Trial by fire a film based on the rare disease (CRPS)

Charles Mattocks, a celebrity chef and Emmy-nominated actor, announced the release of his new documentary film, Trial by Fire, that explores the effects of Complex Regional Pain Syndrome (CRPS/RSD), a nerve disorder that causes excruciating pain, skin problems, swelling and, in some cases, death. Trial by Fire, directed by Mattocks, stems from his efforts to help his mother, Constance Marley - a sister of Reggae legend Bob Marley - as she suffers with CRPS.
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This movie exposes the suffering of millions and the need for further education, research and treatment options for those that live with what has been described as one of the most painful diseases. While there have been some new developments to treat the disease, not enough progress has been made, necessitating the medical community to focus more attention in order to find better treatments and a cure.
Charles Mattocks said, "The film's message not only touches my life personally, but tens of thousands of others around the world who are suffering. I hope the film can draw attention to the disease and explore the latest developments on the causes and treatments, as well as the challenges patients face each and every day."
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"It has to be told," Laurie Tankleff, who has CRPS, said. "I have suffered with this disease for over 10 years. Several years ago I was in a wheelchair for several months until I met Dr. Donald Krieff (a neurosurgeon), Dr. Glen Brooks (an anesthesiologist and ketamine infusion specialist) and Dr. Enrique Aradillas-Lopez (a neurologist). This movie highlights the struggles that I, and millions of others, go through daily. The medical community and society need to see this movie."
The film has won scores of awards around the world and is still being seen by tens of thousands years later.
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[@ashleymarkham2442]

Unless you live with this disease you will never understand the pain one feels. It is undescribable and unbearable. It's great to see films like this to help spread the awareness about crps. So much is unknown about this awful condition. Love to my fellow warrior's 💕

[@futureofhealthforlife]

so true

[@CaponeCabin]

Thank you. I was just diagnosed last March

[@sexycelin]

True I was diagnosed on November 2018 😢 and this is so horrible

[@heatmiserscottyblaze]

Agreed. Diagnosed March 2018. Right hand/arm. It has spread to my heart causing my arteries to dilate to big. Causing my blood pressure to drop. Causing my heart rate to drop. Causing me to pass out and fall down. And it's random.

[@saraadams9518]

absolutely !

[@nikkishuman299]

I've battled CRPS twenty years on August 20th, 2023. I've had dozens of surgical procedures, and every one of them were detrimental to my health, spreading the disease throughout my entire body. My organs are affected, and autoimmune disease developed due to the neurological damage that this disease causes. I now have Anaphylaxis attacks from "environmental causes"- anything can cause it. Essentially my soul is rejecting my body. To anyone battling this disease as well, I'm truly sorry. Please remember that you are not alone.

[@OMyStarz]

That sounds so horrible. I was just diagnosed about 6 months ago and I'm about to watch this movie for the first time. Best of luck for you to have as many pain free moments as possible. ❤

[@futureofhealthforlife]

we wish we could do so much more, keep fighting and god bless

[@Tinyteacher1111]

That happened to me as well. I got sepsis from one operation, and no one believed I had pain until my incision festered. It’s disgusting.

[@rinanorden2343]

As a CRPS sufferer myself. I want to thank you for giving us a voice🙏🏼🙏🏼

[@futureofhealthforlife]

my pleasure

[@snahg2356]

I hate that Dr's tell you that "it's all in your head", "it's depression, depression hurts", "your faking it or being dramatic". I've heard them all for 23 years. The pain I've suffered is not explainable to those who don't understand pain. It took finding a Dr that had broken his neck for him too finally say, " I finally believe that there is pain at the 10 level".

[@futureofhealthforlife]

you know with my mom I thought the same because I didnt know any better, it took me time to research and figure it out but also really listen to her words

[@genevieverinehart6878]

In a city I used to live in, a psychiatrist went the news paper cause he was diagnosing his patients with brain tumours,cancer etc cause doctors who should have caught it before sending them to him saying it’s all in your head. When I read it I was like really lazy doctor cause it’s the 80 s not the 20s. Do no harm means do your best.

[@yvonnejohnson1004]

I was told by the Triage nurse in hospital that I’d had this condition for so long, I should be used to it by now.. I hope this film helps people to understand that this pain is real. We don’t want a pity party, just belief and support.

[@AmethystWoman]

Yup. People don't get it. Next time ask "have you ever had a toothache? Did you see a dentist or just decide you'd get used to it? Maybe next time you can just adjust to being in constant severe pain like you want me to." People need to have it compared to an serious pain is common. A toothache is a serious pain the general public can't image not seeking treatment for.

[@A.M-82]

I can't tell you how many times doctors told me it was in my head or it was anxiety

[@juliasharp2857]

People can't understand unless they experience it. I can't find words to describe it or how it has affected my life. Thank you for this film. I am sharing to my socials. Literally, the only thing keeping me alive are dogs. Otherwise I would have no reason to stay. I rescue. Dogs need me. My rescue partners need me. I still have moments where I want to end it. But dogs. Always dogs. I know I will not get any treatment. I go to a new pain dr on Monday. I am not holding my breath. I will pray for your mom and all the warriors.

[@futureofhealthforlife]

Thanks so much for the comment, please do share

[@debbiehoward5027]

I too have had many many times of wanting out of this life and out of this position I put my husband and child in. I have tremendous guilt I cannot just overcome this sht and move to a normal life again. Like cooking and laundry to help care for them. I had so many plans on how to get out of life and what held me back is knowing that if I took measures my family would suffer financially as life ins doesn’t pay for suecde termination. That they would b better off not having to take care of me or I would end up on a vent completely dependent which is worse. I can go on and on. But I know u get my drift. I am much better having talked about some things with my family I am trying to see what good I can provide for them. U r not alone ever never alone. I’m glad u have ur pups they feel emotions and respond. Blessings ✌🏻😘

[@danbernstein4694]

I understand .Keep up the good work. I spent 25 years in golden retriever rescue..... but I could not take care of any dogs after I came down with cancer.. and after, and as a result of the treatments and trauma, now CRPS. I am now an invalid, and I miss a lot of things, but I think I miss my goldens most of all

[@swimfastky4136]

CRPS really is a disease that you truly cannot understand unless you have it. When I was 13, I had major surgery to fix a problem I had been dealing with for over three years. The problem had completely taken over my life, I couldn’t even go to school without spending hours in the bathroom. I couldn’t go out, I couldn’t swim anymore, anything. Immediately after the surgery I had bad hip pain that was radiating down my leg and up my back. Looking back, something that probably should’ve been a red flag was the fact that the pain was bad enough to keep me up at night even with all the pain medications I was (including iv morphine, oxytocin, etc.) Like that should’ve been a red flag but it wasn’t, I wasn’t thinking about it. Fast forward a whole year, I was still dealing with intense pain that had now spread all the way down my entire right leg. I had intense color changes, swelling, temperature changes, and more. No one knew what was going on. No one could find any reason for my excruciating pain. Then my foot turned in (like a club foot) and I was diagnosed with CRPS. I’m 16 now, and now the crps is in both of my legs and back. I spent over 9 weeks in the hospital trying to help me, and it did some, until it spread into my other leg. I’m doing better now, but I still use crutches for long distances. It’s horrible. Also, this is not really related but it bothers me when people pronounce it CRPS (crips) instead of C (see) R (are) P (pee) S (ess)

[@futureofhealthforlife]

So very true, do keep sharing and getting the word out

[@barbaranicolai2951]

I am so lucky that my CRPS went into remission. My heart breaks for everyone living with this condition because it's hell.

