Whitney’s Rare Gene Mutation (1 of Only 100 Known Cases)

Whitney lives with a rare genetic disorder of which there are only 100 known cases in human history. She also loves her family and believes the most valuable thing in the world is friendship.
Whitney's gene mutation impacts the HNRNPH2 gene. Learn more at: yellowbrickroadproject.org/pa...
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[@knigge27]

"Well, he's kind and lovin. Just like a strawberry!" Good lord, that was so incredibly sweet and pure

[@jlucci6]

That was my favorite also!!❤❤❤❤😊

[@SUPERSPAZD]

I LOVE THAT PART!!!! 💗

[@jessefoulk]

She's my niece. She just got her diploma at the end of 2022 school year. So proud of her accomplishments.

[@MAGNUM05]

Congrats to Whitney

[@uniquepurpose03]

You have a beautiful neice, inside and out, I know she is a joy to have in your life 😍

[@unm0vedm0ver]

Send my congratulations, she deserves it! Such a wonderful soul to share our planet with

[@a.j.marcantonio153]

What is Whitney doing now after high school?

[@emilynelson6693]

Her hair is so cute tho

[@whalefuhk]

It fits her loving and spunky personality ✨

[@ajoverholt7343]

Would love my hair to be that pretty

[@jospeaches8533]

Beautiful hair😇

[@miad6160]

@@ajoverholt7343 fr I haven’t brushed my hair in over 24 hours and I don’t want to face the wrath

[@alyseweiss2796]

Oh! I know! I was just thinking about how beautiful her hair is. She's overall beautiful! A happy combination of both her parents.

[@TheRight-handedStranger]

Chris taught me how to interact with people in general and not insist on the correct answer. When Chris doesn’t get the right answer he rolls with it and continue with their way of thinking although it wasn’t what he asked. Good for him it’s a great skill.

[@trext2277]

Very good point about their way of thinking. Thank you for mentioning this.

[@Oldmeme592]

Taught*

[@tatianagodoy5119]

I almost cried when she said her favorite part of the interview was Chris. He was genuinely happy too, you could see it in his face. She's so lovely and bubbly! Such a pure soul. I don't know why people would be rude to someone with a disability, they're usually the most lovable characters.

[@ajelethbeltranhidalgo5319]

Mayormente si, pero no todas las personas con discapacidad son adorables, muchos son egoístas y no les importa nada, y he conocido de las 2 formas. Supongo que es la manera de como canalizan sus emociones al tener una discapacidad

[@SR-xo9kl]

"It all started when I was a baby, I drank milk, then I went to bed, then I woke up!" I absolutely loved Whitney's little story of her life. That was so precious. 🥰

[@CarpetStainRemover]

Ah chris you are truly … a blessing to this earth. Where some of us would maybe struggle to interact with people with different abilities, you show us the way. To treat them with kindness, a smile and a warmth that anyone would love to receive from another human. I truly wish you nothing but joy in your life.

[@Esmeraldava]

I concur.😊💜😊

[@trext2277]

Genuine

[@ashleyrichards5194]

She's like a real angel

[@jonathanvinas6483]

Angels have common sense

[@ashleyrichards5194]

@@jonathanvinas6483 excuse me???

[@anactualalpaca7016]

@@jonathanvinas6483 We'll you're just a big ball of sunshine, aren't you Mr. Vinas?

[@user-ck2gd3lg7n]

@@jonathanvinas6483 How many times are you gonna comment that you are not funny

[@TheThatoneguy12121]

You took the words right out of my mouth! I literally said that XD

[@greenneko]

I just wanted to highlight just how well her mom understands her diagnosis. She clearly worked hard to understand the genetics of it. And I was excited to hear there are efforts to fund more research for it!

[@almetas_grandbaby]

Kudos to mom explaining her condition so well. The library analogy was perfect.

[@clarissacuellar1047]

She has such a positive vibe. I would love to be friends with her!

[@ravenscarlettanis13]

Me too!

[@miad6160]

Seriously, I feel like my overall attitude would change if I were to hangout with someone like her.

[@Kai-eb1fv]

Whitney telling her “life story” literally made my day she is so awesome and funny- Also “does your mom make you mad?” *whitney puts up her fists as if to fight* “yes” idk why that made me laugh lol she reminds me of my sister

[@trext2277]

Life story moment was epic

[@caitlyn9426]

"He's kind and loving, just like a strawberry!" made me so happy :) thank you Chris and Whitney for making my day better

[@SnowyHilly]

I fell in love with those amazing copper curls, the positivity and smiles she bring to the world. Keep shining⭐

[@trext2277]

❤ copper curls

[@liberationinourdays]

I agree with you so much. How nice to see another person from Israel here

[@ryjelsum]

Misdiagnosis is a pretty common thing. I have (relatively mild) Ehlers-Danlos syndrome, and many people with the disorder are diagnosed with fibromyalgia or chronic fatigue disorder, or are only diagnosed with disorders that are secondary to the actual genetic disorder for a long time before actually being diagnosed. I'm glad we're more able to narrow things down to basically the finest possible point in recent years, it's quite helpful.

