What A Seizure Looks Like In Class (bad FND day)

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Zara Beth

Zara Beth

Жыл бұрын

Vote for me in the National Diversity Awards Here!! ↓
www.nationaldiversityawards.c...
This is a more serious video for awareness of one of my conditions, functional neurological disorder 🎗️
Some people may find this hard to watch so please look after yourselves, but if you can watch, please take in all the information I've typed as captions as it really explains exactly how I feel during an episode like this
I wanted to share a very real-time and upfront experience to show the behind the scenes of my conditions that don't usually make it into my usual vlogs and videos.
FND can be an absolutely debilitating condition and many people suffer from it - if you have FND or a similar chronic illness, I sympathise with you so much. Please know that you are never ever alone ❤️
Learn about FND here ↓
fndhope.org/fnd-guide/
don't forget to subscribe! ♡
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My Social Media 👇🏻
Instagram ▹ / zara.bethx
TikTok ▹ / zeezee25
Discord Server ▹ / discord
linktr.ee/zarabeth
BUSINESS ONLY EMAIL: enquiries@zarabeth.co.uk
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JOIN ▹
Become a channel member to get access to perks! 💌
/ @zara_beth
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Music ▹
Stream my song "She's Mine" here 👇🏻
distrokid.com/hyperfollow/zar...
Like the music? Find my playlist with the music I've used here:
And, if you sign up to Epidemic Sound through the playlist link, you'll get 1 month for free!
share.epidemicsound.com/g31jc...
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FAQs ▹
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and suspected POTS
2. How tall are you?
‣ 5'4"
3. How old are you?
‣ 17
3. Am I in school?
‣ I'm currently studying art, music tech and English at college!
4. What is FND?
‣ fndhope.org/fnd-guide/
5. What is Tourette's?
‣ www.cdc.gov/ncbddd/tourette/f...
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Tourette's syndrome is a neurological condition and disability which causes involuntary movements called tics. I use my platforms on social media such as TikTok, KZbin and Instagram to advocate and raise awareness for the condition and show what it is like living with a disability as a teen in school.
My name is Zara Beth (zeezee25 on tiktok) and I post videos about tics, tic disorders and what its like to be a teen living with Tourette's syndrome, Functional Neurological Disorder (FND) and a seizure disorder (NEAD/NES).
I show what its like having tics and Tourettes in class and in school and college, vlog, and I also bake, do other challenges and answer all your questions in Q and A videos.
I am also an ambulatory wheelchair user so I show what life looks like using various mobility aids and how needs change from day to day!
I am also a musician! My newest release is my first single (original song) called "She's Mine" which is now available on all streaming services - I sing and play piano, guitar, ukulele and I write, produce, mix and master all my own songs and content myself!

Пікірлер: 319
@wholetmeonhere
@wholetmeonhere Жыл бұрын
zara, you are truly a light in this world and i’m so grateful you’re here
@jorginagibson853
@jorginagibson853 Жыл бұрын
I was just wondering if you'd be able to make a full video just giving information on FND and what kind of feelings you get when you have your seizures? If that's an uncomfortable topic for you and you don't want to, that's completely understandable. Thank you so much for everything that you already have done and for your service to this world. You make it easier for people to understand and you don't get enough credit for your work
@Zara_Beth
@Zara_Beth Жыл бұрын
i’d love to! ❤
@chevysilveradofantech8201
@chevysilveradofantech8201 Жыл бұрын
I one long time ago i know it feels dont Worry
@user-ig4oi7dc6g
@user-ig4oi7dc6g 5 ай бұрын
@@Zara_Beth hi Zara! I have Tourrets too and I love ur channel! Also could you please tell me what FND means?
@Auric-BraiNerd
@Auric-BraiNerd Жыл бұрын
I am a (child) neurologist and I just want to say thank you to you for the exposure you're giving to FND. I know as a field neurologists often drop the ball especially with functional concerns but I just want you to know that I recognize your struggles are valid and the fact that you persist is a sign of your strength. You're doing an amazing thing, helping so many people and I am just impressed. Thank you.
@Nagaash
@Nagaash 7 ай бұрын
What do you think about her calling her FND spells as "seizure" - when they are actually PNEE.
