Chronic Pain - Is it All in Their Head? - Daniel J. Clauw M.D

Dr. Dan Clauw, the Director of the Chronic Pain & Fatigue Research Center at the University of Michigan, discusses pain that stems from your brain. He presents an overview of what is currently known about the underlying causes of chronic pain and discusses the rationale behind a variety of different treatments for chronic pain. He also shares information about a self-management tool called Fibroguide (fibroguide.med.umich.edu/) that has been shown to be helpful in improving the symptoms and function of people with chronic pain.

[@F1no1fan]

I would love all these experts to experience my chronic pain, constantly, for 6 months. Then do these speeches again. Easy to comment on this when you don't actually suffer.

[@akaa877]

Exactly. They don't know anything about being a chronic pain suffer.

[@debrakurtz3079]

They would take the oipiods if they suffered like we do. They probably get them on the sly.

[@charinagel5690]

Completely agree 😢

[@warrenisaac5634]

100% agree

[@meenua]

he makes sense

[@tabifiedler6944]

Anyone who’s ever suffered from chronic pain knows that it’s not just “in our heads.”

[@carolynrombardo4821]

I cld not agree more..it infuriates me to hear anyone minimize our pain...our very physical pain...to a mental issue....its a callous n ignorant remark made only by those who have no chronic pain..

[@gitcat8160]

I wish it was in my head, that would be wonderful. It’s really annoying when family members say “it’s all in your head” FFS

[@mitchymomma]

He's not saying that.

[@peelyb]

Totally missed the point. 😂😂

[@peelyb]

@@carolynrombardo4821 that's not what's he's saying

[@whatistruth2796]

I agree everyone’s Brain works differently. That said, at some point everyone looses their ability to cope w/physical pain and it gets LOUDER.

[@Rhymingbj1]

Read my comment above.

[@whatistruth2796]

I’m sorry - I can’t find it!

[@julieyates405]

Unfortunately some 'Pain Management Services' are assuming if pain has existed for longer than 3 months, it's chronic pain therefore promoting, medications don't work, investigations are of no benefit and exercise is the 'prescription'. This is creating much distress for patients and a culture of hostile therapists has evolved who fail to identify or respect their patients need for appropriate diagnosis and interventions for pain creating conditions....It's a very dark time for many patients in pain.

[@julieyates405]

@@MacchiatoSwirlGirl I'm so sorry to hear that. It's so very sad healthcare has lost its way so badly. I found 'neurosonic frequencies for pain relief' on You Tube which helped me zone out from the Pain. When you find the genuine causes of pain, it helps to focus on what little things can be done to help sometimes.

[@marys9775]

I suffer from chronic pain. I fear every day I have to face it. My Dr says it's just GERD and it's all in my mind. I don't think so. After watching this video, I'm ready to get a 2nd opinion. I've lived with this pain for years with no pain pills. I'm tired all the time. It drains so much energy from me. I'm so depressed because of it.

[@QuintonMcreynoldsgaming]

same your not alone stay strong

[@chriskampf8828]

Possibly a hiatal hernia? 🙏🏼🙏🏼🙏🏼

[@stoms8238]

I feel for you me two 😢

[@jamesbreedingcoach]

Stay strong, it is not all in your head. Definitely seek another opinion.

[@shariwilson1730]

Im wondering about the vegus nerve. Only found a dr and clinic that seems hopeful in Florida.

[@IamTheAliKat]

And, for the record, I did every single one of the non-opiate modalities before I had ALIF surgery, and after. Not one of them was effective in controlling my pain. Having fibro makes it impossible to be stabbed with "tiny" acupuncture needles when it feels like samurai swords, and having IBS and ulcers makes it impossible to simply take over-the-counter anti-inflammatories. So, some people take opiates out of necessity and because they work without side effects. It's not a one-size-fits-all world!!

[@phild8192]

Sadly, fibro is a 100% brain generated pain. Your medication isn’t necessary, because feeling the pain isn’t necessary. This one is a one size fits all. If you have fibro, you can turn down your pain and ultimately recover. I know. I did. Look up dr Sarno.

[@IamTheAliKat]

@@phild8192 Wow. Shocking. A psych saying it's all in your head. Original. Some people don't have deep, dark, repressed, feelings causing pain. Some people have had actual physical injury that caused it. I've head all the head-shrink, quack-talk before. Take a few significant body shots and get back to me.

[@Indy__isnt_it]

I cannot, simply blows my mind less than 8 years ago my ex husband's Dr supplied his controlling ass *540* 5mg oxy's to him, never once questioned his need for a refill in ONE month. (She had cancer, could no longer practice, long since retired now) No more said. Except he's a narcissist who will use anything to control someone. My message to him..... Good try, who has the strength AND endurance to see this through. Be careful who you play with. You had me fooled, but triggered in me, someone I did not know existed. TY, she's one strong B! Now, be careful with what you created. Frankenstein did exist? LoL

[@aliseegenuine6414]

@TheAliKat I totally agree with you! One-size-fits-all has been a lie from beginning!! I have chronic pain & quit opiates because of constant judgment by High School MDs! I’m alive but have no life because of the pain & am screwed because of govt interference of pain meds being prescribed by licensed, trained Medical Doctors. All now sent to Pain Mgmt who want to do “procedures”! Proceeding only to cause more harm! It’s ludicrous! I’m fighting back! I’m struggling, but at least I’m trying! I did want to share something I’ve discovered from experience & research…..pain causes anxiety, anxiety will cause the stomach to produce more acid. Excessive acid causes ulcers!! All fruit & many vegetables are highly acidic! Pain causing acid production & consuming foods with high acid content is creating stomach ulcers, I’ve deduced from connecting the dots! Unknown & unchecked, the ulcers will bleed! WTH is wrong with trained professionals ignoring this? If a non-medically trained individual can determine this, why aren’t doctors addressing the entire situation of pain effects on the body as a whole? I had a wonderful, caring, compassionate pain mgmt dr who passed away & I’ve been a “lab rat” for these other Frankensteins! It’s like living a nightmare! Keep up your strength & spirit to stand up & speak out! We are being pushed, it’s time to shove back! 👍

[@aliseegenuine6414]

@@Indy__isnt_it 👍👍👍Good for you! Turn the table around, he was your nightmare, be his.😂 Sounds as if your ex & that dr are some of the ones who have caused those of us suffering from real chronic pain to have to suffer more from abuse by drs! Hang in there, stay strong, stay healthy!👍

[@anntowle1706]

I lived and worked on anti-inflammatories for arthritis for 30 years, late 20's to late 50's. Then needed spinal surgery so I wouldn't become paralyzed, the surgical team left me in a position that cut off circulation to parts of my body and left me with nerve damage on top of a botched surgery. (Thanks VA.) I've been in worse chronic pain since and unable to work. I hope this sanctimonious AH has something happen that makes him realize what chronic pain is.

[@richardbriskin770]

Amen dude

[@ITSREALLYNOTYOURFAULT]

Double amen

[@nettewilson5926]

My god this is unconscionable how can you stand it? 😢

[@theantiqueactionfigure]

Thanks for what you have given to our country. I wonder if this guy would be so confident in his theories if he had stepped on an IED!

[@Gpacharlie]

Tai Chi instructors make $25 bucks per hour to teach you how to do Tai Chi. Psychiatrists charge $250 per hour to write a prescription for an antidepressant and ask you if you have ever tried Tai Chi. Pain Specialist MD’s charge $320 per hour to refer you to a psychiatrist and a functional rehabilitation program that teaches you Tai Chi.

[@Its.nice2b_nice]

ʜᴍᴍ ɢᴏᴇs ɪɴ ᴀ ᴄɪʀᴄʟᴇ ᴅᴏᴇsɴ'ᴛ ɪᴛ?

[@spicyirwin5835]

Lost 6 friends to suicide bc of chronic pain. My blood pressure goes sky high bc of chronic pain.

[@smessaddeq]

Really sorry for your loss.... I can barely imagine how they could struggle with this every day 😢😢😢

[@divahc1]

​@smessaddeq Oh my! My sincere condolences. I,too, lost my 26 yr old nephew to suicide in 2020, and a close friend later in 2020.

[@divahc1]

I have fibromyalgia, temporal mandibular joint disorder, chronic migraine, neuropathy in my feet, scoliosis and kyphosis and the list goes us. My pain is real. Having friends who BELIEVE me is the most important thing in helping me to cope.

[@divahc1]

​@smessaddeq You are stronger than you know. At 26, I couldn't imagine Iiving to an old age with the severe constant pain of my chronic migraine. I wanted to die as it was the only solution for stopping the pain. I had to stop teaching at 31 . At 39, a new medication became available which was the first to give me any reIief. For a few years now, I have had an even newer medication and now it barely bothers me. I have other pain conditions which are manageable. From 39 to 54 I was able to sing, dance and perform in a women's a Capella, chorus. I'm now 62 and so grateful I stayed around. Sadly, in 2020, my 26 year old nephew lost his battle with mental health. I wish I'd been able to tell him life is worth fighting for!

