The Story of Piper (The Only Known Case with her Rare Genetics)

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Special Books by Special Kids

Special Books by Special Kids

Күн бұрын

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@aykroyds
@aykroyds 8 ай бұрын
connecting music BPM to heart BPM to calm her is an EXTRAORDINARY idea. this shows the absolute love and connection that parents and guardians can have with children. understanding a child goes far beyond what we THINK is human interaction
@elissamarcus
@elissamarcus 8 ай бұрын
That was absolutely fantastic
@FronteirWolf
@FronteirWolf 8 ай бұрын
That works, when I'm anxious, loud and fast music helps
@lornocford6482
@lornocford6482 7 ай бұрын
I did the same thing with my highly sensitive cat. Meet someone where they are and guide them to where you know that they need to be. The recipient has to lock in though.
@enjakuro7048
@enjakuro7048 6 ай бұрын
​@@lornocford6482ooomg I was about to say I did this with the cat I transported to another home. He never was out before except as a kitten. And then the box started purring ❤
@Vuestraputasmadres
@Vuestraputasmadres 5 ай бұрын
Que no es hijo de patricia joder
@darkskyatnight
@darkskyatnight 8 ай бұрын
Just when the world seems to be slipping into madness and despair, I see two parents who are this wonderful and devoted. I needed something to make me smile today. Thanks.
@fatimapavon7787
@fatimapavon7787 8 ай бұрын
@saoirsecruise6713
@saoirsecruise6713 8 ай бұрын
Me too! 😊
@joidavis5210
@joidavis5210 8 ай бұрын
Couldn’t have said it better myself!!!!
@JOECorsoNova
@JOECorsoNova 8 ай бұрын
Couldn’t agree more, simply beautiful in so many ways!
@rockandrollnana
@rockandrollnana 8 ай бұрын
❤😊
@jazzcat320
@jazzcat320 8 ай бұрын
As a former music therapist, this video is very powerful. Thank you for showing the power of music to connect with people.
@sandyseibelhager7131
@sandyseibelhager7131 8 ай бұрын
I was just thinking she would probably really benefit from music therapy.
@xTriSarahTopz
@xTriSarahTopz 8 ай бұрын
Ya know, I was waiting for this comment. I’m musically inclined in terms of instruments, theory, and was even the drum major (conductor) of my high school’s large competitive field marching band-but my dad discouraged me from majoring in music and psychology when I expressed that music therapy was my target career. No joke. It doesn’t really matter considering I ended up becoming a mom twice over while pursuing a degree and I chose to prioritize my daughters over my psych major, but I really needed to see someone comment on music therapy. That was my very first thought and I was so thoroughly intrigued and watched the entire video in full. You’re an inspiration who is very far out of reach, but I’m soooo grateful 12 years later just to see that I wasn’t silly for wanting to double major for music therapy. Although my goal is sooo far out of reach by now, I needed justification in knowing that music therapists really ARE out there and really do feel fulfilled the way I would have! I hope you are happily onto the next stage in your life and that the lives you touched fulfilled you the way your single comment fulfilled me-and I’m glad someone else likely got goosebumps for the same reason I did when this video touched me!
@carolg.6838
@carolg.6838 8 ай бұрын
Back around 1970 when my grandparents were in a nursing home, my sister, who could play by ear, would play songs that generation would know like Bye Bye Blackbird. Soon she would have many happy residents around her.
@chiaracorrado8172
@chiaracorrado8172 8 ай бұрын
I am a cellist who wants to become a music therapist... Helping people through music, is there something more beautiful?
@zionnoel
@zionnoel 8 ай бұрын
​@@xTriSarahTopzThere are a lot of programs that allow adults who work to do online classes to earn their degrees:) I don't know what your situation is, but I know it's never too late! :-) whatever you do, I hope that you are happy, and I hope you know that there is time. :)
@Mrs.LadeyBug
@Mrs.LadeyBug 4 ай бұрын
A six-year-old girl teaching us “Yes I do get mad when she pulls my hair, but I think about the happy things. You have to have bad days for the good days.” This episode has blessed me beyond anything I thought KZbin could possibly do for me today. I love these people and I pray huge blessings on them as they care for their children and hopefully many more foster children to come.
@RosaMaria-gj9gg
@RosaMaria-gj9gg Ай бұрын
@meaganbernard7592
@meaganbernard7592 6 ай бұрын
"we have to have bad days so we can have good days" wow! Milliana floored me with that statement. How does a 6 year old become this emotionally mature?
@lowespringacres7838
@lowespringacres7838 5 ай бұрын
Good parents who let her explore
@lindatohara6438
@lindatohara6438 5 ай бұрын
Compassion built into her because of her sister God knows what He is doing is all I can say.
@emmasmith9808
@emmasmith9808 5 ай бұрын
By having amazing, patient parents ;)
@CraigsOverijse
@CraigsOverijse 3 ай бұрын
she hears it from her parents
@lolicongang.4974
@lolicongang.4974 2 ай бұрын
Well that's false but sure.
