness 💕

[@oldladytrexarms]

To be fair, I've been told there isn't a lot of treatment for EDS... And you REALLY do not want to be in my shoes. I am the opposite of a majority of EDS people. I got injured a bunch and had 16 surgeries way before anyone discovered I had EDS. Only now, right after my hysterectomy, was it discovered. By then, everyone realized it's too late to help me because none of my surgeries ever recovered right. I always gained new pain and complications. I lost range of motion, my knee is permanently subluxed, and I am still numb in my arms. So, honestly, if I were supposedly going to feel bad with EDS regardless, I'd have rather gotten the diagnosis and been denied surgical and other invasive treatments versus living how I am today with only 3 normal joints left untouched.

[@kalismith9787]

I also have Hypermobility Type EDS, Pots and various other comorbidities and I figured this was exactly what you were going to talk about honestly eventually you can spot this kind of stuff from a mile off but still I’m really grateful that you’ve helped give some awareness to EDS you don’t even know how much this helps the community and how many people you’re helping give a name to such a weird constellation of symptoms seriously thank you it means so much

[@AlexMint]

This might sound kinda creepy to just ask, but if you look at someone's feet it's a reasonably quick way to tell. EDSers often have visible veins, sub-dermal lumps in the heels when standing, and flat feet.

[@kalismith9787]

@@AlexMint I can agree with the translucent skin I can see alot of my veins but despite that none of them are useful and I have a Port for iv access

[@pandemonicpixie]

I had no idea there were multiple types of EDS. Speaking of rare conditions, i know someone with gastroparesis who gets dismissed by doctors all the time. I'd love to see you do a segment on people with that condition.

[@AlexMint]

Fun fact: gastroparesis is a very common comorbidity with certain forms of EDS.

[@HavenNemiroff]

@@AlexMint I'm currently seeking sequencing for confirmation of a rare EDS type, I may have arthrochalasia or the periodontal type as I have manifestations of both. Lost my teeth by age 20, short stature, bilateral hip dysplasia at birth, abnormal fontelles, way too extreme of symptoms for some who is AMAB

[@AlexMint]

@@HavenNemiroff good luck! And yeah, dental implications of EDS are frustrating.

[@akiyamada2306]

I love our rare condition getting wider recognition, there are several types of EDS, please keep spreading awareness!

[@korin1131]

omg it is so hugely validating to see this video! I have hEDS and wasn't diagnosed until I was 26 (32 now) after spending a total of 2 accumulative years bed bound because of POTS and dislocations. after I got my diagnosis I was able to slowly work my way back to have a semi normal life. I always have to stay on top of it and tire way quicker than most people, but so glad I happened to meet someone with hEDS that told me to go get tested after I described my issues.

[@JoelEmmettMcGarrity]

You need validation for a diagnosis? I’d probably go see a psychiatrist if I were you lol

[@Z_kun11]

Eds dislocation is like a jenga tower, you take out one piece(put in your rib back) and the tower is more wobley (another dislocation).

[@TairoruXRyuu]

Literally within the first 15 seconds, I knew this was going to be about EDS. I feel so seen I could cry. I was just diagnosed with hEDS this year after having unexplained medical issues my whole life. When I was little, I was ALWAYS really tired all the time and I had issues with my knees dislocating. At the time I didn't know what it was and I would kind of just go on my way after it went back into place. Now, as a 26 year old adult having had surgery on one knee, I have arthritis in both knees and I can no longer physically run. I also have TMJ and my jaw dislocates in my sleep frequently. I experience subluxations of my hip as well as sciatica that I went to PT for earlier this year. These days, I've started getting lower back pain and I was told it's only going to get worse. Besides joint issues, I also have IBS, GERD, dysautonomia, and now likely endometriosis (that can't be confirmed until I get a laparoscopy, which I'm waiting to get consultation for). When I was a teenager, my IBS was so bad that I could eat barely anything without feeling nauseous and I weighed 118 at my lowest (as a 5'10'' woman). While most forms of this condition aren't life threatening, they are incredibly frustrating. In the last two years my own symptoms have been especially bad and as I try to pick up the pieces I keep having new/more problems. I start physical therapy this month, so I'm hoping that helps! But if someone around you has these symptoms and speaks about being in pain constantly, please listen to them. This isn't an easy life. Besides just all the medical bills, you're left wondering why it feels so impossible for you to return to what was previously your 'normal'. You start to realize that your baseline has changed and it can feel really discouraging. To all my fellow zebras, please hang in there

[@novalove4790]

I actually met a girl with this, and she would definitely pop her joints back in like it was 2nd nature. People at work thought her husband was abusing her.

