Diagnosed in 1988 at age 44 with RRMS, now at 80 as far as I know, no neurologist wants to deal with me in any way. In 1988 there were no DMT but in 1994 I was started on Beta Seron. I used Avonex for a year, for a total of 19 years I was using those two DMT’s, I became weak at 19 years of use and stopped it and became stronger and stronger. At this time I cannot walk and am able to transfer only and do chair exercises to keep up the strength to transfer, which I am thankful to be able to do. My age is against me as far as DMT’s go, so it is most important to keep up the exercises. I am enjoying them more and more I am happy to say.
@EvenSoItIsWell16 сағат бұрын
@@maryanngames9353 thank you so much for watching and sharing your story. I am glad you find the exercises helpful!
@edwardoreckinto92222 күн бұрын
I'm grateful to...inspiration move me brightly
@EvenSoItIsWell2 күн бұрын
Thanks for watching. I am glad you enjoyed it!
@thres342 күн бұрын
As always - thank you for this
@EvenSoItIsWell2 күн бұрын
Thanks for watching!
@Grandchienbete2 күн бұрын
This is my call to start my gratitude jar 😊
@EvenSoItIsWell2 күн бұрын
@@Grandchienbete hooray!! Pick out a nice big one to hold all you are grateful for!
@LiamODonovan-l6e2 күн бұрын
Ms is a horrible disease. I look up to people who have to deal with it
@EvenSoItIsWell2 күн бұрын
Thanks for watching. No doubt it can be challenging, but there are things we can do to help us live well with it! 🙂
@LiamODonovan-l6e2 күн бұрын
@EvenSoItIsWell wishing the best for you, sweetheart
@EvenSoItIsWell2 күн бұрын
@ thank you!
@Nancy-dz1vo2 күн бұрын
Great video! I get so self consumed on what I do have with horrible symptoms and what I may have health wise. I am thankful on that I can walk and take care of my self at my old age. I pray and think about those that are a lot worse then I.
@EvenSoItIsWell2 күн бұрын
@@Nancy-dz1vo thanks for watching and sharing Nancy. Perspective is a great tool for us.
@128titanic2 күн бұрын
Hello, Thank you so much for tutorial.
@EvenSoItIsWell2 күн бұрын
@@128titanic thanks for watching!
@EvenSoItIsWell2 күн бұрын
*Download your Free Tips to Create a Gratitude Practice* creating-a-gratitude-practice-42533.grwebsite.com/
@Maria-d7i1t5 күн бұрын
Very intereting ❤❤❤❤❤
@EvenSoItIsWell5 күн бұрын
@@Maria-d7i1t thanks for watching!
@KWannaMosley5 күн бұрын
I am scared to death cause I have Epstein barr.
@EvenSoItIsWell5 күн бұрын
@@KWannaMosley thanks for watching. Try not to worry too much. Most people have had it at some point.
@kevineeverhart78696 күн бұрын
I liked this format. It was kind of like a well managed AMA session. But your deeper dives videos are very good also. Its always good to have a change up capability. Ever thought of doing a "live" ?
@EvenSoItIsWell5 күн бұрын
@@kevineeverhart7869 thanks! I appreciate the feedback. I have thought about doing a live but am not sure I would have all the answers at my fingertips.😉
@kevineeverhart78696 күн бұрын
That certainly is a proVACAtive painting in that dairy free kitchen there GF! LoL
@kevineeverhart78696 күн бұрын
HÁ! I misunderstood you at the beginning of the video & hastily decided I'm (only) going to stick around for the recipe. NICE Cream not ICE Cream.... good one Vicki, good one. I suppose there are other supplements we can take to replace the gut microflora thats comes from a long lifetime of good organic live yogurt, but...but but.... I would live to hear your thoughts about kefirs & kombuchas. BTW i got a brain freeze this afternoon with our own version of frozen blueberry smoothie. Açai is the bomb!.
@EvenSoItIsWell5 күн бұрын
@@kevineeverhart7869 good morning! Fermented foods are awesome for gut microbiome. Vegan kefir, kombucha, miso, vegan yogurt and sauerkraut are all great. The only caution is that some are high in sugar so watch for that. I am watching the research around gut health and MS. There is a connection to immune function so I bet we’ll see recommendations soon! I hope the brain freeze wasn’t too bad. 😉
@michaelwhite5255Күн бұрын
@@EvenSoItIsWell I thought you might be interested that diary milk can't be the cause of MS in everyone. My daughter was diagnosed.MS at age 47 and had been on whole plant based diet for over 30 years. I really think her extremely low vitamin D levels was the cause of her MS as it can activate EBV in her body . I would recommend people with MS even after diagnosis to make sure their vitamin D levels remain in optimum range.
