All you need to know about polymyalgia rheumatica - Online interview

[@heidischulze4057]

Very succinct explanation. I do think that, since you cannot feel this pain, the debilitating pain and stiffness from untreated PMR (at least for some of us) is not recognized (or my healthcare providers simply don't care, which is what it seems for some of them). After 6 months of being barely able to sinfully manage basic personal needs while never leaving my house, doctor #5 from a different medical group stopped ordering yet another test and instead made a diagnosis based upon my history during the first visit and prescribed prednisone. The relief even a couple hours after the first dose brought me to tears. The fact that we manage to drag ourselves to your office for a visit does not mean we are okay. If ever you edit this otherwise excellent video, please emphasize that the simple force of gravity is causing a background amount of pain and it gets worse from there.

[@julianavillanueva7385]

I suffered for months and even with the blood test with high inflammation I was told to take over the counter. I was suffering for no reason. Plus the biggest problem is the availability to see a doctor. They are still playing the Covid , when making room for patients. Covid was my trigger.

[@theusconstitution1776]

My story exactly the prednisone was a miracle the next morning however, six months in the side effects are almost as bad as the pain so we’ve tried two other medicines. I’ve reduced the prednisone from 35 mg a day down to about nine and I understand that this could go on for a year or a year and a half before this goes away on its own. They don’t have any medicine that stops it and cures it. They can just help cover the pain. I hope things go well for you.

[@AkingBones1]

​My trigger too@@julianavillanueva7385

[@Richie07a1]

Congrats...we belong to the 0.5% club of people that suffer from this illness. How did I get so lucky

[@Richie07a1]

@heidischulze4057 I managed with this for about 3 weeks until my doctor saw me and knew right away what it was. I don't know how you managed to do it for 6 months.

[@monikacordery11]

I’m so relieved having found this excellent talk by Dr. Hughes. It has helped me so much and has taken most of my fears away and given me hope. Thank you so much Dr. Hughes

[@RinpochesRose]

I was 54 when I got a first major symptom and it then developed over 6 months until I couldn’t walk properly or get up /sit down. The pain was bizarre and intense then eased for a while before returning. I think I had symptoms earlier but thought ‘ this must be the menopause’ (which I was also going through). I decided against steroids and managed with time off for 4 months and ‘taking care of myself’. After 2 years it had eased hugely and I had done very well (imo) to keep as mobile as possible. But it changed my life and I wouldn’t wish it on anyone. I think mine started with undiagnosed anaemia and a bout of flu in combo with bereavement stress. I had never heard of PMR and I think it is underplayed as it’s typically an illness of ‘older females’ and we ‘just get on with it’. 🤦‍♀️

[@amidoll3983]

Best explanation of pmr and treatment . I got it at 62 , on steroids just over two years and it had gone completely

[@annturner4830]

Hi Ami Are you saying that you are off steroids now and your PMR has gone ?

[@dorisdepinar21]

I was diagnosed in January 2021 and it went away in September treated with Prednisone for 8 months. This September 2022 it came back and I’m back on 10 mg of Prednisone. Hoping and praying this is it. Crazy disease!

[@amidoll3983]

@@annturner4830 yes Ann I came off steroids Rey slowly, 2 yrs three months on them and stopped December 2020 and completely gone for now anyway , each time I dropped dosage under 10 mg I had aches for maybe a week or two and even when I went from 1/2mg nothing I still aches a bit for a few weeks then suddenly realised I was no longer aching, wishing you the same

[@annturner4830]

@@amidoll3983 I am really happy for you . I can’t wait for my day to come I am free of this ( fingers crossed ) I’m coming up to 2 years now . I was on steroids for just under a year tapering 1mg a month under doctors instructions but since I finished in August this year it’s come back . Wondering after listening to your story that was to quick .I was so upset and didn’t want to go back on steroids as had so many side effects . I don’t think it’s as bad as last time and so far I manage on paracetamol . Hope you stay well Ami . I have two friends that had it many years ago and it’s never come back .

[@NickC341]

could you exercise ? swim, gym type stuff?