[@warrenisaac5634]

It's maddening! It controls every aspect of your life and is so debilitating! It makes life feel hopeless. Unless a person has dealt with this type of pain, they have no idea!

[@geezus1201]

Back in the 90s people with fibromyalgia was told they have nothing wrong with them and they are drug addicts. My mother suffered till the day she died with severe fibromyalgia and diabetes and the doctors would not give her anything for pain bc they said she was a drug addict. My mom was 72 years old when she died and she died in severe pain. How dare them drs.

[@gailnelson1659]

I am so sorry about your mom. There is no excuse for doctors not helping her.

[@pamelasmith2625]

@@gailnelson1659 I feel so bad for your Mom. I have had fibromyalgia for 25 years and suffer and struggle every single day. I am allergic to just about every medication except Oxycocet. It doesnt totally take away the pain, but definitely does help me. One pain doctor told me that I should be taking a higher strength, but my doctor wont give them to me. I am taking 2 - 3 a day but my doctor has told me that she doesnt like me taking it as it is usually only used for people with severe pain like Rheumatoid arthritis or cancer pain. Over the past 25 years I have tried every therapy and exercise and diet, to no avail. I have been to so many pain clinics and therapists without being helped. I am sure my pain must be as bad as both of those diseases. I have told her to give me another solution, which as yet she has been unable to do. I feel I should be able to get whatever pain med that I need to take me out of this crippling, debilitating pain. I am 76 years old and can honestly say that at this stage in my life I should be helped with whatever treatment I can get. I would just like to have a few hours here and there were I dont feel anything. just give me a break from the pain cycle. I swim on a regular basis and find it gives me about an hour of relief. We put our animals out of their misery when they are in pain, so why not humans. It really is a horrendous illness . Please put us out of our daily misery. We are not living, we are just existing. It is so sad that your Mom had to live so much of her life in pain. Take care of yourself. Hugs

[@amandashelton1162]

Chronic pain is not all in our heads. I have nerve damage and neurological conditions that causes me pain. On top of fibromyalgia. There's no cure for what I have and treatment is limited for me. I am use to pain so I am not aware I am sick with infections until it's in my blood. Also, I was a yoga therapist for 20 + years before my chronic pain and neurological conditions started to take away my ability to walk and function. I am allergic to everything because of a rare condition too. I started having severe pain when I was nine years old. I wasn't aware that I was born with nerve damage until I got a skin biopsy. I also always have inflammation in my blood and urine. I have chronic UTI and kidney infections too. I had seizures in my childhood and they went away for awhile but returned in my mid 30's as well. Also, Fibromyalgia can cause depression and anxiety, so it's important to see mental health services as well as pain management if you have fibromyalgia. It can help deal with it but it's not a cure. I meditate a lot to help deal with my pain. I also have tried nerve blocking medication but I am allergic and ended in the hospital. The only nerve blocker that helped me is Botox in my head neck and upper back. I have fibromyalgia and I don't have tender spots it's my whole body that hurts and swell's up.

[@krypticnx]

Maybe a better title would be something like “Retrain the brain to feel less pain”. Based the title alone, chronic pain patients will not receive this video as well as they could. Chronic pain suffers already spend so much on the defense. The title of this video could be received as downplaying someone suffering.

[@Atheria444]

Due to 3 neck injuries, I've had a headache since 10/1/1995...24/7, plus my face droops on one side. In 4/2018 I had the 3rd neck/head injury and the pain level skyrocketed, including new symptoms like blood vessels in my eyes breaking. Way over 100 doctors and healers have not been able to help me. I just exist and am so scared. It's so hard to hold down a job. I don't qualify for disability because no one can actually figure out what's crushing my brain. Pain destroys.

[@josielisette6768]

Try the cbd oil it has help million of people worldwide i try it and it works for me i bought it here >> www.cbdbiocare.com?a_aid=Lifewithcbd

[@Nomenclatureish]

“Human beings are so made that the ones who do the crushing feel nothing; it is the person crushed who feels what is happening. Unless one has placed oneself on the side of the oppressed, to feel with them, one cannot understand.” ― Simone Weil, Lectures on Philosophy

[@elizabethmcleod246]

Yes, pain kills.

[@CMoore8539]

@Josie Lisette What are you doing?? Trying to sell CBD oil to chronic pain patients? You must own the company. You should stop! You sound desperate.

[@harley8680]

@@CMoore8539 they are being realistic on WHAT really helps people.

[@marielieful]

Everyday is hard to live this way

[@tetsusiega2]

People like him are the reason I’m probably going to continue to suffer instead of receiving help.

[@peelyb]

Why?

[@ruth228]

I recommend dr John Sarno’s work. You can find him on KZbin being interviewed. His book free on audio on KZbin Healing Back Pain (is not only about back pain). helped me get rid of pain that I had for many years. He is deceased. Look up his book Healing Back Pain on Amazon and read the comments. I hope and pray that is of help.

[@MysticFogGarden]

I always want them to suffer like I am, then say, "Its all in your head", and yet all they do is throw pills at you, and call it quits when drugs dont help.

[@robtheram8120]

@@MysticFogGarden What pain do you have?

[@larryc9060]

@@ruth228 you are so right! I discovered Sarnos work last winter and I’m getting help by a TMS mind body coach- Dan Buglio in PA and I’m slowly seeing a positive response to incorporating Sarnos theory 😀

[@SymphonySoaps]

Sometimes pain can be like a leaky roof. You can see where the water is dripping through the ceiling, but that quite often is nowhere near the place the water has entered the roof. The water may have traveled down & along a distant beam before making it’s appearance. I agree that when the source of the pain is not readily apparent their should be further investigation. A patient’s pain should not be rejected because ithe available diagnostic tools are inadequate.

[@IMSiegfried]

Except there isn't an prescription opioid epidemic; there is an illicit opioid (heroin, fentanyl) epidemic.

[@rickrossi7426]

Angela Siegfried exactly and now they want to go after the phama companies when it’s the drug dealer selling the drugs

[@IMSiegfried]

@@rickrossi7426 Very true. :-/

[@carolynrombardo4821]

Angela Siegfried..thanks for reaching out to me about joining twitter for CPP rights...im having a small problem with my E-mail address..thanks to a dear friend the moment i get this cleared up..as i am dreadfull with technology..u bet !!!!..i will b joining in the fight..on every website available to us..we need all voices n hands on deck..hope to b joining u very soon..thanks again

[@IMSiegfried]

@@carolynrombardo4821 That's great to hear! My username on Twitter is @IMSiegfried. I also advocate for tobacco harm reduction but #vapinghysteria and #opioidhysteria have some similar traits as far as how they came to be, and how the government has handled the problems (made them worse), etc. And a lot of us only joined Twitter just to advocate so we're all learning together. I Look forward to seeing you on there! PS: If you can't get your email address figured out you could always create a new one. Google Gmail would be one such source for an email account. If you need help perhaps I could assist you via the phone. I used to do tech support for customers of the internet and I'm very comfortable helping people over the telephone. We could at least try! :) Let me know!

[@carolynrombardo4821]

@@IMSiegfried angela..cannot thank u enough for all ur help..im thrilled to b able to converse with others that are caught up in this mess..they r truly the only ones that can understand the importance , i have tried to change my user name..a few times now..idk enough about all this to get it right..im so embaressed to say..i have one more person whom i think can do it..i certainly hope so..i cannot wait to head to ur sight...until then thank u again..n GOD BLESS

[@slc1161]

Thank you for this great lecture. I’m sharing this with other medical professionals. My own perspective has been altered as I’ve had to deal with my chronic pain.

[@edwarddunlap7344]

EVERY PAIN doctor is the same ,NO ONE HAS PAIN , its in your head , so painpeople SUFFER !

[@peelyb]

Missed the point.

[@tracysuddick9381]

I agree

[@Dizzycelt]

They’re narcissistic

[@tracysuddick9381]

My pain is not in my head. The pain is real and I am fed up of people like him making people like me feel like am crazy and it's all fake..I have done acupuncture, physiotherapy and diet and everything nothing has worked. Unless u have it u don't no

[@AllegedlyApril]

YOU. MISSED. THE. POINT. Try re-watching the video in a non-defensive frame of mind. Your pain is no worse than anyone else's. It's not a competition. It IS in your head, if that's where your brain is! Your BRAIN controls PAIN receptors. Please re-watch the video with a more objective heart and mind. As a side note, take down the info other commenters offer: names of doctors like Sarno, Forrest Tennant, Shubiner, Alan Gordon, people named like Jon Cabot Zin, Nichole Sach --- just to name a few! I've never heard of these people, but I will be checking them out!!! Also look into your gut health -- it's your second brain. So much valuable info to be learned on that subject alone. BTW, I'm a 30+ year CPP who is still fighting tooth and nail to get answers. Everything, even the laughable or seemingly wrong, is taken into thoughtful consideration before dismissing. The answer is out there. My job is to find it and regain my health. Either we are part of the solution or part of the problem. Which are you?

