Why the PANDAS / PANS controversy is dangerous

Рет қаралды 4,190

Күн бұрын

Пікірлер: 16

@ChronicAdvocate 2 жыл бұрын

Hey Everyone! I hope this video has been helpful for you! If you would like to support me for the work I do, you can contribute financially through my buy me a coffee page. www.buymeacoffee.com/ticcersunite I don't get paid for any of my videos, they are not monetized. Adverts are still shown because KZbin feels they have the right to advertise on creators videos, but if the videos aren't actually monetized then the creator doesn't get anything. I put a lot of time into researching, making videos, and editing, so if anyone did want to help out then that would be amazing! Please do not feel obliged to do so though, it's just great to have you all here!

@bighaasfly 4 жыл бұрын

Good job posting. Our son has PANDAS and it’s been horrific. Thank you for being a smart advocate for the community.

@helenpful 4 жыл бұрын

Romy this is absolutely amazing. I wish all my daughters clinicians would watch your videos. My daughter has had PANDAS since she was 5 years old. She is 12 now and like you tries to increase awareness through her own KZbin channel called 'Pandas My Dog and Me' - take a look if you get chance x

@kristing3590 Ай бұрын

Thank you for advocating for our children!!

@PANSPANDASUK 4 жыл бұрын

Amazing video - well said and thank you for the shout out! You described the many issues facing PANS sufferers really eloquently. You are absolutely right, the controversy is out-dated and dangerous. More research is needed and more education. Any medical professionals wanting more information can contact us via our website www.panspandasuk.org and and parents or patients looking for support can look up our facebook PANS PANDAS UK Support Group and PANS PANDAS UK Support Group (adults). Thank you again for speaking out. xx

@chadponsford6217 4 жыл бұрын

Your videos should receieve 1 million views 🤗

@kyriasmedic 4 жыл бұрын

What a fantastic young lady!!!!!

@tiffanyr3928 4 жыл бұрын

Thank you for sharing knowledge about P.A.N.D.A.S.! It is so important. Your an amazing girl! 💜 to you from a mom of an amazing brilliant boy who has P.A.N.D.A.S.

@ChronicAdvocate 4 жыл бұрын

Thank you so much! 💜 You are so kind. I hope that you and your son are doing well, sending you love and I hope that your son is getting the treatment that he needs. 💚 You are an amazing mum I'm sure 😀✨✨

@jayquelinn 3 жыл бұрын

Thank you so much for what you are doing!!

@DeemoDiablo 4 жыл бұрын

You described the brain fog perfectly. I have Tourette’s/OCD/Anxiety. It started at about 9 years old and that’s also when the fog started. Lots of memories before that, very few afterward. Maybe I have something to ask a doctor. Thank you!

@alenadanh9225 Жыл бұрын

Hi, i was very interested in your videos. I am very struggling to get diagnoses for my 5 years old boy whos symptoms wright off for autism every I attend the doctor. His symptoms are started suddenly and we live in nightmare for 2 yesrs. His Cunningham panel came back positive as well. He has daily seizures and all other various symptoms. I came across so many doctors and they did so many tests and still put tgeir foot down and say he has severe form of autism. Do you know any doctor who deals with PAMDAs? Can you advise?

@alenadanh9225 Жыл бұрын

It would be nice to talk to you because I feel so alone and see my boy suffering so much and he can not explain how does he feel and I can not work out. I can tell my story in full. I was rubished off by doctors so many time. None of them want even to listen about this condition. So sad! I want to take him out of the country because of that. I just simply do not know what to do. He is not even able to attend the school and I have tried to explsin in school. All the school teachers think I am just a mad mum.

@michaelholmes924 Ай бұрын

At this time, there is a plethora of clinical and lab study on PANS from Stanford. I hope you find a doctor who is knowledgable.

@alexandramoon7143 3 жыл бұрын

I'm very impressed with your delivery of this information. You're incredibly well spoken and offered some fascinating insights. Are you interested in going into medicine? I think you'd make an amazing doctor. :)