22 & Suddenly Disabled: My Story | Functional Neurological Disorder

[@clarityromero]

UPDATE: Hi everyone! I’ve noticed my video has been resurfacing again recently and I’m blown away by all the love, support and kind words you’ve shared. I just want to take a moment to thank every single one of you from the bottom of my heart. Back in Dec 2023, being diagnosed with FND and becoming disabled overnight at 22 was one of the most challenging, confusing and isolating experiences of my life. Now that it’s 2025, I wanted to give you an update on where I’m at! I’m incredibly grateful to share that I’ve recovered about 95% of the way. It’s been a long journey that required faith, perseverance and help from many areas-but it truly was a holistic transformation. If you’re curious to see more about my journey or behind-the-scenes updates, I’ve been sharing over on Instagram (@claritymromero). I have an FND highlights over there so feel free to check it out if you’d like! Thank you again for being such a supportive, uplifting community. You’ve truly made a difference in my life. I don’t feel so alone anymore. I love you all so much! ❤️❤️❤️

[@PrettyEyesz]

@clarityromero That's so wonderful you give us all hope that we will oneday have a full recovery too. Blessings and peace to you and your family. 💜💜

[@clarityromero]

@@PrettyEyesz yes recovery is possible! ❤️ sending so much love to you too! 🥰

[@hellyripphin8357]

beautifully filmed. Thank you for the reminder that life can change in an instant and our concept of 'control' is just a construct we have invented. (I was hit by a car and the life that I had before just evaporated - so I write with empathy and kindness.) thank you - you are far from alone.

[@clarityromero]

I’m so sorry to hear 🤍 its such a difficult process to navigate huge changes but knowing that we don’t have to go through this alone has been my guiding light. Thank you for the support ❤️

[@rohinihyde4766]

I have been diagnosed with FND after months of being to several neurologists and having a multitude of tests which were all negative. My symptoms began over 3 years ago l, a few weeks after my 1st and only Astra-zen jab. Greatest regret of my life. Paralysis has got worse over time - permanently on a walker and require additional help too. So glad to read in your update that you are getting better Clarity. Thanks for sharing your story.

[@MrRadberry]

Moral of the story, don’t take your life for granted because it can change at any moment.

[@kelllefae3026]

So so true ... I woke up one day to my beautiful teen son talking jibberish, it spiralled to terrifying levels within 24 hours . He was hospitalised immediately and 5 years later he's still in there ( not fnd but schizophrenia)

[@stuartburns8657]

My Daughter was diagnosed with FND October 22. Went to bed a bit run down with a cold, and next moring could barely walk with collapsing episodes. Battery of tests, and eventually we paid for a private diagnosis. This got worse with unconscious handgriping, arm movements, tics and tourettes outbursts etc. Only had a couple of what Id call seizures. Nearly 2 years later she's doing a lot better. She had to suspend college for a year while we all refocused, but she's walking, doesnt need the wheelchair any more etc. It's still with her, and heat and loud noises can be a problem, but considering how bad it got we're so proud of her progress abd recovery. Walking issues..weirdly she could dance flawlessly, and we found any type of distraction helped normalise her movement. Good luck to you and stay strong 🙏👍❤

[@clarityromero]

Thank you so much for sharing this ❤️ This means a lot to me! I hope you and your family is doing well ☺️

[@stuartburns8657]

@@clarityromero My pleasure. I've only got a sample size of one, my own daughter, but I've come to understand with research papers and others sharing, what an individualistic condition FND is. All I can say is don't give in and keep pushing yourself. I don't know what the future holds for our daughter, but early days I'd have never imagined she'd have recovered as well as she's been able to do. Stay strong, and thanks for having the courage to share your experiences 🙏

[@sandyp4123]

Thank you ❤ Same with me. Dancing works, but noise, stress, heat, cold...😢 So good to hear she is doing better ❤

[@stuartburns8657]

@@sandyp4123 Yes, all of those have an impact. If she gets a bad cold, it wipes her out and affects her mobility for a day or so. Fatigue overall is the biggest issue. While she's generally wheelchair free, she still uses one in college (16 hours a week course) It's not completely problem free for her. At the moment it's Christmas themed verbal tics whilst in college apparently. She stays strong, so we can do nothing less. Hope you have a good Xmas 🙏

[@sandyp4123]

@@stuartburns8657 Blessings 🌟🌠 to you and your family

[@Sarah-ty5ev]

I love to see other young people with mobility aids! I’m 25 and use them because of Ehlers Danlos syndrome. Thank you so much for sharing your story!

