Do This to Reduce MS Fatigue...
8:39
19 сағат бұрын
Coping with MS - Is MS a Monster?
8:53
Women and MS  - Why We Get It More
9:31
Typical Symptoms of MS
10:54
5 ай бұрын
Пікірлер
@belindacrisp7078
@belindacrisp7078 2 сағат бұрын
I was actually fairly relieved to get my MS diagnosis. I was in a psych ward beating myself up for having what I thought was depression. I had experienced some minor incidents of self harm because I was so humiliated and frustrated with the invisibility of what I was experiencing. (I have a loooong history of depression and anxiety. I am not judging the value of depression, just describing my disappointment.) I think knowing what you are dealing with is incredibly important, let alone the medical profession knowing what you are dealing with. All the same, MS is such an individual and often isolating condition to experience and having people like you sharing their knowledge and experiences is very, very helpful.
@nataliegist2014
@nataliegist2014 7 сағат бұрын
I have been tested and tested.
@EvenSoItIsWell
@EvenSoItIsWell 7 сағат бұрын
I know it can be so frustrating. If you don’t have answers for your symptoms keep advocating for yourself. Ask for referrals and second opinions. Ask who you should consult next or seek out different doctors on your own. Keep me posted!
@laurarosanne
@laurarosanne 14 сағат бұрын
Thank you Vickie for another informative and inspiring video! I love hearing your story. My milestone is that this morning I went back to work for the first time after my diagnosis in january. I only spent two hours there and mainly chatted with my beloved colleagues. But… it’s another step forwards! Keep up the great work with your video’s!
@EvenSoItIsWell
@EvenSoItIsWell 14 сағат бұрын
Congratulations on going back to work!! Whoop! Whoop! So proud of you. Keep going!
@laurarosanne
@laurarosanne 10 сағат бұрын
Thank you!!
@k3of5ks
@k3of5ks 16 сағат бұрын
Thank you for your positive attitude. Diagnosed Feb 9 this year although I've had MS for at least 15 years and didn't know. Initial feeling was relief that I finally had a diagnosis. Still processing and it's been hard. PPMS so consistent decline with no breaks. Working super hard on health priorities with Naturopath, Chiropractic and PT.
@EvenSoItIsWell
@EvenSoItIsWell 14 сағат бұрын
Thanks for watching. Good on you for keeping your health as a priority! PPMS is not an easy road for sure but taking exquisite care of yourself will definitely help you manage your symptoms and live well with it.
@LouScott1012
@LouScott1012 Күн бұрын
I was diagnosed last year, 5/26/2023. I am 57, so late onset MS. It's been quite a year to say the least. Luckily I have Dr. Aaron Boster as my MS Specialist. I am still figuring out how to live with MS, who I am with the disease. Thanks for the videos.
@EvenSoItIsWell
@EvenSoItIsWell Күн бұрын
Thanks for watching Lou! Dr. Boster is da bomb! Yes, the first year (or two) can be times of adjustment. Be gentle with yourself.
@notnewlydiagnosed
@notnewlydiagnosed Күн бұрын
My diagnosis date was May 2, 2000--that makes it yeasy to say how many years it's been since diagnosis:24. My diagnosis was very different from yours: I went to hospitatl in the middle of the night with an excruciating headache. A doctor dianosed me that night. The next day, the hospital called and took the diagnosis back! A month later, a new symptom made it official. I've thought of making a video about my story. Why haven't I? Because everything takes longer when you have MS? Or maybe because MS isn't all my life is about, and I don't want to give it that prominent a role in my life. It's been there for more than half of my life, but I'm okay, too 😊 Avonex, Rebif, Tysabri, Gilenya, Mavenclad.
@EvenSoItIsWell
@EvenSoItIsWell Күн бұрын
Thanks for watching! I am so glad you are doing ok!
@isabelavilela2944
@isabelavilela2944 Күн бұрын
I was diagnosed 8 years ago. I love your videos ❤️ What medication do you take?
@EvenSoItIsWell
@EvenSoItIsWell Күн бұрын
Hi Isabela! Thanks for watching. I am currently on the generic of Copaxone, but would consider changing if needed. How are you doing with your MS?