[@raskalthepup]

When I saw the disclaimer, I immediately knew what this episode would be about. I’ve never seen Grey’s Anatomy, but it makes me glad to know that there is representation of EDS on such a popular show. Hopefully we can break the stigma that people our age are “too young” to have chronic illness.

[@DireDesirez]

Thank You for featuring EDS! It is very misunderstood. I'm in the process of getting diagnosed. It's incredibly frustrating to get Dr's to take you seriously. Been dealing with various health problems my whole life, it wasn't until recently I realized it is EDS.

[@JoelEmmettMcGarrity]

🙄

[@polygonvvitch]

My best friend has this, it can be rough, and just like the people showcased here, she struggled to get doctors to believe it and actually diagnose it.

[@DecieversFinery]

I have a rare subtype of EDS. Thanks for making this video.🤗 The pain levels are pretty severe, its not easy to adjust to pain when your injuries never properly heal. Edit: I have cEDS, physiotherapy, proper medical bracing, exercise, and diet have been improving my condition. Stay strong fellow zebras ✨🦓

[@HavenNemiroff]

I'm currently seeking a diagnoses for arthrochalasia. I was diagnosed type 3 years ago, but between the bilateral hip dysplasia at birth, abnormal fontelle, and extreme manifestation for being AMAB. I was in hospice care for a few years because I was so ill they decided I was terminal, and on my paperwork EDS was the terminal diagnoses.

[@MelissaB_]

So glad these subjects are being brought to light on a public platform like this. I've seen close family go through the symptoms and struggles of EDS for years, so to see it discussed in an empathetic and factual presentation to bring knowledge to others is truly amazing

[@ollie2111]

So tragic what the woman at the end was going through, I'm so happy for her that she was able to get pain relief and treatment and it is wonderful that she opened up a place to help others with similar conditions & injuries. That will help so many people

[@Mr.Noob1]

I can dislocate my knees and shoulders without any pain. Doctors were just like "ehh physical therapy". The physical therapist I've told this and I used to be treated by just said "there's nothing I can do but it's perscripted sooo... we'll have to do it."

[@tayloranderson7547]

I can dislocate my knees and shoulders without pain doctors were just egg without the pain physical therapy. Or the physical therapy live tool and I used to be treated by just said there's nothing I can do but it's perscr opted soo... We do it

[@TheZephyrsWind]

My muscle illness causes joints to pop loose now and then, with my shoulders being the most common.

[@AlexMint]

@@TheZephyrsWind same, plus my knees and elbows get "stuck" now until they reach a point where they emit a loud painful cracking noise.

[@itstorio2399]

I can pop both my thumbs out and back into place, I do this ever since I was a child almost everyone I show it to freaks out

[@Mr.Noob1]

@@itstorio2399 samething as with my shoulders.

[@traceymarshall4481]

This is heart breaking, it must be absolutely awful, I know how bad it is having IBS, Fibromyalgia and Chronic Fatigue Syndrome, it's hard enough getting people to believe you with these illnesses let alone all of that. Hope EDS gets more recognition soon ❤️

[@craftgrrl14]

Thank you for spreading more awareness, Brew! It means a lot to people like me who live with this condition. We go through years of being sick and not knowing why before we finally get answers. I hope, someday, it won't be like that anymore.

[@puddingcupxoxo8306]

Thank you for spreading awareness of EDS. I was misdiagnosed for over 30 years until my son started showing symptoms of my condition and we knew it was genetic. My shoulders, ribs, jaw, elbows and hips dislocate daily. It's a hard condition to live with

[@twocvbloke]

Some of these symptoms are shared with Marfan Syndrome too, another condition that is still taking a long time to be fully understood, my eldest brother died because of it, the "stretchy skin" issue affected his blood vessels, and his aorta burst like a balloon on his final day, and he was dead almost instantly... :(

[@tayloranderson7547]

For real life

[@littlehalestorm]

I'm so sorry! :( Huge hugs if you want them.

