Causes of Nonepileptic Seizures (PNES). Hint, NOT Stress!

[@DrOmarDanoun]

✅ Get evaluated by Dr. Omar Danoun directly, book your online appointment now (for age 16 years and older) appointment.dromardanoun.com/ In USA, please call the clinic

[@Insanity_in_Sanity]

Could it be silimilar to how eds create changes in brain when the tipping point is hit and autonomic systems stepping in with secondary or reduced sensory and autonomic system steps up when entering fight/ fright/ survival mode

[@emrys24]

It’s so refreshing to see a doctor talk like this about my disorder, especially from such an empathetic perspective.

[@AleshaneeTinoco]

I had four PNES seizures yesterday and am right now watching this from my hospital bed. Thank you for taking this condition seriously.

[@vanessagomes]

How are you doing now?

[@growinggenerationshomestea516]

Why are you in the hospital?

[@Spacecadet499]

@@growinggenerationshomestea516what is this video about ?

[@GIPI_explorer]

I get nocturnal seizures without having epilepsy. It could be PNES. My wife has found me on the floor shaking, with eyes rolled up, unresponsive, etc. Although it could be unrelated, I also get visual and tactile hallucinations, and I talk loudly (screams) in my sleep, waking everyone up at home. Your advice and POV will be most appreciated. Thank you!

[@phoenixpierce3484]

@@GIPI_explorermine happen mostly at night also

[@crystalthompson4058]

Thank you for being so open minded. I was diagnosed with pnes functional neurological disorder and Chiari Malformation. I has decompressed and then started having these issues, that’s when doctors just told me they didn’t know how to help me. It robbed me of my quality of life but through prayer worship and meditation I am now seizure free. I give God all the glory for healing me.

[@DrOmarDanoun]

You are welcome

[@June-rb1nx]

@@DrOmarDanoun I have Chiari Malformation & was told by my Neurosurgeon ( who is the Prof. & Chair if the Neurosurgery Dept of a major hospital in US, NOT to have the decompression surgery UNTIL it got much worse. It’s been several yrs and still haven’t had it. I’m glad because I think so many ppl jump right in have the surgery & then end up with even more serious issues.

[@galacticastrologist]

Decompressed from a chiropractor?

[@kimberly6200]

Amazing! They say faith the size of a mustard seed can move a mountain and all we need is faith to believe that he will heal...i realized....now i know!!! ❤❤❤❤❤❤❤❤❤

[@jeanward9984]

I am a healer and I am becoming a psychologist. I can cure your problem but you have to be willing to deal with the trauma. Mental suppression drugs will only make your seizures worse. I developed a new kind of exposure therapy and I wrote a paper based on my data and sent it in to the American psychiatric Association!

[@andrewwright7855]

Yesterday I had 6 seizures in succession (I’ve never had seizures in my life) the cat scan and mri and eeg came back showing no neurological epilepsy. They suggested PNES, but I have been having issues with people blaming me for somehow causing these seizures. Thank you for helping me not feel so responsible.

[@dougfredricks2017]

I was approved last year for Disability due to Seizure Disorder tied to a stroke I had a few years ago

[@shbs-ec8ij]

how does this have anything to do with above story. @@dougfredricks2017

[@shbs-ec8ij]

go into the epilepsy monitoring unit if they are that frequent. surely that would capture an episode.

[@Sweepee-v2v]

Unbelievable! People are useless, animals have more understanding of us. How can we be responsible for a seizure. ❤

[@livinglife1874]

It’s because you’re too kind to people:)

[@KlouseInTheKloudz]

Glad to know there is actually doctors out there educated on my disability, have had a lot of issues especially latley with Drs laughing at me.

[@AliceSylph]

Thank you, when I got diagnosed with pnes I received no help; my neurologist still refuses to call them seizures. I decided to help myself and trained my dog to alert and respond to my seizures. I was told it was impossible because there are no changes that a dog would be able to detect. She's been trained for almost 3 years and has a 100% success rate, detecting my seizures up 5-10 minutes before they happen, meaning no more drop seizures. I have multiple video evidence of this so my gp has agreed she is successfully detecting to my pnes. The only way this is possible is if changes are happening in my body long before the seizure physically begins, similarly to an epileptic seizures such as a chemical change in scent. She is also able to tell when a seizure is going to be a really bad one, where I'm unconscious for a long time and am paralysed for hours afterwards, she will start barking within one minute of the seizure and again has been right 100% of the time. I would absolutely love to be researched on to see if there are any changes that can be medically detected when my dog first alerts. Before her I have such little warning I frequently had drop seizures, so she's completely changed my view on my own condition

[@crystalthompson4058]

I also have a dog who detects when a seizure is about to occur. She has always been 100% accurate.

[@sproutchinn]

My dog also detects mine!

[@amandaschrepel3946]

Have you looked into tracking your episodes compared to changes in barometric pressure? Animals would be in tune to that and all of my episodes tend to line up with that if there was no other obvious known trigger. Just a thought. Very cool how dogs can help.

[@ItsJustSoSweet]

What type of dog do you have and where did you have her trained? Is she a certified service dog now or certified emotional support dog?

[@AliceSylph]

@ItsJustSoSweet I'm in the UK where there is no assistance dog registry. I am an animal behaviourist and dog trainer so trained her myself

[@ZaiEntertainer]

Thank you! I’m the artist who created the song “PNES” and the official music videos… Thank you for helping spread this message- this helps even more than you know. THANK YOU ❤

[@jameshodgson9875]

People like you give me relief. I have been struggling with these seizures since 18! 27 now and over the past couple years they have certainly died down. Been called deluded by doctors even though I have all supported evidence that they’re non epileptic. I met a psychological neurologist and he told me I was absolutely correct and that I was treated disgusting but still no one wants to believe him! I have been nearly a year seizure free and the GP told me if I go over a year without meds then they can take epilepsy off my doctors record! So many years of being called deluded and selfish by doctors and family only my friends believed me. Will be a big 🖕 to the doctor who called me deluded and my family lol

[@jillien28]

I've been treated this way as well been having these since 15 I am now 43 and my new doc has made me feel like im crazy

[@kay624]

this is so good to hear. everyone says i'm stressed and no one listens when i say im not 😢

[@tr1ppyh1ppieee]

Oh my gosh that sounds so annoying to end going through

[@TheJayJay26102]

@kay624 OMG I can 100% relate to that! I went to the E.R. a few days after (the hospital clinic wouldn't see me because I said my "my chest had a faint pain and (about 6 other symptoms related to the seizure)." They did all the test for my heart and told me I was stressed. Friends, too. But I'm as stress-free as I can get right now!! No one was believing me😂 I believe you!

[@yvonneafriyie6807]

​@@TheJayJay26102I told my neurologist I feel something like electric shock in my brain when I am about to have a seizure, but he disputed that. It's so frustrating.

[@StonerLonerLi]

Same, I’m so emotional and love so hard ppl thing I’m being mean or spiteful when that’s not my intention at all.

[@angelabrown8458]

I really appreciate you saying essentially that we are all wanted which ever way we are as individuals despite what we may think of as faults in our bodies and personalities. I don’t have PNES but I do have depression. I’m also a paramedic so I see these patients and their families and they just want to be believed and helped. Great series of videos, thank you.