@andyperez6105
@andyperez6105 8 ай бұрын
The way she stared into the guitar as he played was an amazing moment. No words spoken, just vibes.
@kerrynight3271
@kerrynight3271 8 ай бұрын
There is a young man with disabilities (mental age of four) who supports himself playing jazz piano. Someone has to lead him to the piano and help him get up there, but after that he is amazing. When Piper was looking at the guitar, I was wondering if they should hand it to her.
@andyperez6105
@andyperez6105 8 ай бұрын
@@kerrynight3271 I agree, i believe if they gave her an instrument she would teach herself to play eventually.
@TheoRae8289
@TheoRae8289 7 ай бұрын
@@kerrynight3271 luckily they make smaller guitars for children. One of my sisters has one a family friend gave her.
@sunnystormy4973
@sunnystormy4973 6 ай бұрын
-what are her- -" rare genetics " ?-
@sunnystormy4973
@sunnystormy4973 6 ай бұрын
-my kids have paws-
@scootermom1791
@scootermom1791 8 ай бұрын
She's definitely born with a natural talent for music. She not only perfectly keeps in time with the beat, but she also vocally changes keys along with the guitar. I'm glad her parents recognized this talent early and are using it in meaningful ways to connect with Piper. Her name, Piper, is totally fitting for someone who is musically inclined. Lol 😊
@blahblahblahEMILY
@blahblahblahEMILY 7 ай бұрын
seconding this!
@daniellewallace1996
@daniellewallace1996 7 ай бұрын
I didn't even realize that!!! God works in beautiful and often mysterious ways!!! He knows what He's doing before we ever do!!!
@scootermom1791
@scootermom1791 7 ай бұрын
@@daniellewallace1996 Right? I love this little girl. She's amazing! 🙂
@susanhannafin3793
@susanhannafin3793 6 ай бұрын
Beautiful child ❤❤❤❤❤
@susanhannafin3793
@susanhannafin3793 6 ай бұрын
Twinkle twinkle little star keep shining
@BeverlyM52
@BeverlyM52 8 ай бұрын
Chris, you speak EVERYONE's language. You are just a treasure.
@nancyayotte2297
@nancyayotte2297 8 ай бұрын
Chris is just as much an angel as the children and families he interviews. Truly gifts from God.
@cyh4031
@cyh4031 8 ай бұрын
I agree! My wife Carrie, her mom, and I were blessed to be interviewed by Chris for a Valentines show he did about 5 years ago. Such a real and loving person!
@karenfitzpatrick6256
@karenfitzpatrick6256 8 ай бұрын
So true!
@jodawgsup
@jodawgsup 8 ай бұрын
@@nancyayotte2297god? He is his own person, which any kind of God had little to do with
@John_Fisher
@John_Fisher 8 ай бұрын
@@jodawgsup I don't understand the question. I agree Chris is his own person, as well as a treasure and gift in as much as he cares to share his talent with us. Why would God want to have little to do with him?
@Sabbytizer
@Sabbytizer 6 ай бұрын
This little girl is the best sister in the world. Piper is so blessed to have such an amazing family. Bless this family.
@ihavenomorenameideas
@ihavenomorenameideas 5 ай бұрын
Can I just praise this guy for his incredible ability to connect with such a wide range of people?? It's so clear that there's no judgment on his part, and why so many people feel so comfortable with him. I love this channel and how each guest is treated with kindness
@amandastrickland3303
@amandastrickland3303 8 ай бұрын
Thank you Chris for sharing a glimpse of our family with the people on your channel, and for the time and energy you put into each video. We found encouragement early on in Piper's diagnosis by watching your interviews, and being on the opposite side of things was a great opportunity. You are a talented guitar player, and Piper enjoyed her time with to you! You were kind, patient, and flexible. Which is just what most people need. Thank you to our friends, family, teachers, church, and medical team who have played roles in our daily lives. For supporting and encouraging us on our worst days. Thank you to the online community who has commented or engaged with the video. Your kind words, prayers, and advice have been well received and shared along to our children. Time is a valuable thing that you can't get back, and it was a blessing to share our story with you all. We pray it encourages you on hard days, in hard places. Thank you to our Lord Jesus for giving us a hope and a future. The Lord has been our firm foundation through the storms. We wouldn't be able to do an ounce of what we do without Him leading and guiding us every step of the way.
@amandastrickland3303
@amandastrickland3303 8 ай бұрын
The humming she did in the first 10 seconds was the "are you sleeping, are you sleeping, brother John?" Nursery ryhme. She uses that song when she is tired or wants to know if others are awake in the house. Right before Chris showed up, Piper was napping. So in hindsight it makes sense that she was humming that song. She was still waking up from her nap.
@joanmidgette6511
@joanmidgette6511 8 ай бұрын
Wondering if she has ever made music herself, on a toy piano, xylophone, etc.? 💕
@kareenodum1734
@kareenodum1734 8 ай бұрын
I have a rear genetic disorder DAUGHTER too and she doesn’t walk, but I noticed that you had a swing what kind of swing is it?