[@YumeNoShi]

it makes me so happy to see more people learning about EDS! i have it myself along with a bunch of comorbidities that come with having EDS. thank you so much for doing a video over it and for helping more people to learn about our disorder. hopefully the more people know, the less cruel/mean they will be and the more understanding they'll be to those of us who have to live every day with this horridly painful disorder ;-;""

[@PandaMom9230]

This video is essentially my life. The EDS, POTS, gastrointestinal issues…everything I’ve been dealing with for so many years. Even having to give up dance like the second girl is something I dealt with. I tried to take my life because no one took my symptoms seriously and kept telling me it was all in my head. Wasn’t until my orthopedist did the Beighton Scale and said “uhh how HASN’T anyone diagnosed you with EDS?!”

[@mikey8840]

I had saw the disclaimer and I immediately knew what it was. I have been diagnosed with pots and in a few weeks I get to go get genetic testing done for EDS since they already ruled out hyperbole eds. It definitely causes a lot of pain so I do use multiple mobility aids to help me get around. Thank you for bringing attention to this!

[@Tinkerbird]

Heyyyyyyy! I have hEDS! And POTS, gastroparesis, MastCell issues, and lots of other problems. I have had symptoms since I was a kid. I was finally diagnosed at 30. It is pretty painful and weird. I have a huge team of doctors and therapist that help me have a much better quality of life now. The key is that I have to be my biggest advocate for the care I need. Thanks for covering this Brew :)

[@Andreanakis227]

This video has a lot of effort put in it, thank you Brew for your information that you are sharing to all of us

[@tinybullfrog1955]

dude as a fellow zebra, the ribs are a struggle. also, you seriously have no idea how much it means bringing light to this. if even one person is spared the decades it took my doctors to figure out my body, that would be wonderful. thank you so much for showing this.

[@catube6915]

When i saw the intro telling about her ribs popping out, i already knew it was EDS. Already had mine popping out (90 days of healing), besides others life long symptoms, chronic joint pain, etc...

[@MaraudingMagpie]

Thanks for shedding light on this cobdition! It needs more awareness. I still meet doctors regularly who don't know anything about EDS or don't believe it's as serious as it is.

[@shalahmattnet]

Oh look, another Brew video discussing another one of my health issues with an honorable mention of one of my other health condition. I have POTS and EDS. The type of EDS I have involves hyper mobility, nearsightedness, and complications with pregnancy and childbirth. my mother was diagnosed at the same time as me because it's impossible for me to have EDS if she doesn't and I definitely have it. My mother experienced a prolapsed when giving birth to me which commonly happens when mother and baby both have EDS. It's one of the reasons I don't want to get pregnant or give birth ever. Thanks Brew for bringing awareness, and maybe you could make an episode about POTS someday

[@coolgirlfrozenfeet]

Yeah, I had complications with pregnancy. I really want to experience a normal pregnancy, though.

[@oldladytrexarms]

Well just be wary if you get a hysterectomy like I did. EDS can cause complications. My stomach muscles are going whacky and randomly, despite having passed my follow up appointment, my closed wounds are now deciding to scab over and leak. >.

[@rachelrak4502]

Alongside my close friend who has classical EDS, I have met multiple patients in my workplace that unfortunately had vascular issues due to that specific EDS type. I am so thankful for the knowledge and research available today

[@kelvinwhiting6074]

my family has a history of POTS and EDS. I've never been diagnosed myself buy my sibbling has and is encouraging me to look into diagnosis. Great video its very informative and as always!

[@lizzy-wb5ii]

Thank you for doing a video on this! As someone with hEDS the impact everyday is so severe and barely anyone knows

[@that_one_who_is8037]

The saddest part about this is that even when she was misdiagnosed with hyper mobility syndrome, it is capable of evolving into Ehlers Danlos syndrome. And doctors will usually warn you that it can evolve into it (especially if there is a family history of it) What I expect happened here is that the doctor she went to was either new, unqualified in the area, or not a rheumatologist (the doctors that specialise in this stuff)

[@dumbmusorowan]

eds is a genetic condition that you have from birth, it can't "evolve" from or be caused by any other condition. it is often misdiagnosed as regular hypermobility or hsd first though, if that's what you mean?

