Why I Stopped Drinking Alcohol and Taking Birth Control

In this video, I give a life update on how my new potential periodic paralysis diagnosis, new information from family members, and something I didn't know about Andersen-Tawil Syndrome are informing my perspective on whether drinking alcohol and the progestin-only pill could have big implications, potentially life-threatening implications, on me and my family's health. I also talk about the challenge of directing your own self-care when doctors don't have the answers. If you're in the mood for a little commiserating about rare disease issues, this is the video for you.
Disclaimer: Please note that the thoughts expressed here are from my personal experience. None of this information is meant to be taken as medical advice. I am not a doctor, so please think critically about the information presented here, do your research, and seek out care from a professional if you are having symptoms that concern you. If you are experiencing life-threatening symptoms, call 911 or your local emergency number.