[@daniellefrank007]

I want to cry right now, thank you so much. I just spent 10 days in the hospital doing an EEG. 35 years with epilepsy. And now I feel CRAZY. 😫 Subscribing

[@DrOmarDanoun]

Thank you for sharing your experience

[@Spacecadet499]

At least they did the right test and even tested u

[@dejaylong1214]

I’m going to UVA starting Tuesday for a week having to stay in the EMU and doing the EEG and I’ve never stayed in a hospital that long for testing and monitoring…

[@joshdbarber]

Wait… you know he’s not talking about epilepsy right? To clarify, you have been diagnosed with epilepsy after this hospital stay? That’s not PNES (though can have PNES on top of epilepsy)

[@arilawrence5853]

Thank you so so much for talking about that. I got diagnosed with PNES 2 years ago. It’s so relieving to have a professional neurologically validate my experience. I’ve had so many doctors tell me it’s fake, or that I need to “just stop.” I hope this info gets spread around the medical community.

[@jeanward9984]

Please don’t take mental suppression drugs because it makes this condition worse! I cure people who have PNES using exposure therapy. You can get rid of this and I have found the answer!

[@Sweepee-v2v]

Shocking treatment coming from a doctor.

[@GeorginaH-p6r]

I wish you could train doctors , first responders in UK. You explain it very well. When doctors in the UK turn their backs on you and say functional = fake, they just add to your trauma.

[@Sweepee-v2v]

Just a panic attack and put on heart pills is what I got. UK 🇬🇧

[@levelframe4584]

@@Sweepee-v2vwow

[@Spacecadet499]

It’s in America too it’s everywhere no one sees it as a seizure

[@marshallsweatherhiking1820]

I don’t truly understand that diagnostic process. It’s impossible to attach electrodes while someone is having an episode. Clearly no unusual activity will be triggered by simple flashing lights if that is not the source region. The symptoms of functional seizures have more in common with focal seizures that originate in the limbic area.

[@Tom_Omixcloud]

At age 46 I developed this condition. 46!! Already disabled from a slew of other mental health issues both from the US military and from social security. I'm grateful that I have the VA to help me with this shit, because it's horrible.

[@levelframe4584]

Hey, you mentioned that you worked in the military and the security guard you mentioned your jobs experience, because do you think that had an impact on you ? Do you think working all these jobs made you tired?

[@Truerealism747]

What illness do you have in the body

[@madamerose9473]

I'm still in the process of doctors trying to diagnose me, after I got my first seizure 3 years ago at age 39. I live in South Africa, I'm seeing an Internist and we all are at a loss... Thank you for your kindness, Doctor Omar, I started crying with your kind words, a I was watching and listening to your kind words "we need you, we don't need the careless ones" and also "we don't want to change you". I'm sharing your videos with my Sister, as I'm still not diagnosed and currently on Tegretol (which unfortunately makes me sweat a lot - I hate that) to keep the seizures to less frequent and Ativan when I feel "unwell" and getting an absent seizure or I say the line "no, no, go away", then my Sister knows to get me to a safe place and pop an Ativan. I usually pass out and wake up later. But I just wanted to say thank you for your kind words and this series. It gives me a new perspective ❤

[@Sleeepinglion]

I woke up crying. Followed by 6 hours of insomnia. I had to take a Keppra dosage early to prevent the onset of a seizure!

[@pagalmasala]

I have drug resistant epilepsy. I just got out of the hospital after a 72 hour study for pre-surgical testing. They caught at least 6 epileptic seizures and now that we know that I am a candidate for surgery, I am glad we have alternatives. We are going to do scans in a couple of weeks.

[@kevinvolan4096]

Have you been checked for tumors etc. Or look into the vns machine

[@الأغا-ش1ك]

The best doctor ever , God bless you

[@RenGin510]

Wow, thank you for this. I was diagnosed with what it was called prior as pseudo seizures and the neurologist I went to had no interest in helping. Even though I was never helped through it, I am lucky that after getting out of a very emotional abusive relationship (of 15 years), all of my convulsions completely stopped. There was one or two very small ones while still in contact but after going full no contact I have had zero.

[@zandratheanointedone]

I am so grateful to have found these videos! I was diagnosed in April after advocating for myself and forcing people to listen

[@jairepp]

The more I see your videos! The more I see how good of a Dr you are!

[@arilawrence5853]

Thank you for talking about the different causes of PNES. I was in a PNES group treatment. Mine comes from my trauma and comorbid dissociative disorder and BPD. One woman got hers after giving birth. One woman developed hers at the age of 55. Everyone is different.

[@autimarie]

Omigosh thank you so much for this, especially for saying "we don't want to change you." This is the first PNES video I've watched that makes me feel held in acceptance. I'm so happy I found your channel today 🙏

[@pr787trade]

THANK YOU FOR ALL YOUR HARD WORK AND WISDOM .

[@DrOmarDanoun]

You are so welcome!

[@angelahall3077]

I have had this for 23 years. I think what bothers me the most is that i feel so alone in this.

[@mombiethezombie7536]

I was recently diagnosed with this and it honestly shocked me. I am one of those that doesn’t have any traumatic past event or, really, anything that I can recall that would trigger this. I do have anxiety, but I honestly can’t say if it’s the cause. It has been a very confusing time for me because I’m being made to feel like I’m crazy and it’s all in my head. These videos have helped me better understand this diagnosis.

[@jeanward9984]

Do you ever feel like you push your feelings way down? Mental suppression about life issues seems to be the cause. You need to deal with whatever you have pushed deep down in order to heal!

[@brothertn708]

Have the seizures continued?

[@KuyaCraig]

I was hospitalized last weekend to seizures again. It’s happened before. I’m convinced it’s psychological due to daily stressors and. I am one to internalize and keep things in. This makes sense. But let’s hope my neurologist finds the grave to keep me on medication this time around.

[@zenyediajackson4067]

I was diagnosed with PNES 3 years ago and mine are caused by complex PTSD and severe trauma. I had an abusive childhood an traumatic experiences like physical abuse-beatings, rape and molestation by 10 abusers) I suppressed the memories then got them back through nightmares/night terrors in my highschool years, still never had any major injuries or seizures up till this point in my life but a experience at 19 confronting the rapist who traumatized/affected me most caused a massive trigger and my seizures started. Therapy and weed are the only treatments that work for me and when in the first year they were every other day between 5-10 a day but now 3 years later they are only 1-3 times a day and I get them only once up to 3 times a week and sometimes have long periods of a week or week and a half seizure free now.💜SeizureWarriors💜

[@JenniferRandall-ql5ey]

I’m experiencing something similar. We are true warriors, friend. 🙏🏼💗

[@zenyediajackson4067]

@@JenniferRandall-ql5ey appreciate it hun, I know it's a struggle we just gotta believe in ourselves that we can win the battle🙏🏾💜

[@sophieisabelle1317]

Good on you for talking about triggers yet writing about your biography without trigger warnings..

[@wimsylogic65]

​@sophieisabelle1317 This is a video talking about ptsd seizures. Is non epileptic seizures connected to trauma, It's kind of to be expected that in some of the comments people will discuss trauma. If you cannot handle it then don't read it.

[@thecomputerguy6335]

The way you have described things so far has been scarily accurate to my past experiences and the presentation of my condition so far, other than that I don't particularly have shaking, being diagnosed with non epileptic seizures within the past month or so, even having placed quite a lot of this together myself and in similar ways to what you described, it's nice to hear that even if other doctors say that there isn't anything for them to treat that at least i know that there is at least something actually going on

[@freestylekettlebell7758]

I am so grateful I came across this video! I feel like a monster and your explanation makes me feel a lot better. I had 9 concussions and then a brain tumor/cancer treatment, and when I get upset or overstimulated I have these psuchogenic issues. It has been so haed with my relationships.