[@mikey8840]

Eds is a genetic condition. It definitely can not evolve from one condition to another! Similar medical conditions can cause misdiagnosis though.

[@LittleMissBob]

My partner has EDS! I had a suspicion within the first minute or two of the video what it would be about. She got diagnosed with fibromyalgia and POTS a while before the EDS diagnosis came around, and suffers regular hip, shoulder and knee subluxes/dislocations, as well as severe gastrointestinal problems because the collagen in her stomach has just given up. Thanks for putting a spotlight on this not very well known condition!

[@kcshines1581]

I literally think I have this, and this video has given me a lot of insight and maybe an answer to the foot pain I’ve been dealing with. Thank you! I am gonna bring this up to my doctor!

[@lucretialee3691]

I was diagnosed with EDS almost thirty ago now, all it took was a good doctor and their referral to a geneticist. The problem I have is finding doctors now willing to treat me and the side effects of having it, as most just don't want the trouble as I have cross symptom version. One of the main issues being nonresponsive to medications, something a lot of doctors don't seem to understand or believe even seeing it with their own eyes. It has also left me bed bound, but on the bright side my family have a fun game to play "guess the dislocations from that sneeze".

[@rebecarodriguez91]

I'm such a fan of this show and for the first time I immediately diagnosed the patient within the first couple of seconds. I also have EDS hypermobility type, POTS, disautonomia, hyperhydrosis, NMHS, hypersensitivity, chronic regional pain syndrome and God knows what's going to be my next diagnosis. I felt so seen and heard with this video, everything was explained so well and I even learned some things although I have done a lot of research of my own. I am only now starting to get a handle of this condition and the lifestyle changes are extremely difficult such as drinking water like a fish, eating salt to no end, eating mostly healthy food, staying away from nicotine, caffeine (God I miss coffee), and alcohol among other things. Whenever I do something I'm not supposed to like drinking coffee, my POTS gets so bad now that I've landed in the hospital for carelessness a couple of times. Listen to your doctors who know how to treat your syndrome and keep moving to strengthen your muscles because they can help hold your joints in place. Don't stop moving and stay positive guys! Thanks Brew!

[@AlexMint]

wait caffeine messes with EDS? I'm a friggin' barista!

[@rebecarodriguez91]

@@AlexMint well, according to my doctor who's well known in the disautonomia community, from what I understood, it is if you're also diagnosed with disautonomia. Coffee used to be my lifeline and I would drink it several times a day... all was well when my symptoms were pretty dormant because I was active. Once I desensitized my body by being bed ridden and my POTS acted crazy, which lead to my POTS diagnosis, now simple things affect my symptoms. The tachycardia is awful if I have one small cup of coffee, my breathing becomes shallow, I am low energy, dizzy and nauseous. With exercise your muscles can get stronger and help return blood easier to your heart and brain which will lessen the symptoms. I'm working towards that 💪🏼and I hope this made sense lol

[@flushedphoenix81]

As someone diagnosed with this thank you for this it gives me a great concise and fun look at one of my disabilities

[@anthrogirl7456]

I have MS and couldn't help but feeling very connected to those you spoke of. Thank you!

[@ReyOfLight]

I have hEDS (hypermobile EDS) which wasn’t diagnosed until 10 years ago (when I was about to turn 27) How it affects people is very individual and also depends on your condition for the day and other variables. I personally don’t fully dislocate much or at all, but I partially dislocate joints (thankfully not ribs) on a daily basis, some hurt and some just “feels wrong” and I’m also affected by severe chronic pain and I’m easily fatigued so between that and my sensory issues from autism, I’m on permanent disability and haven’t been able to work since 2011. I’ve had symptoms all my life of my EDS but my body really crashed when I was 25. Some with EDS are able to work full time (like I used to do), some can manage part time work, and some have no choice but to be on disability. Sadly it’s often very difficult to get properly diagnosed and even more difficult to actually get the medical care you need. At least here in Sweden it’s far too common to just get tossed back to your primary care doctor because the specialists like rheumatologists and orthopedics don’t want to deal with us unless also having something rheumatic or an injury requiring an orthopedic. Sadly a lot of people out there get insufficient care for their EDS, much of it due to the lack of knowledge among doctors and too few doctors have an interest in EDS and there are so many people who need to see them

[@invertebreak]

As a fellow Zebra (that’s how we, EDS peeps named each other) thank you for this video! Even though I had so many issues since the day I was born - mostly with my guys and tendons- it took 34 years to get diagnosed.