@cameronhollingshead4117
@cameronhollingshead4117 Күн бұрын
I fought in the Korengal Valley, of Afghanistan. The VA says I have TBI. I thought all of my symptoms were because TBI. One day I was skateboarding and fell the fall broke my femur and I had to go in for surgery. My doctor wondered how I was able to break my hip at such a young age. She scanned my brain to see if my pituitary gland was enlarged. She said she thinks she found what may be. Ms I went to a neurologist. He ordered another MRI and diagnosed me with Ms. He told me Cameron you have Ms. What do you want to do? I had never heard about Ms. I didn't know what to do. I left and sat in my car and I started crying. I cried so hard. I thought I was going to die. I thought it was terminal. I'm not even 40 years old yet. I'm trying my best to stay active and diet. I eat clean as clean as I can. Anyways, sometimes I slip and eat dirty but I try to eat clean. I don't drink alcohol. I don't smoke. I just want to live to be an old man and a grandfather. Thank you for your videos. You really do help me by sharing your wisdom. I can be better at dealing with this disease. Thank you
@EvenSoItIsWell
@EvenSoItIsWell Күн бұрын
Thanks for watching Cameron and thank you for serving. My nephew was there a couple of times too. Being diagnosed is a huge thing. It can take a year or two (or more) to adjust to a new diagnosis. You may feel ALL the emotions and that is normal. Try to be gentle with yourself. As you heard we can live well with MS. There are now over 20 different treatments to help slow or stop progression and there is a lot of new and ongoing research showing how diet and lifestyle changes can help us to manage our symptoms and possibly slow progression too!
@michelleslifeonrepeat
@michelleslifeonrepeat Күн бұрын
Thank you
@EvenSoItIsWell
@EvenSoItIsWell Күн бұрын
Thanks for watching! 😊
@themanbehindthecurtain3333
@themanbehindthecurtain3333 Күн бұрын
I recently moved to Phoenix Arizona 3 months ago and have been bathing in sunlight everyday and I'm noticing better Functions throughout my body and I was diagnosed with multiple sclerosis in July of 2022... I just recognized that that was part of your channel's name so🎉🎉🎉🎉
@EvenSoItIsWell
@EvenSoItIsWell Күн бұрын
The sun has such amazing healing properties doesn’t it? And vitamin D and MS? So good for us!
@jo-annkayatta968
@jo-annkayatta968 Күн бұрын
Wonderful video Vickie! You must be such an inspiration and source of information for others dealing with MS!❤️
@EvenSoItIsWell
@EvenSoItIsWell Күн бұрын
Thanks Jo-Ann! I hope I can provide hope on the journey!
@cassdevericks3422
@cassdevericks3422 Күн бұрын
Love your videos Vickie! Always so inspiring! 🧡
@EvenSoItIsWell
@EvenSoItIsWell Күн бұрын
Thanks Cassi!
@valeriemoen4441
@valeriemoen4441 Күн бұрын
WOW! Reading these comments from other MS people is inspiring. I have PPMS and figured I would be looking forward to a life of pain and difficulty. But hearing this makes me feel like I can comfortably live to my 100s. Longevity is very strong in my family. Right now at 55, I’m doing good, however reading this make it all better! Thanks!
@EvenSoItIsWell
@EvenSoItIsWell Күн бұрын
So glad you are finding inspiration here. My viewers are the best!
@sivanmahadevan2458
@sivanmahadevan2458 Күн бұрын
I do as well it's 2 years and I was diagnosed on April 1. But I have PPMS and difficulty with walking. I also work on sleep, exercises, diet but unfortunately not helping too much. Stopped driving last November but have high hopes still. All the best. Your videos care great.
@EvenSoItIsWell
@EvenSoItIsWell Күн бұрын
Thanks for watching. Sorry about the PPMS. Don't discount the good you are doing with diet and lifestyle changes. There is more and more research coming out that is showing it helps with managing symptoms and possibly slowing progression. 🙂
@sivanmahadevan2458
@sivanmahadevan2458 Күн бұрын
Thanks for the motivation
@MinnieOnCam
@MinnieOnCam Күн бұрын
Yes on the living well with MS and chronic illness course we need more of them out there. 🧡🧡🧡🧡
@MinnieOnCam
@MinnieOnCam Күн бұрын
WOW! April 2017 I had sterilization surgery, because I didn't want to have children living with MS, MS diagnosis was August 2013. I went 2--3 years without symptoms, and Yes my neurologist was like I'm still young and healthy go live my life. but I see him annually for MRIs and follow ups then constant blood work for the DMT - Aubagio. I was already on government disability benefits trying to figure out what is "live my life", but I'm in low income poverty" For me I don't want to live my life if my disability income keeps me below the poverty line and constantly stressed out financially.