[@q_q6162]

not only was this beautiful but also a jarring perspective of what it’s like to live with such a disorder. thank you for sharing this with the world, you are very strong ❤️❤️

[@clarityromero]

Thank you so much for the kind words ❤️❤️❤️

[@Hannah7Banana]

This video is so underrated, I don't have fnd but I am neurodivergent and I understand what it feels like to be dismissed, ignored, and misunderstood. You got this :)

[@clarityromero]

Thank you for the support ❤️❤️❤️

[@Truerealism747]

Neuroduvergent can cause it I am with hypomobility fybromyalgia

[@sandyp4123]

Dear ❤ Clarity, you brought so much hope to my day. I am at home and most of the time bedbound after 3 heart operations and a vaccine damage. They led to a neurological disorder. I know the seizures, sudden paralysis, loss of speech etc. This has been going on for years now. Today I will wear something nice and think about you ❤ and your courage . You are a ray of light for someone in far away Germany. ❤ I know Jesus loves us and will carry us through. We need friends and family who come, accept and love us as we are now. Blessings and Big hug. Sandy ❤

[@clarityromero]

Thank you so much Sandy 🥹 Your message touched my heart and I’m so honored to know that my video brought you even a little light and joy. You are such a beautiful soul and know that you are not alone as well❤️❤️❤️

[@sandyp4123]

@@clarityromero Thank you 💖 dear Clarity. So good hear that you are doing better by know. Many blessings Sandy

[@tynsleycalistena9556]

Officially diagnosed with FND about 6 months ago. I can't thank you enough for making this film! I cried tears of HOPE🙏

[@Star_Rattler]

I learned recently that I am not only ADHD but also autistic, and accepting the limitations that come with those disorders. For a long time, I just thought I... sucked. I was normal, but weird. And I was fussy, picky, particular, emotional, quirky, lazy... etc. Now I have a name for my problems. However, accepting that there's just certain things I can't do, and the fact that most people in my life don't understand that I can't do certain things, and get upset with me, and judge me badly, because they think I CAN do anything I put my mind to.... it's so ... heartbreaking. I've got a different life experience than you, and we have different struggles, but I am here with you, beside you. We are sisters and we can lift each other up when the world or our bodies/brains push us down. I love you and I hope you will continue to cope easier and easier and life flows a little more smoothly. 💙

[@clarityromero]

Thank you so much ❤️🥺 I choked up reading this because i relate in so many ways. It’s so challenging when people don’t understand what you’re going through, all the more when they don’t believe it. But i’m so glad to know that there are people out there who understand so thank you for taking time out of your day to leave such a heartfelt message. I love you too, sis🥺🫶

[@sherilynangel6498]

I am with you too...heart, soul, all love ~ Always 💕 Peace, Blessings and Magic your way ✨️ Xx

[@trashman2256]

i’ve had fnd for over 3 years and it’s so refreshing to see people documenting their story and spreading awareness!

[@asianwithacapbackpack3053]

I am touched with grief and sadness to see someone of such young age needed to go through such struggle. I too find comfort and inspiration in your attitude to "rock it out" despite your current circumstances. Thank you for this beautiful emotional ying & yang today. Wishing you a beautiful and meaningful life journey ahead.

[@whimsyelf7832]

Thank you for sharing your story. This was a beautiful film. I also suffer from FND and its so difficult. It's hard watching your peers move forward while you feel left behind. It's hard grieving your past self and all you were capable of. I'm glad you've found freedom in using mobility aids, I might have to consider getting one.

[@clarityromero]

Thank you for the support 🤍 and yes, it’s so difficult watching the world move forward while you’re trying to manage each day but it slowly gets easier. It also took some time to accept mobility aids but it did help bring back my independence and reduce my symptom flare ups. I hope the mobility aids help you too ❤️❤️

[@sannesmit7342]

Can I just say that this was beautifully filmed. I would love to follow your progress mentally as well as physically! I wish you all the best and keep in mind that grieving the body you once had as well as accepting and learning about the body you now have both have a place in the healing process.