@EvenSoItIsWellКүн бұрын
@michaelwhite5255 thanks for watching. MS is definitely multi factorial. There are many things that they believe are tied to developing it including where you live, viruses, multiple possible genetic links, vitamin D, diet, and inflammation. There is also emerging research on gut microbiome.
@CaseOFContent106 күн бұрын
Thank you for posting this ❤
@EvenSoItIsWell6 күн бұрын
@@CaseOFContent10 thanks for watching!
@OLBK7 күн бұрын
Milk is disgusting I was informed today. Thanks for such vital Information.
@EvenSoItIsWell7 күн бұрын
@@OLBK thanks for watching! Yeah milk is kind of icky. It is funny how much I used to love it! I did another video on it just last week that includes new research and a recipe for blueberry chocolate nice cream kzbin.info/www/bejne/oobYkI2Df6iihqM
@trina72747 күн бұрын
This happened to me, exactly, just what your story is, but not with MS, with ulcerative colitis/rheumatoid arthritis . I’m also on a plant based, Whole Foods diet. I discovered that it helped me completely on my own… my medical team put me on The keto diet…. I got worse, much, much worse… my blood work tanked… my A1-C went up to 5.9. And I felt horrible. They accused me of “cheating” on The diet and not doing it properly, which wasn’t true, I was following their prescribed diet to the letter. So…I poured into research. I watched video after video after video about Whole Foods, healthy eating. I read literally hundreds of books, on audio and from the library. I came across “The Starch Solution” by Dr John McDougall… I thought “I’ll try it for a month”… I immediately starting feeling better!!! Literally, within a few days!! I lost weight, my terrible rashes on my hands started to clear (skin rashes are common in people with ulcerative colitis) and my chronic side pain went away, for the first time in years!! My blood work came down to normal, even cholesterol and my A1-C is normal too!! I still have 40lbs of weight to lose, it’s slowly coming off… my metabolism is very damaged from so many years of steroids/antibiotics. My adrenal system is having a very hard time!! I’m slowly getting there!! Well wishes to you!! Thank you for the video!! I subbed and have a thumbs up 💕❤️🙏🏼
@olgamono8518 күн бұрын
I regularly drink coffee with almond milk.
@EvenSoItIsWell8 күн бұрын
@@olgamono851 thanks for watching! I sometimes use almond milk or oat milk too.
@ranjeetajaggi50318 күн бұрын
Thanks thanks thanks vicky for ur videos nd recipes❤
@EvenSoItIsWell8 күн бұрын
Thanks for watching! I hope you enjoy the recipes.
@M.R-q9m9 күн бұрын
Wow: "There is worth in the bad days."
@EvenSoItIsWell9 күн бұрын
@@M.R-q9m there is! Thanks for watching.
@mikeshanermusic9 күн бұрын
It's so confusing and hard to know what's ok to eat. Everywhere I turn, people are saying carnivore has cured them of MS. Honestly, I've tried it all and nothing seems to make any difference. Now I'm rethinking yogurt, which I also stopped eating for a while with no noticeable change. The Butyrophilin information is really good to know though, and I will stop with the yogurt again. Thank you for helping us navigate the confusing maze of food consumption that will help us to narrow down our best personal diet.🙂👍👍
@EvenSoItIsWell9 күн бұрын
@@mikeshanermusic thanks for watching. Agreed, it can be very confusing. If you look at the “MS diets” out there (with the exception of carnivore), they have much more in common than different. They all feature whole, real foods. The elimination of processed foods and ‘food-like’ products. The addition of many fruits and vegetables. I would caution against the carnivore diet as there are no long term, peer reviewed studies on it. There are however many studies showing a more plant based diet are helpful. There are also studies showing those with MS that eat more animal saturated fats consistently have worse outcomes. That said, there are anecdotal reports of carnivore helping. This may be because it is the ultimate elimination diet. They are removing many of the toxic foods that are part of the Western or Standard American Diet. They also may be losing weight due to ketosis, being overweight is known to be problematic for people with MS. Unfortunately, long term ketosis is very hard on the liver. The lack of fiber in the carnivore diet is also a concern as gut dysbiosis is now showing to be a problem for people with MS and the lack of fiber leads to gut dysbiosis.