[@TheHorreK2]

EDS sounds like an actually horror, i cant imagine living in constant fear of my joints dislocating

[@Gsoda35]

this must be one of the most valuable information I ever seen about those strange body behaviours. great video!

[@ventusvindictus]

Some of these are actually rather similar to my own medical journey/issues. We still don't have a diagnosis after a little over 5 years of consultations, imaging, and treatments. I'm blessed to have a rock solid support group, between my friends and immediate family, which has made it all bearable. There are many others who are in far worse situations than my own, too, and their attitudes help inspire me as well. I've experienced chest pain of varying intensity since a simple pulled muscle and sprained rib in 2015, which culminated in crippling pain and a seizure (a side-effrct of extreme sleep deprivation) in 2019. I've had 4 rounds of intracostal steroidal injections for managing the pain, each with decreasing effectiveness, and have had diagnoses ranging from costochondritis to fibromyalgia to meningitis. I've been using lidocaine patches paired with a nerve suppressants agent, anti-inflammatory meds, and antidepressants for a little over a year now, and that's been the biggest relief since the initial round of injections. It has been quite the journey so far, but I have faith we'll figure it out eventually. If anyone who reads this is suffering from anonymous conditions of their own, I have faith you'll figure it out too. You've made it this far, after all.

[@chassinoir]

This episode made me cry. My wife has this; the doctor is trying to rule out which one she has. They’re only 34 but I’m petrified they’re going to be wheelchair bound by the age of 40. They in so much pain constantly. The night before last I had to physically brush their teeth. I love them so much; so worried that they’re not going to live much longer. I saw something about the life expectancy is shorter than average.

[@oldladytrexarms]

Only for certain EDS. So don't go panicking just yet...

[@myew]

Thank you for making this, it's appreciated. My aunt and cousin have vEDS, and I was diagnosed with hEDS as my type wasn't found in genetic testing. Suffered for 30 years without understanding why or getting the needed support and validation.

[@stompybootz]

thank you so much for featuring EDS and also mentioning POTS (october is POTS/dysautonomia awareness month!). my doctors won't give me an official diagnosis of EDS or HSD but i have dislocated my knee 4 times, and my shoulder & hip once each. i've had chronic pain since i was about 9 or 10 (22 now) but no one would take me seriously. it took me nearly 4 years and 5 doctors once i developed POTS symptoms at 18 to get diagnosed with POTS and have someone acknowledge my joint hypermobility. I've developed GI issues and multiple food allergies/sensitivities because of it. thankfully though between bracing my joints and physical therapy i am managing much better now. i appreciate those that take the time to highlight rarer illnesses or illnesses that aren't commonly known ❤

[@eliseedgar4524]

Jessica Kelgren-Fozard is a lovely British youtuber who talks about her experiences with EDS, POTS, other genetic disabilities she has, along with LGBT history and her life with her wife and son. I found out about EDS through her :) My friend's little brother has EDS and had to quit baseball because of it. He was really upset about that but he's doing a lot better health-wise now

[@mickenzieking683]

As someone with hyper mobile EDS and POTS, it took me until my twenties to finally get doctors to listen to my concerns. I absolutely love that you’ve made this video to share more information about my condition! So many doctors have no idea what it is.

[@GleeStarKidLover]

This is literally my life with EDS, POTS, gastro issues and everything else! Thank you so much for highlighting this strange condition!!

[@poppunkprincess9751]

I have EDS and it is SO cool to see it being talked about more!!!

[@quixomega]

I used to date a woman who had EDS, the symptoms can be very serious. Nice to see it get more exposure.

[@raindreemurr]

these are the sorts of things that when talked about make me feel extremely uncomfortable and like I need to drink water every second. I feel bad for the people who have this. I also know a kid who can bend his thumb all the way back. other than that i can do a backbend but that took practice, its still funny when people say "how do you do that-"

[@charitysweetcharity3091]

I have a former employee who had this. They are still a teenager. So many problems for such a young person. So sad.

