Visual Snow Conference 2018: Matthew Renze

[@AbsolutC1ntron]

I watch this video whenever I feel overwhelmed by my symptoms. I hope Matt realizes how much good he is doing with these presentations. Gives me hope!

[@VisualSnowInitiative]

Thank you Charles for sharing and thank you for the kind words. We like hearing that these videos help, we'll continue to put out useful content. We'll get your message to Matthew. Thank you. Please feel free to give us a Facebook 5 Star review if you like what we're doing. Thanks, Steven

[@matthewrenze]

Thanks, Charles! It means a lot to me to know that this message is resonating and helping others. Take care! : )

[@AbsolutC1ntron]

Matthew Renze Thank you, Matt! Keep up the great work.

[@Loveoverfear1001]

OMG this guy is like the same guy as me. I wish i found this video earlier. I too have found that getting off alcohol, caffeine, sugar helped me immensely. But more importantly by yoga and meditation practice. I also did a 10 day vipassana retreat and found that it was the first time where i completely forgot about all uncomfortable symptoms. I felt way better for about 2 months after. I can vouch for everything he is saying!!

[@knofi4619]

15:44 This is so right, I has the same thought. I have VS since July 2017 and i really suffered for a half year, but then I changed and I dont have this negative attitude anymore. Thank you Matthey Renze, so important thay you shared this information to everyone

[@johnp3195]

thank you amazing speech

[@tobik2627]

I could cry, except for the tactile symptoms I have EXACTLY every visual and auditory symptoms. It’s so unknown that nobody could tell me what it is till now.

[@samanthajoslyn1000]

Thank you, all of you a part of this conference! I began to suffer from VS five months ago, and it's been a major stressor. I appreciate people getting together to figure this condition out.

[@VisualSnowInitiative]

Thank you Samantha for your kind words. We're working hard to create awareness and find a cure. We're all in this together. Thanks

[@MegaTeachmehow]

I self diagnosed myself with this 10 years ago.. Mine stems from the css and was triggered after doing mdma... I went into full blown panic 24/7 for 6 months. The resources were limited but I did find a couple of these articles, never was it clustered up this well. This turned me agoraphobic. Luckily with lots of therapy I broke free, I was able to cope and live with these symptoms stress free for about 8 years. When my stress and anxiety increase, these definitely flare up.

[@GoldenHeartIncorporated]

Joshua T interesting cause adderall caused mine my dr misdiagnosed me I wasn’t on a high dose :/ only took it 5 months.. but I’m going on a health binge been stressed bout this for far too long. Ready to move on. I have the pins and needles in feet too :(

[@MegaTeachmehow]

@@GoldenHeartIncorporated get onto an ssri it helps a lot with the over thinking

[@GoldenHeartIncorporated]

Joshua T i have closed eye visuals too before falling asleep.. like of people and places it’s weird.. I hate that I messed my vision up ugh..

[@matthewpadilla6671]

what’s your instagram bro

[@Roy-mk9zl]

You know what? On the top of all these I lost my skin sensation(don't feel pinch cold or heat on skin) 😭 I was so broke that I felt I will die and so I tried to be hedonistic. Then today while I am still suffering from this, I still have some hope left in me. I will do anything to get back my life on track.

[@rajsubha6493]

I hope you’re doing well

[@paulinavelona4482]

Hey Roy, I hope you are doing okay. If it can give you a little bit more hope, they actually found a encouragong treatment for VSS. You can find details on their website. Keep safe

[@wilhelminacattoir8661]

How are you now?

[@inceptionsd]

I have literally 100% of these symptoms, it is like 1:1 diagnosis. Additionally, i developed branch-like afterimages when light is shining at periphery of my vision (purkinje tree negative afterimage), which has become so obvious, and sometimes it even obstructs my vision significantly. Another symptom i have is shimmering of vision when watching certain repetitive patterns (pattern glare) and i can clearly see heart pulse in my left eye.

[@Roy-mk9zl]

I love you 😭

[@ZeffG]

Matthew is the living proof that you can habituate even to full blown VS (unless maybe you get a very severe case). I'm 3 months and am currently freaking out about getting worse trailing. But then Matthew has positive afterimages, bluefield entopic phenomenon and floaters and grainy VS, all of which I lack, and he seems to be doing good. So that gives me a good outlook. My personal opinion is that derealisation and depersonalisation are consequences of anxiety and depression, which you can handle with meditation and exercise.

