What is Cystic Fibrosis? How does it affect me?

[@lawlerskeetz]

My brother passed away from CF 2.5 years ago, to him you weren't hiding the bad parts of CF, you were highlighting what you can do despite CF. Thank you for everything you do Ben.

[@hex9379]

I feel bad i have cf

[@lawlerskeetz]

@@hex9379stay strong mate!

[@Chris-ct2xm]

You may not seem/be the 'typical' CFer but thats a great thing. You inspire others to try their best with your positive attitude and being an exercise enthusiast. Try not to let the fears of the future scare you. I know its unavoidable to randomly think about, especially after talking to a few fellow CFers who end up passing but we really don't know how our own story will go. I fear my own end will be like my twin sisters, but my story is already different than hers, so maybe not. I hope you keep up the great work in all you do for our CF community and please keep doing your breathers(my slang for breathing treatments) even if you dont feel you need them from time to time. Take care! :)

[@TheWhiteSleighBarn]

Excellent Ben. Liked the way you spoke from the heart and shared your feelings. Your description of CF was spot on - great analogy; easy to understand. Thank you for doing this - speaking out for all of us Will be sharing this! 💜

[@gh0stkat440]

Hi I am sorry for the mental trauma you are suffering while reaching out to others who are with cystic fibrosis. I will make a quick analogy to maybe possibly help you. I hope it does. I myself , in the past, was an emergency medical technician on an ambulance. I was not a paramedic who can administer medication by doctor orders. I was not a doctor who can provide surgery for life saving. I was an EMT who could be there for someone who needed help and get them to a place for healing. You are an inspiration to others who are battling cystic fibrosis. You understand the body and how to alleviate your symptoms by taking care of yourself with medication and exercise and cosplay (Thor). You have empathy and that is what helps you to help others with cystic fibrosis. To me you are sorta like an EMT , being there for people when they need help and showing them and telling them how to take care of themselves. I wish you good health and I really hope you can start small fund raising projects at hospitals . Just a quick suggestion, could be like getting in touch with other cosplayers who have “Avenger “ or really any “Superhero “gear and get them together at a clinic or hospital. Allowing the patients of cystic fibrosis know that you are there in support. Possibly also as a fund raiser to help someone in financial need due to the cost of hospital or clinic care. Good luck and keep the faith in yourself .

[@rinas2148]

Thank you for sharing your thoughts and emotions so honest with us. You made me realise something about the mental health of a beloved one who suffers with another chronic disease which I didn't see for many years. Thanks so much for the eye opener ❤️

[@mcwoody0160]

Hi your a really big inspiration to me I have cf and my worst worry is probably death knowing there's a chance I want live with all my friends but you showed me not to give up

[@robintonies]

I really can relate with the things you were saying. I also don’t want people to think i’m sick. And I managed to do that still upon this day. The hardest thing is joining a community and meet friends that also have CF and see them struggle so hard and occasionally see them die. A good thing here in the Netherlands is that there is a new law coming up that says; everybody that doesn’t apply themselves for organ donation becomes a organ donor automaticly.

[@litolito1893]

I’m so sorry for your illness and for the toll it’s taking on you. I have some encouraging information that I like to share with you but not through KZbin

[@user-mr9gy7ee2r]

MIM motivation

[@FargoLargo]

Hey man! U awesome person, u do right things to help people. Keep going doing what you do, inspire.

[@robrichmond4213]

Great vid Ben!!! All my love and support for you and CF!!!! 💪🏻❤️🙂

[@endlessawareness]

Ben, I appreciate your thoughtfulness & honesty. I would be glad to talk with you at some point. I think you might find the discussion helpful. Please message me if you get the chance. Wishing you all the best my friend.

[@vtsormpa]

A really really concealed and hard topic Ben but you provided a great explanation! I agree that the mental aspect of it is the most tricky to deal with it. You are such an inspiration mate! #wontbestopped

[@jonathanmejellano73]

please keep on, continue to be the inspiration... love you Ben!

[@leviheenan739]

Love it Ben big inspiration to me and everyone else who have cf keep on killing it #Wontbestopped

[@Darkness-fq9uv]

I also suffer from Cystic Fibrosis. I'm currently 20 years old and just leaving from a 2 week admission at the hospital. My results have improved drastically. Hoping to increase my Lung Function👌🏼👊🏼.

[@danielpryde7548]

Love your stuff Ben. Keep going strong and just know your making a huge difference in the CF community. If you ever want there is a r/CysticFibrosis sub-reddit that would love to hear from you once in a while. :)

[@stephaniestavros296]

You are incredible, my friend. Well done. Thank you for sharing.

[@katec5026]

Thank you for being so brave and sharing your story! 💪🏼❤️

[@claireamphlett-thomas7057]

Ok so massively important informative video and I’m sitting here thinking damn that voice 🤦🏼‍♀️ 🥰👌🏼

[@BestyFPV]

Thanks for sharing, you are an inspiration to those even without CF. Keep up the excellent work, you are doing so much good 👍☺️

[@jdo6243]

I have CF too

[@wyattmoss6546]

Hey I’m 14 and I have cycstic fibrosis

[@rosaportillo5589]

Thank you for sharing ❣

[@victorcoutinho156]

I hate this disease with the power my being and I don't even have it ! If I had one wish in my life it'd be a cure to be found for this dreadful illness and ... yes I'm an organ donner.

[@user-vr9fb1we1o]

ёёёёёёёёёёёёёу мужик, я из России, кароч ты убийца прям, прям ну красава мужик, я надеюсь, что ты победишь эту сраную болезнь и кароче будешь, как тор!! удачки тебе

[@moblue2899]

are you planning to have kids knowing that it's a generic thing?

[@alphadragon7645]

You can have kids, you need 2 parents to pass the cf gene, even if u have cf doesn't mean your child will definitely get it.

[@moblue2899]

@@alphadragon7645 even so. i wouldn't recommend having kids

[@claireamphlett-thomas7057]

moblue 289 whoa kinda harsh 😡