[@clarityromero]

Thank you 🥺❤️ And yes, you’re so right. I suppressed a lot at the beginning but now i’ve realised that its okay to grieve every aspect of this process❤ I do share a lot of my progress on insta (@claritymromero) as well but i’ll also continue to post more videos regarding my progress on YT. Thank you for the kind words 💕💕💕

[@963ag]

Thank you for educating people about this - you are an incredibly strong woman. Those who are healthy have no idea as to the struggles of those who are not. I see many unsympathetic comments on other videos when talking about disability - some people mention that people should prepare financially to avoid the economic devastation this can cause - this is nonsensical, no one can prepare for a catastrophic illness or accident. Even a former highly successful professional can be wiped out financially by catastrophic illness. Without a support system like family who are willing and able to help, this can completely destroy a person. This is a huge issue with older, disabled, childless people who struggle on SSI/SSDI and can barely afford basics.

[@clarityromero]

thank you for your kind words ❤ and yes, i completely agree! i can’t even imagine how difficult it would be without having a strong support system when going through a massive change like this because it literally affects every area of your life.

[@robertklund3201]

I couldn't help but feel heart broken when I saw her bike unused and rusting outside on a beautiful day as I watched a tear go down her face. 😰

[@springmuisje]

Fellow FND-haver here. Thank you for this beautiful video! ❤

[@clarityromero]

@@springmuisje thank you for the support ☺️❤️

[@MissCBwasadancer3]

I was misdiagnosed with FND & Fabrication of Illness. I actually have dysautonomia/POTS and severe ME + MCAS & hEDS triggered by vaccine injury. The thing that caused my seizures was a combination of Adrenal insufficiency/ very low cortisol, low blood volume & chronic potassium deficiency. I almost died because it was never tested for until I went private… yet i was told by NHS neurologist that i just needed psychiatric therapy. Make sure your vitamin levels are optimal and hormones have been checked & also consider researching vaccine injury if you had vaccine within 3 months of onset (you won’t get far with just googling as heavily censored topic.) Regardless of your trigger, there are many people, especially young women, presenting similar symptoms to you. So you are never alone.❤

[@clarityromero]

@@MissCBwasadancer3 ❤️❤️❤️

[@masterculturedunkerque7918]

Sometimes theres a past condition of trauma behind and women are definely more affected

[@AmeliaEvansx1]

Thank you so much for sharing your story ml! I got diagnosed with FND in July this year and I’m 16 years old. I haven’t seen a neurologist yet but I’m on a waiting list as I’m having worse seizures so I’m hoping it’s nothing worse than only my FND. I’m sending my love gorgeous girl, it’s a horrible illness that needs more research xx

[@clarityromero]

Hi Amelia, thank you so much for sharing your journey here and I’m so sorry to hear about the challenges you’ve been facing, especially with the seizures. Sometimes waiting can be so frustrating as well but I hope you can see the neurologist soon ❤️Sending you so much love 🫶🫶🫶

[@AmeliaEvansx1]

@ 🥰💓

[@Truerealism747]

Do you have heds?

[@deanawells4395]

When I had to start using a walking stick. I decided to bling it out and get different colors and designs on it to match my outfits and a happy state of mind. ❤

[@sarahtalbot4363]

I was diagnosed with FND 6 months after a Parkinsons disease diagnois. Now after 3.5 years, I am slowly getting worse but no one knows if its FND or PD or both? I have to work at remaining calm and positive for myself but also my family. It is hard but what can I do? I try to stay as healthy as I can and I dont think about it too much or it could get me down. I am still grateful for the love and joy I experience despite health problems. Look after yourself and stay in the moment xxx

[@clarityromero]

It really means a lot to me that you shared your journey ❤️ your courage and strength is inspiring. your comment has been a great reminder for me as well to remain grateful so thank you for that ❤️

[@brentwarner5333]

I just came across your video and I resonate with your story. 7 months ago, I began to have a pulling sensation in my neck and face. This was late May but the next month my world came crashing down when I began to experience seizures, tremors, severe pain, and a mental disconnect from the world around me. October 11, 2024, was the day that changed my life. I had been seeing a neurologist since the beginning of the journey, but this was the day that I finally after months I got an official diagnosis. My doctor diagnosed me with Functional Neurological Disorder. Though my wife and I were happy to have a diagnosis we had so many questions. Many days I look back on my life before FND and it's hard to understand that 7 months ago I was normal working an excellent job, providing for my family, and had so many things I wanted to accomplish. Even though my life looks vastly different than before, this has led to other possibilities that I can only describe has a blessing from God. One thing I have learned from this disability is that I don't have to understand it, but I know God has ordained it. Thank you for sharing your story and journey through FND. God Bless.

