ARV Fatigue explained | It gets the best of us

[@damalienagujja4793]

My sister has been on ARVs for thirty year and she has never been admitted in any hospital for any case of illness.

[@a.muchemi4360]

After 20 yrs refusing to medication in started and I feel so tired

[@lionheart.5983]

@@a.muchemi4360 are yu stil taking it?

[@janetomari2405]

Did you say 30?it's absolutely God's grace

[@tuwilikaelias9664]

3 days ago, I woke up tired both emotionally and mentally from taking my ARV’s . Thank you for sharing, knowing that somebody else understands what one goes through is comforting..💜💜

[@justinamusyoka4986]

Hope you take plenty of water and exercise.

[@justinamusyoka4986]

Last meal should be at least 2 hours before retiring to bed.

[@mumjoy4091]

Hugs dear🤗

[@molebohengmoletsane1297]

My 17 year old cousin was born HIV positive. Her Mom told her when she was 15 and up until then, she was taking her meds well. The problem started when she turned 16 I believe. She stopped taking her meds and now her health is deteriorating and she's starting to develop sores all over her body and in her mouth so she can't eat and she's losing weight drastically. Things got so bad last year December that her Mom started to actually bathe her. I love her so much and I just want her to be ok. She actually told me that she's tired of taking treatment because she's been doing it all her life. Guys ke kgathetse hle. I've even resorted to bribing her with metarial things just for her to take her treatment but dololo help. I just wanted to vent😭😭

[@justinamusyoka4986]

@@molebohengmoletsane1297 its good showing concern and empathy. There are times i declined taking meds due to frustrations so its good to encourage her and show love.She may end up turning negative. I know its hard to understand for those born with the virus than those of us who got infected and can tell the difference. Peace to your family.

[@phindykhumalo6202]

I started a support group of adolescents born with HIV in 2016 and pill fatigue is sooo real. These adolescents have been taking medication their whole lives and it really does take a toll on them. Thanks for this video and thanks for the reminder 'we live to fight another day'

[@221800000]

Hey. Where are you based I have a niece who would actually use your support group

[@221800000]

Hey. Where are you based I have a niece who would actually use your support group

[@phindykhumalo6202]

I am based in Durban, ZA. My support group is based in Northern KZN.

[@ncumisamzondi6898]

Yhooo Sisi I work at the clinic as a Data capturer it breaks my heart to see these kids suffer from taking these pills

[@zandirachael8326]

Hey. Don't you know such support systems for adolescents born with HIV. I am a nurse by profession and have a beautiful niece who is in her adolescents, she is taking her treatment well but I feel like she can use support system or seeing that there are some of her peers who go through what she is going through. If I could, I would take her status and carry the burden for her. I just want to make her life more easier

[@mamimom2082]

Everyone from Africa is supposed to subscribe to this channel!!!!! This is literally a support group!!

[@nubianqueen4375]

Why everyone

[@redeemablesoul]

Im tearing up🥺🥺🥺i just want to tell each and everyone of you infected by HIV that im sorry for what you are going through..I want you to know that the Joy of the Lord is your strenght.Nozi is the best

[@yonelisazide1819]

Oohh Nozi, thank you for this. I had a lengthy discussion with one of my family members over the holidays, his "why can't I be like other kids?" broke me💔 He is exhausted and hates his pill time. I wish my whole family can listen to this.

[@AmantleMapoka]

this video is helping me grieve the loss of a loved one who passed on at the height of the pandemic last year. i was so resentful that they were refusing medication. but this is giving me some much needed clarity. thank you.

[@Thari_Manhissa]

I absolutely love how transparent and vulnerable you are in your videos, you're genuinely so authentic and refreshing. I am negative but have often been on the end of being judgemental and selfish expecting people to fight even when they were tired. My uncles also passed from cancer, so did my grandpa. This changed my perspective entirely

[@motlatsilinamohlamonyane4398]

This is so informative Sisi. Last part is when you say you need to give the person peace of your mind but then you say it is better to move on and heal. This is forgiveness I preach for you to heal and get better. Unforgiving as another things that cause unnecessary stress. 💕❤️

[@sibongilegome1205]

Thank you for speaking up and teaching so much. It is very much appreciated. Continue doing the good work♥️

