There is research on this! I'm a psychologist, and this idea is called "lost possible selves." Laura King has some great work on this that you should check out.
@Adharaaa4 жыл бұрын
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@JoyPhilpp444 жыл бұрын
+
@musgodness4 жыл бұрын
++ hehehe
@sarahprunierlaw91474 жыл бұрын
Love your contribution! Thanks.
@emilysha4184 жыл бұрын
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@stephpaoli76374 жыл бұрын
My go-to quote for this feeling is from Lemony Snicket, "It is like walking up the stairs to your bedroom in the dark, and thinking there is one more stair than there is. Your foot falls down, through the air, and there is a sickly moment of dark surprise as you try and readjust the way you thought of things."
@aimeeg4764 жыл бұрын
YES I love this thank you
@neha167024 жыл бұрын
this is so incredibly perfect
@Mad.E4 жыл бұрын
Lemony Snicket is an endless source for beautiful, heart-wrenching truths
@rosetigerlion4 жыл бұрын
+
@oskare52894 жыл бұрын
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@oscarhalse2026 Жыл бұрын
I am fully aware that this video was made 3 years ago and has nothing to do with Hank's cancer, but my mind keept pretending that this is the second video after the reveal, and it hurts in an uncanny way.
@rileiv4 жыл бұрын
Let’s call it the “Ohshitness”
@vlogbrothers4 жыл бұрын
CAN I GET A OHSHITNESSSS
@oiroliv4 жыл бұрын
@@vlogbrothers OHSHITNESSSS
@Azzarinne4 жыл бұрын
@@vlogbrothers OHSHITNESSSSSS!
@mariacharlesworth65934 жыл бұрын
@@vlogbrothers OHSHITNESSSS!!!
@ariannawright75864 жыл бұрын
@@vlogbrothers OHSHITNESSSS
@laurapierson96704 жыл бұрын
I went through this hardcore during the lingering end of a relationship I'd thought was going to be a cornerstone for the rest of my life. Grieving a future I never got to experience is one of the worst kinds of grief I've ever experienced.
@Azzarinne4 жыл бұрын
I know that feel. I had 2 engagements fall apart before I started dating my now-husband. That dark, empty feeling is THE WORST! 🖤
@madelynnaustin82234 жыл бұрын
Well said.
@ThinkingPower04 жыл бұрын
Far more poetic and true than I could ever put into words.
@ThinkingPower04 жыл бұрын
@Micah Thibault Mine ended September 2018, and I still feel lost sometimes. I hope it gets better for you too
@IceMetalPunk4 жыл бұрын
I find this too relatable. My last relationship was... rocky, to say the least. But I had convinced myself that she was The One™ that I'd have a future with. Everything fell apart hard long before we got that future, and it took me far longer than I'm proud to admit to get over her/it. It was only once the wuthering had passed that I realized the future I imagined would never have been real anyway. Definitely sucked for a very long time. When we were together, we used to call those plans "future memories": fantasies of things that we were so sure would happen, they might as well be memories. They turned out to be false memories after all.
@doddleoddle4 жыл бұрын
I really really loved this video
@hissingfaunaa4 жыл бұрын
i love it too
@EarthSwinging4 жыл бұрын
"Everything is survivable. Except for the last thing." --John Green
@in.other.words_4 жыл бұрын
Which book?
@EarthSwinging4 жыл бұрын
@@in.other.words_ Paper Towns
@galexandra9404 жыл бұрын
"I didn't want the new reality to be real" I don't know the word you're looking for. But I do know as a nurse we often describe the aftermath as 'grieving for the reality you thought you'd have before you can accept your new reality'. It's like any other type of grief. Most often we talk about it in terms of parents struggling to accept their disabled child... Parents have to grieve the loss of the child they thought they would have before they can accept the child they have. (Not to say these parents don't love their disabled children to the end of the earth.... But they have to grieve for being unable to do certain things, like teach their child to ride a bike, or go to college, or whatever the parents specific ideas of parenting were prior) Edit* I'm not trying to say the word Hank is looking for is grief. I'm simply adding to his ideas. ❤️
@RainaRamsay4 жыл бұрын
I've been through these shifts before, and I concur strongly with the statement that you have to grieve. That's definitely part of (a big and important part of) the process.
@davidball83704 жыл бұрын
Yes, I would agree the feeling is grief but I think what Hank is trying to describe is the feeling you have when you realise that bottom dropping out of your world, feel like your falling moment when it doesn't feel real. Maybe it's shock as well? I'm not sure withering really covers it but you're right it's grief that he's describing when he's coming to terms with it.
@RainaRamsay4 жыл бұрын
@David Ball yeah I don't think grief is part of what Hank's describing, I think it's the --- solution? treatment? -- to what Hank's describing. Like the big nothingness inside you is the problem, and you won't be able to get past it until you acknowledge that gaping hole and grieve what used to be there.
@EmmaArbogast4 жыл бұрын
I think the distinction here is how many unknowns there are and how you have to adjust to a new reality that is suddenly different but not yet in a way where you know what it will be. Grief will certainly come and be a part of processing that, but that bewildering disconnect between expected reality and new reality is a little different than just grief.
@itisdevonly4 жыл бұрын
Yeah, that is exactly what I experienced when my son was diagnosed with a rare genetic disorder. I was in denial for a time, but you can only stay in denial so long when the problems set in. My life as a parent will never look like what I once thought it would.
@yeet-ys5ig Жыл бұрын
I've always used "unmoored" to describe this. it means "no longer tied in place" and "having no confidence or certainty for what you should do"
@Tundra-ec3ii4 жыл бұрын
It’s that tumblr post that’s like “the defining feeling of this millennium is just a omnipresent oh-no feeling that gets louder each year”
@spriddlez4 жыл бұрын
@@AA123TD Except millennials were taught to believe if they worked hard enough they would be able to have whatever they wanted. Turns out we mostly just wanted to be without pain and suffering.... which is not achievable on account of the whole 'being human' thing. I feel like my parents were never led to expect they could achieve a life without pain... so when it happens they are much better equipped to handle this 'oh no' feeling.
@birdsong54944 жыл бұрын
I am 50 and I was raised to believe hard work and smarts equaled success too. We lived with the threat of nuclear annihilation ever present. In high school, I saw the Challenger space shuttle explode live on TV. When I was 32 I watched 9/11 live on TV. We do not own a home or fancy cars- having spent all our $ on our 2 kids’ college educations. They are the millennials. I hate watching them go through the same cycle of hope and despair.
@Cyanopteryx4 жыл бұрын
@@birdsong5494 I just want to say thank you for this thoughtful response. I have encountered a lot of people your age who are not so patient and understanding, and instead dismiss the younger generations as weak or spoiled. But you are right, hope and despair is a natural cycle and we all will go through it. There are definitely differences in generational experiences, but the divisive caricatures of millennials and boomers prevents us from forming that compassionate understanding both ways that would help us all suffer a bit less. Thanks again.
@sherrieludwig5084 жыл бұрын
@@birdsong5494 I am 65. I thought we had worked hard, paid off all our debts, and would cruise into a nice uneventful retirement, like my parents. First, my husband of 44 years got sick, and myeloma is bad enough, the fear of losing the better half of my soul, but then the BILLS!!! Even with good insurance, we got eaten alive. Now he's in remission, now on Medicare (saves us over $10K a year), but now in a leaderless country, whose character I do not recognize, I feel just what Hank is describing.
@ToniHinton3 жыл бұрын
@@sherrieludwig508 My husband has myeloma, too, diagnosed over 5 years ago. Hank's video spoke so much to me, that feeling of having the future you imagined just vanish in front of you. It's only been very recently that the ground stopped moving under me. I haven't really recovered any resilience, but I've decided it's okay to just inch forward slowly until I feel more confident the ground won't drop away again. I hope you and your husband are doing well.
@bionicallychallenged72904 жыл бұрын
I think the actual term is called "Derailment." It's a sudden loss of self-concept, such that you need to recreate a self-concept that incorporates the new definitions that caused you to 'derail'.
@allninjaALLTHETIME4 жыл бұрын
Bionically Challenged I like this word and definition!!
@vikio4524 жыл бұрын
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@itisdevonly4 жыл бұрын
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@Margaretfogs4 жыл бұрын
Bionically Challenged I like this imagery because it makes me imagine that there are other tracks I didn’t know about that my train fell onto while derailing. New, scary at first, but still taking me somewhere
@bionicallychallenged72904 жыл бұрын
@@Margaretfogs That is a really healthy way of thinking about it. Identifying derailment when it occurs is a very important step for any kind of identity specific problem. A lot of the time, in therapeutic contexts, clinicians will try and get their clients to identify where their 'derailment' happened. After doing so, challenging their specific negative or unrealistic conceptions regarding the formation of their new identity. Effectively, hoping to challenge the negative and unhealthy thought processes one might have about the recent change in their life.