[@warriorsforlife2024]

I myself have lived with CRPS since 2014 I have made it my mission to motivate and help others It’s a horrible disease that NO one should have to deal with alone !

[@terineuman2840]

Thank you Mr. Mattocks for giving us a VOICE . I was diagnosed in 2005 after many misdiagnoses - accused by doctors of drug seeking, hypochondria, and by my family of being lazy. Please fight for us.❤. I’m an RN, BSN , with a Masters in Research. You’ve inspired me to speak up; to start writing or possibly a blog. I’ll be praying for you- don’t give up.

[@futureofhealthforlife]

my pleasure, please share

[@terineuman2840]

@@futureofhealthforlife I promise I will! Thank you for your reply.

[@AnjaduPlessis-ps8sg]

My journey/torture began on 1 May 2017. Please do not remove this video. People, medical aids, our “employers” have no idea and dont want to understand. The only people who have an idea are those who see us struggle every day. This is worse than cancer. At least with cancer theres treatment or an end. Thank you for this video 🌸❤️

[@debbiehoward5027]

After 2 decades my Dr said. U know I have 2 patients out of 25 who have this chronic pain like u. 20 years to have a fulfilled true confirmation I am believed. This pain has no obvious cause and is constant with variations of type and places and intensifies. It is hard for people to accept it especially in this drug addiction and abuse world. I never understood why pressing on someone’s arm with my finger didn’t hurt them. My husband tries to understand how I can have a tolerable or good morning and be screaming in pain within five hours. So to u fellow suffering people I want u to know u r far from alone. I pray everyday for a tolerable one and will include all of u from now on. ✌🏻😘😘🙏🏻

[@meredithhutton79]

I have suffered from CRPS Type 2 for almost 20 years, and am still learning about it. So thankful this documentary was made to help educate others on this devastating disease.

[@sexycelin]

5 years with this horrible disease 😭 the pain is the worst I can’t walk but I consider myself a tough cookie I will continue fight this horrible monster …thank you so much for putting this together 👍 we need more people like you … Rip Hannah 🦋

[@futureofhealthforlife]

please keep sharing the video

[@jenniferholland5410]

Keep fighting, i was able to have a year in remission at year 7! 🎉I danced at 3am in my kitchen every night. I went to the beach once. I took walks. Remission is possible, if only temporarily 😊

[@amyparrent6961]

I have CRPS type 2. This is awful. Life changing. Some days I don't know if I will make it through the day.

[@patsybensend]

It has been extremely hard to watch this. I’m 66, thankfully I was diagnosed at 62 from a crushing injury……I don’t foresee a cure in my lifetime but I pray so hard that one day there will be a cure. At my age, I won’t have to suffer long thank you for trying to bring awareness to help others

[@futureofhealthforlife]

Thanks for the feedback, its key we watch and share, so many need to know

[@patsybensend]

@@futureofhealthforlife I pray so hard, No one ever understands because to truly understand is to have this horrible disease. I know or feel in my lifetime there will be no cure, but one day there WILL BE a cure

[@gh3776]

It seems like the film has made an impact because my daughter's foot doctor said the words "CRPS", so we have now embarked on the educational journey learning all about it and what treatments she can get. I'm hoping we caught it earlier enough as it has been 7 months since her injury. She tore her brevis tendon in her foot and that is what has started her CRPS. She recently had a lumbar sympathetic block that might have triggered more pain at the injection site in her back, but we are hoping it calms down. She is done with her pain clinic for sure due to this. We are now embarking on the naturopathic route to see what is helpful. Thank you for this film.

[@futureofhealthforlife]

very powerful, do keep sharing

[@lindagrabowski8911]

Wonderful job covering this devistating disease, but there were a few omissions which are glaring. Since this seems to have been made in 2016, and if that's accurate, it's makes sense that pain medication was never mentioned other than ketamine treatments. Fast forward till today, these poor people have had their pain medication taken away. Or, if they can find someone to write a script, the Pharmacies either can't fill (due to shortages,) or they opt not to fill. After seeing how much pain people are in, to deny them a pill that only slightly curbs the pain, is torture. Shame on our Government.

[@futureofhealthforlife]

Means a ton, please keep getting the word on on the doc

[@warriorsforlife2024]

Thank you ! There are so many warriors who don’t have the medical treatments they need nor do they have the support they need! Thank you for supporting your mother and so many more ! As a Warrior it brings tears to my eyes to know the amazing work u are doing !

[@pastor4thstreetcog266]

Hey just want to bang a drum here. I was Diagnosed last spring with CRPS , and we all know what that means right hand swollen to the point I thought it would burst, felt like may hand was on fire lost all function in my right hand, went through the nightmare of misdiagnosis. Started some traditional therapy stuff but have been on biologics for RA for almost 20 years. I saw a study in Great Britain using a drug called anakinra (Kineret) injections. they were looking for human trials in GB. I called My rheumatologist because Kineret is approved for RA in USA so my Doctor changed my biologic to Kineret and last month I graduated from physical therapy and symptoms have vastly improved, (I GOT MOST OF MY LIFE BACK). It took several weeks but dramatic difference. Anecdotal yes but also being a pastor I believe that FAITH in my God has made an incredible difference, the power of prayer, but the use of Kineret has made a real difference too. shuts down inflammation response of glial cell?

[@michellehodges1156]

So thankful for this film to bring awareness for us all. I really hope I can use the information he gave to find someone who will actually treat this. I do wish he would have actually filmed them during a pain crisis. We describe it all the time and people don't understand because they aren't seeing the person in pain, face contorted, crying out loud for hours at a time. I would have allowed my pain to be filmed. That would bring a lot more awareness.