@mikeshanermusic9 күн бұрын
@@EvenSoItIsWell Thank you!!🤗
@katharinabro14449 күн бұрын
Sorry, but where do you gain your weight? Not only from salad and smothies...?!
@thres349 күн бұрын
Thanks for this, can I ask about your thoughts about alcohol consumption particularly whiskey? Thanks in advance
@EvenSoItIsWell9 күн бұрын
@@thres34 thanks for Research is mixed when it comes to MS and alcohol. Limited consumption, not more than two standard drinks a day, with at least two alcohol-free days a week has been shown to be beneficial as it may reduce stress.
@thres348 күн бұрын
As usual- many thanks for your reply
@CecileAYHAN9 күн бұрын
Thanks for your video! I am trying hard not to eat dairy, but it is hard. For me, thé hardest is cheese !
@EvenSoItIsWell9 күн бұрын
Thanks for watching. I can empathize. Cheese is so addictive. Sometimes when we are craving cheese, it is really the salt we are looking for. Try making a pizza without cheese and sprinkle it with nutritional yeast and salt. You may find it hits the spot.
@CecileAYHAN9 күн бұрын
Yes, I’ve got some , I will try it, thanks for your tips !
@HollyOly9 күн бұрын
It is misleading to call it “the science,” when all of these correlations, questions, and could-be’s haven’t survived hypothesis testing. There are definitely solid reasons to go dairy-free, but the MS science isn’t there (yet).
@EvenSoItIsWell9 күн бұрын
Thanks for watching Holly. This is the data we have so far and I do consider this research scientific. It is not conclusive for sure because we can’t do a double blind study on food as people know what they are eating. It is compelling enough for me. 🙂
@wontroba9 күн бұрын
Despite the dairy topic, I love your videos and especially your positive aptitude. It really helped me cease (at least try) my anxiety when I was told that I'm having MS. This anxiety had been enormous and had gifted me a few small MS symptoms:-)
@EvenSoItIsWell9 күн бұрын
@@wontroba thank you for watching and your kind note. I am glad you have few symptoms.
@wontroba9 күн бұрын
The problem is that these proteins will cause problems only to specific people who have the allergy to milk proteins. And it's obvious that these people are avoiding dairy already because of the allergy symptoms. But other people with MS can consume milk without any harm (choosing skimmed variants). There are a lot of studies showing that the consumption of milk or dairy products did not show a proinflammatory effect. pmc.ncbi.nlm.nih.gov/articles/PMC6518147/#sec4 The dairy problem isn't clear
@ltbanner28049 күн бұрын
Nice video. Coincidentally when I had the attack that led to my hospitalization and diagnosis I had been drinking more milk protein then ever in my life. I’ve done dairy elimination and reintroduction several times and I’m convinced it is at least a contributing factor to my MS. Hard to completely eliminate though. Need to check food labels closely.
@EvenSoItIsWell9 күн бұрын
Thanks for watching. Yes! Check the labels carefully. It is amazing what it gets snuck into.
@gabikynigou25239 күн бұрын
Thanks for this video!!!😊
@EvenSoItIsWell9 күн бұрын
Thanks for watching!
@k3of5ks9 күн бұрын
Great video. I've been free of dairy since starting the OMS lifestyle in August. Thank you for sharing the recipe and the science.
@EvenSoItIsWell9 күн бұрын
@@k3of5ks thanks so much for watching! Let me know how you like the nice cream!
@128titanic9 күн бұрын
Hello, Thank you so much for tutorial.
@EvenSoItIsWell9 күн бұрын
@@128titanic thanks for watching
@manolisfragakis54099 күн бұрын
goat milk is the best
@EvenSoItIsWell9 күн бұрын
Thanks for watching. Unfortunately goat milk has proteins and saturated fats as well and may not be best for people,with MS.
@manolisfragakis54099 күн бұрын
@@EvenSoItIsWell thanks'
@EvenSoItIsWell9 күн бұрын
Get your free nice cream recipes! nice-cream-recipes-nov-2024.getresponsesite.com/
@sarahlewandowicz769611 күн бұрын
Whole food plant based! I wish more people knew about it!