@Amazedchili3 жыл бұрын
I know that this is an old video, and it’s unlikely anyone will ever see this but this really reminded me of my own recovery from active addiction. Even how Hank refers to it “a disease”. Just after I crashed my car under the influence, I felt that sinking feeling that my life would have to change. And there were moments (before and after) where I thought “Maybe I’m not actually an addict!”. But I eventually came to terms with it, and found some stability. Idk why I had to share this but, there.
@uptown36362 жыл бұрын
Hey Michael. I know exactly what you're talking about. I experienced this feeling when I got sober, too. It's pretty amazing when that feeling fades completely, isn't it? Acceptance is better than denial is bad.
@emmahacker40202 жыл бұрын
So I haven't had your exact experience but I have experienced this with my chronic anxiety and I see you. :)
@HaShomeret2 жыл бұрын
I watched this video today and thought it was a new video until I read your comment haha
@Trailer__Swift2 жыл бұрын
I came here to comment the same thing.
@blessedveteran Жыл бұрын
Thank you for sharing this. You are NOT alone!
@alisaied49584 жыл бұрын
The part about "wuthering" touched me the most, I'm from Syria, and for the last 9 year my expectation of the future changed with almost every piece of news. Thank you for the vids, you always helped me with everything.
@wewemcrhyne4 жыл бұрын
Ali Saied I want you to know we care in the US. I’m really really sorry
@EldeGaming4 жыл бұрын
US here too, sending love
@emilysha4184 жыл бұрын
@doughauck574 жыл бұрын
Well, MY problems suddenly feel a lot smaller. Thoughts-and-prayers, brother.
@megsmeltzer-miller32304 жыл бұрын
Yes love from here too
@usedtomakemesmile4 жыл бұрын
I think somebody really smart once said “Imagining the future is a kind of nostalgia.”
@rachelgrubbs4 жыл бұрын
@AnexoRialto4 жыл бұрын
Nostalgia is imagining the future as the past that never really was.
@ilhan19362 жыл бұрын
Hey Hank. In Turkish we have a word that can be roughly translated as "disappointment" but it is actually closer to what you describe here. The word is "Hayal Kirikligi" which translates literally as "shattering of dreams". I think this word is somewhat similar to what you describe, it can be used to convey a momentary feeling or a longer state of being. This feeling is in between being disappointed and angry, more like suddenly losing ones positive expectations.
@ckaring-d2i2 жыл бұрын
how is this pronounced? (for an english speaker)
@ilhan19362 жыл бұрын
@@ckaring-d2i let me try to explain pronunciation here: "hayal kırıklığı" = ha-yhal qi-riq-ligh-e. That should give a similar sound, although it is difficult to describe phonetically over text, there is some sounds that dont really have a direct equivalent in English.
@DEFW21 Жыл бұрын
I love this thank you for sharing it
@njkml-ki2xq4 ай бұрын
Tell me about it...
@lilywang97244 жыл бұрын
3:30 This reminds me of the famous John Green quote "Imagining the future is a kind of nostalgia."
@NCKMCMLLN4 жыл бұрын
Lily Wang the famous sarah* green quote
@ivarhusa4 жыл бұрын
Some wag once wrote (sorry for the lack of attribution): "The future isn't what it used to be."
That there is the single most hopeful quote since the beginning of the covid-19 outbreak. Thank you.
@moonygoony4 жыл бұрын
Utah had an earthquake last week and has had a series of aftershocks throughout all of this. It's been said that we should expect it to continue over the next year. So this idea that we will rise when the earth stops shaking feels especially pertinent and poignant.
@kac15924 жыл бұрын
+
@kristhebrownie4 жыл бұрын
It's really just an amazing quote
@GodlessVoice4 жыл бұрын
Sometimes some of us get cornered into rising before the ground stops moving... and those times suck.
@gabrielaavila93654 жыл бұрын
“Paradigm Shift.” When I went through the diagnoses of my chronic illnesses, this is the best phrase I have to describe that feeling.
@courtneycanchari51614 жыл бұрын
I vote this one!
@spiritussancto4 жыл бұрын
Paradigm shifts can be very different though. It can mean anything that changes how you see the world, for good or ill. Like it applies, but doesn't specifically have to do with that sudden feeling of loss and uncertainty
@billdone21993 жыл бұрын
If labeling another person's experience is worth anything... Alright, here goes the leather chair psychology= That "feeling" was maybe a bunch of feelings driven by competing desires. 1. Pain, a lot of 'information' suddenly coming at you really quick 2. Struggling, maybe vascillating, between what new 'knowledge' you will have to accept. Denial always feels easier than acceptance. Problem is, your pain persists. 3. Maybe an existential crisis thrown in with middle age... some cognitive dissonance while trying to bargain your way out of the external locust. 4. Grappeling for acceptance and validation with others that you are going to make it through, and their and your expectations will change. 5. Maybe an entire Paradigm has to shift a few degrees. And as a plus you get to keep a sliver of sanity. later on down the road... you just fall back into living a life that is believably normal Cheers mate! I'm pull'n for ya. We're all in this together ;)
@rosslytle57002 жыл бұрын
@@spiritussancto Por que no los dos? The experience being described is a "Wuthering paradigm shift." All in favor say "eyes."
@hank28684 жыл бұрын
Reminds me of Robert Penn Warren: “After a great blow, or crisis, after the first shock and then after the nerves have stopped screaming and twitching, you settle down to the new condition of things and feel that all possibility of change has been used up. You adjust yourself, and are sure that the new equilibrium is for eternity. . . But if anything is certain it is that no story is ever over, for the story which we think is over is only a chapter in a story which will not be over, and it isn't the game that is over, it is just an inning, and that game has a lot more than nine innings. When the game stops it will be called on account of darkness. But it is a long day.”
@otnat20944 жыл бұрын
Wow, Robert Penn Warren liked to mix his metaphors didn't he? It's a beautiful quote, and he managed to mix like three different comparisons in there - first he compares it to chapters in a story, then he compares it to a baseball game, then he compares it to the length of a dark day all within a couple of sentences.
@deanc94534 жыл бұрын
+
@thatjillgirl4 жыл бұрын
Can't beat Robert Penn Warren for poignancy. When I read All the King's Men, I frequently found myself wanting to save quotes from it, but I quickly gave up when I realized I was pretty much going to be quoting the entire book.
@chashahjohnson4 жыл бұрын
+
@mechtheist4 жыл бұрын
@@thatjillgirl When I read it, I got about halfway into the first page and this feeling came over me, almost like I felt the presence of god, I can't really describe it, there was magic on those pages and I felt privileged to get a glimpse. I only felt something similar one other time--reading the first sentence of Gibson's Neuromancer.
@Isa.isa.isa.4 жыл бұрын
Thank you for sharing 💜 “The story you’ve been quietly silently telling yourself about what the future is going to be like, that story just falls apart. It’s not there anymore. It doesn’t get replaced with anything, it’s just gone.“
@vlogbrothers4 жыл бұрын
This was a huge insight for me this week.
@Isa.isa.isa.4 жыл бұрын
vlogbrothers it’s been an ongoing acceptance process for me too... I’m not quite there yet but yeah, I’m trying.
@kenbarker59464 жыл бұрын
Is "dispossession" better? I had this thing, this hope, this future, and I have now been dispossessed of it. I did not give it up, or throw it away, it was taken from me - and now I am lost.
@RainaRamsay4 жыл бұрын
@@kenbarker5946 Oh I _like_ dispossession Maybe with a modifier. Future dispossession? or narrative disposession?
@SaltFreeSea4 жыл бұрын
+
@elliestivers584 Жыл бұрын
POV: This is the recommended video after Hank’s Cancer video. It’s so much more meaningful to watch now
@jackpasternak75864 жыл бұрын
“there isn’t a word for this really specific emotion in feeling” *german has entered the chat*
@rafaelah14924 жыл бұрын
But is there one? I'm German but I can't think of one. We could probably make one up, though
@nkanyezihlatshwayo36014 жыл бұрын
@@rafaelah1492 *create* the world is on the precipice, we need you now.
@rafaelah14924 жыл бұрын
@@nkanyezihlatshwayo3601 What I could think of right now is maybe Zukunftsverlusttrauer (the grieving of a lost future) or Schicksalsschlagrealisierung (realizing you experienced a stroke of fate). I don't know if they really encapsulate all the feelings in that situation, but maybe some aspects of it.
@LuluClimbs4 жыл бұрын
There is a German saying "den Boden unter den Füßen wegziehen/verlieren" which translates to "to lose the ground/floor below your feet" or "to have the floor be pulled/ripped away under your feet" which I think captures the feeling quite well
@davidgustavsson40004 жыл бұрын
Word concatenation is a superpower. Swedish has it too: Fornframtidsförlustångest
@nicolenbbw79474 жыл бұрын
It's insane how well Hank can speak my story. I'm still grieving the life I lost due to my illnesses. I was a chemical engineering student 3/4 of the way through my degree, with 5 internships in the field, when my illness gave me no way forward. Now I'm too disabled to work, or have long conversations; I am no longer a scientist, nor engineer, nor intellectual. I've had to reimagine myself with all these limitations, but I haven't lost all control, even though it feels that way sometimes.