[@BionicGinger]

My 13yo has been having PNES and I couldn’t understand why… there’s no history of severe trauma like witnessing a murder. But then we realized the first one happened a few months ago- two days after our cat had an end-of-life seizure. He passed away a few weeks later, and that was the only seizure until this past week when we adopted a new kitten who’s missing her back paws (our cat who passed had lost the ability to use his back legs.) None of it clicked until I saw this, but now we’re sitting in the hospital hitting our foreheads 🤦‍♀️ How did I miss this?!

[@DrOmarDanoun]

Glad this video is helpful... Yes everyone has a different response and threshold for trauma. Not all is murder. To a kid this can be very traumatic. Hope your child feels better soon

[@danijelamikic5363]

This is exactly what happend to my daugther too.She wads in the car with shes boyfriend and than the cat past the street and she sow kill the cat,after that she couldn't speak and from that day she has PNES.We don't know what to do else.We visit a lot's of hospitls,doctots,neurologist,psiholosts ets,but nobody hlp her and us

[@RicheyBLS]

I have both Neurological and PNES seizures. Thanks for making these videos it helps me understand them a little better. For awhile my neurologist had a hard time figuring out while my medication was having such a hard time controlling my seizures. Sometimes I had positive EEGs showing my epilepsy and sometimes it wouldn't show at all. It wasn't until I did a 72 hour study that my PNES seizures happened without the EEG showing them.

[@DrOmarDanoun]

Glad to hear that..

[@staciehanlein7132]

Me too

[@vicros7065]

​@DrOmarDanoun how do explain the existing of epilepsy activities on this PNES patient?🤔 Coexistence with epilepsy? It's not a news that can have patients with epilepsy and PNES in the same time!

[@mikehunt3668]

Its so reassuring that im not alone with this condition, i want to thank the comment section and the community for that personal reassurance. I feel connected after all these years of feeling alone.. thank you all. I wish all the best, we will overcome and beat this

[@s.kreusler5081]

I think I might have this issue. I developed severe insomnia, can rarely fall asleep without medication, a few years ago, and the only cause that seems to fit is "one minor trauma after another, leading to the straw that broke the camel's back". A couple weeks ago I did EFT (Emotional Freedom Technique) Tapping to release a lifelong fear I've had, and my body, especially legs, started involuntarily convulsing and jerking RIGHT when I started that. So in addition to EFT Tapping to release fear and trauma, I also think I will be performing it on the Limbic System and Motor Cortex directly, to help ease them. Thank you for the insight in this video!

[@glitterbat_]

I believe this happened to me today at work. I've never felt more helpless, and all but one of my coworkers (who was leaving for the day) got angry with me. Thank you for helping me feel seen. I actually felt myself trying to become calmer as I listened. ♡

[@freeskier175]

Wow, very informative. I wish all the doctors I saw in the past eight years understood a bit of this.

[@shannoncochran7303]

I have been having seizures since age 20. They used to be sporadic. But since 2017 - now they have been more frequent and seem to be getting worse. I've never had any clear answers. Now that I am having the multiple times a year I'm doing all I can to fully understand seizures. My neurologist and I are starting to believe this is what I have. Thank you for your informative teaching. 11:54

[@melissashawnmooringredfiel8634]

Thank you for this video. I am a CNA and was diagnosed w PNES over 26 years ago. I’m a highly sensitive person. I also have a hx of epileptic seizures as a child. My seizures are not bad now as I control them w rest, low stress and meditations. Dr made me feel crazy when I was first diagnosed though.

[@tonyasmith1271]

My husband has CRPS and PNES as well as other functional symptoms. The lack of information and undertsanding out there is so frustrating! Thank you for getting more info out about them.

[@Truerealism747]

What is a ones I have fybromyalgia CFS decades found out causation heds autism adhd

[@AliciaGuitar]

I have crps and lots of issues due to a genetic mutation weakening the blood brain barrier. I found glutamates to trigger many things for me so we are trying memantine. It takes a while to work... we will see

[@jeanward9984]

I beat 5 psychiatrists already curing people who have PNES using exposure therapy and these people are living their best lives now!

[@carriefurr1]

A very well thought out and presented video that's compassionate towards misunderstood patients who have to deal with a lot of frustration concerning doctors and treatment given. Thank you!

[@jericocapa3393]

Godbless Dr.Omar . you make my mind comfortable and teach how to not scare my son's condition❤

[@mdtv427]

Very helpful discussion for someone dealing with a lot of lifelong medical Trauma, Chronic Pain and also as an adult a PNES Dx. To many times Drs will give a Dx such as this and send you out the door with no offer of help even. That is not medicine! Your explanations have helped me more than most Drs I’ve seen. The only other source that has truly offered help that really does help is the Comprehensive Center for Pain Management at Cleveland Clinic. Again, thank you so much

[@DrOmarDanoun]

You are welcome!

[@lorifoster4166]

I’ve had PNES since my 2nd COVID shot. I’ve never had them before. I’ve been treated like shit throughout the medical community!

[@Sweepee-v2v]

😢that is disgraceful. ❤

[@cheeseburger8055]

Sorry to hear that, I hope you get better.

[@inoshishi8]

They need complaints or lawsuits. To not be taken seriously can lead to further devastating issues depending on the cause.

[@Spacecadet499]

Yeah they don’t take us seriously I hate it I almost got admitted to a psych hospital while seizing , asked why I was sliding off the bed ,am I drunk on drugs , everything but what are your symptoms other than me visibly uncomfortable thrashing my limbs

[@inoshishi8]

@@Spacecadet499 Do you reside in the USA? They should be reported and investigated. I have a friend who's been mistreated for going to the ER several times from alcohol withdrawal. She was treated strictly for mental health only having severe physical symptoms from the withdrawal, esp neuromuscular. She was actually sent to IVC to a psych hosp for crying, being hopeless from the agony and unable to walk, had to be wheelchaired to each restroom trip, and back. The psych hosp treated her well luckily, but those that did the intake session before sent to the correct floor were horrible. This all took place in NC USA.

[@nakawayashamim2971]

Thank u doctor my 17 yr old daughter is experiencing that but most doctors are not well informed they send u to psychiatrist

[@phoenixpierce3484]

I went to the neurologist for my “episodes” who told me there was nothing wrong. After finding someone else with this, I spoke to my primary doctor and she thinks it is PNES. I can’t find anyone to diagnose it. It just began this year and I’m horrified to drive, and I’ve even lost my job behind it. My whole life has gone down for this

[@josie_.]

Thank you for being so open and actually wanting to talk about it!! I got diagnosed with PNES a little over a year ago and sometimes it gets rough but you have to find ways to get through the obstacles. I also have epilepsy so managing that and PNES can sometimes be hard at once but I’ve gotten used to it!

[@rylee01]

I have PNES, I had 18 seizures in 30 minutes one day and the ambulance was called on me, I was diagnosed a year ago but I keep having them with different triggers: heat, lights or strobe lights, my period, nightmares, my severe anxiety, very loud noises, PTSD memories that I didn’t want to remember but they come.

[@jezebelvolta]

Thank you for these videos, I feel that my husband is one of the tricky cases. Doctors want to diagnose with epilepsy and yet at times I can intervene and we can avoid seizures, they have a tonic and clinic style but he has no incontinence and he gets emotional once his body is no longer in seizure even though he isn’t yet back to normal consciousness, they didn’t start until he was 25 and they seem directly influenced by high stress and anxiety and at times alcohol. I wish we had a doctor near us that was willing to be as thorough as the processes you speak of so we could trust a final diagnosis. It’s so very hard to watch him suffer so much.