[@futureofhealthforlife]

do keep sharing we need more people to know

[@user-hb8lj8lz7h]

Your doing great job, my names jayne, iv lived with chronic pain every day following hysterectomy 30yrs ago, I was 33yrs old, was under pain clinic, regularly for 13yrs, now take pain medication around the clock. I'm 62yrs now. I'm on drugs amitriptyline and duluxetin plus cocodomols it's like putting a blanket over a mattress with a hole in it, the meds help ,but my spinal nerve damage pain goes through it all, sending love ❤❤ and hugs, to all pain sufferers out there, and Charles,can't put into words your care for all chronic pain sufferers. God bless you❤❤❤❤🙏 🙏 🙏 sfrom jayne walton, of bristol, England. Some Dr's don't believe , which is the worse thing. This pain is very real.

[@kimberleyeasterling1348]

I've lived with this for 35 years after an injury in the military. I've been through the gamut of disbelieving doctors, experimental treatments, inconsiderate family and friends,...you name it. It's hard to describe the pain so that people can even understand.

[@futureofhealthforlife]

please share so more can know

[@zoeytranquil2813]

There is so much more awareness now than when I was diagnosed 40 years ago! ✌😎

[@futureofhealthforlife]

do keep sharing we need more people to know

[@AmethystWoman]

Ah. I've had it 45. I was judt writing here about rarely finding long term victims still alive. You aren't alone sticking it out.

[@fluffymcfluff8038]

I hate CRPS so much. It has taken away so much from me. Its bad enough trying to live with it but to battle workers comp on yop of it just to get treatment and medication has been a nightmare. I rarely leave my house anymore because im scared that workers comp would see me and use anything I do against me to not have to pay or take care of me. All I have now is my 2 dogs and a couple friends who help when they can. Otherwise everyone left me including my ex-wife. I pray we are able to get some relief.

[@ramonanieubuurt105]

18 years I have had this in my lower legs. Keeping stress level down really helps.

[@theJenhha99]

His poor mama.... she's more depressed then she was since the treatment didn't work. I know how she feels.... it's hard to live this life of pain all day and all night every single day and every single night.

[@futureofhealthforlife]

thanks so much do share, yes its very sad to see what she and so many are dealing with, wish we could do more

[@MummaMia5]

I’ve had acute on chronic pancreatitis since 1997, then had an accident in 2017. That was when the CRPS started. T has made my life absolutely unbearable. I too have had 2 spinal chord stimulators and had multiple nerves ablated none of which have helped. Life is just like hell in earth. The best part of my day is when I’m asleep. The rest of the time is being bed ridden. I can’t eat, can hardly move etc. This lady’s situation is very sad. Everyone has a story that is as desperate and upsetting. I admire everyone who is able to get up each morning and take on the next day. 🙏

[@akemiwells17]

I suffer from CRPS, luckily it is localized to my left leg. I am now going in for my 3rd spinal stimulator. No one understands how bad it gets.

[@BlitheApathy]

OMG thank you. I've struggled with CRPD for as long as I can remember. In the beginning I had been told that I was lazy, mentally ill, and/or just anouther drug addict. More research needs to be done, its not nicknamed "the suicide dresse" for no reason. I know I have had thoughts about ending the suffering a few times.

[@lillypatrick3780]

Thank you for creating this. I know I'll never truly understand the pain of this disease, but because of documentaries like this I am that much closer to understanding the conditions my sibling has to endure.

[@futureofhealthforlife]

do keep sharing we need more people to know

[@futureofhealthforlife]

this is Charles

[@elizabethconroy7665]

Heartbreaking I feel so deeply saddened Wasn’t really aware of this devastating condition Warm Hugs to all suffering with this horrible,painful disease

[@futureofhealthforlife]

Yes its very sad, do please share to allow more to know

[@burningbright34]

Crps 16 years. Had to have a mind split to survive it. To the ones with this I love you all, and hope one day we all become whole again.

[@futureofhealthforlife]

do keep sharing as we need to get the message out

[@Tinyteacher1111]

This is heartbreaking especially in children. I’m 69, and I’m in constant pain and have been for 21 years.

[@darrinnoble]

I have full body CRPS and not enough people know about the horror it brings.

[@addymaryflores7445]

CRPS - Thank you for giving us a voice and for taking the time to prove with scientific facts that this disease is real and that the pain is unbearable. I have spent years of my life living in pain, all kinds and tipes of pain. Pain that feels like a continuous stabing knife that never stops, pain like needles transpacing your flesh and bones, pain like burning your skin transpacing your flesh, pain like a heavy weight over your shoulder, and when the days are bad, pain that rises your blood pressure and takes aways your breath. Intense pain that gives you cold chills while the body wants to numb itself, and your mind is tired of feeling and wants to escape the sensory feeling. 😢

[@futureofhealthforlife]

means a ton, do share

[@AmethystWoman]

And ketamine hundreds per treatment, every day to start, takes hours, dangerous, and not covered by insurance! The only known treatment - not covered. Imagine a broken bone or any end stage pain not covered by insurance.

[@futureofhealthforlife]

its very sad

[@MiniSavaVR-]

Ive had CRPS since 2008, bilateral upper extremities. Blessed to have had early diagnosis by a wonderful, knowledgeable physician Dr Michel Oliva Lubbock Tx. His treatment is individualized and his heart, soul is compassionate. Please make more films for awareness- no child or young person should suffer and go undiagnosed.

[@futureofhealthforlife]

do keep sharing we need more people to know

[@AngelHeart1111]

God Bless this Man, who created the film to BRING AWARENESS to this Debilitating disorder I have from sustaining a work related injury of shattering my ankle. The ignorance of the fellow employees, the management team who think it’s fake and that I’m crazy is extreme. Even everyday life, friends and close family CANNOT UNDERSTAND. We MUST bring more AWARENESS TO THIS DISORDER as others get more attention for.KUDOS, for starting this AWARENESS CAMPAIGN, hopefully TREATMENT and CURES can be found instead of on a shelf of non-existence.

[@lindalopez2826]

There is nothing worse than getting CRPS through a work injury. Workers Comp will fight to say you don't have it ( Sometimes in the dirtiest ways). Fighting CRPS is hard but doing it while losing your house, car, all your savings and being denied treatment is just cruel.

[@futureofhealthforlife]

thanks so much, this is Charles, do keep sharing we need more people to know

[@debbie7648]

Thank you for this video and all your efforts to help people. I have managed the severe chronic pain, and other symptoms, of RSD/CRPS for 38 years (March,1985). It is a physical and progressive condition (as the damaged nerves still network with each other indescriminately spreading sensations... pain or pleasure). My lived experience has shown me (and other people) that it is wise to evade any invasive or other medicinal experiments on my body. They have either not alleviated, or (more often) they have exacerbated the symptoms. For me, dietary restrictions etc did not have any positive effect at all. Other misinformation continues to pervade with this condition. Fortunately, near the end of your video, the year 2016 was mentioned. Please display the publication date along with the credits, as is the usual practice. All the best from Debbie in Australia. ✌☮🕯💙

[@futureofhealthforlife]

Our pleasure, glad you enjoyed, please keep sharing

[@missconstrued4781]

Stumbled upon this film...thank you for bringing awareness to this monster. An insignificant fall with what I thought was a minor injury to my foot changed my life.I was finally diagnosed a few months ago, so Im early in my journey, but I feel as though I've had this pain forever.