@airypersiflage4 жыл бұрын
That sounds really painful and hard. Hugs
@nicolenbbw79474 жыл бұрын
@@airypersiflage thank you. It is really hard, I'm starting to create a new life now but sometimes you just have to let yourself grieve for what was lost
@airypersiflage4 жыл бұрын
@@nicolenbbw7947 yes! And you often can't do that right away because you're focused on survival
@zaneharding64864 жыл бұрын
The adjustment to a new normal is so unbelievably tough, and it's so much worse when that adjustment is forced and out of your control. Take as much time as you need to grieve it and reassess, but I hope you don't give up on being the best you that you can be : )
@nicolenbbw79474 жыл бұрын
@@zaneharding6486 thank you. I think the hardest part is the uncertainty, I don't know what the future will look like, and I'm a bit afraid to plan or even dream. But, I get to decide what I want and what really matters to me. Also, the community I've gained is pretty great
@MatthewMe2 жыл бұрын
I realize I'm coming to this video late, but what you're describing is a form of trauma. The language you're using is very telling - the loss of the narrative of yourself and your identify (and your future), which removes from you the ability to orient forward in time. And you're kinda stuck in that moment and reflexively looking back at it until you can incorporate the event (in this case, a disease diagnosis) into your concept of self. Then you make adjustments and can reorient forward. For some, this happens when a loved one dies, or you're the victim of a crime, or a relationship breaks, or a job is lost, or when a major health diagnosis hits them. It's not surprising you thought about it similarly to moments during a car accident. Similar emotional and psychological processes occur, especially if the consequences are life altering.
@helenpanshin55894 жыл бұрын
I think John would title this video "Ulcerative Colitis: a Parable"
@fangjiunnewe36344 жыл бұрын
Hank, that's grief. You went through denial and bargaining and sadness and finally acceptance. (Don't know about anger, I suspect yes, but also the 5 stages are somewhat arbitrary.) This untethering of a set of assumptions about what will be stable in your life is characteristic of grief, because you have lost something of value (stability, narrative direction, etc). Btw I nominate "untethering" as my word of choice, or "unfastening".
@vlogbrothers4 жыл бұрын
I guess it is grief...at least it is either a kind of grief or a component of grief. Untethering is very good.
@lifegeek57424 жыл бұрын
Maybe a grief for an imagined time that no longer exists? (totally stolen from that Sarah quote)
@Stars112224 жыл бұрын
@@vlogbrothers "Desiderium carries the meaning of having feelings for something that we no longer have, and wish very much that we did." www.merriam-webster.com/words-at-play/heres-that-thing-youre-feeling ^ taken from umbral insanity figured id pass it on to you
@megashley19634 жыл бұрын
+ I think untethering is the right word, but I don't think it's just grief. The same feeling when you graduate, or get your first real job, or have your first child are similar, even though none of those are bad things. That same feeling of being in a new world that you don't really understand yet.
@lyreparadox4 жыл бұрын
+
@qnicole16794 жыл бұрын
My dad died last Wednesday. I like the term wuthering. It reminds me of withering, which is what I seem to be doing right now. I got the call at 1pm at work and it wasn't unexpected, but still, my entire future shifted. Blanked. For some reason I keep thinking about my wedding. I'm nowhere close to getting married, but now my dad can't walk me down the aisle. When I imagine it in my mind, there's just empty space next to me, and I'm walking alone. That was a wuthering moment, and it's been like a constant, shifting earthquake ever since. Thanks for giving me a better grasp on the feeling. I'm not sure I even want to settle into this new normal, awful and strange as it is. Is there a term for espoused wuthering?.. I choose to be unsettled. I choose the tumult because it is easier than settling among the shattered pieces.
@eltimbalino4 жыл бұрын
Loss is a hard time, and I'm wishing you strength, peace, and clarity.
@CariettaW4 жыл бұрын
My sincerest condolences. Grieve, then make him proud!
@WouldntULikeToKnow.4 жыл бұрын
I'm so sorry for your loss.
@tanvishah20964 жыл бұрын
🤍🤍🤍
@trace_tomorrow4 жыл бұрын
Thank you for your comment. I also lost my father this year and I also keep thinking about him not being there for the important moments in my life going forward (e.g. walking me down the aisle). I know the mourning never ends, but I hope you’re doing better. Take care, friend.
@Morphesque4 жыл бұрын
Hank has never felt more to me like a long-distance uncle than in this especially soothing, honest, and thoughtful video. An uncle who keeps forgetting my name and calling me "John," but an uncle, never the less.
@ernestolopezdevictoria85124 жыл бұрын
The first time I really felt the "wuthering", was the moment I walked into the bedroom returning from the hospital, after the sudden passing of my husband. The life we had built together was suddenly gone, and there was nothing available to replace it. Fear, uncertainty, grief, and a measure of numbness.
@whychoooseausername47634 жыл бұрын
My condolences.
@wewemcrhyne4 жыл бұрын
I’m so sorry.
@MetalMarauder4 жыл бұрын
if imagining the future is a kind of nostalgia, having your concept of the future wiped away is a kind of amnesia.
@Natalie-1012 жыл бұрын
You're brilliant
@sarahthomison32952 жыл бұрын
I wish I had better words for just how brilliant this truly is. Thank you, Natalie (1 month ago from 10/15/2022). Yes! Love this!
@sarahthomison32952 жыл бұрын
I said to Metal Marauder, " I wish I had better words for just how brilliant this truly is. Thank you, Natalie (1 month ago from 10/15/2022). Yes! Love this!" And I just wanted to make sure this hit your notifications too. You nailed it.
@toprekallz3435 Жыл бұрын
@@sarahthomison3295 :)
@melissa19854 жыл бұрын
"When the ground stops moving, you'll rise." Thank you, Hank.
@Cisaadeh4 жыл бұрын
Melissa Barker +
@Artifying4 жыл бұрын
The way I think about diagnosis is that you have to mourn the future you thought you were going to have.
@rafaelah14924 жыл бұрын
+
@SapphireSparrowFilms4 жыл бұрын
"I feel kind of fine now... maybe the doctor was wrong about this." Exactly what I've been thinking about my recent RA diagnosis... gonna stay on my meds because of Hank's forewarning.
@elliegentry81964 жыл бұрын
I want to point out that there can be “wuthering” in the opposite direction. I found out yesterday that I got a full ride scholarship to any school in colorado and while two days ago I found out some terrible news about my grandmother, it really puts it into perspective. We have so many times to reshape our future and sometimes it’s going to be terrible but sometimes it’s a key moment that’s going to give you so many opportunities. Trust that both exist.
@brennabyrd89134 жыл бұрын
Dude, sorry about your gma, but you should definitely make use of that scholarship by going to CU Boulder or Colorado Mesa.
@RachelAnn4 жыл бұрын
+
@Julesdoesstuff4 жыл бұрын
I’ve only watched the first couple minutes but this is right where I am right now with immune system issues and I feel seen. Waiting for diagnosis really freaking sucks.
@Azzarinne4 жыл бұрын
You'll get there. It may take a frustratingly long time, but you'll get there. ❤️
@emersonjakes81194 жыл бұрын
Sending you light 💜 it's especially scary right now being undiagnosed/waiting for diagnosis especially because we have no idea what this disease will do to us
@Cisaadeh4 жыл бұрын
+
@lorelaigilmore8134 жыл бұрын
I'm not trying for a diagnosis . Mast cell activation syndrome would take years to find a doctor who could. I know what you mean though. Good luck with it all. Don't be afraid to read peer reviewed articles to learn more.
@AlyxDellamonica4 жыл бұрын
Yes! I've been a medical mystery too and there was nothing about it that I liked.
@steelserenity3 жыл бұрын
"But when the ground stops moving... you'll rise." This made me teary eyed, thank you so much Hank. I've been in my journey of mental illness and undiagnosed physical illness and this really stuck with me. Thank you!
@arthurguerra38324 жыл бұрын
Hi, Hank I don't know about some specific word, but in Portuguese we have an expression. First, I have to explain a word that doesn't have a direct translation in english which is "saudade". Saudade can be express as a very melancholic feeling due to the withdrawal of a person, thing, place or situation, it's a very intense sadness of deprivation as well as acceptance at the same time. We have the expression: "Saudade de um tempo que nunca vivi." And means roughly what you describe. Insanely missing a time never lived.
@alanr25044 жыл бұрын
That is fascinating, and I thank you for sharing that.
@hermant35934 жыл бұрын
Us the Duo wrote a song titled Saudade. It’s based on a true story submitted by one of their fans, about a daughter’s melancholic acceptance of her dad having passed away.
