What to do if we have very low oxygen saturation near fainting feelings dizziness and high to low heart heart rate going as low as 28

This is exactly how it started for me.... A majorly stressful period of time leading up to POTS... All of 2022, starting with the death of my sister that January, then me getting c*vid, buying a business, leading up to me getting a new job come December and getting the vacc*ne... My symptoms started right after first dose. But the stress and my childhood.... All makes sense. Just need desperately to get out of it now.

Always eating on stream 😅

What are some common prescription medications you know of poeple using in the POTS community? Also do you know people who have come off their meds because of health/wellness intervention?

Over-exertion causes post exertional malise and can make people significantly worse fyi. Also many have connective tissue issues and weight lifting, crossfit can cause injury snd joint damage.

Seriously, how do you do it all without vomiting? I vomit every day from the dizziness! I used to do MMA and really miss it!

Why does it cause chest pain sometimes

I was bed ridden last year and hated it! I used to do MMA and spin for exercise before getting POTS from Covid. I’m trying my hardest to get back to at least riding my bike! I get crazy dizzy still when upright, walking is not an option without a cane unfortunately. My doctors want me to stay in bed!! So dumb, they know nothing. I’m just gonna raw dog it on my own, I know my limits better than anyone.

I totally agree

This guy dont hv pots. If he have, i request you to kindly show us on pulseoxemeter.

Good listen this morning. I don't want to take any meds for Pots as when I crash, none of them help me so I don't find them useful. Other conditions may need meds that are not Pots related. Loving Justin's one on one coaching. I am in a totally new mindset!

Coming across Justin on KZbin has changed my life!

So true! Holding back is difficult.

There is no help for pots patients 😢doctors don’t know how to treat it 😢it’s a shame

My son has pots 😢😢

I like knowing from the bio what people have because then I know that they give tips that I can also use. I have the diagnosis in my bio that I share tips about. The rest that I don't share anything about is not in my bio. I don't think its bad perse

I have PoTS and lupus and everything you say still applies

Best rant yet!

Definitely not exclusive to men. We as a species have a duty to one another. "It takes a village," as they say. Do what you can for you and your village.

Some People do die from POTS, because their hearts stop when the vagal nerve over reacts and stops the heart. It concerns me that you are minimizing this. "Postural orthostatic tachycardia syndrome (POTS) is a condition that can cause an abnormal heart rate response when someone stands up. This can lead to a rapid increase in heart rate, which can trigger a drop in blood pressure that can cause fainting. The brain's response to a fast heart rate can also cause the vagal nerve to slow or stop the heart."

Your videos are always what I need.

❤

I don't think he puts out notifications for these. You sleepin' on us, Quintero? lol

Damn how I miss the stream 😭

You give me hope dude becuz I quit visiting many POTS communities becuz I felt so depressed after listening to their list of symptoms and thoughts about adjusting to a lifetime of low quality of life. I’m like hell, I don’t want that. I don’t think THEY wanted it either but that was the mindset. I admit, part of me is like is this dude even for real a POTS guy? I’m hopeful that you are and guess what?! I need your help PLEASE! I can’t handle this low quality of life. It’s so not who I am and I don’t want to just accept it. Help haha😂😂

How long did it take you to improve your cardio vascular fitness from the moment you started training ? I am into crossfit since 2 years now and sometimes i feel i see no improvement 😅 Last weekend we had a competition and it was very hot and humid and it triggered one of the worst flare I ve had in a long time. Of course i creeped everybody out 😂 because i nearly passed out. But most of all i find it frustrating...