[@debrakurtz3079]

LeaveTracy alone, you do not know what she goes through. All pain is not the same.

[@cherylwalsh8392]

The one part of this talk that I agreed with completely is... “current drug therapies suck!” Yep! They sure do.

[@Sketch1994]

New "non-addictive" treatments suck. Pregabalin Gabapentin and antidepressants have worse withdrawal than opioids, are much more damaging to the body (and can cause deadly side effects on any dosage aside from often causing lifetime harm on the nervous system, with common problems being twitches brain zaps and a mental hell that can last for years) while being very unpredictable (the brain chemical imbalance BS is busted...they change the way your brain adapts and develops and that's why they take so long to take effect) and have been proven to have a marginal effect at best in most cases. Plain old opiates just work and on the right dosage and proper side effect monitoring they can make the biggest difference in life quality. Their only problem in the eyes of doctors is that they won't mess you up as much as the aforementioned (so you won't be visiting the doctor that often), and they are very cheap (compared to antidepressants and Lyrica/Neurontin that make Pfizer BILLIONS per year...in fact more than 10% of their multinational medical company's income is attributed to these which are addictive/dependence causing AND harm causing)

[@dixonjazzy56]

@@Sketch1994 I agree opiates work best for me They never get to the root of the so called brain pain. I have a panic attack problem before I got fibromyalgia/me/cfs. I was put on antidepressants which gave bad effects never worked for the panic, then came the valium, Xanax, and clonazepam so it's more likely the depression and anxiety medications in my case back to the fibromyalgia chronic fatigue syndrome diagnosis.Check out Benzo.Brain youtube channel. I wish I never listened to the doctors that put me on those drugs.They destroyed my life!!! Now I will live in pain till I die because they took away the opiate pain medication which is what works for me. Who gave them the right to take away something that comes from mother earth. Everything is a lie. Like fluoride prevents cavities straight up lie it's a poison the same poison that's in Prozac. Allopathic medicine or should I say Rockefeller medicine will kill you. Time to grow poppies I guess that would make me a criminal though, freedom is an illusion as long as we have governments and technocracy they are the new God / religion

[@thehunterofdeath2180]

@@Sketch1994 yes sir I had tried my mental health it got me worse bro no joke this doctor is a joke I got bulge disc desease n diabetic nerve pain is all mental he is wrong he got no pain at all to be talking bs

[@aliseegenuine6414]

@@thehunterofdeath2180 I agree. Have a friend that had accident & part of brain had to be removed…it was the part that nerves carried msg to brain of pain. He feels no pain & has no understanding of pain much less chronic pain due to nerve damage! Can’t be fixed, pain mgmt drs did “procedures” doing more damage to nerve! SMH!

[@aliseegenuine6414]

@@dixonjazzy56 are you living in my body? My life? I have been on medical merry go round for yrs. I got off & now ppl are telling me I need pain mgmt! I went to pain mgmt again, dr dumb as a rock. No pain med although I told him what worked for me, he didn’t listen. Not knowing anything about CIPD but would schedule for procedure. WTH was he going to proceed to do? He had no clue what I was talking about. Damn shame when you know more than licensed MD!!!

[@caredfor6872]

It’s called pain receptors in the brain. When the body feels pain it gets directed to the brain that you feel pain.

[@lauraestes9304]

Ridiculous.... Pain is real!! As a suboxone patient....when i had a total hip replacement at the Andrews Institute....a sports medicine famous facility....i was denied any take home pain meds !! At the pre surgical seminar to over 30 other joint replacement patients we were told that we would be given a month of pain meds !! Then i was told to just resume my suboxone after one day of a total hip replacement!! The subs don't relieve acute pain so i ended up drinking alcohol just to relieve my pain!! I ended up almost falling due to this!! That really pissed me off to say the least i healed perfectly but in a drunken state. Pain meds wouldve been the humane thing to provide me for at least two weeks !! I was treated not like all the other patients due to their fear that i might be a liabilty ....so they made me suffer instead i have used every curse word in the book to describe how they made me feel like a dog....less than a dog. Addicts should not be made to suffer post surgery!!!

[@claudiaanderson6210]

It's like he's describing me. If you have fibromyalgia or other chronic pain syndromes, I recommend you take the time to watch this talk. It's the most informative video I've come across.

[@suzyqwms]

I have been to his lectures and I have learned a lot and I have to say that I get a very calming relief from the CBD/THC oils and edibles.

[@sandances]

Every time I hear him speak I think he's a moron. Do you know that he doesn't even see or treat fibromyalgia patients?

[@josielisette6768]

Claudia anderson Try the cbd oil it has help million of people worldwide i try it and it works for me i bought it here >> www.cbdbiocare.com?a_aid=Lifewithcbd

[@alexandrasarno6394]

@@sandances he is an educator..he does lectures..he's absolutely right

[@debrabruce]

@@suzyqwms I also get pain relief from, THC oil, and Weed with High THC. I just cannot take it in the day. I do not like being high all the time. I need something for the beginning of Day or through the day.

[@ceresmary206]

It's always interesting that so many in the medical field feel the need to tell us that our pain is "in our heads" and isn't a warning system devised for us to pay attention to, treat or even find answers for. It's further interest of mine to know they don't have chronic pain to know what we live with. We know that pain is a signal from the body to the brain that there is something wrong going on. We also know that there isn't ONE "right" answer on what will either calm down the body or brain to meet the doctor's assessment that what we are doing is the "right" thing. Pain maybe subjective to those who don't experience it, but for us that live with it, realize that it needs more than glib answers to help us.

[@elitephysio.fitness]

Hey Mary. No, the pain is not in your head. The pain is real; you are feeling it. Chronic pain has tangible physical roots. However, emotions can affect the pain's intensity. Head to my channel if you like for extra weekly advise and tips on self-management. God bless you!

[@michellemeuleman385]

If my severe period pain was in my head then why was I bleeding 🩸 and clotting so much..? I needed a hysterectomy at 35 yrs old. If was in my head then where did my period pain go after the problem was taken out..?

[@KiwikimNZ]

Reading your comments on your own pain experiences it really makes me sad to see so many that have fallen into this vicious cycle of 24/7 pain, that all of the treatments, lifestyle changes and drugs are still struggling. I’m So sorry to all of you that you drew the short straw and you were picked to be the ones who suffer from constant pain. It does make you a better person, it helps to keep you real and you sure do have a lot more empathy for others, but it is also hard work and life isn’t easy, yes we still have things to be grateful for and we are blessed with many things in our lives, but it’s tiring. I feel 100! I’m 53. Good luck people x

[@bobby123321bvbv]

I have chronic pain from an accident that won't go away. My doctor told me it was all in my head. I ask him to hold out his hand and when he did I stuck a fork in it hard. I told him it was all in his head.

[@debidawson7838]

This kind of crap had me feeling so bad about myself were my pain was concerned that I believed my pain was questionable , in the end my hip was so bad thaty surgeon was shocked and surprised I had waited so long . the xray showed no top bone at all.

[@loisyoung2372]

Total bull shit, let him spend weeks with no sleep and crippling pain with no relief.

[@kenprice57]

It's like a water leak,people are different I can tell my mind I'm not in pain,my body tells me different

[@jackiemulhern6473]

Having been diagnosed with Fybro in the past year, after years of pain & what seemed like the lack of interest by my Doctor & Only had x rays over the years in a couple of places that showed nothing. My doctor told me to read "its all in your head" Suzanne Sullivan. I was upset & felt humiliated, but read it, Its exactly as this man is saying. Its not each joint it comes from the brain. It made me understand more. I am not one for meds, having chosen to try alternative methods. Hot wax for my hands, hot tub for general all over pain, cold water therapy "which works really good "for a break from the pain. I have anxiety which my Doctor said exasperates my pain. He told me there was nothing that he could do, until I reached a point where I couldnt live with the pain I am in daily, affecting my memory as I couldnt function properly. now I am on a low dose of gabapentin, which does not touch my pain. but I have hope it will help as it increases. Anyone who thinks that this Doctor is saying its all in your head should read the book mentioned in my long comment.

[@greasylimpet3323]

That sounds like me; I've been on some medications with bad side effects, and have just started the lyrica today. I hope for your sake and mine that it works.

[@theluckyman74]

Studies show Gabapentin and some others can cause Tardis disconetia. Movement problems

[@ladysnowblood]

I have complex regional pain Syndrome. I do not take prescriptions, I dont need to add addiction to my constant pain. I am managing it now. This is what I do, 1/4 teaspoon of MSM crystals, 1/4 teaspoon vitamin c and 1 tablespoon of kratom. Don't be scared, western medicine has been lying about kratom, it's related to the coffee tree and in combo w the MSM it detects inflammation. Complex regional pain Syndrome has the highest pain rating in the world, it's known as the suicide disease, because there is no relief from the the constant pain. I've been in pain every second of the day since waking from a coma in 2014. However, this combo has given me my life back. Please try it. Don't listen to drs, they only manage conditions to keep you on meds the rest of your life.

