What is Turner Syndrome?||An explanation video to raise awareness||

Рет қаралды 180

Күн бұрын

Пікірлер: 31

@Straw_3rry 6 ай бұрын

Never knew about this! Thank you for sharing information about this syndrome and what it means but also your own experience 💙💙

@Roselylovely 6 ай бұрын

I’ve been wanting to do this for a while because a lot of people don’t know about it and I felt like it was important to share some of my experiences to show how it actually affects me and not just scare everyone. I’m glad for all these kind words people have been sharing 🦋

@Straw_3rry 6 ай бұрын

@@Roselylovely I’m very thankful you shared your experience as it helps others with Turner syndrome realise they’re not alone! You explained it beautifully too, no sugar coating it or trying to shorten it !! 💙 it’s wonderful people have kind words to say, very happy no one has decided to be negative since that happens a lot on social media 🫶

@Roselylovely 6 ай бұрын

@@Straw_3rry I did try to shorten it without leaving anything out

@brooklynnnofsinger-lc9gb 6 ай бұрын

Oh I’m so sorry about what’s going on with you I really do hope you get hopefully better

@Roselylovely 6 ай бұрын

Well it’s not like a “get better” thing, but the meds help me deal with the symptoms and go through normal teenage things.

@brooklynnnofsinger-lc9gb 6 ай бұрын

I understand having a rare condition and a genetic mutation and I’m glad you’re here because I think your videos and content are good and you sound like a very nice person

@Roselylovely 6 ай бұрын

⁠@@brooklynnnofsinger-lc9gbthank you, I appreciate your words and kindness, you seem nice too

@brooklynnnofsinger-lc9gb 6 ай бұрын

@@Roselylovely I’m glad they help and that you get to do normal teenage things and go through them it’s just amazing how much medicine has evolved to help people

@brooklynnnofsinger-lc9gb 6 ай бұрын

@@Roselylovely no problem and thank you I do too. I don’t have turner syndrome but I do have a rare genetic mutation in dystonia I think I spelt it right. I do also have a pretty normal life but just a few complications from the dystonia. I actually never knew a lot about turner syndrome but I have heard the name

@phoebei7062 6 ай бұрын

cheese! Thanks for sharing your experiences, your feelings are incredibly valid ❤❤❤

@Roselylovely 6 ай бұрын

Yeah it was definitely tougher as a kid, growing up with all those movies about people having kids and husbands, but shows like Bluey, FRIENDS, Shazam, etc, definitely helped show me that adoption is something to be excited about too, because adopted kids are just as much your kids as any other.

@ashiea 6 ай бұрын

Very informative, I had heard of Turner syndrome before but only mentioned so I didn't know about a lot of these things! Thank you for sharing!!

@Roselylovely 6 ай бұрын

No problem, I’m here to spread awareness with the research I’ve done and what affects me the most with this condition. I’m glad to share and that you learned something about it!

@that_one_Everything 4 ай бұрын

Thanks for spreading awareness I also have it too :)

@Roselylovely 4 ай бұрын

OMG WHAT?! It's crazy how rare it is that when someone says they have it I'm surprised. I've never met anyone else with it IRL but it's nice to know they're out there.

@that_one_Everything 4 ай бұрын

@@Roselylovely yeah, there's even a full on camp for the condition

@Roselylovely 4 ай бұрын

@@that_one_Everything Yeah I want to go but it's expensive