Wanting to discuss disability with your rheumatologist? Watch this first!

  Рет қаралды 2,232

Connected Rheumatology

Connected Rheumatology

Күн бұрын

Пікірлер: 7
@Wormwoodish
@Wormwoodish 6 ай бұрын
Thank you Dr. Ortiz for your generosity of always providing such critical and valuable information. I’ve learned so much from you, you are a true Angel and Hero! I’m a zebra with dermatomyositis mda5 pos, cusgings disease, psoriatic arthritis… it took years and years for diagnosis from being gaslit by being told I was “crazy “. I’m still waiting to appear before a judge to plea my disability case as I keep getting denied because all my old medical records stated I was having psychosomatic pain and symptoms that nothing was wrong with me. The good news is I have finally found my team of Angels and Heroes that are trying to care and save me now and I could not be more grateful to have them and your channel is so vital to the community. You helped me to see that I was not “crazy” and I never gave up! They are studying my case at UCLA ans it is a honor to be able to help Doctors to learn more and hopefully help future patients have a better prognosis and experience. One grain of sand at a time and we shall build a mountain! Thank you Sincerely
@DJ-nk4dq
@DJ-nk4dq 6 ай бұрын
I’m starting the process of getting on long term disability. I have connective tissue disease and many related complications that have involved pulmonologist and other specialists over the years. I have very demanding job on the other hand, and a stressful private life with recent child loss and chronic and progressive disability of another child. Things took its tool and after more than 20 years of full-time work, I find myself unable to function and perform my job duties or any duties honestly. It’s a terrifying place to be but I am determined to do my best and fight one last battle of my life for my own disability rights and compensation, whatever that might end up being at the end. This video came at the perfect time, weird coincidence, but I appreciate it very much.
@srijoni1237
@srijoni1237 Ай бұрын
@@DJ-nk4dq What is your disability if you don't mind ? Is it the joints ? Or what? And if joints then knees?
@catherinegreen4306
@catherinegreen4306 5 ай бұрын
This is so helpful. Thank you so much.
@swaziswimmer
@swaziswimmer 6 ай бұрын
Thank you for your generosity in clearly stating this info!!
@ElainesAutoimmuneAdventure
@ElainesAutoimmuneAdventure 6 ай бұрын
Thank you for this video, Dr. Ortiz!
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