[@saturationstation1446]

also there are a few of these that are eerily accurate with describing things i have experienced for a long time too

[@kyradreamer4769]

Joint hypermobility syndrome (JHS), which is what she was initially said to be diagnosed with is speculated by many to be the same as hypermobile Ehlers Danlos Syndrome or HEDS, which is also suspected to be under diagnosed. I believe it's also the most common of the 13 types, and the only one without an identified gene at fault.

[@oldladytrexarms]

It is the most common. A majority of the EDS community has that (10% of the population of the world from what I saw in a study) and then it gets rarer as you get into the type of EDS and the people being disabled by it.

[@WilliamHollister]

I suffer from EDS type 3 and consider my case MILD. My jaw frequently dislocates when eating; knees dislocated frequently; I have started having my ankle dislocate if I step down "incorrectly", and I can't wear tight shoes because I'll experience pain all the way up my legs and into my upper back. Definitely a weird one to live with, but it helps give me perspective. 😂

[@emeraldjaco7357]

I feel for y'all I'm luck cause I only have subluxations and hypertensions, but I still had to endure so many doctors just brushing it off as muscle inflammation.

[@smittywerbenjj1]

"mom, my spine is popping out my back!" "Don't watch so much tv, get back to work."

[@carolcarroll1823]

Finally diagnosed with this at age 25 💖 everything I've struggled with makes sense now. But it was social media where I first heard about it. Videos like these are SO important!!!

[@theeshitical8939]

The first thing I thought of was the glass bones guy from SpongeBob

[@alexandrak1350]

Before people start thinking they have this, there are many types of EDS and other types of similar connective tissue disorders. Also, there’s some forms of EDS that are completely different.

[@dantee323]

Haven’t seen your videos in a few months. It’s good to be back!

[@Lily_P]

I saw the preview - hadn't even watched the video yet! - and immediately knew you were referring to Ehlers-Danlos Syndrome. It sucks! Having it sucks! Thank you for bringing attention to a condition that folks all too happily brush off as malingering. Appreciate you Brew!

[@nerdicperson6235]

Im very sure my condition is just simple case of double-jointed elbow. Funny thing about my physical condition, is that my elbows can turn about 20° more than a regular person's arm, but this results with my knees having a bit of an inmobility; if i try having my foot in a 90° angle, my kneecaps might dislocate and relocate within a moment, causing quite a lot of pain. I had to be brought to a hospital in an ambulance once, because my kneecaps on my left leg dislocated and relocated during schoolhours. Thankfully, this never results into anything, but that my kneecaps get filled by some body fluids, and the only way for my kneecaps to heal properly is that i move a lot - which actually hurts quite a bit at first, untill its been about a week. You propably guessed it, but this condition is indeed heretidary; my maternal grandmother has it, my mother has it, and me and my older brother have it.

[@durgadivinewrath8879]

I got hypermobility from my dad, but he never had any associated pain till his late 60's. I've had pain since I was 8

[@magdazapalka]

I've heard about a woman who got saved by House MD episode. She had some rare condition for a while and would have died in following months without treatment

[@lexx9502]

I have EDS and comorbids, thanks for making a vid and bringing attention to it!!

[@emeraldjaco7357]

Thank you so much for making this video my sister had to suffer for almost 5 years being told she just has iron deficiency, or that it was all in her head and she needs to work out more.

[@edwardsminesuckers]

It's so weird that now that I have my diagnosis I'm seeing EDS everywhere

[@philoudude]

im diagnosed for years now, its not youbspotlight effect. it gets more attention. just wanna say it

[@jaydenzstuff]

How the heck does she relocated her ribs

[@Enderwave22]

She's used to it.

[@luvondarox]

@@Enderwave22 yeah, but... _how_ do you relocate ribs?

[@Enderwave22]

@@luvondarox You can feel where pain is right? I think it's basically like, locate the pain and move the rib.