@victoriajohnston3219
@victoriajohnston3219 Күн бұрын
Hi Vickie , it’s Vickie here 😊. Thank you for this , your journey is very similar to mine , lm 54 and although l was only officially diagnosed in Feb 2023 l have had symptoms for years starting in 2008 with severely optic neuritis. I have a very positive attitude ( most of the time ) and exercise daily in the form of my two hour job in a school kitchen which sees me washing the floor , moving tables and walking are the kitchen whilst l do my job . Don’t get me wrong even though l only work for just two hours per day l still have to have a seated break of a few minutes due to my drop foot and pain which comes from it that slows me down . At the end of my shift lm totally wiped out and rest has to follow.Its very challenging and hard every day but lm determined to continue for as long as my body will allow me to . My diet is pretty good ( admittedly could be better ) and all l drink is water 💦 , l practice mindfulness daily and sleep well . I totally agree that exercise is SO very important to our health in general and more so when you have MS . I too follow neurologist Dr Aaron Boster and Dr Bieber vis KZbin together with yourself and l really find all of the advice give as a collective to be invaluable. Thank you
@EvenSoItIsWell
@EvenSoItIsWell Күн бұрын
Good morning Vickie! Thanks for watching. Good on you for doing what you can do and living with a positive attitude. We all can do better at times with our diet and lifestyle.😉 part of the reason I love milestones and markers in time is that it gives me time to reflect and look forward. I can make plans for the future. 😊
@kellencarreker4608
@kellencarreker4608 Күн бұрын
❤ 2 yr Anniversary Is June. Diet on point. Sleep on point. Weight training still have to get more consistent. You look great.
@EvenSoItIsWell
@EvenSoItIsWell Күн бұрын
Thanks for watching. Both of us will get more consistent this year!
@evadedenbach1226
@evadedenbach1226 Күн бұрын
My mom has MS. My mom was 29 or 30 when she was diagnosed back in the early 1980's. I was only one or two. She's 72 now, and is in a wheelchair now because of it. I'm 44, and having a mom with MS was a normal part of my childhood. I thought every mom used a cane at some.
@EvenSoItIsWell
@EvenSoItIsWell Күн бұрын
Thanks for watching. I love that you consider your childhood normal. Life can be amazing and wonderful with illness
@erinnicolefranco6807
@erinnicolefranco6807 Күн бұрын
Thanks so much for this! I have four young children and transitioned to being in a wheelchair and stopped driving about a year after the youngest was born. I feel so inadequate and like their deprive of so much. Your comment makes me feel better.
@EvenSoItIsWell
@EvenSoItIsWell Күн бұрын
@erinnicolefranco6807 everyone has something. It could be any illness, including struggles with mental health. It can include physical disabilities or unseen disabilities. We all carry on the best we can and find joy in what we can do. Think of all the things you are able to participate in with your kids because you have a mobility aid! It aids you in being there and being part of the fun!
@evadedenbach1226
@evadedenbach1226 Күн бұрын
@@erinnicolefranco6807 You're welcome!
@semsemramadan
@semsemramadan Күн бұрын
Can you provide me with your email ??
@EvenSoItIsWell
@EvenSoItIsWell Күн бұрын
Sign up for my newsletter evensoitiswell.subscribemenow.com/
@128titanic9
@128titanic9 Күн бұрын
Hi, Thank you for your video. Happy the Memorial day. ❤
@EvenSoItIsWell
@EvenSoItIsWell Күн бұрын
Thank you. You too!
