What is Langerhans Cell Histiocytosis?

[@ThienTruong-iy5ix]

studying for boards right now. This is amazing thank you.

[@DrDumplingMD]

simple and fast.. thank you

[@dineshkris]

One of the best,fastest presentations ever tq

[@jennywowk-jcdmah2144]

What do you recommend for their exercise? Thank you

[@teresajohnson5265]

Thank you. ❤

[@sowmyakandula5040]

Thanks for the information ☺️☺️

[@MVO884]

Hi, thank you for this video. I live in the Netherlands and was diagnosed LCH in 2007. Time after time I been very suck and have a fever and problems with different organs, liver, intestines. Hve problems with my joints and back. Still my doctor telle me, this has nothing to do with LCH. I really getting anoid by this, because my research proves otherwise. Does anyone have an advice for me. Thank you.

[@rizalal5689]

Same with my sister,

[@heatherhuffmanaustin]

Try talking to Dr. Kenneth McClain at Texas Children's Hospital. He also treats adults in addition to children

[@MVO884]

@@heatherhuffmanaustin Thank you for your answer. I allready made ccontact with Hospital Amsterdam with a immune specialist doctor. I hope it's gonna benefit me.

[@uslesskam]

Здравствуйте! Этот смертоносный диагноз мне поставили в 25 лет, спустя 6 месяцев как начался непреодолимый кашель. Я чувствовал постоянную слабость и врачи рекомендовали больше отдыхать и меньше двигаться. Я несколько лет употреблял имуннодепрессанты и катаболические гормоны, но начал активно заниматься спортом после большого перерыва в 12 лет. 3 года назад я отказался от гормонов и живу полноценной жизнью, мне 32 года. Активный образ жизни, спорт, правильное питание и поддержка близких позволили мне не вспоминать об этой ужасной болезни, успевшей поразить 50% моих лёгких. Не смотря на это, она не даёт поводов вспоминать о ней в повседневной жизни. Гистиоцитоз Х это не приговор для меня. Если кто-то из вас столкнулся с этой ужасной болезнью, не опускайте руки, действуйте быстро. Только здоровый образ жизни и интересов способен вытащить из любой ямы. Будьте здоровы!

[@AR_HUB663]

My 5 yr baby with multysystm Lch Strfd from the agr of 1 yr

[@soccerboy3223]

Hey I hope I'm not too late. Im a survivor of LCH. I had it in my lungs, skin, brain, lymph nodes, and liver. Multiple areas of scar tissue. I was diagnosed as terminally ill at 2 years old and even had a make a wish at 2 and a half to go to disney world . If you ever just need someone to talk to, Im always here for you. Just message me at anytime. Ive been to multiple conventions and also hvae taken part of the hike for a cure foundation when I was about 12 at the half dome. I'm now 25 and completely in remission . Not many long term issues besides frequent headaches and some lung issues. If you ever need someone to talk to, I just want you to know that I'm here for you. I know I said that already, but I learned of being a part of the LCH org, the best thing parents can get sometimes is success stories, so please don't be afraid to message me at all

[@mizzsandhuunknown]

@@soccerboy3223 Hey Joey! My husband’s best friend has been diagnosed with LCH two days ago. Needless to say, he and all of us are depressed and worried after coming to know of it. A success story would be quite motivational at this stage. How can we contact you and are you aware of any social media help groups for LCH?

[@priyankapawar35]

Hey my 6month child diagnose with LCH when he was 4month old his treatment is started nd he is doing well.but main concern is he is easily affected by others dieses.i just read your message nd it gives me a hope that my child will be cured.what much time will taken to cure it completely and what precautions to be taken please tell me

[@AR_HUB663]

@@priyankapawar35 multi system lch ?

[@حسنج-ج8ه]

​@@soccerboy3223 my mam 😢