@mcqueenXO
@mcqueenXO 4 ай бұрын
@@Nagaash Is FND more of a psychiatric disorder? I work in healthcare, but have only recently heard of FND. Is this more common in children or young adults?
@isla_theegg
@isla_theegg Жыл бұрын
i’m so sorry you have to go through days like this, you are a massive inspiration to so many people ❤
@millygd955
@millygd955 Жыл бұрын
I really hope you win the award!! You have made such a difference in my life dealing with a couple unexplained (to this day) illnesses. Hope you're having an alright day! And my god your school has good music tech facilities. Mine were awful 😂
@janinerusinovich3040
@janinerusinovich3040 2 ай бұрын
I googled information about this diease it is horrible
@joyallmon4979
@joyallmon4979 Жыл бұрын
I am a student, and I have a brain disorder that causes me to have seizures in class almost every other day, my dad had the same problem but his seizures are a bit different from mine, and he got his due to a brain surgery. I stumbled upon this video and I had one a few hours ago in the middle of a room full of kids. I haven’t seen or heard of any one who has the seizures like I do, that’s not my dad. Your video has made me feel connected, and valid. Thank you so much.
@janinerusinovich3040
@janinerusinovich3040 2 ай бұрын
Sorry to hear that my grandma had convulsions alot
@staceygrahame2504
@staceygrahame2504 Жыл бұрын
Congrats on the award. I was diagnosed with FND in my early twenties. (I’m now late 30s). I also have circulation issues/conditions, nerve conduction issues, absence seizures, occasional tics, a sleep disorder they can only describe as ‘like narcolepsy’, cataplexy and several other orthopaedic and immunology issues. It DOES get better. Because every day that we wake up and manage some kind of normal function, is a win. Thanks for openly sharing your journey to educate the younger generations. Literally nobody barely knew about anything when I was diagnosed. It was quite terrifying. But it’s only now that I know that I didn’t need to be scared. You’re doing wonderful. Happy to have come across your videos. ❤
@lofihiphopfrance8746
@lofihiphopfrance8746 Жыл бұрын
Wow. I was diagnosed by a neurologist with tourette syndrome but i feel like those seizures are extrememy familiar to me. The way you breath like you're lifting the whole word, the sudden but predictable seizures that for me people associate with lack of sleep...Thank you so much, hope one day i'll have words to put on all of that ❤
@carolinemarshall4860
@carolinemarshall4860 Жыл бұрын
I’m so sorry you have to deal with this and you deserve this nomination. Much love ❤️❤️❤️❤️
@TedTalksDrag
@TedTalksDrag Жыл бұрын
love you bestie, we are gonna have amazing lives despite FND, you’re so strong 🩷
@lolabrogan8978
@lolabrogan8978 Жыл бұрын
This was super interesting to watch. You obviously know a lot about how you deal with it and it was super informative! I have an out-of-school friend who has absence seizures so it was helpful to see what they might go through. Keep going and being amazing lovely!
@FrankLewis040
@FrankLewis040 Жыл бұрын
Congratulations on your nomination! That's gotta be pretty crazy. Thank you for making videos.
