When will we have a cure for VSS?

You asked the questions, we have the answers! This series has given our experts the opportunity to share their latest findings on Visual Snow Syndrome research with you while also giving you a chance to ask the questions that have been on your mind.
In this video, VSI's Co-Founders Sierra Domb answers the question: When will we have a cure for VSS?

[@Jean69100]

I think that day when there is a success full treatment or even a cure will undoubtedly be the happiest of my last 12 years of life.

[@amirmht8029]

Same!!

[@SC86Canuck]

same here, though I hope they can find a way to reverse all the damage that post cataract removal, post secondary cataract YAG laser, and an eye injury left behind. Then go all the way to keeping our eyes from aging at all... ok maybe a little far fetched, but I did read an article in I think its called "Futurism" where a Neuro-engineer (I memory is correct) helped a Blind person to see, by creating glasses for them which had a camera and a computer (I guess a small chip or something, and they somehow connected the glasses to her brain and sent electrical signals to enable her to see. I'm not sure it was colour vision, but she could read letters, walk around and she played a Pac-Man game the engineer installed into the glasses. It's a pretty wild story, but I think the future can be bright.

[@gracie31233]

We will! Have faith and when we least expect it we will have news about a treatment 💓

[@VisualSnowInitiative]

Hi there, a New treatment came out in 2022! The new treatment is by Dr.Tsang/Dr. Shidlofsky, and it is available in their clinic locations. Their information/location is on our Doctor Directory. Feel free to check it out on our Website.

[@daniellechuga7654]

@@VisualSnowInitiative in person or online?

[@romainb.9107]

I just can't wait to see the night like i used to see without all those dots i hope i will live enought to have a cure i'm young but i hope ♥♥ ty for all your work it mine the world to us

[@rodytalks3989]

Same...

[@WizzOfIzz]

Same.

[@sleepyparrot8308]

I never even saw the night like a normal person...

[@moodylittlebitch2024]

I’ve never seen a night without the dots. My earliest memories in life (which go all the way back to being bathed in the kitchen sink when I was a baby) I remember trying to stare at each individual dot and not being able too. It use to frustrate me. I use to wish I couldn’t see them. When I told my parents about it, they told me that’s normal. So I assumed everyone could see the dots. I had no idea that it’s not normal. I hope they find a cure, and I’m willing to be part of the trials if they ever need volunteers.

[@jiangwei1853]

I have visual snow since 7 years old. I wish I could have seen the night as normal ☺️

[@deadlygaming5817]

We are all in this together we will get a treatment and go back to happy life's we are all kings stay strong and think positive👑❤️

[@sjaskt2863]

I really hope so

[@skeye-minecraftfortnite9474]

Thank you 🙂. It would be great to make a global survey on how many actually suffers from vs . It will be stunningly many more than estimared because most people suffer in silence and are rejected by doctors and think they are the only ones. I was one of them, its terrible... At the same time there must be more knowledge about vs and how we suffer and how it impares our lives. We need too look forward and never give up until there is a treatment for us, hang in there , I agree with you Jean Holder, in your comment here ❤️

[@dodsjanne]

Thank you so much from the bottom of my heart. Please keep the research going!

[@No16EfrenTheGreat]

Love the pun And Godbless to you and your team. Goodluck on finding the cure!

[@VisualSnowInitiative]

Thank you for your kind words and well wishes. We hope you're doing well these days. To stay up on the latest VSS research, please sign up for our newsletter from our website at www.VisualSnowInitiative.org. Best regards!

[@coneman1015]

Thank you for wanting to cure us

[@VisualSnowInitiative]

Thank you for your constant support along the way! 💗🤍

[@Sybil13Grey]

I’m trying to be hopeful for a cure. This has been very difficult and debilitating some days for me for over 5 years now… sometimes the depression and anxiety is so bad from this I don’t know how to continue. Hang in there everyone.

[@nemesis3561]

Tysm for doing this, I'm so grateful that people are finding a cure for this.

[@VisualSnowInitiative]

Thanks for the kind words!

[@SeanFortress]

I am 34 years old and got this since I can remember.... I wish it can be cured... Greets from Germany

[@Txn91000]

thank you

[@junkdnareviews2515]

Ive had the visual static since I was a kid. I used to think I was crazy or had a brain tumour. I found out others had visual snow and it calmed me down. Over the years I was able to drown it out and get on with my life until now. One of my eyes seems to have gotten worse randomly. I thought I was having an migraine and freaked out. Ever since then then Ive noticed shimmering out of my left eye which is pretty hard to ignore. Im already seeing an neurologist for a nerve problem so I will tell them about this.

[@Kak3rai]

Im having this right now, im 13 i went to get it checked out but they said it was just floaters. recently i've been hearing a slight ring in my hears when its completely quiet. I also thought I had a brain tumor.

