Ally Hilfiger shares her experiences at Focus on Lyme 2017

[@shaynarose4254]

I’m so sorry for this nightmare! What a journey. You are SO BRAVE telling this story!!!! You’re so well spoken and telling this story is a must for others! 🌈🙏❤️

[@alicexx6260]

Thank you! Showing others that they can recover. I'm slowly dying in front of this family. I believe there are others who will carry the torch.

[@lovehopefaith3544]

What a beautiful soul. Ally's story is the voice of many! She is a miracle! I am grateful to have come across this video. TY TY. Thanks bundle. This sounds like MY story🙏🏼♡

[@rochelledouglassmceathron511]

My son has a similar story... but still living in oain. I am grateful for finding this info.

[@sararao8429]

Your book does give me hope. You speak well despite not going to college, I have Lyme, dyslexia, learning disabilitie, peeing issues, parents divorced, eldest, went to live with my dad for bit... Ty for your book

[@1o1s1s1i1e]

Thank you! I haven't experienced anything nearly as sever, but I went from bicycling over 4,000 miles each summer, cross-country skiing and snowshoeing, taking 5 to 8 mile walks, to struggling to walk at all. My heart was attacked with a bacterial infection and was reduced to pumping at 30% volume, and according to my cardiologist I'll be on medication for my damaged heart the rest of my life. If it were not for all the years bicycling and a strong heart I might have died. Take Lyme's disease very seriously! Vote for politicians who believe in "science" and that are willing to fund research! Like Ally said, you can't buy your way out of this disease. I live in the Upper Peninsula of Michigan, a State that relies on tourism, and they don't want to warn the public about how widespread and prevalent Lyme's disease is here, and it is!

[@danieluczak1037]

How's your heart doing now? What treatment did you get, if I may ask.

[@joshuamylesgibson]

Same, I was a runner. Had to sit upright in a recliner for six weeks with no medical help.

[@joshuamylesgibson]

May I ask, did it affect your heartrate? Mine went into bradycardia, but tachycardia with severe exercise intolerance when I attempted to do anything

[@remon563]

her story is my story except im not a fashion designer ;) what a beautiful soul this woman is.

[@rochelledouglassmceathron511]

Im sorry... I understand My 23 yr old son has been suffering since 7 as well. We just never knew what was wrong until a couple of days ago. I put it all together. I pray you how found your answers and are on the road to healing. ❤

[@remon563]

@@rochelledouglassmceathron511 thank you for your kind words Rochelle. Im doing better day by day but it is a bumpy road. Its not easy not being taken seriously by the medical "machine" but ive learned to accept the state of the world/myself. Humor helps allot, stoicism helps allot, creativity, friends and family help allot. For your son I could advice to start chelating metals as they are often a roadblock towards recovery from Lyme. Research AndyCuttler's chelation therapy if you are interested. Bonebroth, ant-lyme herbs (Buhner), good sleep regime, lower fast food/sugar/stress all help.

[@rochelledouglassmceathron511]

@@remon563 yep doing some of that now... Nut thanks for the metal detox idea... Was thinking about that already. There is a Chienes Medicine doc from Germany that says he has been having great success with this disease. But he calls it GU Syndrome Look it up

[@dawnlove1014]

I was misdiagnosed with the bullseye rash and all the classic symptoms. I begged the dr to treat me. Now, 1 and a half years later, I beg for 1 day without pain.

[@sonicaudio777]

yes they are supposed to give empathetic treatment not wait for the results especially if you have a rash so many Drs are clueless to this situation

[@skyelliott2207]

Know how you feel Ally, took 8 years figure it out .people think your crazy and have no clue. Thanks for your all hard work.

[@MustangsTrainsMowers]

Someone could make a movie about her journey with Lyme disease and it taking several years to get a diagnosis.

[@CatherineSTodd]

Boyd, and even after a "diagnosis," there is still no cure!

[@MustangsTrainsMowers]

My bite was between 82 and 84. Diagnosis 2013 and it’s now chronic Lyme. The Lyme is effecting the blood vessels in my skinny arms. If I have sugar I experience intense pain in my arms and they lose strength. Add to that my cold critical family who of which half of them barely talks to me. I just had a relationship fail in January. I don’t know how long I will last going through all of this.

[@audrachristine5044]

I really wish I knew her personally, because her story and mine are so similar other than having famous wealthy parents. ❤❤❤ There is something so insidious about how the CDC and the medical establishment refuses to educate themselves on this. Even though the CDC does not admit that chronic Lyme exists, and they only recognize the same testing that they’ve used for 20 or 30 years…there are plenty of NIH studies talking about how within six weeks borrelia can infiltrate the organs and build a biofilm that antibiotics cannot get past. And also keeps them from showing up on the testing. I really think there’s some thing nefarious behind their refusal to help people because they obviously know… and this whole “post Lyme syndrome” thing… basically what they’re calling everyone who is still sick after a round or two of Doxy, (possibly can be something real only in the way that having a disease like this throws your limbic system out of whack). But again NIH even admits that the rounds of Doxy can’t bust through the bio film. So they’re just gaslighting people telling them they don’t have it anymore but they have “post Lyme syndrome”. They might as well tell them they just have fibromyalgia again, because that’s obviously not a real diagnosis just like Fibro isn’t. But I just finally got diagnosed after insisting that that had to be it, and being told that my wonky tests were false positives. And a lot of the big research hospitals in Ohio like Osu don’t even diagnose or treat it. I’ve probably had this since I was about 11 years old and I’m now 47. There’s been many ups and downs with my functionality, but it’s been 10 years or more since I’ve been able to lead any kind of normal life. Just finally getting the diagnosis, which had to come from functional medicine at the Cleveland clinic, using Igenex testing that the FDA still won’t approve, I just feel so validated. And of course there’s other things that come along with it…. Usually not one bacteria is passed on from the ticks. And then that wreaks havoc on your immune system opens you up to mold toxicity, and heavy metal and many other things that normally wouldn’t be able to beat your immune system. I just hope that I can have a story that helps people eventually too!!! 🙏🙏🙏🙏🙏❤️❤️❤️❤️❤️

[@andrzejszarata2477]

Thank you Ally.... ❤

[@annettekramek2917]

Thank you so much. You are beautiful and courageous. What a divine spirit.