@kathym201
@kathym201 8 ай бұрын
@amandastrickland3303, you and your husband are such beautiful souls! From the moment you started to speak, I knew you loved Jesus. You radiate his character….you are what I like to refer to as “Jesus with skin on”. Thank you for doing life in such a way that you leave light and love with those you come into contact with!! Ya’ll are now in my prayers.
@zuglymonster
@zuglymonster 8 ай бұрын
You guys are such a beautiful family and oh so loving. I'm going through some issues with my beliefs but seeing people who truly do show the true love of Jesus and being kind loving people, makes helps to remind me that those who call themselves Christians but don't show love aren't truly what its supposed to be. Thank you for being an example of true love. You'll not know how much it means while I go through this faith crisis
@Sunsetsnail99
@Sunsetsnail99 8 ай бұрын
I can’t express enough how blown away I am with Miliana. The patience and compassion she has at her age I almost can’t wrap my head around. What a special person she is and she’s really made my day. Wow. That’s some amazing parenting too.
@cheowweikoay2601
@cheowweikoay2601 6 ай бұрын
Hope she get the attention as young kid as she deserved..though it's challenging.
@wheelie26
@wheelie26 8 ай бұрын
The look she gave to Chris was just adorable, she kept eye contact for so long. Great communication. She has amazing rhythm and knows her songs brilliantly. A real talent!
@letitiakearney2423
@letitiakearney2423 7 ай бұрын
@EFab1yes she never missed a beat. I wonder if she could hold a tambourine as it would be perfect for her as she can lift her hands so she could hit on it.
@YochevedDesigns
@YochevedDesigns 7 ай бұрын
Piper has better rhythm than I do!
@alicialacombe1083
@alicialacombe1083 7 ай бұрын
He's such an awesome guy! I love his energy with the kids he meets. He's such a loving guy. Definitely a special person.
@Miskate444
@Miskate444 7 ай бұрын
As a teacher of First Grade for 12 years, and Second Grade for 3 (and as a parent), I can say this: Not a lot of children understand a beat, nor can they keep it! This is super impressive! What an interesting mind!
@McCarthy0000
@McCarthy0000 4 ай бұрын
She probably has autism as well
@TheTinker6871
@TheTinker6871 2 ай бұрын
That's what I noticed
@leninhadeandrade4173
@leninhadeandrade4173 7 күн бұрын
Ele é incrível 😊❤❤❤
@wendyhankins4873
@wendyhankins4873 7 ай бұрын
To watch this child connect with you was amazing i saw it several times in this video. You can just see it in her eyes, lights up her face. You are a remarkable young man. Just when i start to lose my faith in humanity, I see one of your videos and am reminded that there are still good people out there. thank you for how much you do for others, thank you for your ability to really connect with others, and thank you so much for just being you
@cynthiathurston8
@cynthiathurston8 8 ай бұрын
I bet that little girl would do really well with some instruments. The Happiness I see in her eyes is what this world needs. Pure joy.
@ВераВасильева-р6с
@ВераВасильева-р6с 7 ай бұрын
Ты говоришь глупости. Это счастье?!
@cynthiathurston8
@cynthiathurston8 7 ай бұрын
@@ВераВасильева-р6с ?
@tonitushinski7635
@tonitushinski7635 7 ай бұрын
Has piper ever had tambourines to use with the music? Or morraccas? I bet she would do well and love them! ❤
@mymayapapaya
@mymayapapaya 7 ай бұрын
I bet she has some 😊
@tomorrowseve9642
@tomorrowseve9642 7 ай бұрын
@@ВераВасильева-р6сyes, this *is* happiness, you can tell by her face when she’s listening to the music
@halmeyer852
@halmeyer852 8 ай бұрын
As both a music teacher and special education teacher, I think this kiddo is absolutely brilliant!
@СимаВагина-э7э
@СимаВагина-э7э 7 ай бұрын
Да в этом ребёнке сидит огромная музыкальная энергия, которая рвётся наружу и никак вырваться не может. Как жаль, что хлопки рук это пока единственный инструмент.
@donnaholland1061
@donnaholland1061 7 ай бұрын
She hums in tune!
@kathya8760
@kathya8760 8 ай бұрын
Once I understood Pipers music connection I understood how connected and intelligent she is. “Never judge a book by its cover.” Millania is a wonderful, helpful sister. Good job Mom and Dad!!
@ihatemickiegee
@ihatemickiegee 7 ай бұрын
that sister is soooo sweet. rubbing her back and looking at her while she says what she wants for her. i mean oh my god she made me cry. the part about swimming 🥲
@emhoj97
@emhoj97 6 ай бұрын
Using music for communication is a very valuable method! I find myself as an autistic person bursting into songs that fit my mood or current actions and finding the perfect lyrics for a situation is very rewarding and reassuring. I'm glad Piper has found her way of communicating through music
@CJ77.8
@CJ77.8 8 ай бұрын
"We have to have the bad days for the good days" What a wise, kind, and empathic kid. The way Piper carefully watches Chris play is so amazing to see. This family is so lovely, a younger sister with an old soul and an older sister with a musical soul. Both such wonderful little girls.