I find your channel useful. Im a firefighter in north wales. First experienced POTS/dysautonomia like symptons 10 years ago. I was reqlly into athletics training 6 days a week twice a day. Then came down with these crazy symptons was very confused at the age of 21 to experience it so i did back off the fitness a lot basically my first big flare up lasted 6 months and then i moved back to the UK with my parents where I managed to get back into fitness and work through the symtpoms trained more ate better and for the best part of 10 years i had no debilitating episodes. However after a rough winter just gone with flu's and colds through my 3 year old son my symptons slowly crept back into my life. At this point i still didnt know about POTS, i was being told by everyone its health anxiety and panic attacks. Then today after paying for a private doctor appointment i put it all on the table and he suspected pots/dysautonomia type issue. I am hopefully getting confirmation or atleast ruling it out through a cardiologist referral next week. But unfortunately for the last 3 months my body has gone through some deconditioning due to inactivity because i didnt know what my symptoms were . So now i struggle eveb to walk round my park without gettibg lightheaded. But yeah i am starting the journey back go who i was hopefully . My question to you is how severe were your symptoms when you first got it ?

Do you take medication?

This sounds hard but brings hope!

Congrats on 1k subs! Keep it up brotha always tuned in

Exercising outside in the SUN and FRESH AIR , is much better for YOU than being stuck inside some unhealthy gym . ( We mentioned on one of your other videos that you ( your body ) may have been reacting to mould mould at the gym . )

I am just sitting here shaking my head.... I KNOW you originally sharing your story is what got me to join your channel... Its been 20 years since my work out world changed UPSIDE DOWN and prob 13 years since i first heard the words "dysautonomia" took about 8 years and 20-30 ER visits before a TOP DOG CARDIOLOGIST said " Yea i see what you are talking about and its prob dysautonomia" - he said that to me as i finished the stress test... From that point on he wanted me on SSRIs and other mind altering trash.... Wish i seen this channel 20years ago.. what a ride its been for me... Going from a semi pro athelete in my 20s to a mess in my 30s, then of course dealing with degeneritive issues in 40s couple to dysautonomia.... Interesting journey.. Thank you for all you do!

Your videos are a breath of fresh air. Every other video on pots is so depressing. May I ask do you still have bad days?

I'm keen for cool Pots merch! Totally agree with you on not needing to know the cause. Treatment is the same. Pots has been around a long time and is brought on by so many different things. Looking forward to working with you Justin.

Holy shit man ~ this is what people need to hear, seriously. How many times do you (I) get negative about this, walk around a corner and someone is wheeling themselves in a wheelchair with a smile.. or something much worse than you. You have to work everyday towards getting better not dwelling on how you got it. It happened. Move on

Have to disagree and think you are being a tad closed minded here. The cause may or may not be of any benefit to treatment, but could certainly be beneficial to keep others from developing pots. Your main argument is about stress and that is not the cause for everybody. The causes that are not stress related, such as unnecessary “vaccines”, may not matter to you personally but would certainly be beneficial to the world to know and stop injecting poisons into human beings. I was the commenter from 12 hrs ago you referenced in the stream. Without divulging too much info… I do not have pots but somebody I care about more than anything in the world does and we have worked him back to where hes living almost symptom free. Getting him in the gym has been the biggest benefit of all and totally appreciate most of the message and the help you are trying to provide. Having said that, 2 things can be true at the same time. Some of the causes could certainly be beneficial for the world to know while not being the focus of your personal treatment. Obviously, someone can’t go back in time to prevent something that has already happened, but some of the causes or triggers are avoidable for people in the future. For how many people now suffer from pots, that fact that anyone can think that certain causes don’t matter seems like a crazy opinion. Maybe not important for yourself but definitely important for the future of humanity. The medical industry already pretty much ignores pots and if nobody cares then that will not change, probably won’t anyway but I can’t be ok with that. I will now stop repeating myself. Thanks and subscribed.

Did they take your license? What do you do when you pass out or your vision goes black in public?

Keep doing you! So glad i found your channel. I cant stand the pots community for all the reasons you said. Recovery is possible for us all and im excited to get there 🩵

My 22 year old son has pots 😢I tried everything with him but he is not consistent 😢he said nothing helps

How do I always miss your streams lol

no. you do need to know where it came from...lol...