[@bangervlogs8751]

Love the happiness she brings her parents

[@hannahrose1878]

What an absolute sweetie! I would love to hang out with her. She's Such a precious person🧡 Whitney: And my son Her dad: You don't have a son honey Whitney: how bout my brother Her dad: You don't have one of those either I love that part! What a joy to watch

[@raynie96]

Same! She’s so creative, funny, and sweet!

[@laurenajkirby]

Whitney's waves and gestures are awesome! I also like how Chris asked her whether he could ask her mom questions about her. These interviews are always so respectful.

[@toddolson573]

The emotions on this man face tells of an extreme sympathy for his daughter. It is heart wrenching to see the hurt within him that he has for his daughter. To you sir as well as all parents with kids of special needs I believe that you will be comforted for the love you show your children, for there is nothing more powerful than genuine love for another.

[@ML-pe7ed]

I love when she encouraged herself, "I did it! Woooohoooo! Great job Whitney!" She is so special and beautiful. And she has better manners than a lot of people I meet!

[@playrslayer3432]

WE NEED MORE PEOPLE LIKE CHRIS ON THIS EARTH TO HELP VOICE THOSE IN NEED!!

[@anactualalpaca7016]

how about instead of wishing for more like him, you be like him

[@アキコ2003]

@@anactualalpaca7016 or maybe do both? You do realize not everyone has the budget to do these things or have the good physical appearance and energy to make people feel trust right?

[@jessicoooooooo8716]

absolutely gorgeous hair!! love your personality whitney!!

[@Curtis.Carpenter]

this is going to take us years to catchup ,rewatch and now finally get our chance to comment :)

[@cavetownlover671]

I couldn't stop smiling during this video. Whitney is a real life angel! It was like a bright light shined whenever she talked. Bless her and her family, I love her personality and how sweet she is. 😭💗

[@michellejesica]

this girl just brought so much joy to my heart

[@jamalex]

She’s so cute and wonderfully positive. I came back and watched this interview again, because Whitney just spreads joy. What a wonderful family

[@beanj580]

Of all your interviews Whitney is my favorite! I watched this interview multiple times. She has such a pure and sweet soul!

[@trext2277]

My fav too. This one hits different xoxo

[@carolphung]

Oh wow that gorgeous hair! She is a sweetheart, I loved her smile and the way she communicates!

[@morganqorishchi8181]

She's so sweet and positive, I love her. She just seems like such a nice person, I can't fathom anyone ever disliking her. And it's great that her mom is so supportive, kind and has clearly researched her child's condition. I want nothing but the best in life for Whitney.

[@taylorstrauss4002]

Her positivity is just so RADIANT! I adore her!

[@kg89808]

Whitney has major hair goals!

[@lucyii]

Genuinely, I can’t think of a better way to give back then giving to this channel. It’s so important and brings light to so many people’s lives. Thank you SBSK !!!!! WE LOVE YOU!!!!!

[@Wolfstar26]

her dad has a warm, kind, and gentle disposition, and her mother is very sweet and smart. she's in a great environment, and it's obvious from how happy and outgoing she is. whitney is so pretty and bubbly, no way will she not attract some great friends.

[@samauma3745]

now can we all appreciate her mom? such a beautiful and intelligent woman. also, i'd LOVE to talk clear and sweet like that. lots of love from 🇧🇷

[@trext2277]

Mom is pretty great

[@sarawesome7425]

Genetic testing is so fascinating! Love to see how in Whitney’s instance, connecting with new friends genetically similar is opening a new world for her family. For the future, hoping whole genome testing becomes standard for special people. We were fortunate to have a geneticist fight for my son to have whole genome testing completed at 19. We were looking for Marfan but instead got AUTS2 and confirmed previous diagnosis of WS1. Genetics 🤷🏻‍♀️ Thank Whitney and family!

[@happybergner9832]

She is adorable 🥰😻 I love her mom, she's so smart. I love her dad's direct eye contact and loving and calm feeling

[@ElvenSailor_Main]

"It all started when I was a baby. I drank milk, went to bed, then woke up! " Girl that's about all I remember too 🥴 one day I was 4 the next I was 17 the rest is history

[@m.k.wallner3145]

What really makes it work are his dedication, obviously, but also his good looks and winning smile. Without that, I doubt it would have gotten so much traction. Great job, amigo.