[@jackiemulhern6473]

@@ladysnowblood Thank you, I will look into that, I would rather try other methods before taking prescription meds, I am looking into things like my diet and other vitamins. will definitely give it a go.

[@sandywa3057]

@@theluckyman74 I’m a nurse and it’s called tardive dyskinesia : )

[@Jojo-gg6jc]

I'm sorry I have tried CBD oil, THC , the only thing I am able to take is Norco as it doesn't upset my stomach. I have chronic pain everyday, from osteoporosis& osteoarthritis. This medicine has been the only medication I can take that works for me. I have been on this for several years and I am able to function with some normalcy.

[@michellemeuleman385]

I tried cbd oil didn’t help

[@autoimmunewarriorqueen7130]

If you really want to help patients fight for federal medical cannabis, acupuncture, yoga, long term physical and occupational therapy, laser therapy, massage therapy, pressure therapy and key immune deficiency supplements to be covered and available under insurance. Different things work for different people. Western and homeopathic therapies need to combine people’s care. Enough is enough.

[@lisaeischens2352]

That’s so true! The other things they want us to try aren’t covered by insurance and a person can’t even afford their medical care they do get with their insurance let alone without! I would love to have message twice a week but I can’t afford 140 dollars a week for message. They put you in an impossible situation where you just feel like jumping off a cliff because it would be easier to get relief and wouldn’t have to feel like a bother to anyone else.

[@kimberlymarie3651]

@@lisaeischens2352 Unfortunately, I think it's all done on purpose. They made it a law, the Affordable Care Act that everyone must pay for health insurance with an annual deductible of thousands of dollars before insurance pays anything and the healthcare is so artificially over priced you're actually paying for everything. I think insurance is a scam. It leaves you broke and can't afford to try other options. I even thought of dropping my health insurance and use the monthly premiums to try other medical options. But I'm not quite sure about that yet, but seriously thinking about it. Poor people get treated better they get free healthcare .. What a mess we're in, but don't give up...

[@autoimmunewarriorqueen7130]

I didn’t get up to the dose, I got serotonin syndrome instead. Which knocks out my ability to take 85% of the treatments recommended also to include cannabis in any form because of how low a does the serotonin syndrome occurred at. My sleep study showed a form of narcolepsy which was the reason for my sleep issues not my fibro. The Neurologist said I have too many serotonin and gaba receptors to ever be able to take any drugs that effect them. Also the opioid epidemic has nothing to do with RX pain therapy. Only 1% of these patients are in those statistics. It’s a fentanyl and heroine problem by the FDA and CDCs own admission. Also many countries do and the reason the numbers aren’t there is because a lot of them don’t need a prescription to attain them cause not all governments are so intrusive into the patient/physician relationship. The fact that thousands of patients have been stable on long term opioid therapy at therapeutic doses for 3 decades makes your argument null. 8 years ago my pain level was 10, I was bedridden and dying of sepsis. I’m a unicorn I guess cause now I actually have a life and function 70% better than before. No autoimmune patient will ever be as functional as a healthy patient. The best we can hope for is 60% functionality vs a healthy patients 100%. Dependence is very different from addiction.

[@jenniferraymus9031]

I have been mostly stable and functioning around 60-70% on opioids for the last 8 years. I was just forced off of them and haven’t been able to do anything and am going through withdrawals and no doctor or clinic cares. No one will even help me wean properly, according to the CDC guidelines but I bet if I were a heroine addict I’d get plenty of help. F the medical community and the government.

[@laurarahn7397]

I TOTALLY AGREE¡¡!!!! THEY ARE COMPARING APPLES TO ORANGES!! I HAVE WORKED AN ADDICTION AND I HAVE BEEN ADDICTED FROM BEING ON MEDICATION. I WAS NEVER AN ATTIC PER SE AND THE REASON I SAY IT THAT WAY IS BECAUSE I WASN'T LOOKING FOR THE EUPHORIC EFFECT NOR DID I GET IT I JUST WANTED THE PAIN RELIEF!! WHEN THEY CUT MY MEDICINE OFF COLD TURKEY I DIDN'T EVEN REALIZE THAT I WAS GOING THROUGH WITHDRAWAL BECAUSE I DIDN'T THINK OF IT!! JUST GOES TO SHOW YOU SO MANY DOCTORS CAN BE WRONG AND THEY JUST WON'T WILL NOT REFUSE TO ADMIT IT!! SO THEN I DROP THEM AND FIND ANOTHER DOCTOR ONE THAT WILL ACTUALLY LISTEN!! GOD BLESS YOU AND GOOD LUCK!

[@vickicarnes6860]

Totally agree but lost my meds due to Ohio CDC guidelines and a terrified doctor and now have to suffer and functioning is next to impossible most days. Like you, I too have a autoimmune disorder but just have to live with it.

[@kateschwartz8757]

I have been in severe pain for a long time. I have fibromalgia. Before that I had a real bad car accident. I have been falling apart for years. My family Dr is great. I have been seeing him since i was in 5th grade. The new opioid issue is killing me. I was taken off vicoden and put on medical weed. I have done it when i was younger and thought finally i am going to be out of pain. Well, nope. The smoking was too much bc i also smoke cigarettes. I am using the pills now. It hardly does anything. I had a surgery bc my shoulder tendon were 'shreaded' the surgeon said i have a high tolerance for pain! i laughed. What the hell high tolerance so, if i have I guess really really have a high tolerance so why do i just can't take the pain so much i just cry. I usually go away and cry my eyes out bc it just so bad. Now, i have carpal tunnel something happed to my legs. It has been months and my legs are just getting worse. I know where there is someplace i can sit down. I can only walk for 7mins then i can't stand anymore!

[@yvonnemesle8446]

@@jenniferraymus9031 I don't even QUALIFY for govt "rehab" because I'm not an addict. Got the whole rugs pulled out from under us.

[@rhoda1946]

Great info. Thank you.

[@Cantstandtherock]

Two years ago I was diagnosed with psoriatic arthritis and spondylitis. Every joint and muscle in my body are sore. I feel like I did a massive workout everyday. I had a year off to try to figure it out, thankfully my wife is able to support us, but none of the biologics helped me at all. Humira,Xeljanz, Enbrel and they gave up and gave me tramadol. None of it works, my volume control must be broken. Even the hairs on my forearm burn, it’s constant and I’m miserable all the time.

[@TheMindWarriorCoach]

I have the same diagnosis as you and fully understand your pain, some days I just want out! I have spent two years on different prescription drugs that don't work. I've tried with the drugs, alternative therapies such as CBD oil, cold shower therapy, exercise and changed my diet (Keto) which actually all helped but not sustainable and temporary affects. I'm still searching for the answer as getting none from my doctor. I hope you find something that helps (if you do let me know 😉)

[@nicolelauderdale3919]

I feel you .

[@gloriamaryhaywood2217]

@@TheMindWarriorCoach Find a doctor who will prescribe you some true Pain Medication! Opioids are safe and wonderful Pain Relievers!!😉

[@QuintonMcreynoldsgaming]

me to with my hs stay strong we gon fight this to death

[@F1no1fan]

I hope someone has listened to you by now and prescribed some good painkillers. I have arthritis and tried every possible treatment, which was rubbish. I've been on strong painkillers for over 20 years now, which work great, provided I take them regularly

[@the1stime]

Dr. Sarno’s discoveries gave me my life back and the same is available to those that dare pursue it.

[@amethystflower8799]

didn't do anything for me.

[@rogerembry4777]

I had a doctor tell me that my pain is all in my head, because he couldn’t find anything to do surgery , I had a broken back

[@rhoda1946]

Very hard to get good info about pain. I have chronic pain and find this very helpful. Thank you.

[@Goblin1986p]

look up centralized sensitization syndrome. That is where research is pointing that most chronic pain sufferers are. I just graduated from the Mayo Clinic Chronic pain rehab program and it helped me get my life back. Dr. Sletten has a great video on it. Its 8 hours a day for 3 weeks at Mayo clinic and I thought...no friggin way, but seriously I am sooooooo much happier and mobile now.

[@jeanettejarrell933]

Daniel Clauw is a Professor of Anesthesiology. Medicine (Rheumatology) and Psychiatry at the University of Michigan. He serves as Director of the Chronic Pain and Fatigue Research Center. Until January 2009 he also served as the first Associate Dean for Clinical and Translational Research within the University of Michigan Medical School, and PI of the UM Clinical and Translational Sciences Award (CTSA)

[@sandances]

My doctor suggested I call their clinic because they might be able help me. I learned that he doesn't even treat fibromyalgia patients. I see a different Rheumatologist at the same University as this professor who is far more knowledgeable and helpful than this moron.

[@teak5476]

He should be in prison for advocating the bull that he is spewing.