@Belleslifestyle
@Belleslifestyle 6 ай бұрын
My best friend fainted in music of dehydration, and everyone saw her and assumed she had a seizure. The next day everyone spread rumors abt her having a seizure, this obviously upset me because she texted me the same day of her fainting that it was just dehydration, and I even told people but they kept assuming. So this video reminded me of that situation. (My best friend is OKAY! It’s was a month ago.) but thank you for making this video! 😊❤
@peachyxxbrooke
@peachyxxbrooke 6 ай бұрын
Awh,that’s so upsetting,I hate how people just jump to conclusions without looking more into things,I’m glad you were there for her and she told you that she just fainted and it wasn’t a seizure.❤
@blackbeauty7499
@blackbeauty7499 Жыл бұрын
Thank you for this I have FND and this has been happening to me a lot lately and when I’m out with my children and I didn’t know what was going on. I hope your having a great weekend 🤗💕
@Chloe-oo1gh
@Chloe-oo1gh Жыл бұрын
I hope your doing alright even with everything you go through 💜
@lucycarmen02
@lucycarmen02 Жыл бұрын
It’s amazing that you share your story, I started having seizures, mostly tonic chronic seizures in September 2021. It came out of nowhere and massively effected me because I would get up to 7 big seizures every single day. I am so glad that you are showing how it affects you so I can have someone to relate to! I hope you are okay ❤
@geekybooknerd6819
@geekybooknerd6819 3 ай бұрын
I've been struggling with complications from a TBI I got in a car accident a few years ago and just found your channel tonight after feeling like crap for not getting everything done that I wanted to. I'm very type A personality and a perfectionist so the issues from my TBI making my old standards just not something I can realistically manage anymore is something I beat myself up about a lot and having you say it's OK to rest just did something for me so thank you. I'm also an animal science major so not a lot of ppl in my area of study really seem to get why I struggle as much as if I was like in engineering or something idk... or like why there are days I'm comfortable working with larger animals and days I'm not as comfortable (my emotional regulation was heavily impacted so if I'm already stressed I'm more prone to explosive episodes which the animals pick up on and it can make things dangerous for everyone involved, ie if the cows I work with get spooked, they can trample eachother or anyone near them because they're scared of my strong emotions and when I impact them like that I feel even worse and it's a whole cycle) I just gotta remember to take it a day at a time and continue to work on improving myself through therapy and coping methods so that I can be able to rationalize my emotions in the moment instead of breaking down and screaming and crying all at the same time 😅
@ameliahayward8935
@ameliahayward8935 Жыл бұрын
I'm so sorry you have to go through this but your so strong and brave. Stay safe and have a wonderful week
@IdkWhoIam-oy9lv
@IdkWhoIam-oy9lv Жыл бұрын
Tysm for all of your videos! You not only help make people aware but truly teach others throughout your videos. I am extremely sorry about you having to deal with these conditions
@Ghost._Mae
@Ghost._Mae Жыл бұрын
zara, i’m so sorry that you go through this but you are so strong and i would never think i would go as far as you. thank you for your content
@chaoticbeanchild2120
@chaoticbeanchild2120 Жыл бұрын
this was actually really helpful for me omg. i have fnd too but i’ve only been diagnosed for about 6 months and i’m still very much learning how to deal with it all. i have drop attacks and seizures pretty often but i always feel so anxious about it, as if it’s wrong to do or that i’m faking (lots of ocd too lmao). but seeing you have the same symptoms and the same reaction makes me feel so much better. thank you xoxoxox
@Zara_Beth
@Zara_Beth Жыл бұрын
you’re not alone ❤
@KylieFiore
@KylieFiore Жыл бұрын
I have FND as well. Your channel has brung me so much comfort since I got diagnosed and is making me think of making my own channel. Thank you for spreading awareness 🫶🏻
@mxxxxm3561
@mxxxxm3561 Жыл бұрын
Damn, you go through so much! You are such a strong person. And you are absolutely GORGEOUS! Also, congratulations for the nomination! I already voted for you
@Xen-Infinity
@Xen-Infinity Жыл бұрын
I just voted for you. You are so strong to be able to stay calm in those situations! I am so proud of you! I also have POTS... It really is a struggle. But just seeing how strong your mental stability is during hard days makes me feel like I can also do hard things! Thank you for being in this world and sharing your experiences with the world! I hope you can live a long and happy life! Keep being a beam of light on this seemingly dark world! With love❤, A Fellow Nero-Divergent Person
@Softballismysport14
@Softballismysport14 10 ай бұрын
I appreciate you sharing this video! I also struggle with FND seizures and haven’t met anyone with them! I have experienced exactly what has happened in your video so many times I can’t count. Thank you for being brave enough to share. It makes me feel less alone! You are so brave!
@thegingerbreadman2898
@thegingerbreadman2898 Жыл бұрын
I love how bright and sunny you make people feel! I hope your conditions get better, have a lovely day!
@ray01012010
@ray01012010 Жыл бұрын
You are a great inspiration to many people and I am very glad people are realizing it. Congratulation and I send my prayers as I hope more and more for you. You deserve it. I smiled and teared up and smiled again all in under a minute. Hope all is well rgrds
@bridgit001
@bridgit001 5 ай бұрын
Thank you so much for posting these.
