Adjusting to an MS Diagnosis - How I Changed My Mind

Adjusting to a diagnosis of multiple sclerosis (MS) can be hard. Coping with MS and how it affects our lives and relationships can challenge us in many ways. In this video I share more of my MS story and how I have changed my mind and perspective on living with MS and how I interact with others.
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#MS #MultipleSclerosis #LivingWithMS #EvenSoItIsWell, #VickieHadge

[@EvenSoItIsWell]

Have you changed your perspective since diagnosis?

[@128titanic9]

In my mind, I think that breathing and listening the peaceful classic music help to heal my thought or body. ❤

[@EvenSoItIsWell]

@@128titanic9 breathing and listening to peaceful music are both wonderful mindfulness practices that are so beneficial.

[@danieljunker5198]

2001 seems like a long time

[@danieljunker5198]

23 going on 24?

[@user-pn2qp7gg8p]

I have had MS over t n tears now and I get fitter everyday because God has a plane for me and it's not to be beaten by a diagnosis or an illness that I have the power over by the the grace of God 🙏

[@EvenSoItIsWell]

Keep up the good work Dan! Getting fitter has so many benefits for us!

[@victoriajohnston3219]

Oh yes l can totally relate 😫. I was talking to a work colleague once about how disappointed l was that l could no longer wear a nice pair of high heels like l used to be able to do many years ago . My colleague just looked at me for a minute then said “ why don’t you just try wearing them around the house so that you can feel comfortable wearing them again “ 😩l wish . If only it were that easy ☹️👎🏻. I feel so liberated when l can share my experiences with people who can “properly understand “ what its like . I get alot of comfort knowing lm not the only one 🙂x

[@EvenSoItIsWell]

It is so nice to have a community to share with.

[@victoriajohnston3219]

@@EvenSoItIsWell Absolutely 👍. Being able to share our experiences is a great help , especially when you might be feeling low with no one to talk to . People mean well when they say what they say , but you can only fully understand if you’re suffering from the same thing . 🙂

[@davidarmstrong7549]

Another great video, Vickie. 👏 I was so worried when I first realised I probably had MS. I feared that i would lose a lot of my vision and have a much shorter life, but I'm still here and my vision hasn't worsened since the episode of optic neaurits that began my journey with MS! I know though that MS is progressive and that things might change a little in the future but I try not to dwell on it. Thank you for all your hard work. X

[@EvenSoItIsWell]

Thanks David! Great point. Not dwelling on the “what ifs” is a huge shift in perspective.

[@128titanic9]

Hi, Thank you for your video. Welcome and Best wishes. ❤

[@rawsomehappy]

I embrace the .02 people offer. The body changes like the ocean What works now might not continue working. After being called an enigma, an alien, and “there’s no way you were first DX’d with PPMS”, I decided not to be the picture of my diagnosis. My cognition can’t pass the test, my physical abilities don’t match my MRI’s, the neurologist is useless since I don’t take DMT’s so I heal myself .02 every day. Decide to be happy and live peacefully. Make that your daily goal. Pleasure can be found all around. It doesn’t have to include people or food. Perspective is an option. No one is watching you No one is feeling your feels. Live as if it were your last day and you would be fulfilled ❤

[@EvenSoItIsWell]

Hi Myrna! I love the .02 philosophy. I a bit better each day. Embrace the .02 that people offer! Deciding to change is a big part of living well with disease or chronic illnesses.

[@knet914]

What is the .02 people offer?

[@EvenSoItIsWell]

@knet914 I believe she is referring to looking for the little bit of good even if it is small and healing a little bit each day.

[@kevineeverhart7869]

Hurray for Holsteins!!! I love that portrait Very efficient Ruminators for sure. You always provide so much to chew on!! (I will stop now)

[@EvenSoItIsWell]

lol! I love it Kevin! I do have a thing for cows. 🐄

[@jude4896]

Thank you for sharing, Vickie. I also am dealing with my own journey. I have RRMS identified in 2009 and gone through different symptoms with different medical advice and treatments. Different medications side-effects altering my mood and personality . Subsequently resulting in affects on many of my relationships, including a divorce and other friendships. This making the journey much more difficult. Now getting disability finances are tight and medical treatments and Dr's being costly also financially limit my desires to add additional costs trying to move through the journey and seek mental counsel and more treatments. It's a difficult journey. Wishing you the best. Thank you for sharing. Mike

[@EvenSoItIsWell]

Thanks Mike. It can be a difficult journey for sure. Thanks for watching and sharing.

[@k3of5ks]

I can relate to some of this. As older and newly diagnosed (this year) I don't worry too much about what others think. Regarding well meaning comments and suggestions. People care and it's their way of showing it. My biggest challenges are mobility and self-imposed isolation due to difficulty walking. I'm working on this. Lots of hobbies, crafting and creating takes place inside my home. I think one of the biggest things I can relate to in regards to your story is that what I imagined my later years to look like and included lots of travels. While this is no longer an option, I try to think about new adventures and what they might look like. Trying not to ruminate but not always successful. Allowing myself time to process is key. Surrender to God's will, love and care for me is key, along with serving others. 💗

[@EvenSoItIsWell]

Such a lovely way to look at it. New and different adventures.

[@cesaredo]

❤

[@martinmatko6401]

What is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal flow? Apparently Neurogenisis and Homeostasis side effects of Venous Angioplasty treating recognized medical condition Neurovascular Disease CCSVI!

[@EvenSoItIsWell]

Thanks Marin. My knowledge of CCSVI is limited but I have looked into it in the past. Some thought it might be helpful for people,with MS but subsequent clinical studies showed it didn’t really make a difference. www.msaustralia.org.au/news/disappointing-results-ccsvi-treatment-trial/

[@martinmatko6401]

@@EvenSoItIsWell MENTAL HEALTH Supplying Oxygen and Nutrients to every Cell along with clearing toxic brain waste, what is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal flow, impacting neurological symptoms regulating mood and cognitive Senescene Psych issues? #CCSVI #BloodFlowMatters With age, blood flow to the brain decreases b/c blood vessels produce less nitric oxide, a gas that expands blood vessel walls. Such disruptions contribute to changes in cognitive function that occur with age. #Exercise increases nitric oxide & boosts blood flow to the brain. Critical Healthcare Research addressing Neurovascular/Cardiovascular Disease including Heart & Brain function Amygdala Dopamine/Serotonin related Mental Health Depression Vascular Disease issues! #anxiety #VascularDepressionConsensus bmcmedicine.biomedcentral.com/articles/10.1186/s12916-016-0720-5 Have you tried learning about best possiblity to eliminate cause of Symptoms! Can you relate? Connect with others who know about #CCSVI and #neurovasculardisease on FB Group: MultipleStenosisSociety! facebook.com/groups/493935520792751/?ref=share_group_link @ms_matko If your veins are blocked they should be opened if you have SymptoMS or not!

[@nancyramirez9683]

I recall you mention a naturopath I wondering if you could share the name of this naturopath I was looking for one that is recommended.

[@EvenSoItIsWell]

Hi Nancy! I use Dr. Burkman at CT Natural Health www.ctnaturalhealth.com

[@user-pn2qp7gg8p]

I have MS, MS does not have me!

[@EvenSoItIsWell]

Excellent attitude Dan!