@katelyn3997
@katelyn3997 8 ай бұрын
This takes me back 40yrs to when my daughter was just like this. She was non verbal but music would get her attention every time. When I wanted to talk to her I would sing it otherwise she would pay no attention. Now she can speak & interacts with people, but music is still important to her.
@LunaticThomas
@LunaticThomas 7 ай бұрын
@JamiePoynor
@JamiePoynor 7 ай бұрын
Good try she's the only one with this!! Just couldn't resist making it about you! So sad
@katelyn3997
@katelyn3997 7 ай бұрын
@@JamiePoynor if you read my comment I never said my daughter had the same condition, just that she was non verbal & only responded to music. My daughter has a rare genetic condition called Tuberous Sclerosis (intellectual disability, epilepsy, brain tumours, renal tumours etc etc). My daughter is now 42yrs old. I just thought the parents might like to know of another person similar to their daughter who can now speak & interact with people.
@katelyn3997
@katelyn3997 7 ай бұрын
@@JamiePoynor I never said my daughter had the same condition just that she was non verbal & only responded to music. She has a different rare genetic condition called Tuberous Sclerosis (intellectual disability, epilepsy, brain, kidney & lung tumours etc etc). Watching Piper interact with her family & Chris brought back so many memories of my daughter at that age. I commented because I thought Piper’s parents might like hearing that my daughter was very similar to Piper at that age but she can now speak & interacts with her friends at the art program she attends.
@ihatemickiegee
@ihatemickiegee 7 ай бұрын
@@JamiePoynorjesus christ all they said was their daughter was nonverbal they never said the condition in the original comment. and if you didnt notice the channel is for families with disabled kids, so actually their comment was in the perfect place. they responded with more kindness than they could’ve given jsyk. enjoy your day
@AK27inAZ
@AK27inAZ 8 ай бұрын
It was so touching when Piper was humming "If You're Happy and You Know It" when her sister was sitting next to her. Such a tender yet clear expression of love. It brought me to tears.
@charo2972
@charo2972 7 ай бұрын
I'm watching the part where the Piper ans the dad are taping in tempo, and I really appreciated what that small calming gesture meant in that instance. It made me realize that sometimes, to be there for someone is just to be besides them, in sync with them and what they are feeling. No words are needed. Just being in sync with one another. And considering that a lot of parents, especially fathers, have difficulty doing that with their kids, It really moved me. Piper has obviously good caring parents and a great sister. They are all lucky to have each other. - just finished the whole video... Parents, you make me see thet there are good, loving people out there. Thank you for reminding me of that.
@DeborahBlaylock-er3fl
@DeborahBlaylock-er3fl 7 ай бұрын
Wow, what amazing parents they have. You can tell it by the way her sister talks so kindly about her. Even in the bad moments.
@phyllismandelbaum5550
@phyllismandelbaum5550 8 ай бұрын
Milliana is so grown up and verbal when it comes to Piper! What a sweetie!! Piper's humming is definitely communicative and as a special educator of infants and toddlers , music and singing is a big part of the learning process. You see the light in Piper despite her disabilities. You see the joy in the family too, and the fact that they foster special needs children is a blessing that that was given to them because of Piper. She definitely has a purpose in the world!! Life for her has its difficulties, but she is pursuing it despite them. Keep humming sweet girl!!
@simonebittencourt8251
@simonebittencourt8251 8 ай бұрын
Extraordinary parents and human beings. Empathy at its finest. Thank you for the legacy you are leaving in all these precious lives you so care about.
@SUPERSPAZD
@SUPERSPAZD 8 ай бұрын
I love your comment, and I sooooo agree!!!!!🩷
@estherbayer7164
@estherbayer7164 8 ай бұрын
I agree, they are some amazing people
@seatherny_y
@seatherny_y 8 ай бұрын
She listens so tentatively to the music and you can really tell she understand the rhythms and tries to copy as well which is great :) I’ve noticed people with disabilities tend to have a deeper appreciation for music. When I was younger and nonverbal I used music to help myself
@FridaNancy
@FridaNancy 7 ай бұрын
This is my favorite KZbin channel. There’s something about spending time to see people who may often feel unseen, taking the time to understand those who are often not understood, and sharing in the positivity and empathy that soothes my spirit. Thank Chris and his many amazing video participants for this.
@xtrobelights
@xtrobelights 7 ай бұрын
Words escape me to describe the beautiful experience this video captures. Breathtaking... You can see through her facial expressions and eyes....everything within her lights up, makes sense, and falls into place....once the music starts. The way she claps her hands to the beat....between claps she seems to feel the tempo, the way she "scrunches and scrubs" her hands between claps. That's her "feeling" the beat. One of the best videos, and best experiences I've ever had on youtube. Thank you to everyone who made this video and experience possible.