@EvenSoItIsWell11 күн бұрын
@@sarahlewandowicz7696 Thanks for watching. I agree! Doing my best to spread the word! 😉
@chitvansharma920211 күн бұрын
I also want to know about foot drop
@EvenSoItIsWell11 күн бұрын
@@chitvansharma9202 thanks for watching. When I had my first relapse I was given high dose steroids which helped some and then I really credit practicing regular yoga with resolving foot drop for me. Definitely check out Dr. Gretchen Hawley. She has some excellent videos on things you can do to help with it kzbin.info/www/bejne/mp7KZJqvm7uWfc0si=YpKhHSstiI5MbMfg
@cwill253612 күн бұрын
Oh my goodness the food you made sounds so good. Thanks for sharing
@EvenSoItIsWell12 күн бұрын
Thanks for watching! I do love this food!
@daniellesimms105314 күн бұрын
I’m currently under neurology and suspected ms for 2+ years. Taking a b12 higher dose 2 months ago has greatly improved my symptoms.
@EvenSoItIsWell14 күн бұрын
@@daniellesimms1053 oh! I am so glad the B12 is helping!
@blujeanzz872614 күн бұрын
Im sorry this happened to you. I was diagnosed in 2021. I get alot of stress and anxiety around just going to the doctor sometimes or knowing that I have MS. As well as meeting new people. I try and find people who are going through the same things as me. I was told that finding people will help with support. Feeling alone has really been troublesome for me. Itd be nice to have conversations with people who have had MS longer than me and what helps them and what hasnt. Tips and tricks to share that can help ease my mind. Because im young people expect me to bounce back or be okay and its really heartbreaking the way some people treat me. I hope you are well and everyone who has MS. Forever fighting MS together 💛🎗🌻
@EvenSoItIsWell14 күн бұрын
@@blujeanzz8726 thanks so much for watching and for your note. It can definitely be helpful to find a group in your area where you can talk with others. Don’t be discouraged if the first group you attend isn’t a good fit. It took me a few before I found one that was good for me. Seeking the help of a therapist can be helpful too. I have been seeing mine for years. Definitely keep me posted on how you are doing.
@shadrach629915 күн бұрын
Cover your eyes. It is a visual experience for me. I have no problem with a wash cloth covering over my eyes
@EvenSoItIsWell15 күн бұрын
@@shadrach6299 thanks for watching. I agree, a wash cloth is good to cover our eyes. I still experienced claustrophobia even after all these years and I still cover my eyes. It helps! 🙂
@ranjeetajaggi503115 күн бұрын
Thanks vicky for your videos. What did you do for foot drop?
@EvenSoItIsWell15 күн бұрын
@@ranjeetajaggi5031 when I had my first relapse I was given high dose steroids which helped some and then I really credit practicing regular yoga with resolving it for me. Definitely check out Dr. Gretchen Hawley. She has some excellent videos on things you can do to help kzbin.info/www/bejne/mp7KZJqvm7uWfc0si=YpKhHSstiI5MbMfg
@kathycollett494216 күн бұрын
I always ask for relaxing music. It always helps me when I hear their voice, asking if I'm okay. I'm always happy when it's over. I've had several for my brain and spine.
@EvenSoItIsWell16 күн бұрын
@@kathycollett4942 thanks for watching. Excellent tips!
@kathycollett494216 күн бұрын
I eventually think of a word, or at least know the first letter, but sometimes I'm way off. Thank you for sharing.🤗
@EvenSoItIsWell16 күн бұрын
Thanks for watching. I can so relate. Is like a game... Starts with an S, three syllables, is a food... Lol!😄
@anngiuli16 күн бұрын
Thank you for another science backed video. Always so valuable. Keep up the great work.
@EvenSoItIsWell16 күн бұрын
@@anngiuli thanks Ann!
@erinnicolefranco680716 күн бұрын
Vicky, thank you so much for being so well-versed. At my last neurologist appointment I went over the EDDS PubMed article that you shared. We have made a plan. The main reason I am not bedbound with someone else taking care of me is because of exercise. Also, while both of my optic nerves, brainstem, and spine have been significantly affected; my brain scans are often referred to as beautiful. This probably has a great deal to do with a healthy lifestyle. please keep sharing and no, you are doing God’s work.
@EvenSoItIsWell16 күн бұрын
@@erinnicolefranco6807 thank you so much for sharing your story! I am glad you and your neurologist are making plans! So encouraging to see that a healthy lifestyle is contributing to your wellness!
@darneyoung53716 күн бұрын
Lady I’m sorry, but my husband had MS and he did all the walking, exercises and I saw that every 3 months he was having an attack. He was diagnosed in 2004 I lost him 2009 your exercises did nothing what so ever in helping him 🇦🇺🐨🐨🇦🇺
@EvenSoItIsWell16 күн бұрын
@@darneyoung537 I am sorry you lost your husband. Some of us, unfortunately, get an aggressive form of MS. Please accept my condolences.