@bratalie9227
@bratalie9227 Жыл бұрын
This has opened my eyes so much! Thank you! P.s. Voted!!🏆🙏🏻
@isy980
@isy980 6 ай бұрын
Hi, I just wanted to say thank you i saw one of your video a while ago but it stayed with me for some reason and about a week ago had a seizure in class and was hospitalized and diagnosed with FND so thank you for being so openen about and spreading awareness.
@HeidiBraun-wr9gs
@HeidiBraun-wr9gs 4 ай бұрын
Thank you so much for sharing this video! I have been battling FND for 17 years. A typical day for me can look exactly like what you just showed in this video. It has been a very isolating diagnosis because most people have never heard of FND. I constantly have to explain my disorder to friends, family, coworkers, or anyone who sees me having a seizure. I have felt so much shame for being “different,” and I spent many years trying to keep my FND a secret. THANK YOU for being willing to share this with the world. You are helping me reframe my beliefs… if you can confidently share your FND with the world, maybe I don’t need to be so ashamed of my FND. Thank you.
@melyssawindsor1178
@melyssawindsor1178 Жыл бұрын
i totally simpythis with you zara i have funtional tic and functional neurological disorder aswell where i get non epileptic sizures aswell and sometimes with get weak sore legs im here for you girl you can do this you got this girl i started watching you recently seeing the tics but just today i saw that you also had fnd and i almost cried for you in knowing how and what you have to go through cause i go through it myself keep moving forward girlly you got this
@adamh.7940
@adamh.7940 7 ай бұрын
Thank you for documenting these conditions and bringing more awareness to them. Often times, it is difficult to explain what is happening because it is so stigmatized. You are wonderful! (P.S. That is such an amazing mixing console right there, I love nerding out with cool tech!)
@craigtownsend6630
@craigtownsend6630 Жыл бұрын
I am so sorry for what you have to go through. God bless ❤🙏🏻❤
@lucyarrows
@lucyarrows Жыл бұрын
You are such an inspiration to me as I have my own things that I have to deal with but for a long time I felt like I was alone but when I discovered your chanel I could actually relate to you and see that I wasn't alone. ❤❤❤
@sarahgillard1538
@sarahgillard1538 Жыл бұрын
Be well, Zara. I pray your health improves. Thank you for sharing your health struggles so that people can better understand. We need more understanding of disability in our world.
@asmrsunset5065
@asmrsunset5065 Жыл бұрын
I always find these things interesting. Even tho you cannot control what goes on your brave. Thank you for always sharing these moments ❤️
@milkerr_
@milkerr_ 11 ай бұрын
I'm so sorry you have to go through this everyday man. If you need any support, just know we're here for you, ok?:)
@briademuth4559
@briademuth4559 5 ай бұрын
Thank you for this video, this helps me understand a lot of what my friend is going through, she has tics too, she says they can be painful at times because she has a lot of the head movements and clucking ones, i dont really know how to help her feel better so usually i just talk with her to try and help distract her from them but it dosent seem to help much. Thank you for this video :)
@paisleystillman6877
@paisleystillman6877 4 ай бұрын
as someone with adhd, you are very inspiring to me. i often find my self feeling like I physically CANT do my work, but you still do with so much more going on. thank you for sharing all you do!
@joannewojcik.7631
@joannewojcik.7631 Жыл бұрын
Aw its so sad to see you struggling so much here sending much love to you you cope so well with your conditions 💖💖♥️♥️❤️❤️♥️❤️♥️❤️♥️♥️❤️❤️♥️❤️♥️♥️💖❤️♥️❤️💖❤️❤️💖❤️💖❤️💖❤️💖❤️💖❤️💖❤️♥️❤️💖❤️❤️💖❤️💖❤️💖❤️♥️❤️💖❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️💖❤️💖❤️💖💖❤️❤️💖❤️💖💖❤️💖❤️💖❤️💖❤️💖❤️💖❤️💖❤️💖❤️💖💖❤️❤️💖
@pjonespresents9843
@pjonespresents9843 8 ай бұрын
what an incredibly sweet young lady, sharing an insight into how her condition affects her daily life, no doubt an inspiration to those who suffer the same or similar symptoms. thank you for sharing, and very interesting to watch, I will be following :)
@GRCTECH7
@GRCTECH7 Жыл бұрын
it's always hard for me to watch you struggling with your condition Zara but i always learn something new from your videos, your job of awareness is awesome ❤🙏🏻 you are probably helping so many people out there that are struggling with their conditions as well, and i bet this is so important for every single one of them, either to understand better their conditions or just to feel that they have someone who represents them 🙏🏻❤i hope you are feeling better already and had/are having a good weekend, have a good week as well Zara, take care ❤🙏🏻
@AleinWonderland
@AleinWonderland Жыл бұрын
Hey Zara thank you so much for sharing this. I have a lot of absent and grand mal seizures as well as tourettes. I’m still in the phase where they seem like a big deal. So watching you handle it so gracefully is really helpful to me and I greatly appreciate it. I’ll try not to be so scared now.