[@sukumackenzie8054]

In this day and age there is absolutely no reason to stigmatise HIV thankyou for this channel..you helping many ❤🙏🏽

[@mncedisidlaminibenya7479]

off Couse now it is better if everybody knows his status thanx to Nozi she's so brave

[@msshayflorida]

My God this woman is so powerful with her words 🙏🏾♥️… Nozi you are truly God sent. I recently found your channel not even a week ago and I have almost watched every video you have posted and my God you are so motivating and watching your strength gives me so much strength ♥️ The topics that you touch on are so on point. Praying for your continued strength 🙏🏾

[@pearlmore595]

I have listened to a lot of people talk about this but this one is at another level. I'm learning.

[@kegobotjeng6447]

Thank you. The explanation for the value of patient support for the terminally ill is on point. True, it’s not about the caretakers but the patient. My late brother had cancer.

[@gugulethuzwane5530]

You made me cry Nozi when you shared of your Father's chemotherapy...I went through the same with my mom...the water in the lung ( same)...you are a strong woman and you make me strong each time I listen to you...keep up the good work...love u girl

[@khululwagxekwa9578]

Listening to your videos makes me stronger Sis' Nozi and also seeing someone who encourage us about any kind of sickness it's really supportive.💕💖

[@nolufefesiko7870]

I had pill fatugue when i was pregnant. Taking pills everyday can be really tiring. Love and light to everyone who is on chronic medication 😊❤

[@hildadhlakama2339]

Thank you for mentioning chronic medication. I take pills for diabetes and sometimes it's emotionally draining

[@chimfwembedipa9531]

Does the fatigue end , am going through the same thing in my pregnancy Nd the diarrhea is becoming even worse, I really want to know if it ever ends

[@pheladithobakgale3509]

I found this very motivating, besides the chronic illness issue, it's also about fighting for one's wellness, healing and being kind and understanding to other people and the decisions they take. Thank you, felt the passion and fight

[@virginiathebe4714]

🙏

[@keabetsoemokoka2235]

Hey sister, may you continue sharing this could help many of us, affected and infected, we should learn not to be quick to judge. I salute you my sister.

[@zimasamanyotsha3899]

I can listen to this woman all day and night ♥️😔

[@khuselwabeaulahngece3404]

Me too yhaz

[@losper5291]

Yoh I can not find a comment section on my page..She made me feel so strong and not afraid anymore🙏🙌

[@beulahhishono6002]

Sis Nozi, I can’t thank you enough for what you are doing. I truly thank God for your positivity, we are learning a lot. (Healing is not base on someone else but you) This is deep. Thanks sis❤️

[@dikelediwilliamsdafny1733]

❤

[@user-sk4uk5ml7o]

Nozi keep it up girl you are truly chosen by God to touch so many lives all over the World ❣️ and you are truly blessed to have Skhu. True love have no limits, may God bless you both 💐🙏

[@cookingwithphindile4525]

What a brave girl you are, talking about this frowned upon topic. Your video is very insightful. Thank you for being compassionate and brave. I pray for everyone affected by this killer disease. Taking medication can be challenging 🙏. Love from🇿🇦🇬🇧🇳🇬

[@tatendamusinahama3781]

Tjo! You are so strong! You are powerful. I could see the pain and passion when you were talking about your experience. This is another layer that people never talk about or think about. I hope to God that I am not going to sound like I am stigmatising, but a lot of young people are engaging in risky sexual behaviour because they think if they get HIV, they can simply take pills and live long healthy lives. This is not a walk in the park and I wish love, power and light to everyone going through this journey

[@motshidisimolefe7228]

Thank you Nozi. You are empitomy of power and strength.

[@thandoshabalala8193]

Thanks sisi being in this line of work gives a different perspective. We always call patients judging why they missed their appointments, this shows there are more factors involved.

[@tmash6732]

You are brilliant Nozi, everything you said in this video is very correct. Thank you.