[@SLOScripture]

This is the best video I have found regarding PMR. Thank you for understanding and describing it so well. I am in the US, and because my inflammatory markers are not raised, and I am a very youthful 64 year old, my doctor is very reticent to treat me for with steroids for PMR. I have been trying a keto diet, but I am still experiencing the disability of PMR. One thing that would be good for Dr. Hughes to speak a little more on is the rising number of people under the age of 50 with this condition. It does mainly strike people 50 and older, but I am in a PMR Facebook group (with people from mostly the US in the UK) and there are plenty of people under 50 with this. Hundreds in the group are under 50!

[@bluwtrgypsy]

Tammy I am 71 and have had it for 2-1/2 years. In that time I have slowly (very slowly) improved. From10mg prednisone to 1/2mg recently. I am a vegetarian and have become very careful of my diet. No sugar, alcohol, wheat, gluten just to name the biggest culprits. You want to have a non-acidic diet. Eating Keto is acidic. Perhaps becoming plant-based may help you better. Non-inflammatory foods are highly recommended. Best wishes

[@Fldavestone]

I have pmr I am 64,was diagnosed pretty quickly by my v.a. p.a..I am very thankful to them.I got it and bels palsy a couple months after covid. Took a couple months of increasing lain in my shoulders hips,and neck,until one night i could not move any parts of my body without severe pain. Coming off descending Prednisone now,but also radically changed my diet,which really accelerated my healing.

[@seona6549]

What was your diet change, if I can ask?

[@peterholmes5217]

I have PMR and this is the best summary of the condition I have seen. Thanks.

[@pascualetx]

Great video! Thank you. I was diagnosed preliminarily today and everything my doctor told me, you confirmed. My blood work will confirm hopefully. It’s good to know what I’ve been dealing with, and that it’s treatable.

[@hays9008]

It took 3 years to diagnose my pmr. Ouch! They kept saying I was too young 52. Blood was postive at 55 and then was so much pain. Took 25mg pregnisone all symptoms gone 36hrs. Now trying to get pregnisone dose correct. 10mg was good but when I went to 8mg symptoms returned. I lost my job I was completely incapacited due to this illness. I wish they had listen to me. Nice talk.

[@joglou7247]

Yes every down dose you do will reignite your symptoms to it's original intensity & it can feel like you are starting over again. & as your dose gets lower the time it takes to get relief from that dose takes longer too but don't be discouraged that's just the gradient it takes, although from 10 would have probably better to go to 9. Keep at it, & go at Your pace, the pace that suits you. Some people recover very quickly & some take a bit longer. Understand also that steroid meds are not a cure they only offer relief. Being conscious of your lifestyle, stress & food intake is a must. They say that this is not a food related condition but I find that gravy ,some bread products & certain fried foods have a definite effect on my symptoms. Hope this helps

[@antionettewardell2151]

I was just diagnosed polymyalgia rheumatica yesterday by my primary. My symptoms started two years ago. One was chronic fatigue, depression, pain in my neck and shoulders. I thought it was something else until this month it went into my hands. It hurt so badly that I went to the ER that day. My mother had it and now I have it. I am thankful I know what it is and it is treatable. Thank you for your video in helping me understand this condition better.

[@kathleenbradley2433]

This is the most informative video I have watched. I was diagnosed 3 years ago at the age of 51 the pain came on one morning and it was so intense I couldn’t dress myself couldn’t lie down in bed on my sides I can only sleep on my sides so I was having very little sleep. I had an active job I struggled to keep. I have had this condition for 3 years and refused steroids. I find CBD oil I buy from the health shop extremely good for the pain in my shoulders and neck. I have always been an active person and this condition physically drains me but I push through it refusing to be worn down but it does affect my mood I can become miserable and irritable. The pain now goes into my hands in the form of mild electric shocks and I have a low grade fever every evening so I wrap up warm even in the summer. It’s difficult to explain this condition to others as it’s invisible and I look fine but it is a life changer. I refuse to let this condition control my life but it’s very difficult when the fever kicks in and I’m in bed at 8.00 in the evening instead of going out enjoying myself. I would say it’s aged me in that way. I’m only 55 years old.

[@judithvilla6026]

Thanks for posting I don't feel so alone! I could have written this myself.

