🏥 PRE-OP APPOINTMENT AT THE NEW HOSPITAL! 🏥

Vlog 11.18.19 - Pre-op appointment for an endoscope!
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[@thefreylife]

Wow- that turned out to be a much longer day at the hospital than we anticipated- but alas, we did it 💪🏻

[@darlenehaley6781]

I had an appointment with my Neorogist today. Glad it's over. He was sweet though. God bless ya'll

[@thefreylife]

@@darlenehaley6781 I hope your appointment went well! Keep on keeping on!

[@darlenehaley6781]

@@thefreylife Thank you. Love ya'll 🙏

[@abbykuusisto1085]

@TheFreyLife Mary, Are you going to be sedated for the procedure???

[@pattyfluegel7816]

Alas: an expression of grief, pity, or concern. Sorrowfully we did it?

[@denisejones7780]

Peter is the best support for Mary, she is so lucky to have him.

[@thefreylife]

DENISE JONE he really is the best, although I'm a little biased :)

[@swaglieri]

Their relationship is the cutest thing I’ve ever seen

[@kellyreed2768]

Peter's doghnut looks delicious. 💚🍩❤

[@hannahl8628]

i've been busy recently and haven't watched your videos for a while. i didn't realize how much i've missed you!

[@thefreylife]

Awe we're glad you're back banana_12 07 :)

[@geraldinebayliss1154]

Happy Monday. I received my ‘remember the little things’ mug and sweatshirt today I love them. Thank you. Love and hugs. Geraldine xxx

[@thefreylife]

Geraldine Yay! I'm so glad you got them and like them :)

[@cassie4490]

Oh my GOSH 😱 your voice sounds so much better and you just have that glow back in your face. This literally makes my heart SO happy. Praying for you both ♥️

[@lynnrose7562]

The two of you have such a fantastic relationship. I have been married for a long time and it is obvious that you guys get it. xo

[@gointothedogs2]

So sorry your first experience for an endoscopy was like that. I believe if they give a patient anesthetics and it doesnt work and they cant give something else they need to reschedule or patient gets to decide. Patients have rights and can speak up but dont feel at ease to do that. Thats when family comes in handy. Now Peter would speak up and say, were going to reschedule this when someone decides what is a med she can safely take that will work. You both have had so much experience you will teach and give them a lot of good info. To take care of you and also help to consider other patients needs and possible issues! I hope they are appreciative of such valuable knowledge. I believe they will learn quite quickly your a blessing to there work!

[@penelopepolinsneemeyer4757]

Glad we could keep you company! xxxxxxxxxxxx

[@hannahmack5651]

It's hilarious for me that you guys moved to Durham just months after I had to move back to Virginia Beach (because my health could no longer be managed on my own)! When Mary said how "Duke is a lot of walking," I was alone in my room like, "Yeah it is" haha. It's just a funny experience for me - I don't know why lol. Like I've never been to Boston, but I lived in Durham for almost 3 years, have followed your story for at least that long, and just know Durham so, so well! I was kicking myself on my need to move back home... Seriously, it was mere months between my exit and your arrival haha (obviously still catching up on vlogs after a year hiatus)

[@TaleRavenTarot]

Mary Oliver is an amazing poet! You should check out some of her poetry! She was my professor in college. Wild Geese is amazing.

[@Dreamer5211]

Hi Guys , Mary so sorry you have to go through an endoscopy , but at least you know what to expect , and you can still have a smile !! Peter and Ollie will bring you a treat after I am sure !! Thanks for the vlog , CU guys tomorrow , take care , Gary 

[@christinecruz2805]

It's funny that you post this today I had an upper endoscopy this morning. Apparently I have celiac disease I was surprised at how sore my throat is. Good luck!

[@nancywilliams6777]

You’re right about lots of walking at Duke. Way, way far back is trauma orthopedics. I had to get a wheelchair at first when they were taking care of my broken hip, but later I walked it. Talk about a hard way to get your stamina back: all the the way from trauma ortho to the parking garage is a fur piece (southern for far away).

[@Eileen-kx8wy]

Yes, it was nervous time for you going to a new hospital. I am glad that is done. It was great to see you walking out with Peter. I took time for a cup of coffee. I hope you can rest or do something quiet and fun after that day. Peter, play your guitar for Mary in front of the fire place. Ollie, I am so glad your fence is ready and you can get out and run and play.