I am sorry, but as a genetic type of POTS sufferer, one does not sit down and talk about oneself when one's wife and child are going through a tantrum. A normal person will stop the feed, go and try to help (you are not disabled). I would not sit there like a self-entitled prick despite being at a stage where I vomit regularly when standing up. You may have POTS, but you are also a whimp. Greetings from a 50-year-old female sufferer from Finland with POTS.

Is it HIIT workout your talking about Does it help your POTS? I do YOGA HIIT but with no weight training.

Before I was diagnosed, I was 15 - the ER Dr actually asked me if I was doing ok in school how I liked school … as though I was lying- it’s disgusting. It’s crazy how drs gaslight us. I finally found a wonderful childhood cardiologist who diagnosed me. It’s a good feeling when your diagnosed, and you don’t feel like your going crazy

Do you know the thing that really upset me about my interaction w/ you? It’s not that on the previous livestream you said you get irritated when people message you on your instagram telling you how life’s hard with POTS. That’s understandable that you don’t want to be anyones mental therapist. What really upset me was that on instagram you messaged me back being comforting and understanding of a recent set back I had in my journey. But the following day on the livestream you shared to your audience how irritated you were with my message and laughed a little and pulled out your phone to get ready to read my message to everyone in amusement. You didn’t know I was present on the livestream, and as soon as you found out I was present, you decided not to read it b/c you knew it was wrong to publicly humiliate me in my presence. That’s why you didn’t proceed with reading my message. If you didn’t think it was wrong of you to do that, you would have read it. What this tells me is that you’re very comfortable talking behind people’s back, but instead on that day it was an awkward situation where that individual didn’t have his back turned as you thought. Why didn’t you just tell me on instagram how you actually felt? I would have understood. I never annoyed you in your DMs. That was one single, innocent message I sent sharing my progress so far and small set back I had. I was genuinely a nice, innocent youngster in my few interactions with you. Were you worried that I would screenshot your message or something and put it on online POTS forums and you would get a bad rep? You responded by saying that you hate when people message you this way b/c it takes time away from your clients. If you expect every one of your DMs to be from individuals who want to spend money and work with you, I don’t know what to tell you. My apologies if my single message about my progress and sharing with you recent set back ticked you off. DP

May I give you constructive criticism: a common pattern I see in a lot of videos centered around POTS is a lot “stop feeling sorry for yourself”, “suck it up”, “you haven’t tried hard enough”. If you want to grow your channel and social media platform, I think you need to be more relatable and give comfort to individuals who have this while promoting exercise as a therapy. You need to have more calmer (rather than aggressive) talks centered around “I know it’s tough but you can get through this” that can give people motivation. I feel as if a lot of your talks are more so centered around things that you see POTS patients doing that you hate and your tone comes off in a negative way which is hindering your ability to grow your platform. I also find a couple of things you are getting wrong that I want to point out (1) much like how forums can consist of a biased sub population of patients, similarly I think you deal with a biased sub population of patients where the CHOP/Levine protocol didn’t work. And you seem to generalize it by saying the program is poorly put together (2) The Levine protocol just gives individuals a general overview of what to expect. Almost always this program is modified and it says it in the original published research paper. This idea that you believe that this program is thrown at patients to follow exactly as outlined is not really true (3) I often seen in your videos say that the Levine protocol is not created by people who understand exercise physiology. The reality is that Dr Ben Levine isn’t just some random cardiologist. He’s done a fellowship on how cardiology pertains to exercise and sports medicine which is different from general cardiology. This is a much higher level of training than any exercise physiology degree.

You should only do it if you can talk about what you are doing here.

What's your experience with the PoTS brain stuff? I just had a big round of that, and it was wild!

Being negative is more acceptable because victimhood is the cool thing now.

Do you get any heart abnormalities with pots or is it just disappear once you started the exercise?