@rilianelucifen876
@rilianelucifen876 8 ай бұрын
I really appreciate whenever your interviewees talk openly about hitting/hair pulling/other physical violence. It's an aspect of certain disabilities that's treated as pretty taboo, so I think it's valuable to discuss it on such a large platform.
@visionvixxen
@visionvixxen 8 ай бұрын
What did they say her condition was ?
@Marine616
@Marine616 7 ай бұрын
​@@visionvixxen it's a genetic condition, her mom explains It in the vid
@lornocford6482
@lornocford6482 7 ай бұрын
​@@visionvixxen@11:18
@elsie412ok
@elsie412ok 7 ай бұрын
I’m glad KZbin allows comments again on this channel, it is the most powerful, positive and uplifting channel and community on KZbin.
@shannonburrell1424
@shannonburrell1424 Ай бұрын
This is just amazing..music can speak to each emotion and those of us that connect with a song or a melody, that can be our language for sadness, love, grief, happiness, contentment, contempt...I don't see why music can't be her language when the human race uses ask the time. ❤❤❤
@jgr_lilli_
@jgr_lilli_ 8 ай бұрын
You can really see that brain working in her face when she locks into the beat. How lucky she is that she has this way of communicating with her family.
@laurenk1766
@laurenk1766 7 ай бұрын
This is so cool. I work at a medical daycare, and several of the kids (especially the babies) really respond to singing. I love to sing, so it’s fun for me. I’ve also learned which kids enjoy songs with gestures more (like the Itsy Bitsy Spider). Some of the kids have autism, some have neurological disorders, some have genetic disorders. It’s great to see how different kids respond.
@time2see192
@time2see192 7 ай бұрын
Get that baby some drum sticks and a little kit! She could be a virtuoso! She's really keeps the rhythm, and she is so intently staring at that guitar... she just loves it!!! She wants to PLAY! Not just listen! She's just amazing! ❤
@fynntasticmovienight
@fynntasticmovienight 8 ай бұрын
Piper has fantasitic rhythm! And i really love the creative "family portrait" they have for all the foster kids that come into their lives
@amphibeingmcshpongletron5026
@amphibeingmcshpongletron5026 8 ай бұрын
I was genuinely impressed by her rhythm!
@YEAREAPIRATE
@YEAREAPIRATE 7 ай бұрын
What an amazing family. God bless these folk for making all those kids' lives happier and filled with love.
@lyndacrawford521
@lyndacrawford521 8 ай бұрын
It’s so cute how she scrubs her hands together between claps when Chris plays. What a beautiful child!
@porcelainboy264
@porcelainboy264 3 ай бұрын
A lot of autistic kids wring their hands together like that to express excitement or not. Not diagnosing this kid, but it's interesting to see
@willow_jayde
@willow_jayde 8 ай бұрын
I promise Chris speaks to everyone's consciousness! I've never seen him not able to connect with a kiddo-and their parents/care givers. What a blessed talent ❤
@kellyelliot7159
@kellyelliot7159 5 ай бұрын
The talent she has for keeping a beat is actually quite extraordinary. Bless this amazing family and this channel for bringing this to us ❤
@soulstorm8806
@soulstorm8806 6 ай бұрын
She’s a thinker!!! May God bless her (and family) exceedingly abundantly beyond all she sees or imagines. This channel is extremely important.
@anonymouslabera
@anonymouslabera 8 ай бұрын
What a creative and fun way to connect with her. 💜 Ya gotta love when Chris breaks out the guitar 🎸
@lovingmayberry307
@lovingmayberry307 8 ай бұрын
Great parenting. You can tell by how patient and empathetic Milliana is. I wonder if Piper has a keyboard, she could make her own music. I appreciate that this family fosters. We need more wonderful parents like these two! 💕💞
@christinanewcomb1718
@christinanewcomb1718 8 ай бұрын
And could she use notes to make language. Similar to sign language but tonal
@karlar534
@karlar534 8 ай бұрын
This one made me cry. Hearing about the kids in the hospital with no one visiting, OMG I wanna hold all them 😢
@orandilu989
@orandilu989 8 ай бұрын
Let this comment be your beginning! Find ways to volunteer to enrich the lives of others as well as yourself!
@EncompassingChaos6
@EncompassingChaos6 7 ай бұрын
Children's hospitals need volunteers to just hang out and play with the children who are being treated.
@Gohad158.
@Gohad158. 7 ай бұрын
Me too! I actually got this immediate sadness in my heart
@katveebee4642
@katveebee4642 Ай бұрын
As a pediatrician, I appreciate your ability to connect with people (of all ages, sizes, sizes, sizes, abilities) on lots of levels
@OREGONhasbeeninfiltratedFKCPS
@OREGONhasbeeninfiltratedFKCPS 7 ай бұрын
Piper , I was having a very dark day where I didn't want to keep going- you made me smile the entire video. Thank you .