@fromscratchauntybindy97434 жыл бұрын
Wow! So good, thank you. English never lives up to the beauty of other languages like yours.
@Shade_K4 жыл бұрын
In Spanish we have "morriña" wich sort of translates to that as well, but I don't think we have an especific expression for the "time never lived" part 🤔
@leticiam12224 жыл бұрын
I am brazilian top, not I ain't sure that our expression really fits in Hank's context, for sure it is better than any English word, however this feeling in my opinion is more related for things as a lost love, but what hank describes and I could strongly relate to is a more desperate, sad and agonizing feeling of uncertain and doubts, instability and the part of missing something he couldn't do anymore doesn't embrace all the emotion, at least in my opinion
@estrellacasias4 жыл бұрын
The awaited unpunishable long video!
@nicholaslastname4 жыл бұрын
@Henlo last year : watch?v=CFxrppOPbrs
@remotv48494 жыл бұрын
I wouldn't mind every vlogbrothers video being as long as this one.
@Realmisskrose4 жыл бұрын
A little sad there won't be a punishment but it was a very good video and I guess that will make up for it
@sammartel77134 жыл бұрын
With a title that sounds like it could easily be Hank's third book 😁
@the1exnay4 жыл бұрын
RemoTV I ended up skipping a couple minutes after ignoring a couple minutes while reading the comments because it got to a point where there was no new information entering my brain because i doubt there was any new information in what he was saying. Which is a long way to say: i respectfully disagree.
@chloepeifly3 жыл бұрын
i was diagnosed with ADHD a few months ago. i’m 19, some people don’t get diagnosed until their thirties, forties, or fifties, but i can’t help mourning the life i could’ve had if i had been diagnosed sooner. i could’ve started on meds, kept up more commitments i made to myself and others, understood why i think the way i do and practice tactics to help me control aspects of my life better. at the same time, i also keep telling myself that maybe i don’t have ADHD, maybe i’ve just been lazy and not working hard enough and the meds only help because of the placebo effect. it’s crazy the things your brain tells you to convince yourself everything is normal and hasn’t changed. that equilibrium is comfortable, until it deviates from reality enough to crumble
@AnnaMayKremer3 жыл бұрын
As I see it, what you and Hank are both describing is grief. You both described denial which is one of the five parts of grief. Hank lost a part of his health, and he had to go through the grief process before arriving at acceptance.
@helpotters2 жыл бұрын
Mourning what was lost is something I also felt when I got my ADHD diagnosis. I hope you're doing well!
@roobs0012 жыл бұрын
A lot of people in my life think I have ADHD, but none of them are psychologists. If I get tested, and it turns out that I do have ADHD, and then I get prescribed meds, I'm scared that I'm gonna feel like this. Constant "imposter syndrome", insecurity--- more than usual--- and being afraid that the meds aren't actually doing anything/I'm using them as a crutch for something I should deal with on my own. I hope you've come to terms with having a brain type like this and that you have found strengths in your neurological differences.
@virtuesofgold9346 Жыл бұрын
I can relate, though I'm on a different spectrum. I remember getting diagnosed late after 16, and just after things had gotten bad. At that point, I had started to experience non-verbal fits and catatonia from the stress and pressure of being in public all day, 6 days a week. It was like the light and noise was wearing into my brain and it'd just start glitching. Finding out I had autism was this beautiful explanation. Nobody around me understood. I'd try using the diagnosis to explain things to my parents, only to get hurtful comments. Some family members don't believe it, or won't listen if I describe my struggles. I also mourn that I hadn't know earlier. Hell, if I got diagnosed at 7, all the advice online would be perfect for my parents. Just maybe they would've treated me with understanding. Maybe they'd think it's just a part of me instead of some crutch I use so I can act "stupid." But it's nice to know that I'm actually stronger than a lot of people. I did all the masking, I put up with my sensitivities, and now every time I need a public face for a few hours, I have one. Every time I start to stutter and slur, twitch and get caught in my throat, I know I'm not crazy. I just need to tell myself it's okay, get some paper or try again later. Knowing I'm neurodivergent, I feel human again. I'm my own kind of normal and I can think of myself any way I want. Better yet, I can use my hyperfixations to delight my friends, my heightened empathy and psychosis to help others when they're struggling, and my complex neurology to offer people perspectives they would have never imagined. I hope you'll find a similar experience. There's great things about being different! You just have to find those things, and realize what makes you special. ^^ The journey is hard, but it's worth it.
@Oberon4278 Жыл бұрын
You're not lazy. You are working hard enough. Stay on the goddamn meds!
@tmntallthewaydw4 жыл бұрын
I literally wrote this yesterday: "I always thought it was weird the "Before" and "After" in Looking for Alaska but here we are sitting on what feels like the edge of that moment I'm not ready to let go of the "Before" but I know the "After" is coming" because I've has some small moments like this, but its never been this big
@Grace-nn3fy4 жыл бұрын
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@conniescurse73254 жыл бұрын
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@mirandashea91914 жыл бұрын
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@garetr4 жыл бұрын
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@ThisOneCassie4 жыл бұрын
This quote is going in my journal. What type of attribution do i use? APA? MLA? Aaaaa
@scottschaffer60844 жыл бұрын
I had that feeling when my first child was born, but it wasn't a bad thing, just an acknowledgement that change, forever change, was happening. The same happened when we found out we were having our second. We're two months out from having our third, and that feeling hasn't shown up again. Not sure why, but maybe we'll find out in May.
@JHaven-lg7lj4 жыл бұрын
I imagine the reason it hasn’t shown up yet is that you’ve grown comfortable with the constant change of having two growing children around. It may not show up at all until they hit adolescence, unless your third’s personality is very different from your first two. Regardless, remember to keep breathing and good luck!
@flodnak4 жыл бұрын
When my son was going through the process that led to an epilepsy diagnosis, I remember feeling that it wasn't just that I didn't have the answers any more - I didn't even know what the questions were. There's a Norwegian expression that "the road is created as you walk it" and that's what he and his doctors did - they created the road. Now I guess we're all going to have to.
@ToniHinton3 жыл бұрын
I like that phrase a lot, invisible friend.
@TulipsToKiss4 жыл бұрын
hank: makes an intensely relateable video about his illness and some medical history all the people with chronic illnesses liked that
@fraidarahbaran60764 жыл бұрын
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@sophiarose034 жыл бұрын
Absolutely. I also have THERE IS A LITERAL CACTUS IN ME pain but for different reasons.😂
@r1sake4 жыл бұрын
i just got diagnosed with colitis, i hope nobody ever has to experience this feeling
@marcusdagostino62084 жыл бұрын
“there’s a cactus in me” is my new favorite way to describe pain
@stormmabel224 жыл бұрын
Bro that's real tho 😂😂 sometimes I think if I actually get stabbed I'll be used to it
@tjnova9724 жыл бұрын
This is actually the perfect way to describe how I felt when I had kidney stones
@stormmabel224 жыл бұрын
@@tjnova972 I'm still undiagnosed so hopefully it's not kidney stones. thankfully it's at the point where I've been in pain so long I probably won't die, I'll just keep being in pain lol
@debrachambers1304 Жыл бұрын
Recommending me this is pretty timely after Hank's recent cancer diagnosis
@RadioMylar4 жыл бұрын
"But we will catch ourselves... and we will rise. Because that's what we do." Beautiful
@josephdestaubin74264 жыл бұрын
True enough, but that's what the other guy thinks too, and in this case the other guys and unstopable virus and immeasurable pessimism.
@emalinel4 жыл бұрын
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@RestlessHarp4 жыл бұрын
"When the ground stops moving, you will rise." - Hank Green 2020 👌❤
@wyvernofred2 жыл бұрын
My biggest experience with this was when I realized I was trans. The question of my gender was not really something that bothered me throughout my childhood (though when I look back there were certainly signs), and it wasn't until I was most of the way through male puberty and my body had already developed secondary sex characteristics that I realized, "oh shit, I'm trans." It was very scary because I realized: 1. I could never go back to not knowing this about myself 2. If I didn't do anything about it it would almost certainly make me miserable for the rest of my life And 3. If I did do something about it it would create a whole new set of problems I wasn't sure I would be able to deal with I still feel like I'm adjusting to a different way of thinking about myself, and I'm not really sure I'm ever going to be able to stop adjusting.
@fghsgh2 жыл бұрын
I'd like to add 4. All the lost opportunities. Not having irreversible testosterone-based puberty effects to deal with would've made it a whole lot simpler. As well as having had the childhood I wish I had. Sorry if this got your mood down, btw. Twas hard for me too. These days I'm mostly okay.