@merrymac5460
@merrymac5460 4 ай бұрын
Hi Zara, Thank you for sharing your experiences. It really helps others to understand your particular neurodivergency. I have severe sleep apnea, and when my cpap/bipap therapy is not working correctly, I can get very sleep deprived. That's when the weird stuff can happen for me. I am an artist, and I have often found myself falling asleep mid-drawing, whether I am pencilling or inking. It is much easier to fix the resulting snafoos when I am working on my iPad rather than using traditional materials. Your determination to continue onward and take time for self-care when needed is inspiring and comforting to me.
@_river_tics_
@_river_tics_ Жыл бұрын
I’m so sorry you have to go through this, lovely. Hope you’re okay now. ☺️💛
@khloebuford7890
@khloebuford7890 Жыл бұрын
I love your videos And I wish one day we can meet up and be best friends
@maxenvy2123
@maxenvy2123 7 ай бұрын
Didnt know seizures can be like this. Looks like a lot of work to go through the day with this
@paulthomas1052
@paulthomas1052 Жыл бұрын
Hi, another great video. Wish you all the best and I have voted for you too. Take it easy ! x
@superdrawerandsuperanimal8779
@superdrawerandsuperanimal8779 Жыл бұрын
I have voted for the award you really help spread awareness and I did in the message I wrote for the vote. I have hardships too it may not be tics or NPD or Tourette’s but it is visual impairment and I have so many hardships too but not just that I have a high chance of ADHD, OCD , and Autism. Thank you Zara and keep making videos.
@vectormodz6863
@vectormodz6863 5 ай бұрын
Good on you girl. Seem like your parents have done an amazing job, great character great human. I hope you live a happy life genuinely
@kimberlyp_shiprocker
@kimberlyp_shiprocker 8 ай бұрын
I've been trying to explain this to others for a while. And Friday I received my diagnosis, but I'm just seeing this today. I wouldn't have known what to look or video on my own since I didn't know what it was. Thank you for your strength and willingness to share your journey.
@lililiaboone4506
@lililiaboone4506 10 ай бұрын
Thank you for posting these kinds of videos it gives me something I can show the people around me I have had epilepsy since I was 5 I’m naw 30 and I still have them but those around me to notice my episodes not to mention how often a fainting spell looks like one is sleeping so agin thank you for making something I can show and explain to them so thay notes when it’s happening more
@islaberg1289
@islaberg1289 11 ай бұрын
Your amazing Zara I know on these days it can get hard but like you said tomorrow is a new day and with all your fans you can get through it but I know it's really hard and I hope tomorrow is easier then today was
@skyclimber3934
@skyclimber3934 9 ай бұрын
Wow, you are so strong Zara, I could not see me faring well with the loss of control, in fact I would be a total disaster. You're a real live inspiration, you go girl! 💙💙
@wickstuff
@wickstuff Ай бұрын
I love how you push through it in your life and work through stay strong❤
@roease6674
@roease6674 5 ай бұрын
I’m also a university student and have recently been diagnosed with FND, but I don’t experience the blackout / seizure symptoms. However I just wanted to say thank you for showing us this! Makes me feel a little less alone ❤. I’m always worried that with such a variable condition, it can get worse or better so seeing you gives me a lot of confidence for the future and that I’ll be able to continue my studies and learn how to best manage this❤️❤️
@user-eo6ws4ru2d
@user-eo6ws4ru2d 5 ай бұрын
Zara, your awesome and im so happy you are in this world i feel so sad that you have to go through that
@elishadoyle8191
@elishadoyle8191 Жыл бұрын
You are doing so well to still be in school and not giving up on learning xx
@halospark4389
@halospark4389 6 ай бұрын
I am a 13 year old with POTS and FND aswell, I watch you videos to make myself know that I am not alone. I wear compression socks for my POTS and they seem to help. I came across your channel a few weeks ago and I watch it whenever I feel hopeless and upset I watch you and you make me feel better. Thank you ❤
@kathrynbates9846
@kathrynbates9846 Жыл бұрын
You are amazing, thanks for sharing your content
@emmybilliot5494
@emmybilliot5494 Жыл бұрын
I love you Zara!!! I’m so proud of you and you are very beautiful ❤❤❤ KEEP GOING! ❤❤❤
@robbiebelll5597
@robbiebelll5597 7 ай бұрын
I have severe anxiety & panic disorder. An I feel like I can't deal sometimes. But you have way more things going on. & are still very active & handle it super well. You also remain calm. You do such a great job with the issues you have. I like to think I'm a fairly strong person, but I couldn't handle anything near what you do! Awesome job .