[@footballlegend8249]

No it's not when you can't sleep at night and the bed is the worst place to be. So tell, where does your rest come from, my pain is all over, but the main area is my chest, where my doctors nearly killed me after a lung biopsy. This medical law concerning opiates is being blown way out of control. And a lot of doctors have gone serial minded with no compassion and this fear of writing or prescribing the medicine needed for patients like myself who suffer mightily. Guns don't kill people, people kill people, opioiate don't kill people, the needles and the use of other drugs and alcohol kill people.

[@sandranewman5067]

Exactly. Message me.

[@mysterydiaz5302]

This life is so twisted, illogical and so hard 😢

[@dmahadeo]

Fantastic presentation

[@salli2883]

In his opening line talking about the volume nob being turned up is very accurate. Before the injury that causes chronic pain for people happens, all the volume settings for pain were default and worked well, but if those volume settings get tweaked during the injury (brain and spine) and your injury isn't healed relatively quickly the constant pain can begin to appear like it's affecting other areas a lot more than it might be. Other conditions or underlying conditions on top can exacerbate the problems to extremely high levels. But if you are suffering from chronic pain your only goal should be to at least understand or find out whats wrong, because you didn't feel like this before the injury and now it's been months maybe even years of suffering.

[@heidipucci9078]

Thank you Dr. Clauw, this is going to help me so much, I sound like a classic example of the Brain centered pain, and it's been going on more than 10 years maybe 15. I think with this I'm finally realizing the part I need to play in helping deal with our manage my constant fybromyalgia,back pain, migraines, everything pain. Also I am now having a hard time leaving the Percocet after a spinal fusion 1 1/2 year ago. I appreciate all of your work. Thank you, Heidi Pucci

[@lizstromsnesdolz629]

You are so full of s... You don't suffer from pain, do you? Do you have degenerative disk disease, arthritis? Do you know what bone on bone arthritis feels like? Stfu!

[@vjgray]

Now that the long term studies are all out: yoga, water aerobics, meditation scored "not effective" when compared to safe, effective and legal opioid pain control. Period. That's the data.

[@bladerunner9129]

Pain is in the brain. I suffered from chronic pain for over a year. As Dr Sarno says “you have to think your way out of this”. I am no longer in pain. You have to overcome yourself and have belief. I know it’s hard, you don’t need to preach to me. I have been there. No one can get you out of this but yourself. Trust me you will. Stop caring about it, distract yourself, do what feels good. Don’t let it bother you. You know it’s going to pass. It’s not even real. I typically hear all bullshit of the day -“how would you know” - because I’ve been through it “oh but how can I not care when I am in so much pain” - have you not been listening to me - I have been there and you just have to do it. There’s no easy path here or no shortcuts. If I can do it, anyone can. I am only leaving this comment to give others hope and let you know it is possible. No need to contact me. Start doing what you need to do. It will take as long as it takes. Have faith

[@Edp-jf8zn]

may i ask what pain did u have

[@bladerunner9129]

@@Edp-jf8zn Chronic pelvic pain

[@carolwong5949]

Wow! He has a very different experience than I do!

[@sandypanos1647]

You are a leader in the field of Fantasy.

[@dondressel452]

I’m on opiates for cancer in the bones I monitor my intake on my phone I do not take more than I’m suppose to I’m not on any other medication that he speaks of because I know the dangers of mixing drugs I do not drink alcohol So the opiates work for me I do also keep a line of communication with my doctor I’ve tried medical marijuana and it doesn’t work for me

[@lees8626]

I can almost see the main points of your lecture whizzing right past so many of these commenters! I have lived with chronic pain for over 40 years, got a fibro dx some years ago and started on venlafaxine. Woke up one morning thinking I had died b/c there was no pain. Thank you so much for this lecture!! I learned so much (especially about injury pain vs brain pain, and that you can have both, and both need to be treated), and I finally "get" it now, about the recovery process. I will try not to overdo when I'm feeling better (some chronic pain has crept back in, and depression never left), and will try to do some activities that make me happy, and see if I can crawl out of this ravine. -- Yes, my Drs have all told me this before, but having two hours of the whys and wherefores finally got it to sink in!

[@susangraham1203]

I'm glad Effexor worked for you. Sometimes, medication doesn't help people. Sometimes, the doctors can't figure out what is wrong with you, and there seems to be no help. Effexor and Lexapro have caused me more physical pain than I have ever had in my entire 64 years.

[@lees8626]

@@susangraham1203 ☹️ now that they've figured out what makes fibro tick, they should be able to apply more things to help. Hope it's soon, for you!

[@galacticwarrior4089]

If you have chronic pain the only way out is to teach your brain your safe.

[@danashannon8234]

It a very imformative video about fibromyalgia, I am not sure that he is right about the cause, research is still being done but he does describe the intense pain correctly. Many patients and research studies show the medications he is talking about barely do better than a placebo & the side effects are very concerning. I , and many, chronic pain parients do not understand why doctors are saying opioids do not treat our pain, when we clearly say they do. Antidepressants do not help pain. We do not even know if they help depression! There are too many overdoses, in general, yes but I don't think doctor's and chronic pain patients are to blame. The FDA & DEA are pitting doctor's, patients and pharmacists against each other. Too many pain patients have now been lost to suicide or quality of life dramatically decline. Cannabis is illegal here & if it were legal, I would only use it to sleep. I don't know.

[@mossl340]

... endometriosis pain is caused by uterine tissue growing outside of the uterus. How exactly is it a volume control issue when it is literally a structural problem?

[@alexandrasarno6394]

that's a real medical problem..it doesn't fall onto the cstegory of what his lecture is about

[@arturcuryllo5832]

This dude is off from the get go. The volume control is off in his head on his self-praise. He needs to turn it down.

[@arturcuryllo5832]

@@yugnok What condition do you suffer from? My steroid injextion recently allowed me to reduce opioids by half. I hope it holds up. In your eyes, though, I am a druggie. Stop judging others if you have not walked in theor shoes. It is simply inappropriate.

[@arturcuryllo5832]

@@yugnok Dude, I have a fucked right exiting S1 and a jacked right L5 facet. I was paralyzed for a year living on the floor in suicidal pain due to a crushed nerve root. One artificial disc replacement later I can do anything I want orthopedically, but the burning and stinging at that level would make you beg for Norco in 5 minutes. Stop pretending you know shit. You don't...and use your real name for one if you hqve any balls, Chuck.

[@JRCS44]

@@yugnok fibro pain is horrible from my understanding. Ugh I really think the difference lies in short-term v long-term. You say that to a person in pain and you may find yourself in some short-term pain. Idk thought I just have 8 bad discs.

[@JoannaVancouver]

It would be helpful if you provided links to the medications handouts that are mentioned in the talk.

[@johnathanabrams8434]

Two hours of a rheumatologist saying he doesn't like giving out opiates and medical cannabis is a better alternative. Throw in some mentions of chronic pain, fibromyalgia, tender spots, Lyrica, cymbalta and sleep disruption and that's basically the whole video. People are doomed if this guy is some sort of hope

[@stbam1965]

I dont like the high off marijuana. But my pain doctor cut me back from 60 norco 7.5 to 40 a month. Not enough for 2 a day. She sucks. But if I test positive for marijuana I get cut off! Wtf!! Its like I'm being punished for just trying to be able to function! I found that marijuana = wanka bar #13 is the strain I like ,I take one hit and that's it. I get high for about 20 minutes and it mellows down then. It works for my pain and I get happy feeling. I dont get paranoid feeling. Since I smoke very little and I dont use it for 10 days before I go to pain doctor I dont test positive

[@debbiesunlight7047]

Thankyou. I just had a feeling it would be like this. I don’t like the title either.

[@cammieklund]

Thanks, you spared me from wasting 2 hrs of my life.🌺

[@vickicarnes6860]

Totally agree!!

[@kimberlymarie3651]

@@stbam1965 I thought marijuana stayed in your system longer than 10 days. When you do the urine test for the pain doctor they test for a long list of things including tabaco . One time I happened to get the list of things they test for from my health insurance , but I haven't seen it since. I've heard the tests can tell if you're taking more that prescribed...the pain clinic I go to offers marijuana because it's legal in the state , but I could never afford it . There's an expensive annual fee , the store gets a large fee and the price of the marijuana items are very expensive. Most people couldn't afford it.

[@arturcuryllo5832]

This dude never had a spine injury, I gather, if he believes tai chi is just good as heavy pain meds. A healthy person telling the suffering people what SHOULD work, is a travesty. ...and yes, I am lean and fit, but I have permanent nerve damage. Tai Chi that, brother.

[@elizabethmcleod246]

Utterly ridiculous.

[@harley8680]

Did you even watch the video and understand what he was talking about?

[@dennisd1906]

He's obviously been fortunate beyond belief his entire life - he talks like he has no idea what true pain feels like. Not in the least. And he's most definitely ignored what patients tell him...yet somehow kept a career going. No idea how.

[@harley8680]

@@dennisd1906 Have you attended a real seminar? Met this man in person? No. Instead, you size up a person in a few mins. Why don't you open your eyes and listen or better yet travel and meet IRL. Are you aware of all the titles he has (scientist, doctor, etc. etc.)

