Video Blog - Mitochondria in ME, CFS and Fibromyalgia

[@hea7055]

Really helpful, thank you. I liked the humour with it. Life can be so damn serious having CFS/ME/FMS, it's nice to take a lighter approach to a serious subject. I so wish NHS GP's had this knowledge that the OHC has and offered this blood testing and treatment for mitochondrial dysfunction! So frustrating.

[@grdk1]

Thanks again. Comprehensively informative. Thanks for caring!

[@jibsoz]

Great video very informative and so easy to understand with the visual aids. Thanks

[@imunchienandalusia]

This is so important. I've tried to describe what this feels like to my brothers - one of which is an athelete. I used to do these really long bike rides, and after 2 hours or so you 'bonk' when you run out of glycogen. That's what CFS feels like

[@the14thmoonofuranus]

Thats very interesting and explains a lot. It also explains why the 3 day rule comes into play with ME - when trying something new, rest for 3 days afterwards. These things mean so much more to me when I know the reason WHY I have to do something a certain way. Why the gps & ME clinics dont give us this info is beyond me. They just havent got a clue. Thanks Alex & the OHC.

[@mcjanediz9139]

Great Video! Apologies for the intrusion, I would appreciate your opinion. Have you heard the talk about - Dinanlinson Rebooting Health Approach (Have a quick look on google cant remember the place now)? It is a smashing exclusive product for getting rid of chronic fatigue syndrome minus the hard work. Ive heard some decent things about it and my friend Sam after a lifetime of fighting got great results with it.

[@hea7055]

I agree totally with you.

[@MurzelMachtMusik]

Thank you... I've never before had such a good laugh about my malfunctioning mitochondria.

[@synapse131]

In fact, I am of the opinion that the "bonk"-like, reactive metabolic state is what leads to most of the excitotoxic damage that causes hyperalgesia and the micro-seizure (resulting in alpha/delta wave anomaly and all cognitive symptoms.) It's mostly the drop out in blood pressure during this "bonk" state that causes the CNS ischemia that leads to the brain problems. It all starts with the viral cardiomyopathy and vasculitis and progresses when we overdo the exercise after getting ill.

[@suelovescats]

I find the video informative.. I have fibromyalgia..and loud unnecessary noises startle and annoy me . All the noise and loud laughing really made me not be able to concentrate on what you were saying . Am I the only one ? But once I knew to expect noises I did laugh .. this sounds exactly what is happening to me ...

[@synapse131]

Probably mostly applies to viral ME, not OP ME, stenosis FM, dietary excitotoxin FM, borrelial ME?, and any of a host of other pathogenics (although the fact that many of these have similar mechanisms causing excitotoxic damage and hyperalgesia makes sense; OPs cause diastolic cardiomyopathy and excitotoxic damage, dietary excitotoxins cause direct excitotoxicity, stenosis causes ischemia in the same parts of the brain lacking bloodflow in brain imaging studies in viral ME, etc.)

[@grahamkeil2253]

Thanks very much. Nice and informative. Plus it's empirical......

[@asnail9539]

What is the name of these blood tests?

[@synapse131]

This, combined with the micro-circulatory is why our muscles stiffen abnormally with even the lightest activity (even w/ Olympic level endurance athletes) but we still retain short term anaerobic strength that allows up to push past our limits. When those metabolic byproducts are not able to be recycled and cannot be removed from muscle, the result is "lockjaw light." They are correct about the raggedy fatigue being a type of "bonk"; it occurs cyclically and reactive to activity.

[@laraslong]

Hello? Whats with the loud laughing and the really unnecessary comments and noise... this is made for people with ME right? foolish..

[@IVAN3000]

hahaha I am sorry but this made me explode with laughter

[@libraryfiles4470]

What supplements are needed to build ATP.

[@hea7055]

Look at Dr Sarah Myhill's website, she gives a lot of info there on supplementation to support ATP production :-)

[@jeansmyth7474]

Dr Myhill’s treatment regime is not for everyone. I did full course supplements for six months without any noticeable improvement and it was very expensive.