The Link Between Autoimmune Thyroid Disease, Lupus, and Rheumatoid Arthritis - Podcast

[@deenaengelmann2144]

I really love these videos! They're very informative! I have Hashimoto's, Sjogren's Syndrome, and Rheumatoid Arthritis. I have an issue with the statement that if TSH is "normal" then no further tests are needed. I was symptomatic for YEARS even though my TSH was in the normal range. I finally had a doctor that had the entire thyroid panel test done and my TPO antibodies were over 1,000. I also have thyroid nodules. After 15 years of dealing with it, I know that I'm symptomatic with a TSH >1.5, which is well below the current top of the normal range. Also, I've tried name brand Synthroid and the generic levothyroxine, NatureThroid, and Armour Thyroid. Armour is the only one that works for me at all as far as symptoms go. My insurance doesn't cover it, but it's not that expensive, so I just pay for it. I'm noticing that in the past few years my TSH has been fluctuating much more than it used to, and after having Covid, my Sjogren's and RA are much more difficult to manage. I had gone through several rounds of Rituximab and had great results that lasted for several years, until Covid. Now I'm on Enbrel, but it's only been for 3 weeks, so I'm not sure how well it will work yet, but I'm hopeful!

[@rheumatologistoncall]

Thank you for watching!

[@theanswerisprayer]

Hi @mama Shiraz thank you so much for sharing your experiences with your health. It helps to know others understand, which I also found helpful in my sjogrens group. It’s good to hear that you were able to find a good doctor and maybe I will find one also. I wish you all the best.

[@MyFavoriteColorIsBLUE]

Thanks for having this Dr on here Dr Girnita ❤

[@rheumatologistoncall]

thank you for watching!

[@BrendaKoch-z8f]

Great info

[@rheumatologistoncall]

Glad you think so!Thank you for watching my video, dont forget to subscribe to my channel for other videos!

[@nancys2839]

What if you've had thyroid nodules and hypothyroidism? Please advise, my weight will absolutely not go down unless I eat once a day a good meal I ONLY eat gluten free with protein and vegetables and walk at least 30 minutes 5-7 times a day, sometimes I get frustrated and just eat 2 times a day and I absolutely gain which is really hard on my joints with rheumatoid arthritis, sjogrens, injury induced arthritis and osteoarthritis.

[@rheumatologistoncall]

I can’t give you medical advice here.

[@MyFavoriteColorIsBLUE]

I have Graves disease, sjogrens disease and fibromyalgia. Am I at risk for more of these diseases that you are talking about?

[@rheumatologistoncall]

yes, you might be at risk, follow up with your doctor closely.

[@fificruz7457]

My endocrinologist said I have Hashimotos and my thyroid is good. I’m not diabetic, not on any medication. I have lots of inflammation in my feet, hands and now shoulder pain. Why won’t she do more blood work? Im new to all this and it’s so confusing.

[@rheumatologistoncall]

Thank you for watching my videos and supporting my education mission!

[@naomikanini4666]

Which foods can be good for someone with lupus

[@rheumatologistoncall]

Check my last video!

[@NoTfRoMThIsPlAnEt13]

After I had my daughter I had hypothyroidism and about a year after that started, I was having arthritic symptoms, fatigue and memory issues. My PA only tested me for RA and never tested me for anti thyroid antibodies. That was 7 years ago and my thyroid is back to normal for the most part but I still suffer from chronic pain and severe fatigue. I might have found a doctor that will do the needed tests on my thyroid.

[@rheumatologistoncall]

It's great that you might have found a doctor who will do the necessary tests on your thyroid. Hopefully, you'll get the answers and help you need.

[@NoTfRoMThIsPlAnEt13]

@@rheumatologistoncall thank you!

[@lifeisveryshort7842]

Hello Mam I'm apla positive patient so nw 8 miscarriages. So next pregnancy chance's of success pregnancy mam

[@mamashiraz]

Wow you’ve been through a lot…I can relate. I will address those points I’ve had experience with: Once you have a positive ANA, you don’t need to do it again. Even if it’s a low positive, there’s no reason to repeat it because the number doesn’t reflect the severity of illness. also, the ANA test is not specific to any one AI disorder so further testing needs to be done to figure out which one/s you have. Most diagnosis are a combination of clinical (symptoms) and diagnostic (bloodwork, other testing). Just having a positive blood test doesn’t confirm a diagnosis as well as a negative blood test doesn’t rule out a diagnosis. In my case, my RF is negative (blood) but ultrasound and MRI shows I have moderate to advanced rheumatoid arthritis. The autoantibodies were found in my joint fluid. Similarly, my Ro and La are negative (so far) but the Early Sjogrens Panel is positive (test that detects salivary autoantibodies as well as others) and I’ve had Sjogrens symptoms for years. My doc continues to test for Ro and La because a positive result could implicate other issues as well. Sjogrens is just as serious a condition as Lupus and needs to be monitored and treated (some docs just send you away with eye drops🤦🏻‍♀️). It’s very important for your doctor to run the appropriate tests to monitor your conditions to know that treatment is working. It’s important because you want to stop progression and permanent damage. It gets complicated and you want a doc who knows what they’re doing. I’ve gotten 2nd and 3rd opinions until I found a specialist who uncovered what’s going on! He’s figured out most things: Sjogrens Hashimoto’s SLE RA Antiphospholipid Syndrome Reynauds Celiac’s Ulcerative Colitis MCTD - for an inherited genetic type of autoimmune disorders. I really wish you well on your journey to better health🙏🏼💪🏼 @theanswerisprayer

[@rheumatologistoncall]

thank you for sharing your experience! thank you for watching!