[@bbl8101]

I developed FND from a covid reinfection in May 2022 as well as ME/CFS. It's completely changed my life - housebound over two years now

[@jenniferw1595]

Same here. I think she has FND from Covid or post-viral syndrome.

[@Ariesmonique]

Did you have the covid vaccine?

[@StephanieAlice]

@@jenniferw1595it’s MCAA POTS dysautonomia I corrected most of being paralysed and bed bound in 24hrs with acupuncture for ANS problem and low histamine low inflammatory diet as gut is inflamed which causes all these crazy symptoms including anxiety as histamine is a neurotransmitter. There’s so much info and help out there just not with western medicine!! No such thing as fnd, there’s always a root cause they just aren’t bothered in. Finding it

[@annemargaret3512]

Hi! I was also diagnosed with FND on Oct 10. I can’t walk forward but I can walk backwards. We got this 💪

[@clarityromero]

Yess we’ve got this ❤️❤️❤️

[@wowwowzz115]

Commenting to help the algo and spread your story! Keep fighting and be kind to yourself!

[@clarityromero]

Thank you so much 💕💕

[@MoveToCalm]

This was so beautiful. Thank you for sharing . 🙏🏾

[@lacroix3931]

3 months ago my life changed overnight. Right after my 20th birthday. First I developed a vocal injury from acid damage which has continued to get worse. This is particularly devastating because I’m a singer in a band and my voice means the world to me. I can still barely talk. I thought it couldn’t get any worse until one night I was struck with the worst pain in my head I have ever felt. It came on instantly and it has been with me ever since. A constant intense pressure and pain around my whole head and face 24/7. I couldn’t sleep for weeks and was in and out of the hospital almost every day. All of my blood tests were normal, I had 7 different brain scans done that all came back normal, besides one. A 7mm cyst on my pineal gland. These are usually asymptomatic and my doctors insist that it is. They diagnosed me with chronic migraine but I know this is not the case. I’ve had migraines before, this is entirely different. Migraines don’t come on in a second and last for months. Thousands of people have very serious symptoms caused by these cysts, an unremitting pressure headache being one of the most common, but their doctors won’t believe the cyst is the cause. The only cure is a very risky surgery that only a handful of surgeons in the entire world can perform. The cyst sits right in the middle of the brain on top of the cerebral aqueduct, causing an obstruction of cerebral spinal fluid and a build up of pressure. Every moment is excruciating and it’s so dismissive be told there is no physical cause when you know for a fact there is. People don’t go from being perfectly normal to feeling debilitating unremitting pain for no reason. I used to be depressed over the smallest things and now I realize how perfect my life was. I got to sing original songs with my friends, I went to work and laughed with my coworkers, I could sleep without being in pain. Now all of that is gone and it happened so fast.

[@Truerealism747]

Mine started like that 1997 after a fall pelvic pain now my pains in shoulders armpits area still migraine with element s of fnd now diagnosed autism ADHD heds father has CFS to

[@nicolerodriguez6416]

This video would have helped me so much when I was first in the hospital. I know it will help others as well.

[@clarityromero]

Thank you for the kind words 🤍🤍

[@simrankapoor1610]

Send you love girl, I’m about to hear that you are recovering very fast. Do yoga, and gym (if doctor allows), yoga is very good for the nervous system as per my understanding

[@UnintendedConsequences]