[@peteperic1783]

Hi Dr's should xplain the sides effects from taking these steroids I'm shore you would appreciate my comments ,GP s are not fit to treat this condition.

[@billburkart8527]

Thank you for this video, very helpful. I was just diagnosed, and the journey begins.

[@quake2u]

Make pain your friend because doctors are useless they will just give you pills that kill your liver.

[@sandrabeck8788]

I had absolutely NO PAIN up until the age of 71, right after my sister died, whom I did hospice for in her last year. Two months after she died, COVID hit. I became so painful I could not imagine what was happening. Finally went to my GP and she diagnosed it. I’ve been on low dose Prednisone the last year, but once I got down to 5 mg/day the pain got quite a bit worse again. My blood tests have been great. Even bough I feel 99 years old and awful.

[@cbryce9243]

I was put on low dose in the beginning and it didn't help. Lucky for me, I herniated two disks and ended up in the emergency room where they prescribed high dose prednisone. Being on it for a month or so, it took the PMR away for good. Seem that sometimes doctors don't believe their patients; I hope you can be extra firm and advocate for yourself. I've had to get mad a couple times, sadly that's what it takes for some docs. It sucks being in pain.

[@agvision09]

I hope you're still doing well! I'm 71 also, 4 weeks ago I was super fit one night next morning I couldn't move my left arm with the shoulder pain 3 days later the other arm and 3 days later my upper part of my legs!! I'm so glad you mention your diet because 10 days ago I started the carnivora diet, meat eggs and butter only and I'm already feeling better!

[@yasminabrar3798]

very well explained,i am patient of polymyalia, one must avoid process foods, red meat, sugar, bad oils, it has helped me alot

[@Richie07a1]

I'm trying the same thing. When did you notice a change or how long did it take?

[@joanneschiebel8912]

Excellent video. I have PMR treated initially with prednisone and a weekly injection of methotrexate. Had a relapse, same treatment as before but now only on weekly injections of methotrexate and no steroids. Monthly bloodwork to monitor the effects of methotrexate on the liver. My mother had this at age 65 as did I. I am in year 3 and hope to stop treatment again and see what happens.

[@giggino342]

Great Post Rod Hughes. Thank you 🙏

[@knotqueen2419]

In terms of symptoms, what is being described is spot on. However, the lab tests, pos ANA (Scl-70), RF, high normal range ESR, and a very high CRP that dropped down to the normal range after a few months have me confused. MDs currently sorting it out. In the meantime, I am in the most uncomfortable pain I have ever experienced. This all started after having COVID last November. I hope that anyone else suffering finds relief.

[@monikacordery11]

Mine started also after having COVID

[@bridgetcampbell8491]

How old were you, when your symptoms started. I am convinced this is what I have after having Covid, I have been suffering for almost 12 months. Rheumatologist wants me to take 800mg of Ibuprofen a day, I'm 37.

[@jamescoughlan8193]

Had all the shoulders arms knees hips etc but also swollen hands and fingers very painful and restrictive.

[@faith-dwoods]

my husband had hips shoulders neck upper arms and severe wrist pain in both arms

[@susanduck8796]

Outstanding. No one ever told me why my arms are unwilling to hoist my saddle, brush my hair or fold my laundry. I never agreed to use steroids. I seem to wax and wain with symptoms. I do use an infrared sauna most days and it helps me. Initially I was very sick with PMR; however, today am living with it and finding my way to live the best I can. Thank you so much for this video.

[@GoBillGatesDE_POP_U_LATE]

I'm not on steroids either. Had the inflammation affected your heart , lungs or kidneys? Like a high BUN creatinine?

[@EugeneParham-b6e]

I’ve had PMR for 14 years and never been able to taper off.

[@ThunnusAlbacares]

I just finished my 3rd run of PMR with Prednsiolone, just short of 4 years with it, After weening down (starting at 25mg) and decreasing from 10mg to 1mg by 1mg a month, i end up feeling back to normal, stop Prednisolone, and then within 4 months its back again, and now after being off the steriods for about 5 months now, its back with a vengance. (i'm 67 now) So to me its looking like there is no end to this cycle, I was a very active farmer, and becoming less active everyday unfortunately. And attempting to sleep is something i do not look forward too each night.