[@tameelah3839]

I have been living with CRPS now for 13 years, I had the Ketamine infusion, and it did nothing for me either. Over the years like others I have lost so much. Even most of my family members do not believe me and have since disowned me. If it wasn't for my son and my best friend, I do know where I wouldn't be.

[@cruzan777]

Thank you Charles truly for the CRPS movie I have crps after having 2 fusion back surgeries the crps is on my right leg lots of pain daily but hope and therapy keeps me going doctors told me I was making it up I was lying but in reality they just didn't want to help me thank you Charles for bringing awareness to CRPS

[@futureofhealthforlife]

My pleasure, wish I could do more.

[@futureofhealthforlife]

Keep sharing

[@cruzan777]

@futureofhealthforlife Thank you doctors need to know we as crps patients are truly doing our best to get back to life as we know it one day at a time I want people with crps know there is hope and it begins with us

[@JC-ns6jp]

I've shared this with colleagues. My career as a nurse is probably over for now.

[@AmethystWoman]

CRPS ended my nursing career after back surgery, woke with it in my left foot, from an on the job when I was 23. 45 years ago.

[@denisegiannone]

Thank you for informing the public and support this huge struggle.

[@lisabaugh7411]

I know exactly what you're going through. I've had RSD for 23 years now. It started in right foot and leg and about 10 years later, it had spread to both feet and legs. It's still a battle every day. 20 years ago I moved to Florida from all my friends and family to be in a warmer climate to have some what of a life. For me, the heat helps me get around little better but over time, my body has adapted to it. I often say I need to go further SOUTH where it's even hotter, lol. I've had to force myself to go back to work part-time. Every day seems to be a challenge but thank you God, he gives me the strength I need to keep fighting. I don't know about you but I have developed a lot of allergies to medications and the few people I've met here that has it as well said they have to. And have developed other nerve diseases as well. My health has really declined over the years. I hope all is well as to be expected anyway and take care. Your not alone in this battle 😊

[@matthewohly9571]

My knee blew up fishing last march. Had surgery 2 months ago. Was diagnosed with crps resulting from the surgery a week ago. Still trying to cope with the fact im done walking and just in pain all the time.

[@kissezonthemoon]

I used to say I'm in remission but I've come to understand that I'm never truly over it. it tears your nervous system down every where hurts the smallest injury aches for weeks I'm just thankful that when the burning starts its when my foot is cold I just warm it up. but I honestly don't think I could handle it as well as I did when I had it full force

[@futureofhealthforlife]

do keep sharing we need more people to know

[@vickiwaatti1076]

I have CRPS after shattering my right leg. The pain was so bad that we had to amputate my leg below the knee. Unfortunately the CRPS has passed into my stump. The disease is one of the most horrible thing I have been through.

[@AmethystWoman]

The pain tract is in our brain now. Not in the foot, hand etc. Some have their useless leg/legs removed so they can get out of bed, go to the bathroom themselves without being carried. Phantom limb pain will result either way but some in a wheelchair have even gone back to work.

[@theresalindsey890]

Wow! I had no idea. What a wonderful film. It has educated me about this horrific disease. Thank you

[@futureofhealthforlife]

thanks so much, do share

[@Sarah.Sausagee]

Rest in Peace Hannah 🦋🕊❤

[@futureofhealthforlife]

she was so sweet

[@AmethystWoman]

I've lived with "causalgia" -what it was called - 45 years ago. I was 24. I'm now 69. It has spread but esp since covid. Cytokines and inflammation. If it seems worse since covid or long Covid, you aren't alone. I now have it from the waist down. Ribcage, colon, larynx... This year, I realize I've been in pain every second of every minute of every day for 45 years. Wow. And I still wonder a lot if its real. How can I live with so much pain and still be alive. I've never met anyone else who has had it for 45 years - suicide disease. And like most others, I've tried several times. Depression is lifelong. A dr told me once decades ago that no one can live in constant severe pain and not be depressed. It has gotten very surreal. I watched the movie long ago, I will again except listening to talk aboit CRPS makes it hurts worse. Autonomic and sympathetic nervous system creates the connection. Like a yawn being contagious in a way.

[@micheledushsne712]

Thank you for making this video. After breaking both ankles at work i developed in my right ankle and leg people dont understand it. 18:42

[@snahg2356]

It's interesting that it often hits high energy people. Active people

[@Lellicakes]

Thank you for having this video. As someone with CRPS - I constantly have so many struggles trying to explain my condition. This is the awareness the world needs to see. Thank you to each individual that was involved with this. Each of you are so brave, and appreciated.

[@tallykaczynski3257]

Many in my area, including drs, have no idea what this is. I can see why the suicide rate is higher due to this disease. 😊

[@futureofhealthforlife]

So very true, do keep sharing

[@susanhicks7250]

Charles, thank you for giving a voice to CPRS/RSD. I was diagnosed with RSD 27 years ago. I have had Type 1 diabetes for 52 years, and I’m also a 12 year breast cancer survivor. I must say CPRS/RSD is the most difficult of these three. I have a spinal cord stimulator which helps quite a bit. I recently twisted my bad ankle two days in a row and it’s caused the worst pain I’ve had in years. No one that I know, family or friends, understands this. Extremely frustrating. I’m a half glass full person which helps my sanity.

[@crystalh1290]

thank you for this. not much is known about crps. i was diagnosed almost a year ago in my ankle/foot at 36. it has wrecked my life leaving me bedridden for a while i couldnt even feel the floor when i tried to walk. it was also spreading. i started going through a little known treatment and I am now able to walk again and going into remission. i know i will be dealing with this all my life, bad enough injury can set it off again so ill have to be extremely careful the rest of my life.

[@PeaceAndJoy007]

@crystalh1290, I'm so happy for you! It's always best to be diagnosed and treated as early as possible. I've lived with CRPS for 15 years now. It's full bodied now but still trying to live my best life! 😊

[@crystalh1290]

@@PeaceAndJoy007 thanks. we had no idea what was going on, we went to a dr we thought would have the best chance of knowing what was going on. he did and immediately started the treatment that day. after almost a year, im almost in remission. still deal with some of the pain here and there and massive hypersenesitity but its much better than it was. dr had to sedate me just to do the initial exam. im trying to live the best i can every day just being extra careful since theres a chance it maybe in other areas of my body. hope you find relief

[@steve0uga2]

Could you please share the treatment that you used? Thank you!