@victoriajohnston321916 күн бұрын
Hi Vickie thank you for this very interesting and encouraging information. I have secondary progressive MS am 55 years old with an EDSS of 6 ( meaning l need a cane or a rollator when l leave the house ) . I still work in a school kitchen for just two hours per day and l need to have a seated break after just one hour because of my balance and fatigue. At the end of each shift l feel totally exhausted, everything hurts . I rest when l get home , allow myself at least 30 minutes of silence mindfulness and sleep well at night . I look upon this as my daily exercise and l will try very hard to continue as long as lm physically able to . I appreciate not everyone has the luxury of being able to work just two days a week or have 30 minutes to spare each day to practice mindfulness. Many people have families and other responsibilities which take priority.
@EvenSoItIsWell16 күн бұрын
@@victoriajohnston3219 thanks for watching. Good on you for doing what you are able to do each day. And how awesome that you practice mindfulness too!
@128titanic16 күн бұрын
Hello, Thank you so much for tutorial.
@EvenSoItIsWell16 күн бұрын
@@128titanic thanks for watching.
@EvenSoItIsWell16 күн бұрын
What do you do for exercise? Will you change your exercise habits after seeing what the research shows?
@satyajitbhowmick45220 күн бұрын
Is there any Chinese or India company making it ? Too pricey.. want this in India for my parent in Kolkata…. Want an affordable , in about Rs 10,000 rupees in India …
@EvenSoItIsWell20 күн бұрын
@@satyajitbhowmick452 I am sorry, it is only made in the U.S. right now.
@anarchythegoat79620 күн бұрын
Are you able to take hot showers?
@EvenSoItIsWell20 күн бұрын
@@anarchythegoat796 I take more warm or tepid showers and always end with a blast of cold water. Many people with MS find hot showers drain them of their energy. Thanks for watching.
@anarchythegoat79620 күн бұрын
@EvenSoItIsWell you are so strong for what you're going through . It really helps seeing people with it still functioning normally and smiling thank you
@EvenSoItIsWell20 күн бұрын
@ it isn’t always easy, but we can live well with it. Everyone has something… diabetes, heart disease, cancer…. ours just happens to be MS. My goal is to see it as a condition I live with. Taking medication, eating the most nourishing foods we can find, exercising as we are able, getting good sleep, and having a regular mindfulness practice can help us to manage our symptoms and possibly prevent progression.
@anarchythegoat79618 күн бұрын
@@EvenSoItIsWell was your intolerance to heat an initial symptom or something that developed over time?
@EvenSoItIsWell18 күн бұрын
@ there were many times before my diagnosis where showers would exhaust me, but I never made the connection until after my diagnosis and learned it was a part of MS. Some can see it develop over time.
@TekAstin20 күн бұрын
Hello, I have heard of a few people that have MS disease but havent thought a lot about it. Today in class I had a warm feeling in the back of my head that wouldn't go away, I googled that it could be a sign of ms disease, when I looked at the other symptoms I saw that I have a lot in common, nearly everyday my vision has zoomed in and out of something and that lasts for many minutes or even a hour or so. I also sometimes have tingling in my feet and at nights I have to go to the toilet like 10 times some nights. I also sometimes have days that I feel so tired that I just skip my hobbies and lay down on the sofa + my energy suddenly drops to 0 without any reason and I dont fell relaxed even after a good nights sleep. Also my balance is bad and sometimes when im only standing I nearly fall because of my balance. I don't know if I should go to see a doctor but its kind of worrying that many of the symptoms fit in with ms disease. Im not even 18 so I dont know if this is completely normal or its just a coincidence.
@EvenSoItIsWell20 күн бұрын
@@TekAstin thanks for watching. I am sorry you are experiencing all those symptoms. They could be related to any number of conditions. Please make a list of your symptoms, approximate timeline as best you can remember, and see a doctor. Try not to be too worried, it could be something very easy to resolve. Keep me posted on how it goes.
@anarchythegoat79621 күн бұрын
Go in for my mri soon. I'm scared
@EvenSoItIsWell20 күн бұрын
@@anarchythegoat796 hang in there! Try not to worry too much. An MRI doesn’t mean it is MS, it could be something else. If it is MS, with all the treatment options available and the understanding of how diet and lifestyle changes can help, we can live well with MS. Please let me know how it goes.