[@harley8680]

@@dennisd1906 Please give your paranoia and ignorance a rest. We all “learn “differently, and obviously your brain is unable to process what exactly is being taught here. I have attended this man’s seminars twice IRL, each time learning something completely new. Apparently, you lost the entire reason for the video. It was quite easy to size you up as just another junkie looking for a pill fix. You never elaborate on what exactly “you suffer with” … the title of this video doesn’t state “your pain is going to be cured” and that is where your ignorance lies. I do bring up his education, background, titles, because that makes him a well rounded person which YOU are not. Maybe you could take a remedial listening course and finally get the real topic here. Now sir, since you think like a narrow minded caveman who doesn’t understand the point that is being taught in the video session - please kindly move along.

[@caredfor6872]

So if someone has back surgery and gets rods and screws in their back if they turn their brain volumes down their pain will go away.

[@alvinanderson7944]

Currently going through hell because of a small stumble thar I dismissed at first even though a couple of falls had tweaked my lower back area where I have has multiple surgeries and caused terrible flare ups. I am sick to death of Dr.s who are conservatives and follow the party game in drugs. I have also been physically assaulted and called many insulting terms that are lies by Dr s and nurses to the point I wanted to punch them for their lies and insults. I am a very angry chronic pain sufferer who is fed up with having to fight to have my life from lying, myopic medical people. We should have the right to ask for testing of our caregivers.

[@maryann_bekind]

One of a few people who seems to really understand Chronic pain and Fibromyalgia.

[@scott1285]

Yea it's great. I love being told there is no treatment. That's according to his NP. He set me back 2 years.

[@00buck2]

that is what I keep telling all them bill collectors it's all in your head , I done paid it you just think I never.. It's all in your head.

[@mapleleaf4349]

I really enjoyed your talk. I have this brain pain and now someone has explained it to me. My Dr. can really learn from you. Thank you.

[@paulojustinianookubo]

I suffer from Fibro pain abdominal pain colon pain prostate pain all the pains are sharp burning and sometimes I feel like I just cant handle it anymore. :'( I ask my self why me if I am so young and I do not drink. Right now I am alive thanks to the antidepressants .

[@lascar2275]

read about TMS, (tension myositis syndrome) thats what you have and its so easy to cure

[@paulojustinianookubo]

@@lascar2275 how do I cure it? I am stretching doing deep breathing and taking muscle relaxers

[@crankyoldbutchbuildsout2013]

I have this Only a year. I’ve suffered depression long enough, with this added I’m on my way out soon.

[@tominnc315]

Order : unlearn your pain. Howard Schubiner. You ll be cured in 2-4 weeks

[@kimberlymarie3651]

@@paulojustinianookubo western medicine only treats symptoms, not causes, so the cause continues on to make you sicker. They always say We don't know what causes anything and there's no cure for anything. I've even seen in magazine add for medicine say in the small print that they don't know how the medicine even works ! I've lost faith in our western medicine.

[@sallyhanson8317]

I've had fibromyalgia back and neck pain since my 30s. I also have a curved spine. After an incident at work where I caught a box of six-part computer paper from a stack a boxes workman's comp sent me to a physical therapist and I'm in a real physical therapist and I already had a great chiropractor. Of course I was working out at the gym anyway, but had to stop for a while because of the injury. Once my chiropractor acquired what they call the Nautilus back machine, which you used to have a prescription for, that's when the real healing started. Between the real physical therapist and my chiropractor I was out of pain within two or three months or less. Today you can't find a nautilus back machine and the physical therapy that my back doctor prescribed for me slaps me for $40 copay a visit. The physical therapy they give you today is so damn slow that you cannot even feel the effects of it. Maybe for knee injuries blah blah blah, but now I have osteoarthritis in my hip, osteoporosis and degenerative disc in my hip. My joints in my fingers and my toes and my wrist feel like they are on fire sometimes. Yeah it's all in my head. Now we all know I think that the brain and the pain is all connected and I had the pain under control for years with just Advil and clorazepam . seldom did I use opioids. I am a mental health counselor and when Bush and Obama destroyed our economy in 2008 most of my jobs went away. I live in a part of Florida where the pay is too low anyway and I ended up walking into Marshalls and asking them if they were hiring. That was 8 years ago. They have kept me standing in a dressing room for almost 8 years. I have a stack of ADA very specific paperwork accommodations. The accommodations would be very simple. Just put me somewhere where I'm moving around and they wouldn't do it. I started having pain after the first year on my left side which is my bad side. It got so bad I would leave work and go to the ER. Eventually workman's comp had to do something. So they sent me to physical therapy, which is what the orthopedic doctor prescribed after a million x-rays. One look at my back and he was amazed that I wasn't in worse pain. I only saw him like three times and the physical therapy was so slow. I would return to work the next day the pain would return and the next day I would go to physical therapy. It's a joke. I finally got in to see one of the best pain management doctors in Florida. He gave me my life back prescribing me opioids and some gabapentin. No mention of epidurals or anything like that for me. He was the kindest man I have ever met and often asked me why I haven't given up. This was in 2019 and in 2021 he passed away from cancer and the other doctor discharged me from the clinic without a prescription. Without the pain medicine I can't work because I can't stand or sit because I have spinal stenosis and most of the back problems were triggered by standing and this damn dressing room, my house was destroyed by hurricane Michael when a tree fell through it and of course the insurance company delayed everything. I owned my town home and I am retired living on social security and what I make it Marshall's. I kept trying to work and then one day I walked out of Marshalls to my rented efficiency and went to bed. I went through withdrawal, IBS and skin cancer. The antibiotics destroyed the good bacteria and even though I got into another pain management doctor. I was in such bad shape physically and mentally that I did not crawl out of bed except to take my little dog out. It has been an absolute nightmare. I was only working part-time but on medical leave of absence for 7 months. The manager promised me he would move me but when I return he schedules me again for the dressing room. After almost 3 months I called human resources and the next day I was on the floor in a different department. As long as I was moving around I was fine. I didn't even need pain medicine, but after Christmas this manager was so pissed at me that he stuck me back in the dressing room and would not move me. In 2021 after my doctor died I went to bed and did not get out of bed except to buy some groceries and take my dog out. My antidepressants did not work any more probably due to the opioids. So I took the opioids and hope of getting some dopamine in my body. I really wasn't in that much pain except for my stomach. Now these doctors want to tell you that you really need to map your body and your brain. What they don't remember or think of is that when neither is functioning well for you, it doesn't matter. My psychiatrist did not have an answer and the pain management doctor I signed up with I saw one time. The rest of the time I just see his nurse. The only thing he does is basically injections or epidurals. Now I've been back at work for several months and something happened in my hip that caused me so much excruciating pain I had to hold on to my hip to make it to the car. Now the doctors have done nothing but take an x-ray and refer me to an orthopedic clinic that told me the last time I was there they couldn't find a reason for my pain. This is what these people do and then they write you a script for physical therapy. I still haven't called the physical therapist. Yes it's to strengthen my core, but I've lost so much muscle mass it'll take forever. Now I'm searching for a nautilus back machine and a decent chiropractor. I don't know what my point is here except that this doctor is giving a lecture about the research he did 5 years ago on managing pain, specifically fibromyalgia and different forms of arthritis. What the hell are you supposed to do with the deformed hip? Tell your brain that it doesn't hurt anymore and that the degenerative disc and the bulging disc aren't hurting anymore? I'm laying here at night praying I can go to work tomorrow and work for 6 hours, because if I don't have a reason to get up I might as well not live. The only thing that's keeping me alive is my dog. The constant chronic pain and the BS that these doctors feed you lead you many times to hopelessness. Who the hell wants to live like this? I have prayed and still pray for God to send me some blessings. I've never been a couch potato. Fortunately I'm still tall and slim. Unfortunately, the insurance company didn't give me enough to restore my town home and I live in an efficiency in a high-rise that rents to people that need to be in a nursing home. I look around and just want to cry and ask God why me. I've always been a fighter but sometimes you just reach the point where life is just not worth living. I hate to sound so morbid but that's how a lot of us feel sometimes. I wish there was a pain support group online for us because many of us are suffering and this guy on this KZbin channel is not helping,. If anybody has any ideas I'll be willing to leave the group. I've led many groups in the past where I worked with trouble teenagers and juvenile delinquents. I think we could all use some support from each other. My close friends don't live in town and it's hard to go to church or make friends when you're in excruciating pain or you're so depressed you can't get out of bed. Sometimes we just need a friend.

[@W3BZSL1NG3R]

Sorry to hear that @ Sally Hanson My advice; Is to Keep shopping/looking for a different doctor, until you find one that listens and has you're best interests in mind. It took me years to find one that listened & cared.. Good luck. Cya, W3BZ

[@raydavis4446]

I wish was more online communication between chronic pain sufferers also. We could exchange treatments, supplements and ideas. Doctors are crap!!!!

[@faith777t]

I find it insulting to have a doctor to to say it is all in your head and dismiss you. Some of us need pains medication.