[@litebrite42780]

Ugh, ask your doctor to go on record if they refuse a test. How long did it take you to get a diagnosis? Did you loose work? Did you have harm done that is irreversible? Clinician or not you are not the patient and it’s important that the patients requests and concerns are validated. I was over looked for autoimmune diseases with a positive ANA until my I privately had my whole genome sequenced. Lo and behold look at all those disease detecting variants that mark 4 autoimmune desease. Dr. Need to stop playing god

[@rheumatologistoncall]

Thank you for sharing your experience. It's important for patients to advocate for themselves and ensure their concerns are heard and addressed by their healthcare providers.Thank you for watching my channel!

[@litebrite42780]

gaslighting, must be a class in med school “how to gaslight the patient” 🤔 views vs karma

[@crazeekids9744]

I have SLE and Hashimoto’s. Life is hard right now.

[@rheumatologistoncall]

I'm sorry to hear that, sending you positive vibes!

[@theanswerisprayer]

Revised and deleted most of original post and test results per @Dr Girnita’s reply. I did enjoy the podcast and only asked for help because I wanted to know more your thoughts. I wasn’t seeking a free consultation as I have great insurance. I was looking for insight ..my apologies. Hi Doctor, I have been to 5 different Rheumatologist since 2008. I was first diagnosed with Sjogrens and two years later was tested and told I had Lupus and RA.

[@mamashiraz]

I thought I was replying to you…please see my response to you in the comments.

[@rheumatologistoncall]

Thank you for taking the time to watch my video and leave a comment. I really appreciate it! It means a lot to me that you found the content helpful and enjoyed it. If you have any questions or suggestions for future videos, please don't hesitate to let me know. I'm always looking for ways to improve my content and provide value to my viewers. Thanks again for your support! Please do not share this information publically this is not a way to ask for it. consultation! Your information is your property.

[@angelacapota7743]

Va rugam traduceri in limba romana a Este extrem de interesant

[@rheumatologistoncall]

Desigur! O sa pun traducedea

[@entrepreneurlife4330]

Question for you both: my ESR has been raised for several years but it doubled within the last six months of 2022, so my rheumatologist started me on methotrexate. I had to end up stopping the MTX after a month or so because I was having issues with infection, viruses and healing. That was about 3 months ago. Yesterday my jaw locked and I was diagnosed in the ER with TMJ. On another note, because my antibodies, Anion Gap, etc do not show what my rheumatologist feels is an appropriate number she says she will not formally diagnose Lupus or similar. She just basically says she doesn't understand why my inflammation rate is so high. I do have other dx including but not limited to fibromyalgia and neuropathy (non-diabetic). What are your thoughts?

[@rheumatologistoncall]

follow up closely and also consult a hematologist that can evaluate you further

[@mamashiraz]

Do you have a positive ANA? Did the doctor run any tests looking for an autoimmune disorder? Just having a high ESR doesn’t warrant putting someone on a drug like methotrexate. What am I missing here? I’d get a second opinion and thorough testing.

[@entrepreneurlife4330]

@@mamashiraz I've had tons of testing over the last 15 years.

[@entrepreneurlife4330]

@@rheumatologistoncall A hematologist?

[@rheumatologistoncall]

@@entrepreneurlife4330 yes

[@leonorabalamban9396]

i had been diagnosed with hashimotos thyroditis and my doctor said i will be having my synthroid meds for life.Is there a possibility that my thyroid functions normally through diet

[@rheumatologistoncall]

very unlikely, but please follow with an endocrinologist thanks!

[@lindyc.2552]

I TRIED TO LISTEN TO THIS VIDEO TWICE...BUT, I STILL COULDN'T UNDERSTAND THIS GUEST DOCTOR.... IF YOU HAVE AUTOIMMUNE THYROIDITIS BY ITSELF, ARE YOU AT RISK OF DEVELOPING LUPUS OR RHEUMATOID ARTHRITIS...YES OR NO???

[@rheumatologistoncall]

not necessarily, but patients with LUPUs or RA are at increased risk for developing autoimmune thyroid disease

[@lindyc.2552]

@@rheumatologistoncall Thank you! 😊

[@tracysmith245]

my lack of PTH gave me lupus lack of Vitamin D

[@rheumatologistoncall]

Share with others! Thank you for watching my channel!