[@crystalh1290]

@@steve0uga2 i went through prolotherapy. its a little known and insane treatment for this. my doctors were amazing and figured out how to treat the nerve affected. i am now in remission, i still have some issues here and there but pain much less intense and just now started wearing a shoe after a year and a half in a surgical boot. i am walking with crutches. some things i still cant do but i am getting there. i saw dr hauser at caring medical. i actually did a video for them which is up on their youtube page. and yes they can sedate you for the procedure, that was one of my fears couldnt handle a light breeze how can i handle the treatment. i was sedated for every treatment(i went through 8 procedures in a year) and i will be in future 'booster' treatments that will be every 18-24 months to help keep it under control.

[@crystalh1290]

@@steve0uga2 i went through prolotherapy. works better than nerve blocks and i got more functionality. not many prolotherapists treat nerves this one does and has figured out how to treat crps with it. i went through 8 rounds, im now in remission. still have some issues but pain no where where it was. there is a video of me with my dr on their youtube, look up crps prolotherapy and youll find it.

[@christinavaughn6273]

I had knee surgery in November 2019. 2 days after my surgery my leg was on fire 🔥! I could not put the ice pack on it as instructed. The oxycodone did NOTHING for the pain. Of course the orthopedic surgeon said it was “normal “ to have pain after surgery. I have had surgery in the same knee twice before and knew what to expect pain wise afterwards. But this pain was on a whole different level. Excruciating is an understatement. I was referred to so many specialists until a neurologist finally diagnosed me. Of course this was early 2020 now and medical appointments were very difficult to get. When the neurologist said there was no cure, I was devastated. I’ve tried everything under the sun. Nothing worked until Ketamine infusions. It helped a lot. Then my pain doctor stopped providing it because the patients couldn’t afford it and insurance didn’t cover it. No one else nearby offers it. 3 weeks ago I had a Spinal Cord Stimulator put in my back. It is helping to take the edge off the day to day pain but I’m not in a flair. So I’m hopeful it will help me when the pain is just too much.

[@Princess_Zelda2022]

Newly diagnosed and in so much pain all the time. I have other disautonomia diagnoses as well which makes everything harder. Adding this to my already overflowing list of problems is absolute torture. I just want this leg off my body 😞

[@Erefor10]

Diagnosed with CRPS in December 2022 after a broken ankle. Thank you so much for this and I hope it brings the much needed awareness to this horrible disease.

[@cat4522]

R.I.P. Hannah Grace ❤🙏

[@hopeseeker97]

I had to look up what it was! Tried to see in comments, but nothing was found except the acronym. Not sure how I even got this recommendation but im glad i did. I pray they find help for all those who suffer this. Sounds like the pain is like if not worse than trigeminal neuralgia!

[@clm14t]

Complex Regional Pain Syndrome

[@CroisMoi]

Trigeminal neuralgia is caused by tight jaw muscles compressing the nerves. Acupressure on this muscles can help. Acupuncture works for this.

[@beachblanketbaby4920]

RIP Hannah Grace 😢💔

[@futureofhealthforlife]

she was so sweet

[@catelewis7223]

Ketamine’s is the only thing that has helped me with CRPS. I have had 3 natural childbirths, cervical and lumbar disc replacement, pelvic operations from mesh all of which I have come through well considering. Once I fractured my wrist which was set Wout anaesthetic and left unaligned the pain was off the charts. It is very difficult when Drs don’t believe you. I had 1 Dr say I believe you have CRPS. he didn’t offer any pain management for it and I was determined to get my wrist aligned. I have had 2 surgeries realigning the wrist which allows my fingers to move now. Ketamine along with walking and Physio is the only thing that has allowed me to get some relief. It has been eye opening watching the Maya Kowalski trial who both Dr Hanna and Dr Kirkpatrick helped. It is the worst pain. I cried for hours each day and night. I pray I can continue to receive ketamine to keep me sane.

[@kerryanti-socialmedia1145]

Thank you Charles this film has been such a help explaining to family and friends crps

[@futureofhealthforlife]

my pleasure, this is Charles do share

[@user-sr1td7co5z]

My son in law has been diagnosed with CRPS for the last 10 years. He has just had nerve implants in his lower spine. We desperately hope it helps his horrific pain

[@hopeseeker97]

Maybe they DO know and they were told to be quiet about it. Just like lyme sufferers or those with fringe things like morgellons. I cannot imagine going through what those on the video are going through. I have had leg cramps and hurt my back where it was the most immense pain...but these people have it so much higher! 😢

[@mares3841]

Thank you.

[@jerrymc427]

Charles, Thank you so much for this documentary as I have been diagnosed with this disease as well. I am hoping for a cure.

[@futureofhealthforlife]

my pleasure, I wish I could do more...do share

[@DMau68]

Been living with this horrific disease since 2004, after contracting covid in December of 2022 I’m now bedridden. CRPS is so much worse, now have blood clots, gastro issues, severe night sweats, daily headaches & more. Wish this movie was on streaming platforms. Sadly, any of us warriors will never get recognition, help with a cure or treatment options that work & don’t cost a ridiculous amount of $ (ketamine is cheap as hell but infusions are $1k & up) until someone well known gets it. If Obama or Swift got CRPS, we would be hearing about it daily. Don’t wish it on anyone but beyond frustrated that it’s been around since the Civil War & only main treatment option is pain meds.

[@GrandmaLM]

Thinking of Maya .

[@futureofhealthforlife]

thanks do share

[@bobbymiley7116]

I don't have crps but my beautiful wife does, she is the strongest person I've ever known. We trust in Christ 💯 and know that all things come out to the good for those that love God and are called according to his purpose 🙏🙏 we're trying to get her ketamine treatment but we're in Yakima Washington and since the pandemic everything has changed in the medical system, we trust in Jesus and 18:10

[@redsorgum]

In a way, I can relate. I have fibromyalgia, and every joint and muscle is in constant pain, it never goes away. And for some of you numb nuts out there, don’t waste your time, trying to suggest that somehow a diet will cure it, or some weird nonsense.

[@futureofhealthforlife]

very true

[@annietomsik3717]

I'm sorry you are living with type 2 diabetes. I'm writing this at the beginning of your video. I used to have type 2 diabetes. But I reverse it because I didn't want to be like my brother. He went from diagnosed to limb loss to dialysis to death in 5 years. I found keto and reversed mine. Then because of fibromyalgia I went to carnivore. There are doctors you can speak with. Dr. Ken Berry, Dr. Anthony Chaffee, Dr. Ben Bikman, Dr. Shawn Baker. Dr. Eric Westman to name a few. It amazes me how many millions of suffering people have been healed by changing diet.