[@Ervinabrahamian]

Your comment is extremely eery. My wife and I read it together at the same time and were in shock. Everything you wrote is exactly our life. My seizures started at 25, high anxiety started around that same age. I'm not a big drinker but my wife thinks my heavy marijuana use had something to contribute. All my seizures happen during sleep except a couple that happened while standing midday. They're all tonic clonic style and also some petit mal style where she says I stare off into space and look like a lost little boy. Childhood abuse and trauma might have something to do with that look, who knows. No incontinence except for a few times, I'm 37 now and the seizures usually occur when I speak with my parents (the abusers). I'd love for you to get in touch with my wife or for me to get in touch with your husband. My neurologist has been no help even though we've shown her videos of the seizures, she refuses to call them seizures. I also get extremely emotional immediately after, screaming and cursing at my wife or the EMTs, nurses, etc...I have no recollection of the outbursts at all. The following days I feel like what I imagine a woman going through her period might feel like, extremely emotional, depressed, crying, etc...

[@annabelleleigh5597]

As someone with epilepsy stress is my main trigger. Anu drug use is also a trigger for epileptic seizure depending on the case but i always hear especially alcohol. Also for almost everyone with epilepsy seizures are more frequent during sleep and I am not sure why but that is why they have to sleep deprive you for the testing. By the way I have learned all this information from my neurologist. For me whenever I was in stressful situations was when I had the most seizures our mental health has a big impact on our physical bodies and that doesn't make the seizures phychogenic but if you get an EEG the doctor will be able to determine whether it is a psychogenic seizure or an epileptic one. I found for me that the symptoms to epilepsy and psychogenic seizures are very similar when i was reading even down to triggers so it really just depends on the EEG testing. hope this helps.

[@annabelleleigh5597]

Also if this makes this make more sense even though I have epileptic seizures I did not have them as a young kid I only started having them in middle school when the most traumatic events in my life happened so someone can be predisposed and not actually show the traits until something stressful triggers it in some cases. Thankfully I am healthy now out of the trauma and on a good medication which keeps me seizure free

[@Black4Fae]

I have DID and a large adult history of trauma and head injuries history in adult history as it is my method of self-harm throughout. Just recently am working with a neurologist to evaluate my seizure diagnosis, but they look a lot like PNES the neurologist told me. I do fit the compassionate aspect. Thanks for the information!

[@robinfischer1259]

Thank you so much for producing this video. I appreciate you sharing the science about PNES and I will be sharing this video with my patients who suffer from this condition.

[@duncanramsay9262]

I was diagnosed with this yesterday. My doctor, Dr Lewis, is a very polite and caring gentleman 👏 😀. We are trying to get me into a center similar to the one you run. We have been trying for at least a couple of years now. I know that I'm not the only person who needs help, so I don't complain. I just have gran mal seizures as well if my sodium gets low enough and I'm pretty sure my heart stopped one time in hospital when I had covid. I have a inoperable malformation of a very large AVM cluster on/in my cerebral cortex I have videos of both the pnes, and a 10 minute gran mal seizure.

[@pseudoSatyr]

I have borderline personality disorder and PNES. There is a very high percentage of people with this combination ! Its not very surprising considering it comes from emotional conflicts and stuff like that. Usually when it happens to me i completely dissociate and my body takes time to recover and work normally afterward.

[@NeelieLladnek]

You get sleepy after and end up taking a nap?

[@pseudoSatyr]

@@NeelieLladnek Oh absolutely, I actually often pass out during because of how physically exhausting they are.

[@dancingheart6224]

I get the same thing. I dissociate first and then a few seconds later my head starts violently shaking.

[@Melody120e]

It's good to know this, I've never had this before, I don't even know how it happens, but it shouldn't happen to anyone, it would be best if no one had a seizure

[@filly3594]

I first experienced PNES when I was 13 and for the last time at 39. My home life growing up and until I was 39 created scenarios that perfectly fit with your explanation of the cause of PNES. Unresolved conflict, impossible to resolve in an emotionally safe (for me) way. In short, emotional stressors caused my brain to short out. I have been diagnosed with CPTSD, but I never felt that the CPTSD was the cause of my PNES seizures. I had precognitive, deja vu, and odor (metallic, like old coins) auras when each seizure began. I did not have any physical spasms when I seized, however, they left me exhausted, with a horrid headache, and light sensitivity; all I wanted to do was go to sleep for several hours in a darkened room. I would wake up thirsty, my eyes felt dry, the inside of my head felt "sore", and I felt groggy for a few hours. I saw a neurologist in the 1980's who advised me that I was likely experiencing partial complex seizures, but that she could not be certain unless she was actually testing me when I was seizing. I never followed up with any other physician about them. When I was about 39, the stressors that had been in my life were gone and I stopped having the seizures. I'm almost 70 now and haven't had another one since then. I hope you find help for those who have this type of seizures; they're very frightening, especially for those who are very young (and their parents) and having this condition makes you feel like there's something wrong with you that no doctor can figure out and then you worry that your parents and/or others will think you're "faking it" for attention when nothing could be farther from the truth. Bless you for your research!

[@thathippi]

Thank you so much for this video from the bottom of my heart.

[@MariannaOlsen]

Great information with a uplifting message. "we don't want to change you.... we want to help you."❤😊

[@kettleblack6127]

Thanks Doctor. I appreciate your insight and the deep explanation of a complicated disorder, you went out of your way to explore PNES from every angle. I’m feeling more hopeful tonight after finding your channel. Take care 🙏

[@davidlynch5998]

Dr. Omar you are an awesome health care professional and your worth as a top notch doctor is invaluable! You are truly a blessing,, thank you and may God Bless you

[@ericn4672]

I had a seizure at a music concert where I really felt emotional connection with the music and then at the climax of the song my whole body became paralysed and locked up. Does this classify as PNES? I was conscious the whole time and was over all a great experience.

[@jeanward9984]

People who have PNES pushes the trauma down so deep inside which causes the physical problems with the seizures in the first place! You need to bring the problems to the surface and deal with it.

[@lcpoetry]

The most I had at one time was 8 in 40minutes. I was around the corner at a doctors appointment at the hospital. That's where I ended up🏨. I had 19 more in 3 days.

[@shmaddyTek]

I'm always having seizures but everytime I've go checked out, I've been told there's nothing wrong with me. Ill have seizures at completely random times. Like in my sleep, in the shower, at school, and Ive taken CEPRA for my seizures but it never worked. The worst part about my seizures is always the migraine after tho. I'm going to the ER again today to get checked out because I had a seizure today while I was cooking breakfast. It's really hard trying to just Chill when I keep having seizures.