[@natalielamont6955]

See an Ayurvedic doctor to treat the cause of this disorder. It is a Vata imbalance.

[@kalsangdoelma4635]

I do avoid to take Prednisolon, because I didn't hear about any successful healing with this medication. What really helps me is Colchicin and a strict raw-vegan diet without any oil. All my best wishes to you 😊🍀

[@billybloggs9667]

Excellent advice from an expert.

[@NQR4real]

Thank you for making this informative video.

[@dannettesavas3269]

I was blessed my doctor looked at me and in five minutes told me I had it but she only put me on 2.5 mg of prednisone and I’ve had this for three years now but I also have scoliosis so I’m not sure what’s going on. I believe now I have some pinched nerves so everything’s happening back there but this was an excellent video and I have that temporal arteritis and that just happened like a week ago but I didn’t know I thought it was a migraine so I’m making an appointment to go see the doctor

[@melaniestewart3890]

Thank you for such an easy to understand and reassuring explanation 🙏🏻

[@Marrabone1]

Thank you so much. I've just been told it is the most likely cause of my pain and this talk has helped to put my mind at rest about the issues with steroids etc.

[@gillespiegail]

I’ve had PMR since March 2019, was finally diagnosed February 2020. Started on 15mg prednisone, 1st day of taking I could move again, although it’s only lasted for five hours, until I took the next days dose, again, a few hours of respite. My symptoms never went away fully, I never managed to get back to employment and have a completely different lifestyle now. It has taken me a long time to come to terms with the fact that I will never get back to the active person I used to be. January 2023 I lost my sister to a brain tumour complicated by her long-term use of steroids, (Crohn’s disease )watching the pain of the effects of the steroids put her through, has put me off ever using steroids again. 4 years with PMR with no signs of it getting any better.

[@mander0505]

Have you tried anti inflammtory diet also known as Mediterranean food? For me with diagnosed PMR since 2 years, i have been able to cut down the prednisolone to 1/2- 1/3 and general symptoms has partly gone away. Following the diet can make a change and it´s worth trying in in everyday life.

[@Christina-uh8xk]

Oh wow! Finally someone explains what is wrong with me! I have been suffering for years.

[@JoBroughton-yw7un]

Tell me about it same here I am 18 mths in

[@kalsangdoelma4635]

What really helps me is Colchicin and a raw-vegan diet without oil which is recommended by Clint Paddison. It may has not a total relief right now like Prednisolon and takes longer. But Colchicin has in my case no side affects. Best wishes to all of you 🍀

[@raylenemackay6867]

U hit home with a dog. I received cortisone to shoulders, hips and knees. Then out of blue i couldn't lift legs or walk. My gait is slow. Very painful. Also diagnosed with fibromyalgia , no ibuprofen as i have inoperable triple vessel disease with diffusion and given not much hope. I have a wonder orthopedic surgeon who recognized it. I must do the blood work. He was stunned saying it as im only 56

[@alangardner8596]

I had PMR 3 years ago, I am now clear of PMR. 3 Years ago I was a fit 77 year old, went to bed and woke up crippled with pain. For months I took the prescribed medicine from my doctor and of course began to suffer side effects from those drugs. I decided to quit the drugs and look for another way, there must be one. I learned about modern diseases and their causes and although PMR was not mentioned in the list it must be one of them. I eliminated sugar from my diet and also vegetable oils and ultra-processed foods, the result was not immediate bug gradually the pain subsided and also I just felt fitter and more active. I also began eating olive oil in my diet and be very careful only to eat natural foods. I'm now nearly 81 and getting my life back together again, I can walk 8 miles or even 12 miles in a day. I would never say stop taking drugs but don't rely on drugs when there are other ways to gain good health.

[@kandacepatterson7965]

Same symptoms and onset...alread do not eat processed and no sugar.and still have it. Its not dietary

[@alangardner8596]

@@kandacepatterson7965 Vegetable oils (seed oils) are highly suspicious for the cause of many problems. If the toxins are built up in your body don't expect them to leach out quickly, it takes some time. You could try avoiding lectins. Lectins are a spikey protein that can attatch to your gut wall and tear it. They then allow toxins to enter the body causing inflammation and it's associated problems. Lectins can be found in wheat, nightshades and beans. I also eat oily fish often but not farmed salmon. I also add olive oil to my diet. I'm 81 and yesterday I had to wait several times for my 29 year old companion to catch up with me when climbing a large hill.