[@futureofhealthforlife]

we reversed diabetes when I was diagnosed, check out the other shows on this KZbin you will see we make shows on just that topic

[@STP0K]

💔RIP sweet angel Hannah Grace🌹🌈🕊️ xoxo

[@futureofhealthforlife]

She really was a sweet girl, I can remember shooting her in the office like it was yesterday

[@NuckingFuts520]

I've been living with CRPS type 2 for 11 years. I'm now in stage 3. It is totally debilitating. I wouldn't wish this on anyone, except maybe Trump😂

[@scottderico3165]

Thank You for getting this out again Charles. Found out yesterday I have fatty liver stage 2 with multiple tumors in my liver. I don't drink. They don't know if it's related to CRPS. Any thoughts?

[@futureofhealthforlife]

my pleasure keep sharing

[@OMyStarz]

Best of luck to you

[@lindalopez2826]

CRPS is associated with an upregulation of pro-inflammatory cytokines. Chronically increased cytokine activity may lead to cell proliferation and tumor occurrence.

[@ogeoge6000]

I wonder if the carnivore/lion diet would help. I had debilitating nerve, joint and muscle pain that resolved after 8 months eating carnivore.

[@m007mm]

@@senorbufoalvarius9202 low oxalate carnivore diet might be better, to prevent oxalate dumping.

[@snahg2356]

I know how she feels. We even have the same hair-do, chronic bed head

[@hopeseeker97]

Was there a certain medication injected when they got their injuries worked on? Some commonality? Bacteria? Parasites? Prayers that they can find something to help! Maybe find the root cause. My heart breaks. Thanks for this video.

[@futureofhealthforlife]

thanks and do share more people need to know

[@TrishinaJeffries]

I have been fighting RSD since January of 2015. I have type 2. It hurts physically and is mentally exhausting. I’m currently fighting for disability. I am looking at 4 surgeries in the next few summers. I’m tired.

[@jenmike042806]

I was recently diagnosed with type 2, after I rolled my ankle walking on uneven ground and it would not heal. Ankle was weak from having spinal surgery and nerve damage. I’m wondering if mine can spread

[@futureofhealthforlife]

do keep sharing we need more people to know

[@ramonanieubuurt105]

Yes it can spread.

[@clestemanning6357]

(ALL CAPS AS IAM LEGALLY BLIND) I HAVE HAD FULL BODY RSD/CRPS FOR 35 YRS. AND I DID KETAMINE TRAILS , I HAD A FULL BAG OF KETAMINE OPEN ON BOTH ARMS & WHEN I FINISHED N I CAME TO I STARTED SCREAMING AND MY ANESTHESIOLOGIST STOOD WITH YEARS POURING DOWN HIS FACE SAYING "THERE IS NOTHING MORE I CAN DO" SO I LAYED THERE SCREAMING FOR 5 HRS. UNTIL MY DR. RETURNED , & THERE WAS NOTHING ANYBODY COULD DO. I LIVE FOR MY CHILDREN, GRANDCHILDREN, GREAT- GRANDCHILDREN. THERE'S A REASON THEY CALL IT THE SUICIDE DISEASE- THERE ARE NO WORDS TO EVER EXPLAIN THIS HELL

[@user-mo6bi8ej8z]

I have had crps for over ten years and live in a small town can anyone tell me if you can receive ketamine orally since the pain clinic I go to doesn't have an infusion center. I have terrible pain and only have oral meds there.

[@mares3841]

Please see Sally K Norton's book about oxalates, TOXIC SUPERFOODS.

[@conniebressler9201]

My son has epilepsy, mesial temporal sclerosis,and an arachnoid cyst.. the drs barely understand epilepsy.. He is 4 hours away in college. I am worried 24/7..

[@futureofhealthforlife]

please keep getting the word on on the doc

[@julzee111]

Did she ever take Fluoroquinolone antibiotics like CIPRO??!!

[@ASouthernLadyinAppalachia]

The Lion Diet is miraculous… don’t give up without trying it PROPERLY.

[@futureofhealthforlife]

do keep sharing we need more people to know

[@Dr.Twat.Waffle]

no diet will fix this. dont spread lies

[@snahg2356]

I've tried ketamine therapy. The withdrawals are the cruelest.

[@elizabethconroy7665]

Can a Spinal Block help

[@donnamuller6460]

I had 2 at Jefferson Hospital in Phila. for long-term CRPS in my left foot. I had no improvement in my foot’s CRPS, but I woke up without peripheral neuropathy in my right foot for the first time in more than 15 years. A tiny bit has crept back but that’s okay. I had a Spinal Cord Stimulator “installed” and just feel lots of tingles if I twist my body even a little. No help with the CRPS. It’s only drugs that help me. I reconnected with the doctor who had cared for me for 20 years when my CRPS was in my shoulders and wrist. He had moved away. So now, every proscribed period of time, my husband drives me from my state to his state for medication, and I’m the only person who gets it. We stay in a hotel. My doctor and I have 21 years of trust built between us.

[@hopeseeker97]

Any cure by 2024?

[@kissezonthemoon]

I need to add that my neurologist Dr Thomas A. DiGeronimo helped me because he caught it early because these people having seminars on it

[@cjbartoz]

When they test people with crps they most of the time don't find anything wrong despite the fact that those people suffer from unbearable pain daily. Probably the reason they find nothing is because their body is most likely just fine. What are the 3 basic things humans can't do without: food, water and air. If you have an unhealthy diet and an abnormal breathing pattern your metabolism goes haywire. This malfunctioning metabolism can cause all sorts of chronic diseases and conditions including some forms of pain. If you start to eat an healthy keto/carnivore diet with or without intermittent fasting and combine this with the Buteyko breathing normalisation method your metabolism normalizes and chronic diseases go in remission and hopfully your pain also lessens. I don't know if this will work for everyone with crps and how well this will work but it is deffinetly worth a try. My heart goes out to everyone experiencing pain daily and hopfully in the future they find the releaf they deserve.

