Are you Afraid of Being a Burden? - Life with MS or Chronic Illness

[@EvenSoItIsWell]

Do you have tips to help with not feeling like a burden?

[@R-skl]

@@EvenSoItIsWell there is no advice, it seems to me everything is individual, I think self-confidence helps me

[@EvenSoItIsWell]

@ self confidence is a great skill to develop and have!

[@R-skl]

​@@EvenSoItIsWellIt seems to me that he is developing himself)

[@marybethcully5883]

I was diagnosed in 1992, the feeling of being a burden fluctuates with how my symptoms fluctuate. My coping is to let myself feel all the feelings for that moment…then I take a deep breath in and out and say to myself okay, what’s next. I call it my 10 minute pity party and get on with day. For me it’s balance of acknowledging the reality but not getting mired in it. My husband is amazing, he steps in before I even know to ask…he reminds me that life makes us shift and that perfectly fine. I work diligently to be as healthy as I can, eating well and doing my PT and getting the rest I need, for him that’s all he needs, to know I keep striving despite the MS. I am blessed to have someone who walks this pass so closely with me.🥰

[@EvenSoItIsWell]

@@marybethcully5883 I love this! Yes, a 10 minute pity party is a good way to acknowledge our feelings, feel them, then move on!

[@stephen9611]

Dear Vickie, I was diagnosed in July this year. Within a month of being diagnosed, I had a very bad relapse. The relapse left me with “permanent” dizziness, double vision and no balance. I thought that I would never be able to be “normal” again. I had to walk with the aid of a walking stick and I wore an eye patch to help with the double vision. I felt like a burden because it was so difficult to get up the stairs at work. My desk was on a mezzanine level and there were no other way of getting up and down the stairs. It was really difficult as colleagues had to help me carry things up and down as it was just not possible with a walking stick. It makes one aware of how much you have to rely on others for their help, and in the process makes you feel like a huge burden. Luckily, the negative symptoms only lasted for 7 weeks. Today, I walk without the aid of a walking stick and I appreciate my colleagues so much more. It is just normal to feel like a burden when you can no longer do the things that you were able to do before. But like you said, MS is the burden… So many buildings are not set up for people with disabilities, and this automatically makes one feel like a burden when you have to rely on help from others. Able bodied people don’t always get it… Thank you for your video, as always very informative and helpful! Stephen

[@EvenSoItIsWell]

@@stephen9611 thanks for watching and sharing your experience Stephen. You are so right, many buildings aren’t set up for people with disabilities. We could add this to what is the burden… “I am not the burden, MS and non-accessible buildings are the burden.”

[@sukijohnson5398]

I have constant dizziness, too! It's hard! I've used crutches for 17 yearrs

[@lorrainedelehanty6428]

You are wonderful and so supportive. I often hear something in your video that tunes up my approach to healthier living. At 82 there is always something to learn to keep on track and develop strength and perspective. ❤

[@EvenSoItIsWell]

@@lorrainedelehanty6428 thanks so much!! I am so glad you find the videos helpful.

[@CharlHeartzChu]

You're just wonderful Vickie! Every time I sit and watch your videos you give me a feeling of ease! You really don't understand how much your videos help! And also your advice on my statuses on FB. You're a wonderful person inside and out! Everyone with MS or immune diseases in general will look up to you. You're so wonderful xxx

[@EvenSoItIsWell]

@@CharlHeartzChu oh honey! You know you are fabulous, we just live with a stinky diagnosis. I am so glad we connected.

[@jackieo1687]

I was diagnosed 4 months ago. Immediately I felt like a burden. My dad told me I’m not a burden to my parents. My best friends also told me I’m not a burden.

[@EvenSoItIsWell]

@@jackieo1687 thanks for watching. Your parents and your friends are absolutely right! You are not! 🙂

[@cassdevericks3422]

Thank you so much for making this video Vickie! 🧡

[@EvenSoItIsWell]

@@cassdevericks3422 thanks for watching Cassi! I hope you are well!

[@k3of5ks]

Couldn't have said it better. Lately I toften think upon, everone has something. Mine just happens to be MS. Thank you Vickie.

[@EvenSoItIsWell]

@@k3of5ks thanks for watching. Yes! Everyone has something. 😉🥰

[@sielenie]

Thank you for the wisdom and compassion in this video ❤

[@EvenSoItIsWell]

@@sielenie thanks for watching! I am so glad you enjoyed it and commented. We all need compassion. 🙂

[@128titanic]

Hello, Thank you so much for tutorial.

[@EvenSoItIsWell]

Thank for watching.

[@thres34]

Great contents as usual. Many thanks

[@EvenSoItIsWell]

Thanks for watching! 🙂

[@R-skl]

I don't feel like a burden.it hurts me that my loved ones think that I can't come up with something, but I'm already used to it

[@EvenSoItIsWell]

@@R-skl thanks for watching. I am glad you got used to it and you don’t feel like burden.

[@sukijohnson5398]

Its hard feeling like im the one who holds others back from doing what they would be doing if it wasnt for my mobility issues. And i wish i couuld be contributing more and helping others, instead of them always helping me. I feel guity for not being able to do more

[@EvenSoItIsWell]

@@sukijohnson5398 thanks for watching and sharing. What you are feeling is completely normal. I encourage you to think of all that you can do! There are so many things we can do that will make the best memories. Like I said, one of my most cherished memories and experiences I had with my grandmother was read the Sunday comics with her in bed.

[@nazilakhademi3754]

❤❤❤thank you

[@EvenSoItIsWell]

@@nazilakhademi3754 thanks for watching and sharing. I hope you found it helpful! ❤️❤️❤️❤️

[@roseanncross6317]

I feel like a burden because my kids do think i am no they dont i feels so alone my family keep saying i blame everything on my ms. And there adults. I feel so alone. Wish i had sport

[@EvenSoItIsWell]

@@roseanncross6317 I am sorry you feel like a burden. I hope you can reframe it to the disease is the burden and have discussions with your children to help them to shift their perspective. You are a valued and love person dealing with a terribly difficult disease. Please try to take exquisite care of yourself.

[@JessicaDent-r9j]

Thats my biggest fear😢

[@EvenSoItIsWell]

Thanks for watching Jessica. It is for many of us. It is not you that is the burden, it is MS. Everyone we love is carrying the burden with us. There is also a lot we can do help ourselves live well with it and there is hope for the future. Did you see this week's video? kzbin.info/www/bejne/eJC5e2igbqlrhpY

[@khalidhuzain]

Can u please tell me how is your food sense like do u taste it? Aur how is your smell i cant smell i feel nothing when i eat or when i smell something i dont know

[@EvenSoItIsWell]

My sense of taste and smell are unaffected by my MS. Is it possible that you may have had Covid? That is common symptom of Covid.

[@khalidhuzain]

Can you please tell me if u can drive with MS? I'm having trouble with even simple tasks studying is impossible for meMost of the time, I experience head spinning dizziness and have weak memory and body pain

[@EvenSoItIsWell]

I can still drive. It sounds like your symptoms are serious enough to interfere with your driving ability.

[@kingmansion6985]

Can i ask why you do that thing with your eyes ? Or just an expression new ms warrior here lol

[@EvenSoItIsWell]

I am not sure what I am doing with my eyes. Could you elaborate? I don't think it is an MS thing.

[@kingmansion6985]

Lol when you look up and left

[@EvenSoItIsWell]

I went back and watched the video again and I think I see what you are referring to. I look up and to the left. I think I do it when I am thinking of the next word to say or how I want to emphasize a point. It has nothing to do with MS. ;)