TRAVELLING WITH ANKYLOSING SPONDYLITIS | TIPS & TRICKS | THISIZZTHELIFE

[@AkashKumar-sg9ez]

U r really a good positive energy for the AS warriors...u r my one of the source of inspiration..keep up the good work. Enjoy life and keep sharing the positive energy it helps me as well in fighting AS. 👍

[@natalierose2202]

I've been putting of traveling ever since I got diagnosed, especially since we tried a few driving trips (think 8 hours round trip) and I was in excruciating pain. I wish I hadn't gotten so stuck in my own head about what I couldn't do and figured out how I could what I wanted to do instead. I'm taking my first transcontinental (I'm from the States) and over the Pacific trips soon and your tips and tricks have helped. Thank you so much! Love your positivity and attitude! 💜💜💜💜💜💜💜

[@pantheistpinchingpennies2529]

I love that you said "OTT," which I assume is "over the top." I haven't heard that before, but it's so much better than saying OCD!

[@SPONDYLITISdotORG]

Hey Izzy. Are you interested in sharing your travel tips for the holidays?

[@notpublic7149]

This is wicked helpful, cheers!

[@SPONDYLITISdotORG]

Thanks for sharing your tips!

[@ThisIzzTheLife]

SPONDYLITISdotORG no problem! Hope they were helpful!

[@LouiseUsher]

Hey again, it's your new stalker lol. I think I will have to use you as my positive focus as many forums are SOOO depressing and I'm determined to go travelling too. I would love your tips on how you do it, budgets and all. I think one or two years of planning (and having lots of regular holidays) is my ideal. My GP is back from holiday this week and I'm sure he will be in touch and they have also just tested me for RA too. No idea when I'm seeing the rheumatologist. Hows your trip going?

[@ThisIzzTheLife]

Aw I found the same, that’s exactly why I made these videos.. I wanted to show that you CAN still live your life with AS & it doesn’t have to stop you! (Might just need a little extra planning)! Ah that’s a great idea, I’ll try and get some videos out on how we budgeted & planned for it! Good luck with everything in that respect, I hope you get to see the rheumatologist soon & get it sorted! All the best! Xx

[@omarelbahar2422]

Do you still have pain after taking medication ?! I am having all the symptoms of this disease but i still not been diagnosed by a doctor still at December, i can’t sleep from the pain in my low back and sacroiliac joints , i just wanted to know if this pain is going to stop after taking medication or i am going to live with it , Support you in your journey.

[@ThisIzzTheLife]

Hi, my pain is waaaaay better managed after taking medication. I don’t feel the constant pain in my sacroiliac joints that was making it hard for me to walk / carry out daily tasks (although I do get it occasionally during flare ups). I also sleep way better than I did before. I do still experience lower level pain frequently and have flare ups where it can be hard to carry out daily tasks but in general I’m a lot lot better. So please don’t loose hope! I’m actually planning to record a video all about dealing with pain so I hope that helps too! Xx

[@omarelbahar2422]

Thank you for sharing it with us , Hope you enjoy your life ❤️ And keep up the good work

[@ThisIzzTheLife]

Thank you! You too! Good luck with everything!

[@jayapareek7221]

Hey Izzy, I've been diagnosed with AS lately. However, I've been experiencing pains for a year now. After a month of taking sulfasalazine medications, I do not feel much great. The flare-up I'm experiencing currently is perhaps the worst that I have been through. I don't feel better. The pain makes me want to kill myself. Sometimes I wish I had cancer instead of AS. At least I would have died easily by that.