[@naledimphomane4886]

This is powerful and very educational. Thank you so much

[@Drceliwe_dada]

Me when I saw a treatment defaulting patient before I met Nozi "heeee sisi, umhle kangaka mfazi, why are u not taking treatment? Wenzani? Ufuna ukuzilimaza? Ufunukufa?" 🙌God forgive me. Even though I would say it playfully and with all the humor in me. I now know it was completely rude and insensitive. Iam a much better person because of you NozNoz❤️❤️

[@mpumendlovu9904]

6

[@writingpad7142]

I really needed this. I carried the burden 4 14 yrs that I was not enough 4 my mum to take the pills to stay alive, even just 4 me (her only child). I also know on my more mature days that it was not about me, and it was her choice, for her life... still sad. However listening to u could give me a tiny incline of her mindset at the time... I miss her... but it was her decision to make... even though it feels like the wrong one (being the 1 left behind all alone)... ur a shinning star and so is ur hubby

[@lihlemokgalaka4548]

@Writing Pad Axactly the story of my life. My mom past on 3yrs ago. Being the only child left behind is a very sad thing but with God's grace I'm taking it one step at a time. Thanks a lot

[@lateshiabrooks2180]

God bless u!

[@Nah.ImCool]

And this is the part you don't hear in the HIV/AIDS discussions. Sometimes I think that if my friend had told me he was dealing with this I could have encourage him to take his medication and keep living. His first wife passed almost 10 years before him. They had 4 children. He passed it on to his 2nd wife who is undetectable. He just gave up and stopped taking the pills. Maybe it was the daily reminder the pill(s) would bring. I'll never know. It pains me when I hear people say, "Oh, it's treatable. I'll just take a pill." They don't realize that that's a pill until further notice. Furter notice may be a loooong time for most. I'd rather not. Know your status. Know the status of your partner. Stay safe out here.

[@sthembilelushaba6483]

Thank you Nozi, for inspiring many lives.

[@afikafanti]

This video helped me understand so much and release anger and resentment that I didn’t realize I was unfairly holding onto. Thank you 🙏🏾

[@ygalada]

Pill fatigue doesn't discriminate, I take bipolar treatment, some days I intentionally pretend to have forgotten to take them, cause hubby always checks. 💛💛💛

[@mahadisunflower]

I just want to say,thank you.🥺🙏🏼❤️

[@odwaduka6760]

You are so pretty, your skin is flawless, your energy is amazing, May God continue bless you

[@elsiesidumo7693]

Wow this is so powerful and very helpful. I am so grateful for the opportunity to have crossed paths with your institution of teaching us on how to embrace the fight against the diseases we face. Chronic diseases are taking a toll on many levels of our lives. I have learned so much. Love you lots 😘❤️❤️❤️💐🌹

[@cnaearl1413]

Sending light to the infected and the affected ♡

[@tinyikoubisi2402]

Thank you 😘

[@LeoSienna007]

❤

[@selloanemothae1607]

Wow Nozi what an eye opener vid, so informative, may God continue to bless you...

[@janesibanda1003]

Thank you for you encouragement I liked you from the day one I saw you on KZbin.I like thi saying "I am you and you are me" good encouragement that

[@gracekolane3703]

Thanks very much for your time and your encouragement I sometimes wants to quit taking my medication and I think of my kids.

[@mbalimavuso8735]

Thank you Sis for the work you doing. These stories are not told. I am learning to be more Sympathetic 🤞💐

[@makwenamonica5414]

You r such a brave and young woman 🙌🙌ur bravery made me to go and test as I feared for my status

[@nokukhanyahadebe9511]

My partner is diabetic and before I got all this knowledge (thanks to you sis Nozi) I couldn’t understand why at times he’d say he doesn’t want to take this medication. Mind you this is someone who lives with insulin and on top of that was prescribed pills. I guess all I’m saying is that you’re helping us all over. God bless you and uSkhu 🥺

[@nozukogysman3073]

Tjooo that's a tough one cc coz the moment you go off I sulin it goes up. Sometimes I even get lazy to check my sugar. It's not an easy one.