[@thefreylife]

Thanks Eileen, I'm so glad I was able to walk in and out with Peter :)

[@too_tired_for_this]

How do you keep all of your medical records? I’m trying to organize mine, and I have no idea what I’m doing!!

[@bridgetkelley3891]

Would also like to see this!!

[@michellec7996]

I'd love to know what you do too Mary! I have created folders for each of my specialists online. Each folder contains a notes page where I record notes from each visit, scans of documents, and call logs to keep track of who I talk to and what they say. I also have a spreadsheet with all my drs and their phone numbers, all my diagnosis, allergies, previous surgeries and all my meds (with doses, times and prescribing dr). My binder system was too heavy to take to all my appointments. And because all the files are online my family can access them if they need too. I have a direct link to the file on my phone and use my phone to input notes at my appointments.

[@melissaf554]

I am very interested in this as well. I have binders upon binders of records and my medical care is in three separate cities. It really creates a lot of paperwork.

[@MayimHastings]

That’s a serious accomplishment! Whew, so glad you are done with all that! Thank y’all so much for the cacti 🌵 mug, you guys are speedy! My Moms b-day is next week & she’s going to love it. Love y’all, rest and build up that might! 🥰

[@lezup]

Upper endoscopy, that’s fun. I lost my voice for a week on that one. I can’t imagine doing that awake. The thought of being awake and intubated freaks me out. It’s great that they are checking everything out. Donuts, yum 😋. Spleen strokes. I guess you are a good teaching case. Mary Oliver, cool name.

[@benjaminfreyman4273]

You'll have to show us that back yard again in the daylight. 👍 A fence is Soo important

[@Johanna.EG.]

You two would love Mary Oliver's poetry. That can be one good thing to come of a day of waiting. :)

[@ejdoug8328]

As I recall, when we moved to Durham, anything Duke affiliated " Took a lot longer than anticipated" pediatric appts. turned into 3 hr long outings. We had to change places.

[@carolinelvsewe]

Craziness but what a blessing that they are looking at you carefully as a new patient 🧐💕

[@Jamie-tk9dg]

Yeah, there was a fib on the whiteboard 😂😂🤣 Love you guys ♥️

[@thefreylife]

😂

[@txangel922]

Poor Mary, I understand the frustration of huge delays at doctors I'm sorry you had to go through that.

[@sunnya8]

My face mask has been making my face really hot lately as well, I was like whyyyy is this happening!? 😂

[@thefreylife]

sunnya8 I'm glad I'm not the only one :)

[@shellyf798]

I had an endoscopy like that too. I wasn't sedated I gagged the whole time the Dr was so forceful my throat was hurting I lost my voice. Barack. I'm sorry you went through that also.

[@theresagrosscup1968]

How in the world did you make it through an upper endoscopy awake? I awoke during one and freaked out. Still have nightmares from that. I over emphasize the importance of giving me enough drugs to keep me sleeping. Your a better person than I.

[@thefreylife]

Theresa that would be freaky to fall asleep and then wake up in the middle of it!

[@kpratt6685]

You're both making me extremely happy my sedation has never failed. The idea of either experience totally freaks me out.

[@bettinat7238]

I got to Duke all the time. Some clinics are faster then others. I’ve learned if it’s not connected to the Duke South Clinics where you were at it’s usually a lot quicker to get in and out. Also, your next pre-op testing see if they can schedule you at the one on Page Rd. The one you were at is always behind, Page Rd is usually a quick in and out with easier parking and they have radiology there too.

[@artastic_23]

Anyone else have POTS? I got diagnosed earlier this year. I have seizures. It’s terrible. I also have asthma so I know not being able to breathe is terrible. Hi Peter and Mary! : )

[@thefreylife]

Hi Anna, so sorry to hear you're going through all of that but I'm glad you were able to get some answers with your diagnosis! Keep on pressing on!

[@artastic_23]

The Frey Life Thank you very much! Say hi to Oliver from me

[@bethanywilson7113]

@@artastic_23 hey anna, I actually have POTS, but I don't have seizures. I am really sorry you are going thru that. And with asthma, too. You may want to check out Amy Fisher's channels (one is called 'amy's life' and then she has a vlogs channel too). She has battled POTS and a bunch of comorbidities for a long time. She has Ehlers-Danlos Syndrome, which is what I have, and can be an underlying cause of POTS. I actually found the Frey Life thru amy mentioning them in a vlog. Christina Doherty might be another one to check out. Or there's another lady, Monica Snyder, who has a lot of these diagnoses and writes beautiful blogs at monicakayesnyder.com I think. I don't know how to say thank you to The Frey Life and the ppl I just mentioned for sharing their stories and bringing community to ppl who can't always go out and get it bc of illness. I sincerely wish you all the best.