@basicallycroft946 Жыл бұрын
I'm going through this right now, I've known I'm trans since I was 15 and I'm 24 and I tried coming out to people in my family for help and I got pushed back into the closet twice and I'm scared and I don't really know what to do
@KaitlinGaspar Жыл бұрын
@@basicallycroft946i believe in you friend! it’s never too late and you will find yourself when the time is right. I support your decisions and hope you get to be your authentic self soon !! ❤
@NoStereo Жыл бұрын
I knew when I was really young I was the gender people didn't see me as, I went through an irreversable puberty and bullying about my innate actions/feelings and repression of myself. Until I knew there were others like me I was just depressed but when given this new window to look through I slowly realized I should have been on that side ages ago. Taking steps to be myself have drastically saved me and improved my life though the marks of what I had to be remain as scars to myself and the world which often doesn't understand or accept that if I didn't take these steps I would be dead or a living husk of a person wishing for death. I'm happier than ever and renting with my partner in a week so despite the tumult I think I've been slowly winding down the right path for me, even if I wish things had gone a bit differently in my past.
@rachels.8051 Жыл бұрын
Sending you some love.
@railgeekusa4 жыл бұрын
As one of my neighbors called across the street to me said: “The best thing about all this is that we will never again take ‘normal’ for granted.”
@notthestatusquo76834 жыл бұрын
That's what they always say and it's always wrong. We will all, very quickly, return to taking everything for granted as we always do. If your neighbor was right we wouldn't have thousands of nuclear missiles at the ready to destroy mankind for all eternity at the push of a button.
@daemn424 жыл бұрын
Agreed. We (almost all life on earth) either die off, or create a new normal even surrounded by what was previously perceived as the unfathomably weird.
@one_smol_duck4 жыл бұрын
"so I went off my medicine" Yikes. I've known so many people who do that -- get to a point where you're ok, think "maybe I don't need this!" -- and then find you that you definitely, definitely do. Thanks for sharing your story, Hank. To everyone watching this: be careful making those kinds of decisions, and never do it without your doctor's approval.
@freyab50664 жыл бұрын
Laura Phelps agreed !! this is a message both to future me and to anyone else on antidepressants specifically... if you start feeling better it is bc they are doing their job and not bc you don’t need them !! i make this mistake about every 6 months and withdrawals are not good and also TAKE YOUR MEDICATION AS PRESCRIBED BY YOUR DOCTOR YOUR BRAIN IS LYING TO YOU IT IS A SYMPTOM OF DEPRESSION TO THINK YOU DONT HAVE IT AND ARE JUST BEING WEAK yep i need to stop making this mistake
@brighid95272 жыл бұрын
About a month ago, I was chopping firewood and the axe went through the bottom of my shoe. It didn't hurt much, but the panic about the future was painful. The minutes after were filled with panic about how bad the injury was. Once people started telling me it wasn't bad, I wasn't worried anymore. I got home from the ER that night feeling okay. In the morning, I woke to my foot bleeding (I stood up from bed too fast) and I had the realization that I had never changed the dressing on a wound before. I had never even looked at a bad wound before. I had this feeling that I can't do it, and cried. After a few minutes of that, I realized that this was going to be my new normal, and I needed to just do it. It's been about a month and a half since the accident, and I've felt a lot of wuthering. The injury was significantly worse than expected, but the recovery hasn't been too bad. (Severed tendon, fractured bone, broken joint capsule, if you want to know the details) I didn't realize that I had an expectation that I'd always be able to walk, or take care of myself without help from anyone. I felt a lot of fear around not knowing when I would be okay, not knowing what the near future looked like anymore. This video resonated with me when it was first posted, and even more so now.
@rawdaaljawhary4174 Жыл бұрын
Much love to you, friend.
@shortforsophie4 жыл бұрын
I’ve had severe depression for almost two decades. I’m pretty functional, so I manage to fly under the radar most of the time, even though I *feel* really, really bad. But holy cow is it exhausting when pretty much everyone you love asks you when you’ll be able to get off that medication finally? When will you get better? Go back to normal? No, guys. This *is* normal. This is it. This is me now, and I’m having a hard enough time adjusting to that without you telling me it’s not enough.
@fromscratchauntybindy97434 жыл бұрын
Same boat here, big virtual hug! It's a form of rejection I'll never adapt too, just as it is a form of acceptance they may never have.
@SolaceEasy4 жыл бұрын
Isn't it interesting to see what kind of mirror people are looking at when they see us. My challenges began at birth and I have had continuing so-called health challenges throughout my life. If I continued to attach myself to other people's limited beliefs on who I was and what I could be I would have never accomplished some of the greatness in my life. I and the Father are one, and we know the greatness within ourselves and others. Blessed Be. (SMI, Frontotemporal Dementia, constant musculoskeletal discomfort, digestive issues, hormonal issues, more. Happy, Whole & Complete. I am healing now.)
@44924 жыл бұрын
Having been on medication for GAD for almost 10 years, I have this same battle, but for me it's usually internal. I don't want to be medicated forever, but I also know it's not wise for me to come off them. This is normality. This is enjoying things and not enjoying things without being flung into the pit of unfeeling despair. This is what my life is. And I have to accept that. I'm sorry the people who love you are like that, but I'm very proud of you for realising that you have your normality.
@The_SOB_II4 жыл бұрын
A freaking men, sibling
@carmenv42924 жыл бұрын
Omg yes. I know people mean well but when I talk about my depression to someone and they say you should exercise or do something you like or write in a journal, it feels so isolating. Some people are understanding that sometimes that's not enough but others just don't get it. It's hard to explain that I've tried all the things and that some days it's hard to just get out of bed. It feels like I have to defend myself. But they just don't get it. So some times I just go with what they say because it's too much to fight it. Thank you for sharing your feelings. You're not alone.
@stacialtizer33504 жыл бұрын
As a person with Crohn's, I always love when Hank talks about his UC. It makes me feel seen. In still in the process of coming out of denial and finding my new normal. I miss popcorn so goddamn much
@juliahaynie29104 жыл бұрын
Oh man. I’m less than a year into Crohn’s and I’m only partially accepting it so far. 😂
@wewemcrhyne4 жыл бұрын
My brother has Crohn’s. I just wrote a comment to Hank about it. It took years for him to be diagnosed. By then he was so thin he looked like a skeleton. That was 20 years ago and he still has occasional flares, but he’s doing much better. There is hope
@kathlynarchibald-drew3 жыл бұрын
I didn’t know that this was such a universal feeling. In 2017 I was in a catastrophic hurricane that completely destroyed my nation. After hours of chaos I walked outside and saw no leaves on the trees, no discernible landmarks, and no way of knowing where I was, even outside my house. That was the first time I felt that feeling, the knowing that things are about to be drastically different (possibly forever) but no way of knowing how. I know the feeling now and can identify it quickly. For me it feels like falling and not knowing when you’re going to hit the ground. Alternatively, it feels like my environment has suddenly started spinning and I don’t know when it will stop. My strategy to manage it has been to hunker down in the spinning, or the falling until the world feels a bit more solid again. The world looks different after the spinning or falling. Things may be moved, things may be broken, things may have fallen in from places I didn’t even know existed. So I take inventory of where the factors of my life have hit the ground, what condition they’re in, whether they can be repaired, and what new factors are available. I take a moment to mourn the factors that are broken beyond repair, then I run mental permutations with the useable factors until I have a plan to move forward. When I was searching the thesaurus to try and find a word for this feeling, permutation kept piqueing my curiosity. I don’t know why. Maybe because it feels like in the moment between when you close your eyes to blink and open them up, someone has rearranged your life.
@rawdaaljawhary4174 Жыл бұрын
This is beautifully said. Thank you!
@Beryllahawk4 жыл бұрын
I've always thought of that moment as "a shattering." Like a mirror was in front of you, and you knew what you were seeing, but now the mirror has shattered and you see a yawning void beyond what you thought you knew. And you realize too how shallow your knowing was, you see that you didn't really know what you THOUGHT you knew in the first place, and everything is broken around you and inside of you. And you can't even move because there's broken mirror all over your feet and where is it safe to go now? And eventually you manage to start picking up the pieces. They make your hands bleed and you cry a lot. But you move them, you clear the path, and you take the first step forward. Then another. Sometimes you don't get all the shards out of the way and it hurts a LOT. Sometimes, someone can help you, and they do help you, and it's easier. But it's still dark ahead. Still uncertain. Not until you walk for a while do you realize that you can see more than you could before. I've been shattered many times, sometimes little ones and sometimes not. Often times I have the same nightmare when I'm feeling crushed by these kinds of changes... a nightmare where I am mostly buried by pea gravel. Like being buried at the beach but not funny, or fun... I can get out, but I have to do it by moving one piece of gravel at a time, and I have to go carefully, or the pile will collapse and cover me completely and then I CAN'T get out. Uncomfortable to say the least. In this time, as I struggle with not only the terror of living through the whole WORLD shattering around me, but also with my husband's continuing health issues, my own health, our finances which still haven't improved....nothing had let up before this came and hit us like a truck. A lot was bad already and now there's just more and more bad news piling up. The gravel is up to my neck. The greater majority of us will make it. I cling to that. SOMEONE will make it. And those that do make it will do so because they stuck together and shared their kindness and their strength and their awesomeness. But more and more I feel like maybe I won't. Me personally. Right now the blackness is all I can see, and I can't yet pick up any pieces.