[@hazelnxumalo4230]

I love you Nozi you’re a strong girl may god keep blessing you and your husband

[@QueenChunky]

I am honestly obsessed with you and Skhu.. love you hun ♥️♥️😘

[@makepecaroline7488]

I totally hear you dear, I have been taking medication for diabetic & high blood pressure for years.the painful thing is when you take the medication it reminds you that by the way you are the sick one & that tiring. Thank you sis at least you not the only one who get tired some time,love you

[@zamavundla4488]

I admire and respect your courage 💓💗

[@ntombisiro]

This video was so emotional Nozi. And when you spoke about your FATHER my heart just broke💔. HIV is really a difficult journey. Thanks you for being such an important VOICE for both the affected and infected 🤗

[@katynyambi7010]

Woooooow......just landed on this amazing video yhuuuu I am touched. Thank u so much sis for this amazing video 💗💟" You are me and I am You" Four years later still healing and chose to keep it to myself than sharing with family and seeing that person sometimes brings the flash backs of betrayal in the most unexpected way! But heeeeey now we live to fight another day and sis is slaying and happy 90 % of the time🥰🥰💗

[@andrewaphane4289]

Very informative. Great video!

[@fikilendlovu220]

You are so brave my sister I love you so much especially when you thetha Isixhosa 🥰yo voice is killing me Big up girl and stay blessed 🙏

[@kehumilerankgomo5931]

Thank you Nozi.. You are Godsent to soo many... Love you lots🥰

[@pamelanqobile1026]

You are the best .God continue blessing u

[@nozamuxolodlephu5968]

I'm on Arvs since 2018 i even lost my merrige because of ndaba honest to my husband so wathi ize nam so ndamyeka wahamba isendim nangoku with my Arvs tanks Nozie sana uyasikhutaza thina yhazi luv u

[@thembiecele1397]

Ewe inyani bavesane bakuyeke hle kubuhlungu

[@saramoyo4807]

If your husband left because of your honest disclosure, then he was not worth it. God bless you!

[@sphiwe_yinkosi]

We live to fight another day sis Nozi🙏Enkosi for your powerful words

[@robinnahnampiima7275]

Yoo girl you really a greater teacher this is not only about sharing is teaching old woman iam on high blood pressure but I am struggling twice a day but sometimes I remember after three days than my child your very Educating May almy protect you 🙏

[@sindimbiba4865]

Love you sis...thank you for your bravery and wisdom

[@moemo4016]

Now I understand.thank u for this.I mean panado alone get me tired and it's for few days,imagine the rest of the life..I can only imagine..Bless u

[@zaneleorneliabila6092]

Siyabonga cc keep on encouraging people may God grant you with love and blessing ❤️❤️❤️more marato nozi

[@beatricechiwanza4320]

Love ur platform cc thanks for ur advice and encouragment well done

[@nokuphilashangase3931]

I love you Nozie. You have covered it all sthandwa sami.

[@lekholokoelekotsoanamoloi9593]

Thank you . Please always take a firm stand against the thoughts of suicide

[@thandisamba1515]

Wooow thank u gal for the advance,may god bless u give u more years to live

[@khanyisazinto7664]

I could listen to you all day, you speak so well.

[@unathimahlabela128]

Keep us informed sis..We apreciate you🥰🥰🥰

[@yvonnegaywood5487]

Thank you mis your video help me a lot you are a strong woman God bless you

[@phumlamokoena6127]

❤️ A very touching and important topic to cover.. Greatful for the info and support to many🙏🏼

[@timbawangu3038]

Thanks for sharing this. Awesome information ❣️

[@ashleyndliwayo5695]

"I am you, you are me" ...I felt that🥺💞

[@mvulohmthiyane6186]

Thank you for educating us 😘🙏may the good Lord gives you strength every day ❤️

[@sontosimelane3990]

Thanks Nozi, this shades light on how we could support our loved ones. We should really be supportive & understanding and how to offer more support.

[@benedictormogorosi1899]

Wow...Thank you Nozi, dis is really helpful.

[@lebozungu2301]

I literally teared up here. Support is key only when you trust. Losing a parent to Cancer does not help either. Thank you for this video

[@khanyoskosana6233]

I'm learning a lot from you 🤗 .

[@busisiwepakade3924]

Awusemhle as always, dear. Thanks for this video, you help us to understand by balancing the different perspectives. I could not understand why a family member didn't want to continue with treatment, thanks to you, I know better now. She is still alive, I will humble myself to her & make things right. Forgive us, guys, we did not know the depth of your pain & struggle.😭😭😭 Please find it in your hearts to forgive us. Sicela uxolo.