@chaerflrt
@chaerflrt 8 ай бұрын
what a smart girl- one of the most unique ways i’ve seen people communicate in a while. it’s truly beautiful. what a great supportive family to help her as well!
@Boyhead1973
@Boyhead1973 8 ай бұрын
These parents are -- wow. :) and her sister is so attentive!! Great job Mom and Dad..
@thatweirdbwah_
@thatweirdbwah_ 8 ай бұрын
chris is probably the most pure person ive seen, like actually
@jennifers.3818
@jennifers.3818 7 ай бұрын
Its amazing to see Piper so quickly and easily keep exact rhythm with whatever Chris plays! She definitely has a special skill in hearing and learning music. To see her giggle and clap so fast with him playing brought such a big smile to me ❤
@peganjean2690
@peganjean2690 5 ай бұрын
That is an amazing father. The amount of frustration this could bring to anyone, but he’s found ways to work with her. The clapping down to a lower tempo was so amazing to me
@lislenz670
@lislenz670 8 ай бұрын
What a proud Daddy, he can’t stop looking at her with so much love… bless xo
@hdfemale
@hdfemale 8 ай бұрын
Just a quick story: I worked at Children's Hospital for many years, and we had a child who was a "frequent flyer", (a child who had been a patient on our unit many times) He had a deficit disorder, and was mentally deficient, but he communicated with everyone through music! His favorite song was "Jeremiah was a Bullfrog", and no matter what his mood was, as soon as he heard that song, he would stop what he was doing and immediately start clapping in time and humming with the music. I always felt like that just seemed to be a special song for a lot of special needs children. Kind of a nice memory for me. thank you for sharing yourself with these children and their families, and then sharing your videos with us! Much love... 👍🥰
@eileenfrank3686
@eileenfrank3686 7 ай бұрын
I cannot imagine the amount of love and care needed for a child with such genetic disorders, but compounded with the desire and responsibility to give her sister everything she needs and deserves and maintain a functioning family unit seems almost impossible. My only child is a healthy 41-year-old man with a family of his own; I never take that good grace for granted. I hold a special place in my heart with love and respect for all of you.
@sarahalbers5555
@sarahalbers5555 7 ай бұрын
Such a lovely comment ❤
@StonedtotheBones13
@StonedtotheBones13 3 ай бұрын
Not to mention opening their hearts and home to several other kids who might have some medical issues
@Noman1981
@Noman1981 3 ай бұрын
SBSK has been such a joy in my life. The work yall do, the people I get to learn about helps me keep on keeping on.
@cindyknox4226
@cindyknox4226 4 ай бұрын
Wow! What a special little girl. Just loved how she was watching your hands as you played. Then all at once she moved her eyes to you. If that sweet girl could she would be a musical miracle.
@deanawells4395
@deanawells4395 8 ай бұрын
She absolutely is engrossed and emotionally invested in music 🎉
@thenerrdpit7441
@thenerrdpit7441 8 ай бұрын
if your videos have taught me ANYTHING over the years is to NEVER, EVER underestimate someone's ability and longing for connection. i'm serious. i'll be forever grateful for that lesson. and i'm eager to continue learning.
@zuglymonster
@zuglymonster 8 ай бұрын
Same. I'm ashamed to admit it but I used to wonder "how do children who can speak communicate aren't they so sad" I never thought badly of them but thought they must be sad. Chris has shown me that there's so many ways to communicate and that they're anything but sad or "trapped" like the media will make you think. Its changing now but I grew up when autistic children who couldn't speak were described as "trapped in their own world" thankfully through both KZbin and meeting non verbal autistic children (my best friend from childhood has a non verbal son) I've learned that is not true at all.
@lorrainestinnett4145
@lorrainestinnett4145 8 ай бұрын
Look how she smiles when Chris kept saying Hey. It was touching
@lindab7384
@lindab7384 6 ай бұрын
Love Piper's grin when you were playing the guitar, so adorable. Music is definitely her language.....keeps a great beat and hum! She could not have asked for better parents and sister. ❤ Wishing this family happy days !
@lindickison3055
@lindickison3055 7 ай бұрын
Cognition and timing are right on!! Has a better attention span than many her age - and knows what she wants. Music is her connection to the world.😊
@kassandra-annedemers
@kassandra-annedemers 8 ай бұрын
I’m a music educator and I think it’s brilliant the way Piper uses music to communicate! There are neurotypicals that can’t keep a beat in a natural way and she just does it flawlessly! Keep beating to your own drum Piper!
@FrancieMoon9
@FrancieMoon9 8 ай бұрын
This is making me cry. What amazing parents. And Mr. Chris is just one of the greatest people in the world!
@olivedog1880
@olivedog1880 8 ай бұрын
She literally doesn’t miss a beat. What a beautiful kid❤
@oliviaswarden6077
@oliviaswarden6077 7 ай бұрын
She's adorable! Ty you're able to connect with her through music! She maybe highly intelligent but unfortunately not able to communicate, the only way she can. She cannot help herself. But she has a loving family. I love her name!