[@laniemo7016]

I have POTS and epilepsy!

[@kimberlyhayes6006]

I got intubated while fully awake but paralyzed and let me tell you how painfuuuuuul that was!!!! It’s happened 3 times!

[@thefreylife]

Kimberly oh my goodness!! You are a trooper!

[@liesbeth9810]

They usually don’t do any sedation where I live during upper endoscopy.. and if they do, it is just a little versed that doesn’t do much like at all.

[@Ladypuppy510]

Liesbeth Bruinekool that’s awful.

[@courtneybrandt4603]

When my husband was going back for skin graft surgery for a burn he sustained from a kitchen fire I was a basket case. I had no support from my family (due to it being to early in the morning). So I climbed the walls for about 2 hours until some other people came in and I forced myself to sit so I wouldn’t make them nervous. Oh man that was the longest 2 hours of my life. Even though I knew that the hospital was ranked #1 in the nation. I’m thankful everything turned out great.

[@Kotapises]

When I did my upper endoscopy when I was 17 I didn't get any sedation. I drank a small cup of something numbing for the upper throat but that was it. I think I could have gotten something for relaxing, but I didn't, don't know why. It was not a pleasant experience. I think it's normal to do it without sedation in Sweden, but I'm not sure. Just happy I only had to do it once!

[@queenpigs]

I have to get an endoscopy tomorrow for the 11th time for my GI issues. Sedation is my friend lol Good luck!

[@thefreylife]

V Laprade oh wow I'm glad you have sedation for all of those!

[@sireeable]

How does Peter manage this.. he is at risk of bacterial infection too from Mary.. though CF genetic problem,coughing,mucus that comes out might cause bacteria to spread..just curious

[@janaye7iverson]

❤️❤️❤️ you are a trooper! Love you guys! Mary: Have you heard the song nobody by casting crowns! I love the words so much!!!

[@LupusPositiveLife]

💜hope you are having a good today💜 we all know Ollie is too cute but here I go saying it again 💕🤓

[@thefreylife]

Awe thanks Glendora Living positive with Lupus! Hope you've had a great day too!

[@albertglass2594]

Peter and Mary we are praying for you.

[@athenasnydr]

Duke is the best place! I go there for my eyes.

[@timburnette5914]

I pray everything goes great. Hopefully me and my wife can meet up with y’all one day in Durham. My dads still there and it looks like it will be quite awhile longer. I’d love to buy y’all lunch! 🙏🏻🙏🏻

[@ambertrosper1345]

Happy Monday!

[@thefreylife]

Happy Monday Amber :)

[@Littlegooseums]

I recently had an endoscopy without sedation....it was the most hideous 15min ever. My insides hurt for hours after.

[@curlybibliophagist2]

Hugs

[@eagoodwin1]

I’m so sorry. That’s one of my biggest nightmares. When I was a first year nursing student I spent a day with the endoscopy nurses and saw the whole process.

[@thefreylife]

Little Gooseums ouch!!!

[@Ladypuppy510]

I would never do that. Why no sedation?

[@bettersecret1499]

In my country every procedure like colonscopy, endoscopy, ecc is under sedation. It wasn't in the past but there were some major incidents with people panicking and trying to take everything out and I think a woman died too so they decided that you can't do it awake. Unless allergies to drugs or something

[@yeetskeet7568]

Love y'all!!!!!

[@CollieMonster]

I heard beeping while I was watching this, and since you were at the hospital I figured it was hospital noises. Then you changed rooms and I still heard the beeping. Muted the video, and still beeping. Turns out it was my carbon monoxide alarm. Two hours later, we're all safe and back inside and I can finally finish watching, haha!

[@lorieknupp7499]

I had a similar experience during a bronchoscopy, the doctor didn't believe me until I repeated everything he said during the procedure

[@thefreylife]

Lorie oh wow!

[@robinhood4640]

Same for me while the doctor was drilling holes in the bone of my foot after a motorcycle accident to put metal pins in it. When i told them where all the different hands were holding my lower limbs they then believed me that i could feel everything below my waist. The nurse panicked a bit because she didn't know what to do. Everything was put on hold hoping the anaestetic would finally take effect but we ended up finishing it with lots of pain. When our body doesn't obey the doctors rules they rarely believe us.