[@TheWoolfordFamilyLove]

Does anyone else like before they even watch cause you know it’s going to be good love you Nozi 🥰🥰

[@ladybee4044]

Lmfao I just did and drove straight to the comments while waiting for the advert to finish 🤣🤣🤣🤣I loooooooooove her so much.

[@irenekubheka9502]

Thanks beloved , Ve3 good communication skill, l really applaud hands for the courage to help others with this valuable information. You need to start a foundation sothat this knowledge will be impacted to those affected and infected physically, emotionally, and even psychologically., You have vast knowledge and information which needs to be known by others, because in hospitals there isn't enough time to reinforce effective communication.

[@nandintutyu5077]

Thank you ❤️❤️

[@princephiri5251]

Send me your line please

[@lisaskepe_Amisu]

Yebooo

[@Officiallychloi]

Glad you’re doing well sister keep winning in life. Take advantage of the good years that you have ahead of you.

[@nolusizodlalisa5573]

I totally understand....I can't even take my post pregnancy vitamins everyday, and I need them because my body feels weak. Taking any pill DAILY is a lot of work.

[@nontembekokaweni910]

👏👏Very informative.. Siyabulela Nozi ♥️♥️

[@cebomiya9142]

Thank you so much 💕I needed to hear those words

[@MissLegodi]

I've honestly fell in love with this lady not only her stories but everything 😭may God bless you I'm honestly touched

[@Ilonasworld]

Wow Your videos are so informative

[@nkechieze1262]

Ma you are an inspiration, God bless you

[@ziziphorasayi6919]

This is so educational 🙌 ❤️

[@alizwantuku6018]

SeyoGlow Nkosikazi yasemaTshaweni🔥 Thank you for all the info and insight on HIV Mrs Mayaba💕

[@priscillanyondo8578]

Bold and strong woman God bless you

[@christinaradebe4487]

Notification gang!!🥰💃🏼💃🏼❤️❤️❤️❤️ M so excited!!!!

[@Hulisanir]

I can relate! Being on TB treatment and having to take 3 tablets does something to you. The side effects really mess up with the mind.

[@gobuamangmotswasele2864]

Huuuuu sisi i thank u for this info cos i was feeling so frastrated when my niece didnt want to take her ARV but now i understand her feelings

[@dinahmamaile7255]

Keep it up I'm proud of u. Thanx for de encouragement sis❤❤We love u tho'

[@ayavuyapapiyana7968]

I love you sis❤ I am not affected/infected but you have impacted & changed my mindset for the better.

[@nombalindaba999]

Thoroughly enjoying this video🤗

[@siphosethumjiwu1223]

Heey treatment kunzima bafethu I’m not on ARVs Kodwa hayi sana it’s struggle taking my antidepressants so I fully understand the pill fatigue thanks Nozi I relate

[@tinyikoubisi2402]

I started mine 2008 but I never get used to it even today. Sometimes I feel like giving up everything 🙈

[@bridgetsiyothula4915]

@@tinyikoubisi2402 I also relate, I started antidepressants same year or 2007 if I'm not mistaken, I got tired in 2017 and decided to stop, guess what I went back 2019. I have just accepted that this could be the part of me my whole life. Pills are really tiring.

[@tinyikoubisi2402]

@@bridgetsiyothula4915 is program like this where we can encourage each other, knowing that you are not alone is really helpful. Mega love for you guys.

[@nokwazimakukula8958]

Thanks Nozi you're so gorgeous girl love u💕💕 thanx so much for uploading this video we've learnt something and it encourages us to understand how our friends and loved ones who are on any kind of medication on a daily basis feel

[@tsheporose9439]

Thank you Cc for sharing and opening this platform, for us who haven't yet disclose..

[@khangiemqakanya9879]

Thank to you nana I am knew in this channel but I heard a lot I subscribed love it will follow I learned a lot as you were saying( I am living to fight for tomorrow )so do I ✌❤ this sharing motivated me yhaa enkosi

[@phyllischikonyora1623]

Very informative Nozie thank you

[@khanyisacandles8193]

Very educational, you look absolutely gorgeous.

[@elizabethletsoso2558]

I agreed 🥰🥰🥰

[@lillianm9463]

Thank you so much for the informative video

[@tfa4782]

When you realise that 95% of the video was addressed to those affected not necesarily infected. Thanks for this amazing content.