WHAT'S IN MY BAG Chronic illness Edition | Living With Gastroparesis

[@AmitysLife]

Don't forget to check out my Etsy Shop, the link is in the bio 💖

[@Dulcimerist]

I tried to check out your music channel, but the link to that one isn't working. :( Have you ever done a cover of "Skating Away on the Thin Ice of a New Day" by Jethro Tull? It's one of my favorite songs. :)

[@AmitysLife]

@@Dulcimerist I haven't heard of that one before, I will have to look it up ☺️ I will try and see what is wrong with the link

[@Dulcimerist]

@@AmitysLife I get a weird "404 not found" error from KZbin. I'm in the USA, so I hope it isn't some weird regional thing involving worldwide music distribution rights.

[@AmitysLife]

@@Dulcimerist that's odd, I will look into it ☺️

[@rosecraver4042]

I have gastroparesis, and water is very hard to drink. I'm 34 found out I have gastroparesis in 2019 they don't know why I have it. I just found you channel. Thank you for sharing your experience with us. I'm on a all liquid diet. My dr just took fiber and sugar away from the already long list of items of can't have. ( Big hugs and prayers form Small town in GA USA)

[@AmitysLife]

I am on a liquid diet too, it's really hard but I can't imagine going sugar free. Sending lots of love and prayers your way from DownUnder 💖

[@MOJORAPSCALLION]

My consultant says cold drinks & ice have a paralytic effect on the stomach & Bowel so I can’t have anything cold and it does make me flare congratulations on your Etsy shop! 💗💗 I have a J tube all feeds, medications & fluids go down there if I try drinking water I choke on it like most things and it doesn’t stay down you can buy the Emesis compact bags on Amazon incase you run out xx

[@AmitysLife]

Probably best for you to stay away from the cold water then ☺️ Aww thank you I am so excited about the Etsy store 💗💗 is a J tube the one that goes through the nose or is it into your belly? And thank you I will have to but some on Amazon ☺️

[@MOJORAPSCALLION]

@@AmitysLife hey sweetheart it’s not a NJ tube (that’s a nasal Jejunal tube) mines a peg-J tube that goes into the stomach and all the way into my jejunum (small bowel) I use the G tube for venting & draining and the J tube for feeds, meds & fluids xxx

[@AmitysLife]

@@MOJORAPSCALLION Oh ok that makes sense ☺️ asking cos my gastro is thinking we might have to go down that road at some point 😢 sending big hugs 🤗💖

[@mossthegremlin6161]

For me room temperature water is the most easy for me

[@AmitysLife]

Isn't it crazy how we're all different ☺️💖

[@mossthegremlin6161]

@@AmitysLife yea

[@Dulcimerist]

I tend to forget to drink extra water. Dehydration has landed me in the ER before. Monday I got my first IV saline infusion, but I've felt really sick this week - I think I have a flu, so that makes it difficult to know if the infusion helped. Sports drinks like Powerade or Gatorade helps, if I remember to drink some each day. Your bag is cool! Your modeling poses are pro, too! The sloth pants look super comfy. You forgot to show us what Australian money looks like, but it's so brightly colored that it would probably blind us or break your camera.

[@AmitysLife]

Oh no that's not good at all, I will say that I usually feel aweful the first 24 hours after a drip but feel so much better the the next two weeks when it comes to dehydration 💦 Haha I should of showed our currency 😂😂

[@marylonergan8511]

❤️ 💙 💜

[@AmitysLife]

💖💖💖💖

[@cmalpinecheer]

I have Gastro paresis and I can NOT stand water!!! My husband practically has to have me on a reward system of what I can get to get water down me😂😂😂

[@AmitysLife]

😂😂😂 I love it, I will have to make an award system myself. Sending lots of love 💕

[@bront5602]

Slip slap slop is australian slang i'm pretty sure. I'm australian and i have heard it heaps lol especially on tv

[@AmitysLife]

Haha I used to love a children's song called slip slop slap and it was by a guy called Colin Buchanan. I used to love his songs.

[@bront5602]

@@AmitysLife omg i remember him i think he used to be on play school

[@marzettik]

I have problems with water too. Like drinking just a few sips of plain water will make me more nauseated, give me heart burn and painful bloating. I’m thirsty all the time though. Doctors and I are working on how to handle my dehydration. So far electrolyte drinks are not enough.

[@AmitysLife]

Hey Kara Dehydration is a big thing with Gastroparesis, I have to get IV fluids twice a month to be able to stay hydrated as much as possible

[@lifeaskaylie]

I have suspected gastroparesis and I struggle a lot with water

[@AmitysLife]

It's so hard isn't it ☺️💖

[@lifeaskaylie]

@@AmitysLife Yeah 💗

[@alyssawssinging4039]

Hey very common I think me with gastroparesis I get very dehydrated

[@AmitysLife]

It's so hard cos water is so important

[@alyssawssinging4039]

@@AmitysLife ikr

[@AmitysLife]

@@alyssawssinging4039 😭

[@terrytaylor6379]

I love your videos, I've been diagnosed with gastroparesis this year and its hell, I was wondering where I could get the gastroparesis cards? I am on a full liquid diet but even having liquids hurt so I was wondering if I should tell the doctor 🤔 😕

[@MOJORAPSCALLION]

I was going to ask the same question I think they might be from the Oley Foundation in the US x

[@AmitysLife]

I got them from a lady in the Australian support group on Facebook who does them, I am not sure where to get them in the US but I will have a look and get back to you on that one ☺️

[@Dulcimerist]

@@AmitysLife Those cards are sweet! Even if your source had them posted online so that people could print them at home on card stock and cut them out into individual cards, that would be super helpful.

[@AmitysLife]

Chasing that up as we speak ☺️

[@AmitysLife]

Hey everyone I finally found out where to source them and have explained it in my latest video (Gastroparesis QnA)

[@emberscrazylife]

I have gastroparisis and water is really hard on my stomach.

[@AmitysLife]

Its so good to know that I am not the only one and that I am not crazy cos my mum thinks it's weird 😂 hang in there 💚

[@raymondgilmour1533]

Slip on a shirt 👚 slop on sun screen, slap on a hat 🧢 . 👍🙏🏼😊🧡

[@AmitysLife]

Haha thats the one 😂