[@LivingDeadGirl585]

I have been watchihg all of your videos on PNES. I was recently diagnosed with PNES via video monitoring EEG. I have a history of Complex- PTSD. I also suffer from Severe Chronic persistent pain due to a MVA 2 years ago that has left me with multi - level spinal issues and now Bilateral Sacroiliac Joint Dysfunction/ Sacroiliitis and Anterior-listhesis with BL pars defect at L5-S1. And I am suffering in tremendous pain every day ever since. When I was recently admitted to the hospital for 8 days for Observed Seizure like activity, before I was told it was PNES. I dealt with so many different Attendings, Nurses, PCT, etc. That accused me of Malingering/ feigning my symptoms in my spine and seizure like activity. So I had my roommate bring in documentation from all my Neurosurgeon's to prove that I was not exaggerating or listing of medical terminology I did not know anything about. That this is real. This is my life and I'm about to undergo another spinal surgery. But because this hospital had no record of it. They assumed I was making everything up. And pre- judged me because I have a diagnosis of Complex PTSD and sexual assault/ D.V. When I was not consciously panicking nor had zero control over what was happening to my body during these seizure like episodes that caused confusion , vommting/ nausea after, not intentional at all. But the tending up and marching my back and my eyes fluttered and rolled back on Video EEG and I was Tachycardic with low BP and stopped breathing for one of them. My brain felt like soup after each one. Just mush. And my body was in so much pain everywhere from muscle tensing- arching back, jaw locked down tight hurting my temple, I did bite thru my tongue and lower lip for a couple. And I was aspirating on my own vomit after they were done. And I found out from one really great doctor and the neurologist on my care team that PNES is very real. And mine were being caused by biologically: Severe Chronic pain and Psychologically: A manifestation of psychological distress that my pain was triggering. And yes, the did painful Stimuli on my Sternum which I could feel but could not respond or move yet. And my muscle tensing- and convulsing, were aggravating my already painful underlying spinal / pelvic issues. And hearing nurses talk negative about me right outside my Hospital bedroom bc I was across from the nurses desk. Just made me feel terrible. And then reading my medical notes from every provider I saw , in my patient portal afterwards. Was overwhelming to say the least and accused of things I have no memory of doing or saying. But the good news is that I did have a very empathetic Neurologist and Very nice General Medicine,MD attending that actually knew about PNES. And said Severe chronic pain, injury, illness, disability are also triggers for PNES. Large amounts of pain signals being sent to the brain at once can cause a manifestation of biological distress to the brain and make it just sorta go haywire. And then on top of that, my pain would trigger PTSD symptoms that caused a manifestation of psychological distress. I had so many now that I am in a rolling walker with in home health care and physical therapy and occupational therapy because I had a cluster of psychogenic seizures that physically hurt my body even more so. And I now I am under strict order to keep stress levels down and work with my Trauma therapist and also Pain MGMT. Also my physical pain, can trigger psychological distress and my psychological distress can trigger worsening pain. I have two co- occuring conditioners working against each other that are causing these Psychogenic Non-Epileptic Seizures. And my seizure like activity caused things to go wrong physically in my body from having too many. And also probably from like you said. From other doctors inflicting pain on me, making things worse when I could not respond stuck in this scary paralyzed state. I was given way too much Versed to stop seizures. Which only made things worse bc when it wore off. I got a rush of pain back. And other misc symptoms like vomiting so much while stuck in this paralyzed state after the seizure like activity stopped or not able to think clearly or respond right away bc your brain feels like mush afterwards and confused and everything hurts. So don't ever let anyone tell you they are not real. They are a very real thing. That need more research and education done on them and should be taught and taken seriously just as much as Epilepsy. If it wasn't for the 2 good attendings that I had. I would prob be in much worse shape. And not receiving the proper care I need to heal my mind and body. But there are many things that can trigger PNES. And thank you Doctor for acknowledging that this is a very real thing. And should be handled with empathy and understanding. And getting down to the core problem that is causing them , so you can prevent them. And not accuse a patient of fakig it. I now have those medical notes on my record forever from the ignorant attendings and nurses I saw that did not know anything about PNES and were very rude, neglectful while I was conscious and stable and needed something bc I was not a serious patient in their eyes. Or inflicted even more pain on my body , when my roommate brought in all my Medical records to put an end to that where it clearly states I have Chronic pain syndrome and multiple problems that I am about to undergo surgery for. Smh. Most of them refused to read my printed out medical records. And just continuef to proceed with what they thought was best. Which prob contributed to more seizures happening. And it was not until Neurology and a Great General Medicine, MD attending took the time to read them and look further into my medical history. I just wish I could of had them for the entire duration of my hospital stay. And I wish I could remove these awful notes that are forever on my record. That contradict what Neurology and General Medicine, MD attending said. And now I feel like I have to point out the right notes to read. Which may come off as me manipulating medical providers in the future. Which just causes more stress. Idk. It's terrible the way some doctors act. And I am grateful to hear your words " They can feel the pain, but cannot respond". And everything else you said. This is a big issue all over. I am from Upstate NY. I hope you spread your knowledge through our nation. And educate doctors and nurses. And yes Eliminate the word psuedoseizures unless a patient is acting out a seizure which I feel like would be pretty obvious. BECAUSE There is NO faking a psychogenic non-epileptic seizure. My seizures were mimicking Epilepsy so much that they wanted to rule out if I had PNES and Epilepsy combined. Which is another possibility in patients with PNES. But all it took was a negative EEG for some hospital staff to start treating me like crap. And 2 that actually knew what they were doing. Thank you for sharing. PNES is very much still in its infancy as far as education goes. But these videos have made me feel so much better about my new diagnosis. I just want to share your videos with every hospital in Upstate NY. Lol. Thank God for doctors like you. 🙏 you and the other Dr in your videos are both greatly appreciated. I will share these with others who suffer from PNES!

[@gracierios1621]

I have a 14 year old who suffers from PNES and also epilepsy with mental health issues, it’s certainly isn’t easy.

[@xcherryrebelx]

Thank you so much for this video series. I do have depression, adhd, complex ptsd and recently debated in between drs if I have borderline traits. I do have a very large arachnoidal cyst (9cm) in the back of my head with chiari so the anatomy of my brain is a bit diverse. My seizures comes exactly as you describe, when Im completely overwhelmed by feelings either extreme sadness mixed with rage or hopeleness and I eat all of my feelings for dont discharge them on someone else or not to be a burden and then I collapse, I mostly cry with a really heavy heart, then dissociate and start to have the seizures. When this happens Im mostly partially concient and listening my sorroundings but cannot respond, cannot look anyone at their eyes and I cannot control my movements or follow instructions, wanna speak but Im trapped inside my head and I cannot articulate words, only maybe a small sound coming from my throat at times while I try to communicate. Sometimes I predict the attack will come because I vomit or start to gagging, sometimes this happens during the attack or when im recovering as well. After the attack takes me a while to recover as I dont regain the control of my voice or body easily. Im still partly disassociated and feeling myself in a state of derealisation. Im really thankful for your explanation and as u say too, im a person with a extreme level of empathy and I feel completely ashamed when this happens, I try to eat all my emotions until I cant deal anymore with the pain. I hope there were more doctors that understand the patient better instead of say that anything that can be seen in a eeg, is a call for attention.

[@MelStyle]

I do have PNES .It's true people can think it as dramatic but I know I never intend to do anything.It's sudden and unexpected.I can't even think of controlling it.I am not in my conscious. I do have neurological problem .My EEG report says hyperventilation and abnormal photic stimulation.I do get frequent Aura and Migraine..I get some time bipolar vision.But it's true I am a person kind of compassionate and never hurt anyone though anyone hurt me,it just stays in my heart.I did had bitter life in my childhood.

[@MelStyle]

The good thing is positive supports and love and care and happiness really changed a lot.They need a great support. I also had to take some medication what my neurologist prescribed for years.

[@DrOmarDanoun]

Thank you for sharing your experience

[@FUBARx371]

God, I know I'm blasting this guy's page but I'm trying to reply to everyone I can relate to in here. I have a LOT of the intense emotions as well. I'm almost addicted to certain albums of music for refuge after the events. I hate the auras but I lost most of mine about ten years ago or so. I was already practicing Zazen before my epilepsy started and then the PNES came on later on but meditation really can help out a lot!! It's like I can remember them after the fact but I can't remember anything while it's going on until they come to an end. I hope things can even out to a degree for you Mel, just remember that stress can add to the situation to a degree. There are different links to how it actually gets started, mine usually come to manifest at the end of my TCs. We may get kicked to the curb by some but try to remember that you're not alone in all of this. - Love & Best Wishes.