@Ellie_Ta
@Ellie_Ta Жыл бұрын
Zara you're so pretty! You have my full support. I recently found out that I have a few tics of my own. I never really noticed them until I started having vocal tics. It's definately worse than it use to be. Apparently I've had motorized tics when I was little. I happen to have tourettes in my family. My 9 yo brother has tourettes himself.
@THEDOPETRUTHCO
@THEDOPETRUTHCO 3 ай бұрын
So glad i found your page boo ❤ im 32 ., i have tonic clonicz , i had absense seizures at work Before also , i also get nocturnal at night 🌉 . Thanks for sharing 🙏 , i can seriously relate wen these make u feel out of ur body !
@The-edit-girl
@The-edit-girl Жыл бұрын
Your videos help a lot because I have a lot of the safe disorders as you ❤stay strong
@jamienevill1768
@jamienevill1768 8 ай бұрын
Thanks for posting this. Take care 👍 ☺ 💜
@DanPurdy1
@DanPurdy1 3 ай бұрын
You absolutely deserved that award. Your ability to deal with your conditions is a light to a lot of us.
@satansalley6526
@satansalley6526 Жыл бұрын
Wishing you all the best, love.Your one tough cookie✊
@Phiwipuss
@Phiwipuss 7 ай бұрын
this is so relatable?? omg, it feels so validating to see that my experiences with FND/PNES are so incredibly similar to other people's
@tabatha3415
@tabatha3415 Жыл бұрын
I hope you are resting ❤❤❤❤ hugs your way
@paranoidgenius9164
@paranoidgenius9164 4 ай бұрын
You would be excellent at ASMR because your soul is beautiful & it's content like this just warms my heart, thank you ❤
@malcolmgatenby6792
@malcolmgatenby6792 Жыл бұрын
Hi zara just voted for you let's hope you win. Your such an inspiration to people who have disabilities keep up the great work you do.
@zyairapinder2320
@zyairapinder2320 9 ай бұрын
Zara i can relate to you because i have seizures and i've had them at school at home while i was sleeping and i even had them at school in our bathroom and i had to go to the hospital multiple time and i'm only 14 and i had a seizure so bad at school in our hallway the our principal had to do CPR on me and i only toke 3 deep breaths and i had to get rushed to the hospital and i had to get a tube stuck down my throat so i could breath so i can relate to you just know your not in this alone and i also have a stare seizure Just know you are amazing and your not in this alone we are all struggling our own battles and you gave me confidence to just be me❤😝🥰😍🥳🤯🤓
@rdami5723
@rdami5723 6 ай бұрын
This made me cry... I just recently got told i might have FND by my new doctor after 8 years of unexplainable seizures and fainting spells. Everything you showed was literally everything I've been experiencing but had no way to express to others since a young age. Thank you so much for sharing, now i can use this to explain to my loved ones (i have difficulty explaining it and it makes me anxious). Thank you so much ❤
@shaleyabrooks2572
@shaleyabrooks2572 Жыл бұрын
hi Zara i love your videos. i recently got diagnosed with Tourette's at the start of 2023 and your videos and tiktoks have helped me see a little bit of what i have, it's really exhausting like you've said and being a 15 yr old teenager and loving school has made a big turn in my life. school isn't bad for me actually because a teacher that i know also has Tourette's and he knows some kids at our school that have it as well. and also this comment took me 2 hours to write because of my active motor tics, they are just through the roof right . sending lots of love xxx 🥰💖❤❤💕💕💖🥰
@Nadim-Lion-Heart
@Nadim-Lion-Heart 17 күн бұрын
"I wish you all the happiness. You are strong and beautiful despite your circumstances."