After five years of undiagnosed symptoms (including constant exhaustion / fatigue and intractable vomiting) - I finally got a diagnosis of Myalgic Encephalomyelitis, a progressive, degenerative neurological condition associated with Chronic Fatigue Syndrome…. And then, I woke up to extreme pain at the left trigeminal nerve at the mandible - excruciating pain, and tremors, weakness, tingling - and as I jumped into the shower, preparing to rush to the doctor (about 04:30) I was terrified to discover that the symptoms were knife-edge divided between my left and right side - like a distinct line bisecting my entire body, dividing left / right - similar symptoms on both sides, but the right substantially worse. Having been in care since the early symptoms of the ME, I have a standing order for labs at the local clinic, so I decided to take a sample in, and see if there were ANYONE who could see me; oddly, the lab was closed, but my primary doctor was in the office, and had just had her first appointment cancel - did I want to see her? Duh. She sent me immediately by ambulance to the ER for imaging; despite there being no “bleeders,” the on-call ER doc diagnosed as Functional Neuropathy - and basically told me it was in my head. My clinical neurologist tried to convince me of this - and my response was that, if she could explain the mechanism by which I was awoken from a dead sleep with late-stage Parkinson’s symptoms and ungodly pain at the trigeminal nerve was the result of my grief of having lost my mom unexpectedly a few weeks prior - well - you should write a paper - otherwise, I think more imaging is in order. She ordered the FMRI and CAT scans immediately. After several visits to UW Neurological, Virginia Mason Neurological Research Clinic, and a gaggle of endocrinologists, urologists, gastroenterologists, and other specialists - not any closer to finding out why - only an entire year spent bedbound, atrophying until I simply forget who and where I am - as degenerative nerves include the most important of them - the neurons and axons in the noggin. The complex PTSD and chronic depression, while preexisting, are probably what ultimately does me in - because this isn’t really living. My entire point is not to complain, or compare - only to advise others that - despite being preternaturally healthy for 55 years - sudden, unexpected illness can, and does destroy lives, and the current state of healthcare / insurance in the US is designed to profit off suffering, with no actual attempt at curative care, but *managed care* - because that’s where the profit margins are. I’m not saying that what Luigi did is right - only that I understand. 🤨😒

[@markyromero1398]

Send prayers and virtual huggsss my cousin. Fight fight fight...🙏🙏🙏😘😘😘

[@clarityromero]

Thank you! ❤❤

[@jess-rc5dp]

Woou increíble videos, gracias por mostrarnos las luchas diarias del FND, a mi también me diagnósticaron, gracias, haces que no me sienta sola en esta lucha, te envío un gran abrazo guerrera❤❤❤❤

[@clarityromero]

@@jess-rc5dp thank you so much for the support ❤️❤️❤️

[@elop4549]

this is such a bueatiful work of art. thank you for filming this. i wish you all the best for the future.

[@clarityromero]

@@elop4549 thank you so much for the support ❤️❤️❤️

[@PrettyEyesz]

My heart definitely goes out to you, i have been dealing with this since May of 24. I have been in the ER multiple times for seizures, the last time was literally Christmas night which I was so upset about because I didn't want to ruin Christmas for my family. Doctor's often dismiss me, they send me home every time. I don't know if they think I'm faking or what. I now have two mobility aids my cane and my rollator walker. Thank you for this video I feel less alone.

[@clarityromero]

❤❤❤

[@liabee2757]

I'm literally going to the neurologist in an hour, in the exact same situation but no answers yet. I'm hoping to get a diagnosis today

[@CatToesandPigNose]

Did you get your diagnosis?

[@RStarflowerpower]

This reminds me a lot of Gluten Ataxia. The symptoms over lap quite a bit.

[@abdullahak2204]

Omg I have never heard of this before! Thanks for sharing! I randomly stumbled across this video!

[@littlebitofhope3333]

It used to be called Conversion Disorder. You may have heard of it under that name.

[@clarityromero]

thank you for being here! ❤ i’m so happy more people are finding out about this!

[@dazzlingdisaster89]

My symptoms started in 2021 but were mild Dr told me it was anxiety more I have tics,faint attack,limb weakness, problems with speech I know it's fnd its getting a Dr to believe me

[@clarityromero]

@@dazzlingdisaster89 I’m really sorry you're going through this. I know how hard it can be to feel unheard. Stay strong and keep advocating for yourself-you deserve to be taken seriously. i’m also here if you need someone to talk to. Sending so much love your way ❤️

[@WitchyLady21]

This disorder is becoming an epidemic. It needs to be investigated more. You're lucky to have had someone speak up for you.

[@ShamelesslyCreative]

Thank you for sharing your story.

[@poogie_bear]

8:12 Exactly my story up to this moment in your video. I have no faith.