[@MelStyle]

@@FUBARx371 Thanks for the reply...from last 3 weeks I am getting frequent migraine witj aura..the aura is worst..frequent means sometimes 3 attach per day and 5 nearly per week...is it something correlated and something would help to reduce.

[@FUBARx371]

@@MelStyle Sorry Mel, It took me a few hours to make it to the bottom of this list. I don't personally experience Migraines but I get the auras all of the time. I draw a lot bc of isolation and just benig stuck in my house and just have to stop bc I get twitchy and screw up artwork a lot. As far as the relation aspect, it just really went crazy over time. I've mentioned it a few times in the replies but a book called The Body Keeps The Score wasn't a bad read for what you're describing. I can't promise solutions but it covers all kinds of stuff from trauma to neuro disorder. If yo're open to it, my Neurologists actually told me to possibly check out cannabis, if not, STOP DRINKING ALCOHOL!!! I seize every time I have even tested myself again with drinking in about 12 hours or so. I'm not a doctor but I know light can affect migraines but it's bc of an ex girlfriend who had them a lot so possibly dim your living area a little bit but don't watch stuff on tv in the dark. I'm not talking about the strobe effects, it's literally a high contrast aspect oscillating. I'm 40 this year but it all started in my teens and just kept changing into absencs/complex partials, TCs, pshychomotor and then the PNES came on after all of that. I can type a lot so I should prob chill out for now but I left a huge comment somewhere in the list. Just look for the little owl picture as you're scrolling down. I wish you the best dear and will pray for all of you for many nights to come and the rest of my life. Love - FUBARx

[@lorifoster4166]

My seizures are at all physical. I look like I might have had a stroke. I go limp. My arms and head and legs! My mouth opens and can’t close. Tears come down my eyes. I can hear you but can’t communicate with you!

[@Sweepee-v2v]

I am exactly the same. They tell me it's panic attacks though. I know it's something else. I can't mention the other things that happen because it's very embarrassing. Vomit and the other aswell. 😢

[@freckleface954]

Mine are very similar, and I have noticed more features such as the pre seizure warning is a tingle in my spine that races to my skull. Just before it races to my brain, I speak very quickly for a short period of time, as it hits my brain, I cannot see or speak/make any sound, feel my body but can hear. I jerk and relax, not affecting bladder or bowels just drooling. Once the jerk/ relax stops and i come back, I really have to use the bathroom. At this point, my balance is really bad, and I can not stand up straight. I show nothing on all the tests. During the tests and for a while after I feel really bad, headache, balance, and hearing are messed up. I have the same affects when electronic tests are done on any part of my body. I have two seizure dogs that are retiring soon (border collies) that are 100% accurate which is sweet relief as I have the seizures in my sleep as well as day time. (I have 2 more in training to replace the current dogs.) This epilepsy pnes journey has been terrifying because of a lack of education, this channel has been my lifeline.

[@mhairimiller5258]

Sounds like Functional Neurological Disorder, i have it and have the same.

[@mhairimiller5258]

Get teated for Functional nuerological disorder

[@mhairimiller5258]

Tell your doctor you have the symptoms of Functional Nuerological disorder

[@Lucien234-i2z]

I had PNES and got sent to a neurologist, I got diagnosed with Functional neurological symptoms (FNS). I don't just have a neurological symptoms while in psychological stress, I have neological symptoms in response to pain.

[@anthonysmith9262]

I struggle with PNES it's really confusing and makes me feel very tired. Some professional people make fun of me and laugh it's hard to understand people behaving this way I don't want this to happen 😢

[@His_sheep_hear_Him]

Dear Doc, I wish so much to be well, you described me perfectly. I try to be stronger because I understand the other person's problems, I feel sad for them, to help them, even when they are cruel. I feel like I have a decease call love. I'm going to listen to your other tapes. I search for answers, my brain swells, I know that feeling well. I want real answers, and it seems you have them. Thankyou

[@thispaperladder6215]

Drs where I live still have little or no understanding of Non epileptic seizures. I had to leave work due to having 3 in a busy environment. Was taken to hospital and had a very kind and understanding Dr at the ER. I asked for a sick note from my family Dr and h pseudoseizures was written on it. They still have a lot to learn

[@JoshuaIsman]

Thank you Dr. Omar I really have not understood my seizures but this video really helped

[@laurens9663]

These are great. I've been suffering from PNES for years now with difficulty controlling them. I do have complex PTSD from both childhood and adult trauma. However I've also been diagnosed with ADHD and Autism. Is it possible that these could be the reason why I'm having episodes? And any ideas on how to manage this condition?

[@ThisIsForDrew]

Keppra

[@OS-bs9ky]

but not all epileptic seizures (especially mesial temporal ones) always show up on EEG. So, may be PNES simply are the mesial temporal seizures undetected by EEG ?

[@ReneeWilliams-ko1oh]

thank you for being professional and helping. me. Other doctors were so shaming, Ive always been compassionate and helpful to everyone I encounter and always been everyones biggest support while no one is for me, People say that theyve never seen someone as strong and can handle things like I can but yet Im having many different types of seizures that affect every aspect of my life.

[@robinnobles5785]

Hi. Do you have seizures everyday?

[@ReneeWilliams-ko1oh]

@@robinnobles5785 I did. I no longer do. I eat clean, make sure I have plenty of vitamins and minerals in my meals, consume NOTHING processed, drink lots of clean fresh water, get good sleep, and avoid stress.

[@nicolebillings8552]

I have been PNES free for a few years now! Thank you so much for speaking out about PNES because some do think it’s fake. Question, since I have overcome PNES, I had found my balance is off. Example, I can’t can’t go up or down stairs, without holding on to something, or I’ll fall. Especially, if I am carrying something.

[@DrOmarDanoun]

Thank you for sharing your experience.. Please discuss with your neurologist

[@courtneylstephens]

May I ask how you overcame PNES? My daughter has been fighting for almost 10 years.

[@jetpilot3714]

Yes please elaborate on how you overcame this. Thank you.

[@slimbrown1203]

My daughter recently developed this and she gets a sharp pain in the front lobe of her forehead, chest pain/tightening right before it happens. She goes unconscious for 25 plus minutes with her eyes wide open. While shes foing through it all I can do is raise her feet above her head for blood flow and rub her to assure her that Im with her. She makes a whining soft sound. I always have to make sure she's breathing. At the time that shes coming out the seizure like episode she takes deep breaths as if she was holding her breathe. She has pulse while in these episodes. Shes undergoing many tests and therapies but still no solution. She was diagnosed with psychogenic nonepileptic seizures and Altered Level Consciousness. Reading all these comments are depressing.

[@mathewjohn8126]

Hi Sir, I had a brain tumor operation done. Dr. gave me some medicines to be taken for the entire life. Do I need to continue? Nothing happened for a long time

[@michele5695]

This is gaslighting for people who are very sick but can't get accurately diagnosed and treated. I had a respiratory infection, and dysautonomic crisis that almost killed me. I took 2 years to recover, then had a botched spinal tap and spinal fluid leak. I developed severe insomnia and complex regional pain syndrome. I feel like a stun gun is in my brain then muscle spasms and myoclonic jerking. It goes out to my ears, and feels like they are on fire. My tremor and POTS got worse. So many Drs go to the University of Gaslighting that we have difficulty getting diagnosed and treated. It ruins our lives. I think most Drs underestimate how resilient we are. Why do we have go through a character assasination to get diagnosed?