@narayanlengee
@narayanlengee Күн бұрын
Is possoble to following all your advices may cure MS? I am suffering from the same. Pl guide from your experience. Please mention your email
@EvenSoItIsWell
@EvenSoItIsWell Күн бұрын
Thanks for watching. Unfortunately, no we cannot cure MS but taking medication and making diet and lifestyle can help us live well with it. You can email at [email protected]
@narayanlengee
@narayanlengee Күн бұрын
@@EvenSoItIsWell thanks for kind responded.
@totaldepth87
@totaldepth87 2 күн бұрын
I love that you call it a condition and not a disease. Because I call it a condition and not a disease. 🙈 I also love that I was notified of this video yesterday when I spoke to a dietitian who specializes in MS… And everything that she said you said also and that’s amazing. Thank you for sharing your wealth of knowledge with us, fellow MSers ❤️
@EvenSoItIsWell
@EvenSoItIsWell 2 күн бұрын
Hi Natasha! Welcome. Thanks for watching!
@deborahtruthseeker112
@deborahtruthseeker112 3 күн бұрын
My hearing is affected by my MS. My hearing test results come out normal because these tests do not measure neurological impairments. I have some type of auditory nerve damage. Also, if there is any background noise, then I cannot hear what someone sitting next to me, or across from me, is saying to me. Nor can I hear what is being said when people whisper to me. People who slur their speech drives me nuts. I cannot understand what they are saying, yet when I am fatigued, my speech becomes slurred.😮
@EvenSoItIsWell
@EvenSoItIsWell 3 күн бұрын
Oh interesting! I have had some problems focusing on conversations in situations where there is background noise too! I wonder if it not being able process what I am hearing? It must be so frustrating when added to when people slur or whisper.
@SherisBagofHolding
@SherisBagofHolding 3 күн бұрын
I've had all of these symptoms sadly. I left the workforce at 18 when I was diagnosed. It was aggressive and world shattering for my family who cares for me.
@natalia72a
@natalia72a 3 күн бұрын
So funny!
@EvenSoItIsWell
@EvenSoItIsWell 3 күн бұрын
Thanks for watching!
@hannahsingleton7247
@hannahsingleton7247 4 күн бұрын
Huntingtons disease has no cure or treatment you keep going we got this
@EvenSoItIsWell
@EvenSoItIsWell 4 күн бұрын
Thanks! Living with a condition that has no cure is not easy but there are things we can do help manage our symptoms and to try and live well with it! 🙂
@hannahsingleton7247
@hannahsingleton7247 4 күн бұрын
Speak for the people in the back you are my inspiration I have Huntingtons disease
@EvenSoItIsWell
@EvenSoItIsWell 4 күн бұрын
Thanks Hannah! 🥰
@hannahsingleton7247
@hannahsingleton7247 4 күн бұрын
You're welcome 😁
@hannahsingleton7247
@hannahsingleton7247 4 күн бұрын
I also try to fast after 6:30 pm
@EvenSoItIsWell
@EvenSoItIsWell 4 күн бұрын
I am thinking about shifting my fasting window to earlier in the day.
@hannahsingleton7247
@hannahsingleton7247 4 күн бұрын
I eat cous cous salads alot with habanero hot sauce yummy 😋
@EvenSoItIsWell
@EvenSoItIsWell 4 күн бұрын
I love spicy sauces!
@hannahsingleton7247
@hannahsingleton7247 4 күн бұрын
So nice to see someone eating healthy with Ms i was diagnosed with Huntingtons disease and i feel diet and exercise help me alot i follow mind diet which is nuts fish beans chicken and a salad once a day i love the green fruit smoothie mixed dark greens with fruit i love it and i eat blueberries alot
@EvenSoItIsWell
@EvenSoItIsWell 4 күн бұрын
Thanks for watching! Sounds like you are doing awesome with your diet! It is really amazing how well our bodies respond to good nutrition isn’t it?
@hannahsingleton7247
@hannahsingleton7247 4 күн бұрын
Oh yes absolutely 😊 hope you are doing well
@happydaysrcoming8792
@happydaysrcoming8792 5 күн бұрын
Many of us are having all over chronic body pain. Inflammation and it’s being completely dismissed by the doctor! We are being neglected by doctor and hospital! And MS is horrible! And to over look it or think that someone doesn’t have MS is nuts that they didn’t do more, she should sue them!