[@clarityromero]

@@poogie_bear I’m really sorry that this has been your experience too. losing faith is such a painful place to be. please know you’re not alone and your strength in getting this far speaks volumes. I believe in you. sending so much love your way ❤️❤️❤️

[@poogie_bear]

@@clarityromero Thank you for your encouraging words. For the last 5 Years I felt everything getting worse day by day. Just last week I took a trip to Spain & France by myself. I asked mobility assistance at the airports. Now I feel I'm healing little by little. Your story really encouraged me, I had not heard of FND until a few months ago.

[@yolo-ni5bl]

I've been fainting regularly, couldn't move for hours, tired all the time etc. The doctors don't know what's wrong with me, but they've only done ekgs and blood tests and nothing else because my parents waited 6 months to take me to a doctor. I'm debilitated and unable to do my schoolwork. We still don't know whats wrong with me, though my heart rate is always high (resting around 110, it's jumped up to 195 resting before). I want the doctors to take me seriously and have answers.

[@masterculturedunkerque7918]

They are lazy and cruel. Hope you got answers

[@scottbennett3423]

I got this a few years ago it gets better and then worse all the time

[@EllenJung-eu5gs]

Clarity. I hope you have resolved FND for good by now. And if you haven’t, I hope you know that you can rid of FND once you meet the right doctor who can teach you how to retrain your brain. My son had FND and he is 90 percent better now after 11 months of trials and struggles!!

[@sandyp4123]

May I ask for the doctor,'s name?

[@clarityromero]

Hii, thank you for leaving this comment. It’s officially been a year now since having FND and I can relate to your son now. I’ve mostly recovered but still have a few things to work through but definitely better than before ☺️❤️ thank you for the encouragement!

[@masterculturedunkerque7918]

What did you do?

[@adeshmahabir]

Keep strong.

[@clarityromero]

@@adeshmahabir always ❤️❤️❤️

[@mirandastephens4586]

Amazing videography

[@clarityromero]

@@mirandastephens4586 thank you! ☺️

[@rohinihyde4766]

Inspirational video. Thank you for sharing your story. May I ask if your symptoms began after the covid jabs. I was 68years old when I had my 1st jab 3 years ago. Symptoms started soon after and after several tests that all came back normal, I now need a walker even to get around my home. I'd rather risk dying of covid than risk any more vaxes. Recently diagnosed with FND. Hope you find ways of getting better Clarity. You are a very brave young lady and thanks again for sharing your story.

[@clarityromero]

Hi, thank you so much for your kind comment 😊. I got my COVID vaccine in November 2021 but didn’t start experiencing FND symptoms until December 2023. I felt fine after my vaccines, but interestingly, the muscle aches from FND feel identical to how they did when I caught COVID twice. I really hope you find ways to manage and feel better soon too. Sending you lots of love ❤️

[@Carmen-kindness]

Hello you are string, brave, and inspirational. Well, my therapist diagnosed me with FND as a part of or related to my complex PTSD and Dissociative Identity Disorder, but I don't have as much mobility loss as you. Have you been to see a chiropractor? I go every three weeks to get adjusted and it very much helps me with my mobility even though I have seizures every day. When I don't go to the chiropractor because I can't afford it, I can barely walk at all. So the chiropractor helps me walk pretty great without any mobility aids. Often my hips, legs, feet and sacrum are out of alignment along with some other bones in my spine. I use Activator doctors as they are gentle enough to cause the least amount of seizures during each adjustment. Low force causes less seizures than high force. Activator doctors use a low force tool that is a spring inside a tube that they push a button to release on the bone to move it slightly so it goes back in its proper place. Then you should try to let the seizures come as you adjust to the adjustment and walk around without carrying anything for awhile to get used to it. And stretch gently with hip circles and arm circles. Go on the Activator website to FindADoc. I usually have around 7 bones out of alignment each time I go. Also please see a therapist to find out if you have Dissociative Identity Disorder and/or autism as the functional neurological disorder is often co-occurring with these and that means treatment for them can help the seizures go away. My therapist expects my seizures to go away after 2 years or so of EMDR therapy and parts work to integrate my DID parts. EMDR stands for Eye Movement Desensitization and Reprocessing.