[@sleepygoth13]

@@luvondarox when you have EDS they honestly just kinda click back with firm pressure in the right direction

[@trans_boy_kole7640]

Right so when they pop out you press the end that's put down and breath in deep to open the gap, then gently pressing you can slide it in, my Dr (doctor Ramanan, Wales EDS sepialist) explained it to me because I was doing it wrong and makeing more problems than I was fixing

[@k.o.2660]

I dont think I've ever experienced a full dislocation, but I very often experience subluxation in my ribs, SI joints, hips, shoulders and jaw, and I can also partially dislocate my thumbs, my elbows over extend, and my knees overextend just naturally. My back also overextends. I was diagnosed with just general joint hypermobility but I'm in consistent and constant pain at all times. Thanks for finally giving me the extra push to finally ask for a referal to a geneticist :)

[@ohlaceyone]

That's one fo the things I think he should have been more clear one. EDS most often causes subluxations more so then full dislocations.

[@k.o.2660]

@@ohlaceyone is that so? Thats the thing that has made me doubt my self-diagnosis and motivation to get diagnosed because I dont fully dislocate most of my joints :O!

[@oldladytrexarms]

@@k.o.2660 I don't either, but that's because I've gotten injured. Yet I still passed the EDS test, so don't rule it out. I do have a permanent knee subluxation and my elbows do pop out but then stay due to complications from surgery, so I don't quite fit the descriptors. So if I can pass I don't see why you can't.

[@WetMeat.]

A few people in my family suffer from this luckily not to the severe degrees it can have but it is really not fun when your joints just fall out of socket and sleeping slightly wrong can mean not being able to walk right for the rest of the day because your leg fell out of socket or is not sitting right another issue is if you ever have to have surgery then the doctors can really hurt you when they go to move you when you are unconscious.

[@GryphinHusky]

As this video started, I legit went "oh, it's Ehlers-Danlos Syndrome isn't it??" Yeeeep. My mother, my brother, and I all have EDS. It's...really rough, to say the least.

[@erasier9189]

Me too!! I was so excited and happy when brew said it's EDS! From a fellow EDSer x

[@lisapop5219]

Yeah, having eds sucks. I didn't get diagnosed until my late 30s. My daughter has it too.

[@ZoeTheRose]

Oof Rip, Good Luck With You And Your Daughter

[@sixkicksfightertricks949]

My mom struggled with cystic fibrosis her entire life and had equally careless and incompetent doctors. They wouldn't even give her strong enough pain killers, so she would drink more and take fentanyl from the street. She ended up overdosing one day. All genetic illnesses, no matter how rare, require far more awareness, research and care so people don't end up turning to the streets and losing their lives due to hospitals being maddeningly useless. Almost no one ever took her seriously. Even I was too drained to care sometimes which I still regret.

[@EvonneSol]

As someone with the hypermobility, it's refreshing to see it laid out so cleanly and plainly. We've known since I was a small child that my joints are delicate - I'm a lot more careful now, but I've broken my arm and knee previously and dislocated or sprained my ankles multiple times just walking around normally. I also suffer from chronic fatigue and bruise easily, with some unrelated lung issues that's most likely asthma. Having to explain, year after year, to different gym teachers, was incredibly frustrating. I actually broke my knee in high school after gym class and had to be rushed to the hospital, which was absolutely horrendous since that teacher made me run extra laps because I was 'too slow'. We also had to pull me from ballet classes after I twisted my ankle during practice. In general, it's exhausting to not be able to partake in activities other people can easily handle because one or more of your limbs might just give up on you in the middle of it. It's even more exhausting for people to misread it as you being lazy or just not liking to exercise when, in fact, you have a legit medical reason to not want to get involved in those activities.

[@laurenospina8066]

Went to school with a girl who had EDS. She tore her ACL when she was about 8 or 9 and wore finger splints later on. I never realized how rare the condition was because I was familiar with it from a young age. It’s terrible that so many suffer for so long with no explanation.

[@Kiwi_Queen_roadto60subs]

My god that’s scary

[@erasier9189]

Eh, you get used to it. If it's your daily life & something you've dealt with since you were small... You find ways to deal with it. I mean, from typing this out, I've had partial dislocations in both my thumbs & wrists & a full on dislocation in my right shoulder. You don't have any choice BUT to just go on living. Sure makes life interesting though! From a Hypermobile Ehlers-Danlos Syndrome warrior 👌🏻

[@amandamccallum6796]

Wow ty for bringing attention to EDS! It took 8 years for me to get diagnosed with EDS and even with the diagnosis most people don't understand it.