[@jeffswaney3444]

Excellent video !

[@orielgb]

The best description of PMR that I've heard so far. My G.P. Says I have it for life, but I do hope not.

[@yvelaine]

I got it after covid jabs in June 2021 …. 67 female ,, white ,, . I took steroids , now down to 5 mg daily ,, though much better , I am still aching while walking or lifting , depressed , not working properly ,,and very very tired .. sleep at least 12 hours a night plus a nap .

[@sandrabeck8788]

Glad you can sleep. I’m older. Sometimes an issue, sometimes not. The pain and stiffness is always.

[@sandrabeck8788]

Glad you can sleep. I’m older. Sometimes an issue, sometimes not. The pain and stiffness is always.

[@ariesandstars]

Me too : the 3rd mRNA BioNTech jab knocked me out in November 2022. But no one believed me. Doctors don’t compromise: they don’t risk it out to lose their license. In February 2023 I was almost paralytic. Couldn’t sleep with pain in the shoulders, and legs. Crippled! Nothing worked: and the doctors and I tried everything, except steroids and autoimmune suppressants… Which I wanted but they did not… Finally prednisolone came, in May, requested by me since Feb. 2023: 15 mg a day, plus Metotrexato once a week, and folic acid the next day once a week too. And I’m happy now, though I know my eyes are slowly getting glaucoma, my body is retaining fat, my heart working harder… The mRNA vaccine turned my immune system against me. A pity that I have no means here where I am to sue them for compensation, but specially to force them ( the pharmaceutical industry, the deep state and the establishment ) to stop the slaughtering of people : they should have made safe vaccines . I know that a they are protected , and am I to challenge them? : I signed the authorisation to get the vaccine and I was informed of the possible side effects.😢 I was unlucky! We never think that it will happen to us, but it happens! I wish they could have tested me and others first to avoid this reaction, and so many other victims of the vaccine. I can’t express how much I’ve suffered, and worse: how much their indifference hurts! So hard to forgive! I will never anymore take a single antivirus vaccine!

[@sheela8076]

I have similar symptoms, but being treated for RA. My crap is 12, ear 77 anti CCP/CNP more than 200. I am on methotrexate 15 mg leora 20mg but not much relief. My doctor insists it is RA and not fibromyalgia. Can they both overlap?

[@faith-dwoods]

learned so much my husband woke up about 3 months ago in terrible pain We visited the ER and the doctor suspected PMR So here we are now after Blood test, MRI's and lots of severe pain We meet tomorrow to discuss treatment beyond pain pills Why does it take so long???

[@Richie07a1]

I guess I lucked out cuz when I saw my doctor and explained my symptoms he immediately gave me a prescription for prednisone which I got the same day. Pain was gone within 3 hours.

[@lancepage4840]

The best explanation online

[@nonegiven9579]

Very helpful, thanks. 15 mg of prednisolone took 2.5 hours to bring me back to feeling normal. Prob is that 4 years on and I've only managed to reduce to 4 mg and that's not really enough to clear all the symptoms.

[@Richie07a1]

I'm currently on 15mg as well. Are there any side effects after 4 years?

[@gurugnorm]

Following an anti inflammatory diet will help immensely. You aren't suffering from a lack of steroids. Try the Proper Human Diet to remove the causes of inflammation.

[@bluwtrgypsy]

I disagree with the comment that no diet can be helpful. a plant based diet absolutely does help. It has helped me. A non acidic, no sugar, no wheat/gluten diet helps. Fresh fruit, vegetables, grains are highly recommended.

[@sunnyh2334]

I disagree as well, went on carnivore and saw immediate improvement, if I eat greens it’s very painful, if I eat starchy veggies I get a different type of pain (not as sharp), after your comment it makes me think there is something stomach related to this inflammation but the cause of that must be different for different people. So it’s worth experimenting with diets to find what works for you.

