Peter Rowe - Orthostatic Intolerance in EDS/HSD

[@SpectrumOfChange]

Dr Rowe is the best

[@marina_m11]

Wonderful webinar, I learned so much! Thank you to Dr. Rowe & The Ehlers-Danlos Society for this important information. I will be on the lookout for the print out as well

[@CLove-mo7cc]

This has explained my condition completely

[@drnicolemeastmand.o.2974]

Thank you for this. I have Ehlers Danlos and Hypermobility, dysautonomia (positive tilt table test), etc., and a trigger event of getting hit by a semi-truck at 65 mph on 12/15/2010. All of the pieces are finally fitting together after seeking answers since childhood.

[@lAcedUpLiss]

Thank you so much for sharing this informative webinar. As someone diagnosed with EDS, POTS and MCAS I have found this information extremely helpful and look forward to sharing it with my GP and trying to implement the non-pharmacological solutions.

[@HeidiCullinan_Author]

This just radically changed my daughter's life and my own. We both have hEDS and have orthostatic intolerance which presents in different ways. Thank you so much!

[@perttiylenius]

Good webinar. Thank you very much. Many things confirmed the belief that we are on the right line with medication.

[@kengray1291]

How do we get a print out of this presentation, if one is available. Thank you Dr. Rowe & EDS Society!

[@meri_soturi]

Great explanations and succinct information

[@dustyfeller]

13:40 No HR or BP changes but do have reduced cerebral blood flow. Therefore should respond to therapy. Dutch study.

[@Advocate.bettie]

Has dr. Francis Visser publish the low orthostatic tolerance research yet?

[@slavkoputnik227]

This is extremely useful. Thank you.

[@divacassandra1]

slide at 36:56

[@ArayaLight]

This was amazing! I hope to get my pcp/ np to listen. They are clueless on how to help me.

[@strengthinstripes5849]

What is it called when the HR and the BP spike severely when standing?

[@wandaryan4250]

Need a support group, we live in Surprise, Arizona

[@LaniBanani]

Okay trying dairy free and body shapers first. Thankyou!

[@misscazb85]

I been directed to this video from the Ehlers Danlos Syndrome Page on Facebook, really informative, would to love know how medication such as amatriplyn would affect with suspected POTs I have also got hEDS and Fibromyalgia

[@ambertyler5844]

How do I get a print out?

[@TheEhlersDanlosSociety]

The slides are available in PDF from bit.ly/2TBj1sZ

[@lindajohnson668]

As a certified holistic health coach who loves learning about medical conditions and investigating natural wellness solutions for them, how would I be invited to attend these webinars live?

[@TheEhlersDanlosSociety]

They're webinars - all you have to do is sign up beforehand. They're announced in our newsletter, sign up through ehlersdanlossociety.dm.networkforgood.com/forms/connect-newsletter-sign-up, at our web site www.ehlers-danlos.com/webinar-schedule/, on our Facebook page, facebook.com/ehlers.danlos/, on Instagram @ehlers.danlos, and on twitter.com/TheEDSociety - the next is scheduled on January 30, more information soon.