[@geanettaheard3762]

Hello Dr. Claw! You diagnosed me of fibromyalgia in the early 90’s at Georgetown Hospital. Just saying hello from the DMV.

[@moneygetten]

Your fibromyalgia is probably Tms

[@marvinabigby6376]

@@moneygetten what is tmf?

[@Misslotusification]

Muscular Tension Syndrome. Tension Myositis Syndrome (TMS) is a concept developed by John Sarno, MD, that treats several forms of pain conditions. The theory of Tension Myositis Syndrome is that your mind creates pain symptoms in order to aid in the repression of subconscious thoughts and feelings.

[@gawebm]

Wow! So refreshing to hear this. I've been living with chronic pain for may years and it continues to get worse. In my case it comes from many different areas. I've had MRI's and X rays that show nothing so doctors have no solutions for me. Just hearing you say some of these things makes me feel like I'm not crazy.

[@ceresmary206]

Dear @gawebn, It is so easy for our medical teams to miss something fairly easy simply because they are looking (in pain case) for a "needle in a haystack', but it doesn't mean you aren't having issues. Another point: sometimes doctors are "so busy" especially in the ER they miss doing simple tests that can show them where the problem is: case in point? Our neighbor (it was finally found) had a heart attack, but no enzyme tests were performed. This is crucial, as that you only have so much time with the heart to help it along. Sort of drove us nuts, they said to him; "We see you're having a problem, but we don't know what it is." No one needs to be waiting three days to have a simple enzyme test done.

[@jimp2200]

Valuable recent update for patients and their friends, by a top expert in the field. Highly recommended. Just wish the JAMA article he recommends was not behind a paywall.

[@cliterally1791]

Google sci-hub. It gets shut down a lot and has to move domains, but I think sci-hub.tw is working now. Just enter the URL or doi and you're good to go!

[@jatteam]

Peter McDermott no it is not !

[@IMSiegfried]

You mean recent update in propaganda and fear mongering! The drug war is now the war on chronic pain patients.

[@carolynrombardo4821]

@@IMSiegfried 100% spot on..

[@CMoore8539]

@Carolyn Rombardo It’s not fair.

[@mariarib6504]

RE: Cymbalta - TOTALLY correct! I started slow and the nausea was tolerable. Went away in less than two weeks.

[@josielisette6768]

Maria Rib. Try the cbd oil it has help million of people worldwide i try it and it works for me i bought it here >> www.cbdbiocare.com?a_aid=Lifewithcbd

[@elizabethmcleod246]

Cymbalta is poison. Read about it.

[@CMoore8539]

@The Pornographer Thanks for the info! I was wondering why my side keeps hurting.

[@gabelincoln3608]

Doesnt work

[@carollarevalo8069]

You made a lot of sense ! Doctors need to know and then take time to act by informing the patients.

[@barbaraferron7994]

You call the police and say, "There are alarms going off all over the building." and they say, "Turn the volume down."

[@christopher-tipstrumleslie6307]

These guys chop us up, put screws in our bones, then say turn down the volume? Ah yeah, Doctors who experience cronic pain are the ones who know what it is. You may perceive pain in your mind, but it hurts in your body. It is a real thing. It can be disabling. It is a constant battle. I got mine in '85, I fell from a roof. After thirty-five years of bad medicine, my docs have agreed to a large dose of Suboxone/Narcan. So far it works. My pain is controlled and they promise not to reduce my dose as they have the last ten years. This guy with the volume knob is over analyzing everything. Just cover your ass as you always do, and prescribe the Suboxone Doc, please.

[@vickicarnes6860]

Once you are on Suboxone for pain absolutely no doctor will treat you for pain because they believe everyone on it is a addict and it's so unfair.

[@caredfor6872]

Scans can miss medical problems and is labeled as having a mental condition. If someone has cancer and it is missed they have to lay and suffer because of a misdiagnosis. And be told the pain is all in their heads.

[@puppy_BYTE]

I am a retired neurologist with chronic pain of feet, knee, hip and recently low back starting 20 years ago. Xrays shows arthritic changes, and I have suspected for few years, that the rewiring of synaptic connections of brain indeed may contribute greatly to pain. Somewhat reminescent of fantom limb pain syndrome. No more surgeries and medications for me, I will concentrate on weight control, meditation and hypnosis. I have just started with self hypnosis and is starting to help ease the pain.

[@krusbaer11]

Check out Alan Gordon practices. They helped me get pain free.

[@DDumbrille]

Check out Dr. John Sarno's videos and books. Many videos on youtube. The guy helped THOUSANDS of patients from around the world become pain free, no matter what their x-rays said.

[@Jerry-zx7rf]

just save urself the time and look into food ect sensitivities and high dose vitamin d

[@lauraanne1906]

Excellent!

[@BenClason]

I took Neurontin for a seizure event 25 years ago and it made things worse. My Neuro took me off it and I've not had anything since. Is there a medical team that can help with fibromyalgia?

[@lisamoore8858]

Had a stroke in my thalamus and have been diagnosed with thalamic stroke nerve pain. Because my stroke damaged my thalamus I can't turn the volume down. For the last 6 months due to my thalamic stroke my nerve pain is like being tortured, electrical, burning, fire, ice, needles, and I'm not able to use left hand. Most days to be able to "function" is i put myself in my brain. My left side of my face including my nose, eye, forehead, and top of my head are numb and same pain as hand. My left leg too. This is zero quality of life. I never knew when you had a stroke that pain was involved. I could have deep brain surgery and then brain surgery but the percentage of success is not good. I've been told, sorry you having a stroke in your thalamus and it's damaged, it's a bad outcome. Life expectancy also changes due to this horrid torture pain and zero functioning of life. I pray for all of you.

[@drcharlestsilvera572]

Hello my name is Dr Charles Silvera , If there be a need of a medical assistance on stroke related issues like the thalamic stroke that you did mentioned do not hesitate to call in okay, perhaps leave a message and you'll get responded to immediately... I will be there to entertain your appointment.

[@noneyabusiness9441]

I have ITP and it’s real pain..I have a spinal fracture that’s real pain. I mostly ignore it and I’m 97lbs not overweight. I mostly just suck it up. Pain isn’t in my head

[@FlauntFilming]

God Almighty imagine going onto one of his research studies and being prodded and poked prove that you just don’t feel very well unbelievable

[@marvinabigby6376]

How do we treat the brsin for ibs endometrial and Tmj and swollen lmee.

[@alanroberts7916]

Walk a mile in my feet. Then tell me my pain is in my volumn control...

[@jademanuella3986]

Thinking you’ve got it harder then everyone else is the problem. Probly always has been

[@terrilynn1110]

The first MD to address chronic pain and faulty brain messaging. I have CRPS and take many meds. It wasn't until I discovered self hypnosis that I began to get much-needed relief. My pain is 24/7 and when an acute episode erupts, measured using the McGill Pain Scale, for 18 years I have exceeded the highest limit. In desperation I sought alternative treatments. While I don't think I will ever be be pain free, I can "dial down my brain". I will be sharing this lecture with my pain MD,.

[@noexp7710]

I’m an intractable pain patient that’s calling BS. This approach in the medical field is going to cause neglect and inhumane treatment of pain patients. Dismissing serious pain like what is happening now is going to lead to suicide of previously stable patients.

[@fragileomniscience7647]

"Faulty brain processing" is laughably close minded, ignorant and imprecise. If you are GABA-deficient, it's no wonder it is going to be the case of overexcitation and cross-wiring to code for widespread pain in the primary somatosensoric cortex and thalamus. I'd thus expect benzos and gabaergic drugs, perhaps even low dose propofol to have an effect. If you lack electrolytes (hepatic/nephrotic insufficiency, happens quicker than you think), muscular pH decreases, and acidic muscular metabolites and prostaglandins excite sensory neurons. Autoantibodies, even antinuclear ones, may act on neuronal surfaces, causing cytokines and COXs to irritate. Finally you are left with structural abnormities, like whiplash, ankylosing spondylitis, or slipped disks. But these are rather more obvious.

[@jamesbreedingcoach]

Great to hear you have achieved some relief.

[@judyortiz5745]

How do you turn down this high volume control?

[@sharonlujan9497]

you are really spot on about identifying the major stressors we obviously can no longer handle and staying away from it!!

[@booklassygarrahan3929]

This. This finally explains to me why I don't qualify for fibromyalgia, but I do have some symptoms. It's been so frustrating. I have trigeminal neuralgia and autoimmune diseases. I have quite a few non-drug methods of dealing with pain that I use first, but sometimes it's simply not enough. Non drug therapies can make a big difference, though. Now I know what else to discuss with my neurologist.

[@ahmedessam6533]

I think than we need more explanation about non pharmacological managment for chronic pain.

[@janeanthony5205]

I am a unicorn, but my doctors will not give me anything I need.