[@chooseaname1423]

I have dysautanomia too and it took years to get help. Medical ptsd is a real thing….I fear going to the doctor, but have to in order to get help, but every time I go I get worse because of how they treat me. Looking at me like I’m crazy and just saying I should go to counseling. I had been in counseling for 3 years (for marriage/self improvement) and she cannot diagnose anything and yet they still say this, despite having followed proper diagnostic protocol. I feel so trapped. I’ve deteriorated because of this and now I just have to show up and raise hell because I care about myself too much to allow their treatment of me to make me worse….but seriously, university of gaslighting is real, especially for female patients. Its traumatizing.

[@chooseaname1423]

Btw I’m supposed to get a spinal tap next and I’m scared. Any advice? Do you think your experience is more on the rare side or do you recommend not doing it? I feel like I’m out of options and can’t avoid it anymore.

[@TheLoneMitten]

I know. The doctor that this guy had a clip of literally said 'not everyone with conversion disorder has had trauma '.

[@stellaancimer8505]

​@@chooseaname1423did you change the food you eat? For me only this was solution

[@michele5695]

@@chooseaname1423 I'm sorry I just saw your comment. I think my experience is rare, but not unheard of. I would make sure you ask the Dr. doing the procedure questions. An old school neurologist is best. Ask the size( smallest is best to avoid leak) and type of spinal needle and it should probably be done lower than L2. You should be in the fetal position and not lying on your stomach. Be proactive and not intimidated. Ask what information they are hoping to get from the test. I'm not a Dr though, and this isn't medical advice. Always trust your gut instinct. I'm sorry you're suffering too.

[@emoniecobb23]

I recently started having them. I feel like I’m moving so slow and get nauseous and headaches before and after

[@tonyasmith1271]

Can chronic pain be considered trauma that could lead to PNES? My husband developed CRPS after a surgery and a few years after developing CRPS/nerve damage/chronic pain the seizures started. High pain days are a huge trigger for his seizrures

[@DrOmarDanoun]

Possible

[@rainbowpagan2]

Thank you so much I am 42 and have had them since I was 14 and always been told I am faking or that it is because of my history you made a great video thank you so much

[@krystalwilkerson3124]

Thank you for explaining bc I have these crazy things and the hospital won’t treat me but I have them so bad and suicidal when I’m having these bc I just want it to stop

[@NNaadah]

With history of TBI increases likelihood of PNES. Hum.... just had a thought. I wonder what the role of exposure to loud noise plays in this too? I know military people throughout the history of the use of explosives have exhibited what they called in WWI "shell shock". I know later this was "renamed" PTSD (which post traumatic stress) is obviously a component in war veteran. Yet the soldiers in the video below exhibit what very much looks like PNES. Which I long concluded that head injury from concussive explosions (even if the individual was not directly hit) is a cause for the nerve damage "shell shock" exhibited. Now I have "shell shock" inability to control shaking post multiple traumas. (I was in the military and am service connected for PTSD.) I was also in a really bad car accident which I had a TBI. Since this though, I've been in a couple of fender benders and when I'm very stressed (usually the result of a trigger of a former trauma); I do "shell shock shake". Cognitively I'm fully aware of what's gong on around me; even though I can't stop the tremors. I will usually feel cold too. I've never thought of these incidents as PNES; but maybe they are? For me, they aren't very frequent, but I certainly have had the experience. Interesting.... so I wonder what role exposer to loud noise plays in the development of PNES? I also believe there's factors of environmental pollution (food preservatives, pharmaceutical pollution in the water supply, air pollution and even nuclear background radiation from bomb testing over the past 70 or so years that is contributing to the assault on our nervous systems. (Just like the rise in incidents of autism, Alzheimers, Parkinson's and other types of dementia etc.) Obviously though, all these types of problems have multifaceted causes. kzbin.info/www/bejne/f4irk3lrn6x9j5I

[@seanathanbeanathan]

The first person diagnosed with autism is still alive, and only two years older than my own parents. It's not that there are more autistic people, it's that it's a relatively new diagnosis and screening is becoming more accurate.

[@NNaadah]

@@seanathanbeanathan - Why are my replies disappearing? Is this like Covid info; the public is not allowed to know? See article on PubMed: "A comparison of temporal trends in United States autism prevalence to trends in suspected environmental factors"

[@asedeyhot123]

I have seizures in my sleep which I'm unaware of except the muscle pain and general weaknesses... Now I'm married, my wife gives me a full understanding of how it happened....a shout from my deep sleep, stretches, shakes and then calm... I will want to move around afterwards but still unconscious.... It's always happened when I'm stressed or very worried at the verge of loosing something..... Doctor's haven't arrived at a conclusive diagnosis

[@lifehappens4372]

Best explanation I’ve ever had. You’re amazing. Thank you

[@annisechetelat9026]

I get body spasms...comes on suddenly. Especally when laying down and trying to relax. Is worse when I'm stressed. What is causing these.

[@coffeecat086]

I was originally diagnosed with this. Was epilepsy though. My family was able to tell the neurologist what happens during my seizures.

[@Mrs.Coe40]

I had 15 strokes from silent to very small to medium all kinds. And a few years later I started having cluster seizures. My neurologist hasn’t been able to help me. She just said after eeg that they see something on there but they don’t know what it is so she told me she believed that my brain just get to tired.She tried 3 different types of seizure meds but they didn’t help and the side effects were really hard on me so then she said that was all she could for me basically. I take clonazepam to help calm my brain down when I feel seizures coming on. Still have no diagnosis… very frustrating

[@FUBARx371]

Some Neurologists are literally worthless but it took one with a PhD in Psychology and Nuerology to get my proper diagnosis. There is a kinda recent book called The Body Keeps The Score that can explain things like this to a degree. I don't agree with everything in it but it helped my family understand what's going on a little better. This doctor is on point with the PNES descript. I had over 30 different prescriptions before I was even 30 yrs old. Be careful with the combos, they can compound the adverse effects. If you're actually epileptic, you have a literally different kind of physical nature in the brain itself and SSRIs can hit it in ways it's not designed to. They had me on Ritalin, Prozac and Lithium simultaneously when I was 9 and by the time I was 16 I was already having complex partials. I'm 40 now and have 3 different seizure types as well as PNES. Just be careful with the chems and stop paying people that tell you it's all in your head. I hate Big Pharma but I have to live with it. Just take it slow Amanda and make sure the doc is worth your money and time. Love - FUBARx

[@ImpKnt80]

Please research augmented NAC as it is anti-inflammatory, neuroprotective, safely enters bbb and helps moderate and balance neurotransmitters GABA, seratonin, and expels excess glumate from brain. It cleanses toxins and much more in multiple clinics studies going back decades. Please research this and see if it will help you. God bless you. I hope you recover your health soon. All the best.

[@Rod-bp8ow]

Non epileptic seizures are due to imbalance or deficiency of compound nutrients as well as Ionic charges in the central nervous system, including alkaline/alkalinity of water, with insufficient compounds, the central nervous system reacts, since Ions react with compounds that gives it a NON- epileptic seizure moment, but it is curable, without administration of invasive surgery. Curable these days.