@metadolle89254 жыл бұрын
Firstly: * quietly brings a shovel and gloves * Secondly: This is a brilliant piece of writing.
@lissahaddock24944 жыл бұрын
Shattering is what I've called it in my head too.
@blueisasomedancer4 жыл бұрын
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@missys30094 жыл бұрын
I think right now, you're in the part that's frozen. I've been frozen for a few days now. It's taken me a while but very slowly I am moving. It reminds of the depression that I've had in the past. Putting one step forward is difficult and painful and nothing beyond that step seems possible. But you will that make that step. At one point, that will be the only way forward. I believe in you. You're not frozen alone.
@Beryllahawk4 жыл бұрын
@@missys3009
@annafellows96164 жыл бұрын
Reminds me of a Paradigm Shift, which an online thesaurus suggests synonyms with “Cataclysm” and I think that would could describe the sudden shift of expectations (that you yourself might’ve not even realized you had). Like the word consequences it does have a negative connotation bias (I.e every choice has consequences, but since only the negative outcomes are called consequences...) But really Cataclysm could be any big change good or bad.
@annabenson56844 жыл бұрын
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@oddrey524 жыл бұрын
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@octopiinthesky444 жыл бұрын
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@JohnLewis-old4 жыл бұрын
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@Mu51kM4n4 жыл бұрын
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@emmahacker40202 жыл бұрын
It's so strange watching this in 2022 after having done pandemic life for two years now. Some things feel "normal" again. Some things don't. And with the Omicron spike I feel like we learned some good stuff. And yeah, idk... I apricate this video a lot! Here's to the ever-uncertain future
@lilyrolyat67262 жыл бұрын
He was definitely right about trusting our doctors instead of our guts, and the waves of believing the risk vs not.
@AmberRBowes4 жыл бұрын
I know what this feeling is called!!! I wrote a paper about it for my "literature and medicine" undergrad seminar -- it's called "narrative wreck." I really hope this helps!
@rafaelah14924 жыл бұрын
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@tomtang74634 жыл бұрын
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@LLCCB4 жыл бұрын
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@johnchessant30124 жыл бұрын
This video is indeed "educational"; learning about someone else's experiences is just as crucial as learning dry information. I can't imagine what it's like to live with a chronic illness, but because of this video, I tried. May we become more sensitive to each other with each passing day.
@dkecskes21994 жыл бұрын
+++
@adastra5534 жыл бұрын
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@mossboy25644 жыл бұрын
It just struck me how sincerely open and honest u guys can be with over 3 million strangers and man, it’s pretty wild
@naota3k4 жыл бұрын
For me, the most recent time I experienced this feeling of "loss of sameness" was in November of last year (2019). I had just gotten out of the hospital after my THIRD bout of alcohol-induced pancreatitis, and I was confronted with the ultimatum of "get your shit together, or leave this house." It's an awful feeling. But here I am almost half a year later; sober and happy for the first time in my adult life.
@anne-laure63414 жыл бұрын
So happy you are getting better! Kudos to you!
@vanessanicholson92604 жыл бұрын
I also related this to my alcoholism. We talk about expectations a lot in my 12 step program and I think when the world is turned on it’s head it’s comforting to know I’ve already been through something I believed would alter my life forever and it has- but here I am. Here we all are together. Congrats on your sobriety. It’s amazing to have our lives back and even better than they were!
@chocfudgebrowni4 жыл бұрын
Congratulation on being sober for so long. It is hard and I am proud of you. ♡
@TulipsToKiss4 жыл бұрын
woah I have chronic pancreatitis due to a genetic mutation, wasn't expecting it to pop up as one of the top comments!!! good on you for the sobriety, keep it up!! your future self will thank you for it :,)
@fuzzylilpeach65914 жыл бұрын
The closest thing I could find for this word is in the Dictionary of Obscure Sorrows. The term, rather oddly, is, "the meantime." But this seems to do more with regret of not being a better self in the past than being thrust into new prescriptive circumstances.
@lovelyboredom4 жыл бұрын
I actually feel this may work tho. Because what we do...we do in the meantime. We cope. We plan. We exist in the meantime. Hrm.
@RainaRamsay4 жыл бұрын
"The meantime" honestly resonates with me so much. You can't think as far ahead as you could anymore; you're reduced to looking only at the next week, next day, next five minutes. Someday, somehow, I'll be OK, but in the meantime, right now, it hurts. I am in the meantime.
@RemizZ4 жыл бұрын
Oh god that is really fitting. Feels like I've been living in the meantime for 20 years now.
@jezelle74204 жыл бұрын
Is this a new word in the dictionary of obscure sorrows !?
@flaming64 жыл бұрын
/me goes to find a copy of this book.
@RovingJack4 жыл бұрын
"Maybe I don't have {Ulcerative colitis}..." Oh God, do I know that dance.
@curiousKuro164 жыл бұрын
Ah yes, the 'What do you do with a BA in English' feeling.
@davidfrend4 жыл бұрын
Why would you do this to me?
@ScottKorin4 жыл бұрын
Software development. That's what I did ;)
@RainaRamsay4 жыл бұрын
THAT. is a good insight.
@invisibleninja864 жыл бұрын
I'm close to finishing mine, and... ouch
@gleep19844 жыл бұрын
OMG, you're Gary Coleman!
@juliathompson1014 жыл бұрын
“Let myself be weak in the moments I couldn’t be strong, and let myself be strong in the moments I could.” I think I needed that.... that’s where I’ve been swinging from for what feels like forever now...
@11insalaco822 жыл бұрын
this… this resonates with me so strongly. I’ve been through this at least three times in my relatively short life- first discovering I’m not straight and therefore questioning my religion, then when I was diagnosed with rapidly progressing scoliosis, and now dealing with the turmoil of my gender identity. Just the solidarity that this feeling is so normal helps a lot. thank you.
@shaneharrington36554 жыл бұрын
You’ve just exactly described my (and I’m sure many other people’s) journey after depression diagnosis. The “Nope, I’m fine, I don’t even think I have depression” then boom! Great vid Hank, thanks.
@nebula1oftheseven4884 жыл бұрын
Yep, it was the same for me.
@aekaydubs4 жыл бұрын
I feel this. It’s been years and I still catch myself that “maybe I don’t have these diagnoses, or maybe they’re not so bad, just mild cases.” Yep. Sigh.
@booked_by_books4 жыл бұрын
@@aekaydubs yep! The problem is that unlike a physical illness flare-ups of depression aren't self evident and to a point deniable. It took a long time to identify the symptoms. :-|
@sarahhumphries80004 жыл бұрын
This feeling is also what I felt when I was coming to terms with my sexuality. It was such a change in how I expected my life to go
@ancientgod_4 жыл бұрын
same.
@beatricemarkwell79174 жыл бұрын
Seconded
@mussoletart84854 жыл бұрын
Same. Actually, twice.
@doyoureadme94 Жыл бұрын
Staring at my copy of, Wuthering Heights, and brimming with tears right now because Hank 3 years ago had no clue what was coming and I am UPSET.
@firefly-fez4 жыл бұрын
I remember that feeling in my own life. I remember thinking: "the world is a different colour now." Everything was different in new and unexpected ways that had suddenly and permanently altered my worldview. I know that's not a specific word, but that's how I gave language to it then. Thanks for the parable, Hank. Warm words from the two of you go a long way towards lifting the spirits of nerdfighteria these days. (and on all the better ones, too)
@woodfur004 жыл бұрын
+ !!
@jeffreym684 жыл бұрын
Exactly. Well said.
@PracticalPoppins4 жыл бұрын
Jem Wow...yes, “the world is a different color now”. That hits home. Sending love and light to you and yours. 💜
@nerdmythicalfighter_21304 жыл бұрын
+
@JosephDavies4 жыл бұрын
For me, it was the first time that I truly had an understanding of "all the colour has gone out of the world". Saying "the world is a different colour now" I think is equally apt. :)
@Assassin49224 жыл бұрын
"Wuthering" sounds like one of those things where the German language has some 26-letter word that perfectly describes it
@MarvinElsen4 жыл бұрын
..."Weltschmerz" comes to mind, but I feel like it´s not really it
@JTB3124 жыл бұрын
Fun fact: if you read "Wuthering" as a German word, it would be a compound word meaning "herring of rage"
@Izhrantih4 жыл бұрын
Ty Matson Zukunftsvorstellungsspontanrekalibrierungsverunsicherung could work ;)
@marie55784 жыл бұрын
I've been trying to think of how I would describe that feeling in German, and couldn't think of a good word, so I made up a few: Zukunftsverlustgefühlssturm - A storm of feelings caused by the loss of future Emotionsbeben - An emotional earthquake Ungewissheitsleere - a feeling of emptiness in the face of uncertainty Plötzliche Persönlichkeitsneudefinitionszwang - Suddenly being forced to redefine who you are as a person That's all I got for now.
