Becoming Ill Again & Restarting This Channel

[@evelinel.9827]

Dr. Cathleen King, founder of Primal Trust, as a DNRS coach has come across so many who recovered shared their story and became ill again. That is why she includes somatics and other things in her program--most people come to her program after having some success with DNRS (after 6 months to a couple years of brain training) but have not healed and many heal with Primal Trust.

[@me-cfs-strategiesforhealing]

Thanks for the helpful tip.

[@jonmoore176]

I'm doing Primal Trust too, it has a lot more tools than many other retraining programs and like you say has an approach that should hopefully people change themselves inside and out to have a robust recovery

[@BubbleBuster]

DNRs almost killed me. I had severe food allergies and they kept telling me it was because I wasn't brain retraining hard enough. They pressured me to eat things I reacted to and it landed me in the ER with a heart attack. You're a good guy. I talked to you years ago when I first got sick via email after I bought your book. Hang in there. I'm still trying to heal too.

[@me-cfs-strategiesforhealing]

I’m so sorry you went through that, that’s absolutely awful. I think that the idea brain retraining could cure all kinds of food sensitivities is totally flawed and dangerously simplistic. Fingers crossed we can both get over the line one day

[@evelinel.9827]

The problem with recovering with DRNS is not addressing the underlying emotions--learning to feel emotions, feel emotions from the past (grief, anger, shame) as well as being in the body--these two things are not including with DNRS. Now many programs like CFS School, Primal Trust, and Dr. Sarno's work (called "TMS"). all have emotional work (and learning to being in the body, really inhabiting the body, and not just living in the head) as critical to recovery along with brain training or mindset work etc.

[@me-cfs-strategiesforhealing]

Thank you so much for sharing this. I have heard others who have needed similar additional somatic/emotional processing work. There are many neuroplasticity approaches.

[@elviorr6809]

Just found your channel. So glad that you are feeling better. Thank you for putting out all this information that you have learned and for sharing your experience. May you be blessed in all the ways as you continue to improve!

[@me-cfs-strategiesforhealing]

Thank you so much of the kind wishes. Hope you find the channel of help.

[@lessons9745]

hello Patrick ! Sorry to hear you got sick again. I've been sick for nearly 8 years .DNRS helped me with some anxiety ,but did nothing to cure me . I m happy you were still making music, maybe you can make a new song this year ! I don't have much issue with my legs ,but on a day when I am not bedridden I usually walk 1k to 3k steps .. I hope you continue to improve !

[@me-cfs-strategiesforhealing]

Hello, thank you so much for your kind wishes for my health. I hope also that you can find improvements. The brain retraining has been funny this time around for me. I can feel some kind of ANS dysfunction, it responds to the rewiring but doesn't 'hold' and doesn't translated into stopping PEM like it did for me before. I think it is the autoimmunity holding me back in my case. I'd love to get back to the piano but it has been a while since I've done any music. Here's hoping that we can both get better over time. Again, thanks for the kind wishes.

[@oriel.infinite]

Good to see you again Patrick! Thanks for sharing! I've been sick with POTS for 4 years and have had a hard time even getting the energy to heal. Good to know you're not alone in this...

[@me-cfs-strategiesforhealing]

Thank you very much! I'm sorry to hear what you are going through. It is very hard when the baseline is low. I have a couple of videos coming up about blood volume this week that may be of help to you.

[@angelbryan98]

Do you had anxiety, panic, brain fog and blurred vision the first time you were sick? And on the second time? I've been experiencing weird symptoms after getting the last dose of the HPV vaccine in January amd I am scared.

[@me-cfs-strategiesforhealing]

Sorry you are going through that. I think a friend of mine developed ME/CFS from that vaccine (not 100% sure it was that one but it rings a bell). Anxiety, panic have been a feature both times. With my 2nd health journey, brain fog has been a regular problem and I would say that somewhat blurred vision, at times, has been an issue also. The blurred vision probably improved a fair bit after my HELP apheresis treatment (you can seek out that video if you haven't seen it). There seem to be blood flow issues to the eyes in ME/CFS.

[@angelbryan98]

@@me-cfs-strategiesforhealing My lab tests have come good so far. I suspect there is a autoimmune aspect to it but I don't know for which autoantibodies to look, not even if there are test available for everybody and in that case what could I do? What would be the treatment? IVIG? I am afraid to live like this forever.

[@me-cfs-strategiesforhealing]

Autoimmunity is a major issue in these illnesses. I have videos coming up all about autoimmunity in ME/CFS, how to test and current and future treatments. Hang on in there. This illness is awful but ppl can improve. I was once in hospital in life threatening situation. I’m able to live independently now.

[@angelbryan98]

@@me-cfs-strategiesforhealing I know but what scares me is that I got this from a vaccine. God knows what it is doing to my body, everyday is a different symptom. I got myself into this nightmare and feel very stupid and sad about it, I don't know what to do.

[@me-cfs-strategiesforhealing]

Oh I’m so sorry. Yes that could be different. I really feel for you. The pressure to take those things was horrendous. If you go to ‘ME Ireland’ channel, you can see a talk on autoimmunity that I gave yesterday. This Saturday I have an interview with someone on this channel who was vax-injured too. He has been improving

[@lando2755]

You don’t think any virus gave you cfs? Like did you just wake up one day and felt like fatigue or did it build over time? Just curious not trying to be rude at all just trying to understand your story

[@me-cfs-strategiesforhealing]

Onset was over time in my case due to stress. ME/CFS can be caused by any stressor, it doesn't have to be a virus that does it.