[@masterculturedunkerque7918]

Try tms

[@profa6479]

nice video give me a heart

[@clarityromero]

Here you go 🫶

[@ila9063]

I became disabled overnight with FND at the age od 21. It took everything from me. I had to quit a professional sport career and give up on my dream of studying medicine. I'm 32 now and still haven't recovered, unfortunately. I relate strongly to your comment about looking at others through a window as I've spent many years doing just that.

[@chitchat..........]

I've got no idea how you feel. Everyone who's healthy if said "I understand" is BS. My opinion as RN for 25 years is to go and find a Psychologist to help you accept the new situation and adapt to that. You are very young and you can do everything you want in a different way. I wish you all the best ❤

[@clarityromero]

Thank you for sharing your story. I can’t imagine how hard it’s been but I’m glad to know that my story resonated with you-we don’t have to go through this alone. Sending you so much love ❤️

[@ila9063]

@@chitchat.......... I have a therapist that I see regularly but I'll be honest, no amount of reframing helps when the reality of the situation is that so many things are simply out of reach/not an option. It's hard to deal with this but I'm trying.

[@ila9063]

@@clarityromero thank you ❤️

[@chitchat..........]

@ila9063 I believe you 💯. I have seen a lot in my nursing job. But the young people and the thirst for life together with the new technology is OUR HOPE for the future. Maybe this person (therapist ) doesn't click with you. Also everything needs time and at your age you dont believe that you have. Is hard to believe me, but I am believe in you 💯. You've got these👍

[@camhanguyen9465]

Have they check if you have any parasitic infection for you? There was some parasite only from third world countries where you traveled to.

[@Sam-fp8zm]

eat 300 grams steak, 70 g liver, 130g beef or lamb or pork fat, and 30g lambs brain a day

[@honeybeebusywhatsallthebuz1922]

Were you ever tested properly by a holistic practitioner for Lyme disease Bara Bartonella? the lab that’s trustworthy is vibrant. Please look into. I hope you’re feeling better soon soon.

[@clarityromero]

I havent! I’ve actually never worked with a holistic practitioner before but i’m interested to try. Thank you for the support ❤

[@DeborahGammon]

I have been diagnosed with fnd

[@clarityromero]

@@DeborahGammonI'm so sorry to hear. FND can be really tough, but you're not alone. Take things one step at a time and be kind to yourself. I'm here if you ever need to talk. Sending love ❤️

[@DeborahGammon]

Thank you

[@NoCarNancy]

Low blood pressure?

[@panagiotapap.5989]

Ηave you done the vaccine?

[@clarityromero]

@@panagiotapap.5989 I had the covid vaccine 2-3yrs before I was diagnosed with FND

[@rohinihyde4766]

I was diagnosed with FND - symptoms started a few weeks after my Astra-zen jab. Never had a covid infection. Doctors tell me it could be coincidence- I doubt it.

[@NoCarNancy]

Try protein shakes..high protein daily

[@crystald3655]

That may not help. Getting too much protein can make things worse.

[@ericaaubie860]

YOU KNOW WHAT SO IF YOU HAVE TO WALK WITH A CANE, OR WALKING STICK. ATLEAST YOU CAN WALK. DON'T BE EMBARRASSED CAUSE YOU NEED THE HELP OF A CANE, OR WALKING STICK.

[@NoCarNancy]

How come she'd not shaking putting on makeup? Is there medication for this,?

[@crystald3655]

There's some treatments and some days are better than others.

[@randomperson22789]

Have you ruled out pandas/pans? Many people are being misdiagnosed and get FND diagnosis when they actually have pandas/pans.

[@clarityromero]

@@randomperson22789 I actually haven’t. we’ve tried ruling out other things but will look into it now. Thanks for that!

[@sonyaparkin7841]

💚

[@artbydrkate]

Do you drive?

[@clarityromero]

@@artbydrkate I used to but no longer drive. I have to be seizure free for a few months and will have to be reexamined again till I can drive again

[@LegendJeff]

Was this result of a vaccination?

[@clarityromero]

@@LegendJeff Hi! I can’t say that my FND was caused by a vaccination-the exact cause is still unknown. I’ve spoken to a few medical professionals and many suggest it could be linked to PTSD but that’s based on older theories about FND. It’s a complex condition that’s still being studied, so there’s no clear answer yet.