@joksterjelly9321
@joksterjelly9321 Жыл бұрын
Omg first time I’ve seen someone else with FND other than myself - obviously I know there are other people with the condition but still felt like lonely not seeing others irl and then this video pops up in recommended! Haha definitely feeling less alone :)
@ItzRosebud
@ItzRosebud Жыл бұрын
I never knew there was such a thing as absence seizures i always thought siezures were just shaking very rapidly
@DoeDoKu
@DoeDoKu Жыл бұрын
My thoughts exactly! I'm really curious how you can tell spacing out from absence seizures
@SageLlamas
@SageLlamas 11 ай бұрын
@@DoeDoKu in short, with an eeg- but someone who is spacing out will respond to their name being called/clapping/waving a hand in front of their face/etc. An absence seizure is lights off nobody home- it's like a 10 sec time jump. Oftentimes they're not noticed- hence the colloquialism "staring spells." Though there may be automatisms like lip smacking and eye fluttering, but those features are not requirements. If talking, the person may stop speaking during the middle of a word without any stuttering and pick up seconds later as if nothing happened, without any awareness a pause had taken place. And because they're generalized, you have no consciousness/awareness/recollection of the event unless someone notices, you're watching a clock face, or you have a sudden (snap-second) awareness that time has passed (suddenly crashed car, dropped something, 5 paces behind/lost a group, etc). Atypical onset absence seizures can be associated with impaired awareness rather than loss of consciousness and have a slightly longer course. The experience can also differ depending on where in the brain the seizure is originating from. Also, absence seizures can be so innocuously appearing/difficult to notice due to their length and lack of outward signs that people can go years without diagnosis. I am not a specialist so I recommend reading the Epilepsy Foundation's website if you are interested in learning more.
@laser6170
@laser6170 10 ай бұрын
@@SageLlamassince this is FND, not epilepsy, I don't think anything would show up on an EEG. I have FND and have had episodes while hooked up to a V-EEG with no abnormalities found. FND is a generic term for something presenting as a neurological disorder but it isn't evidenced by any testing.
@d4red3v1l8
@d4red3v1l8 6 ай бұрын
@@DoeDoKuThis might not be for everyone, but if you look at them you can kind of tell if part of their body is shaking and they’re just not moving.
@TamaraChaos
@TamaraChaos 3 ай бұрын
One just never knows what is going on in a person's life until they bring it life. Thanks for these videos.
@ghostie7790
@ghostie7790 11 ай бұрын
pheww this looks so hard to deal with! I'm very proud of you.
@zoebasina1804
@zoebasina1804 Жыл бұрын
This reminded me of my husband because he has epilepsy. This is sad what you're going through but we're all in this together ❤
@joshworley7560
@joshworley7560 10 ай бұрын
Being someone with uncontrolled epilepsy I get just quite how hard it is to be able to carry on with life after an extended period of seizures etc. the things that you do to raise awareness is absolutely amazing, thank you ❤❤
@victorianed3766
@victorianed3766 Жыл бұрын
u are so strong girl, keep it going
@vitorialima8399
@vitorialima8399 10 ай бұрын
I found your channel by accident, but I'm glad I did, my younger sister also has seizures, mostly the absence one, she has them since she was a baby, she also has sleep apnea, hypotonia, scoliosis, shorter legs tendons and might be on the autism spectrum. I might show her, because sometimes she gets self-conscious, that she is not alone, she is now 11-years-old and she knows that she is not like her friends. Since she started taking her medication, they are not as frequent as they were before, thank God that we live in Brazil and here we have free health care and medication for her, she even have free transportation, because her specific treatment is in a city 2 hours away from our house. Seizures run in our family, but the only person in our family like her lives in another state.