[@lakeside4485]

Ooooh!! Where the donut from? That looks like something I need. 🍩❤️

[@haleyaud7297]

I almost died during my first and last endoscopy. Scary! Good luck, God bless.

[@MissSavvySue]

It's always good to just LOOK AT YA LIVA!!!

[@maryreynolds5310]

To bad there wasn’t a dry erase there, you could have put that 4 in front of the 0. One of the things I need to work on myself, patience. Hey Mary, I had a stroke too, parts of my colon. xo Have a good evening

[@krisfightingfibromyalgia3099]

I hope you are getting a good rest after this day 💚

[@falishacloutier426]

My cheeks have also been burning off lately lol think it’s just the change in the weather

[@rainbowzebra260]

I woke up pretty quickly during my first endoscopy, and they tried to knock me out using the max dose of meds and it didn’t work... EDS caused anaesthetic resistance, happened two more times (another endoscopy and wisdom teeth removal where they dislocated my jaw) before anyone would listen to me and actually agree to change the drugs. Then with new drugs I slept through but when they woke me up I was paralysed and had to be kept intubated until the paralysing drugs wore off 🙃

[@Bestbirths]

I love you guys

[@deathbym0nkeys]

added to my list of things to say now: look at ya liva!

[@cherylemaybury9967]

I have had several endoscopies without sedation. It seems to differ between hospitals. It doesn’t bother me anymore because they spray the back of my throat with an anaesthetic so I don’t feel the tube go down. Sometimes they scratch my throat when they pull the tube up and I have a sore throat for a few days which is the worst part.

[@MeganSmithers]

Oh wow I’ve never had a preop appointment for an endoscopy. That seems annoying

[@AnjaJ92]

Mary, have you ever tried the cambridge mask pro? If not, would you like to? If yes, what is the reason you don't use it anymore? I love your videos, they inspire me! Be blessed.

[@MrCockatiel2007]

My niece works in critical care as certified nurse practitioner at the hospital you are at.

[@kaylabarnes]

Wow, c'mon Chicago doc.

[@johnsonfamilyvidsvlogs3745]

Thank God you didn't have a long ride home.

[@FkD814]

I was looking up the cost of triple combo just out of curiosity... almost 25k a month

[@jacquelinemichelenomsule602]

Wow that's a lot

[@curlybibliophagist2]

Can you share the poem so that we can read it?

[@jacquelinemichelenomsule602]

Mary, I can relate ..I had a bad experience with sedation for an endoscopy. .I was not sedated well I was awake and keep gagging they kept giving more sedation. . Took two days to sleep it off....It was bad ugh. I have had at least 6 since and they all went fine.

[@alisonedwards63]

Hi i had an upper endoscopy a few years ago. With no sedation. While it wasnt great it only takes a few minutes. I was supposed to have another 2 weeks ago but because this dr told me i had to sedate i chose not to do it. Hope all goes well for you!

[@kathleenstewart6852]

I have had the same experience with an upper endoscopy .

[@sonog721]

Usually we look at the kidneys again after the patient uses the bathroom if there is hydronephrosis to see if it resolves its self

[@thefreylife]

sono g that makes sense, thanks for sharing!

[@phildavis6801]

I don't have a spleen. I actually grew two accessory spleens that had to be removed after I had the original one removed due to ITP. So I can relate to your spleen issues.

[@thefreylife]

Oh wow Phil, thanks for sharing!

[@Flo-cy4xc]

Isthe grey frey life hat you wore yesterday Peter available on the store? Couldn't find it :)

[@thefreylife]

Hi Amy, here is the link to the hats we currently have available on our store :) Have a great rest of your day! store.thefreylife.com/collections/bags/Hats

[@chelseahartslief1372]

In the South African government/state hospitals they don't sedate you at all. They spray your throat which is supposed to stop the gag reflex but it did nothing for me. Worst experience of my life! I choked on my own vomit and ended up with aspiration pneumonia xD

[@connimace258]

Ollie sooo cute.

[@thefreylife]

Conni he's the cutest! :) *although I might be a little biased ;)

[@carolynk.9856]

Well at least you didn’t have an hour long drive home! Just wondering, would they consider taking out your enlarged spleen at your transplant surgery time?

[@nathantatosian280]

Hi Mary and Peter Mary good luck

[@SoraLove599]

If you have any problems at Duke let me know ❤️❤️❤️ I’ve got peeps in good places

[@acarroll]

I don't like the versed cocktail. I much prefer propofol and always request it now.