@EvenSoItIsWell
@EvenSoItIsWell 4 күн бұрын
Oh, I am sorry you have chronic pain. Please keep advocating for yourself and asking for referrals or seek out other doctors until you find one that can help you. I didn’t feel dismissed. The doctors just had a difficult time diagnosing me. Autoimmune diseases and disorders can be so difficult to diagnose. Thanks for watching!
@ExploringMS
@ExploringMS 5 күн бұрын
Great video with useful information, thanks for sharing.
@EvenSoItIsWell
@EvenSoItIsWell 5 күн бұрын
Thanks for watching!
@Mao-fi9qr
@Mao-fi9qr 5 күн бұрын
I am 20 years old. I have been diagnosed with trigeminal neuralgia. Prior to that, i got sharp shooting pain in my right hand that comes and goes, the doctor treated it with medication but couldn’t find a reason. I have vertigo everytime I change my position which causes me to fall sometimes. Every now and then I get a burning sensation in one of foot which also comes and goes. I get air hunger in summers which makes me feel like I will pass out soon. My blood tests are normal. I went to the doctors and they said I had hyperrflexia and referred me to the specialist who said it is all because of anxiety. I also get random emotional outbursts. I have had anxiety since I was a kid and I know enough to tell this isn’t it. I do think I have MS, but no one will listen
@Mao-fi9qr
@Mao-fi9qr 5 күн бұрын
I am 20 years old. I have been diagnosed with trigeminal neuralgia. Prior to that, i got sharp shooting pain in my right hand that comes and goes, the doctor treated it with medication but couldn’t find a reason. I have vertigo everytime I change my position which causes me to fall sometimes. Every now and then I get a burning sensation in one of foot which also comes and goes. I get air hunger in summers which makes me feel like I will pass out soon. My blood tests are normal. I went to the doctors and they said I had hyperrflexia and referred me to the specialist who said it is all because of anxiety. I also get random emotional outbursts. I have had anxiety since I was a kid and I know enough to tell this isn’t it. I do think I have MS, but no one will listen
@EvenSoItIsWell
@EvenSoItIsWell 5 күн бұрын
Thanks for watching. I am so sorry you are experiencing all of that. Please keep advocating for yourself. Ask for second opinions or referrals or seek them out on your own. Autoimmune conditions can be very difficult to diagnose and we may need to see several doctors.
@Mao-fi9qr
@Mao-fi9qr 5 күн бұрын
I am 20 years old. I have been diagnosed with trigeminal neuralgia. Prior to that, i got sharp shooting pain in my right hand that comes and goes, the doctor treated it with medication but couldn’t find a reason. I have vertigo everytime I change my position which causes me to fall sometimes. Every now and then I get a burning sensation in one of foot which also comes and goes. I get air hunger in summers which makes me feel like I will pass out soon. My blood tests are normal. I went to the doctors and they said I had hyperrflexia and referred me to the specialist who said it is all because of anxiety. I also get random emotional outbursts. I have had anxiety since I was a kid and I know enough to tell this isn’t it. I do think I have MS, but no one will listen
@Mao-fi9qr
@Mao-fi9qr 5 күн бұрын
I am 20 years old. I have been diagnosed with trigeminal neuralgia. Prior to that, i got sharp shooting pain in my right hand that comes and goes, the doctor treated it with medication but couldn’t find a reason. I have vertigo everytime I change my position which causes me to fall sometimes. Every now and then I get a burning sensation in one of foot which also comes and goes. I get air hunger in summers which makes me feel like I will pass out soon. My blood tests are normal. I went to the doctors and they said I had hyperrflexia and referred me to the specialist who said it is all because of anxiety. I also get random emotional outbursts. I have had anxiety since I was a kid and I know enough to tell this isn’t it. I do think I have MS, but no one will listen to
@gracewright7938
@gracewright7938 7 күн бұрын
Agree, education and reaching out is key
@EvenSoItIsWell
@EvenSoItIsWell 6 күн бұрын
Thanks Grace!
@yvetteschoeller5547
@yvetteschoeller5547 7 күн бұрын
Great information as always
@EvenSoItIsWell
@EvenSoItIsWell 7 күн бұрын
Thanks so much Yvette! Please feel free to share it with others who may benefit from it.