[@OfficialLucyEggleston]

Please check for PANS/PANDAS. This looks like PANS. hope you're ok

[@aqsasardar1167]

May Allah make this disease as ur chnace to beleive in the creater of the universe Allah Almighty ...may He grant u with health sooon

[@allenlazur5785]

Have you considered medical marijuana ?

[@clarityromero]

@@allenlazur5785 Hi, i’ve brought it up to my GP but she suggested i try other medicines first like antidepressants

[@KirsyTalks]

@@clarityromeroyou didn’t say anything

[@clarityromero]

@@KirsyTalks hi, thanks for letting me know lol! i thought my response got published. i just edited my comment now

[@jamespooler9082]

we are not a conquered people.

[@Ginjuu]

No matter what illness you have, I would like to motivate you to cleanse your whole body. The body has self-healing powers, but these can be limited by toxins. This may also have been one of the reasons why you developed this illness. Detoxify through daily alkaline baths, vegan raw food, physical activity as much as possible, daily enemas and regular colon hydrotherapy to keep the intestines clean and prevent re-intoxication. No use of synthetic perfumes, fabric softeners, aggressive detergents and washing-up liquids, too chemical shampoo, no conditioner. Only eat when you are hungry and only enough to make the hunger disappear (don't feel full). Hypnosis to eliminate mental toxins. No new vaccinations that cause new deposits in your system or cross your brain-blood barrier and cause problems in the brain. Only drink fresh spring water, or better still distilled water and mainly water from freshly squeezed vegetable juices. Depending on your condition, take as little medication as possible (preferably none at all, of course). Of course, it will restrict your life even more and it will be exhausting. But the main reason for illness is our way of life, which is not suitable for humans. And depending on where "toxins" are located or which detoxification organs are overloaded, different diseases/symptoms appear. Incidentally, I am now also on this path. When you do it, you realise how poisoned you were. Do the test and eat nothing but water for 1 day. Your tongue will be coated, your mouth will stink, it will feel funny. These are some of the detox symptoms. Do a lot of research on the internet about the things I wrote. This is important. Doctors don't learn that. But ask your doctor if you can fast for a day to try it out. It's not a walk in the park and will take a long time, but look forward to the quality of life afterwards. I wish you all the best! And more viewers, which you definitely deserve!

[@juliannazajda8883]

what are you on 💀

[@Ginjuu]

@@juliannazajda8883 Much love to you ✨🍇

[@GeologicFM]

Please don't preach this pseudoscience online, especially under a video of someone struggling with medical issues that need to be addressed by doctors.

[@clarityromero]

I’ve heard about a full body cleanse but i’ve never tried it nor researched much about it. I think it’ll be interesting to give it a try and document the process! It definitely sounds challenging though haha but i’m always open to learn new things. Thank you for the support 😊💕💕

[@Ginjuu]

@@clarityromero With pleasure! And if you have any questions during the process, feel free to write to me. The most important thing with water is the conductivity, it should be at least below 90 microsiemens (uS/cm), preferably below 10. Water above 130 has a dehydrating effect and below 130 has a hydrating effect. The lower the value, the better the cell supply and removal of unnecessary substances. Minerals in water cannot be utilised by humans (only 10%) as they are inorganic. The rest accumulates as waste in the body. Humans need organic minerals from vegetables, fruit and nuts. Lots of new information, but you can do it! 💪

[@muslimminds681]

Listen Surah Fatiha every day , it's the cure.

[@tracybeeeee]

Well, if nothing else, the algorithm brought me here, front page. As someone with disassociative episodes, I can only sympathise deeply, but never truly understand. I just hope. For you. For everyone who experiences anything adjacent to this. Despite the all-encompassing loneliness... that's one thing you aren't alone in 🫂 alone together

[@clarityromero]

I got all teary haha 😢 thank you for the kind words❤️ having an illness is difficult but knowing that you’re not alone makes a world of a difference. Thank you so much 💕💕💕

[@jjpaix]

Thank you for sharing your story, you are truly making a difference. I am so moved and inspired by your optimism, tenacity and the beautiful way you express yourself and communicate to the world. I pray you thrive in life and hope you continue to share your life as this video alone really made an impact in mine. 🤍.

[@clarityromero]

ahhh I’m tearing up 😭 thank you so much for your kind words. this means the world to me. Thank you, from the bottom of my heart❤️