@RestlessHarp4 жыл бұрын
@@JTB312 That's amazing, haha! The Herring of Rage: a smaller version of the Giant Squid of Anger? 😂
@sarahmp10163 жыл бұрын
Man. Why did I get this three years after my R. Arthritis diagnosis? The YT algorithm needs to do better. This was the vulnerable and hopeful comfort I needed.
@peterjuliangrey4 жыл бұрын
In my experience, the Ohshitness is similar to the feeling you get when you're walking up a staircase and you misjudge the space between your foot and the next stair. something was supposed to be there to catch you, but it's gone. and you could never have been prepared. but it's possible, and sometimes easier than it might seem, to adjust.
@electricharps4 жыл бұрын
Kore Evans This is how I would describe it as well! Like having the rug pulled out from under you, or that specific feeling of when you’re falling in a dream...
@netball4eva1014 жыл бұрын
“It is like walking up the stairs to your bedroom in the dark, and thinking there is one more stair than there is. Your foot falls down, through the air, and there is a sickly moment of dark surprise as you try to readjust the way you thought of things." - Lemony Snicket
@yourfriendlyneighborhoodne6554 Жыл бұрын
I know it's 3 years later but I don't think you know how valuable this video has been to me. I recently got a diagnosis for a chronic illness that is known to have ups and downs and I'm trying to figure out how to deal with that while also keeping up with school and my part time job. I'm getting used to the idea that I will never be able to stand or walk for long periods. I've been wondering why I was having trouble coping with something I had already been dealing with but this. This described it exactly. It's the idea that my future may not be the way I imagined it. Anyway, thanks Hank, this has been really helpful.
@rachelpang3104 жыл бұрын
I find that Bastille expresses this emotion somewhat in his song “the things we lost in the fire.” The song tells a story about losing physical possessions but the feeling can be applied to any major life event. I think the best line is “do you understand that we will never be the same again?” We have to live, we march on.
@cleo65084 жыл бұрын
"the emptiness ahead that my previous expectation of the future used to inhabit" oh oh yeah that's the one
@thesmithchristian Жыл бұрын
It’s like mourning the death of a fantasy. Makes me think about the book Philosophy at a Crossroads.
@cibomatto474 жыл бұрын
This reminds me of when I was first diagnosed with leukemia. I got the call from my doctor at 3 in the afternoon at work and I suddenly felt like the world had become inexplicably quiet, as though my entire life had been leading to this moment of dreadful solitude and that every moment following would be always be defined by this day: before diagnosis and after. Whether or not there's a specific word for that feeling of absolute and all consuming isolation I don't know but I certainly understand the feeling. My life is irrevocably different but that's not necessarily a bad thing. It just is.
@DianaMcManaman4 жыл бұрын
“The story you’ve been quietly silently telling yourself about what the future is going to be like, that story just falls apart. It’s not there anymore. It doesn’t get replaced with anything, it’s just gone.“ My anxiety centers pretty aggressively on the idea of the uncertain. Whenever I don't know what's going to happen, or I don't have a frame of reference for my situation, my fear response gets triggered, and then it stays there until the situation either changes, becomes clarified, or is resolved. I'm a college student who, like every other college student, was recently told: "School will move online for the rest of the semester; come get your things" And now, everything about my life feels uncertain. I don't know what the future is going to be anymore, I don't know what my life is going to be like tomorrow, I don't know what my society is going to be like tomorrow. It feels like all I can do is either distract myself from it or be afraid of it, and neither option feels productive. I don't have a resolution for this - the end of my fears, too, is uncertain. If you have any similar thoughts or feelings, or words of comfort that may help, I welcome them.
@SivenMs4 жыл бұрын
I commend you for being so aware of your triggers and thought patterns! I think that is an important thing that will help you get to "fine", "good", "well" or what ever other outcome you will be happy with in the future. Remember, nobody is in a perfect space all the time. You are not alone. When it comes to what to do. I think living in denial is going to be counter productive. Try instead to make your time productive. Time away from class and other social activities gives you the excess to focus where you think it is needed. Catch up on reading of your own interest or on problem subjects. BUT also remember to give yourself time to relax, unwind and just be. Nobody can be 100% go go go all the time.
@SayyadaDharsee4 жыл бұрын
As a fellow anxious person, the sudden realisation that I don't know what the future I'm inhabiting is going to look like is pretty terrifying to me too. What's helping me is reminding myself that the future isn't static-it's dynamic, it's being shaped by what we are doing, and while I have no idea what it's going to look like, I can at least try and contribute to its shaping and making it a more hospitable place. I don't have much comfort to offer, but I do have sympathy-we got this. Good luck!
@donttrustthegnomes4 жыл бұрын
I struggled a lot with anxiety about the future when I was growing up and in college. School was detrimental to my mental health in that it was prescribed but there were a lot of ways to fail (I experimented with many methods of failure). Early adulthood felt like that, too. There were so many goals/milestones I felt were required and again many more ways to fail. But it's not real. To me, the only future that matters is one where I am working towards good mental health. This is all to say it CAN get better, but better isn't a guarantee because a lot of "better" hinges on your mental health. I highly recommend cognitive behavioral therapy if you're not already doing it. Good luck 💗
@coolsebastian4 жыл бұрын
I also feel that the only option seems to be to distract from it or be afraid of it. I've been playing a LOT of video games to cope with this uncertainty. Sometimes I feel guilty about doing that instead of work... but it's okay.
@legumetomb4 жыл бұрын
i really really felt this one. i've been an anxious person for most of my life, but this year my thoughts have snowballed into an anxiety disorder and weekly therapy sessions to deal with that and medication to make it easier to live. anxiety fucking sucks. but the one thing i have learned from my therapist that has helped me the most is that my anxious responses are trying to protect me. sure, they don't do a particularly good job of making things easier, and really do not seem helpful at all in the moment, but they are there for a reason. they are a biological response that you are having in order to protect you from something that is objectively scary. like, if you can't picture the future, but your brain can give you the worst-case scenario picture of the future, then you'll feel "more prepared" to face it. if you think through everything that could happen when you truly have no idea what's about to happen, maybe it will be less scary when it does. the bottom line is that resenting the fear doesn't help anything either. pushing it down won't make it go away. sometimes, you have to just sit in your negative feelings for a bit. "i am really really scared right now. i don't know what's about to happen". in times like these, sometimes acknowledging your emotions helps to process and move on. i don't know if this is what you were expressing, but this has been my character arc for the past six months or so. i hope this helps. and most of all, i hope that you know that this is a common feeling right now. you are not alone in your fear. not now, not ever.
@KimberlyH-r4o Жыл бұрын
"Grief"-- I call this feeling grief. And I think you mentioned all the classic Kubler-Ross steps. Ross Gay wrote "I would like to offer a working definition of grief, which in all likelihood I've cribbed from someone else...grief is the metabolism of change. Perhaps it's for this reason that the bodies of the grieving so often actually transform in the process of grieving..." I really like your earthquake metaphor of finding a new post-event normal. I have a chronic illness, and work with a lot of patients with chronic illnesses, and that description has an immediate familiarity to it.
@stayingmyself4 жыл бұрын
I broke my ankle in December last year and while I was still lying in the floor, waiting for the ambulance, the thing I was most upset about was that I would not be able to attend the Christmas concert of my choir the next week (and the pain, but that was surprisingly bearable) . I'd had all these plans for things I needed to get done before Christmas and suddenly they just all feel apart. It is definitely a weird feeling
@nicolenbbw79474 жыл бұрын
A song that has helped me heal from losing my future self is called "She Used to be Mine" by Sara Bareilles
@krismieko98354 жыл бұрын
the "fight just a little" line got me through the most recent rough patches in my life
@charlottecaywood1099 Жыл бұрын
I call that feeling a rockslide. You’re shocked and scared and also super confused what is happening but then in the blink of an eye that moment is over and what’s leftover is a completely different landscape than the one you’re used to walking on.
@escheewloo4 жыл бұрын
I think I would call it the "unfathoming", as in your fathoms unravel.
@daemn424 жыл бұрын
I like that. Realizing that what you thought you knew at a deep level, you don't know any more.
@TwentySeventhLetter4 жыл бұрын
+
@rukbat34 жыл бұрын
+
@mantra4ia4 жыл бұрын
+
@fadingendlessly4 жыл бұрын
This is very good!