[@junkdnareviews2515]

@@Kak3rai All I can say is don't panic. I know its hard not to. Ive had my eyes checked and besides needing glasses they say my eyes are fine. Ive got the ringing too! I think its all categorised as some sort of sensory issue. Keep researching.

[@RealParadoxed]

Trust me a brain tumor would be a lot worse and fast

[@Tolseren]

I have a question. I've seen people on anxiety self help groupd that recovered say they had visual snow but it went away as anxiety healed. How can I know if visual snow is caused by anxiety or not. Both have been there for so long along with tinnitus. Always anxious, always seeing dots.

[@isaacjmay]

I notice mine is much worse when I don’t sleep

[@VisualSnowInitiative]

We know that anxiety can elevate your VSS symptoms so trying to reduce your anxiety will help.

[@razebeats308]

I never had this until a year and a half ago. I keep getting more and more symptoms. Reading is very difficult for me now because of seeing bright lines and other things across the page. I've given up on trying to write a fantasy book that I've been working on, because of these symptoms. I hardly read for pleasure anymore. I never go out at night because of the static. I just wish I had normal vision again.

[@TheLukanas17]

How did you got it ?

[@razebeats308]

@@TheLukanas17 I woke up one night to go to the bathroom and realized everything was covered in static. It just came out of nowhere and never went away.

[@TheLukanas17]

@@razebeats308 That's so strange, I got mine after head injury.

[@isaacjmay]

Do you know why? Is there underlying diseases or maybe drug use?

[@VisualSnowInitiative]

Thanks for sharing. We feel you and we too hope that you'll have normal vision again. That's our goal!

[@ziqrsx]

Thank you for this. Hope it comes soon

[@SC86Canuck]

do any of you see little blind spots in your vision or spots of light that fade away and may come back. These are not floaters or flashes. Also do any of you see dark spot in the dark such as when you wake up, and with more light it goes away?

[@govindrb7949]

What do you mean by spots of light that fade away. Can you elaborate

[@SC86Canuck]

@@govindrb7949 basically spots that can seemingly appear anywhere, but not always just appearing. These are not floaters or vitreous gel, not left over after images. They can happen with eyes open or closed and seem to have a sort of small circular shape and have a sort of dim yellow hue or black hole sort of look to them. I see an ophthalmologist already as I was born with cataracts in both eyes, he doesn't seem to know what it is, and just says my eyes are getting old. I'm only 33. I have had YAG laser for secondary cataract and also an injury from a thin (thinnest for standard guitar) guitar string that scratched my cornea and sort of made a hole which was patched up. anyways apart from the injury and regular cataract stuff my ophthalmologist says my eyes look fine. Though I believe the VS is possibly skewing the results of a glaucoma test. Also, my eyes are often dry, and I have non-preserved natural tears. Sorry for the extra info

[@amirmht8029]

@@SC86Canuck yes I have this symptom, it's terrible

[@SC86Canuck]

@@amirmht8029 Thanks for answering! do oyu have any other eyesight or vision issues besides VS and all the seemingly endless issues?

[@Goblin-King-]

I have it You get used to it Freaked me out at first

[@jeetendrapratapsingh3916]

I am from India. I. Have never come across any Indian having VSS. And I have been suffering from past 15 years. I am awaiting for a cure. All dozons of opthalmologist says there is nothing wrong with ur eyes. Is there any relief available in India? Or to whom and where to connect?

[@Bhavaniputra]

Hi there , I’m Indian , what are your symptoms?

[@VisualSnowInitiative]

Hi there, If you are looking for doctors in India, we recommend checking out our Doctor Directory on our website at www.visualsnowinitiative.org/doctors/. It provides a comprehensive list of doctors available all around the world We hope this helps!

[@nonskok]

Bro you are not alone🤗i am Indian & I also facing this problem sry for my poor english

[@jeetendrapratapsingh3916]

​​@@BhavaniputraHi Aman , I have eye pain, after image,24*7 I feel pressure in the back of the eye. Floters and some some images seems vibrating. I can blurr my vision whenever I show little laziness, single color walls are not clear and inability to focus, light sensitivity.

[@iminthelittycommity6465]

Thank u

[@subodhthakur5193]

How can we connect to u if we want to contribute

[@VisualSnowInitiative]

Hi there, You can connect with us in any social media platform and contribute with us! We have attached a link on how you can help www.visualsnowinitiative.org/get-involved/ Additionally, The VSI takes donations every day each year! VSS donations will allow us to continue to fund global Research all around the world. Help us Collaborate, Educate, and Cure. You can donate to the VSI with the following link visualsnowinitiative.networkforgood.com/ Thank you for wanting to make a difference.

[@steliosmhhh]

Find a cure for derealization also please ...i am dreaming all day😥😥😢

[@VisualSnowInitiative]

We're working hard at it.

[@dusterbuster6332]

@Stelios Blue me to bud

[@TheRatzor]

i imagine if they are able to clear your visual field up and return it to normal that will disappear

[@Ace-ps8mw]

6 months later how do you feel?