[@cjbartoz]

About The Buteyko Method: A Summary of the Pathophysiology of Chronic Hyperventilation by Ira Packman, M.D. The fact that chronic hyperventilation (CHV) has an effect on the lungs is easily understood and explained. The systemic (whole body) effects however, are physically and physiologically distant from the lungs and therefore are more difficult to understand. The multi-system, wide spread systemic ramifications of chronic hyperventilation are numerous. These effects are all caused by the initial effect of pulmonary hypocapnia (low CO2) which causes spasm of the airways leading to asthma. The loss of CO2 from the lung on a long term basis causes a compensatory response throughout the body. This concept is called homeostasis which means that the body is always trying to stay in balance and return to its most comfortable state. A partial list of homeostatic controls would include: - Constant body temperature - Constant whole body water volume - Glucose levels - Mineral balance including sodium, potassium, magnesium, zinc etc. - Acid base balance (Ph control) The acid base/Ph control mechanisms are very sensitive and closely controlled, because the Ph of the body affects the function of every body system. It is this system that is activated when patients chronically hyperventilate. Understanding this concept, we can follow what happens with CHV. - The lungs continuously blow off too much CO2 causing local pulmonary hypocapnia (low CO2) and arterial hypocapnia. - The arterial hypocapnia immediately changes the Ph of the circulating blood causing an increase in the Ph (alkalosis). - The increase in the Ph causes a decrease in the delivery of Oxygen to all the bodies tissues due to the Bohr Effect (In an alkalotic environment, the hemoglobin molecules in the red cells hold onto the oxygen molecules more tightly and will not release the O2 to the tissues). - The kidneys see the alkalosis/Ph change and know that it must correct the bodies Ph back towards neutral (neutral Ph is a Ph of 7.40). Once CHV becomes long standing the kidneys response becomes an ongoing process in which the kidneys excrete bicarbonate in an attempt to correct the alkalosis which was created by the CHV. - The net result is a depletion of the bicarbonate buffers due to continuous over excretion of bicarbonate which also causes the loss of electrolytes including magnesium and phosphorous which are lost with the bicarbonate. - The loss of phosphorous also decreases the production of ATP (adenosine tri-phosphate) and ADP which are the bodies’ main source of energy. - This then causes a decrease in the functioning of many organs including the muscles, heart, lungs, bone marrow, immune system and liver. - These functional changes, coupled with the arterial spasm that occurs directly due to the low CO2 levels in the blood, are expressed in the long term as muscle fatigue, hypertension due to arterial spasm, decrease in the oxygenation of the brain, migraine headaches due to arterial spasm, spasm of the arteries supplying the gut, decrease brain function with memory changes, alterations in the production of proteins and metabolism of lipids in the liver causing elevated cholesterol. This is just a partial list of the systems, organs and bodily functions which are affected by CHV and the subsequent low CO2 levels in the lungs and blood. This concept regarding the origins and causes of these diseases is very radically different from the way medical schools teach about these diseases. It is revolutionary and may be too simple for many academicians to accept or understand.

[@cjbartoz]

Getting Started by Peter Kolb While the Buteyko method introduced into the west has been getting excellent results, it does not entirely accord with Professor Buteyko’s recommended practice. During two weeks he spent in New Zealand in December 2000, he demonstrated the Buteyko technique as it should be practiced. Aim Firstly, it needs to be understood that breathing too much is a bad habit that leaves you with a debilitating shortage of carbon dioxide and bicarbonate. It usually results from long term, undischarged stress. Any stress makes you breathe more. If this is sustained over a long time period it becomes a habit. The physiology behind this habituation process is well understood. Buteyko therapy aims at reversing this, by habituating to less breathing. You do this by developing and sustaining a feeling of a slight shortage of air over a long time period. This gradually restores your carbon dioxide and bicarbonate levels back to normal. Maximum Pause While it is possible to stifle an asthma attack with a long and uncomfortable breath hold know as a maximum pause (MP), this procedure does not reverse your asthma and does not retrain the respiratory center to pace your breathing correctly. Professor Buteyko is emphatic that the maximum pause has no therapeutic value in restoring healthy breathing, which is the aim of his therapy. It is also dangerous for people with various disorders such as hypertension, heart disease, epilepsy, kidney disease and diabetes. It can also destabilize your breathing, making it worse. Unfortunately the maximum pause has been introduced into a westernized version of the Buteyko technique, much to the annoyance of the Professor. An understanding of the physiology behind the Bueyko method leaves no doubt that the maximum pause cannot improve your breathing. DIY/Self-help Professor Buteyko is firmly opposed to the DIY/self-help approach. The Buteyko technique relies 100% on patient compliance for effectiveness. Learning it from a script is like learning Yoga or martial arts from a book. Most people will experience changes in their bodies as their CO2 levels rise. These changes vary from one individual to another. Buteyko practitioners help you deal with these changes, keep you motivated and ensure that you do the breathing exercises correctly. Support for your Buteyko practitioner enables him to continue his work of bringing the technique to other sufferers. Nevertheless, very few people around the world have access to a Buteyko practitioner. So here are some basics to help get you started. Medication Do not make any changes to medication. Steroids must be taken as prescribed. Because of carbon dioxide shortage asthmatics often don’t make enough Cortisol (natural steroid) and must have supplements. Steroids are not just anti-inflammatories but they are needed by the body and without the right amount it can be almost impossible to get breathing back to normal. Your doctor will be able to review your need for steroids when you stop having asthma symptoms. Bronchodilators must be taken only when needed. As you progress, discuss with your doctor the possibility of weaning yourself off long acting bronchodilators and replacing them with short acting ones. That will give you more control over using them when needed. You should find that within days you will be able to overcome asthma attacks with reduced breathing and won’t need the bronchodilators. Nevertheless, you must always carry them with you for emergencies. Nose breathing Always breathe through your nose. If your nose is blocked perform the following exercise: After breathing normally (do not make any exaggerated breathing manoeuvre), hold your breath for as long as is comfortable, and then gradually resume very gentle breathing. It may help to pinch your nose, nod your head a few times or do some other form of exercise. In stubborn cases or when the blockage is due to a cold, you may have to try a few more times. To avoid breathing through your mouth in your sleep, you might like to experiment with a little light medical paper tape to keep your mouth closed. Mouth taping at night is not recommended by Professor Buteyko, but most people find it extremely valuable. If you do, protect your lips with suitable cream, use a low tack tape (some are quite aggressive), and make sure you fold a tab or handle at each end for rapid and easy removal. Do not go to sleep with tape on your mouth if this causes any form of anxiety. Comfort Make sure you’re comfortable before starting the exercises. Remove unnecessary clothing since the improved blood carbon dioxide will dilate blood vessels in the skin, thereby warming you up. Posture To get your posture right stand with your back to a wall, heels, shoulders head and bottom touching the wall. Now drop your shoulders. Keep this upper body posture when sitting. Relaxation While maintaining your posture, relax all the muscles in your chest, neck, shoulders, arms, tummy and particularly the diaphragm. It’s a good idea to tense them up a bit first before relaxing them so that you can properly identify them and make sure they are all relaxed. Normal Breathing Take off your shirt and stand in front of a full length mirror. Watch your chest and tummy for breathing movement. Make sure that your chest does not move at all, and only the upper part of the tummy moves, between navel and breast bone. The second thing to check for is that the tummy moves out with each in breath and not the other way around. Many people get this wrong. Your out-breath must be free, relaxed and unforced. Reduced breathing (RB) Your aim is to develop a feeling of slight hunger for air, sustain this over a period and do this frequently. In fact, this should become a habit so that you do it all the time until you have achieved your health goal. Try to feel your breathing and become aware of your breathing pattern. Now try to maintain this pattern while taking in just a little less air on each breath so that you develop a slight hunger for air. Initially try to sustain this for two minutes, then five and then ten. If you follow all the steps correctly, then you should feel really calm, good and even a little sleepy. If you already practice relaxation techniques, yoga etc, you can combine them with reduced breathing. Measuring your breathing Hyperventilators breathe more than normal in order to achieve lower than normal blood carbon dioxide levels. It follows that if you have to breathe more than normal, then you will also not be able to hold your breath as long as you should. Professor Buteyko has cunningly used this principle to measure your blood carbon dioxide by testing how long you can hold your breath. You start the pause somewhere in your normal breathing cycle. This is how you start the pause: Look up with your eyes and at the same time pinch your nose and start a stop watch. Just before it starts to get uncomfortable, stop the stop watch and resume normal breathing. You should be able to resume normal breathing without any effort and without taking deeper or more frequent breaths. Some precautions: - Do not take a deeper breath before the pause. - Do not make any attempt to empty the lungs before the pause. - Do not worry about which phase of the respiratory cycle you happen to be in before starting the pause. A pause is just an interruption of normal breathing. The time in seconds is called a Control Pause (CP). Asthmatics typically have a CP of 5 - 15 seconds. (But not everyone with such a low CP has asthma.) Your aim is to achieve a CP greater than 40 seconds, although for perfect health Professor Buteyko recommends a CP of at least 60 seconds. Doing a Set When at rest, correctly seated, comfortable and relaxed and after breathing normally for at least five minutes you are ready to do a set. A set consists of Pulse - CP - Reduced breathing - 3min normal breathing - Pulse - CP First measure your pulse and then do a CP. Record the results on a table. Then do reduced breathing for ten minutes. Breathe normally for three minutes, then take your pulse again and take another CP. If you’ve done your reduced breathing correctly your pulse should go down and your CP should go up. Sometimes the pulse remains the same. If it goes up you’re not doing it correctly. After three days you should be able to do around 8 to 10 sets a day. You can then start integrating reduced breathing into your daily life. Ideally you should aim at doing reduced breathing all day. That takes care of the exercises. Here are a few helpful hints to help your recovery. - Don’t eat unless you are hungry. Only eat until you have had enough. Eating increases breathing; eating excessively increases breathing excessively. - Don’t dress too warmly. Be careful not to overdress children. If you are worried about them being cold, check their ears, nose, hands and feet. If these are warm, they’re OK. - Make sure you get plenty of vigorous exercise. But don’t exercise to the point where you have to open your mouth to breathe. If any of these recommendations make you dizzy, sick, anxious or give you palpitations, stop immediately. If possible see a Buteyko practitioner.

