what does fibromyalgia feel like?

what does fibromyalgia feel like?
What is your least favorite symptom of fibromyalgia?
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[@814Misslee]

I have Fibromyalgia and you have to make the best of each day..some days are worst than other. Constant pain on a daily. I pray for all of us🙏🏿🙏🏿🙏🏿

[@WarriorQueen1993]

Hang in there, sunshine. I feel your pain, literally. I know it still hard when so many people can't understand. Proud of your strength. Be proud of yourself. ❤

[@nikolajchristov7590]

I only found about fibromyalgia after I looked up why do I get these random pains all over my body, that explained everything, the migraines, the tiredness I had all the time and the fact that sometimes it's really hard to just think normally like my brain is just slow, this accompanied with adhd and social anxiety, some days I just wish I never got out of my bed. I wish you all the best and don't let your condition stop you from achieving your dreams!

[@kimmaddison8686]

I suffer from fibromyalgia it's robbed me of so many days of my life but on good days I try to enjoy life

[@barbc.3093]

I'm right with you dear. Others will most likely never understand or know how strong we have to be living with Fibromyalgia. We got this! One day at a time ❤

[@umairmustafa]

I am also suffering from fibromyalgia... I know how its pain feels like ... You can't concentrate... You can't focus... Always feels tired ... Pain every where inyour body ... Less activity... Poor digestive system... Fatigue .. Tmj ... Memory loss ... Joint pain.... Headache ..... But I never give up I do exercise daily... Eat healthy.... Walk daily ... But seriously.... When it triggers the point The pain is unbearable.....

[@NikkiaSings]

Sending you love ❤️ Happy Holidays to ALL of you who like myself ARE #FibroStrong #FibroWarriors ❤️💯✨👑❤️

[@ashleyofnaath]

I didn't realize you occasionally used mobility aids. At times I've found myself limited in life because of my refusal to do so and not wanting to be seen by someone I know who doesn't know I'm sick. Which is ridiculous because logically I know there's no shame in a mobility aid. You should do a video on the decision to use one, any apprehension you might've had when making the decision, etc. I'd love your perspective❤.

[@Aimee_Esther]

I did do a podcast episode about feeling embarrassed about living chronically ill and using things, such as wheelchairs: kzbin.info/www/bejne/hZzOkIOKqqafrM0 For me, it depends on the situation and where my health is. However, I always put my health first! If I need a wheelchair, I use it. If I need to wear compression socks with shorts, I do it! If I need to have a bulky neck fan, I wear it! It really comes down to focusing on the things I discussed in that podcast episode ^^^ because it is hard not to feel embarrassed with things like this when you look "young and healthy".

[@daffodilly083d]

I also have all of these symptoms. Fatigue and migraines are the worst.

[@Labichota9]

I can relate. We are strong ❤ never give up Queen❤

[@nickbrydie5649]

I've got the help for my fibromyalgia and my health has improved

[@markclouser1590]

What kind of help did you get. I'm at the end of my rope❤❤ Please help me with what helped You please. Thanks mark c

[@stephanis.313]

Yes! I’m curious too! My daughter is suffering with this as well and we have been looking for answers. It seems as though the doctors don’t know much about this condition and it’s frustrating for her and heartbreaking for me to see her go there this. Any help or advice is greatly appreciated! 😊

[@kellygirl912]

@@stephanis.313I would speak to your daughter or get her counseling. Has she ever been sexually? Physically or verbally abused? This changes the way our brains act/think (central nervous system). There are many reasons this can happen to someone but it sounds like she is a child so that is why I proposed the questions. I also Think you can have it your entire life and can be triggered by some event.

[@glamupwithmahi9154]

From where you belong?​@@markclouser1590

[@rainbowvisionart8025]

I'm seeing this while in the middle of a huge flare. Headache, nausea, pain in my jaw (TMJ)neck and shoulders. Getting leg twitches and can't lay still because of the pain and uncomfortable body. My ten year old daughter is in her room and lonely. I could cry.

[@lookbeneaththesurface4376]

Yeah, in a nutshell. Hang in there 🙏 you're not alone! 💜

[@stephanis.313]

My daughter is suffering with that and she lost so much weight and doesn’t have much of an appetite. I don’t know if you’ve experienced that but if you did what were you able to eat that gave you enough energy for the day? I’m really worried because it seems like the doctors don’t even know what to do.😢

[@carmenlacourt6846]

Omg I've been diagnosed with fibromyalgia for a year now and I suffer as well I can't move or sleep pain everywhere in my body. Bless you baby girl I know exactly how you feel. Many blessings to you and your family 🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏

[@shellywerger4221]

I understand! We can do this! Stay strong!

[@Aimee_Esther]

You too!