[@rizwaan2338]

is it possible to find a cure in next 5 years??

[@KonamiCat]

Im so upset and scared im only 11 and i see visual snow will it get worse im so scared please

[@pixeldoom2406]

It typically doesn't get worse.

[@KonamiCat]

@Der Käptn thank you

[@KonamiCat]

@@pixeldoom2406 ok

[@RealParadoxed]

@@pixeldoom2406 I don't think it's possible to get worse, I believe over stimulization of the brain is what causes this phenomenon, I've had this for 6 years and it seems to get worse when I have coffee, (caffiene) or when im stressed or anxious. When im running it also seems to get worse. These things seem to all stimulate the brain, making it excited, firing multiple neurons off. To cure this I am going to try and get rid of as much anxiety as i can, as well as quit the caffiene, if you want to see if it has worked dm me

[@mcpizza4035]

I wish I had this outlet at your age, just keep calm you will be OK it'll be a slight adjustment but it will get easier to manage with time . Keep your head up avoid stress, limit needless stimulation, and focus on enjoying life (search for the good)

[@varshamathur397]

Pls find cure soon as posible for visual snow and tinnitus 🥺🥺🥺

[@VisualSnowInitiative]

We're working on it!

[@fireball93]

how to donate

[@VisualSnowInitiative]

We're grateful for your support, here's a link to our donation page: visualsnowinitiative.networkforgood.com/projects/139991-vss-research-campaign

[@peacepeace4256]

Never be hopeless from the kindness of Allah. I am praying and I have a firm belief that Allah is watching your intentions your efforts and a moment will come soon when Allah will send the cure through some neuroscientist My son suffers from.VS but it is not only for my son that I.pray. I pray for each and every person that suffers from VS directly or indirectly. O the creator of us we need your help and without your help nothing can be done.Please help .

[@VisualSnowInitiative]

Thank you for your prayers. We are always here for support & resources 💙

[@foodandadventure6382]

From how long you son have VS . Does he have depression and anxiety as well ??

[@sarojmilan2333]

@visualsnowinitiatice isn't Dr S and Dr tsang's treatment allevating the symptoms?

[@VisualSnowInitiative]

Yes, this is the case for many. The treatment is helping alleviate vision and non-visual symptoms.

[@sarojmilan2333]

@@VisualSnowInitiative when will the doctors across the world know about the treatment 🙂

[@Kdstudiiigow12]

what is your condition... me bhi india se hu like kesa dikhta hai jada dots ya kam?

[@daniellechuga7654]

What treatment

[@daniellechuga7654]

Can i fet it

[@liquaticgames1349]

Does anyone here have Tinnitus and Visual Snow? Its connected btw

[@roboterminator_T-1000]

How ? 😢i wish theres cure already

[@roboterminator_T-1000]

@indodesi i have it to but the visual snow is not as noticeable but the tinintitus is and i usally just hear music and try to distract my self from it but its so annoying when i can hear it when everything is quiet 😴

[@moodylittlebitch2024]

I get a faint ringing in my ears often. But it’s never been an issue for me. And it’s not as frequent or as constant as the visual snow.

[@DylanDaRosa22]

I have both but have always had them. Used to think it was normal. Fortunately, my tinnitus is not very bad the majority of the time and it often goes ignored. My visual snow seems more prevalent nowadays but I suspect it’s because I now realize it’s not normal so I keep focusing on it/ it’s more easy to notice since there are times where I am already thinking about it.

[@jiangwei1853]

I have visual snow since 7 years old and tinnitus happened 5 month ago

[@Philoxo]

I just figured out this is something I suffer from what can I do, to make this bearable

[@VisualSnowInitiative]

Thanks for sharing Eunice, we hope that you have found ways to manage your symptoms. If you are still seeking answers, we may suggest that you join a Facebook support group and connect with others going through something similar. Here are the links to the two groups we'd recommend. facebook.com/groups/visualsnowsupport & facebook.com/groups/VisualSnowInitiativeDiscussionGroup.

[@KamleshYadav-ur3hr]

How long it will take to find treatment??😭😭😭

[@sonicstudioz8060]

At what age you develop visual snow did anyone diagnose you

[@sonicstudioz8060]

I am from Uttar Pradesh

[@zezyar]

@@sonicstudioz8060 18 for me. u?

[@mcpizza4035]

I was 8 when the symptoms started slowly with floaters and ripples .Migraines acting as a hallmark of each phase I developed aura, sparks, palinopsia and photophobia at 16 and at 19 I developed more concentrated static , increased palinopsia and colored blotch overlay in my vision. I found sitting in a dark room reduces the flashing for a short period of time

[@rishabhchakravarti7287]

​@@sonicstudioz8060 hey bro kha se ho

[@SOSA1beast]

Thank you

[@stellaaa3464]

Thank you

[@VisualSnowInitiative]

You're welcome :)

[@dannyone1565]

Thank you

[@VisualSnowInitiative]

You're welcome!