[@cjbartoz]

FMSW-protocoll: - fatty meat (when hungry/until satiated) - 100% unrefined Celtic/Hymalaya/Redmond sea salt (to taste) - high quality mineral water (when thirsty) The proteïnes inside the meat are the building blocks of the human body. The colagen inside the meat is the glue that holds your body together. The fat inside the meat is the intermediate between the fat souluble vitamins and your body.

[@futureofhealthforlife]

do keep sharing we need more people to know

[@Dr.Twat.Waffle]

and if you start to shut up, and not spread misinformation and tell people that their body is just fine when they have a debilitating disease - it's possible you won't be called a jerk. but idk. live your life wrong if you want... none of the things you mentioned are going to fix this issue. you are just as bad as Dr. Oz

[@4TIMESAYEAR]

Pain is pain. When people say "it's above cancer pain" it's based on nothing but our human misconception that cancer pain is worst. It's not. Pain is pain. The body doesn't diagnose or distinguish between the kinds of pain. I've heard women say that migraines are worse than childbirth. I'd say my migraines were the worst pain possible, but I've had a chance to experience other pain now that I'm older and I'd say bone on bone arthritis is equal to or worse than the migraines because though the migraines last 4 days, this never lets up.

[@carol2070]

Clean up diet. No booze, no sugar, no carbs, no sodas, no processed foods. Eat grass-fed meat, organic, bitter greens, high vitamin C, sunshine and iron supplement.

[@kissezonthemoon]

seriously nah it's a process in the brain you have to almost reteach your brain to not recognize that pain I used meditation and preoccupation to focus on something else but when you feel like your taking a bath in hot lava with thousands of needles poking you that's hard to do

[@STP0K]

Yes, our DIET is everything, and not once in this lovely documentary was it mentioned. I’m sure because Doctors are not trained in nutrition, but seeing a child in chronic pain & bedridden, calls for a complete lifestyle overhaul . Which Begins with a whole food diet. zero-Low Oxalate foods, protein, proper hydration, Fasting and sunshine. If I was personally working with these patients I would start with a proper human diet. Ketosis(a metabolic state of Healing) AUTOPHAGY, Apoptosis, neurogenesis. Please please 🙏🏻 educate yourself on Ketosis and how to get there safely. How to fast and heal. There’s so much I want to say to help, but one has to do their due diligence while on this hellfire journey. Peace and love to all. #ketosisheals ✌🏼💕🙏🏻

[@kissezonthemoon]

@@STP0K so you are saying diet helped your CRPS?

[@beachblanketbaby4920]

Diet, fasting and sunshine....having crps myself this comment comes from someone who doesn't have it and hasn't known anyone with it

[@kissezonthemoon]

@@beachblanketbaby4920 I'm saying it kinda pisses me highly off I found it offensive to us that have to suffer as though are skin is being burnt with a blow torch to just have a blanket laying on it or try to have a night sleep without anything touching the affected limb it's impossible and not wearing a shoe because it's excruciating

[@m007mm]

4:45 it sounds like she is filled with CalciumOxalateCrystals! Try the low oxalate carnivore diet ✨

[@beachblanketbaby4920]

Thank you so much for doing this! After a work fall a year ago i broke both my elbows. One of my arms just never healed and the pain is unbearable. I was just diagnosed with crps now a year later and am about to start ketamine infusion therapy. I was so nervous because i didnt know alot about them. Thanks to you i now know what to expect. I pray your mother and all of us with this horrifc disease find pain relief and God willing a cure ❤❤️🙏🙏🫶

[@futureofhealthforlife]

do keep sharing we need more people to know

[@genericamerican7574]

Thanks for posting this on KZbin again🫶🖖

[@futureofhealthforlife]

do keep sharing we need more people to know