[@lisa-marie4938]

I have everything you have - trying the carnivore diet. Working well thus far, positive vibes and healing your way

[@donnawyss912]

Can I ask what is on your stomach? It’s horrible to suffer with fibromyalgia. The muscle pains, joint pains,headaches, & I have a lot of leg weakness. And a lot of stomachs issues. IBS & all sorts of pains, bloating, etc. I wish you well. We are some tough cookies

[@Ducky44039]

Wow. Your comment really got me. There's someone else with leg weakness and stomach pain. My pain is so bad. 😢 Sometimes I can't eat for a week. I'm just so tired of it.

[@mrsrimskie5493]

Im having a flare at the moment, i feel like my head is full of lead,and ive been trampled on by a heard of cows, i would give my right leg for just one pain free day!! Its soul destroying!!, on the bright side im not in a wheelchair or hospital bed yet, for that i am greatful !! 🙏🏻 ❤

[@yvonnejohnson1004]

I’m diagnosed with Fibromyalgia, ME, Positional Orthostatic Tachycardia Syndrome aka Pots, Sjogren’s Syndrome, Complex Regional Pain Syndrome after a faint, I broke many bones and I can’t walk, bend my knee and have a dropped foot so I’m now in a wheelchair full time. I have nerve damage, the pain is unbearable. I believe that there’s a connection with these syndromes. My Drs haven’t a clue and they aren’t interested. I’m in the UK 🇬🇧

[@laulauluf]

I can relate the struggle is so real right now 😩

[@Ingles_comAline]

I can relate it stay strong I am trying too

[@glamupwithmahi9154]

I m diagnosed with this too...dont focus on this disease , try to stay active busy and eat healthy , everything will be fine soon ❤

[@englishteadrinker736]

I hate my constant headaches the most. I can laugh at the brain fog even though it’s frustrating. I also hate the lack of energy and feeling exhausted. I feel like I’m wearing lead boots when I climb my stairs but the headaches are the worst 🤕

[@Aimee_Esther]

Agreed! The headaches/migraines are so hard because it's hard to distract yourself with anything. Even trying to watch a movie is so painful! Ugh!

[@nnb02]

Such a good description of the lead boots, limbs feel so heavy!

[@melissanasser9777]

Have you tried a gluten free diet ? Me too I had these symptoms, after going gluten, corn and dairy free I felt so much better!

[@englishteadrinker736]

@@melissanasser9777 I haven’t but could be worth a try. Thank you for the suggestion. I’m glad you are feeling better ❤️

[@melissanasser9777]

@@englishteadrinker736 you are welcome! 😊

[@markclouser1590]

Oh my God I have this. The thing is You look healthy and they think it Is all in your head. I'm at the end Of my rope. I'm in Tampa Florida My gosh if anyone knows a good Doctor please let me know. My doctor that diagnosed me 8 years Died. Thank you so much

[@YTStoleMyUsername]

Hello, i am in Tampa too. So far doctors have been short with me & rushing through appts, constantly recommending more & more tests. I know it must be fibromyalgia as I fit all the symptoms and everything has been negative. I have searched Google "best fibromyalgia doctor tampa" and found ones with good reviews, so I may switch specialists. I may even need to find a new PCP office in the future,but that is a big endeavor. But try researching the key terms online and checking reviews of Doctor's who specialize in this. All the best. ❤

[@flyaprilfly]

I fight it everyday you can get it under control

[@starslit725]

I don't believe mine is very severe all the time or like some other ppl but I know what it's like..I'm sorry you have to deal with this

[@MariChado]

You are a warrior 💪❤

[@millzie.]

Amen to that one

[@mzbeautynixon8154]

The struggle & pain is real but God is real bigger and ans healer i understand and can relate its no fun nor games like everyday in pain for some to think that it dont exist only because csnt see it with thier eyes im peoud of each one of us for still getting up everyday despite pain God bless keep us all im proud of you 👏 🥰 💛 ❤❤❤ pray 🙏🏽

[@No-ke9ok]

My doctor sees all my symptoms but won't diagnose me. I have All the symptoms. Hang in there sweetie and I'm happy you are getting treatment ❤

[@azharmarti]

hey can i ask you if u have like problems in ur life or stress or like trauma if you have it i it anxiety GAD not fibromyalgia they are so common symptoms between them

[@SilverGrizzly]

Stop looking to doctors for a solution.

[@YTStoleMyUsername]

Mine too. Still no diagnosis after extensive testing, Just punts me off to another doctor who also wants to do extensive testing. In the meantime my job, relationship and life in general is really starting to suffer. It's like they don't understand how truly painful and disabling this is. How long until we can get a modicum of help.

[@moxiemedia4350]

It's a diagnosis of exclusion. Many other things need to be checked first, but if they aren't doing any testing or sending you to other doctors, find a new rheumatologist.

[@volkswagenation]

I began to have more bad days than good days when I was 12. I was given the"fibromyalgia" diagnosis 3 months ago and I'm mid-40's now. I grew up in the Canadian west out in a tiny village near a town of about maybe 5000 individuals. Such things as minor aches and pains were of little to no concern. If it wasn't bleedin or broken yer good to go eh!