[@KarenmitchellANI]

Thank you. Chronic pain for over 25 yrs. I was on a script pain med AND otc pain meds, most of the time 6-8 otc pain killers. Eventually I developed gut damage, liver and kidney damage. In 2015 I took things into my own hands, stopped all meds and focused on my diet, eating habits and lifestyle. Sure, I'm still in pain, but at least I know where it is, where it originates etc... I have pinched nerves in several areas of the spine and my foot where I dropped a log on it back in 2005. My question is, how much pain can a body cope with, what are the symptoms of extreme, can a body shut down when the body is in extreme pain?

[@tam4givin]

Why do you not mention the role of genetics in these medications? I have a cyp2d6 gene variant so most pain medications do not work. For years doctors thought I was just a addict trying to get drugs. Why are doctors not ordering the genetic metabolism tests that insurance pays for?

[@Gpacharlie]

This is one of the better presentations I have seen on the increasing understanding of chronic pain. This doctor speaks with an experienced common sense as a doctor who has dedicated himself to treating this disorder. I have struggled with this for nearly 20 years now and am finally understanding it. It has taken its toll on my life but I have stayed positive and hopeful in spite of it. I am finally getting improvement after a very long disability and much frustration at the hands of perhaps well meaning doctors ( I am being generous and charitable here ) and this doctor is one of very few who after listening to him I would strongly recommend that you take his advice to heart. Cannabis is a crap shoot. I don’t enjoy the side effects but now and then it is a short vacation from misery. The problem is that their is much experimentation required and its an up and down thing and you end up stoned. This isn’t good if you are raising small children or need to drive or operate machinery. It can be helpful to reduce the intensity of pain and relax spasming muscles and lift mood but it is just one tool and it can kick your butt if you aren’t careful. The Mayo Clinic video is good and there are some from Australia that are good too, (Moseley?) More and more people are being enrolled in pain programs now which is good. But we have a ways to go yet before there are effective treatments for most people and many doctors don’t want to deal with pain patients at all especially after they were blamed for the opioid epidemic. I have no doubt that the stresses of our modern lives are causing many of us who have a predisposition to chronic pain either by genetic predisposition or significant traumas or long term stress or stroke or spinal cord injury or head trauma or abuse as children or sexual trauma or combat trauma or, or.... that there is a rising epidemic of stress related neurological disorders in our culture. Actual successful therapy is still very much unavailable and a type of meditation technique is mainly what they now offer. Good luck getting a brain MRI to find out though if there are any obvious brain abnormalities. In the 80’s and 90’s people who were diagnosed with fibromyalgia were called everything from hypochondriac to malingerers. A lot of people have suffered a lot with little sympathy from friends, family and doctors. Hopefully this is changing now. To get peer reviewed studies and articles as a non physician is still difficult and even if you can get access it is expensive. Also doctors turn their nose up when you suggest a diagnosis or test or internet article. So if you are experiencing symptoms of chronic pain and other unexplained symptoms I suggest you first google Dr Sarno and tension Myositis. Then google Mind Body Syndrome and Dr Shubiner and check out the symptom list of over 30 associated symptoms. Then Google Central Sensitization and find the symptom checklist for that disorder. It will take a little time but you will begin to see that you may have a “wound up” central nervous system which is the main culprit in your multi symptom sufferings.

[@jademanuella3986]

This guy knows the real shit. Keep it up man. As good as cannabis is it can be a vice for more than half the world.

[@Gpacharlie]

@@hurtlingasteroid4014 I try to stay positive and optimistic but you are correct in pointing out that there seems to be a real shortage of good diagnosticians when it comes to finding the root cause of widespread pain and associated symptoms.

[@selmo6376]

@@jademanuella3986 No way cannabis induces to adiction ! (at least not as sugar - a devastating vice by the way -, tobacco, álcool, and cocaine of a long long list). Sorry, english is not my native linguagem.

[@robinrosser6171]

V

[@DDumbrille]

The Mayo Clinic is an overrated joke. You're right, Sarno has the answer. Not many want to hear it, but he's right.

[@pamelasmith2625]

Thank you for this excellent video. I have had Fibromyalgia for over 30 years and am allergic to all the pain meds. I have been taking oxycodone for about 15 years 1 - 3 per a day. I recently had a very high risk difficult eye surgery and had a very traumatic time. I felt most of the operation even though they did give me an anasthetic and freezing. The doctor told me it was because of my fibromyalgia, but after seeing your video, I realize it is due to the oxycodone. I have to get my other eye operated on in a months time. I am going to stop taking the oxy which hopefully will make my next surgery a little easier. Thank you for explaining everything so well. Your video is very informative.

[@shariwilson1730]

After having a bronoscopy with the doctor was supposdly putting me in a twilite sleep and amnesia medication it didnt work so the 2nd one i asked for an anestgiologist and it worked. Also worked with eye surgery.

[@ionicacorbet3561]

Can Diplopia (Strabismus) be a symptom of fibromyalgia? (Eye muscle involved!?) Otherwise all normal tests: multiple sclerosis, myasthenia gravis, thyroid, etc... Acquired in the last three years and worsening over time.

[@YSB_California]

Does disordered sensory processing also apply to the good sensations?

[@TheNancy5000]

Excellent information.

[@MrCCDV]

I have been told that I am a drug seeker. My chronic pain is currently in my spine. 3 dark lesions on my spine which have been interpreted as arthritis.

[@nicolelauderdale3919]

Yet they don’t listen

[@andrewmino4109]

Hello Doc. Can you help me? My favorite thing you said is spiral upward.

[@ilikejelly7890]

I had chronic pain for 20 years some tingling and easily injured and very bad episodes. Was told it was in my head, fast forward to 2021 my neck pain caused bad headaches numb burning arms shoulders etc, was diagnosed with chiari malformation and cervical stenosis C4 c5 c6. And that is just the top half, still waiting on 2 decompression surgeries. One day they will sort out lower half

[@donthompson8917]

SO YOUR TELL ME THAT THE VERTBRA THATS GRINDING ON MY NERVE.IS JUST MY IMAGINATION AN DOSENT HURT. LOL

[@CMoore8539]

Exactly!!! That’s not in your mind.

[@sandranewman5067]

It’s exactly what he’s telling you. I hope and pray he doesn’t torture more patients.

[@sandranewman5067]

You mean, medicine like hydrocodone, works. Not “drug..”. It’s a medicine. 😡

[@jerry-zx7dy]

This guy doesn't want to lose his credentials and has sided on the government side . I have been on over 360 MME's of opioids since 2006 and have actually been taking less because my back pain isn't as bad. I haven't built up any tolerance and the withdrawals are flu like symptoms that either I put up with the withdrawals or the pain which was a no brainer. I have significant pain and opioids are the only thing that are helping me. I am a Unicorn and their are a lot out there like me !! If they continue to reduce my medicine I will not make it ! I hope they change their rules pretty quick !

[@IMSiegfried]

Exactly. Once my doctor found the correct dosage for me I was able to stay on the same dosage for over a decade. But that's all going away now because people in pain won't stand up for their rights to pain care.

[@mizztab3677]

I also have chronic pain that is helped using pain medication and don't agree with taking it away from patients. Mine is being reduced to the recommendation of the CDC dose. I never got to a dose that allowed me to have a life but I did get some relief for a few hours out of the day. I don't expect to be pain free but I do expect some relief which medication can provide. I don't want to live in constant torture for the rest of my life so I will be one those pain patients that was driven to suicide by the government,FDA,CDC and all those who supported them in demonizing opioid pain medication.

[@carolynrombardo4821]

@@IMSiegfried there is literaly not one word u have written that i cld not agree more with..i also was on the right for me...n..same dosage almost ten yrs last half yr..he has (Thank God) compassionately been steadily reduceing me..my quality of life has been neck n neck with the changes..i read some stories of people being dropped no warning no reduction..with no humanity..my heart goes out to everyone of them..and every story fires me up even more..i hope n pray i live long enough to see everyone involved b held accountable...sadly the reality..is the rich n powerful dont suffer..n..the rivh n powerful r not held accountable either

[@iramfirdos6056]

Thank you so much Dr claw for sharing your valuable knowledge with us and educating us about this very important problem which we always have misunderstood about. Love your way of explaining and you are right about people who have pain in head have sensory sensitivities! Really appreciate your efforts.. may God increase you in your knowledge.

[@noexp7710]

He’s only creating more misunderstanding and confusion in the medical field. I’d love to see this dude make it through one day of intractable pain I bet his position would change real quick. He’s causing inhumane care and neglect of pain patients who need help.

[@suzannemcghie6532]

.0

[@SADGOD633]

yeah the guy is a complete loser @@noexp7710

[@janyenyo]

Tell me about endometriosis. Severe debilitating menstrual pain from age 13 through age 48 except while pregnant and while nursing and having amenorrhea during that time!! TOTAL relief after menopause!! Not in MY HEAD!

[@janyenyo]

AND my husband's knee pain disappeared after his replacements.

[@elizabethmcleod246]

I had it my entire adult life and it was never treated. I suffered terrible menstruated cramps. At age 61, I required a laparoscopy and the gynaecologist found endo on my right ureter.