@cindr78
@cindr78 9 ай бұрын
Congratulations on being nominated!! 🎉❤🎉❤🎉❤
@AlyxXskuiall
@AlyxXskuiall Жыл бұрын
Your so calm ❤️ and your like so inspirational to me and my sister because she has FND and I have Tourette’s so thank you ❤️
@sophiaclanton1439
@sophiaclanton1439 Жыл бұрын
I think it's really cool that your in a music tech class!!! I myself am really into music and I find it absolutely amazing. I just found your channel and I love all your videos 😊I heard that you had a new song coming out and I thought that was WAY TOO COOL 🤘 I always wanted to have some kind of career in music but I always thought that I would never get far in life. But I just wanted to know what inspired you to take a music tech class and compose songs? Again, love your channel and your videos😊😊
@Zara_Beth
@Zara_Beth Жыл бұрын
hey! thank you for your comment :) I've always loved music and have written little songs ever since I can remember (though they weren't quite as good when I was little🤣) so when I saw the studios in my college I knew that studying music tech felt right for me!
@maaikebouwman1168
@maaikebouwman1168 Жыл бұрын
I find it very interesting that you show these things of you're disabilities. Good that you keep showing and explaining it. Also that you tell how you deal with things.👍
@Serukis
@Serukis Жыл бұрын
I also have FND. Thank you for bringing more awareness to this.
@joannac5769
@joannac5769 5 ай бұрын
Watching this video makes me feel seen. I have FND after a car accident. My seizures look exactly like yours. I am not dealing with ticks though. Your effort to show your world is so important!
@sha_rks
@sha_rks 7 ай бұрын
I love how she makes videos on this when for a lot of people it ccan be an uncomfortable topic. It makes you realize how hard it can be for people with these types of ddisorders/illnesses. And i bet a lot of people who have these but dont know what they are and stumbled across her youtube are grateful to now know what they are.
@DJRickValeOfficial
@DJRickValeOfficial 11 ай бұрын
You're so pretty and talented
@strangekitty2505
@strangekitty2505 Жыл бұрын
When I come out of my absent seizures I'm always disoriented and confused, I generally forget where I am and dont know what im doing. Its kinda comforting seeing someone have similar episodes tbh
@holly9464
@holly9464 8 ай бұрын
Thank you so much for sharing this, it is not easy sharing vulnerable moments like this. I hope it's okay to ask, and you absolutely don't have to answer at all, do your oxygen levels ever drop before/during/after any of this? I just thought I'd mention it as you struggle with your breathing/catching your breath, they might drop and maybe it could be useful to carry a small oxygen container with you? I'm not a medical professional at all, so please ask yours first! I hope you and anyone reading this has a wonderful day
@Snail_Bones1
@Snail_Bones1 Жыл бұрын
I agree that song was anxiety building, love you btw!
@DanielaBodoh
@DanielaBodoh Жыл бұрын
As someone who has never fainted before in my 21 years of life, I cannot imagine going through this every single day.
@ufavvsss
@ufavvsss Жыл бұрын
Hi I love ur vids❤ur so inspiring ❤❤❤❤
@mirandachumee1410
@mirandachumee1410 6 ай бұрын
I'm not spreading hate but I'm an epileptic who got diagnosed at age 14 I'm now 26 on medication that helps but seem to give me break throughs every few years or so. The type of seizures I have are grand mal and I have developed little twitches along my years of having epilepsy but do not classify them as tics. I have been watching your channel an noticed that you just recently brought up that you now have epilepsy if I'm correct. I never met someone with tics then also developed epilepsy along the way so it's very new to me an interesting to watch your videos. After a seizure you're usually very confused of your surroundings and can't remember anything. You don't even know that you had one.. at least that is my case. Your body does naturally go into a safe mode and you do try to lay down or you even go into panic modes and ask for help. It's nice to see that you can understand what is happening during all of it because I can't even get my phone out like that to show proof. I see you're wearing an apple watch also.. there is an app that can help family member know you had one, paramedics, people around you and gives location. It's saved me from one of my most serious seizures I had to where I had one for 4 min while being by myself at a park with my puppy. It's called SeizAlarm if you want to look into it :)
@AnnaMarie-7894
@AnnaMarie-7894 Жыл бұрын
Hope your doing ok ❤ I’d like some more info on your fainting days because I don’t fully understand, it that’s ok 👍
@aylaandfriendsdostuff5589
@aylaandfriendsdostuff5589 Жыл бұрын
Wow congrats I am so proud of you
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