@mintboy4 жыл бұрын
This video was so extremely real for me. I was diagnosed with celiac disease in 2015 after a year of doctors visits and blood tests and pain and sickness. But no longer eating gluten DIDN'T FIX ANYTHING. They told me that things would likely get better in six weeks, but I didn't, and I doubted my diagnosis so much and so often despite how unlikely a false positive was in my testing. I had a number of relapses of wearing gluten again. A couple where I didn't get sick afterwards and ate it for a whole week. Eventually, after another two years of testing and attempting medications, I learned that because I went undiagnosed with my celiac for 4 years from the ages of 10-14, I was extremely malnourished through puberty, which meant that my hormones hadn't developed properly, and I had all the symptoms of a 50 year old women who was going through menopause... At 16... I'm a lot better now. I'm on a whole lot of hormone replacements, and a very strict gluten free diet, and I get iron infusions for the anemia that the malnutrition also caused, but I'm not nearly as sick, and I think I know what the future at least sort of looks like. Thank you so much for this video Hank.
@sharayahsunshine114 жыл бұрын
One of my girl friends had this same issue with her oldest daughter who from birth to about 5 was extremely sick and malnourished. This was the time when celiac disease was still a new diagnosis but once they figured it out she developed into a healthy young girl. Its interesting how just that one thing wrecks such havoc in a person. Whether it's this or a variety of other complicated health issues. Glad you're feeling better.
@amphitheatreparkway3 жыл бұрын
This video kept popping up in my recommended. I remember watching it a year ago, when we barely knew anything about COVID's pathology and the dominant wisdom was that masks were ineffective in preventing transmission. At the time, I told everybody I was sure we'd be out in two months, and I repeated that constantly because the other option was to get sucked into the empty space left by the wuthering. Your prediction was absolutely correct. I didn't believe it a year ago, but a body really can get used to anything, even being hanged.
@nikkiwilliamson46654 жыл бұрын
Hey Hank. I’m dealing with an ulcerative colitis flare up right now. Struggling to get hold of my doctors and specialist nurses. I’ve been panicking. For some reason this video has calmed me a bit. I don’t know why. Maybe it’s just an ‘ah yes that is what I’m feeling’ that has calmed me. But whatever it is, thank you
@panthersmartiee4 жыл бұрын
Hi Nikki, you might check out the Healthline IBD app. Its a social networking app for people with IBD and I've found it really helpful during flares
@nikkiwilliamson46654 жыл бұрын
Adrian Moore I’ve never heard of that but I’ll check it out. Thanks :)
@matthewpowell62714 жыл бұрын
This exactly explains how I feel right now. I'm in my last semester at University and this is supposed to be a joyful time, showing off everything you have been doing in your senior project, looking forward to graduation and have a last few months with people you may never be this close to again. But today I left campus for the last time. All of my friends are heading home for social distancing and it's been really hard to think about how I'll never get to have that "college senior send-off".... Hopefully with everyone going to the internet to stay connected this feeling will become manageable but right now it feels incredibly hard to finish off this semester online 😢
@kkilinahe4 жыл бұрын
i was in my last semester too. i saw someone on twitter refer to us as a class as the "class of covid-19". morbid? maybe. i like it.
@PatrikKron4 жыл бұрын
I was in a simular situation. I was on a exchange program my last semester before my thesis. First time I spent more than a couple of days abroad. During the entire stay I knew about covid-19, but it was not a problem for Europe when I started. And then suddenly 1 infected, 5 infected, not much happen, and then university closes. I decide to go home, during the traveling home I get to know that a border will close, so I need to drive throughout the night. I god home though, and I might be able to finish some courses remotely. But now everything is different.
@electricharps4 жыл бұрын
In my last semester too and it feels so strange to have it end like this. When I found out (just over a week ago), I was briefly relieved (the cases in my city were going up and I would be glad to avoid the commute and the risk by staying home). But then it slowly started hitting me... and things just kept getting worse - the likelihood now being that we won’t even get a graduation. It’s this whole vague feeling of uncertainty and strangeness... that I keep going back and forth from fully grasping (like Hank describes).
@electricharps4 жыл бұрын
kate I kinda like that too tbh. At least it would help us have a short form to know to be able to talk about it.
@sampines54944 жыл бұрын
I’m in the same boat, it’s my last semester. It’s really only just hit me that I won’t really get to have a graduation. What am I even supposed to do come summer with the economy collapsing?
@MsFunkypish2 жыл бұрын
When my Grandmother died.....took me 15 yrs to stop swing back and forth waiting for the ground to stop moving g.... hoarding was my coping strategy ..now I'm clear g out.
@DampeS8N4 жыл бұрын
There is a phrase for this: Future Shock. From the book of the same name. It means: "too much change in too short a period of time"
@RamtheCowy4 жыл бұрын
The Alvin Toffler book?
@DampeS8N4 жыл бұрын
@@RamtheCowy Yes, is there more than one book with that name?
@RamtheCowy4 жыл бұрын
@@DampeS8N idk, I was just asking 😅 it's on my shortly-to-be-read list!
@stratoge4 жыл бұрын
I just read thru the entire Wikipedia page of the book after seeing this comment. Now I feel very tempted to read the book
@TheMakomirocket4 жыл бұрын
I wouldn't say that's the same. I think the aspiration is for something that can be a verb
@cubbletelescope7784 жыл бұрын
I did the same thing when I was first diagnosed with MS when I was 23. I went into remission, had literally no symptoms, started to believe maybe it was just a one time brain lesion, started to convince myself I wouldn't have to deal with it forever... Then 13 months into remission I lost most of the strength in my left side and couldn't speak clearly. It was a very serious, very scary moment that brought me back to reality and made me face it head on. This is one of the most relatable videos I e ever seen, for me personally.
@Lessareve Жыл бұрын
In French, we don't have a word, rather an expression for it : Le premier jour du reste de ta vie => first day of the rest of your life It's basically the understanding that you are experiencing a turning point, often leading you to an unexpected direction. It doesn't necessarily hold a bad omen to it though.
@mariekedejong12384 жыл бұрын
I had this feeling when I was standing in the trauma room during my first internship waiting for the trauma patient to come in. I resuscitated someone for the first time that day. They passed. Of course, getting into med school I knew it was life or death sometimes (or many times), but that made it very very real. I have been feeling this now for a few days as I watch the hospital slowly (and then more and more quickly) fill up with viral patients, knowing that very soon we will have no way to stop them dying. Nothing will ever be the same for any of us. But, in the wise words of Dori: just keep swimming
@melodysmash4 жыл бұрын
Thank you.
@QueenxRook4 жыл бұрын
It'd sounds like an internal paradigm shift, so can I suggest "the IPS," like a companion piece to the yipps? It's fun to say and lets me approach this moment in a playful way
@jadedphoenixprojects Жыл бұрын
Thank you for putting this process and emotion into words. I'm in the middle of this between needing spinal surgery, a relatively new neurodivergent diagnosis, and managing fibromyalgia while being a wife and mom of 3. It is yard to be weak in my weak moments and not worry about feeling like a burden.
@mainie_videoediting4 жыл бұрын
it's so weird when that 'wuthering' feeling happens for the first time, because it's like a whole meta level of wuthering, like you suddenly realise that it's possible for those life changing things to happen and you never thought they would. I think for me it was acquiring a small permanent injury and I was just like, wow, this can't be fixed, it'll always be this way now and I didn't know this was a part of life.
@joshuakhena26314 жыл бұрын
The mirror you’re looking into shatters and now you have to glue the pieces back together. That describes it for me.
@itsflyin4 жыл бұрын
Joshua Khena I don’t know you, but you have a beautiful way of describing words and I just wanted to say that you are such an amazing person, God bless you ❤️
@woodfur004 жыл бұрын
But "gluing the pieces back together" suggests that the future will be an imitation of the future you had before. I'm not sure that fits. I like metaphors you can extend in all directions.
@030elena4 жыл бұрын
@@woodfur00 I interpret this metaphor as saying you can piece the mirror back into any shape you want. It doesn't have to be a square or circle or whatever it was before. You reassess your understanding and assumptions about what it means to be, then have to figure out where to go from there. I think this metaphor works quite well.
@woodfur004 жыл бұрын
Elena Thomas I suppose. It's still hard for the mirror metaphor to accommodate more than one equally "correct" way to put the pieces together, I mean the way it was originally kind of stands apart, and nothing else is going to fit quite right and it's not going to get better over time.
@ponyote3 жыл бұрын
Y'know, I'd absolutely love to see a one-year follow up to this specific post. #newnormal
@siyaagarwal95984 жыл бұрын
"Imagining the future is a kind of nostalgia. (...) You spend your whole life stuck in the labyrinth, thinking about how you'll escape it one day, and how awesome it will be, and imagining that future keeps you going, but you never do it. You just use the future to escape the present." I think when we experience " wuthering", it feels so unreal because our memory of the imagined future is gone. It's the equivalent of realizing that a story we believe to be our past is actually false and we do not know what the true story actually is.
@mooglew17053 жыл бұрын
This reminds me of a line from Hamilton, "I've imagined death so often it feels just like a memory."