@Angisworld
@Angisworld 7 ай бұрын
I’m in love with her 🩵🩷💙. The way she moves her little fingers & hands… it’s like she is one with the music-like she knows it on a level the rest of the world can’t. She’s amazing & beautiful. She’s like a little piece of heaven. To even get to spend one minute in her world is a blessing & a gift. God sent her to the perfect parents for her. Thank you for sharing your baby girl with us.
@marymcneill2755
@marymcneill2755 8 ай бұрын
can we just appreciate the love of these parents? the way the mom looks so prideful of her every movement, the way dad knows every inch of her soul & how to calm it , what a lucky little girl, what lucky parents too to have this kind of bond ❤️😊
@VeronicaSchneider305
@VeronicaSchneider305 8 ай бұрын
By far, the COOLEST episode on this channel! Thank you to her amazing family for sharing Piper with us!! The little sister is an absolute star too! 🎉
@khaliah7754
@khaliah7754 8 ай бұрын
The look Piper gives when she gets revved up by the music gives me life
@alester3756
@alester3756 4 ай бұрын
Little bumble bee. Music is absolutely a universal language and healer. My nephew was non verbal for years and went to music therapy and started speaking perfectly a year later.
@alester3756
@alester3756 4 ай бұрын
And she has amazing rhythm
@daphnetosum4998
@daphnetosum4998 6 ай бұрын
I watch almost all the interviews in this channel but this was definitely the most incredible one. She is a beautiful soul, beautiful girl. Her reaction to music is so heartwarming. I am praying for her and her family’s well being. Such a beautiful soul.
@KittleKattle22
@KittleKattle22 8 ай бұрын
They named this kiddo correctly, alright! I love how intense Piper's expressions get and how much her eyes light up when the music is played; you can just almost see her brain firing off all the signals. I also thought the example of lowering her heartbeat by having her clap at a slowing tempo was brilliant. It is quite clear that she's in the right family.
@KingElfin
@KingElfin 8 ай бұрын
The way she lit up when you were playing was magical !
@mitskiluvr420
@mitskiluvr420 8 ай бұрын
what a beautiful name for a child who communicates with music
@keyromi
@keyromi 7 ай бұрын
This just made my whole night I had the crappiest day, but truly I can’t stop smiling looking at this family omg 🖤 she’s got more rhythm than most grown adults 😭
@t-alimichael3363
@t-alimichael3363 5 ай бұрын
Chris doing Gods work and capture my interests. Been on this channel for a few hours. With a Physiology exam coming up. Addicting with emotions, love, life and compassion. Wow!
@fgkfriz
@fgkfriz 8 ай бұрын
Just thinking at how her brain is wired differently and able to capture rythm we might not even notice. Lovely family everyone. Thanks for fostering. Thanks to Piper. Greetings from Italy
@Rominuchi
@Rominuchi 8 ай бұрын
This is a very powerful message to everybody. Just because she isn't doing it your way doesn't mean she cannot do it and keep on developing her communication. Thank you to the whole family, Chris & his wife. ❤
@VraiHumain-ms4rz
@VraiHumain-ms4rz 8 ай бұрын
the dad is SO SWEET!!!!!!!!!!!!!!!!!!!!!! If more fathers were like him th e world would be a different place
@nadlerskid
@nadlerskid 8 ай бұрын
A different place and definitely a much better place!
@erikaxchristine
@erikaxchristine 7 ай бұрын
Yes ❤
@midgiecabello6284
@midgiecabello6284 5 ай бұрын
She's so sweet. Loved it when he played the guitar and the faster he played she'd get that smile 👩🏼 that lights her up and everyone else in the room! You guys are phenomenal parents and so happy for fostering the "lost kids"and making their lives better just for knowing you all!! And God bless 🙏🏼 to her "little big sister" for having such a loving heart 👼🏼
@HaDatWicht
@HaDatWicht 6 ай бұрын
It melts my heart to see Piper enjoy the music. I am in awe of how loving these parents are, and creatively and competently adapt to Piper's needs. And even reach out to foster kids with special needs. And I love Pipers little sister, she seems a very special girl ❤
@melanieharris9221
@melanieharris9221 8 ай бұрын
Piper’s precious & Millianna is such a loving, giving baby sister. She’s adorable! She needs a ukulele to play for her sis. The family is such a blessing.
@lisalynnmarie2448
@lisalynnmarie2448 8 ай бұрын
Music is the universal language of love, for sure! What a beautiful child, and I'm memorized by her hand movements when Chris plays the guitar! She certainly knows how to keep the beat going lol She's such a sweetheart 🥰
@ziizification
@ziizification 8 ай бұрын
While I'm low support needs compared to someone like Piper, I connect deeply to her love of music and how it helps her self regulate. Music is absolutely magic. ❤
@bammi4
@bammi4 2 ай бұрын
God Bless this precious family! Can you all imagine the amount of love they have for her which is shown through the immense amount of patience and understanding? Chris, you are such a wonderful man to befriend all these beautiful souls you touch! ❤❤❤
@sparklegazer319
@sparklegazer319 6 ай бұрын
It's remarkable truly. The patience it takes to not only care for your own with a disability but to make a conscious decision to foster others with disabilities is extraordinary. I know i couldn't do it, so it's beautiful that there are families out there that can handle it and willing to take on those kinds of challenges because i cannot see it being an easy responsibility to take on but more power to any and all that do.