[@sailing_naia]

Absolutely great presentation with a very true message, thanks very much for sharing this and bringing this message out there. VS started 7 years ago for me together with heavy brain fog/derealization and anxiety, it's was a heavy journey to getting rid of anxiety, but it was indeed possible for me as well to separate suffering and anxiety from the symptoms you have and live a good life. I love the mindset of seeing VS as the companion that reminds you to care about things that make your life better. That is definitely the case for me as well. I wish i would've seen this video 7 years ago, I'm sure it would've made things clearer and easier for me back then. Hope we are able to reach more people who suffer from it with such a message. Thanks

[@VisualSnowInitiative]

Thank you for your acknowledge and sharing your story.

[@sailing_naia]

My pleasure, thank you for starting this initiative.

[@ritapozsgai4224]

Perhaps you can imagine how much it means to me that I now know what the problem is. As a small child I often looked at the sky and wondered what was flowing there, I thought I saw some energy. I am now 46 years old, my eyes and head hurt a lot due to my work, because I am constantly sitting in front of a monitor. Two years ago, all the other symptoms started, and I was scared to death of what it could be, I didn't dare to tell anyone about it. I remember the day when all the symptoms started looking at the monitor and I had a panic attack because I was so scared. I live in Hungary, in Europe, and if there is a method that helps, I'm looking forward to it. Thank you for your work, and if you can send me some help, exercises, anything that I can use to help myself at home, I am very grateful.🥰

[@VisualSnowInitiative]

Hi there! Thanks for sharing your experience with VSS. A new treatment came out in 2022 by Dr.Tsang and Dr.Shidlofsky. The study has been published, and you are more than welcome to book an appointment for VSS treatment at their clinics. We have attached the link below: www.frontiersin.org/articles/10.3389/fneur.2022.999336/full. You are also welcome to check out our other doctors worldwide via our Doctor Directory on our website. The aim is for the treatment protocol to be taught to medical professionals worldwide through Virtual Masterclasses. We have revealed the official dates aon our SM! Additionally, we hope other medical & healthcare professionals become aware of the treatment option through the published study! You are also welcome to share the treatment protocol with your Doctor! We hope that helps.

[@GoldPunch]

The another cause is forward head posture.

[@VisualSnowInitiative]

Thanks for your feedback!

[@lyncielaughlin2113]

Your symptoms are just like mine it so confusing to wrap my head around as to why I have this and why it started

[@VisualSnowInitiative]

Thanks again for sharing!

[@tadurisaikumar9154]

Through yoga/meditation, does anyone get rid of total Visual & non - visual symptoms? Taking reference of Matthew sir, anyone made an attempt to get rid of VSS? I have been facing VS/NVS for last 3 months back same as VSI diagnostic proforma

[@leonardod1977]

Thanks Matthew Renze, your presentation is very unseful and informative. Could you please tell me what device and software you used to monitor your skin response and heart rate (neurofeedback)? Thanks very much.

[@matthewrenze]

I use the Wild Divine IoM Pro for biofeedback (which unfortunately has been discontinued) and the Muse for neurofeedback. Hope this info helps!

[@wilhelminacattoir8661]

Does anyone also have numbness in feet and hands?

[@alejandrom3368]

Yo también tengo nieve visual,como 20 años, ahora que a aumentado mis acufenos, solo quiero que bajen,voy a empezar hacer yoga y meditar , ojalá bajen

[@salemrashed1]

Hi please could someone tell me which precision-tinted lenses to help with visual snow

[@benhutchinson9344]

Rose tinted glasses can help with sensitivity to light which goes along with visual snow

[@ingridnathalie]

I also have that burning feeling in hands and feet. Does anyone know what that is?

[@VisualSnowInitiative]

Hi there, this is known as Paraesthesia, Feel free to check our diagnostic criteria on our website for more information.

[@mountfairweather]

My optometrist had no idea what visual snow was. A neuropthamologist told me I was too sensitized and too worried. He told me to try meditation and a therapist. Awful experience with the medical system

[@VisualSnowInitiative]

We're sorry to hear that you went through this.

[@mountfairweather]

@@VisualSnowInitiative thank you

[@laylaelizabethchester7592]

I have this, none of my doctors believe me

[@VisualSnowInitiative]

We believe you, you're not alone. We have a resource directory on our website with a bunch of medical professionals that understand and know how to properly diagnose Visual Snow. Here's a link if you are still in need: www.visualsnowinitiative.org/visual-snow-doctors-and-specialists/