The Parkinson's Podcast Unfiltered: Uncertainty

[@belindawallace5203]

Got my PD diagnosis today!

[@edwardf.zawieruchasr.1756]

20-12😊

[@davisphinneyfdn]

We're here for you. Feel free to reach us at [e-mail] if you have any questions. And here is a resource for people who are newly diagnosed: cdn.davisphinneyfoundation.org/dlm_uploads/2024/09/Newly-Diagnosed-Checklist-DIGITAL.pdf

[@deborahdeview3363]

This is what I have been thinking about. Was diagnosed with PD. 2009 In 2014 DBS. Ilve in a Long care facility since 2017. My husband Pass,2012 so this is great setting my thoughts are running wild with what happens next Keep talking I’m listening

[@splashesin8]

Oh man. I can't believe how many years I wore hose. How did I even do that💗 So many things I just endured for years, and I don't even know how.

[@RitaG-b3b]

So I was diagnosed at 46, and just turns 50. I’m finding it so difficult to accept the new me.😢 ..3 boys who are teenagers now. They’ve got no patience for me because I can’t express myself sometimes… I know what I want to say but can’t get the words out and don’t have the energy like I used to. I’m having DBS in Feb. I hope this helps me. ❤ listening to you ladies. I can relate with all you talking about. The back and neck pain, dystonia in the head, feet etc. multitasking is so difficult… to not be in control is so difficult for me too. It’s crazy how this disease changes a person!!

[@davisphinneyfdn]

Thanks for your comment. We hope DBS helps, too. Three teenagers and once AND Parkinson's on top of it: it'd be hard for anyone to always have the energy for that! While not all energy-level difficulties are related to fatigue, here is an interesting article about the idea that exercise might help treat fatigue: content.iospress.com/articles/journal-of-parkinsons-disease/jpd225116