[@katiec5343]

The story she tells of being a baby and drinking milk and going to bed and waking up is just my favorite ever 🧡🧡🧡🧡🧡🧡🧡

[@trext2277]

Epic I say

[@045594270]

I would like to thank you for the wonderful work you do. I recommend your video interviews to my English students here in Verona Italy and they appreciate them very much. Your simple, sensitive style is perfect.

[@clumsypixels2669]

this is an amazing idea

[@unm0vedm0ver]

This is such a good idea! As an English teacher in Brazil, this could be such a boon for my classes

[@designersheets]

I couldn't stop smiling the whole time, Whitney just radiates good energy. I'm glad genetic testing continues to advance so more people can find the right answers and support.

[@Rosa-kf6yy]

Whitney's hair is gorgeous. What a sweet girl. It's very interesting to be able to learn about the different diagnoses-es. Thank you Chris, for bringing the stories of these amazing people to our attention. I have learned so much. 💝

[@hisdarlingewelamb]

Whitney is so precious! Thank you for introducing us Chris!

[@MsMadmax1]

Some people would look at children like this and say, "Those poor parents! What a terrible burden to have a special needs child." People don't know, they have no idea what a blessing they are. You can be having the worst day but kids like Whitney are pure sunshine. If you're feeling blue, they know just what to say to put a smile on your face and make you grateful to God to have them in your life. She's a lovely, sweet little girl.

[@lijohnyoutube101]

No -special needs are not a blessing. This is toxic, they have many struggles and are not ‘sunshine’.

[@ShY_6593]

@@lijohnyoutube101 What types of special needs does your child/children have if you don't mind me asking?

[@lijohnyoutube101]

@@ShY_6593 Several

[@Dislob]

@@lijohnyoutube101 We all have struggles. Every kid is demanding in some way. There was nothing toxic about this family's relationship. I'm sorry that you don't have the ability to have something positive that outweigh the struggles you have to go through but understand that not everyone experiences it like you do.

[@lijohnyoutube101]

@@Dislob I didn’t say the family was toxic, I said thinking special needs are some sort of blessing, is toxic.

[@kathygibbs5266]

What a beautiful soul. I lover her smile

[@seltzermint5]

We all need a dose of Whitney's positivity right now. She's awesome!

[@angiev4803]

Whitney's interview was so entertaining. I watched her three times and laughed every time. I think Whitney would be a fun person to meet and spend time with.

[@rainfallwoodland8479]

Wow! Her sweetness and brightness and positivity brought me to tears! Thanks for bringing her story to us, Chris. So glad you got your comments back!!

[@LlamaLlamaMamaJama]

Me too 🥲💖

[@natalieandemily4946]

Whitney brought me so much joy! I love her literally so much 🥺❤️

[@MaybeitsmeJulia]

Thank you Whitney, I needed that smile today!

[@xxxag1768]

Love the dads demeanor lol he has that face like -__- for all the things she says that he corrects. He obviously loves her though and she's so sweet

[@jamesgorman827]

She is absolutely adorable. All the kids he interviews are amazing people!!!

[@runrebelrun9670]

This show makes me happy. I love this show, the energy is so beautiful and full of light. Thank you for this!

[@SUPERSPAZD]

SOOO much love and joy in this interview!!!!!!! ❤️

[@liliagobelet9236]

She is just so cute and adorable !! I would love to have a person as happy as her in my life !

[@shelleybrown4229]

This is one of my favourite videos I have watched it so many times. And the way she says my Chris is sooo sweet ❤️

[@garbledgarbage8302]

Whitney seems like such a kind girl. She seems like such a good friend, and I’m sure she will go far in life.

[@LiquidOrgasm]

Chris: if somebody feels sad, what would you say to them Whitney: boohoo Best words ever.

[@gardenkk243]

Great interview Whitney! Thanks for sharing with us and making me smile :)

[@clairekoutras7335]

What a beautiful soul! She is so lovely and her whole family is so kind

[@beckyklepper315]

What a beautiful young lady 😘 inside and out!!! Chris you're so gifted with extraordinary people. It's really a joy to watch the introductions of your friends. Thank you for loving the people not everyone is so kind to.

[@c2max99]

Whitney is the most precious young lady! Thank you, Chris for sharing her story!! God bless you all.

[@melody_tuazon]

I love how she’s always happy no matter what and doesn’t let anything get in her way ❤️

[@Speireata4]

She is so happy. That is amazing! May her happiness never end.

[@JenisTreasureNook]

Whitney you are amazing. What a awesome interview!!!!

[@Robot666House]

New sub. You have a truly pure heart, thank you for giving these treasures a voice and teaching the world to be kind through learning about them. Thank you Chris.

[@lavener100]

She's just bursting with love, an excellent listener, too! LOVE YOU WHITNEY!

