#103

[@mswilso]

Hey Jerry, Mike here, IBM for about 10 years. You're doing a good job with the videos, doing God's work. Totally agree with your perspective on IBM as it progresses (it matches my experiences, at least). What I've tried explaining to my specialist is that, it seems like there are "plateaus" of varying lengths of time, followed by a big change. After that, there comes a major/minor adjustment in how I live life, followed by another plateau. And down goes the roller-coaster. One of the latest changes has been the loss of my ability to type. Currently, I have to peck letters out one-by-one using Windows On-Screen keyboard, but it gets the job done. What I will do after that, who knows, probably speech-to-text... But there are lots of "adaptive technologies" out there, which were previously not an option (smart-home devices, Google lights, etc.) But to the point of your video, one thing I recently realized is that I never in 10 years of enduring this disease, have I ever had a discussion with my specialist about DIET. Although it's probably too late for me, someone in Stage I or Stage II might benefit from a discussion with a dietician familiar with IBM. Agreed there is no "magic bullet", but a person's quality of life may be improved by losing weight, or trying a gluten-free or paleo/carnivore diet (under supervision). Again, be encouraged. It took me some time to actually subscribe, but I look forward to every episode. Thank your wife/caregiver from me and my caregiver(s). And Thank You for maintaining a positive attitude, despite all.

[@IBMyositis]

Thanks, Mike...I THINK WE'RE ON THE SAME WAVE LINK. Yes, losing weight as so many advantages, not only to address many of our other comorbidities, but very importantly to make it easier for our caregivers to be able to assist us as we progress in this disease. I've shed over 90 pounds in the last 10 years, and it has resulted in better A1c levels for my diabetes II, as well as making it easier for my caregiver to handle me now that I only have about 5% functionality left in my skeletal muscles. I use a lot of Dragon voice recognition in almost everything I do on my computer now, and am starting to rely more and more on using a program called "SMYLE mouse" to help with moving around the screen and clicking of the mouse.

[@mswilso]

@@IBMyositis Thanks, I'll check them out.

[@glendageorge3987]

Thanks for the advice!

[@aabbo2]

👍

[@aabbo2]

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