[@countrychic30]

I was just recently diagnosed with epilesy and i feel like my doctor wasn't listening to anything i told him. It started nearly a year and a half ago it was a normal morning of waking up and getting ready for work but a few days prior i have been stressed about a lot of things going on in my life(one was i blamed myself for not paying close attention to a loved one who was having seizures/strokes due to dangerously high blood sugar that led to her falling into a coma in a few short weeks-it was my late grandma, she lost her mind fast in 2 different hospitals which she was having early dementia to) all i remember was making coffee and then waking up back in my bed 10-15 minutes later only to discover i burned my foot with hot coffee and i was confused(thankfully i don't have my license yet but i did not want to go to the hospital due to the trauma i witnessed of seeing my grandma talking off her head(she was calling me by my mom's name-my mom passed away 17 yrs ago) and thought i was coming to take her home to heaven(i was trying not to have a nervous breakdown in that room-my aunt witnessed everything and knew it really bothered me and understood why i never wanted to set foot in those hospitals again-my brother is the same way)so i go to a nearby urgent care and the doc there thought i was drunk/high after telling him everything, soon after i saw my pcd who thought the same thing except he saw that i had depression a few years ago(i was weaned off those meds years ago and have been fine ever since) and was trying to coax me into believing i did this to myself for attention-not a suicide attempt as my pcd put it-i chewed him out like 'do i look like someone who would do this to myself for attention, i am not crazy you are not listening!' after my pcd had me do some tests-head mri/blood tests/etc(all normal) i was referred to a neurologist(i used to have seizures when i was younger, they stopped nearly 16 yrs ago and i have not been on any meds since then-i don't take any meds or do anything illegal or even drink/smoke) and after waiting a long time to see the neuro doc he wanted me to start taking seizure meds just in case-i was having headaches before i started taking these meds(he was concerned my seizures came back-i honestly have no idea what kind of seizures i had when i was younger-mine are the kind where i could feel them coming on soon after black out, jerk around for a few seconds then stay asleep for a few hours) i did start taking them just to feel safe and i did bring up to the doc all i remember(stress was the big issue for me) and he dismissed all the stress i told him(he was more focused on trying to diagnose me at the time) he wanted me to get a video eeg test done for a few days(i had it done weeks ago-would have had it done earlier but i had difficulty with insurance not covering it and trying to get the doc to understand that i needed a day knocked off-it was over $3000 and i had no choice but to pay out of pocket to cover the test(thankfully only paid part of it to have my test done) soon after my test was done i got a call from a nurse like your results are abnormal and we don't see anything to do with seizures, a few weeks go by and i see the brain doc who was very unprofessional when he told me this(he was slouched all over his stool and was leaning on the bed next to me and had no sympathy at all for me) he was like 'well miss you have epilesy, you gotta stay on these meds forever/etc' i was in shock and i just stared at him for like 10 seconds then i was like 'doc isn't there another test you can do cause i feel like this is a mistake' he was like 'we only have genetic testing and i have all the proof i need in your test results' i tried not to break down in front of him and i told him nearly 90 % of my family are not speaking to me and only 2 in my family have epilesy(my mom who had grand mal seizures who passed away 17 yrs ago, and my 2nd aunt who is not speaking to me and i have no clue as to what kind of seizures she had) and i told the doc my brother has no seizures either. I still brought up again like 10 times in that office that i was stressed and i am still stressed about everything (the doc was no help he ignored everything i said) all the doc said was nothing else we can do besides checking on you every year and staying on your meds. After i went out to the parking lot to speak to my brother(he saw the look on my face and knew something was wrong) i pulled him aside and tearfully told him what happened, he was in just as much shock as i was and after a few seconds he was like 'are you sure, you don't look like you have epilesy' i agreed with him and i wanted to see a different doc asap cause we both feel like the doc should have done another test just in case and i even brought up to my brother about my stress and about what all the doc said and did(posture wise/ and his attitude towards me). I am gonna see a different doc but i can't right now cause i was told by the doc i have to report myself to the dmv med division and see if i can still drive in my state(ever since i blacked out-popular name is syncope, i have not been behind the wheel of any vehicle which has been a long time). After doing some research i believe i have PNES, but i know if i bring this up to my doc he will definitely ignore this too. I could be wrong but i feel like the doc should have really done another test just in case and since he ignored me telling him several times all i remembered about being stressed during the time i passed out. I am gonna get a second opinion from a different doc in another business but i have no choice but to wait a while to see if i can drive safely and working things out at home/work to.

[@darbyblanton3716]

I recently had an episode where I had a panic attack and my whole body was paralyzed. My hands cramped up, I couldn’t speak, and I couldn’t walk. Would this be a severe form of a non-epileptic seizure?

[@dragxnnu]

this would just be a panic attack. a bad one, yes, but nothing more

[@MetroMetro-zs8ks]

Tbh... i don't know why i have seizures anymore... first i thought maybe my car accident did it, then maybe my crohns disease or menstrual... but even when taking medicine i STILL have seizures. My mri shows no damage or lesion but somehow I still started having seizures in 2021.. now music or even the cadence of some people's voice trigger it. Yesterday i had 3 from sound.. today its light AND sound..... wtf

[@pikkons]

I have non-epileptic seizures from time to time, I don't know the term for them. I do have abnormal eegs or whatever with what they call rare left temporal lobe something slowing, but no epilepsy that I'm aware of. I do suffer from traumatic brain disease. I do lock up and have convulsions or trimmers with mine. They last a few minutes with my recovery sometimes only taking a couple minutes and sometimes taking upwards of half an hour or so. I generally will lose focus of time, sometimes days or weeks.

[@grendel7360]

I am now pretty sure that these are the types of seizures I have because I have multiple traumas that j have repressed for a long time and I am getting tested soon because one of my children has a seizure disorder.

[@amandaschrepel3946]

Do you have any info on if vitamins and minerals being out of balance can trigger similar episodes? I have a ceruloplasmin and copper issue of being very low and was diagnosed with Wilson's disease in 2016. So primary care doctors think i must be monitored by a neurologist, but the neurologist keep telling me its pnes and i need cogitive therapy instead of a neurologist. I dont see how that is a helpful approach if my bloodwork is showing the root cause. I get tired of being passed around to different doctors and specialists without them really helping. I have to do a lot of my own research and pray for direction. I really want to know if doctors take barometric pressure into consideration with these episodes.

[@TheLoneMitten]

I'd like to know this as well. I have potassium and sodium electrolyte imbalances since my SE and sodium and potassium channel blockers put me in the hospital within a week of starting the meds. They say it doesn't affect the body but clearly it does if I've had normal labs a few weeks before starting meds. Then I have MDD with suicidal ideation which means I can't take the drugs which don't affect those and bam. Left with zero options. I'm fine with the seizures honestly. Not gonna be around much longer anyways .

[@amandaschrepel3946]

@@TheLoneMitten I'm sorry to hear you are struggling too. Do the doctors have a name for the sodium/potassium imbalance issue? I would like to research it a bit more. It's interesting how the neurotransmitters are affected by the vitamins and minerals. I try to stay hopeful thinking about how all the info out there on rare diseases and other unknown issues are growing more now with technology than any other time in history. I was trying to get into gene therapy studies last year.

[@aliexdaley8549]

I started having seizures this year after falling into a coma for a few days. The drs I was seeing kept saying it was because of my pregnancy and that it would end after giving birth only for it to get worse since. Now if 4 days pass I have really bad seizures that are ither more violent or longer lasting or higher quantities the next few days. I'm just happy I don't have drs saying it's all in my head anymore 😂

[@livinglife1874]

I must be right in saying PNES is the result of being too kind to hurtful people and the answer is to walk away from them instead of dealing with that trauma.

[@raakeshsinghbist9350]

Thanks for the information ❤