@angeladomer4813
@angeladomer4813 8 ай бұрын
She really loved that guitar. What a sweetie.
@chloemcneil2453
@chloemcneil2453 8 ай бұрын
This one is very special. You used her language to reach her and it is an absolutely beautiful thing to see thank you so much.
@1pootle
@1pootle 8 ай бұрын
What an inspirational family. The story of how this loving couple came to foster other children with disabilities was incredibly moving. Blessings to them all. Piper & Miliana.. beautiful precious children. 🙏💜🤗🌷🌈✨🌻🏵️🎶🎵🎶🎵
@samalsrei5089
@samalsrei5089 8 ай бұрын
Please don‘t give blessings to people who didn‘t ask for it. And please don‘t call disabled people inspiring just for their existence. I‘m very sure your intentions are very positive. I just wanted to let you know how many disabled people feel (I certainly cannot speak for all of course). Thank you.
@justagirlthatlovesjesus6030
@justagirlthatlovesjesus6030 8 ай бұрын
​@@samalsrei5089shuttt uppp😑🙄🙄🙄
@clairestjacques
@clairestjacques 8 ай бұрын
@@samalsrei5089 Thanks for giving us more insight. Respectfully yours.
@MishaSkripach
@MishaSkripach 8 ай бұрын
@@samalsrei5089 You need to learn to be more grateful for any kind actions by any other persons, even if it is not exactly what you "ordered", life is not a restaurant and the others have every right to ignore you as something irrelevant to their happiness. Take the blessings and be grateful!
@Ivy-mu8jr
@Ivy-mu8jr 6 ай бұрын
13:31 ”because I’m happy for her” my heart melted
@Luigifan4ever11
@Luigifan4ever11 Ай бұрын
What a lovely child. I'm glad Piper's happy and has a family that loves and respects her, and has learnt to communicate how she enjoys communicating. A moment that sticks with me is when she's sitting on the couch humming "If You're Happy And You Know it", and she grabs her sister's hand, and claps her hand against hers - I get the impression it's her being happy and wanting to include her sister in on the happiness.
@lowrodrigo47
@lowrodrigo47 8 ай бұрын
Piper's sister is so attentive❤ beautiful family God bless them and you Chris always
@lowrodrigo47
@lowrodrigo47 8 ай бұрын
The way she caresses her hair with kind hands. I am weeping ❤
@Sunsetsnail99
@Sunsetsnail99 8 ай бұрын
I know I cried watching them together too
@melq9437
@melq9437 8 ай бұрын
Wow, what a fascinating child Piper is. Her connection with music is so incredible. Her sister Milliana is the cutest little girl ever, the way she communicates and her sweetness. And wonderful, loving, devoted parents who even foster more kids! I really appreciated this video.
@rutpacanowski8212
@rutpacanowski8212 8 ай бұрын
Wonderful parents,the sweetest little sister, and Chris, what a connection! ❤
@keelopugdog1
@keelopugdog1 7 ай бұрын
Piper is amazing!! She keeps rhythm so well! The way her dad calms her was so amazing to watch and her engagement with Chris and his guitar! She was mesmerized!
@rosemarykirby7489
@rosemarykirby7489 5 ай бұрын
Beautiful story of a lovely family. Surrounded by an extraordinary love. Bless them all!
@AxlezBubby
@AxlezBubby 8 ай бұрын
I could have watched hours of just Chris and Piper playing music!!!! ABSOLUTELY BEAUTIFUL!!!❤❤❤❤😊😊
@Carrie-k4s
@Carrie-k4s 8 ай бұрын
You always find unique ways to connect with everyone in their own language. Bless you for being a true friend to all.
@remedy9648
@remedy9648 7 ай бұрын
Can I just say that Millianna is such a sweet and loving little girl. Her compassion and understanding supersedes her age by miles. God bless this mom and dad too. I just spoke to my son about fostering today and he doesn’t really think it’s a great idea because I’m disabled, but then this video comes on. What an inspiration. How unbelievably caring and loving and giving this couple is. Piper is a beautiful child and she’s so lucky that she has a family that loves her so much. May God keep you all in his hand.
@alejandracarabante3642
@alejandracarabante3642 7 ай бұрын
Es hermoso ver cómo el amor de esta familia contiene a esta niña y como ella se conecta con la música!!!! Impresionante. Es feliz a pesar de su limitaciones. Y su familia disfruta ver cómo se comunca ❤ saludos desde San Juan Argentina
@heathers4768
@heathers4768 7 ай бұрын
I loved getting to know this beautiful family from this video. What a wonderful story. Inspirational. ❤
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