[@zanelemofikoe2374]

Thank you for sharing these beautiful stories with us🌸🌸🌸🌸I love Whitney, she is so sassy and loving🙌🏽

[@karimarine9120]

What a sweetheart! Her positivity radiates around her 💜

[@IciMymy]

Whitney is so lovely! Thanks for this Video! 💖

[@catherinebarwick304]

Proof that angels walk among us

[@jonathanvinas6483]

Angles have common sense

[@xxlil-_-stinkxx8786]

@@jonathanvinas6483 just like you and your mental self 👍

[@samanthacole4395]

@@jonathanvinas6483 get off this channel!

[@nancyJ976]

@@jonathanvinas6483 A ver si en español logras entenderlo: Ni eres gracioso ni eres inteligente. Es decir, eres la nada.

[@cshell64]

Such a beautiful & sweet young lady! Her joy just overflowed onto me, I needed that so thank you all! ❤

[@lauraholladay]

Great Video For You All! You're outstanding Chris! Pinky!

[@margrettem.wilson3556]

Whitney is pure JOY ! , She reminds me of the brightest little penny because her hair is the color of a penny the brightest penny in the bunch ! , Such a great disposition , a real sweetheart ❤️❤️❤️

[@RhododendraLynn]

I was smiling through this whole video. Thanks Whitney!

[@Oodlesxofxnoodles]

Bursting with awesome personality and great hair! I laughed out loud several times, she's so funny 😁

[@shaquileoatmeal7365]

Same, she's hilarious lol

[@haleypirio921]

She just seems like such an absolute joy. Her parent's love for her is so evident simply by seeing how much SHE loves them! Whitney is so endearing and silly. It was beautiful and wholesome seeing her say her dad is "kind and loving. Just like a strawberry!'

[@benjaminendicott2380]

Thanks Chris!

[@escott9099]

She makes my heart smile.

[@melanietoth1376]

Such a sweetheart ♡ I love her hair. She reminds me a lot of my brother, he is 40 but still very young due to developmental disability. He is so friendly, gregarious, kind, and always ready to make new friends. He is also very active with his friends and plays lots of different sports. ♡

[@MhillPlays]

Wish we had more video of her, would love to see an update on her life. She’s beautiful, and listening to her calms my mind

[@z1andonlyme557]

He reminds me of Steve from blues blues. Absolutely love his kindness and caring. Greta job! Just got a new subscriber :)

[@laelleay]

The most wholesome video and person ever omg ! 🥰

[@Rhiannon.Moonchild]

She has such an incredible personality! Thanks for making me smile and feel happy, Whitney!

[@dexmitchell9885]

Love that smile! She has a truly inspiring spirit!!

[@cecemepls0]

What an absolute JOY ❤ I’ve never seen someone exude so much pure happiness if my life….I’m so glad to have gotten to know a bit about this lovely soul. I was already grinning ear to ear less than 1 minute into the video.

[@thegulfcoastexperience]

Love you Whitney!! You’re smile made me smile soooo much today. I had kind of a bad day today but you made me happy.

[@einnachtgespenst]

I love you too, Whitney, you made my day much better, thank you

[@Fancyisthe1]

I thought her diagnosis was Extreme happiness. What an amazing and loving child. ❤️

[@uniquepurpose03]

I thought it was Williams Syndrome

[@Fancyisthe1]

@@uniquepurpose03 if you don't get it, then just keep scrolling or make your own comment.

[@uniquepurpose03]

@@Fancyisthe1 I do gets it, that's the medical diagnosis of Williams Syndrome, in other words; what you said: Extreme happiness.

[@Fiona-sg9wh]

Beautiful hair Whitney! Thanks for sharing with us.

[@LuckyBadger]

Whitney is so delightful! I think she's discovered the "nice" gene. There needs to be more of that in the world.

[@trext2277]

Nice gene

[@davidlangford7863]

Her mom and dad are so lucky and blessed to have her! And such a beautiful young lady at that! Seeing how happy she is and how pure her responses are...it brought tears to my eyes! She is beyond amazing!

[@Someone-pd7oi]

you are just amazing!

[@tammywagner8032]

That was really cool. Whitney is great. So is Chris. 👍

[@szinthom1]

I can't believe how it is even possible that a person can have and radiate such an incredible amount of positive energy, kindness and love as she does. Absolutely fantastic!

[@littleloner1159]

Can i just have her around cheering me on? I have mdd and I so want to be her best friend forever She seems like the kind of person to listen to some great alternative songs together and have a blast Wish her and her family and ofc you chris alll the best

[@freezyourit]

Just watching her made me smile. God Bless her.

[@user-ty3oc5ph5e]

The best ending ever☺️ she is just adorable with her little voice and those little claps.

[@lisemarielichtermann7626]

She is beautiful and sweet Chris! I love her parents and how they relate to her. She is a joy❤️

[@pinkpanther8950]

I am soo happy that your informative videos are back in the loop 👏🏼👍🤝🏿🤝👏👏 What can I do to help?