[@FairyEnergyHealer]

I know the feeling. I have it for more than 10yrs. I can heal others instantly to the point that they would feel deeply relaxed or even floating and their pain reduce significantly, but can't seem to heal myself.

[@nnb02]

Same for me and so many more symptoms 😢

[@CherryDreamer96]

This makes me feel so validated ❤

[@CherryDreamer96]

@aimee_esther - Can I ask what are those patches on your stomach ? Do you have a stoma ?

[@melissanasser9777]

My symptoms were almost the same, I didn't know it could have been fibromyalgia. After going gluten, corn and dairy free I felt better!

[@indigobunting2431]

What helps this? I am so sorry....

[@mariacraft2824]

Archangel Raphael please Bring Healing Green Energy to all who have fibromyalgia pain in their body and Cleansing them of all negativity and pain Thank you God Universe Christ Jesus Archangel Raphael 💚🙏💖😇😇😇😇😊🌟 Amen 💖

[@karishmajan-fg3iy]

I have chest pain

[@jenniferhawks1160]

I wish I knew why my body stays extremely sore! Even my face!!!

[@Stephan_W_Machliner_visit_m_FB]

ToP !!! ;) Sleeples, muskle pain...

[@victoriahouse9969]

Had pain on right hip this morning. Made walking a bit harder.

[@stylishsasama1663]

Try the botox in the jawline it make my brain think better and remove the head pain

[@moxiemedia4350]

Have you read about neural therapy? That may be as helpful, but for far cheaper.

[@moxiemedia4350]

Are you getting treatments as an inpatient? Is something working for you? In solidarity 💜

[@schigara]

Please do a quick search of Sally K Norton and oxalate poisoning. It is the cause of fibromyalgia.

[@needles1975]

you should read Janet G. Travell, MD, Mother of Medicine MOST Important Soul Next to Hippocrates

[@user-eo9qd8zx4w]

Dr emuakhe is an epitome of good treatment,the doc has every criteria to human health..

[@NurseMarshaC]

Please find a women’s center that does saliva hormone testing. I suffered for 12 years with this diagnosis and correcting my progesterone was the root cause. There’s always a root cause. Pain isn’t just a diagnosis, it’s the body’s warning system. Fibro (fibrous) my (muscle) algia (pain. There’s always a reason. Don’t stop until you find yours. Also be sure to eat mainly one-ingredient foods. There’s so much junk that our bodies have to fight against. I’m 15 years well this month!

[@lismendes1095]

How is fibromyalgia diagnosed ?

[@SilverGrizzly]

Dr. John Sarno

[@endykurniawan4638]

Same with me in 2009 ,but i cam survife until now

[@miserablelife8728]

Can we be friends.??

[@PrettyEyesz]

I have all of these symptoms how do I get my rheumatologist to test or confirm Fibromyalgia?

[@moxiemedia4350]

If you have one, ask them if there is anything they would want to exclude first. There is no test for it, but it's helpful to rule out many other things.

[@PrettyEyesz]

@@moxiemedia4350 thank you.

[@bettyngo5295]

What GI stand for

[@chocfactory4390]

Gastrointestinal

[@chocfactory4390]

Stomach issues , bowel and bladder

[@annaeriksson5065]

🧶

[@evegreen7604]

Certainly don’t need to be in a wheel chair

[@emilyb.strong6160]

When you pass out from pain trying to put all of your weight on your feet, you need a wheelchair. When you can't walk because of pain and have children to chase and keep up with, you need a wheelchair. Believe me, a wheelchair is used for more than just broken bones or paralysis.

[@YTStoleMyUsername]

I don't know her reasons for using it. but some 8-10 yrs ago (before I developed obvious symptoms of this disorder) I had an episode at home where I stood up from the couch and collapsed. I literally could not use my legs at all. My ex took me to the emergency room and had to get a wheelchair to bring me in. They ran tests to check for a blood clot/DVT, which was negative. I don't think they ever figured out the cause, but I had to use crutches for a few days. Now that I've had a couple other incidents of severe calf pain (checked again for blood clot) and more recently widespread muscle pain all through my legs. I wonder if it's all related to the development of fibromyalgia. Maybe others have similar episodes where they collapse, or their unique symptoms get so severe they are unable to walk. Regardless, I would fight the urge to judge unless you have more information. One day life will give you a crash course in empathy and it may not be so easy for you.

[@moxiemedia4350]

Are you a pain management specialist or a rheumatologist? Did your parents raise you with such great empathy that you can feel someone's pain levels, or was it the audacity to be dismissive of other people's experiences? Grow up. Be embarrassed.

[@SDteam_Co]

I’d you don’t mind my asking what was it like getting diagnosed with fibromyalgia? Who suspected it your or your doctor? I’m asking because we think I have pots. I have every symptom except for syncope. But I also know that fibromyalgia can sometimes go hand and hand with Pots. So I’m just curious. Because I have all of these symptoms you’ve listed and I’ve done quite a bit of research on the condition. Thanks. 🩵

[@glamupwithmahi9154]

Chronic and persistent pain is sign,