[@agvision09]

@@sunnyh2334 I got this awful pain 4 weeks ago on my shoulders and then went to the upper part og my legs..I started the carnivora diet 10 days ago and I already see an improvement! My husband, diabetes 1, started the Carnivora 4 month ago and intermittent fasting and is off insulin and blood pressure meds. DIET IS NUMBER ONE!

[@boru1326]

If you get diagnosed w polymyalgia and actually do a year of treatment, is it actually possible to get off all prednisone and be cured of the pain ? I don’t see any videos of people who went on it for a year and are then pain free when they stop. I just got this over night. Thank you.

[@theusconstitution1776]

How are you doing now? Seven months in or maybe longer mine has been going on for coming on seven months now started with 35 mg of prednisone until I couldn’t stand the side effects from the prednisone anymore after you’re on it for a while a couple three months the side effects Become as miserable as the pain of the PMR! Let me know how you’re doing and if it’s gone, what cured it? I wish you well and I hope it’s gone.

[@boru1326]

@@theusconstitution1776 Oh boy, you may not believe it but I'm pretty close to pain free especially compared to the mess I was 7 months ago! I hope you are doing ok. Here is my story to date, I apologize its not a short story, lol. First I couldn't get an appointment w a Rheumatologist for 4 months when this hit me so I needed to figure out some way to stop the pain I was taking about 1200mg of NSAIDS a day and although that was working I believe it gave me tinnitus which was as bad as the "PMR", I've since had 2 Rhematologist visits and they still haven't diagnosed, they wanted to put me on Hydroxychloroquine and Methotrexate..."NOT".. In the meantime and previous to any Rheumatologist appointments I went down the youtube rabbit hole. I found a video of a guy that did a water only fast for 7 days and cured himself , I was blown away by this and I was in so much pain I was willing to try anything so I contacted the people that supervised his fasting... and I did it, 7 days started feeling way better but not cured so I did 7 more and then 7 more... I fasted for 21 days and improved about 60 % which was way better than where I started, But not good enough for me. So then I was told I would probably be able to cure myself while reintroducing a whole food plant based diet, no dairy, no meat, no oil... not ever again! I was told what I needed to cure was "leaky gut" which caused my immune system to fail and turn on me. I have stuck with this diet religiously, I am now about 85 to 90% better and improving everyday, although I can easily live w the small amount of discomfort I now have... I NEVER took the drugs... I took and NSAID here and there maybe 5 times in the last 4 months... For the last 3 months I've been able to walk my dogs 2 100 plus lbs one is 130 lb Spanish mastiff and only 3 an angel but an absolute brute to walk on a leash. especially since my shoulders were in pretty bad pain to begin with, started w 1 mile walk now we are at 4 miles daily, this week I started back at the gym as well, my gym has a pool and I am a swimmer.. I swam 3/4 of a mile in the pool without stopping yesterday... then walked the dogs 4 miles! and slept like a baby with zero pain, slight pain when woke up, slight discomfort the. I stand after sitting at the computer for over a hour. Still improving every day. As you can tell I have a lot to say about this so apologize if this is more than you wanted to know. My Name is Jeremiah and one of the guys that helped me made this video about me. kzbin.infoTyP1_Z593M4?si=yFomNG7n9th-vRDp here is the video that saved my life kzbin.info/www/bejne/qHXRgmawfdKaiZosi=JzgfqWEE9sgAyCmZ here is another that saved me kzbin.info/www/bejne/eHjTlqCIq7ypY9Usi=uVGezzx5TXQrHRvq this is the guy I owe my success to kzbin.info/www/bejne/fWqZhmRtnaZgfKssi=dQOpBzBE8Xjz9j34 God Bless! keep me posted, If I can do this anyone can! I never took the drugs!!!!

[@boru1326]

if you want the contact info of any of the people that saved me I can easily provide that.