[@eej1983able]

Ugh I have to get an endoscopy for the bad reflux. No meds I've tried are working. Best of luck! Not sure when mine will be. Hoping next week

[@thefreylife]

Erin I hope you're able to get yours soon, keep on pressing on!

[@henrietterowland7280]

Wow, I came in third and I'm in Australia. Anyway just wanted to say I had a endoscopy a couple of months ago, they found out I have a very small throat, so whilst doing the procedure thay had trouble keeping me breathing, but it al worked out fine, no other problems found.😅❤️🇦🇺

[@thefreylife]

Henriette Oh goodness - were you awake for that?

[@annabellethepaladin3795]

What happened to Peters thumb? It looked bruised under part of the nail 😧

[@kellideal3250]

I believe he closed it in a car door.

[@loramarshall3517]

With your spleen issues, is it possible to get a spleen transplant?

[@Honkey-Donkey]

I have issues with anesthesia and had the same thing happen during one of my upper scopes. No fun. Unbeknownst to the anesthesiologist I was awake during a surgery too, and felt everything. That was awful.

[@kadeline1]

Mary if your medicine isn't covered by insurance (and I'm sure it's quite expensive) here's Needymed's page, which will direct you to the Vertex patient assistance program: www.needymeds.org/brand-drug/name/Trikafta

[@deborahconkle6822]

❤️

[@djlawlz4041]

Ah, the joys of pre-op...

[@AnAspiesPOV]

So since I send you a video every time I come out of surgery (particularly 2 uppers)... should I be expecting a doped up Mary video? :P

[@jennkindle]

They were too busy to update the sign I guess!

[@vdeniceeckert3494]

Why cant they remove the spleen ? I dont have one. Since 1997. Fine

[@146shell]

Why do you need a pre op for endoscopy? I was awake for my colonoscopy and endoscopy? I got sedation but not put to sleep? I felt it wasn’t bad at all. Hope it goes well for you

[@smokeyybearhugs9092]

I get put to sleep for both, full on anaesthesiologist and everything. It depends on the patient, AND the doctor.

[@146shell]

Smokeyy Bear Hugs hmm yea, I’m in the uk so might make a difference

[@lyndadenford6292]

I had an endoscopy, yuk, they put the tube up my nostril which was not quite as wide as the tube, eek!

[@thefreylife]

Lynda oh ouch!

[@bonnieletson3043]

I just had one, I get one every two years. I have hyena hernia and GERD. I couldn't believe going through that WITHOUT some sleepy MEDICINE. I also have to have a colonoscopy every year as I had colon cancer along with a enlarged spleen and diverticulosis and colitis. I am having cervical surgery December 6th, C5-6. So I am also going through pre-op procedures.

[@thefreylife]

Bonnie I hope your surgery goes well in a few weeks, keep us posted if you're up to it :) Keep on pressing on!

[@bonnieletson3043]

@@thefreylife Thank you for responding 💞See... How generally caring you TWO are. I will keep you posted AS... I talk to you EVERY DAY !!! LOL

[@katiemckinney3520]

Why didnt you bring Ollie to hospital?

[@katiemckinney3520]

Oops i see him

[@TraumaSurvivorCynthia]

Thumbs up #678 for The Frey Life!!✌🦋🌷 I used to be a morning person until dealing with being on the Gastroparesis diet and not able to drink coffee☕ anymore.😥🥀 I am underweight (117 pounds at 5'7" tall)and losing my challenge of gaining.😳 Love Cindy on the Coast of Oregon.🌴 #davesandersstepdaughter 💙

[@annmbast3665]

How does a spleen have a stroke? What causes it?

[@JuicyPricklePeach]

She has a video on it I don't remember what it is called though.

[@elizabethann5308]

A stroke is a lack of blood flow and oxygen.

[@trishab2147]

Preop for endoscopy? No

[@angelagendreau3586]

I had an endoscopy before. It was hard. I have a hiatal hernia and acid reflux.

[@mom2tdks2012]

Horrible American Drs yelling at you to go asleep !!

[@lauraz5210]

Wow, what @$$holes... They did it anyway... Crazy .. Wonder if they'd be that way if you were under 18(pediatric patient)... Sorry but that is nuts... Much Love🙏

[@abby.tucker27]

Second can I have a shoutout I love you channel

[@kaylabarnes]

That thumb looks nasty Peter.

[@BabyBunch]

First yay

[@BabyBunch]

I’ve never been first. That’s why I was so happy. Hugs to you guys and praying for you