[@CatherineSTodd]

Thank you for this wonderful video... we need to speak out and bring awareness, and find a cure! It's got to be more than just a "tick bite." God bless!

[@audrachristine5044]

I hope that her daughter has been thoroughly checked, because a lot of evidence shows it can be passed on from mother to child. And actually a lot of the tickborne illnesses are passed on generation, after generation within the ticks themselves! Like tickborne, relapsing fever, which I have…

[@candacelee3864]

I’m sure they are on top of congenital lyme

[@audrachristine5044]

@@candacelee3864 unfortunately they’re not, it took 29 years for me to finally get diagnosed with chronic Lyme , and my story is very similar to hers. I was medically gaslighted for TWENTY years and the standard testing is only 50% accurate, but even with that I had positive antibodies, but we told they said they were false positives. You might as well flip a coin. There is better testing out there but the FDA claims they don’t see a reason to approve it. I finally was diagnosed by the Cleveland Clinic, but Osu is a gigantic research hospital and I was referred there first only to be told that they do not diagnose or treat Lyme by their infectious disease dept. I also tried an elite group of infectious disease specialists, and was told the same thing! But the Borrellia bacteria is very similar to syphilis, and that is both sexually transmitted and transmitted from mother to child in the womb. There is a lot of weird stuff with the government and Lyme disease. There are several documentaries that kind of explain why… “under our skin” is one from 2008 that’s available on KZbin and so is its sequel (I wouldn’t suggest that anyone with Lyme disease watch it without watching the sequel because it makes you feel hopeless). and “a silent pandemic” (which is difficult to find )is the one that exposes quite a bit about why they brush it under the rug.

[@CatherineSTodd]

I have been sick with Lyme for 15 years. Nothing has brought a cure, so even with a "test" it doesn't make a difference. Hoping one day there is a REAL cure!

[@hollykeller1545]

👏🏻👏🏻👏🏻Great talk!❤️🎄❤️🎄

[@pureone26]

Thanks Ally xo

[@lelamoore7178]

know lymes, know the neurological effects of this illness.

[@James-ln3hx]

I need help .In Texas

[@Seeker2400]

😭😭😭

[@candacelee3864]

36 years undiagnosed

[@jjpaix]

8:23

[@candacelee3864]

She’s speaking of neuroplasticity

[@MRAIDANGWALSH]

Decades to diagnose EDS some never get properly diagnosed you are no doubts Sick but Sorry it is not Lyme Disease as you are told & misled by these Groups

[@riot2405]

Then why are we getting better with antibiotic treatment? EDS doesn't go into remission with antibioitics.

[@andreafox3473]

You sir have no clue what you are talking about.

[@MRAIDANGWALSH]

You are all lost in Lyme, the Cause has not been found & that s a fact all these are is Antibodies, in the 80's you all jumped the fence from a CFS diagnosis into Lyme it is not what you think it is I suggest that once NIAID/NIH comes out with the true test of multiple copies of Tryptase found some have 2, 3 4 copies called Tryptasemia you all will see it is not Lyme at all...I got Lyme yes ANTIBODIES *Lyme literate ass hole Doctors lunatics

[@robinbreeds9217]

@@MRAIDANGWALSH Your clueless antibody tests come back negative and do not prove anything then with scans people have had Candida infections, or other tests proved other infections, Richard J. Ablin exposes how a discovery he made in 1970, the prostate-specific antigen (PSA), was co-opted by the pharmaceutical industry into a multibillion-dollar business, PSA was never meant to be used for screening prostate cancer, and yet nonetheless the test was patented and approved by the FDA

[@MRAIDANGWALSH]

There is NO CAUSE yet found on MS what you are saying is unproven theories & Lyme is not any cause of ME/CFS Fibro or Ehlers Danlos Syndrome types they are Lyme Antibodies. The only tie to Lyme could be in some the Alpha Gal Meat Allergy & countless now are Positive to (HATS) Hereditary Alpha Tryptasemia Syndrome a Genetic Born condition passed on from each Parent which was found by NIH/NIAID Scientists & was Published online in Nature Genetics back around Oct. 16th. 2016 & the test is available in a Houston Texas lab called www.genebygene.com cost is $169.00 & also numerous now even being found to have a condition that also has ties to possible Genetics it is called Eagle Syndrome look it up on Wikipedia...Countless have said it is Lyme, Mold even radiation sickness it is not & that is certain...All the links above can be found on KZbin & it still has not been proven that (HATS) is the Cause more work needs to be done. Proper images can be done for Eagle Syndrome it can be missed also on MRI it is mostly found on CT Scans, Dental Panoramic x-rays & certain radiology x-rays measuring both bones...I am not here to stir the Lyme Pot I am here to show you all it is not Lyme as any Causal Agent & even if it is in some the Alpha Gal Meat Allergy it does not mean one has a persistent Lyme infection, what it means is one has an Animal Protein Sugar in ones blood & it is in countless foods, home products & medicines even antibiotics contain Pig Gelatin capsules they are allergic to Gelatin & magnesium stearate...