[@GoBillGatesDE_POP_U_LATE]

​@boru1326 Well that's way better than that carnivore diet everyone says cures them. Proof you don't need meat. I don't think I can fast though. What's wrong with hydroxycliroquine? I'll have to check out your links. Thanks for sharing

[@boru1326]

@@GoBillGatesDE_POP_U_LATE , strange it looks like my original comment was deleted, THEY don't like people who saver themselves without the pharmacy! Nothing is wrong w HCQ if it is working in my opinion as I have become more educated on these matters seems like if HCQ works you are lucky because it really has minor side effects but its always nice not to depend on anything from the pharmacy if possible, but first thing is stop the pain. But when it comes to MTX and prednisone that's a different story . but again MTX is better than prednisone as far as health goes. But strict plant based zero oil diet and vigorous exercise when the pain stops is a must. I'm now in the best shape I've been in in 15 years , wearing 20 year old button fly Levi's . I went from 289 to 202 lbs. I feel young again . I'm 57 feel 35 and 9 months ago I felt like I was 90 and needed assisted living.

[@cbryce9243]

I was told I had PMR, but my symptoms were not as you describe, and I am not convinced it was PMR. But I was treated with high dose prednisone, and I get better. When I tried to walk, my legs became stiff as stone and I was not able to walk until they relaxed. And I was not able to put up my hair, plus I was very winded when walking, especially upstairs.

[@coolegarry]

I had that winded breathing also, I call it breath hunger. Mine always kicks off in May and winds down in Sept or so

[@goodheadguitars2247]

Diagnosed with PMR 6 months ago, symptoms came on one week after having Covid and flu vaccines on the same day, no way of proving if this was the trigger but I’m not ruling it out. Initially put on 15mg of prednisone which stopped all symptoms in four days flat. After 5 months the dose was decreased by 1mg per week until I was on zero after 6 months. One week after stopping the prednisone the symptoms are now beginning again, can’t help thinking I was taken off them too soon.

[@pinarustun]

I am a generally pretty healthy, active woman, windsurfed and swam this summer, and all of a sudden, got it over 48hrs , most probably after `an infection, after Covid as well. Until they gave me the meds, I took anti-inflammatory, voltaren, and even the antibiotics.. I lost 4 kilos, lost muscles and could not move out of bed, walk or even chew. I could not even use the tooth paste tube, no strength at all...only got up with my husband's help. I was lucky to have it diagnosed within the first two weeks, and started taking Prednisolone 40mg, then lowering down to 20mg in one week, still on them. I think I also have the Temporal Arthritis which started together, I felt very tender crane, very hardened jaw, could not chew and very bad vision...feeling better..definitely very bad stiffness in the morning and then gets better by noon. I have no headaches, no fever. I had very high aESR and CRP which was over 105. Good point about tummies. You have covered it all Dr Hughes, Thank you so much... Such an incredibly good explanation...Thank you so much....

[@orielgb]

Me too. It's horrid.

[@pamelamaylearmonth1662]

I'm a bit similar. I suddenly woke up one morning nearly two years ago with it. I'm now 76. Luckily the Dr diagnosed PMR straight away based on my severe symptoms and put me on 40 mgs of Prednisone. And the next morning I could get out of bed with no pain. I'd had loss of appetite and depression. Now down to 2 mgs. But had a few flare ups this year. My hands and wrists get painful and joints red and had pins and needles in flareups. So RA is another thing to blood test for. Shoulder and collarbones still get sore and hard to sleep on wearing hand and wrist splints at night helps. Not sure where its heading. I got PMR two weeks after my first Covid vaccination. Had 3 but wont have any more . Had nasty covid bout recently also. Interesting video thanks..watched a few now.

[@audreybrooke7985]

I have PMR and GCA on steroids but now my jaw and hearing as well as eyes are bad . I do have many Autoimmune diseases I wonder if anyone else has these symptoms ? ❤️🇬🇧

[@brendanugent2159]

Thank u best info on Pmr

[@karenhopkins229]

If I have all the symptoms But NO Inflamatory markers. No evidence in an MRI of the hips... Pain increasing, stiffness unbearable in the morning, no meds daiky for 16 weeks 😢

[@giggino342]

My first Covid injections Triggered my Polymyalgia Rheumatica… I suffered for 18 month’s chronically before approaching my GP she acted extremely quickly as I hadn’t been to see a Dr for over 20 years. I am now on steroids with in 2 days my pain went from 10 to 3

[@anthonycelano165]

What makes you think the shot gave you PMR I’m dealing with pmr now diagnosed in July on 10 mg prednisone.

[@anthonycelano165]

@@carolhammill6037 Sounds like you need to find new doctors good luck

[@blacksusan108]

I also believe my PMR was triggered by my first Covid vaccination as I had a bad reaction to it, then the pmr symptoms started in the following 2-3 weeks. I was diagnosed within a month of the first symptoms thanks to a physio I went to for my muscle pain.

[@danacaro-herman3530]

​@@blacksusan108Of course it was, you're lucky this was the only thing these poison shots have caused you and anyone who has taken them

[@Nandymon]

I was seeing a Naturopath who'd recently had Convid, unbeknownst to me previously, also I later found out, recently the jab, also. Both my wife and I caught the Convid, neither of us are jibbbied, a few weeks later, my PMR symptoms started. I'm nearly 70, male, reasonable health , I feel that this dirty naturopath shedded onto me and caused this.

[@RobertWicks-xg4vs]

Excellent video,thank you.

[@maxineobrien6413]

Thank you for this clear explanation so helpful

[@orielgb]

On Prednisone now for over a year. Hoping it will go soon.

[@nathanlester5054]

My PMR began after having Covid.

[@susantolly2827]

Mine did as well...

[@danacaro-herman3530]

@nathanlester. After Covid or after your COVID jab?

[@danacaro-herman3530]

​@@susantolly2827After Covid Susan? Or after your Covid injections? Be truthful

[@nathanlester5054]

@@danacaro-herman3530 After having Covid. I never got sick from any of the shots.

[@danacaro-herman3530]

@@nathanlester5054 You got sick from the shots buddy .

[@margaretjames1579]

I’ve had three bouts each five years apart. Now at 75 I’ve kept it away.

[@Richie07a1]

How

[@hemalathan4521]

Can it effect the knee and foot along with hip and shoulder

[@GoBillGatesDE_POP_U_LATE]

Yes

[@paulholdstock4751]

Thank you

[@peteperic1783]

I have polymyalgia rheumatic trying to cut down prednisone was at 11mg for weeks I'm OK for an hour in the morning I take 10.5mg the stiffness after I taken my prednisone is that normal please

[@Richie07a1]

I have some confusion that I hope someone can help me with. Prednisone helps reduce the inflammation and pain associated with PMR but it doesn't cure it. So what's the purpose of gradually month by month decreasing the dosage if you still have an active PMR?

[@rebeccaaitken2986]

I’m 26 and my physiotherapist thinks I might have polymyalgia, arthritis or something else similar. He is sending me for blood tests. Can people who are 26 have polymyalgia?

[@duketta]

It did leave some permanent damage to my knees which were perfect before.

[@alemtadesse4289]

What if I can stop it after three month’s because of the side effects

[@bob5176]

How to Exercise For this deceased what exercise can we do

[@jalatlaco9827]

If the disease is self limiting within 1-2 years, without steroids, but the treatment with steroids is 1-2 years, what is the advantage of steroids if the pain is under control?

[@Richie07a1]

Sounds like you're paying might be under control. How did you do that?

[@eniggma9353]

The cause is rather vague when it comes to your explanation. I assume it's badly researched.

[@SudiptaAkhter]

Wilson Amy White Cynthia White Donald

[@theusconstitution1776]

HELLO ANYONE ! Is their any better medication other than PREDNISONE ❤️‍🔥😡 METHOTREXATE AND MELOXICAM ALL AT ONCE? It appears the only thing that affects this PMR is the prednisone, but the amount Hass to be very carefully adjusted. Otherwise, if the dose is too high after a few months of the occasional sweating, it works up to your profusely sweating for six hours at a time and you can’t get warm because you’re soaking wet change , all your clothes change your bedsheets no matter what in 10 minutes after you change all your clothes, you’re soaked right through everything pants shirt and you can’t get warm muscle weakness to the point where halfway up the stairs from the basement you begin to doubt that you can make it to the top! Anyone?🙏🏼

[@GoBillGatesDE_POP_U_LATE]

I have a low case of pmr and take excedrin, boswellia and curcumin. Works pretty good , but still have some stiffness

[@maxineobrien6413]

Thank you for this clear explanation so helpful